Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 Hi, my name is Katy. I do not have CMT, but my dad and one of my son's does. It's been a fairly interesting journey. My dad was not diagnosed until he was in his 50's(he is now 79). Until that point he was under the impression that he had polio as a child. At 18 as an unmarried teenager I had a son whom I placed for adoption. Fast forward 33 years....I was able to locate my son that I placed for adoption...as we developed a relationship he advised me that he had CMT. I have two other a children, a son and a daughter...neither of whom have shown any symptoms of CMT. The relationship with my first born has been slow going...after almost a year of no communication he began e-mailing me a few weeks ago. He has shared with me that he is type 1X. As my dad has never been typed this was helpful information. My daughter and her husband are in the throws of starting a family. With the information we've learned about 1X she is going to be tested. I'm reaching out to all who have type 1X to learn as much as possible. Also does anyone know what percentage of monies raised for MD research go to CMT research..MD walks, telethons etc. has anyone ever heard of a CMT walk...I am interested in becoming very involved in raising funds for research of CMT. I look foward to hearing from you all. Quote Link to comment Share on other sites More sharing options...
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