Guest guest Posted January 3, 2005 Report Share Posted January 3, 2005 Hi Kathy - My name is June and I am 70 years old and I have CMT1B. Like you, my feet are the worst but hands starting to be affected and balance is terrible - when I stand still without touching something for balance I tip over. Progressively worse over last 5 yrs. My father (tho undiagnosed) had this condition also and now my daughter has it also. I am not sure what you mean by " dancing legs " . Maybe restless legs, which I experience a lot when I am trying to go to sleep - can't keep em still. This condition, according to lots of people, can be helped by putting a bar of soap under the sheet near your feet. I haven't tried it yet but intend to if it gets too bad some night. Where are you from???? I am from Northeast PA. June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2005 Report Share Posted March 15, 2005 Welcome to the group Kathy, I'm sure Gretchen will be along to answer your questions or point you in the right direction. Her knowledge is incredible as I'm sure you will soon find out. Glad you joined. Elaina/NY Quote Link to comment Share on other sites More sharing options...
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