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Hi Cat, thanks so much and I agree with you. I have told her to go to the ER but

she believes her doctor knows about all this and he is still keeping her on this

stuff which is silly.

I know all too well what Celebrex did to me in the way of breathing and I told

her about me but she just says me too but wont budge! I don't know if age has

anything to do with it but she is convinced that her doc knows better.

I just thought maybe I can copy some information on this and write send it in a

letter. Since she lives so far away. This poor women and her son my ex doesn't

even care. I have been telling her she has to move closer so I can take care of

her.

Anyway it makes me mad that she still thinks that doctors know best! I know from

experence that they all don't know best.

Hugs,

ette

C Triller wrote:

HI SWEETIE

I WOULD URGE YOU TO TELL YOUR MOM IN LAW TO GET TO THE ER SAP, THERE IS

OBVIOUSLY SOMETHING GOING ON...IN SOME CASES THEY WILL USE PREDNISONE FOR

ALLERGIC REACTIONS, BUT IF SHE IS EXPERIENCING ARYTHMIA AND HER TOUNGE'S

SWELLING UP MAKING BREATHING DIFFICULT SHE NEEDS TO ADDRESS THESE ISSUES

RIGHT AWAY, AND NOT WAIT TIL MONDAY TO SPEAK TO HER DOC....

ANY CONCERNS SHE HAS SHOULD BE DEALT WITH BY HER PCP AND RHEUMY IMMEDIATELY.

IT COULD GET WORSE AS SHE CONTINUES WITH THE MEDS.

REGARDS AND SMILES

CAT

-- Re: Help!

Hi everybody. I need help. My Mother-in-law wrote me today and she is having

a terrible time. She has RA and her doctor put her on Rhumacaid and she

since the last two have gotten a bad rash and is itching all the time. She

told him and he is keeping her on it anyway and gave her Celebrex and upped

her Preds. He also gave her Allegra for her thinking it may be allergy. Well

she says she still has the rash and it's still itchy, her tung swells up

which makes it hard to breathe, and when she took the Allegra about an hour

later her heart would beat fast and skip a beat. Can anyone help me look

these up. Maybe I can printout some things for her and maybe she can take

them to the doctors with her.

Thanks so much,

God Bless You All,your friend,

<:)))><

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ette,

I understand you can't get her to the ER, however, I just pulled up a couple of

things she may need to see. I have included the websites where I got this info.

Every drug has potential serious side effects, and not everyone will experience

them; however, it sounds as though she needs to realize that what she is

experiencing are serious side effects & need to be addressed.

Good luck,

Chris

greywolf70@...

***************************************************************

Taken from www.remicade.com

" Many people with heart failure should not take REMICADE; so, prior to treatment

you should discuss any heart condition with your doctor. Tell your doctor right

away if you develop new or worsening symptoms of heart failure (such as

shortness of breath or swelling of your feet).

There are reports of serious infections, including tuberculosis (TB) and sepsis.

Some of these infections have been fatal. Tell your doctor if you have had

recent or past exposure to people with TB. Your doctor will evaluate you for TB

and perform a skin test. If you have latent (inactive) TB your doctor should

begin TB treatment before you start REMICADE. If you are prone to or have a

history of infections, currently have one, or develop one while taking REMICADE,

tell your doctor right away. Also tell your doctor if you have lived in a region

where histoplasmosis is common or if you have or have had a disease that affects

the nervous system, or if you experience any numbness, tingling, or visual

disturbances.

There are also reports of serious infusion reactions with hives, difficulty

breathing, and low blood pressure. In clinical studies, some people experienced

the following common side effects: upper respiratory infections, headache,

nausea, cough, sinusitis or mild reactions to the infusion such as rash or itchy

skin. "

********************************************************************************\

*******

Taken from www.medicinenet.com

" Side effects such as low or high blood pressure, chest pain, difficulty

breathing, rash, itching, fever and chills may occur during or shortly after

administration. These reactions could indicate an allergy to the drug. They are

more common among patients who develop antibodies to infliximab and are less

likely to occur in patients who are taking drugs that suppress the immune

system, such as methotrexate. Infliximab should be discontinued if serious

reactions occur. "

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Hi ette,

When does she next see the doctor?? I agree with

everyone else, she should get to the ER...but, if she

refuses to do that, perhaps Barb's suggestion would

work. Have her call and talk with a nurse..and what

ever else Barb said.

Is she stubborn or afraid??? She does need medical

attention, and soon I would say. Is there a neighbor

who lives close to her, and you could give them a call?

Maybe someone needs to just tell her she needs

medical attention, and they could take her to the ER

and stay with her. Perhaps she's afraid to go alone.

Your friend, ~~tricia~~

p.s. Please let us know how this turns out...okay??

I surely hope she will be okay. Some meds can be

awful little buggers!! (speaking from experience!)

-- Re: Help!

Hi everybody. I need help. My Mother-in-law wrote me today and she is having

a terrible time. She has RA and her doctor put her on Rhumacaid and she

since the last two have gotten a bad rash and is itching all the time. She

told him and he is keeping her on it anyway and gave her Celebrex and upped

her Preds. He also gave her Allegra for her thinking it may be allergy. Well

she says she still has the rash and it's still itchy, her tung swells up

which makes it hard to breathe, and when she took the Allegra about an hour

later her heart would beat fast and skip a beat. Can anyone help me look

these up. Maybe I can printout some things for her and maybe she can take

them to the doctors with her.

Thanks so much,

God Bless You All,your friend,

<:)))><

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Hello ette,

your mother in law appears to be having a reaction and I think that she

should get herself to the Emerg. immediately. Her doctor also should have

suggested this to be on the safe side. For someone's tongue to begin to

swell surely cannot be a good thing!

Here is a site that I came across trying to find the side effects of

Remicade for you. If you go to www.about.com and type in " remicade side

effects " in the find/search part it will come up with a screen that has a

listing of different things to choose from. Click on the first link which

says " Side Effects - Infliximab [Remicade] " and this will take to where I

found the following.

Infliximab [Remicade]

Always Notify Doctor:

More common

Abdominal pain

cough

dizziness

fainting

headache

muscle pain

nasal congestion

nausea

runny nose

shortness of breath

sneezing

sore throat

tightness in chest

unusual tiredness or weakness

vomiting

wheezing

Less Common

back pain

bloody or cloudy urine

cracks in skin at the corners of mouth

diarrhea difficult or painful urination

frequent urge to urinate

high blood pressure

low blood pressure

pain

pain or tenderness around eyes and cheekbones

skin rash

soreness or irritation of mouth or tongue

soreness or redness around fingernails or toenails

vaginal burning or itching and discharge

white patches in mouth and/or on tongue

Rare

abscess (swollen, red, tender area of infection containing pus)

back or side pain

black, tarry stools

blood in urine or stools

bone or joint pain

constipation

falls

feeling of fullness

general feeling of illness

hernia (bulge of tissue through the wall of the abdomen)

infection

irregular or pounding heartbeat

pain in rectum

pain spreading from the abdomen to the left shoulder

pinpoint red spots on skin

stomach pain (severe)

swollen or painful glands

tendon injury

unusual bleeding or bruising

weight loss (unusual)

yellow skin and eyes

Notify Doctor Immediately

More common

chest pain

chills

fever

flushing of face

hives

itching

troubled breathing

Other side effects not listed above may also occur in some patients. If you

notice any other effects, check with your doctor. This information is meant

only as a guideline - always consult a physician or pharmacist for complete

information about prescription medications.

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

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Dear a,

I will keep your mother-in-law in my thoughts and prayers. I also feel that

she needs to be seen and the sooner the better. I agree with you about the

Doc's.

jatw@...

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Hello ette,

I just got out of the hospital, " Still's was in town, but I kicked him out,

temporarily, of course. " My hearts and lungs were susceptible, so my doctor

could not give me methotrexate or remicade. He has set me up in getting

about a third of a normal dose of Cytoxin every three weeks. Maybe this

would be an alternative for your mother-in-law.

Sincerest of regards,

Thiele

P.S. I am a new member, having just found your wonderful website. My

Still's had been in remission for twenty years, up until this past weekend.

I am very interested to see if it is truly the disease that my rheumy, Dr.

Fabricant, from Fullerton, CA, told me about it when I was severely

sick with super-high fevers from 1985 to 1990. During that time, my large

intestine was disconnected for over a year. Most internal organs are always

adversely affected by these bouts with SD. I have just started reading all

of your e-mails. Many of you write about the extreme fatigue. I only get

the extreme soreness while in SD's grasp. However, I am beginning to

realize that my case history is not the norm. There exists many of you who

go through sooo much more than I have. God bless you all and I feel very

privileged in stating that I now belong to your group!

Thiele

24015 Way

Yorba , CA 92887

paul.thiele@...

" "

<greywolf70@fronti

<Stillsdisease >

ernet.net> cc:

Subject: Re:

Help!

08/10/02 03:48 PM

Please respond to

Stillsdisease

ette,

I understand you can't get her to the ER, however, I just pulled up a

couple of things she may need to see. I have included the websites where I

got this info. Every drug has potential serious side effects, and not

everyone will experience them; however, it sounds as though she needs to

realize that what she is experiencing are serious side effects & need to be

addressed.

Good luck,

Chris

greywolf70@...

***************************************************************

Taken from www.remicade.com

" Many people with heart failure should not take REMICADE; so, prior to

treatment you should discuss any heart condition with your doctor. Tell

your doctor right away if you develop new or worsening symptoms of heart

failure (such as shortness of breath or swelling of your feet).

There are reports of serious infections, including tuberculosis (TB) and

sepsis. Some of these infections have been fatal. Tell your doctor if you

have had recent or past exposure to people with TB. Your doctor will

evaluate you for TB and perform a skin test. If you have latent (inactive)

TB your doctor should begin TB treatment before you start REMICADE. If you

are prone to or have a history of infections, currently have one, or

develop one while taking REMICADE, tell your doctor right away. Also tell

your doctor if you have lived in a region where histoplasmosis is common or

if you have or have had a disease that affects the nervous system, or if

you experience any numbness, tingling, or visual disturbances.

There are also reports of serious infusion reactions with hives, difficulty

breathing, and low blood pressure. In clinical studies, some people

experienced the following common side effects: upper respiratory

infections, headache, nausea, cough, sinusitis or mild reactions to the

infusion such as rash or itchy skin. "

********************************************************************************\

*******

Taken from www.medicinenet.com

" Side effects such as low or high blood pressure, chest pain, difficulty

breathing, rash, itching, fever and chills may occur during or shortly

after administration. These reactions could indicate an allergy to the

drug. They are more common among patients who develop antibodies to

infliximab and are less likely to occur in patients who are taking drugs

that suppress the immune system, such as methotrexate. Infliximab should be

discontinued if serious reactions occur. "

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Thank you . I agree and I am going to try and call her today. I know it's

hard for her to get up to answer her phone and I dont' want to bother her but

she needs to know that what she is going through is not good!

Hugs,

ette

wrote:Dear a,

I will keep your mother-in-law in my thoughts and prayers. I also feel that

she needs to be seen and the sooner the better. I agree with you about the

Doc's.

jatw@...

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  • 2 weeks later...

Try putting it in a shake if you make shakes. You can't taste it. A

great salad dressing recipe I got from Ms. Bishwit's site is:

3 tbsp flax oil

1 tbsp balsamic vinegar

1 tsp dijon mustard

seasonsings to taste (rosemary, thyme, etc.)

*I also add 1 tsp ff italian dressing

She has a few others on her site also.

Colleen

> OK, I finally took the plunge and bought some Barleans Flax Oil

> today. Was determined that no matter how it tasted, I was going to

> take 2T per day. The bottle suggested that I mix it with cottage

> cheese so I did. I have to say that was the most disgusting bowl

of

> cottage cheese I've ever eaten!! Does anyone have some ideas on

how

> I can get this stuff down with the minimum level of tasting the

> stuff?!

>

> Thanks for your help!!

>

>

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Try putting it in a shake if you make shakes. You can't taste it. A

great salad dressing recipe I got from Ms. Bishwit's site is:

3 tbsp flax oil

1 tbsp balsamic vinegar

1 tsp dijon mustard

seasonsings to taste (rosemary, thyme, etc.)

*I also add 1 tsp ff italian dressing

She has a few others on her site also.

Colleen

> OK, I finally took the plunge and bought some Barleans Flax Oil

> today. Was determined that no matter how it tasted, I was going to

> take 2T per day. The bottle suggested that I mix it with cottage

> cheese so I did. I have to say that was the most disgusting bowl

of

> cottage cheese I've ever eaten!! Does anyone have some ideas on

how

> I can get this stuff down with the minimum level of tasting the

> stuff?!

>

> Thanks for your help!!

>

>

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> OK, I finally took the plunge and bought some Barleans Flax Oil

> today. Was determined that no matter how it tasted, I was going to

> take 2T per day. The bottle suggested that I mix it with cottage

> cheese so I did. I have to say that was the most disgusting bowl

of

> cottage cheese I've ever eaten!! Does anyone have some ideas on

how

> I can get this stuff down with the minimum level of tasting the

> stuff?!

>

> Thanks for your help!!

>

>

Hi !

Here's what I do to make a flax oil based dressing. I buy a packet of

Good Seasonings salad dressing mix in the little packets (they have

lots of flavors) and buy the cruet if you don't have one already.

Then mix according to packet directions, using the flax oil for the

vegetable oil that is called for. I've experimented and used balsamic

vinegar and also apple cider vinegar in the mix. They've all been

good. Now, there are carbs in the mix, but not so many to worry

about. You can use it just like regular salad dressing, just make

sure to keep it in the fridge and shake it gently. You won't be able

to tell that it's flax oil, I promise!

Hope this helps.

Maggie

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My 3 no-taste methods of taking flax oil:

1) blend it in a shake

2) pour it under my tongue, gulp water

3) float it on a shot glass full of grapefruit juice, slam it

Help!

OK, I finally took the plunge and bought some Barleans Flax Oil

today. Was determined that no matter how it tasted, I was going to

take 2T per day. The bottle suggested that I mix it with cottage

cheese so I did. I have to say that was the most disgusting bowl of

cottage cheese I've ever eaten!! Does anyone have some ideas on how

I can get this stuff down with the minimum level of tasting the

stuff?!

Thanks for your help!!

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,

I feel your pain. I get a chaser like lemon water or not-too-hot coffee and

take mine by the spoon, trying not to let it touch my tongue too much. Follow

with chaser of your choice (not a hot fudge sundae!) I really hated the

Barleans and now use Health from the Sun brand which is MUCH better tasting,

(but not great still). Some women add spices to it and use it for salad

dressing. IMHO anything it touches is ruined.

Park

Help!

OK, I finally took the plunge and bought some Barleans Flax Oil

today. Was determined that no matter how it tasted, I was going to

take 2T per day. The bottle suggested that I mix it with cottage

cheese so I did. I have to say that was the most disgusting bowl of

cottage cheese I've ever eaten!! Does anyone have some ideas on how

I can get this stuff down with the minimum level of tasting the

stuff?!

Thanks for your help!!

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Thanks for the idea. I was just telling my husband a funny story

about it. I was in a store looking at it and trying to decide what

to get. This lady walked by, picked up a bottle and just went on and

on and on and on about how wonderful it was -- greatest stuff ever,

blah blah blah. So, I'm thinking, this lady must really use this

stuff a lot so I'll ask her how she uses it. (Wondering if she puts

in on baked potatoes, salads or what.) I asked her, and she says " I

don't use the stuff, I give it to my dogs. " Needless to say I didn't

buy any that day! Ha ha!

Thanks again for the salad dressing recipe. I'll give it a try!

> > OK, I finally took the plunge and bought some Barleans Flax Oil

> > today. Was determined that no matter how it tasted, I was going

to

> > take 2T per day. The bottle suggested that I mix it with cottage

> > cheese so I did. I have to say that was the most disgusting bowl

> of

> > cottage cheese I've ever eaten!! Does anyone have some ideas on

> how

> > I can get this stuff down with the minimum level of tasting the

> > stuff?!

> >

> > Thanks for your help!!

> >

> >

>

> Hi !

> Here's what I do to make a flax oil based dressing. I buy a packet

of

> Good Seasonings salad dressing mix in the little packets (they have

> lots of flavors) and buy the cruet if you don't have one already.

> Then mix according to packet directions, using the flax oil for the

> vegetable oil that is called for. I've experimented and used

balsamic

> vinegar and also apple cider vinegar in the mix. They've all been

> good. Now, there are carbs in the mix, but not so many to worry

> about. You can use it just like regular salad dressing, just make

> sure to keep it in the fridge and shake it gently. You won't be

able

> to tell that it's flax oil, I promise!

>

> Hope this helps.

> Maggie

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Park - I'll have to try the other brand when I get through this

bottle. In the mean time, check out my post (#135226) with a funny

story about my first encounter with flax oil. I like the chaser

idea. I could taste it for about an hour afterwards!

> ,

> I feel your pain. I get a chaser like lemon water or not-too-hot

coffee and take mine by the spoon, trying not to let it touch my

tongue too much. Follow with chaser of your choice (not a hot fudge

sundae!) I really hated the Barleans and now use Health from the Sun

brand which is MUCH better tasting, (but not great still). Some

women add spices to it and use it for salad dressing. IMHO anything

it touches is ruined.

> Park

> Help!

>

>

> OK, I finally took the plunge and bought some Barleans Flax Oil

> today. Was determined that no matter how it tasted, I was going

to

> take 2T per day. The bottle suggested that I mix it with cottage

> cheese so I did. I have to say that was the most disgusting bowl

of

> cottage cheese I've ever eaten!! Does anyone have some ideas on

how

> I can get this stuff down with the minimum level of tasting the

> stuff?!

>

> Thanks for your help!!

>

>

>

>

>

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Colleen - Thanks for the recipe. I'll definitely give it a try.

Sounds like there is enough stuff in there to mask the taste! Check

out my post (#135226) with a funny story about buying flax oil.

colleen_meacham@h...> wrote:

> Try putting it in a shake if you make shakes. You can't taste it. A

> great salad dressing recipe I got from Ms. Bishwit's site is:

>

> 3 tbsp flax oil

> 1 tbsp balsamic vinegar

> 1 tsp dijon mustard

> seasonsings to taste (rosemary, thyme, etc.)

> *I also add 1 tsp ff italian dressing

>

> She has a few others on her site also.

>

> Colleen

>

>

> > OK, I finally took the plunge and bought some Barleans Flax Oil

> > today. Was determined that no matter how it tasted, I was going

to

> > take 2T per day. The bottle suggested that I mix it with cottage

> > cheese so I did. I have to say that was the most disgusting bowl

> of

> > cottage cheese I've ever eaten!! Does anyone have some ideas on

> how

> > I can get this stuff down with the minimum level of tasting the

> > stuff?!

> >

> > Thanks for your help!!

> >

> >

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Man, that lady must truly love her dog - this stuff isn't cheap!

Park

Help!

>

>

> OK, I finally took the plunge and bought some Barleans Flax Oil

> today. Was determined that no matter how it tasted, I was going

to

> take 2T per day. The bottle suggested that I mix it with cottage

> cheese so I did. I have to say that was the most disgusting bowl

of

> cottage cheese I've ever eaten!! Does anyone have some ideas on

how

> I can get this stuff down with the minimum level of tasting the

> stuff?!

>

> Thanks for your help!!

>

>

>

>

>

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I give Flax to my dogs too. I've given it to them for years but just

recently braved trying it myself. Scary that I give them vitamins,

flax, etc. every day and struggle to remember my own <G>

Colleen

> > > OK, I finally took the plunge and bought some Barleans Flax Oil

> > > today. Was determined that no matter how it tasted, I was

going

> to

> > > take 2T per day. The bottle suggested that I mix it with

cottage

> > > cheese so I did. I have to say that was the most disgusting

bowl

> > of

> > > cottage cheese I've ever eaten!! Does anyone have some ideas

on

> > how

> > > I can get this stuff down with the minimum level of tasting the

> > > stuff?!

> > >

> > > Thanks for your help!!

> > >

> > >

> >

> > Hi !

> > Here's what I do to make a flax oil based dressing. I buy a

packet

> of

> > Good Seasonings salad dressing mix in the little packets (they

have

> > lots of flavors) and buy the cruet if you don't have one already.

> > Then mix according to packet directions, using the flax oil for

the

> > vegetable oil that is called for. I've experimented and used

> balsamic

> > vinegar and also apple cider vinegar in the mix. They've all been

> > good. Now, there are carbs in the mix, but not so many to worry

> > about. You can use it just like regular salad dressing, just make

> > sure to keep it in the fridge and shake it gently. You won't be

> able

> > to tell that it's flax oil, I promise!

> >

> > Hope this helps.

> > Maggie

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,

My recommendation is to never put oil where oil doesn't naturally

belong. Oatmeal+oil=blech for instance! I use udos, and it really

adds to the flavor of my food. The ways I use it most often are

mixed with balsamic vinegar, pepper and garlic as a salad dressing

(tuna, romaine and apple, yum!), mixed with salsa and poured on any

food that is mexicany, mixed with garlic and basil and poured over

chicken and rice, pasta, etc.

HTH!

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  • 4 weeks later...

, if you are losing inches, you are doing everything right.

Muscle is heavy, muscle burns fat, muscle is good. As you build

muscle you may gain weight but as long as you are getting smalller,

who cares what you weigh? My goal right now is to get to 12% BF and

weigh as MUCH as possible!

Muscle baby, muscle!!

Lynda

*who has had too much caffeine today :)

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I hear your frustration. I did a post about weight gain the

other day. The ladies here kindly reminded me to stop weighing

myself. I guess one day you kind of wake up and the weight is

dropping. I have a thyroid problem which can make things difficult.

Do you suffer from that.

Take a deep breath and keep up with the program.

You never said how many weeks you have been on the program or how

many pounds you need to lose. Let some of the girls who are much more

of an expert than me know more details.

Good luck

---

In @y..., " " <mbd77506@y...>

wrote:

> Hi, everyone! My name is and I'm new to the group. I'm

> needing some advice about BFL. I just started doing some of the

> weight exercises & cardio into my workout. I'm starting to see

small

> results (loosing inches); but I seem to be increasing in weight.

> Approximately 2lbs a week! I just want to pass out! What am I

doing

> wrong? Please HELP!

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Shaye, I'm so sorry. My heart really goes out to you. Everyone grieves in a

different way, so maybe ask your girls what they would feel most comfortable

with? I know that when our old English sheepdog, , passed away in

1992, I didn't want to see him after he had passed away. I wanted to

remember him as he was before. Again, I am really, really sorry. If there is

anything that I can do, please don't hesitate to call (518.238.9034) or

e-mail.

~nne

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Thanks nne, I placed her in a box and called them both downstairs and

told them they need to say goodbye. My oldest is just crying her eyes out

and my youngest is tearing up from time to time. She drew a picture of her.

Told them she is not in pain now and is prolly in a sunnyshiny place running

around and chasing butterflies. Kinda corny, but what can I say. Its just

too hard. They sat and petted her for a long time and then I had to take

her out.

RE: HELP!

Shaye, I'm so sorry. My heart really goes out to you. Everyone grieves in a

different way, so maybe ask your girls what they would feel most comfortable

with? I know that when our old English sheepdog, , passed away in

1992, I didn't want to see him after he had passed away. I wanted to

remember him as he was before. Again, I am really, really sorry. If there is

anything that I can do, please don't hesitate to call (518.238.9034) or

e-mail.

~nne

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I hope that they will be OK. You did a good job with handling the situation,

I think. Time does help heal the wound of a lost pet, but you never fully

ever get over it, I don't think. I still think about and what a

wonderful, loving dog he was ~ and when I go back to my parents' house, I

still find myself looking over beside the chair where he always used to sit

when I came home from school. Hang onto the memories! I will be holding good

thoughts for all of you. I agree, she isn't suffering anymore and is in a

wonderful place.

~nne

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Aw, Shaye,

I just saw this....I am so sorry about your kitty, but she lived

a long and happy life with people that really loved her! Your

kids should be able to appreciate that, for sure. And, you

didn't have to make any decisions...she was able to simply

pass away without any intervention. That is good.

We are struggling here with what to do about Lady dog. She

is getting sores on her feet because she cannot walk on them

She just drags herself around. I am a very unpopular person

because I keep telling Mark and the kids that we really need

to put her down.

I know it is so hard saying good bye to a pet that has also

been a friend for so many years. Please tell the kids we are

so sorry.

Kae

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