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Hello,

I have been reading the post and find this all very interesting. My daughter is

13 and has CMT, was diagnosed at age 4 with type 2 recessive, only because there

was no other type to classify her in. She is severe, in wheelchair fulltime,

scoliosis 50 degrees, numbness on left side (this is new) hands curled and weak.

I am hoping for support, ideas, resources to help her in her daily activities to

keep her as independent as possible. Any and all ideas suggestions are welcome.

Thank You,

Jan

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