Guest guest Posted January 6, 2006 Report Share Posted January 6, 2006 Hey Sue, My name is April and I am also new to the group. I dont really have any advice, but I was just wanting to let you know, I sympathise with you as far as the no sleeping. I have two young children, both with special needs. My oldest child -6- is ADHD and we are constantly struggling with med changes and a side effect is not sleeping. My youngest child Rusty -3- is Autistic/ADHD and he dont sleep either. He has a pattern. He will sleep ok for a night or two and then we go on what I call mommies endurance test. Which consists of (at the least) 3 nights with very little to no sleep, and then he crashes for a couple of nights. He is making messes and is constantly "tearing up things" during our (no-sleep) sessions. He isnt taking any medication at all at this time. But I have noticed on some nights when he is "awake" if I give him a couple cups of "Sleepy Time Herbal Tea" it seems to calm his hyperactivity a little. His lack of sleeping scares me so much, he is now begining to wake through the night and "sneaking" about so I will not hear him. My Husband and I feel like wardens, I keep him locked in his bedroom, where there is nothing that can hurt him or he cant hurt himself, we have bars on his windows because he tries to break them. So basically I feel like I put him in jail at night and this really bothers me. But I dont know how else to keep him safe from himself. From one exhausted mom to another, God Be With You. April Email me anytime if you just need to vent. I know it helps a little to just talk about it. Ajerseygirl52@... wrote: Hello... My name is Sue and I am a fairly new member! I have a 17 year old with severe nonverbal autism and adhd. I also have 3 other younger children, 2 of which have disorders. I am requesting information from everyone from this group. Maybe suggestions or advice? My 17 year old doesn't sleep for more then 3-5 hours at night, and then does several thing randomly. He wakes up his 3 and 5 year old siblings anywhere from midnight until 4 am and they don't go back to sleep (so I don't get to go to sleep). Or he binges thru the cabinets and fridge to get food or juice. Or he goes thru the house looking for newspapers, books, maps, whatever he can read, and making a lot of noise and messes along the way. Or he goes into his sleeping brother's room and binges thru his book bag or goes into the closet (we use my 12 year old's closet as a storage closet), and makes a mess....Then after doing 1 or all of the above, he goes back to bed, and sleeps for another 3-5 hours. Then wakes up and goes to school. He takes melatonin to help him sleep, but apparently it's not working or not working enough. Like he woke up at 3:00 this morning and I gave him 6mg of melatonin and now he's asleep again, but my 3 and 5 year old are awake. Any suggestions on this matter would be greatly appreciated and totally thankful! Thank you. I don't post a lot (mainly because I have a very choatic and busy life sometimes), but want to say I love this group! It's very supportive and informative! Have a great Friday and look forward to hearing from everyone! Hugs and Blessings,Sue'Wife to: JimMom to: 17 (severe nonverbal autism, developmental delays and adhd ) 12 (early onset bipolar disorder, adhd, and possible ODD) 5 (developmental delay and adhd)na 3 (totally average girl with no disabilities, delays or disorders so far Thank God!!) Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2006 Report Share Posted January 6, 2006 Sue: I have two children with special needs. One of them has autism and your 17 year old son could be his twin brother!!!. He spent many years getting up in the middle of the night to eat and used to make a lot of noises..no one in my family got any sleep. At one point I thought I was going crazy because of the lack of sleep. Now things are great, he takes Clonidine to sleep and sleep throughout the night, something I never thought it was possible. He has come a long way because he is not tired all the time. We also cut the door in his room half way for security reasons, at night we lock the door from the outside so if for any reasons he is awake he does not wonder around the house and destroy everything. He was nonverbal before he started medication, now he is able to communicate all his needs. It was not an easy decision to put him on medication, but I almost fell sleep taking him to therapy, that's when I decided it was time to do it. We tried melatonin but it didn't work. . Help! Hello... My name is Sue and I am a fairly new member! I have a 17 year old with severe nonverbal autism and adhd. I also have 3 other younger children, 2 of which have disorders. I am requesting information from everyone from this group. Maybe suggestions or advice? My 17 year old doesn't sleep for more then 3-5 hours at night, and then does several thing randomly. He wakes up his 3 and 5 year old siblings anywhere from midnight until 4 am and they don't go back to sleep (so I don't get to go to sleep). Or he binges thru the cabinets and fridge to get food or juice. Or he goes thru the house looking for newspapers, books, maps, whatever he can read, and making a lot of noise and messes along the way. Or he goes into his sleeping brother's room and binges thru his book bag or goes into the closet (we use my 12 year old's closet as a storage closet), and makes a mess....Then after doing 1 or all of the above, he goes back to bed, and sleeps for another 3-5 hours. Then wakes up and goes to school. He takes melatonin to help him sleep, but apparently it's not working or not working enough. Like he woke up at 3:00 this morning and I gave him 6mg of melatonin and now he's asleep again, but my 3 and 5 year old are awake. Any suggestions on this matter would be greatly appreciated and totally thankful! Thank you. I don't post a lot (mainly because I have a very choatic and busy life sometimes), but want to say I love this group! It's very supportive and informative! Have a great Friday and look forward to hearing from everyone! Hugs and Blessings,Sue'Wife to: JimMom to: 17 (severe nonverbal autism, developmental delays and adhd ) 12 (early onset bipolar disorder, adhd, and possible ODD) 5 (developmental delay and adhd)na 3 (totally average girl with no disabilities, delays or disorders so far Thank God!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Different things work for these kids. Karac is 13 and has had a similar sleep problem. I give him .25 of zanax and he sleeps through the night. Melatonin never worked for him. Pat K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Hi Sue. My name is Patti and I am new to this group. I have seven year old fraternal twin daughters that are nonverbal with autism. They still have sleeping problems at times. One of my daughter's is taking Geodon. She has been on other medications before, but had to be taken off of them for weight gain and/or other side effects. So far, the Geodon has made a big difference in her sleeping and helping her mood. She has been on Geodon for four days. My other daughter has been put on Risperdal one low dose tablet at night to avoid weight gain. The doctor also prescribed Rozerum 8 mg tablets to help her sleep at night. She takes one tablet at night. This medicine is a natural type of medication and doesn't give a druggy sleep. I don't know if you would want to go the medicine route or not. I as well as my kids went so long without sleep that we had to do something. We also have a lot of behavior issues such as severe aggression, self-injurious behaviors such as head banging and one of my girls pulls her hair out. She also has bad gastrointestinal problems. I have them both on the GFCF diet. The only thing that I can tell that it has helped with is their gastrointestinal health. We are going two days a week to a university for speech therapy PECS. We are also going to start going to sensory integration therapy twice a week as well. Maybe it will help. Sometimes I feel as if I am chomping at the bits. Noone can possibly understand what we go through if they don't have a special needs child. I pretty much am caring and doing it all for my kids. I get pretty tired, but somehow I keep going even though I'm not the everready bunny. I don't know if I have helped you, but it is nice to have someone to e-mail who understands. Take care. PattiAjerseygirl52@... wrote: Hello... My name is Sue and I am a fairly new member! I have a 17 year old with severe nonverbal autism and adhd. I also have 3 other younger children, 2 of which have disorders. I am requesting information from everyone from this group. Maybe suggestions or advice? My 17 year old doesn't sleep for more then 3-5 hours at night, and then does several thing randomly. He wakes up his 3 and 5 year old siblings anywhere from midnight until 4 am and they don't go back to sleep (so I don't get to go to sleep). Or he binges thru the cabinets and fridge to get food or juice. Or he goes thru the house looking for newspapers, books, maps, whatever he can read, and making a lot of noise and messes along the way. Or he goes into his sleeping brother's room and binges thru his book bag or goes into the closet (we use my 12 year old's closet as a storage closet), and makes a mess....Then after doing 1 or all of the above, he goes back to bed, and sleeps for another 3-5 hours. Then wakes up and goes to school. He takes melatonin to help him sleep, but apparently it's not working or not working enough. Like he woke up at 3:00 this morning and I gave him 6mg of melatonin and now he's asleep again, but my 3 and 5 year old are awake. Any suggestions on this matter would be greatly appreciated and totally thankful! Thank you. I don't post a lot (mainly because I have a very choatic and busy life sometimes), but want to say I love this group! It's very supportive and informative! Have a great Friday and look forward to hearing from everyone! Hugs and Blessings,Sue'Wife to: JimMom to: 17 (severe nonverbal autism, developmental delays and adhd ) 12 (early onset bipolar disorder, adhd, and possible ODD) 5 (developmental delay and adhd)na 3 (totally average girl with no disabilities, delays or disorders so far Thank God!!) Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Sue, Hi! I have an 18 year old son with autism and we have been giving him Lorazapam and he sleeps pretty good on that. Lois Help! Hello... My name is Sue and I am a fairly new member! I have a 17 year old with severe nonverbal autism and adhd. I also have 3 other younger children, 2 of which have disorders. I am requesting information from everyone from this group. Maybe suggestions or advice? My 17 year old doesn't sleep for more then 3-5 hours at night, and then does several thing randomly. He wakes up his 3 and 5 year old siblings anywhere from midnight until 4 am and they don't go back to sleep (so I don't get to go to sleep). Or he binges thru the cabinets and fridge to get food or juice. Or he goes thru the house looking for newspapers, books, maps, whatever he can read, and making a lot of noise and messes along the way. Or he goes into his sleeping brother's room and binges thru his book bag or goes into the closet (we use my 12 year old's closet as a storage closet), and makes a mess....Then after doing 1 or all of the above, he goes back to bed, and sleeps for another 3-5 hours. Then wakes up and goes to school. He takes melatonin to help him sleep, but apparently it's not working or not working enough. Like he woke up at 3:00 this morning and I gave him 6mg of melatonin and now he's asleep again, but my 3 and 5 year old are awake. Any suggestions on this matter would be greatly appreciated and totally thankful! Thank you. I don't post a lot (mainly because I have a very choatic and busy life sometimes), but want to say I love this group! It's very supportive and informative! Have a great Friday and look forward to hearing from everyone! Hugs and Blessings,Sue'Wife to: JimMom to: 17 (severe nonverbal autism, developmental delays and adhd ) 12 (early onset bipolar disorder, adhd, and possible ODD) 5 (developmental delay and adhd)na 3 (totally average girl with no disabilities, delays or disorders so far Thank God!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Dear Jersey, My Son Sam unfortunately drown in our community retention pond on May 1. He was seven years and a half. We had just filed bankruptcy and lost our house in April of 2005. I had quit my job of 15 years to spend more time with my two kids just a week before Sam drown on May 1st. It has been the toughest year of our lives. My daughter had asked if sam was coming home to open his birthday gifts. Must stop now. Todd Help! Hello... My name is Sue and I am a fairly new member! I have a 17 year old with severe nonverbal autism and adhd. I also have 3 other younger children, 2 of which have disorders. I am requesting information from everyone from this group. Maybe suggestions or advice? My 17 year old doesn't sleep for more then 3-5 hours at night, and then does several thing randomly. He wakes up his 3 and 5 year old siblings anywhere from midnight until 4 am and they don't go back to sleep (so I don't get to go to sleep). Or he binges thru the cabinets and fridge to get food or juice. Or he goes thru the house looking for newspapers, books, maps, whatever he can read, and making a lot of noise and messes along the way. Or he goes into his sleeping brother's room and binges thru his book bag or goes into the closet (we use my 12 year old's closet as a storage closet), and makes a mess....Then after doing 1 or all of the above, he goes back to bed, and sleeps for another 3-5 hours. Then wakes up and goes to school. He takes melatonin to help him sleep, but apparently it's not working or not working enough. Like he woke up at 3:00 this morning and I gave him 6mg of melatonin and now he's asleep again, but my 3 and 5 year old are awake. Any suggestions on this matter would be greatly appreciated and totally thankful! Thank you. I don't post a lot (mainly because I have a very choatic and busy life sometimes), but want to say I love this group! It's very supportive and informative! Have a great Friday and look forward to hearing from everyone! Hugs and Blessings,Sue'Wife to: JimMom to: 17 (severe nonverbal autism, developmental delays and adhd ) 12 (early onset bipolar disorder, adhd, and possible ODD) 5 (developmental delay and adhd)na 3 (totally average girl with no disabilities, delays or disorders so far Thank God!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Hi, My 8 y/o used to get up at least 2 times a night and was very fatigued during the day. We started her on Calcium/Magnesium liquid from lifeline energetics and that helped a great deal. When we moved over to MB12 injections she really began sleeping soundly and now rarely naps in the day. Cara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Hi Sue, My 10 year old hfa son has always been the kind to get up in the middle of the night. The first thing they put him on to help him sleep was clonidine, but I didn't like the idea that it was primarily used to treat high blood pressure (it's a blood thinner). I'm a real worry-wart so I don't like playing around with that kind of thing, especially when it's not working, and for my son it wasn't. The next thing they tried was benadryl, 50 mg at bedtime, but he was extremely groggy when he would get up the next morning, making getting ready for school a real disaster! That's the same way benadryl does me too, so I know how he feels. I tried melatonin and it's been the answer to my prayers! Just one 3mg pill 30 minutes before bedtime and he sleeps soundly until I wake him for school the next morning. Now, I have heard from many parents about melatonin and for some it's a dream come true, yet for some it doesn't work at all. I think it just depends on the kid. My son, for example, has severe reactions to CFS stimulants, getting extremely agressive and self-injurous. He's never been able to take anything alone the lines of ritalin, concerta, adderall, etc. etc. So maybe that has something to do with it. If you haven't tried melatonin, it wouldn't hurt to try it. And at the age of 17, something else you could try is Valerian Root. Very smelly, but it works wonders. I use that for myself, after suffering from insomnia most of my life. Both Melatonin and Valerian can be purchased from Wal-Mart fairly cheap. Good luck! Stacey~ Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 , What is CFS drugs? Thanks, Lois Re: Help! Hi Sue, My 10 year old hfa son has always been the kind to get up in the middle of the night. The first thing they put him on to help him sleep was clonidine, but I didn't like the idea that it was primarily used to treat high blood pressure (it's a blood thinner). I'm a real worry-wart so I don't like playing around with that kind of thing, especially when it's not working, and for my son it wasn't. The next thing they tried was benadryl, 50 mg at bedtime, but he was extremely groggy when he would get up the next morning, making getting ready for school a real disaster! That's the same way benadryl does me too, so I know how he feels. I tried melatonin and it's been the answer to my prayers! Just one 3mg pill 30 minutes before bedtime and he sleeps soundly until I wake him for school the next morning. Now, I have heard from many parents about melatonin and for some it's a dream come true, yet for some it doesn't work at all. I think it just depends on the kid. My son, for example, has severe reactions to CFS stimulants, getting extremely agressive and self-injurous. He's never been able to take anything alone the lines of ritalin, concerta, adderall, etc. etc. So maybe that has something to do with it. If you haven't tried melatonin, it wouldn't hurt to try it. And at the age of 17, something else you could try is Valerian Root. Very smelly, but it works wonders. I use that for myself, after suffering from insomnia most of my life. Both Melatonin and Valerian can be purchased from Wal-Mart fairly cheap. Good luck! Stacey~ PhotosRing in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Oh, Lois...I'm sorry. I meant to type CNS instead of CFS (lol). I was busy trying to get out the door to work and didn't spell check! It means Central Nervous System Stimulants. Drugs likes Ritalin, Adderall, Concerta, Dexedrine, Dextrostat...etc. Pretty much the more common drugs for ADHD. Hope that clarifies a little more. Sorry about that, lol. Stacey~lois noland <jlois@...> wrote: , What is CFS drugs? Thanks, Lois__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 Thanks !!! Lois (: Re: Help! Oh, Lois...I'm sorry. I meant to type CNS instead of CFS (lol). I was busy trying to get out the door to work and didn't spell check! It means Central Nervous System Stimulants. Drugs likes Ritalin, Adderall, Concerta, Dexedrine, Dextrostat...etc. Pretty much the more common drugs for ADHD. Hope that clarifies a little more. Sorry about that, lol. Stacey~lois noland <jlois@...> wrote: , What is CFS drugs? Thanks, Lois __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 I know he will get angry with you, but I think you need to say " I don't know " . You are going a long with his ritual and it is getting worse. I know what rages are all about and that might happen, but the alternative is probably what you are seeing right now. I'm not sure what kind of meds he is on, but perhaps he needs a dose adjustment? Wish you the best, Bonnie > > Our son is driving us crazy! He is constantly asking us - " What time is > it? " And when I say constantly, I mean he asks me " what time is it? " > about every 30 seconds to 1 minute. It drives me crazy. AND, he cannot > tell time. He has no idea when I say, " it's 3:45 " what that means. He > has a terrible time identifying symbols so he can't tell numbers apart. > We got him one of those little digital clocks, that when you push the > button it says the time. He used it for a few days and it was > wonderful! But now he refuses to use it and throws huge fits if you go > near it. If you give it to him he throws it. He is also refusing to > do anything. He won't watch videos, play games, read books, or do > anything. He just sits on the couch and asks us what time it is. And > he'll ask if it's " almost time " . We have to ask " for what? " , because > what is there to look forward to, if you don't want to do anything? > Argh... waiting for a call back from his dr. But in the meantime, > completely exhausted.... > Deb > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 I know he will get angry with you, but I think you need to say " I don't know " . You are going a long with his ritual and it is getting worse. I know what rages are all about and that might happen, but the alternative is probably what you are seeing right now. I'm not sure what kind of meds he is on, but perhaps he needs a dose adjustment? Wish you the best, Bonnie > > Our son is driving us crazy! He is constantly asking us - " What time is > it? " And when I say constantly, I mean he asks me " what time is it? " > about every 30 seconds to 1 minute. It drives me crazy. AND, he cannot > tell time. He has no idea when I say, " it's 3:45 " what that means. He > has a terrible time identifying symbols so he can't tell numbers apart. > We got him one of those little digital clocks, that when you push the > button it says the time. He used it for a few days and it was > wonderful! But now he refuses to use it and throws huge fits if you go > near it. If you give it to him he throws it. He is also refusing to > do anything. He won't watch videos, play games, read books, or do > anything. He just sits on the couch and asks us what time it is. And > he'll ask if it's " almost time " . We have to ask " for what? " , because > what is there to look forward to, if you don't want to do anything? > Argh... waiting for a call back from his dr. But in the meantime, > completely exhausted.... > Deb > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 My son does this, if he asks is it almost time - we respond almost. We were told not to give direct answers on time. My son also has dysgraphia so has a hard time telling time( can not see the chapters on a clock) we gave him a digital watch. Is your son itinerary oriented? It makes a differance. Good Luck. Peggy Deb Millard <sdcm@...> wrote: Our son is driving us crazy! He is constantly asking us - " What time is it? " And when I say constantly, I mean he asks me " what time is it? " about every 30 seconds to 1 minute. It drives me crazy. AND, he cannot tell time. He has no idea when I say, " it's 3:45 " what that means. He has a terrible time identifying symbols so he can't tell numbers apart. We got him one of those little digital clocks, that when you push the button it says the time. He used it for a few days and it was wonderful! But now he refuses to use it and throws huge fits if you go near it. If you give it to him he throws it. He is also refusing to do anything. He won't watch videos, play games, read books, or do anything. He just sits on the couch and asks us what time it is. And he'll ask if it's " almost time " . We have to ask " for what? " , because what is there to look forward to, if you don't want to do anything? Argh... waiting for a call back from his dr. But in the meantime, completely exhausted.... Deb Our list archives, bookmarks, files, and chat feature may be accessed at: / . Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D.( http://www.worrywisekids.org ), Dan Geller, M.D.,Aureen Pinto Wagner, Ph.D., ( http://www.lighthouse-press.com ). Our list moderators are Birkhan, Chris Castle, Fowler, Kathy Hammes, Joye, Kathy Mac, Gail Pesses, and Kathy . Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at louisharkins@... , louisharkins@... , louisharkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2006 Report Share Posted January 13, 2006 Todd, I am so so sorry. Aren't you thankful that at least you had quit your job to spend more time with Sam before he drowned. I wish I knew words of comfort, but there just aren't any for the loss of a child. God bless you, Pat K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2006 Report Share Posted January 13, 2006 Hi Jodi, welcome to the group. I have a 17 yo son who is also nonverbal and autistic. Up until his teens he was always a sweet, fun, lovable guy. He has had problems with aggression for the past 2-3 years but it increased a lot more with the start of this school year. He has engaged in head banging staff and other students as well as attacking me. He will grab hold of your arms and dig his nails in so hard you bleed. His level of frustration seems so intense. Risperdal does help my son. We keep the dose as low as possible to counteract the increased appetite concerns. I've found that since he towers over me (and is aware of his physical advantage) that I have to be very firm and consistent with him and make sure that my " no " means no. I talk to him about feelings and I have a special chart that he can use to show me how he is feeling and what his mood is. Sometimes just acknowledging that I know and understand goes a long way. At this time I plan to keep Cody with me for as long as possible depending on my health as I age. I want to slowly transition him into a group home well before my final exit. It would be nice if the good Lord would give me plenty of warning but realistically we can't plan on that. My daughter will be his guardian if the unexpected should occur. She knows the plan to act in her brother's best interest. My son cannot be left alone but I do have a few friends that are okay with watching him. Donna Re: Help! > Hello: > > There are a lot of interesting ideas to read from > everyone in this group. I am new also, and mentioned > the melatonin w/magnesium. But, I have another > question......we have a 10 year old with autism who is > nonberbal. We have started to see a lot of obsessive > compulsive behavior with a little bit of aggression > when he doesn't get his way in the past two months. > He never had aggression before this. We haven't > changed anything in his diet (he's not on the gf/cf > diet) and he has never been on medication. Finally I > took him to see a psychiatrist who has seen some > autistic children in our city. He started my son on a > very very small dose of Risperdal. Does anyone have > experience with this medicine, and does anyone have > experience with the sudden onset of obsessive > compulsive behavior that is to the point of being > annoying? > Also, I think deep inside I am somewhat fearful of my > son entering the teen years. I don't know what to > expect with puberty, etc. Any insights? What have > some of you that have older teens with autism expect > for your son/daughter after high school, some sort of > community living or housing for adults with autism? > Or do you expect them to live at home, and if so, are > you comfortable in leaving them by themselves while > you work, if you do, and if you can't leave them by > themselves how do you arrange for care? I know it is > so many questions, but I was wondering if anyone had > any insights? Thanks so much! > > Jodi > mother to zakery who is 10 > > > > > > > > > > --- Patti Fountain <preciouspiecutie@...> wrote: > > > Hi Sue. My name is Patti and I am new to this > > group. I have seven year old fraternal twin > > daughters that are nonverbal with autism. They > > still have sleeping problems at times. One of my > > daughter's is taking Geodon. She has been on other > > medications before, but had to be taken off of them > > for weight gain and/or other side effects. So far, > > the Geodon has made a big difference in her sleeping > > and helping her mood. She has been on Geodon for > > four days. My other daughter has been put on > > Risperdal one low dose tablet at night to avoid > > weight gain. The doctor also prescribed Rozerum 8 > > mg tablets to help her sleep at night. She takes > > one tablet at night. This medicine is a natural > > type of medication and doesn't give a druggy sleep. > > I don't know if you would want to go the medicine > > route or not. I as well as my kids went so long > > without sleep that we had to do something. We also > > have a lot of behavior issues such as severe > > aggression, self-injurious behaviors such as head > > banging and one of my girls pulls her hair out. > > She also has bad gastrointestinal problems. I have > > them both on the GFCF diet. The only thing that I > > can tell that it has helped with is their > > gastrointestinal health. We are going two days a > > week to a university for speech therapy PECS. We > > are also going to start going to sensory integration > > therapy twice a week as well. Maybe it will help. > > Sometimes I feel as if I am chomping at the bits. > > Noone can possibly understand what we go through if > > they don't have a special needs child. I pretty much > > am caring and doing it all for my kids. I get > > pretty tired, but somehow I keep going even though > > I'm not the everready bunny. I don't know if I have > > helped you, but it is nice to have someone to e-mail > > who understands. Take care. > > > > Patti > > > > Ajerseygirl52@... wrote: > > Hello... > > My name is Sue and I am a fairly new member! I > > have a 17 year old with severe nonverbal autism and > > adhd. I also have 3 other younger children, 2 of > > which have disorders. I am requesting information > > from everyone from this group. Maybe suggestions or > > advice? My 17 year old doesn't sleep for more then > > 3-5 hours at night, and then does several thing > > randomly. He wakes up his 3 and 5 year old siblings > > anywhere from midnight until 4 am and they don't go > > back to sleep (so I don't get to go to sleep). Or he > > binges thru the cabinets and fridge to get food or > > juice. Or he goes thru the house looking for > > newspapers, books, maps, whatever he can read, and > > making a lot of noise and messes along the way. Or > > he goes into his sleeping brother's room and binges > > thru his book bag or goes into the closet (we use my > > 12 year old's closet as a storage closet), and makes > > a mess....Then after doing 1 or all of the above, he > > goes back to bed, and sleeps for another 3-5 hours. > > Then wakes up and goes to > > school. He takes melatonin to help him sleep, but > > apparently it's not working or not working enough. > > Like he woke up at 3:00 this morning and I gave him > > 6mg of melatonin and now he's asleep again, but my 3 > > and 5 year old are awake. Any suggestions on this > > matter would be greatly appreciated and totally > > thankful! Thank you. I don't post a lot (mainly > > because I have a very choatic and busy life > > sometimes), but want to say I love this group! It's > > very supportive and informative! > > Have a great Friday and look forward to hearing > > from everyone! > > Hugs and Blessings, > > Sue > > 'Wife to: Jim > > Mom to: > > 17 (severe nonverbal autism, developmental > > delays and adhd ) > > 12 (early onset bipolar disorder, adhd, and > > possible ODD) > > 5 (developmental delay and adhd) > > na 3 (totally average girl with no > > disabilities, delays or disorders so far Thank > > God!!) > > > > > > --------------------------------- > > ! GROUPS LINKS > > > > > > Visit your group " autism " on the > > web. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2006 Report Share Posted January 13, 2006 Hi Jodi, You should have your son checked for PANDAS (Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep). Do a search on "PANDAS +strep -bear" and you'll find info. on this disorder. For starters, I'd have your Dr. do an ASO titer; he can have a sky-high strep titer even with no evidence of a strep throat. Sudden onset of OCD behaviors is a big indicator here. My son was on risperdal (among others) for severe aggression before we discovered he had a very elevated ASO titer and stealth viruses. As we've treated these, the aggression has decreased as the ASO titer has decreased (and he's no longer on risperdal). HTH, Heidi -------------- Original message -------------- From: J Hofer <bluejay9595@...> > Hello: > > There are a lot of interesting ideas to read from > everyone in this group. I am new also, and mentioned > the melatonin w/magnesium. But, I have another > question......we have a 10 year old with autism who is > nonberbal. We have started to see a lot of obsessive > compulsive behavior with a little bit of aggression > when he doesn't get his way in the past two months. > He never had aggression before this. We haven't > changed anything in his diet (he's not on the gf/cf > diet) and he has never been on medication. Finally I > took him to see a psychiatrist who has seen some > autistic children in our city. He started my son on a > very very small dose of Risperdal. Does anyone have > experience with this medicine, and does anyone have > experience with the sudden onset of obsessive > compulsive behavior that is to the point of being > annoying? > Also, I think deep inside I am somewhat fearful of my > son entering the teen years. I don't know what to > expect with puberty, etc. Any insights? What have > some of you that have older teens with autism expect > for your son/daughter after high school, some sort of > community living or housing for adults with autism? > Or do you expect them to live at home, and if so, are > you comfortable in leaving them by themselves while > you work, if you do, and if you can't leave them by > themselves how do you arrange for care? I know it is > so many questions, but I was wondering if anyone had > any insights? Thanks so much! > > Jodi > mother to zakery who is 10 > > > > > > > > > > --- Patti Fountain wrote: > > > Hi Sue. My name is Patti and I am new to this > > group. I have seven year old fraternal twin > > daughters that are nonverbal with autism. They > > still have sleeping problems at times. One of my > > daughter's is taking Geodon. She has been on other > > medications before, but had to be taken off of them > > for weight gain and/or other side effects. So far, > > the Geodon has made a big difference in her sleeping > > and helping her mood. She has been on Geodon for > > four days. My other daughter has been put on > > Risperdal one low dose tablet at night to avoid > > weight gain. The doctor also prescribed Rozerum 8 > > mg tablets to help her sleep at night. She takes > > one tablet at night. This medicine is a natural > > type of medication and doesn't give a druggy sleep. > > I don't know if you would want to go the medicine > > route or not. I as well as my kids went so long > > without sleep that we had to do something. We also > > have a lot of behavior issues such as severe > > aggression, self-injurious behaviors such as head > > banging and one of my girls pulls her hair out. > > She also has bad gastrointestinal problems. I have > > them both on the GFCF diet. The only thing that I > > can tell that it has helped with is their > > gastrointestinal health. We are going two days a > > week to a university for speech therapy PECS. We > > are also going to start going to sensory integration > > therapy twice a week as well. Maybe it will help. > > Sometimes I feel as if I am chomping at the bits. > > Noone can possibly understand what we go through if > > they don't have a special needs child. I pretty much > > am caring and doing it all for my kids. I get > > pretty tired, but somehow I keep going even though > > I'm not the everready bunny. I don't know if I have > > helped you, but it is nice to have someone to e-mail > > who understands. Take care. > > > > Patti > > > > Ajerseygirl52@... wrote: > > Hello... > > My name is Sue and I am a fairly new member! I > > have a 17 year old with severe nonverbal autism and > > adhd. I also have 3 other younger children, 2 of > > which have disorders. I am requesting information > > from everyone from this group. Maybe suggestions or > > advice? My 17 year old doesn't sleep for more then > > 3-5 hours at night, and then does several thing > > randomly. He wakes up his 3 and 5 year old siblings > > anywhere from midnight until 4 am and they don't go > > back to sleep (so I don't get to go to sleep). Or he > > binges thru the cabinets and fridge to get food or > > juice. Or he goes thru the house looking for > > newspapers, books, maps, whatever he can read, and > > making a lot of noise and messes along the way. Or > > he goes into his sleeping brother's room and binges > > thru his book bag or goes into the closet (we use my > > 12 year old's closet as a storage closet), and makes > > a mess....Then after doing 1 or all of the above, he > > goes back to bed, and sleeps for another 3-5 hours. > > Then wakes up and goes to > > school. He takes melatonin to help him sleep, but > > apparently it's not working or not working enough. > > Like he woke up at 3:00 this morning and I gave him > > 6mg of melatonin and now he's asleep again, but my 3 > > and 5 year old are awake. Any suggestions on this > > matter would be greatly appreciated and totally > > thankful! Thank you. I don't post a lot (mainly > > because I have a very choatic and busy life > > sometimes), but want to say I love this group! It's > > very supportive and informative! > > Have a great Friday and look forward to hearing > > from everyone! > > Hugs and Blessings, > > Sue > > 'Wife to: Jim > > Mom to: > > 17 (severe nonverbal autism, developmental > > delays and adhd ) > > 12 (early onset bipolar disorder, adhd, and > > possible ODD) > > 5 (developmental delay and adhd) > > na 3 (totally average girl with no > > disabilities, delays or disorders so far Thank > > God!!) > > > > > > --------------------------------- > > ! GROUPS LINKS > > > > > > Visit your group "autism" on the > > web. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2006 Report Share Posted January 13, 2006 Jodi, I'm sorry I forgot to say that this is Cody's second year in the prevocational class at the special needs school he attends. He has " jobs " around the school such as taking chairs off tables in the cafeteria, helping to do wash and delivering mail. He is paid a small wage to teach money skills. He likes his jobs. Next year the plan is for him to move up to the vocational class which is called the " wages " program where he will work a job off campus for half the school day. The other half day will be devoted to academics. He will have a job coach with him at all times. I have already made arrangements to go and check out his job site before they place him. By the time he ages out of the school system (21 yo in NY) he will be able to perform some type of job. Donna > > Hello: > > > > There are a lot of interesting ideas to read from > > everyone in this group. I am new also, and mentioned > > the melatonin w/magnesium. But, I have another > > question......we have a 10 year old with autism who is > > nonberbal. We have started to see a lot of obsessive > > compulsive behavior with a little bit of aggression > > when he doesn't get his way in the past two months. > > He never had aggression before this. We haven't > > changed anything in his diet (he's not on the gf/cf > > diet) and he has never been on medication. Finally I > > took him to see a psychiatrist who has seen some > > autistic children in our city. He started my son on a > > very very small dose of Risperdal. Does anyone have > > experience with this medicine, and does anyone have > > experience with the sudden onset of obsessive > > compulsive behavior that is to the point of being > > annoying? > > Also, I think deep inside I am somewhat fearful of my > > son entering the teen years. I don't know what to > > expect with puberty, etc. Any insights? What have > > some of you that have older teens with autism expect > > for your son/daughter after high school, some sort of > > community living or housing for adults with autism? > > Or do you expect them to live at home, and if so, are > > you comfortable in leaving them by themselves while > > you work, if you do, and if you can't leave them by > > themselves how do you arrange for care? I know it is > > so many questions, but I was wondering if anyone had > > any insights? Thanks so much! > > > > Jodi > > mother to zakery who is 10 > > > > > > > > > > > > > > > > > > > > --- Patti Fountain <preciouspiecutie@...> wrote: > > > > > Hi Sue. My name is Patti and I am new to this > > > group. I have seven year old fraternal twin > > > daughters that are nonverbal with autism. They > > > still have sleeping problems at times. One of my > > > daughter's is taking Geodon. She has been on other > > > medications before, but had to be taken off of them > > > for weight gain and/or other side effects. So far, > > > the Geodon has made a big difference in her sleeping > > > and helping her mood. She has been on Geodon for > > > four days. My other daughter has been put on > > > Risperdal one low dose tablet at night to avoid > > > weight gain. The doctor also prescribed Rozerum 8 > > > mg tablets to help her sleep at night. She takes > > > one tablet at night. This medicine is a natural > > > type of medication and doesn't give a druggy sleep. > > > I don't know if you would want to go the medicine > > > route or not. I as well as my kids went so long > > > without sleep that we had to do something. We also > > > have a lot of behavior issues such as severe > > > aggression, self-injurious behaviors such as head > > > banging and one of my girls pulls her hair out. > > > She also has bad gastrointestinal problems. I have > > > them both on the GFCF diet. The only thing that I > > > can tell that it has helped with is their > > > gastrointestinal health. We are going two days a > > > week to a university for speech therapy PECS. We > > > are also going to start going to sensory integration > > > therapy twice a week as well. Maybe it will help. > > > Sometimes I feel as if I am chomping at the bits. > > > Noone can possibly understand what we go through if > > > they don't have a special needs child. I pretty much > > > am caring and doing it all for my kids. I get > > > pretty tired, but somehow I keep going even though > > > I'm not the everready bunny. I don't know if I have > > > helped you, but it is nice to have someone to e-mail > > > who understands. Take care. > > > > > > Patti > > > > > > Ajerseygirl52@... wrote: > > > Hello... > > > My name is Sue and I am a fairly new member! I > > > have a 17 year old with severe nonverbal autism and > > > adhd. I also have 3 other younger children, 2 of > > > which have disorders. I am requesting information > > > from everyone from this group. Maybe suggestions or > > > advice? My 17 year old doesn't sleep for more then > > > 3-5 hours at night, and then does several thing > > > randomly. He wakes up his 3 and 5 year old siblings > > > anywhere from midnight until 4 am and they don't go > > > back to sleep (so I don't get to go to sleep). Or he > > > binges thru the cabinets and fridge to get food or > > > juice. Or he goes thru the house looking for > > > newspapers, books, maps, whatever he can read, and > > > making a lot of noise and messes along the way. Or > > > he goes into his sleeping brother's room and binges > > > thru his book bag or goes into the closet (we use my > > > 12 year old's closet as a storage closet), and makes > > > a mess....Then after doing 1 or all of the above, he > > > goes back to bed, and sleeps for another 3-5 hours. > > > Then wakes up and goes to > > > school. He takes melatonin to help him sleep, but > > > apparently it's not working or not working enough. > > > Like he woke up at 3:00 this morning and I gave him > > > 6mg of melatonin and now he's asleep again, but my 3 > > > and 5 year old are awake. Any suggestions on this > > > matter would be greatly appreciated and totally > > > thankful! Thank you. I don't post a lot (mainly > > > because I have a very choatic and busy life > > > sometimes), but want to say I love this group! It's > > > very supportive and informative! > > > Have a great Friday and look forward to hearing > > > from everyone! > > > Hugs and Blessings, > > > Sue > > > 'Wife to: Jim > > > Mom to: > > > 17 (severe nonverbal autism, developmental > > > delays and adhd ) > > > 12 (early onset bipolar disorder, adhd, and > > > possible ODD) > > > 5 (developmental delay and adhd) > > > na 3 (totally average girl with no > > > disabilities, delays or disorders so far Thank > > > God!!) > > > > > > > > > --------------------------------- > > > ! GROUPS LINKS > > > > > > > > > Visit your group " autism " on the > > > web. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Make sure the pain is in the muscle, not in the joint. Muscle pain= okay. Joint pain= not good. Good hot showers, motrin or advil for the muscle soreness. Keep them moving, that'll help work the soreness out. It's always a good upperbody workout when you can't hold your arm steady long enough to put on mascara. Deb > > Hi ladies > I am on my first week on BFL, and my problems is that > I have over exerted myself and my arms/shoulders are > so sore. I was wondering what you all use or do to > help ease the pain of sore muscles? > > I am 40 years old, and currently weigh 299.75 pounds, > and have diabetes. I am married to the love of my > life, Cameron, for 22 years and we have three > children. > > You can see a picture of me on my 360* profile > page(joe_anne2), which also has the website address to > my personal pages and journals. > > I appreciate any help, and advice you can give. > Thanks, > > > Joanne > > Ms. Pagant Gal Americana West 2006 > > Mrs. Native America International Woman of Excellence 2006 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Try some Emergen-C, and some of your anti-inflammatory of choice. Drink a ton of water and it¹ll go away...slowly. The soreness is little tiny muscle tears which needs to occur to build muscle, but you have too many and you¹ve collected some lactic acid in your muscles and it hurts. I use Advil, some Emergen-C and some hair of the dog that bit me to work through it. Another words, do some light exercises for those areas that are sore and it will help move the lactic acid out. On 1/18/06 6:32 PM, " Joanne " <joe_anne2@...> wrote: > Hi ladies > I am on my first week on BFL, and my problems is that > I have over exerted myself and my arms/shoulders are > so sore. I was wondering what you all use or do to > help ease the pain of sore muscles? > > I am 40 years old, and currently weigh 299.75 pounds, > and have diabetes. I am married to the love of my > life, Cameron, for 22 years and we have three > children. > > You can see a picture of me on my 360* profile > page(joe_anne2), which also has the website address to > my personal pages and journals. > > I appreciate any help, and advice you can give. > Thanks, > > > Joanne > > Ms. Pagant Gal Americana West 2006 > > Mrs. Native America International Woman of Excellence 2006 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 In a message dated 1/23/2006 2:34:00 PM Pacific Standard Time, beckymcclure825@... writes: Any advice-do I call the infectious disease dr-just sit and wait..... Becky, Call!!! It can't hurt and are listening to your gut. Sandi, Mom to , age 12, CVID Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 I can't remember is Maddie on IVIG? Dayna HELP! We got a note home today that two children in Maddie's classroom have come down with the chicken pox. We know Maddie did not build any immunity to the vaccine-as she has already had a horrid case of shingles- Any advice-do I call the infectious disease dr-just sit and wait.....This makes me very NERVOUS! She was miserable with shingles-and I really don't want to panic-but things have been going well-other than our current sinus infection-which makes me more nervous-because her what immune system she does have seems to be on overload status now- Any thoughts, ideas would be appreciated! Becky in IN-mom to Maddie, age 9, IgA def, low IgG's, NK cell defect, asthma, gerd, ......... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 I was told that if my son was exposed that he would need VZIG for the antibodies specific to chicken pox. I would call and see what they say! Good luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 I was told when was exposed as long as she is on IVIG she is covered! Lorri ( 15 CVID) HELP! We got a note home today that two children in Maddie's classroom have come down with the chicken pox. We know Maddie did not build any immunity to the vaccine-as she has already had a horrid case of shingles- Any advice-do I call the infectious disease dr-just sit and wait.....This makes me very NERVOUS! She was miserable with shingles-and I really don't want to panic-but things have been going well-other than our current sinus infection-which makes me more nervous-because her what immune system she does have seems to be on overload status now- Any thoughts, ideas would be appreciated! Becky in IN-mom to Maddie, age 9, IgA def, low IgG's, NK cell defect, asthma, gerd, ......... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2006 Report Share Posted March 30, 2006 Well, we are new to this area. We have only lived here less than two months. We moved from Tennessee to GA. Hayden has only been to this psychiatrist once. He is well known in his field but is like 75 years old and doesn't have a secretary. He apparently lives up the street from his office and checks in when he needs to. I made an apt to see a new psychiatrist in this area but can't get in until April 12th. Hayden has been on every medication you can think of over the years. We are revisiting the ones he has been on before to see if he can handle them now that he is older. He was on Risperdal, imipermine and Prozac. Several months back he was switched to risperdal and anafranil. (Sorry about spelling of medications) Neither of these combinations were working. The initially help with his anxiety but as we start to increase it to help with OCD his behavior gets worse and OCD gets worse. The new doctor put him on risperdal and Lexapro. He is only getting .5 right now of the Lexapro. He has been taking it for five days. He has developed this tick sound from his throat. I ask him why he keeps making the sound and he said his brain tells him he has to make it. He said sometimes he doesn't realize he is doing it. I wonder if this is a temp. side affect? Not sure what to do??????? Quote Link to comment Share on other sites More sharing options...
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