Aandraya

February 16, 2012

HI, Aandraya!I am glad to hear that you are still improving. You have made such a long journey and I hope youÂ´ll reach the end and become 100% well!

Take care!

Cecilia

From: Aandraya <aandraya@...>"bird mites " <bird mites > Sent: Wednesday, February 15, 2012 8:01 PMSubject: Re: Follow up

That is such great news, Elissa. I hope Dr. leaves plenty of trained practitioners behind him. My doctor shadowed him recently and said he's pretty amazing.

I continue to improve slowly, presently targeting Babesia which I am finding to be key in my recovery. Stay the course, there is an endpoint to treatment and know of many who are past all this.

I have been free of all bugs for 16 months, 1 year of Lyme treatment resolved those issues. I even have a small tree in my apartment and feel okay with that. I still hate seeing any sort of lint ball on my clothes, some remaining trauma.

Aandraya

On Feb 14, 2012, at 8:10 PM, lissarachel <elissarachel@...> wrote:

Hi All,I haven't posted for a while...I read through most posts and am glad to hear things have improved for some :)I have realized now it does get better. Everyone else hang in there.Abx were what did it for me. I haven't had more than a few little pricks in a few weeks.I do herx midday and feel achy with headache most days, but I take it as a sign the meds are working. Most of my neuro stuff has gotten 90% better.Pregnancy is going well. 17 weeks now. that,.my 1 yr. Old and herxing leave me with no energy for email.I change the sheets 3-4 times a week still. Since mites stopped biting me, they now bite my son when he gets sick...which is pretty frequently these days. This was horrible for me. So I asked dr. jones for an earlier appt. He is a wonderful pediatrician and we're now just waiting on the results.Dr. J and his office staff knew all about mites biting

humans. Hallelujah he made us feel sane (we know we are,.but never felt that way after telling a dr. about the mites.I still read 90% of the posts and reply when I feel okay.Finally we will be moving in may and decided to go with nothing! Hopefully with my son on abx, this will be the last of the mites!Elissa

April 23, 2012

Hi Aa

Hope ur well

Why does bartonella get worse at night?my feet driving me insane tonite

Hand too

Got time of month could hormones make bart worse?

I think may have it

But also sometimes see little wound marks on feet

Tiny tiny little holes where it been itchy which makes,me,think muted are

hatching out

Anyone else had that ?

------------------------------

On Mon, Apr 23, 2012 11:10 PDT Aandraya wrote:

>I think you'll find them once you're away from home for a while. Try putting

some lotion(not oil) on your skin and see if you produce anything.

>

>Aandraya

>

>On Apr 23, 2012, at 12:21 AM, mitesbegone <no_reply > wrote:

>

>> Okay, I am not getting it I guess. I know I have bird mites. A friend of mind

picked up a bird cage that I had, which I cleaned and then took outside. When

she put her birds in it they became infested with mites. She had to kill them

all by dusting the birds with Sevin dust. I asked her to capture some of the

dead ones so I could show it to the PCO as proof I have mites. But I also have

these little black specks. But I don't get them unless I am at my house. I went

over there today to pick up somethings and before I knew it I was scratching and

they got up my leg and I once again found these little black specks on me. After

I got rid of them, I stopped feeling itchy. So that doesn't really sound like

fungi, because then it would continue even away from home, right??

>>

>> I am so confused...

>>

>> Terry

>>

>> > > >

>> > > > Hi everyone,

>> > > >

>> > > > I was wondering how many of you find black, red and blue fibers all

over you?

>> > > >

>> > > > Has anyone tried running a lint roller over your body, clothes, bed

>> > > > sheets, scalp, etc?

>> > > >

>> > > > Whenever I do this, the lint roller ends up with hundreds of

>> > > > thousands, of black, red and blue fibers. Some very long, some

>> > > > incredibly tiny.

>> > > >

>> > > > I saw a CNN report on Morgellons and this was one of the biggest

>> > > > findings, the colored fibers.

>> > > >

>> > > > Just curious about who else has this symptom and what has it been like.

>> > > >

>> > > > Jess

>> > > >

>> > >

>> > > ------------------------------------

>> > >

April 23, 2012

Mites hatching out not mutes!!!

April 23, 2012

C- I don't know why at night, but I've heard that complaint many times. I've heard people say they get worse around dusk too. And yes, before and during period symptoms get worse. I don't know if I had the tiny holes, I had so much stuff coming out of my skin.AandrayaOn Apr 23, 2012, at 4:14 PM, ILIKE TREES <wherearetheangels@...> wrote:

Hi Aa

Hope ur well

Why does bartonella get worse at night?my feet driving me insane tonite

Hand too

Got time of month could hormones make bart worse?

I think may have it

But also sometimes see little wound marks on feet

Tiny tiny little holes where it been itchy which makes,me,think muted are hatching out

Anyone else had that ?

------------------------------

On Mon, Apr 23, 2012 11:10 PDT Aandraya wrote:

>I think you'll find them once you're away from home for a while. Try putting some lotion(not oil) on your skin and see if you produce anything.

>

>Aandraya

>

>On Apr 23, 2012, at 12:21 AM, mitesbegone <no_reply > wrote:

>

>> Okay, I am not getting it I guess. I know I have bird mites. A friend of mind picked up a bird cage that I had, which I cleaned and then took outside. When she put her birds in it they became infested with mites. She had to kill them all by dusting the birds with Sevin dust. I asked her to capture some of the dead ones so I could show it to the PCO as proof I have mites. But I also have these little black specks. But I don't get them unless I am at my house. I went over there today to pick up somethings and before I knew it I was scratching and they got up my leg and I once again found these little black specks on me. After I got rid of them, I stopped feeling itchy. So that doesn't really sound like fungi, because then it would continue even away from home, right??

>>

>> I am so confused...

>>

>> Terry

>>

>> > > >

>> > > > Hi everyone,

>> > > >

>> > > > I was wondering how many of you find black, red and blue fibers all over you?

>> > > >

>> > > > Has anyone tried running a lint roller over your body, clothes, bed

>> > > > sheets, scalp, etc?

>> > > >

>> > > > Whenever I do this, the lint roller ends up with hundreds of

>> > > > thousands, of black, red and blue fibers. Some very long, some

>> > > > incredibly tiny.

>> > > >

>> > > > I saw a CNN report on Morgellons and this was one of the biggest

>> > > > findings, the colored fibers.

>> > > >

>> > > > Just curious about who else has this symptom and what has it been like.

>> > > >

>> > > > Jess

>> > > >

>> > >

>> > > ------------------------------------

>> > >

July 18, 2012

This is true,which is why I am most anxious to have my daughter tested for Lyme

disease. She is now 5 months pregnant and I want to make sure she is not

passing anything to her baby. My doctor suspects I may have passed Lyme to my

son.

Terry

> > >> > > > > >

> > >> > > > > > This is my first post to the group. I joined a couple

> > weeks back, and have intended to write something all the while. I'm

> > a beaten man, though, and I've lacked the motivation to actually

> > sit down and coagulate my thoughts. I've been living with bird

> > mites on and off for almost two years now, having moved to a new

> > house right in the middle. I've done all sorts of crazy things, as

> > many of you have, with varying degrees of never-complete

> > effectiveness. I've vacuumed for up to 10 hours a day (not lately).

> > I've used a steam vaporizer that long, too... both on every square

> > inch of floor, wall, and ceiling. Remembering, of course, to empty

> > the bag immediately, Ziploc bag it, freeze it until trash day, then

> > dispose of it promptly. I mean, that's what everyone does, right??

> > >> > > > > >

> > >> > > > > > I've used every 'thrin known to man. Hired three PCOs.

> > Spread thin layers of DE throughout my house, more than once. I've

> > used Bifen, melted menthol crystals (which left red circles around

> > my eyes, especially when combined with all the Selsun Blue I used

> > until recently - WAAAY too much menthol), Xtreme Kleen, spread

> > bleach, Borax, amonia, and lots of other chemicals I don't recall

> > at the moment.

> > >> > > > > >

> > >> > > > > > I've hired a plumber to connect a new water line

> > directly from my water heater to the washing machine, allowing me

> > to wash clothes in hotter water than the rest of the house gets.

> > I've bathed my dog way more than a dog should be bathed. I shower

> > up to three times a day, scrubbing my skin raw with a loofah sponge

> > I used to enjoy. I've scratched. I've anticipated needing to

> > scratch just as much. I've brushed my teeth every day for the past

> > four months while constantly moving my feet so I can handle being

> > in the bathroom; I've brushed my teeth less than I ever have as a

> > result (yummy!). I've slept on the couch every day for the past

> > three months while my wife sleeps in our bed because I don't want

> > my attractiveness among mites to impact her sleep.

> > >> > > > > >

> > >> > > > > > I've contemplated suicide many, many times. Never

> > thinking that I'll actually do it, mind you. I have two kids, after

> > all, and I'd never act that selfishly. But I fantasize about it, as

> > it seems like such a peaceful solution to what life has thrown at

> > me. I watch commercials or tv shows profiling people relaxing in

> > their fictitious houses - presumably mite-free - and I become

> > jealous. Ditto toward my friends and family. I worry constantly

> > that I'll give the problem to someone else, though I never have

> > (I'm diligent about putting on clean clothes, showering, even steam-

> > cleaning bags and such before daring to spend appreciable amounts

> > of time in anyone's house or car).

> > >> > > > > >

> > >> > > > > > In all my reading, the posts I see from people who've

> > successfully rid themselves of this plague fall into three categories:

> > >> > > > > >

> > >> > > > > > 1) People who've gotten rid of all possessions and

> > moved to a new home.

> > >> > > > > > 2) People who've gotten rid of all possessions and

> > clorox'ed/bleached/amonia'ed their empty home until the cows came

> > home.

> > >> > > > > > 3) People who've managed to have their homes Vikane

> > gassed.

> > >> > > > > >

> > >> > > > > > We moved in February, and brought the problem with us.

> > I could go on and on about how pissed I am at myself for not doing

> > a better job of ensuring we didn't bring it with us, but I don't

> > even like to think about it. The point is that we're not going to

> > move again any time soon, so option 1 is off the table. I was ready

> > to go with #2, but my wife didn't like the idea of having to buy

> > all new stuff without any guarantee that it'd fix the problem.

> > (side, but important, note: Of all the family members, I feel the

> > little fuckers the most, by far. My wife feels them occasionally,

> > and neither of my kids feels them at all. I'm very thankful that no

> > one else feels them like I do, while simultaneously feeling sorry

> > for myself that I had to draw a short straw.)

> > >> > > > > >

> > >> > > > > > So, my new focus is on getting a PCO to tent and

> > Vikane the house. It'll be expensive, especially since I'll want it

> > done twice, a week or so apart to account for the eggs, which

> > should be studied by the U.S. military since they seem impervious

> > to everything. But I'd literally pay any amount of money to fix the

> > problem at this point, a sentiment many of you can relate to. If

> > Vikane works, I'll consider it the best investment I will ever make.

> > >> > > > > >

> > >> > > > > > If it doesn't work, I will become an even more

> > desperate man, and will convince my wife that throwing out all our

> > stuff is necessary. We've already spent upwards of $20,000 treating

> > this problem, including chemicals, cleaners, PCOs, hotel stays, pet

> > hotel stays, etc. If we have to throw out our stuff, I'd estimate

> > it'll cost an additional $75K.

> > >> > > > > >

> > >> > > > > > I've been divorced, and it was awful. I remember

> > thinking at one point that I hoped it'd wind up being the worst

> > thing I ever had to deal with. But, looking back, that was a cake-

> > walk. Each day sucked for a while. But at the end of each day, I

> > got to plop on a couch, drink too much alcohol, and relax. This

> > problem robs me of that ability. I can never fully relax, unless

> > I'm in the shower or a pool or other source of moving water. Also

> > when I exercise, though I'm often too tired or scatter-brained to

> > do that. I've been an exercise addict for about 20 years, typically

> > lifting weights and/or running about six days a week. Now I'm lucky

> > if I get three days; usually one or two. In short summary, I'm a

> > beaten man, once full of life and now struggling to maintain my

> > ability to pretend to be normal around others.

> > >> > > > > >

> > >> > > > > > Wow. I really am all over the map here, and I've

> > certainly bitched enough for one email. So I'll end it at that.

> > Many of you are in the same boat, which I suppose is why I'm

> > writing. Misery does draw comfort from company, and so this forum

> > is a godsend. Knowing you're all out there helps remind me that I'm

> > not crazy; I'm not imagining this problem as many people think I

> > am. Increasingly, I appreciate that help, as I've been questioning

> > my sanity a lot lately. So, thanks, everyone, for sharing your

> > stories and remedies. It's nice to know you're out there.

> > >> > > > > >

> > >> > > > > > - Matt

> > >> > > > > >

> > >> > > > >

> > >> > > >

> > >> > >

> > >> > > ------------------------------------

> > >> > >

July 18, 2012

This is just so awful... I surely hope not Terry. But better treated than not, esp. with a new baby coming into the family.From: "mitesbegone" <no_reply >bird mites Sent: Wednesday, July 18, 2012 1:05:07 PMSubject: Re: AandrayaThis is true,which is why I am most anxious to have my daughter tested for Lyme disease. She is now 5 months pregnant and I want to make sure she is not passing anything to her baby. My doctor suspects I may have passed Lyme to my son.Terry> > >> > > > > >> > >> > > > > > This is my first post to the group. I joined a couple > > weeks back, and have intended to write something all the while. I'm > > a beaten man, though, and I've lacked the motivation to actually > > sit down and coagulate my thoughts. I've been living with bird > > mites on and off for almost two years now, having moved to a new > > house right in the middle. I've done all sorts of crazy things, as > > many of you have, with varying degrees of never-complete > > effectiveness. I've vacuumed for up to 10 hours a day (not lately). > > I've used a steam vaporizer that long, too... both on every square > > inch of floor, wall, and ceiling. Remembering, of course, to empty > > the bag immediately, Ziploc bag it, freeze it until trash day, then > > dispose of it promptly. I mean, that's what everyone does, right??> > >> > > > > >> > >> > > > > >> > >> > > > > > I've used every 'thrin known to man. Hired three PCOs. > > Spread thin layers of DE throughout my house, more than once. I've > > used Bifen, melted menthol crystals (which left red circles around > > my eyes, especially when combined with all the Selsun Blue I used > > until recently - WAAAY too much menthol), Xtreme Kleen, spread > > bleach, Borax, amonia, and lots of other chemicals I don't recall > > at the moment.> > >> > > > > >> > >> > > > > > I've hired a plumber to connect a new water line > > directly from my water heater to the washing machine, allowing me > > to wash clothes in hotter water than the rest of the house gets. > > I've bathed my dog way more than a dog should be bathed. I shower > > up to three times a day, scrubbing my skin raw with a loofah sponge > > I used to enjoy. I've scratched. I've anticipated needing to > > scratch just as much. I've brushed my teeth every day for the past > > four months while constantly moving my feet so I can handle being > > in the bathroom; I've brushed my teeth less than I ever have as a > > result (yummy!). I've slept on the couch every day for the past > > three months while my wife sleeps in our bed because I don't want > > my attractiveness among mites to impact her sleep.> > >> > > > > >> > >> > > > > > I've contemplated suicide many, many times. Never > > thinking that I'll actually do it, mind you. I have two kids, after > > all, and I'd never act that selfishly. But I fantasize about it, as > > it seems like such a peaceful solution to what life has thrown at > > me. I watch commercials or tv shows profiling people relaxing in > > their fictitious houses - presumably mite-free - and I become > > jealous. Ditto toward my friends and family. I worry constantly > > that I'll give the problem to someone else, though I never have > > (I'm diligent about putting on clean clothes, showering, even steam- > > cleaning bags and such before daring to spend appreciable amounts > > of time in anyone's house or car).> > >> > > > > >> > >> > > > > > In all my reading, the posts I see from people who've > > successfully rid themselves of this plague fall into three categories:> > >> > > > > >> > >> > > > > > 1) People who've gotten rid of all possessions and > > moved to a new home.> > >> > > > > > 2) People who've gotten rid of all possessions and > > clorox'ed/bleached/amonia'ed their empty home until the cows came > > home.> > >> > > > > > 3) People who've managed to have their homes Vikane > > gassed.> > >> > > > > >> > >> > > > > > We moved in February, and brought the problem with us. > > I could go on and on about how pissed I am at myself for not doing > > a better job of ensuring we didn't bring it with us, but I don't > > even like to think about it. The point is that we're not going to > > move again any time soon, so option 1 is off the table. I was ready > > to go with #2, but my wife didn't like the idea of having to buy > > all new stuff without any guarantee that it'd fix the problem. > > (side, but important, note: Of all the family members, I feel the > > little fuckers the most, by far. My wife feels them occasionally, > > and neither of my kids feels them at all. I'm very thankful that no > > one else feels them like I do, while simultaneously feeling sorry > > for myself that I had to draw a short straw.)> > >> > > > > >> > >> > > > > > So, my new focus is on getting a PCO to tent and > > Vikane the house. It'll be expensive, especially since I'll want it > > done twice, a week or so apart to account for the eggs, which > > should be studied by the U.S. military since they seem impervious > > to everything. But I'd literally pay any amount of money to fix the > > problem at this point, a sentiment many of you can relate to. If > > Vikane works, I'll consider it the best investment I will ever make.> > >> > > > > >> > >> > > > > > If it doesn't work, I will become an even more > > desperate man, and will convince my wife that throwing out all our > > stuff is necessary. We've already spent upwards of $20,000 treating > > this problem, including chemicals, cleaners, PCOs, hotel stays, pet > > hotel stays, etc. If we have to throw out our stuff, I'd estimate > > it'll cost an additional $75K.> > >> > > > > >> > >> > > > > > I've been divorced, and it was awful. I remember > > thinking at one point that I hoped it'd wind up being the worst > > thing I ever had to deal with. But, looking back, that was a cake- > > walk. Each day sucked for a while. But at the end of each day, I > > got to plop on a couch, drink too much alcohol, and relax. This > > problem robs me of that ability. I can never fully relax, unless > > I'm in the shower or a pool or other source of moving water. Also > > when I exercise, though I'm often too tired or scatter-brained to > > do that. I've been an exercise addict for about 20 years, typically > > lifting weights and/or running about six days a week. Now I'm lucky > > if I get three days; usually one or two. In short summary, I'm a > > beaten man, once full of life and now struggling to maintain my > > ability to pretend to be normal around others.> > >> > > > > >> > >> > > > > > Wow. I really am all over the map here, and I've > > certainly bitched enough for one email. So I'll end it at that. > > Many of you are in the same boat, which I suppose is why I'm > > writing. Misery does draw comfort from company, and so this forum > > is a godsend. Knowing you're all out there helps remind me that I'm > > not crazy; I'm not imagining this problem as many people think I > > am. Increasingly, I appreciate that help, as I've been questioning > > my sanity a lot lately. So, thanks, everyone, for sharing your > > stories and remedies. It's nice to know you're out there.> > >> > > > > >> > >> > > > > > - Matt> > >> > > > > >> > >> > > > >> > >> > > > >> > >> > > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > > ------------------------------------> > >> > >> > >> > >

July 18, 2012

Is she open to it, Terry? From: mitesbegone <no_reply > bird mites Sent: Wednesday, July 18, 2012 4:05 PM Subject: Re: Aandraya

This is true,which is why I am most anxious to have my daughter tested for Lyme disease. She is now 5 months pregnant and I want to make sure she is not passing anything to her baby. My doctor suspects I may have passed Lyme to my son.