Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote:  100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms.  Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above.  You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote:  Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote:  Just to add to what said, I found no quick fix for the morgellons stuff.  It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote:  Jess, I have a FAR infrared "Rainbow" which I use often.  It does not seem to do much to clear out the fibers.  Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso.  It does warm the body in a way I've never experienced before... raises the body temperature.  After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya.  She knows a lot about this and has gotten rid of the fibers.  She has done far more medications for Lyme and co-infections than anyone I know.  She also knows more about Lyme and co-infections than anyone I know.  I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you.  I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more.  I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears.  I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin.  The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity.  I have stopped gettring the little papules and pimples that I had been getting.  What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up.  I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe?  She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$.  She did not get help until she started antibiotics.  If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote:  Hi Jess, It is really good to hear from you.  I've thought about you often.  I'm in the same boat with the similar questions about fibers.  I wonder if there is any way to get rid of the fibers permanently.  I feel them floating and landing on my hands at times.  I don't know of anyone who has had fibers that actually got rid of them.  Many on this site did not have fibers, but had mites only.  Their exposure to mites did not bring fibers.  Mites for sure can be killed, although with tremendous difficulty.  I don't know what makes the fibers, but they are part of what defines Morgellons.  So many people who had mites end up with the fibers.  Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive.  I'm a member of the group that believes they are living, although don't have any idea how that could be.  Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are.  That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one.  When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things.  I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months.  I stored them in a special box designed for slides.  The fibers themselves changed over time from month to month (some did, some did not).  Some developed what looked like a pin head.  I never saw any of them move.  I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now.  I think there are things that disrupt the energy of the fibers.  Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully.  They also seem to reproduce in homes.  Some may be programmed to carry diseases.  I did not find coconut oil helpful on the body.  When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it.  So no, it isn't just you Jess.  It never was just you.  From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment.AaOn Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Jess lives in Mexico. Do you know of anyone there?From: "Aandraya" <aandraya@...>bird mites Sent: Monday, March 19, 2012 7:27:44 PMSubject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment.AaOn Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote:  Jess lives in Mexico.  Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with.  If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin.  But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds.  Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients.  How long have you had this?  If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote:  Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote:  100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms.  Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above.  You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote:  Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote:  Just to add to what said, I found no quick fix for the morgellons stuff.  It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote:  Jess, I have a FAR infrared "Rainbow" which I use often.  It does not seem to do much to clear out the fibers.  Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso.  It does warm the body in a way I've never experienced before... raises the body temperature.  After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya.  She knows a lot about this and has gotten rid of the fibers.  She has done far more medications for Lyme and co-infections than anyone I know.  She also knows more about Lyme and co-infections than anyone I know.  I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you.  I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more.  I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears.  I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin.  The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity.  I have stopped gettring the little papules and pimples that I had been getting.  What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up.  I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe?  She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$.  She did not get help until she started antibiotics.  If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote:  Hi Jess, It is really good to hear from you.  I've thought about you often.  I'm in the same boat with the similar questions about fibers.  I wonder if there is any way to get rid of the fibers permanently.  I feel them floating and landing on my hands at times.  I don't know of anyone who has had fibers that actually got rid of them.  Many on this site did not have fibers, but had mites only.  Their exposure to mites did not bring fibers.  Mites for sure can be killed, although with tremendous difficulty.  I don't know what makes the fibers, but they are part of what defines Morgellons.  So many people who had mites end up with the fibers.  Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive.  I'm a member of the group that believes they are living, although don't have any idea how that could be.  Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are.  That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one.  When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things.  I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months.  I stored them in a special box designed for slides.  The fibers themselves changed over time from month to month (some did, some did not).  Some developed what looked like a pin head.  I never saw any of them move.  I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now.  I think there are things that disrupt the energy of the fibers.  Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully.  They also seem to reproduce in homes.  Some may be programmed to carry diseases.  I did not find coconut oil helpful on the body.  When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it.  So no, it isn't just you Jess.  It never was just you.  From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Too bad... I thought Zhang might be able to help you. I also thought he would treat you for Lyme, but I guess he thought you did not have any symptoms so he would not treat you. Jess used to live in NYC, but lives in Mexico now. From: "miteymaid" <miteymaid@...>bird mites Sent: Monday, March 19, 2012 5:41:25 PMSubject: Re: So the fibers survive coconut oil?I wonder how many people in NYC suffer from some sort of infestation. I was having my own exterminator spray but now the building management says I can't and they won't do anything themselves because their exterminating company and it's entomologist don't believe mites can cross over. If there were some sort of central place people could go here maybe something would be done. I wonder if I would be better off spraying Lysol around instead. I figure I get the apartment sprayed with pesticide every few months and then hit smaller areas with alcohol and lysol but now not sure what to do again. Hate all these chemicals and pesticides but need to do something. Also saw Dr. Zhang and I really didn't have any symptoms of Lyme just the bugs so he gave me some pills to make me less allergic to them but he kept saying dust mites when he said mites were all around and I'd never be able to get rid of them, which I agree but since I'm not dealing with dust mites I'm trying the meds for two weeks and see what happens. Thing about Chinese herbs, they're written on the container but I don't know anything about them. Are you in Brooklyn? The doctors I went to said they had someone else come in with mites or morgellons but they didn't treat. Now if I go somewhere I try to find out if they have others come with same problem. Maybe it doesn't matter because they never seem to be able to help anyway.> > > > Hi Jess,> >> > It is really good to hear from you. I've thought about you often.> > I'm in the same boat with the similar questions about fibers. I> > wonder if there is any way to get rid of the fibers permanently. I> > feel them floating and landing on my hands at times. I don't know of> > anyone who has had fibers that actually got rid of them. Many on this> > site did not have fibers, but had mites only. Their exposure to mites> > did not bring fibers. Mites for sure can be killed, although with> > tremendous difficulty. I don't know what makes the fibers, but they> > are part of what defines Morgellons. So many people who had mites end> > up with the fibers. Some people think they are a by-product of a mite> > or parasite, or bacteria and some ppl believe they are alive. I'm a> > member of the group that believes they are living, although don't have> > any idea how that could be. Maybe investigators, although very> > controversial, believe they are nano products, and I think they maybe> > are. That's just an opinion... I'm not the one to come up with this> > as there are plenty of knowledgable people who have said this... Dr.> > Hildegard Staninger for one. When I had a microscope and was> > collecting fibers and looking at them under the digital scope I found> > some interesting things. I would put the fibers on slides, cover them> > in emersion oil and a thin glass sheet over the top and look at the> > fibers over a period of months. I stored them in a special box> > designed for slides. The fibers themselves changed over time from> > month to month (some did, some did not). Some developed what looked> > like a pin head. I never saw any of them move. > >> > I really wish I had a microscope again, but I haven't found one that> > hooks up with software for an iMac which I have now. > >> > I think there are things that disrupt the energy of the fibers.> > Scientists may have found a way to create life and I think the fibers> > are self creating... in the human body they have what they need to> > reproduce successfully. They also seem to reproduce in homes. Some> > may be programmed to carry diseases. > >> > I did not find coconut oil helpful on the body. When I put it on my> > hands and feet it seemed to dry my skin out further so I stopped using> > it. So no, it isn't just you Jess. It never was just you. > >> > > >> > ------------------------------------------------------------------------> > *From: *"jessnyc" <helpnynow@...>> > **"Birdmites.org Website" <bird mites >> > *Sent: *Monday, March 19, 2012 3:29:50 PM> > *Subject: * So the fibers survive coconut oil?> >> > I had thought that coconut oil was a remedy for these fibers. I bought> > some and had a small jar next to me at all times.> >> > When the oil was in liquid form, I noticed that the fibers somehow> > managed to get in the oil, my little jar had suddenly like 10 or more> > fibers. After a while I saw they all stuck together, and eventually I> > began seeing more and more of them.> >> > I wonder if they reproduced in the oil and assembled themselves> > together? That's what it looked like to me, my little jar is full of> > some big and some tiny fibers, they're mostly blue red or black, some> > are also white and hard to see.> >> > I guess this shows they don't die with coconut oil, they thrive and> > reproduce in it.> >> > Jesus, is there anything remedy that actually kills them? I haven't> > found anything that would really kill them.> >> > Has anyone had any success with coconut oil? Or is it just me?> >> > Jess.> >> >> >> >> > ------------------------------------> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter.From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 9:50:47 PMSubject: Re: So the fibers survive coconut oil? It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote: Jess lives in Mexico. Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote:  There must be someone who treats Lyme disease there in Mexico.  I'll see if anyone I know might know of someone too.  But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 9:50:47 PM Subject: Re: So the fibers survive coconut oil? It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote:  Jess lives in Mexico.  Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with.  If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin.  But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds.  Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients.  How long have you had this?  If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote:  Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote:  100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms.  Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above.  You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote:  Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote:  Just to add to what said, I found no quick fix for the morgellons stuff.  It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote:  Jess, I have a FAR infrared "Rainbow" which I use often.  It does not seem to do much to clear out the fibers.  Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso.  It does warm the body in a way I've never experienced before... raises the body temperature.  After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya.  She knows a lot about this and has gotten rid of the fibers.  She has done far more medications for Lyme and co-infections than anyone I know.  She also knows more about Lyme and co-infections than anyone I know.  I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you.  I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more.  I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears.  I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin.  The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity.  I have stopped gettring the little papules and pimples that I had been getting.  What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up.  I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe?  She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$.  She did not get help until she started antibiotics.  If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote:  Hi Jess, It is really good to hear from you.  I've thought about you often.  I'm in the same boat with the similar questions about fibers.  I wonder if there is any way to get rid of the fibers permanently.  I feel them floating and landing on my hands at times.  I don't know of anyone who has had fibers that actually got rid of them.  Many on this site did not have fibers, but had mites only.  Their exposure to mites did not bring fibers.  Mites for sure can be killed, although with tremendous difficulty.  I don't know what makes the fibers, but they are part of what defines Morgellons.  So many people who had mites end up with the fibers.  Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive.  I'm a member of the group that believes they are living, although don't have any idea how that could be.  Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are.  That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one.  When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things.  I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months.  I stored them in a special box designed for slides.  The fibers themselves changed over time from month to month (some did, some did not).  Some developed what looked like a pin head.  I never saw any of them move.  I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now.  I think there are things that disrupt the energy of the fibers.  Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully.  They also seem to reproduce in homes.  Some may be programmed to carry diseases.  I did not find coconut oil helpful on the body.  When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it.  So no, it isn't just you Jess.  It never was just you.  From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Links <*> To visit your group on the web, go to:    bird mites/ <*> Your email settings:    Individual Email | Traditional <*> To change settings online go to:    bird mites/join    ( ID required) <*> To change settings via email:    bird mites-digest    bird mites-fullfeatured <*> To unsubscribe from this group, send an email to:    bird mites-unsubscribe <*> Your use of Groups is subject to:    Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 Yeah, that's usually the case, only people with the chronic infections are bothered. My daughter didn't sense anything nor did my boyfriend. AaOn Mar 19, 2012, at 11:50 PM, jessnyc <helpnynow@...> wrote: It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote: Jess lives in Mexico. Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS. AaOn Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote: Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote: There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 9:50:47 PM Subject: Re: So the fibers survive coconut oil? It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote: Jess lives in Mexico. Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Links <*> To visit your group on the web, go to: bird mites/ <*> Your email settings: Individual Email | Traditional <*> To change settings online go to: bird mites/join ( ID required) <*> To change settings via email: bird mites-digest bird mites-fullfeatured <*> To unsubscribe from this group, send an email to: bird mites-unsubscribe <*> Your use of Groups is subject to: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 Thank you, Aandraya. Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge? Thanks, Jess On 3/20/2012 12:16 AM, Aandraya wrote:  You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron.  I know someone who saw Cameron and she loves him.  He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote:  Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote:  There must be someone who treats Lyme disease there in Mexico.  I'll see if anyone I know might know of someone too.  But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 9:50:47 PM Subject: Re: So the fibers survive coconut oil? It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote:  Jess lives in Mexico.  Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with.  If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin.  But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds.  Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients.  How long have you had this?  If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote:  Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote:  100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms.  Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above.  You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote:  Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote:  Just to add to what said, I found no quick fix for the morgellons stuff.  It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote:  Jess, I have a FAR infrared "Rainbow" which I use often.  It does not seem to do much to clear out the fibers.  Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso.  It does warm the body in a way I've never experienced before... raises the body temperature.  After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya.  She knows a lot about this and has gotten rid of the fibers.  She has done far more medications for Lyme and co-infections than anyone I know.  She also knows more about Lyme and co-infections than anyone I know.  I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you.  I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more.  I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears.  I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin.  The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity.  I have stopped gettring the little papules and pimples that I had been getting.  What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up.  I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe?  She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$.  She did not get help until she started antibiotics.  If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote:  Hi Jess, It is really good to hear from you.  I've thought about you often.  I'm in the same boat with the similar questions about fibers.  I wonder if there is any way to get rid of the fibers permanently.  I feel them floating and landing on my hands at times.  I don't know of anyone who has had fibers that actually got rid of them.  Many on this site did not have fibers, but had mites only.  Their exposure to mites did not bring fibers.  Mites for sure can be killed, although with tremendous difficulty.  I don't know what makes the fibers, but they are part of what defines Morgellons.  So many people who had mites end up with the fibers.  Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive.  I'm a member of the group that believes they are living, although don't have any idea how that could be.  Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are.  That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one.  When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things.  I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months.  I stored them in a special box designed for slides.  The fibers themselves changed over time from month to month (some did, some did not).  Some developed what looked like a pin head.  I never saw any of them move.  I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now.  I think there are things that disrupt the energy of the fibers.  Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully.  They also seem to reproduce in homes.  Some may be programmed to carry diseases.  I did not find coconut oil helpful on the body.  When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it.  So no, it isn't just you Jess.  It never was just you.  From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Links <*> To visit your group on the web, go to:    bird mites/ <*> Your email settings:    Individual Email | Traditional <*> To change settings online go to:    bird mites/join    ( ID required) <*> To change settings via email:    bird mites-digest    bird mites-fullfeatured <*> To unsubscribe from this group, send an email to:    bird mites-unsubscribe <*> Your use of Groups is subject to:    Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 Thats rotten that u feel yukky a lot linda!:-( Hows,ur daughter n grandaughter now? ------------------------------ On Mon, Mar 19, 2012 17:14 PDT Goldstein@... wrote: >Aandraya, > > >My memory sucks so I probably knew that, but forgot. I'm going to ask Dr. M for the Intraconazole script. The other antifungal doesn't seem to be doing it for me. Thanks. I've not been feeling good for weeks. An occasional day when I feel sorta okay, but generally feeling pretty yucky. I sure know you go in and out of it too. > > > > > So the fibers survive coconut oil? > >I had thought that coconut oil was a remedy for these fibers. I bought >some and had a small jar next to me at all times. > >When the oil was in liquid form, I noticed that the fibers somehow >managed to get in the oil, my little jar had suddenly like 10 or more >fibers. After a while I saw they all stuck together, and eventually I >began seeing more and more of them. > >I wonder if they reproduced in the oil and assembled themselves >together? That's what it looked like to me, my little jar is full of >some big and some tiny fibers, they're mostly blue red or black, some >are also white and hard to see. > >I guess this shows they don't die with coconut oil, they thrive and >reproduce in it. > >Jesus, is there anything remedy that actually kills them? I haven't >found anything that would really kill them. > >Has anyone had any success with coconut oil? Or is it just me? > >Jess. > > > > >------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 Thanks C. I've got an email request into my doctor to do some testing.From: "ILIKE TREES" <wherearetheangels@...>bird mites Sent: Tuesday, March 20, 2012 10:08:16 AMSubject: Re: So the fibers survive coconut oil?Thats rotten that u feel yukky a lot linda!:-(Hows,ur daughter n grandaughter now?------------------------------On Mon, Mar 19, 2012 17:14 PDT Goldstein@... wrote:>Aandraya, >>>My memory sucks so I probably knew that, but forgot. I'm going to ask Dr. M for the Intraconazole script. The other antifungal doesn't seem to be doing it for me. Thanks. I've not been feeling good for weeks. An occasional day when I feel sorta okay, but generally feeling pretty yucky. I sure know you go in and out of it too. >>> >> So the fibers survive coconut oil? >>I had thought that coconut oil was a remedy for these fibers. I bought >some and had a small jar next to me at all times. >>When the oil was in liquid form, I noticed that the fibers somehow >managed to get in the oil, my little jar had suddenly like 10 or more >fibers. After a while I saw they all stuck together, and eventually I >began seeing more and more of them. >>I wonder if they reproduced in the oil and assembled themselves >together? That's what it looked like to me, my little jar is full of >some big and some tiny fibers, they're mostly blue red or black, some >are also white and hard to see. >>I guess this shows they don't die with coconut oil, they thrive and >reproduce in it. >>Jesus, is there anything remedy that actually kills them? I haven't >found anything that would really kill them. >>Has anyone had any success with coconut oil? Or is it just me? >>Jess. >>>>>------------------------------------ >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 My daughter and granddaughter are a tiny bit better. Not great yet. Thanks dear. How are you doing? How's the tummy?From: Goldstein@...To: bird mites Sent: Tuesday, March 20, 2012 11:20:13 AMSubject: Re: So the fibers survive coconut oil?Thanks C. I've got an email request into my doctor to do some testing.From: "ILIKE TREES" <wherearetheangels@...>bird mites Sent: Tuesday, March 20, 2012 10:08:16 AMSubject: Re: So the fibers survive coconut oil?Thats rotten that u feel yukky a lot linda!:-(Hows,ur daughter n grandaughter now?------------------------------On Mon, Mar 19, 2012 17:14 PDT Goldstein@... wrote:>Aandraya, >>>My memory sucks so I probably knew that, but forgot. I'm going to ask Dr. M for the Intraconazole script. The other antifungal doesn't seem to be doing it for me. Thanks. I've not been feeling good for weeks. An occasional day when I feel sorta okay, but generally feeling pretty yucky. I sure know you go in and out of it too. >>> >> So the fibers survive coconut oil? >>I had thought that coconut oil was a remedy for these fibers. I bought >some and had a small jar next to me at all times. >>When the oil was in liquid form, I noticed that the fibers somehow >managed to get in the oil, my little jar had suddenly like 10 or more >fibers. After a while I saw they all stuck together, and eventually I >began seeing more and more of them. >>I wonder if they reproduced in the oil and assembled themselves >together? That's what it looked like to me, my little jar is full of >some big and some tiny fibers, they're mostly blue red or black, some >are also white and hard to see. >>I guess this shows they don't die with coconut oil, they thrive and >reproduce in it. >>Jesus, is there anything remedy that actually kills them? I haven't >found anything that would really kill them. >>Has anyone had any success with coconut oil? Or is it just me? >>Jess. >>>>>------------------------------------ >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 Jess- I don't know of anyone personally, except for people on this board, some who are gone and have gotten on with their lives, but I do know that Stricker MD has treated many using Lyme treatment(morgellons is a presentation of Lyme) and people fully recover. I had a severe case and the skin symptoms are fully gone, bugs, etc. If I can be cured anyone can. You have to address the Lyme and coinfections because they dramatically surpress the immune system and make healing nearly impossible. I believe Cameron charges 6-700 for 1st appt- 2 hrs and much less for follow ups. Horowitz is around the same. They have seen the morgellons presentations many times- been treating Lyme complex for a long time. No idea what Stricker charges in CA but probably like the others, I think he's the president of ILADS right now. You need a ggod doctor to treat you because you will become more symptomatic, it could be months or years, but the infections will progress if they go untreated. Also, I did not think I had Lyme symptoms when I was diagnosed- and all my tests were negative. I did have a couple bands show up on the Igenix test and my CD57 was low- 14. Lyme, bartonella, and babesia are diagnosed clinically. A positive test can confirm it, but a negative test cannot rule it out by any means. There are LLMDs who charge less if you're interested, but the ones I know of are in the Midwest if travel for you is an option. My doctor here is well aware of morgellons even though I started with her after those symptoms were gone. Hope this helps. Aandraya On Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...> wrote: Thank you, Aandraya. Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge? Thanks, Jess On 3/20/2012 12:16 AM, Aandraya wrote: You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote: Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote: There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 9:50:47 PM Subject: Re: So the fibers survive coconut oil? It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote: Jess lives in Mexico. Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Links <*> To visit your group on the web, go to: bird mites/ <*> Your email settings: Individual Email | Traditional <*> To change settings online go to: bird mites/join ( ID required) <*> To change settings via email: bird mites-digest bird mites-fullfeatured <*> To unsubscribe from this group, send an email to: bird mites-unsubscribe <*> Your use of Groups is subject to: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 Jess- the doctors treat them for Lyme and coinfections because they all have it. I personally believe that all Lyme patients who have morgellons type symptoms also have severe bartonella(passed by ticks and insects along with Lyme babesia)Coinfections are microbes that are passed from the same tick or insect- the most common and debilitating are bartonella- bacterial, and babesia- protozoal, sister to malaria. I had both. Lyme is borrelia- a spiral shaped bacteria.AaOn Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...> wrote: Thank you, Aandraya. Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge? Thanks, Jess On 3/20/2012 12:16 AM, Aandraya wrote: You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote: Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote: There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 9:50:47 PM Subject: Re: So the fibers survive coconut oil? It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote: Jess lives in Mexico. Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Links <*> To visit your group on the web, go to: bird mites/ <*> Your email settings: Individual Email | Traditional <*> To change settings online go to: bird mites/join ( ID required) <*> To change settings via email: bird mites-digest bird mites-fullfeatured <*> To unsubscribe from this group, send an email to: bird mites-unsubscribe <*> Your use of Groups is subject to: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 Thank you, Aandraya. Do you think I could treat myself without going to a doctor? Like, getting the Igenex testing, and then getting the medications you used? How did you know when to stop the treatment, did you get tested continuously? Do you know for a fact that you're fully recovered and that you don't have and left over infection that could begin growing slowly again? I don't think I could afford expensive treatment right now, but I might be able to afford the Igenex testing and the meds alone, I just wonder if that would be enough. I don't think I have any neurological symptoms, and the fiber problem is not as severe as it used to be, although it is still there, but that's the only symptom I have, the fibers. Thanks a lot for the information. Jess On 3/20/2012 2:57 PM, Aandraya wrote:  Jess- the doctors treat them for Lyme and coinfections because they all have it. I personally believe that all Lyme patients who have morgellons type symptoms also have severe bartonella(passed by ticks and insects along with Lyme babesia) Coinfections are microbes that are passed from the same tick or insect- the most common and debilitating are bartonella- bacterial, and babesia- protozoal, sister to malaria.  I had both.  Lyme is borrelia- a spiral shaped bacteria. Aa On Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...> wrote:  Thank you, Aandraya. Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge? Thanks, Jess On 3/20/2012 12:16 AM, Aandraya wrote:  You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron.  I know someone who saw Cameron and she loves him.  He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote:  Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote:  There must be someone who treats Lyme disease there in Mexico.  I'll see if anyone I know might know of someone too.  But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 9:50:47 PM Subject: Re: So the fibers survive coconut oil? It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote:  Jess lives in Mexico.  Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with.  If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin.  But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds.  Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients.  How long have you had this?  If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote:  Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote:  100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms.  Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above.  You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote:  Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote:  Just to add to what said, I found no quick fix for the morgellons stuff.  It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote:  Jess, I have a FAR infrared "Rainbow" which I use often.  It does not seem to do much to clear out the fibers.  Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso.  It does warm the body in a way I've never experienced before... raises the body temperature.  After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya.  She knows a lot about this and has gotten rid of the fibers.  She has done far more medications for Lyme and co-infections than anyone I know.  She also knows more about Lyme and co-infections than anyone I know.  I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you.  I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more.  I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears.  I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin.  The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity.  I have stopped gettring the little papules and pimples that I had been getting.  What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up.  I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe?  She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$.  She did not get help until she started antibiotics.  If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote:  Hi Jess, It is really good to hear from you.  I've thought about you often.  I'm in the same boat with the similar questions about fibers.  I wonder if there is any way to get rid of the fibers permanently.  I feel them floating and landing on my hands at times.  I don't know of anyone who has had fibers that actually got rid of them.  Many on this site did not have fibers, but had mites only.  Their exposure to mites did not bring fibers.  Mites for sure can be killed, although with tremendous difficulty.  I don't know what makes the fibers, but they are part of what defines Morgellons.  So many people who had mites end up with the fibers.  Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive.  I'm a member of the group that believes they are living, although don't have any idea how that could be.  Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are.  That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one.  When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things.  I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months.  I stored them in a special box designed for slides.  The fibers themselves changed over time from month to month (some did, some did not).  Some developed what looked like a pin head.  I never saw any of them move.  I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now.  I think there are things that disrupt the energy of the fibers.  Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully.  They also seem to reproduce in homes.  Some may be programmed to carry diseases.  I did not find coconut oil helpful on the body.  When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it.  So no, it isn't just you Jess.  It never was just you.  From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Links <*> To visit your group on the web, go to:    bird mites/ <*> Your email settings:    Individual Email | Traditional <*> To change settings online go to:    bird mites/join    ( ID required) <*> To change settings via email:    bird mites-digest    bird mites-fullfeatured <*> To unsubscribe from this group, send an email to:    bird mites-unsubscribe <*> Your use of Groups is subject to:    Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 You would need a doctor to order the igenix test. If you have a mild case you might recover with Doxy and voriconazole. But if you already have fibers I'm not sure if that will do it. If you have the fibers you do have Lyme and it needs to be treated. Check out the Cowden protocol, you could do that wihout a doctor. Based on people I've known once you have fibers it's a long recovery and requires antifungals. AaOn Mar 20, 2012, at 6:57 PM, jessnyc <helpnynow@...> wrote: Thank you, Aandraya. Do you think I could treat myself without going to a doctor? Like, getting the Igenex testing, and then getting the medications you used? How did you know when to stop the treatment, did you get tested continuously? Do you know for a fact that you're fully recovered and that you don't have and left over infection that could begin growing slowly again? I don't think I could afford expensive treatment right now, but I might be able to afford the Igenex testing and the meds alone, I just wonder if that would be enough. I don't think I have any neurological symptoms, and the fiber problem is not as severe as it used to be, although it is still there, but that's the only symptom I have, the fibers. Thanks a lot for the information. Jess On 3/20/2012 2:57 PM, Aandraya wrote: Jess- the doctors treat them for Lyme and coinfections because they all have it. I personally believe that all Lyme patients who have morgellons type symptoms also have severe bartonella(passed by ticks and insects along with Lyme babesia) Coinfections are microbes that are passed from the same tick or insect- the most common and debilitating are bartonella- bacterial, and babesia- protozoal, sister to malaria. I had both. Lyme is borrelia- a spiral shaped bacteria. Aa On Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...> wrote: Thank you, Aandraya. Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge? Thanks, Jess On 3/20/2012 12:16 AM, Aandraya wrote: You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote: Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote: There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 9:50:47 PM Subject: Re: So the fibers survive coconut oil? It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote: Jess lives in Mexico. Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Links <*> To visit your group on the web, go to: bird mites/ <*> Your email settings: Individual Email | Traditional <*> To change settings online go to: bird mites/join ( ID required) <*> To change settings via email: bird mites-digest bird mites-fullfeatured <*> To unsubscribe from this group, send an email to: bird mites-unsubscribe <*> Your use of Groups is subject to: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 Guys, just been reading something really interesting on a website about Lyme disease. It says that the borrelia has a strong affinity to collagen fibres, because wrapped up in these fibres it protects them from being attacked by the immune system of the body. So I couldn't help, but wonder if - it is the borrelia floating around, docking fibres and this is what we see floating through the air (we all seem to have a higher presence of floaters in the air) - the fuzz balls many of us here have reported of are something like the 2nd stage of accumulated fibres, protecting the borrelia embedded deep inside - the mites or whatever parasite biting us transporting the fibres including the borrelia into our system and for this simple reason they just love our couches, mattresses, clothes and carpets best ? Could this all be the Lyme/Morgellon correlation, or is it totally naive thinking that way ? Comments please ! ;-) Von: jessnyc <helpnynow@...>An: bird mites Gesendet: 7:37 Dienstag, 20.März 2012Betreff: Re: So the fibers survive coconut oil? Thank you, Aandraya.Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge?Thanks,JessOn 3/20/2012 12:16 AM, Aandraya wrote: You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote: Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote: There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 9:50:47 PMSubject: Re: So the fibers survive coconut oil?It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks,JessOn 3/19/2012 10:47 PM, Goldstein@... wrote: Jess lives in Mexico. Do you know of anyone there? From: "Aandraya" <aandraya@...>bird mites Sent: Monday, March 19, 2012 7:27:44 PMSubject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya."Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons?Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely?So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now?Thanks a lot,JessOn 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 5:15:42 PMSubject: Re: So the fibers survive coconut oil?Hi ,Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested.One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny.What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again,JessOn 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...>"Birdmites.org Website" <bird mites >Sent: Monday, March 19, 2012 3:29:50 PMSubject: So the fibers survive coconut oil?I had thought that coconut oil was a remedy for these fibers. I boughtsome and had a small jar next to me at all times.When the oil was in liquid form, I noticed that the fibers somehowmanaged to get in the oil, my little jar had suddenly like 10 or morefibers. After a while I saw they all stuck together, and eventually Ibegan seeing more and more of them.I wonder if they reproduced in the oil and assembled themselvestogether? That's what it looked like to me, my little jar is full ofsome big and some tiny fibers, they're mostly blue red or black, someare also white and hard to see.I guess this shows they don't die with coconut oil, they thrive andreproduce in it.Jesus, is there anything remedy that actually kills them? I haven'tfound anything that would really kill them.Has anyone had any success with coconut oil? Or is it just me?Jess.------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 Aggi,The spirochetes have an intelligence - they are intelligent enough to change form when threatened into 4 distinct forms. 1) spiral form in form of spirochete; 2) an L form which can hide in cells 3) a cyst form which is protected because it is a shell consisting of a cyst and 4) a biofilm form where they work in collaboration with fungi, parasites, bacterias and viruses. I see no reason that the borrelia could not have a strong affinity for something else to protect it, collagen fibers. I know spirochetes are very very difficult to culture, so if the fibers have been cultured and there are spirochetes inside, those may not be cultured, so nearly impossible to detect. Anything is possible Aggi. All I know is that I do still have fibers... I wonder if I have as many as at the beginning 4 years ago. I don't think so, so the antibiotics change where they are reproducing, the body. Good thinking Aggi. It is an interesting possible theory and all are worth pondering. All I know is that if one of these floating fibers falls on me, particularly some place with hair, it manages to wiggle its way down the shaft of the hair. So maybe there is a spirochete inside. Thanks Aggi!From: "Aggi Assmann" <aggi_assmann@...>bird mites Sent: Wednesday, March 21, 2012 7:20:42 AMSubject: Re: So the fibers survive coconut oil? Guys, just been reading something really interesting on a website about Lyme disease. It says that the borrelia has a strong affinity to collagen fibres, because wrapped up in these fibres it protects them from being attacked by the immune system of the body. So I couldn't help, but wonder if - it is the borrelia floating around, docking fibres and this is what we see floating through the air (we all seem to have a higher presence of floaters in the air) - the fuzz balls many of us here have reported of are something like the 2nd stage of accumulated fibres, protecting the borrelia embedded deep inside - the mites or whatever parasite biting us transporting the fibres including the borrelia into our system and for this simple reason they just love our couches, mattresses, clothes and carpets best ? Could this all be the Lyme/Morgellon correlation, or is it totally naive thinking that way ? Comments please ! ;-) Von: jessnyc <helpnynow@...>An: bird mites Gesendet: 7:37 Dienstag, 20.März 2012Betreff: Re: So the fibers survive coconut oil? Thank you, Aandraya.Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge?Thanks,JessOn 3/20/2012 12:16 AM, Aandraya wrote: You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote: Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote: There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 9:50:47 PMSubject: Re: So the fibers survive coconut oil?It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks,JessOn 3/19/2012 10:47 PM, Goldstein@... wrote: Jess lives in Mexico. Do you know of anyone there? From: "Aandraya" <aandraya@...>bird mites Sent: Monday, March 19, 2012 7:27:44 PMSubject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya."Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons?Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely?So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now?Thanks a lot,JessOn 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 5:15:42 PMSubject: Re: So the fibers survive coconut oil?Hi ,Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested.One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny.What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again,JessOn 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...>"Birdmites.org Website" <bird mites >Sent: Monday, March 19, 2012 3:29:50 PMSubject: So the fibers survive coconut oil?I had thought that coconut oil was a remedy for these fibers. I boughtsome and had a small jar next to me at all times.When the oil was in liquid form, I noticed that the fibers somehowmanaged to get in the oil, my little jar had suddenly like 10 or morefibers. After a while I saw they all stuck together, and eventually Ibegan seeing more and more of them.I wonder if they reproduced in the oil and assembled themselvestogether? That's what it looked like to me, my little jar is full ofsome big and some tiny fibers, they're mostly blue red or black, someare also white and hard to see.I guess this shows they don't die with coconut oil, they thrive andreproduce in it.Jesus, is there anything remedy that actually kills them? I haven'tfound anything that would really kill them.Has anyone had any success with coconut oil? Or is it just me?Jess.------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 I think anything is possible. In my case an organism was wrapping in clothing fuzz and embedding in my skin, other things were byproducts of chronic infections including molds.AaOn Mar 21, 2012, at 9:20 AM, Aggi Assmann <aggi_assmann@...> wrote: Guys, just been reading something really interesting on a website about Lyme disease. It says that the borrelia has a strong affinity to collagen fibres, because wrapped up in these fibres it protects them from being attacked by the immune system of the body. So I couldn't help, but wonder if - it is the borrelia floating around, docking fibres and this is what we see floating through the air (we all seem to have a higher presence of floaters in the air) - the fuzz balls many of us here have reported of are something like the 2nd stage of accumulated fibres, protecting the borrelia embedded deep inside - the mites or whatever parasite biting us transporting the fibres including the borrelia into our system and for this simple reason they just love our couches, mattresses, clothes and carpets best ? Could this all be the Lyme/Morgellon correlation, or is it totally naive thinking that way ? Comments please ! ;-) Von: jessnyc <helpnynow@...>An: bird mites Gesendet: 7:37 Dienstag, 20.März 2012Betreff: Re: So the fibers survive coconut oil? Thank you, Aandraya.Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge?Thanks,JessOn 3/20/2012 12:16 AM, Aandraya wrote: You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote: Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote: There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 9:50:47 PMSubject: Re: So the fibers survive coconut oil?It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks,JessOn 3/19/2012 10:47 PM, Goldstein@... wrote: Jess lives in Mexico. Do you know of anyone there? From: "Aandraya" <aandraya@...>bird mites Sent: Monday, March 19, 2012 7:27:44 PMSubject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya."Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons?Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely?So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now?Thanks a lot,JessOn 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 5:15:42 PMSubject: Re: So the fibers survive coconut oil?Hi ,Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested.One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny.What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again,JessOn 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...>"Birdmites.org Website" <bird mites >Sent: Monday, March 19, 2012 3:29:50 PMSubject: So the fibers survive coconut oil?I had thought that coconut oil was a remedy for these fibers. I boughtsome and had a small jar next to me at all times.When the oil was in liquid form, I noticed that the fibers somehowmanaged to get in the oil, my little jar had suddenly like 10 or morefibers. After a while I saw they all stuck together, and eventually Ibegan seeing more and more of them.I wonder if they reproduced in the oil and assembled themselvestogether? That's what it looked like to me, my little jar is full ofsome big and some tiny fibers, they're mostly blue red or black, someare also white and hard to see.I guess this shows they don't die with coconut oil, they thrive andreproduce in it.Jesus, is there anything remedy that actually kills them? I haven'tfound anything that would really kill them.Has anyone had any success with coconut oil? Or is it just me?Jess.------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 - have you done a cystbuster? Flagyl or tindamax?AaOn Mar 21, 2012, at 10:17 AM, Goldstein@... wrote: Aggi,The spirochetes have an intelligence - they are intelligent enough to change form when threatened into 4 distinct forms. 1) spiral form in form of spirochete; 2) an L form which can hide in cells 3) a cyst form which is protected because it is a shell consisting of a cyst and 4) a biofilm form where they work in collaboration with fungi, parasites, bacterias and viruses. I see no reason that the borrelia could not have a strong affinity for something else to protect it, collagen fibers. I know spirochetes are very very difficult to culture, so if the fibers have been cultured and there are spirochetes inside, those may not be cultured, so nearly impossible to detect. Anything is possible Aggi. All I know is that I do still have fibers... I wonder if I have as many as at the beginning 4 years ago. I don't think so, so the antibiotics change where they are reproducing, the body. Good thinking Aggi. It is an interesting possible theory and all are worth pondering. All I know is that if one of these floating fibers falls on me, particularly some place with hair, it manages to wiggle its way down the shaft of the hair. So maybe there is a spirochete inside. Thanks Aggi!From: "Aggi Assmann" <aggi_assmann@...>bird mites Sent: Wednesday, March 21, 2012 7:20:42 AMSubject: Re: So the fibers survive coconut oil? Guys, just been reading something really interesting on a website about Lyme disease. It says that the borrelia has a strong affinity to collagen fibres, because wrapped up in these fibres it protects them from being attacked by the immune system of the body. So I couldn't help, but wonder if - it is the borrelia floating around, docking fibres and this is what we see floating through the air (we all seem to have a higher presence of floaters in the air) - the fuzz balls many of us here have reported of are something like the 2nd stage of accumulated fibres, protecting the borrelia embedded deep inside - the mites or whatever parasite biting us transporting the fibres including the borrelia into our system and for this simple reason they just love our couches, mattresses, clothes and carpets best ? Could this all be the Lyme/Morgellon correlation, or is it totally naive thinking that way ? Comments please ! ;-) Von: jessnyc <helpnynow@...>An: bird mites Gesendet: 7:37 Dienstag, 20.März 2012Betreff: Re: So the fibers survive coconut oil? Thank you, Aandraya.Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge?Thanks,JessOn 3/20/2012 12:16 AM, Aandraya wrote: You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote: Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote: There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 9:50:47 PMSubject: Re: So the fibers survive coconut oil?It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks,JessOn 3/19/2012 10:47 PM, Goldstein@... wrote: Jess lives in Mexico. Do you know of anyone there? From: "Aandraya" <aandraya@...>bird mites Sent: Monday, March 19, 2012 7:27:44 PMSubject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya."Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons?Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely?So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now?Thanks a lot,JessOn 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 5:15:42 PMSubject: Re: So the fibers survive coconut oil?Hi ,Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested.One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny.What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again,JessOn 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...>"Birdmites.org Website" <bird mites >Sent: Monday, March 19, 2012 3:29:50 PMSubject: So the fibers survive coconut oil?I had thought that coconut oil was a remedy for these fibers. I boughtsome and had a small jar next to me at all times.When the oil was in liquid form, I noticed that the fibers somehowmanaged to get in the oil, my little jar had suddenly like 10 or morefibers. After a while I saw they all stuck together, and eventually Ibegan seeing more and more of them.I wonder if they reproduced in the oil and assembled themselvestogether? That's what it looked like to me, my little jar is full ofsome big and some tiny fibers, they're mostly blue red or black, someare also white and hard to see.I guess this shows they don't die with coconut oil, they thrive andreproduce in it.Jesus, is there anything remedy that actually kills them? I haven'tfound anything that would really kill them.Has anyone had any success with coconut oil? Or is it just me?Jess.------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 My daughter in Boston learned a year and a half ago when she went to an herb shop to ask what could help me that the mite problem was common in Boston. The man said he is always selling to people with that problem. He told my daughter things to suggest to me. If it is that common in Boston, then New York must be a given. From: miteymaid <miteymaid@...> bird mites Sent: Monday, March 19, 2012 8:41 PM Subject: Re: So the fibers survive coconut oil? I wonder how many people in NYC suffer from some sort of infestation. I was having my own exterminator spray but now the building management says I can't and they won't do anything themselves because their exterminating company and it's entomologist don't believe mites can cross over. If there were some sort of central place people could go here maybe something would be done. I wonder if I would be better off spraying Lysol around instead. I figure I get the apartment sprayed with pesticide every few months and then hit smaller areas with alcohol and lysol but now not sure what to do again. Hate all these chemicals and pesticides but need to do something. Also saw Dr. Zhang and I really didn't have any symptoms of Lyme just the bugs so he gave me some pills to make me less allergic to them but he kept saying dust mites when he said mites were all around and I'd never be able to get rid of them, which I agree but since I'm not dealing with dust mites I'm trying the meds for two weeks and see what happens. Thing about Chinese herbs, they're written on the container but I don't know anything about them. Are you in Brooklyn? The doctors I went to said they had someone else come in with mites or morgellons but they didn't treat. Now if I go somewhere I try to find out if they have others come with same problem. Maybe it doesn't matter because they never seem to be able to help anyway. > > > > Hi Jess, > > > > It is really good to hear from you. I've thought about you often. > > I'm in the same boat with the similar questions about fibers. I > > wonder if there is any way to get rid of the fibers permanently. I > > feel them floating and landing on my hands at times. I don't know of > > anyone who has had fibers that actually got rid of them. Many on this > > site did not have fibers, but had mites only. Their exposure to mites > > did not bring fibers. Mites for sure can be killed, although with > > tremendous difficulty. I don't know what makes the fibers, but they > > are part of what defines Morgellons. So many people who had mites end > > up with the fibers. Some people think they are a by-product of a mite > > or parasite, or bacteria and some ppl believe they are alive. I'm a > > member of the group that believes they are living, although don't have > > any idea how that could be. Maybe investigators, although very > > controversial, believe they are nano products, and I think they maybe > > are. That's just an opinion... I'm not the one to come up with this > > as there are plenty of knowledgable people who have said this... Dr. > > Hildegard Staninger for one. When I had a microscope and was > > collecting fibers and looking at them under the digital scope I found > > some interesting things. I would put the fibers on slides, cover them > > in emersion oil and a thin glass sheet over the top and look at the > > fibers over a period of months. I stored them in a special box > > designed for slides. The fibers themselves changed over time from > > month to month (some did, some did not). Some developed what looked > > like a pin head. I never saw any of them move. > > > > I really wish I had a microscope again, but I haven't found one that > > hooks up with software for an iMac which I have now. > > > > I think there are things that disrupt the energy of the fibers. > > Scientists may have found a way to create life and I think the fibers > > are self creating... in the human body they have what they need to > > reproduce successfully. They also seem to reproduce in homes. Some > > may be programmed to carry diseases. > > > > I did not find coconut oil helpful on the body. When I put it on my > > hands and feet it seemed to dry my skin out further so I stopped using > > it. So no, it isn't just you Jess. It never was just you. > > > > > > > > ---------------------------------------------------------- > > *From: *"jessnyc" <helpnynow@...> > > **"Birdmites.org Website" <bird mites > > > *Sent: *Monday, March 19, 2012 3:29:50 PM > > *Subject: * So the fibers survive coconut oil? > > > > I had thought that coconut oil was a remedy for these fibers. I bought > > some and had a small jar next to me at all times. > > > > When the oil was in liquid form, I noticed that the fibers somehow > > managed to get in the oil, my little jar had suddenly like 10 or more > > fibers. After a while I saw they all stuck together, and eventually I > > began seeing more and more of them. > > > > I wonder if they reproduced in the oil and assembled themselves > > together? That's what it looked like to me, my little jar is full of > > some big and some tiny fibers, they're mostly blue red or black, some > > are also white and hard to see. > > > > I guess this shows they don't die with coconut oil, they thrive and > > reproduce in it. > > > > Jesus, is there anything remedy that actually kills them? I haven't > > found anything that would really kill them. > > > > Has anyone had any success with coconut oil? Or is it just me? > > > > Jess. > > > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 Aggie, give me a little time to answer you. I'm in the middle of a discovery but don't want to comment until the experiment is over. You may be on to something.Love and light, From: Aggi Assmann <aggi_assmann@...> "bird mites " <bird mites > Sent: Wednesday, March 21, 2012 10:20 AM Subject: Re: So the fibers survive coconut oil? Guys, just been reading something really interesting on a website about Lyme disease. It says that the borrelia has a strong affinity to collagen fibres, because wrapped up in these fibres it protects them from being attacked by the immune system of the body. So I couldn't help, but wonder if - it is the borrelia floating around, docking fibres and this is what we see floating through the air (we all seem to have a higher presence of floaters in the air) - the fuzz balls many of us here have reported of are something like the 2nd stage of accumulated fibres, protecting the borrelia embedded deep inside - the mites or whatever parasite biting us transporting the fibres including the borrelia into our system and for this simple reason they just love our couches, mattresses, clothes and carpets best ? Could this all be the Lyme/Morgellon correlation, or is it totally naive thinking that way ? Comments please ! ;-) Von: jessnyc <helpnynow@...>An: bird mites Gesendet: 7:37 Dienstag, 20.März 2012Betreff: Re: So the fibers survive coconut oil? Thank you, Aandraya.Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge?Thanks,JessOn 3/20/2012 12:16 AM, Aandraya wrote: You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote: Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote: There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 9:50:47 PMSubject: Re: So the fibers survive coconut oil?It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks,JessOn 3/19/2012 10:47 PM, Goldstein@... wrote: Jess lives in Mexico. Do you know of anyone there? From: "Aandraya" <aandraya@...>bird mites Sent: Monday, March 19, 2012 7:27:44 PMSubject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya."Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons?Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely?So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now?Thanks a lot,JessOn 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 5:15:42 PMSubject: Re: So the fibers survive coconut oil?Hi ,Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested.One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny.What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again,JessOn 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...>"Birdmites.org Website" <bird mites >Sent: Monday, March 19, 2012 3:29:50 PMSubject: So the fibers survive coconut oil?I had thought that coconut oil was a remedy for these fibers. I boughtsome and had a small jar next to me at all times.When the oil was in liquid form, I noticed that the fibers somehowmanaged to get in the oil, my little jar had suddenly like 10 or morefibers. After a while I saw they all stuck together, and eventually Ibegan seeing more and more of them.I wonder if they reproduced in the oil and assembled themselvestogether? That's what it looked like to me, my little jar is full ofsome big and some tiny fibers, they're mostly blue red or black, someare also white and hard to see.I guess this shows they don't die with coconut oil, they thrive andreproduce in it.Jesus, is there anything remedy that actually kills them? I haven'tfound anything that would really kill them.Has anyone had any success with coconut oil? Or is it just me?Jess.------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 I wonder what the herb person recommended for mites and if it worked. I know Aandraa is recommending samento and banderol. I asked Dr. Zhang if he knew about mite infestations or if people were coming to him with this problem but although he is Lyme literate he didn't seem to know what I was talking about and gave me some pills that are supposed to make me less sensitive. So far I see no difference. When I go back again I'll try asking more about Lyme.I wondered if there was a way of getting all those together with this problem in NYC to demand some action but I wouldn't know where to begin. Inasked several doctors I'd seen previously if they'd had people come with similar stories and I had at least one person for each doctor. The entomologist who came by without any equipment, no scope, nothing, said he had someone tell him mites were coming out of her cavities, at least that's what I think he said and I didn't know how tonanswer him. I gave examples of what I'd observed but he dismissed everything cause I had no proof. E > > > > > > Hi Jess, > > > > > > It is really good to hear from you. I've thought about you often. > > > I'm in the same boat with the similar questions about fibers. I > > > wonder if there is any way to get rid of the fibers permanently. I > > > feel them floating and landing on my hands at times. I don't know of > > > anyone who has had fibers that actually got rid of them. Many on this > > > site did not have fibers, but had mites only. Their exposure to mites > > > did not bring fibers. Mites for sure can be killed, although with > > > tremendous difficulty. I don't know what makes the fibers, but they > > > are part of what defines Morgellons. So many people who had mites end > > > up with the fibers. Some people think they are a by-product of a mite > > > or parasite, or bacteria and some ppl believe they are alive. I'm a > > > member of the group that believes they are living, although don't have > > > any idea how that could be. Maybe investigators, although very > > > controversial, believe they are nano products, and I think they maybe > > > are. That's just an opinion... I'm not the one to come up with this > > > as there are plenty of knowledgable people who have said this... Dr. > > > Hildegard Staninger for one. When I had a microscope and was > > > collecting fibers and looking at them under the digital scope I found > > > some interesting things. I would put the fibers on slides, cover them > > > in emersion oil and a thin glass sheet over the top and look at the > > > fibers over a period of months. I stored them in a special box > > > designed for slides. The fibers themselves changed over time from > > > month to month (some did, some did not). Some developed what looked > > > like a pin head. I never saw any of them move. > > > > > > I really wish I had a microscope again, but I haven't found one that > > > hooks up with software for an iMac which I have now. > > > > > > I think there are things that disrupt the energy of the fibers. > > > Scientists may have found a way to create life and I think the fibers > > > are self creating... in the human body they have what they need to > > > reproduce successfully. They also seem to reproduce in homes. Some > > > may be programmed to carry diseases. > > > > > > I did not find coconut oil helpful on the body. When I put it on my > > > hands and feet it seemed to dry my skin out further so I stopped using > > > it. So no, it isn't just you Jess. It never was just you. > > > > > > > > > > > > ---------------------------------------------------------- > > > *From: * " jessnyc " <helpnynow@> > > > ** " Birdmites.org Website " <bird mites > > > > *Sent: *Monday, March 19, 2012 3:29:50 PM > > > *Subject: * So the fibers survive coconut oil? > > > > > > I had thought that coconut oil was a remedy for these fibers. I bought > > > some and had a small jar next to me at all times. > > > > > > When the oil was in liquid form, I noticed that the fibers somehow > > > managed to get in the oil, my little jar had suddenly like 10 or more > > > fibers. After a while I saw they all stuck together, and eventually I > > > began seeing more and more of them. > > > > > > I wonder if they reproduced in the oil and assembled themselves > > > together? That's what it looked like to me, my little jar is full of > > > some big and some tiny fibers, they're mostly blue red or black, some > > > are also white and hard to see. > > > > > > I guess this shows they don't die with coconut oil, they thrive and > > > reproduce in it. > > > > > > Jesus, is there anything remedy that actually kills them? I haven't > > > found anything that would really kill them. > > > > > > Has anyone had any success with coconut oil? Or is it just me? > > > > > > Jess. > > > > > > > > > > > > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 E-I'm surprised because Dr. Zhang is good friends with Dr. Schaller, my first LLMD, and he knew about the bug infestations and morgellons symptoms. Do you have anything coming out of your skin? Tell Dr. Zhang you want to do his full Lyme protocol including the HH2, Art2, and Allicin.AandrayaOn Mar 21, 2012, at 6:47 PM, miteymaid <miteymaid@...> wrote: I wonder what the herb person recommended for mites and if it worked. I know Aandraa is recommending samento and banderol. I asked Dr. Zhang if he knew about mite infestations or if people were coming to him with this problem but although he is Lyme literate he didn't seem to know what I was talking about and gave me some pills that are supposed to make me less sensitive. So far I see no difference. When I go back again I'll try asking more about Lyme.I wondered if there was a way of getting all those together with this problem in NYC to demand some action but I wouldn't know where to begin. Inasked several doctors I'd seen previously if they'd had people come with similar stories and I had at least one person for each doctor. The entomologist who came by without any equipment, no scope, nothing, said he had someone tell him mites were coming out of her cavities, at least that's what I think he said and I didn't know how tonanswer him. I gave examples of what I'd observed but he dismissed everything cause I had no proof. E > > > > > > Hi Jess, > > > > > > It is really good to hear from you. I've thought about you often. > > > I'm in the same boat with the similar questions about fibers. I > > > wonder if there is any way to get rid of the fibers permanently. I > > > feel them floating and landing on my hands at times. I don't know of > > > anyone who has had fibers that actually got rid of them. Many on this > > > site did not have fibers, but had mites only. Their exposure to mites > > > did not bring fibers. Mites for sure can be killed, although with > > > tremendous difficulty. I don't know what makes the fibers, but they > > > are part of what defines Morgellons. So many people who had mites end > > > up with the fibers. Some people think they are a by-product of a mite > > > or parasite, or bacteria and some ppl believe they are alive. I'm a > > > member of the group that believes they are living, although don't have > > > any idea how that could be. Maybe investigators, although very > > > controversial, believe they are nano products, and I think they maybe > > > are. That's just an opinion... I'm not the one to come up with this > > > as there are plenty of knowledgable people who have said this... Dr. > > > Hildegard Staninger for one. When I had a microscope and was > > > collecting fibers and looking at them under the digital scope I found > > > some interesting things. I would put the fibers on slides, cover them > > > in emersion oil and a thin glass sheet over the top and look at the > > > fibers over a period of months. I stored them in a special box > > > designed for slides. The fibers themselves changed over time from > > > month to month (some did, some did not). Some developed what looked > > > like a pin head. I never saw any of them move. > > > > > > I really wish I had a microscope again, but I haven't found one that > > > hooks up with software for an iMac which I have now. > > > > > > I think there are things that disrupt the energy of the fibers. > > > Scientists may have found a way to create life and I think the fibers > > > are self creating... in the human body they have what they need to > > > reproduce successfully. They also seem to reproduce in homes. Some > > > may be programmed to carry diseases. > > > > > > I did not find coconut oil helpful on the body. When I put it on my > > > hands and feet it seemed to dry my skin out further so I stopped using > > > it. So no, it isn't just you Jess. It never was just you. > > > > > > > > > > > > ---------------------------------------------------------- > > > *From: *"jessnyc" <helpnynow@> > > > **"Birdmites.org Website" <bird mites > > > > *Sent: *Monday, March 19, 2012 3:29:50 PM > > > *Subject: * So the fibers survive coconut oil? > > > > > > I had thought that coconut oil was a remedy for these fibers. I bought > > > some and had a small jar next to me at all times. > > > > > > When the oil was in liquid form, I noticed that the fibers somehow > > > managed to get in the oil, my little jar had suddenly like 10 or more > > > fibers. After a while I saw they all stuck together, and eventually I > > > began seeing more and more of them. > > > > > > I wonder if they reproduced in the oil and assembled themselves > > > together? That's what it looked like to me, my little jar is full of > > > some big and some tiny fibers, they're mostly blue red or black, some > > > are also white and hard to see. > > > > > > I guess this shows they don't die with coconut oil, they thrive and > > > reproduce in it. > > > > > > Jesus, is there anything remedy that actually kills them? I haven't > > > found anything that would really kill them. > > > > > > Has anyone had any success with coconut oil? Or is it just me? > > > > > > Jess. > > > > > > > > > > > > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
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