Guest guest Posted February 1, 2005 Report Share Posted February 1, 2005 I would love more information about K.I.D.S. I have a 13 yr old boy with CMT an almost 12 yr old girl with CMT and a 15 yr old boy with CMT. I also have CMT. Lucky us! I have my CMT kids taking vitamin C. I can say it is making a difference. I buy vitamin C in 1000 pills. Time release. (That's key make sure you buy time release!) I buy the GNC brand from drugstore.com. I take 7 to 8 pills a day my children do the same. I also take it and feel a difference. Can your daughter get a pair of AFOS made? They will keep her from falling as much. I am excited for your daughter to try the vitamin C. I think she will feel a difference right away. I also wanted to tell you that when the child is growing the CMT is worse. The muscles are sparse with CMT to begin with. Then when you are growing the muscles have a hard time covering the new area. After a while they do cover the best they can. I hope that made sense. Definitely get an IEP under OHI. Other health impaired. It will help your daughter so much to have some of her needs taken care of. Quote Link to comment Share on other sites More sharing options...
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