Re: ToeOFF experience

[Guest guest]

Hello Donna,

Welcome to the list.

Thank you for your response. That is exactly the kind of information I'm

looking for.

Bob McA

[Guest guest]

Donna,

I too wear the Toe Off Braces. I have not experienced the same things, but my

orthotist put padding around various areas and glued an orthotic device on the

bottom before I ever took them home.

I too felt like my gait was so much better. I was able to take bigger strides

and my posture appeared to be better. But alas, after a couple months, the

exhiliration of walking better seemed to disappear. I am unable to walk without

AFOs, and also need to explore a better option. One that is sturdier and gives

me more support.

Please keep me posted on what you find out. Unfortunately, my insurance is not

as nice as yours. I had to write a letter on attorney letterhead in order to get

them to approve the Toe-Off. But now that I am so much weaker, I believe I am

wiser now in dealing with insurance companies.

Jackie

[Guest guest]

Hi Jackie,

Have you had the orthotist examine your Toe-Offs for delamination? I had the

same experience of their feeling great ( " wings on your heels " )and then after a

few months a loss of efficacy. The defect wasn't apparent to me until the

orthotist pointed out that what looked like the texture of the Kevlar was really

a separation of the layers. If you've had the braces less than a year, they

should be covered under the warranty, and as I said the Camp company was really

great about replacements. You might want to inquire about the Ypsilon brace as

well. It is a sturdier version of the Toe-Off.

Donna

[Guest guest]

Thanks for the info!

I have had mine for over 2 years. The orthotist that fit me is now living in the

Mid West, but I am going to go to someone new for a more complete evaluation and

to see what elese is out there.

I will look at the Ypsilon brace. I think I may be more ready for a customized

brace at this point.

Jackie