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Ok folks, I am in need of another pair of AFOs. My feet have changed since

my pregnancy and I got my last pair at & Filippis at Wayne State and

will go back if I have to BUT I am up for new suggestions. I did have AFOs

from Hanger and was not impressed. Also, anyone had experience with Helios?

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Hello...I just had my 6 month appt. at MDA in Oklahoma City, they are so

wonderful there and have the sweetest Neurologist on staff full time. The

therapist is so impressed with my AFOs that he is sending me back to Hanger for

new ones.

I go in Friday to get checked over and get them ordered. Just had a

bout with cellulitis, went barefoot and stepped on stickers and they got

infected. Not a good thing to happen.

I have to have some special areas in the AFOs to keep my weight off of the areas

as they will be potential areas for reoccurrence. I did promise Dr. Beson I

would never go barefoot again.

MDA is paying for my new AFOs and he also ordered a DNA test. Will be curious

to see what that reveals. My cousins came back as CMT1A.

in Oklahoma

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  • 2 weeks later...

le,

Without knowing the type of AFOs you are getting, it is not feasible

to send you a picture. Did you ask your orthotist what kind they will

be? Orthotists generally have pictures of all kinds of different

AFOs, orthotics, shoes, etc. You should ask your orthotist. Sorry I

took so long to reply to you.

Gretchen

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