Re: only one in family with CMT

[Guest guest]

I was the first in my family to have CMT. I passed it on to both my

children. One female the other male. I now have a 6 month old grandson and we

have no

idea if he has inherited CMT. I always had trouble hearing and my late son

was profoundly deaf. My grandson has a moderate loss and he already wears

hearing aids. I too just recentrly tested negative for CMT (DNA). But my guess

is

I have type 2.

My sister is AOK and so are her 5 children and 7 grandkids with more on the

way. All my cousins; both sides are AOK as are their kids. Luck of the unlucky

draw I call it.

Barb Fl.

[Guest guest]

Gretchen,

Curious, What were you told of the chances of carrying this on since you are the

only one in the family. I hear such conflicting answers. I too am the only one

in my family and thank goodness, have not seen signs in my son yet.

I am still waiting to have the genetic blood testing done again, as I tested

negative for CMT 2 years ago.

Jackie