Guest guest Posted August 27, 2000 Report Share Posted August 27, 2000 hi Gillian (et al): I don't know what happened to the EMG results. I sent the post, but?? (please moderator, no big deal - it's probably on my end) Anyway, the EMG shows no nerve damage, but definite muscle degeneration. The physiatrist (a doctor that specializes in rehab: PT, OT, etc.) that ran the test indicated the two possible diagnoses are: polymyositis or a myopathy. The rheumatologist is leaning toward polymyositis (before he saw the EMG results). The physiatrist even tested his " good " side, because that leaves the " bad " side to be biopsied. I hope next week. The sample will be sent to Mayo for testing. Another new symptom with all of this: his hands, particularly the right (his good side, go figure) are now having uncontrollable tremors, from what I can tell they are associated with pain. He had an episode on the table during the EMG. I know there must also be some vascular involvement, as he gets blue/grey toes and fingers that are cold to the touch when he is having a great deal of pain. No one seems interested in this symptom yet. I begged the internist to get him in with a dermatologist. He " forgot " so many appointments with the last one he is embarrassed to go back. I thought he was blowing them off. Perhaps, after reading all the posts on forgetfulness, he really did forget. Hmmm...one more thing I will definitely monitor more closely in the future! We'll try to get a definite diagnosis on the P (with dermatomyositis??). It's definitely P on his legs, arms, chest, back, neck and scalp. It's very red, hot, dries up, terrible scaling, and if no heavy moisturizing, cracks and bleeds. The stuff on his face may be different, or since it's only a few days old, not severe yet. It's red, started as little dots, spread together, and is hot. It's scaling around his ears, just not on his face yet. It is all very painful. Mark says it's like having a new sunburn all the time. take care! Laurie [ ] Polmyositis & Dermatomyositis >Hi Laurie >If Mark has Polymyositis he would test positive to the autoantobodies in his >blood tests. >However his blood is normal? As to if the rash is psoriasis, well patients >with Polymyositis also have Dermatomyositis, red blotchy skin, yes >especially on the face. >I cannot understand why they would put him on MTX? >MTX is a drug for PA and RA not Polymyositis and Dermatomyositis! Unless he >just has straight forward PA and not the Polymyositis. >Marks CK level at 24 would be considered NORMAL. If it read 18 then they >would say it is low! The amylase level would have to be READ in conjunction >with his other blood test results, which are all NORMAL, therefore it means >NOTHING, just a blip in the system. >I could not locate the EMG results, unless it is stuck in the system. Can >you please forward me a copy? >Love and God Bless >Gillian >To be blind is not miserable; not to be able to bear blindness, that is >miserable. > > > > > >Please visit our new web page at: >http://www.wpunj.edu/icip/pa > >We are currently discussing new chat times. moderates a chat on arthritis at >www.about.com on Thursday evenings, so check that >out in the meantime! E mail at RA@... for details. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 My EMG showed normal firings, with some reinnervation, which suggests a neuronal form of the disease. My EMG 30 years before that showed the same. The one before that was never completed because it was so painful and I begged my mother to get me out of there. A neuronal form, with normal firings and some reinnervation, and no family history of CMT, is suggestive of a 'type' of CMT Type 2. If you don't understand your EMG report, ask your doctor to explain it to you. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 My last EMG said that my nerve conduction was a " little " slower than normal. That doctor said he doubted I had CMT but I had a mild neuropathy instead. His diagnosis didn't explain the high arches and hammer toes and other foot deformities and the AFOs. I also have reflexes. What type of CMT could this be? Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 Jen, My guess type 2. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2005 Report Share Posted February 8, 2005 Jen, I don't think any of us can begin to speculate on what type of CMT you have since there are so many types. (many more than I even knew existed). The only thing I can say is my CMT labs came back normal and it took a specialist to diagnose me. Good luck. Elaina. Quote Link to comment Share on other sites More sharing options...
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