Re: swallowing /voice problems

[Guest guest]

Jan,

I have some of the same issues with my voice. To be specific, hoarse and raspy,

slurred, difficulty swallowing small objects, choke on my own spit, messed up

gag reflex and spasms. My CMT symptoms are not that severe at 54 yrs. I do have

braces, they are a Godsend as I am still working. Others in my family have some

of these same symptoms, as well as other proximal symptoms such as

kypho-/scoliosis. Some of us are profoundly deaf, (I'm working on it but not

there yet).

Yes, I think there is a connection!

Hugs

Jim Nash in Ohio

[Guest guest]

Jan,

I am a Speech Language pathologist and my thoughts are that your symptoms sound

more like Myasthenia Gravis. That is also a neuromuscular disease. Have you

been diagnosed with CMT via medical tests or just symptoms? Yoy might just ask

about that disease when you see the Dr.

[Guest guest]

I also know that there is another condition that does get confused with CMT

which involves swallowing. It too is a neuromuscular disease called SMA, spinal

muscular atrophy.This is the condition they believe I have, although I do not

have the swallowing symptom.

Jackie

[Guest guest]

Hi ,

Oh my gosh, I have the same speech problems and I am seeing a speech

pathologist tomorrow but what I find interesting is my Grandmother on my

Mother's side had Myasthenia Gravis when she died when my Mother was 6. They

were unsure if it was the disease that killed her or smoke inhalation that she

rec'd some weeks earlier when their house burned down. I have never had the

blood work done yet. I can not afford it.

I will let you know my findings tomorrow when I see speech pathologist.

Laurie in Sarasota

[Guest guest]

Thank you Jackie for the input. I appreciate the information.

Jan