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, welcome to the group! So sorry to hear that your friend is having

problems.

The first possibility that comes to mind is that Remicade (infliximab)

has been associated with neurologic adverse events, including some that

resemble multiple sclerosis. From RxList.com on Remicade in the

" Warnings " section:

" Neurologic Events

Infliximab and other agents that inhibit TNF have been associated in

rare cases with optic neuritis, seizure and new onset or exacerbation of

clinical symptoms and/or radiographic evidence of central nervous system

demyelinating disorders, including multiple sclerosis. Prescribers

should exercise caution in considering the use of REMICADE in patients

with pre-existing or recent onset of central nervous system

demyelinating or seizure disorders. "

http://www.rxlist.com/cgi/generic3/infliximab_wcp.htm

How long has your friend been on Remicade? Has he ever had any such

problems before? Is there any history of MS in his family? It would be

nice to know his entire list of meds, too.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Shaking

> I joined this group to find out more information about RA. A good

> friend (male in his 50's) has this condition and I'd like to find out

> more about it.

>

> One thing that's been puzzling me lately is that at times he begins

> shaking - like he's shivering. He can't stop. Makes it really hard to

> eat and makes his unsteadiness even worse. The only drugs he's told me

> he takes are Celebrex and Remicade IV every few months. I can't find

> any info that either of these drugs would cause shaking like this. And

> I can't find info that RA would cause anything like this either. He

> has no other known conditions.

>

> Anyone have any experience with this or can point me in the right

> direction?

>

>

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Shaking is a by-product of RA I think. I get cold and when I do I

just shake and can't get warm.

I do know of one gentlemen in my group that had a reaction to his

Remicade infusion and he was just shaking and couldn't stop. He now

has benedryl shots before his Remicade infusion.

I know for me I just feel cold all the time. My body feels warm to

touch - my hands and feet are actually hot but I feel chilled. You

will usually find me wearing a sweater even when the temperature is

100 degrees outside and I don't feel hot.

I used to have cold hands and feet and loved air-conditioning but

not since my RA onset. I wish your friend the best of luck but

would tell him to bundle up cuz in my case it hasn't got any better.

God bless,

Althea

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  • 8 months later...

Hi Everyone!

I have a question. I have tremors during the day in mostly my hands but every

once in a while in my legs. But lately when I go to sleep I shake

really bad for a couple minutes. I'm asleep when this is happening and I don't

wake up until it's done but I'm completely aware of what is happening. Do you

know what is wrong?

Also I was just diagnosed with Gastroparesis, weakening of the stomach. My

whole digestive system is paralyzed in a way. I was wondering if I do in fact

have CMT could the CMT effect this or possibly even have caused this? Thanks for

listening.

le

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  • 3 years later...

Hi. My son hasn't ever done that, and is severely apraxic. You may want to

consult with a neurologist.

On Thu, Oct 30, 2008 at 3:34 PM, Trevor Ferrin <bethferrin@...>wrote:

> Hi,

>

> My 3 1/2 year old daughter was recently diagnosed with Apraxia. She

> also shakes and/or tremors mildly on occasion. Has anyone out there

> noticed a similar problem with their apraxic child? Thanks!

>

> - Beth

>

>

>

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Beth-

I might make the suggestion that she not only has Apraxia of speech, but

that she also has limb Apraxia/ aka Dyspraxia.

This is what happens with my son (4) when he has a neuro " dip " and you can

see tremors, but it won't happen daily.

for instance-- when he contracted Chicken Pox last Oct/Nov he didn't have a

bad case of the pox, but it did affect his motor issues and he had tremors on

and off for weeks

Becky

In a message dated 10/30/2008 6:08:25 P.M. Eastern Daylight Time,

kaycespader@... writes:

My 3 1/2 year old daughter was recently diagnosed with Apraxia. She

> also shakes and/or tremors mildly on occasion. Has anyone out there

> noticed a similar problem with their apraxic child? Thanks!

>

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Yes, my son also has mild tremor in his hands, especially when reaching

sometimes. He has full body dyspraxia, apraxia of speech, Autism, SID,

ADHD, and Hirschsprung's Disease. We will see a neurologist in late

November and I will ask about it then.

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don't know if this is anything like what you're seeing but Josh would, on

occasion, do a little " shake " or " tremor. "   The first time I saw it, it totally

freaked me out, thought it was a seizure!  ran to the doc and, like with many

things, he chuckled.  seems Josh doesn't shiver when he's cold, he does the

occasional shake.  doc said it's really common with kids with sensory issues. 

also what's common is that kids with issues like these that affect what the doc

said was the autonomous nervous system, temperature control in the body is

affected.  it's gotten better as Josh has gotten older.

Sherry and Josh

________________________________

From: McNamara <michelle_mcnamara@...>

Sent: Thursday, October 30, 2008 4:17:27 PM

Subject: RE: [ ] Shaking

alyssa my 5 yr old,has moments when she excited and/or nervous and will have

what seem like involuntary tremors and she also crosses her fingers during this.

but she will also cross her fingers throught out the day. she is easily

excitable or nervous so this can happen from just hearing a unfamilar noise in

the background at home.

[childrensapraxiane t] Shaking

From: " Trevor Ferrin " <bethferrinhotmail (DOT) com>

Hi,

My 3 1/2 year old daughter was recently diagnosed with Apraxia. She

also shakes and/or tremors mildly on occasion. Has anyone out there

noticed a similar problem with their apraxic child? Thanks!

- Beth

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The temp control is said to be pancreatic. Precursor to diabetes I

thought. We have that (temp thing) here.

>

> don't know if this is anything like what you're seeing but Josh

would, on occasion, do a little " shake " or " tremor. "   The first time

I saw it, it totally freaked me out, thought it was a seizure!  ran

to the doc and, like with many things, he chuckled.  seems Josh

doesn't shiver when he's cold, he does the occasional shake.  doc

said it's really common with kids with sensory issues.  also what's

common is that kids with issues like these that affect what the doc

said was the autonomous nervous system, temperature control in the

body is affected.  it's gotten better as Josh has gotten older.

>

> Sherry and Josh

>

>

>

>

> ________________________________

> From: McNamara <michelle_mcnamara@...>

>

> Sent: Thursday, October 30, 2008 4:17:27 PM

> Subject: RE: [ ] Shaking

>

>

> alyssa my 5 yr old,has moments when she excited and/or nervous and

will have what seem like involuntary tremors and she also crosses her

fingers during this. but she will also cross her fingers throught out

the day. she is easily excitable or nervous so this can happen from

just hearing a unfamilar noise in the background at home.

> [childrensapraxiane t] Shaking

> From: " Trevor Ferrin " <bethferrinhotmail (DOT) com>

>

> Hi,

>

> My 3 1/2 year old daughter was recently diagnosed with Apraxia. She

> also shakes and/or tremors mildly on occasion. Has anyone out there

> noticed a similar problem with their apraxic child? Thanks!

>

> - Beth

>

>

>

>

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I have and 8 yr old apraxic son that also is shakes, you can really see it in

his hands.  You really notice it when he is using his fine motor skills.  He has

had small absence seizures in the past.  If you are concerned I would have it

checked out just to make sure that nothing else is going on.   

From: tbniesh@... <tbniesh@...>

Subject: Re: [ ] Shaking

Date: Thursday, October 30, 2008, 8:43 PM

Beth-

I might make the suggestion that she not only has Apraxia of speech, but

that she also has limb Apraxia/ aka Dyspraxia.

This is what happens with my son (4) when he has a neuro " dip " and

you can

see tremors, but it won't happen daily.

for instance-- when he contracted Chicken Pox last Oct/Nov he didn't have a

bad case of the pox, but it did affect his motor issues and he had tremors on

and off for weeks

Becky

In a message dated 10/30/2008 6:08:25 P.M. Eastern Daylight Time,

kaycespader@... writes:

My 3 1/2 year old daughter was recently diagnosed with Apraxia. She

> also shakes and/or tremors mildly on occasion. Has anyone out there

> noticed a similar problem with their apraxic child? Thanks!

>

**************Plan your next getaway with AOL Travel. Check out Today's

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(http://pr.atwola.com/promoclk/100000075x1212416248x1200771803/aol?redir=http://\

travel.aol.com/discount-travel?ncid=emlcntustrav00000001)

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