side effects with Baclofin

[Guest guest]

I have been having serious fatigue. Far beyond what is normal for me

since starting on my Baclofin. It has, however, stoped most of the

pain that I have been having in my hands. Are there any other drugs

out there like Baclofin that can help to control this pain? (And

maybe require less frequent dosing?)

Also, I think I have decided not to go back to the neurologist who

perscribed the Baclofin for me. While at the appointment he told me

something that somewhat upset me at the time of the appointment, and

since than hes out and out made me very mad. While in his office, on

my very first visit to him, he told me that I should not have anymore

children because the only way to truly stop CMT is to not pass it on

to anymore generations of children. This man really has no idea who

I am or what kind of parent am and regardless, I never have thought

it would have been better for my mother to not have me because I have

CMT. This outrages me beyond words! So I will not go back to this

doctor.

Now what do I do? I need to find another docotor who will be somewhat

knowlegable about CMT in order to continue to get medication for my

pain.

Just needed to vent a bit. Thanks for listening!

Venting in Ohio

Mandy