so much in common

[Guest guest]

Hi Kay,

My son Jeff was sick with strep all the time. He has had his

tonsils out and still has had strep. On the OCD-list I have read some

info. on the connection between OCD and strep. I think the name for it

is PANDAS. Maybe someone else can correct me on the name if this is

not it. I know it is close to this though.

Jeff had a horrible reaction to Prozac. We now have him on Celexa.

It is pretty new on the market. I also take it and am VERY happy with

it. Jeff is doing very well with it too. There are hardly any side

effects. That is one of the reasons the Dr. and I chose this drug. The

only side effect I have felt was having the cold sweats for the first

week or two. Jeff was able to sleep very well in the past, but we

noticed that he was waking up very early once he started on Celexa.(2

or 3 am) The Dr. put him on BuSpar along with the Celexa. The BuSpar

has helped him sleep and he just seems a lot calmer. These two drugs

hopefully are going to work for him. We have tried so many. It has

been very frustrating for him and us trying to find the right drug.

Just hang in there. There are so many great drugs out there now. Keep

trying!! I know it can be frustrating, believe me!! Keep us posted.

Best Wishes!! take care,

---Kay Dugan <alilnutty@...> wrote:

>

> From: Kay Dugan <alilnutty@...>

>

>

> How nice to find more people to have as support!!

>

> I have a 6 yr old son with OCD and other medical and emotional issues.

> So many parents that responded in these letters have experienced

> problems like ours. The clothes (tags for us), only certain brands of

> socks and shoes. The rituals, the lining up of toys, we also have

> closing of doors, this is due to anxieties. He seems to fear the

> rooms themselves or what could be in them (evil). The getting " stuck "

> on things, ie. wal-mart, burger king, people, movies (or parts of

> movies). He has nightmares that someone he loves is hurt, last one

> was my oldest daughter, he dreamt both her arms were broken and her

> feet were missing. He doesn't remember how it happened. We are

> concerned about the problems he has sleeping. He has also begun to be

> more aggressive again to his siblings.

>

> Another thing that bothers us is the fact that when we do get him on

> meds that work we only see possitive affects for about 6 months.

>

> Has anyone ever had their child on Prozac and Dexedrine at the same

> time. We loved the effects of Prozac, he suddenly seemed to normal,

> not just OCD wise but also with his developmental delays.

> Unfortunately he was taken off the dexedrine to go on Prozac and his

> ADHD and impulses went wild. He eventually became aggressive and

> somewhat evil minded.

>

> I also read that another mom noticed a change after her child had

> strep. I have told the doctors for years that these issues did not

> start until michael became very ill when he was about 2 1/2. The

> attention problems and behaviors both started shortly afterwards.

>

> Hope to hear from others regarding their experiences with similar

> issues. Nice to see some of the people I already had met via OCD are

> here too!

>

>

------------------------------------------------------------------------

>

[Guest guest]

Hi ,

Thanks for the welcome. I grinned ear to ear when I saw how much we have in

common. Ya know most of my doctors have looked at me funny when I've told

them how much I used to do. I don't know why they do. It's like I've said, the

pain before was manageable and sometimes I had no pain at all.

You want to feel tired feet try marching in step for 5-10 miles right?! Or

doing a half time show and moving around a football field for 15-20 minutes in

sub zero weather! I just got such a kick out of your welcome. I'm sure we'll

have a lot to talk about.

Thanks again,

Elaine.