understanding

[Guest guest]

Thank you so much for sharing about your daughter. It is good to know she is

being helped and maybe we will have help for Holly soon. She had a bad day

in school today and began to shake during a speech. She went to the

counselor's office and then called me sobbing. She is feeling overwhelmed by

all this and is becoming depressed. She wants to have the highest grade in

the class on everything! She puts so much pressure on herself. I'm hoping

with medication, she can calm down about school.

Again, thank you for sharing with me. It's like they say, I feel less alone

knowing that others have been dealing with the same problem.

Deborah

[Guest guest]

>> I know what you all mean by your families not understanding.

Because I don't have skin lesions but do have joint pain, my husband

especially (whom I have begun to expect is a manic/depressive)does

not understand. Sometimes he is supportive (when he seems manic) and

sometimes he is not (when he seems depressive). <<

After reading some of the responses to this post I couldn't help but

write in and give my two cents. Weren't a few of you a little quick

in dismissing Sharons husband as a jerk. How sure were you that a

loving bond still doesn't exist between them. As she mentioned, " he

is still supportive sometimes " . Don't dismiss the battle that's

raging in his head that might concern having to watch someone he

loves very much slowly degrade before his eyes.

Sharon, I wish you the very best. If your husband refuses to get some

treatment for his depression or refuses to seek marriage counseling

with you, then your physical and emotional health may indeed be

better off without him. Prepare yourself now for that eventuality,

but don't give up as soon as some people would have you.

Jim

[Guest guest]

Jim, I agree with you that some of 'us' are too quick to judge

(referring to 's husband... maybe mine...), but that is why this

site is so great... we finally have a place where we can express our

feelings. I have posted messages where my own husband may have

seemed very insensitive, but I know he cares and he still loves me.

As a 44 year old suffering from pretty 'severe' P and PA I often go

well beyond my own limits... but I must admit that quite often I

don't even know where that 'imaginary' line is that separates when or

if I should go out, if or should I not go to the emergency when I am

in severe pain, should I express how I feel at a given moment or just

stay silent and leave it for another time... I can't expect him to

know how I feel if I don't tell him... but THEN I don't want to bog

him down with the same old story. I am sick of being sick and

feeling miserable... so I know he is frustrated as well, he doesn't

know what to do to help me out. I go out many times when I know I

shouldn't... but sometimes I end up being happy I pushed myself, then

other times I know I overdid it. So, I can't blame him and I know I

shouldn't blame myself...living with PA is like living through 'trial

and error'... doctors, friends, family, and even all of us don't know

everything...we are all suffering from something similar, but at the

same time each of us has very different circumstances, we are all

trying to help each other out and get through this. Anyway, I

appreciate any feedback from anyone concerning anything... I have

learned a lot from others' messages and responses... thanks.

By the way (intended for anyone), why do the # of members keep rising

and dropping from day to day... I can't imagine 'not' wanting to

continue being a member of this site...just curious... ? #2

> >> I know what you all mean by your families not understanding.

> Because I don't have skin lesions but do have joint pain, my

husband

> especially (whom I have begun to expect is a manic/depressive)does

> not understand. Sometimes he is supportive (when he seems manic)

and

> sometimes he is not (when he seems depressive). <<

>

>

> After reading some of the responses to this post I couldn't help

but

> write in and give my two cents. Weren't a few of you a little quick

> in dismissing Sharons husband as a jerk. How sure were you that a

> loving bond still doesn't exist between them. As she mentioned, " he

> is still supportive sometimes " . Don't dismiss the battle that's

> raging in his head that might concern having to watch someone he

> loves very much slowly degrade before his eyes.

>

> Sharon, I wish you the very best. If your husband refuses to get

some

> treatment for his depression or refuses to seek marriage counseling

> with you, then your physical and emotional health may indeed be

> better off without him. Prepare yourself now for that eventuality,

> but don't give up as soon as some people would have you.

>

> Jim

[Guest guest]

Thanks Jim. I think I made my husband sound like more

of a jerk than he really is. We get along great 75%

of the time. He is supportive about the same

percentage of time, maybe just a little less. I don't

let him bother me 80% of the time...its the 20% when I

am feeling worst that I let him bother me. We have

had some trying family problems with a son who has

been struggling with alcohol addiction for about 8

years and if you have ever had problems with a

child...even an adult child...well, you know how it

can wreak havoc on a family! Those are the times that

my PA is worse (stress related) and those are the

times when he becomes depressed. We will get through

it though. We have faith and that is what counts. We

do love each other, but we are not perfect. We are

working on our relationship; and of course, when I get

to feeling bad and he gets depressed then we don't get

along well. This is a great list and I appreciate the

support ya'll give!

Sharon

[Guest guest]

In a message dated 12/23/2001 5:58:34 PM Eastern Standard Time,

ranoush84@... writes:

> By the way (intended for anyone), why do the # of members keep rising

> and dropping from day to day... I can't imagine 'not' wanting to

> continue being a member of this site...just curious... ? #2

>

>

>

- I find it funny but some members have asked to be unsubscribed

because the mail " clogs " their mailbox. Weird, because you can always hit

delete

[Guest guest]

Hello Drasko,

no, RFI is nothing for you. It is a measuring system for determining the

auras.

(I only mentioned it to show that I look in more than one direction)

The original Purple Plates come from www.purpleplates.com

They only exist in purple color.

There are others who make them in other colors, but they are not as good.

Today, my wife had a bad day. She thought that the phone masts had raised

their output. But that was not the case, because I could measure it. She had

forgotten to place her Bioprotect card in her shoe! After she put it in, her

troubles were over!

www.bioprotect.de.vu

The simplest Pulsors ae very good also, although they are not cheap.

Look at www.priggen.de.vu under online shop and then under Pulsoren.

I mean the Torroids. For reference

I am sure you can buy them in the USA also.

While you are looking at Priggen, you may see under Abschirmung, that they

have this HP40 and HP 50 Highprotect Abschirmfarbe. It is a new product, a

paint. You must add water and apply the paint in two layers.

Afterwards yoy may put wallpaper over it, or paint it in the color you like.

Attention, this paint must be earthed, because it is electricity guided.

As you can see, they have quite a assortment in shielding materials.

I have in my home good results with this G-ES Abschirmgewebe.

Also good is the Diamant Abschirmgewebe.

If you look at Umwel-Messgeraete under Elektromagn Felder (HF), there you

see the HF Analyser HF 35 C as a affordable meter for high frequencies; on

the display in uW/m2.

I use the HF 58B myself, aside other meters.

The best meter for hearing what hf radiation there is, is the Esmog Spion.

It is not good for determining the quantities, but good for determining if a

shielding does what you expect.

Although many germans prefer german, they can reply to you in english.

Mr. Priggen is also a Baubiologe.

Btw, I have no connection to him. I am just a customer. But he is the

specialist in Europe.

If you have more questions, feel free to ask.

Greetings,

Claessens

member Verband Baubiologie

http://members.rott.chello.nl/cclaessens/

http://www.hese-project.org

checked by Norton Antivirus

understanding

> Hello !

> Thank you for your reply to my inquiry, regarding better understanding

about electrosensitivity!

> I have searchd a bit for the devices you menitoned and I am thinkig about

purchasing some. Please advice would there be something I (we) would need to

know regarding that... For example there are too many sites regarding both

Purple Plate and RFI systems, which one would you suggest? I am not fluent

in anything but English.

>

> Drasko

[Guest guest]

> no, RFI is nothing for you. It is a measuring system for determining

> the auras. (I only mentioned it to show that I look in more than one

>direction)

It's good to look in multiple directions, for if one type of thing

doesn't work, then one should try something else (rather than stick

with something that doesn't work, or simply give up)

I'm curious -- did you say you also had a meter to measure life

force energy? Do you have a link for this? Or a name of a product?

This sounds interesting...

> The original Purple Plates come from www.purpleplates.com

I bought some purple plates a few years ago, and I never noticed

them doing anything. But it sounds like you are using them to

recharge other devices, and not use them as devices themselves.

Also, about your wife forgetting to use a device -- that's usually

when I make my best discoveries about things working or not working --

when I forget to follow my usual routine and I notice a difference

in symptoms!

Marc

[Guest guest]

Hello Marc,

The Life Energy Meter 2

You can read at:

http://www.orgonelab.org/cgi-bin/shop.pl/page=ylemeter.htm

The manufacturor is: www.heliognosis.com

Put some water on your Purple Plate for 15 minutes and taste is again.

Do that with a glass cheap wine.

Coffee changes, an ananas (pine-apple?) becomes sweeter.

We put all our incoming food first on the plate.

If you have a pain, it takes the pain away.

Put a sick plant on a plate.

You will see.

I wrote before; I am married to my best measuring device.

Greetings,

Claessens

member Verband Baubiologie

http://members.rott.chello.nl/cclaessens/

http://www.hese-project.org

checked by Norton Antivirus

Re: understanding

> > no, RFI is nothing for you. It is a measuring system for determining

> > the auras. (I only mentioned it to show that I look in more than one

> >direction)

>

> It's good to look in multiple directions, for if one type of thing

> doesn't work, then one should try something else (rather than stick

> with something that doesn't work, or simply give up)

>

> I'm curious -- did you say you also had a meter to measure life

> force energy? Do you have a link for this? Or a name of a product?

> This sounds interesting...

>

> > The original Purple Plates come from www.purpleplates.com

>

> I bought some purple plates a few years ago, and I never noticed

> them doing anything. But it sounds like you are using them to

> recharge other devices, and not use them as devices themselves.

>

> Also, about your wife forgetting to use a device -- that's usually

> when I make my best discoveries about things working or not working --

> when I forget to follow my usual routine and I notice a difference

> in symptoms!

>

[Guest guest]

Bud in Illinois:

It is so funny what goes on with this SIMPLE LITTLE Disease.

1st DNA positive, 2nd negative.

I have been told I have MUSCULAR DYSTROPHY, most people are ignorant to the

fact that MD comes in 40 different flavors. I have been told I have severe

CHARCOT-MARIE-TOOTH disease (CMT). Also SPINAL MUSCULAR ATROPHY (SMA). DIABETES

etc.

My father had CMT/MD and fell a lot and all else that goes with it. HE

skipped the meds and treated it with alcohol.

My family and a lot of fair weather friends saw my Dad go through it but now

think I am a hypochondriac, live off the govt. crybaby and think that if they

had this they could ignore it and live a normal life.

People think that the $1300 disability is welfare and they are paying it.

What is so funny is that one sibling has only paid taxes 2 out of the last 20

years and is rich. and a non friend gets paid in cash and pays no taxes? If they

lost it all and had to go on disability they might get $175 per MO.

I stay away from these people and if they got Cancer tomorrow I would never

inquire to their pain or hardships because they would not notice their

discomfort.

I AM SO HAPPY I HAVE STRANGERS TO UNDERSTAND.

GOD BLESS YOU ALL. GOD HAS A PLACE FOR THE UNDERSTANDING!

thanks: michael blanek

San Angelo, Texas

[Guest guest]

Hi ,

I have a sister that used to say horrible things to me as a kid. Now as an adult

she thinks God favors her because she and her kids do not have

CMT. One thing I have noticed is that CMT can really show you who your

friends really are. I practice the need to know rule. Don't tell the so called

" friends " too much information. It just sets you up for their advice and

opinions that you do not need. I have to keep my relationship with my sister to

just a few times a year visit. We only live 10 mins apart but it may as well be

states away.

[Guest guest]

People can cause a lot more pain than you already have. I remember back

about 20 years ago, when my life was falling apart and how my friends began

to shun me. Like they think trials and tribulations are contagious. Or if

you have them, there is something wrong with you, that pain is not part of

life. Just buck up and make things right.

These attitudes come from very immature or inexperienced people who have not

yet, lucky for them, really had to deal with any significant difficulty.

They are living under false pretenses and it generally takes a tragedy or

two to educate them. Apparently, they just haven't had their tragedies,

yet, or at least, not ones great enough to spank them.

It's sad that so many people are this unenlightened. I think it's wise to

avoid the callous...I do, as well. Life is hard enough without hanging

around people trying to make you feel like pond scum. If it happens that

you meet them again, and they do it again, I would certainly ask them what

makes them think it's okay to treat someone this way? Are they completely

heartless? Apparently. I call them " Charm-school drop-outs, " sometimes to

their faces.