Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 You have the fibers- Zhang should know about morgellons and that it is Lyme, Dr. Schaller diagnosed my Lyme/morgellons symptoms and he works with Zhang on treatments and improving the herbal formulas.AaOn Mar 21, 2012, at 6:47 PM, miteymaid <miteymaid@...> wrote: I wonder what the herb person recommended for mites and if it worked. I know Aandraa is recommending samento and banderol. I asked Dr. Zhang if he knew about mite infestations or if people were coming to him with this problem but although he is Lyme literate he didn't seem to know what I was talking about and gave me some pills that are supposed to make me less sensitive. So far I see no difference. When I go back again I'll try asking more about Lyme.I wondered if there was a way of getting all those together with this problem in NYC to demand some action but I wouldn't know where to begin. Inasked several doctors I'd seen previously if they'd had people come with similar stories and I had at least one person for each doctor. The entomologist who came by without any equipment, no scope, nothing, said he had someone tell him mites were coming out of her cavities, at least that's what I think he said and I didn't know how tonanswer him. I gave examples of what I'd observed but he dismissed everything cause I had no proof. E > > > > > > Hi Jess, > > > > > > It is really good to hear from you. I've thought about you often. > > > I'm in the same boat with the similar questions about fibers. I > > > wonder if there is any way to get rid of the fibers permanently. I > > > feel them floating and landing on my hands at times. I don't know of > > > anyone who has had fibers that actually got rid of them. Many on this > > > site did not have fibers, but had mites only. Their exposure to mites > > > did not bring fibers. Mites for sure can be killed, although with > > > tremendous difficulty. I don't know what makes the fibers, but they > > > are part of what defines Morgellons. So many people who had mites end > > > up with the fibers. Some people think they are a by-product of a mite > > > or parasite, or bacteria and some ppl believe they are alive. I'm a > > > member of the group that believes they are living, although don't have > > > any idea how that could be. Maybe investigators, although very > > > controversial, believe they are nano products, and I think they maybe > > > are. That's just an opinion... I'm not the one to come up with this > > > as there are plenty of knowledgable people who have said this... Dr. > > > Hildegard Staninger for one. When I had a microscope and was > > > collecting fibers and looking at them under the digital scope I found > > > some interesting things. I would put the fibers on slides, cover them > > > in emersion oil and a thin glass sheet over the top and look at the > > > fibers over a period of months. I stored them in a special box > > > designed for slides. The fibers themselves changed over time from > > > month to month (some did, some did not). Some developed what looked > > > like a pin head. I never saw any of them move. > > > > > > I really wish I had a microscope again, but I haven't found one that > > > hooks up with software for an iMac which I have now. > > > > > > I think there are things that disrupt the energy of the fibers. > > > Scientists may have found a way to create life and I think the fibers > > > are self creating... in the human body they have what they need to > > > reproduce successfully. They also seem to reproduce in homes. Some > > > may be programmed to carry diseases. > > > > > > I did not find coconut oil helpful on the body. When I put it on my > > > hands and feet it seemed to dry my skin out further so I stopped using > > > it. So no, it isn't just you Jess. It never was just you. > > > > > > > > > > > > ---------------------------------------------------------- > > > *From: *"jessnyc" <helpnynow@> > > > **"Birdmites.org Website" <bird mites > > > > *Sent: *Monday, March 19, 2012 3:29:50 PM > > > *Subject: * So the fibers survive coconut oil? > > > > > > I had thought that coconut oil was a remedy for these fibers. I bought > > > some and had a small jar next to me at all times. > > > > > > When the oil was in liquid form, I noticed that the fibers somehow > > > managed to get in the oil, my little jar had suddenly like 10 or more > > > fibers. After a while I saw they all stuck together, and eventually I > > > began seeing more and more of them. > > > > > > I wonder if they reproduced in the oil and assembled themselves > > > together? That's what it looked like to me, my little jar is full of > > > some big and some tiny fibers, they're mostly blue red or black, some > > > are also white and hard to see. > > > > > > I guess this shows they don't die with coconut oil, they thrive and > > > reproduce in it. > > > > > > Jesus, is there anything remedy that actually kills them? I haven't > > > found anything that would really kill them. > > > > > > Has anyone had any success with coconut oil? Or is it just me? > > > > > > Jess. > > > > > > > > > > > > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 Jess,Did your family come out okay after that terrible earthquake? I was thinking about you and your family... I know no one was killed, but so many lost homes. Very horrible. So sorry too.From: "jessnyc" <helpnynow@...>bird mites Sent: Tuesday, March 20, 2012 4:57:50 PMSubject: Re: So the fibers survive coconut oil? Thank you, Aandraya. Do you think I could treat myself without going to a doctor? Like, getting the Igenex testing, and then getting the medications you used? How did you know when to stop the treatment, did you get tested continuously? Do you know for a fact that you're fully recovered and that you don't have and left over infection that could begin growing slowly again? I don't think I could afford expensive treatment right now, but I might be able to afford the Igenex testing and the meds alone, I just wonder if that would be enough. I don't think I have any neurological symptoms, and the fiber problem is not as severe as it used to be, although it is still there, but that's the only symptom I have, the fibers. Thanks a lot for the information. Jess On 3/20/2012 2:57 PM, Aandraya wrote: Jess- the doctors treat them for Lyme and coinfections because they all have it. I personally believe that all Lyme patients who have morgellons type symptoms also have severe bartonella(passed by ticks and insects along with Lyme babesia) Coinfections are microbes that are passed from the same tick or insect- the most common and debilitating are bartonella- bacterial, and babesia- protozoal, sister to malaria. I had both. Lyme is borrelia- a spiral shaped bacteria. Aa On Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...> wrote: Thank you, Aandraya. Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge? Thanks, Jess On 3/20/2012 12:16 AM, Aandraya wrote: You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote: Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote: There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 9:50:47 PM Subject: Re: So the fibers survive coconut oil? It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote: Jess lives in Mexico. Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Links <*> To visit your group on the web, go to: bird mites/ <*> Your email settings: Individual Email | Traditional <*> To change settings online go to: bird mites/join ( ID required) <*> To change settings via email: bird mites-digest bird mites-fullfeatured <*> To unsubscribe from this group, send an email to: bird mites-unsubscribe <*> Your use of Groups is subject to: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 Thank you, , I appreciate so much your concern. Yes, everybody is fine. Most of my family lives a couple of hours away from Mexico City and the seismic area, so they didn't feel anything. I live in Mexico City and I definitely felt everything, made me dizzy! ...but nothing major happened around me, just a few buildings lost their windows and stuff like that, but no victims around my area. Thank you for thinking about me :-) Jess On 3/21/2012 7:29 PM, Goldstein@... wrote:  Jess, Did your family come out okay after that terrible earthquake?  I was thinking about you and your family... I know no one was killed, but so many lost homes.  Very horrible.  So sorry too. From: "jessnyc" <helpnynow@...> bird mites Sent: Tuesday, March 20, 2012 4:57:50 PM Subject: Re: So the fibers survive coconut oil? Thank you, Aandraya. Do you think I could treat myself without going to a doctor? Like, getting the Igenex testing, and then getting the medications you used? How did you know when to stop the treatment, did you get tested continuously? Do you know for a fact that you're fully recovered and that you don't have and left over infection that could begin growing slowly again? I don't think I could afford expensive treatment right now, but I might be able to afford the Igenex testing and the meds alone, I just wonder if that would be enough. I don't think I have any neurological symptoms, and the fiber problem is not as severe as it used to be, although it is still there, but that's the only symptom I have, the fibers. Thanks a lot for the information. Jess On 3/20/2012 2:57 PM, Aandraya wrote:  Jess- the doctors treat them for Lyme and coinfections because they all have it. I personally believe that all Lyme patients who have morgellons type symptoms also have severe bartonella(passed by ticks and insects along with Lyme babesia) Coinfections are microbes that are passed from the same tick or insect- the most common and debilitating are bartonella- bacterial, and babesia- protozoal, sister to malaria.  I had both.  Lyme is borrelia- a spiral shaped bacteria. Aa On Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...> wrote:  Thank you, Aandraya. Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge? Thanks, Jess On 3/20/2012 12:16 AM, Aandraya wrote:  You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron.  I know someone who saw Cameron and she loves him.  He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote:  Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote:  There must be someone who treats Lyme disease there in Mexico.  I'll see if anyone I know might know of someone too.  But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 9:50:47 PM Subject: Re: So the fibers survive coconut oil? It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote:  Jess lives in Mexico.  Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with.  If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin.  But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds.  Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients.  How long have you had this?  If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote:  Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote:  100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms.  Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above.  You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote:  Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote:  Just to add to what said, I found no quick fix for the morgellons stuff.  It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote:  Jess, I have a FAR infrared "Rainbow" which I use often.  It does not seem to do much to clear out the fibers.  Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso.  It does warm the body in a way I've never experienced before... raises the body temperature.  After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya.  She knows a lot about this and has gotten rid of the fibers.  She has done far more medications for Lyme and co-infections than anyone I know.  She also knows more about Lyme and co-infections than anyone I know.  I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you.  I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more.  I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears.  I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin.  The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity.  I have stopped gettring the little papules and pimples that I had been getting.  What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up.  I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe?  She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$.  She did not get help until she started antibiotics.  If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote:  Hi Jess, It is really good to hear from you.  I've thought about you often.  I'm in the same boat with the similar questions about fibers.  I wonder if there is any way to get rid of the fibers permanently.  I feel them floating and landing on my hands at times.  I don't know of anyone who has had fibers that actually got rid of them.  Many on this site did not have fibers, but had mites only.  Their exposure to mites did not bring fibers.  Mites for sure can be killed, although with tremendous difficulty.  I don't know what makes the fibers, but they are part of what defines Morgellons.  So many people who had mites end up with the fibers.  Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive.  I'm a member of the group that believes they are living, although don't have any idea how that could be.  Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are.  That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one.  When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things.  I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months.  I stored them in a special box designed for slides.  The fibers themselves changed over time from month to month (some did, some did not).  Some developed what looked like a pin head.  I never saw any of them move.  I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now.  I think there are things that disrupt the energy of the fibers.  Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully.  They also seem to reproduce in homes.  Some may be programmed to carry diseases.  I did not find coconut oil helpful on the body.  When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it.  So no, it isn't just you Jess.  It never was just you.  From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Links <*> To visit your group on the web, go to:    bird mites/ <*> Your email settings:    Individual Email | Traditional <*> To change settings online go to:    bird mites/join    ( ID required) <*> To change settings via email:    bird mites-digest    bird mites-fullfeatured <*> To unsubscribe from this group, send an email to:    bird mites-unsubscribe <*> Your use of Groups is subject to:    Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 Jess-Where in Mexico DF do you live? I used to live in Colonia Roma. Hope you're doing well.AaOn Mar 21, 2012, at 8:35 PM, jessnyc <helpnynow@...> wrote: Thank you, , I appreciate so much your concern. Yes, everybody is fine. Most of my family lives a couple of hours away from Mexico City and the seismic area, so they didn't feel anything. I live in Mexico City and I definitely felt everything, made me dizzy! ...but nothing major happened around me, just a few buildings lost their windows and stuff like that, but no victims around my area. Thank you for thinking about me :-) Jess On 3/21/2012 7:29 PM, Goldstein@... wrote: Jess, Did your family come out okay after that terrible earthquake? I was thinking about you and your family... I know no one was killed, but so many lost homes. Very horrible. So sorry too. From: "jessnyc" <helpnynow@...> bird mites Sent: Tuesday, March 20, 2012 4:57:50 PM Subject: Re: So the fibers survive coconut oil? Thank you, Aandraya. Do you think I could treat myself without going to a doctor? Like, getting the Igenex testing, and then getting the medications you used? How did you know when to stop the treatment, did you get tested continuously? Do you know for a fact that you're fully recovered and that you don't have and left over infection that could begin growing slowly again? I don't think I could afford expensive treatment right now, but I might be able to afford the Igenex testing and the meds alone, I just wonder if that would be enough. I don't think I have any neurological symptoms, and the fiber problem is not as severe as it used to be, although it is still there, but that's the only symptom I have, the fibers. Thanks a lot for the information. Jess On 3/20/2012 2:57 PM, Aandraya wrote: Jess- the doctors treat them for Lyme and coinfections because they all have it. I personally believe that all Lyme patients who have morgellons type symptoms also have severe bartonella(passed by ticks and insects along with Lyme babesia) Coinfections are microbes that are passed from the same tick or insect- the most common and debilitating are bartonella- bacterial, and babesia- protozoal, sister to malaria. I had both. Lyme is borrelia- a spiral shaped bacteria. Aa On Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...> wrote: Thank you, Aandraya. Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge? Thanks, Jess On 3/20/2012 12:16 AM, Aandraya wrote: You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote: Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote: There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 9:50:47 PM Subject: Re: So the fibers survive coconut oil? It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote: Jess lives in Mexico. Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Links <*> To visit your group on the web, go to: bird mites/ <*> Your email settings: Individual Email | Traditional <*> To change settings online go to: bird mites/join ( ID required) <*> To change settings via email: bird mites-digest bird mites-fullfeatured <*> To unsubscribe from this group, send an email to: bird mites-unsubscribe <*> Your use of Groups is subject to: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 Thanks, Aandraya, how do you figure out whether you have Bartonella and Babesia? Will the Igenex testing indicate that too, or do you need a different set of tests? How and when did your doctor tell you "You have defeated the infection, you no longer need to continue treatment"? How did you get to that point? Were you being continuously tested? Thanks a lot, Jess  3/19/2012 8:27 PM, Aandraya wrote:  No, that is one of many combinations I was treated with.  If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin.  But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds.  Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients.  How long have you had this?  If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote:  Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote:  100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms.  Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above.  You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote:  Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote:  Just to add to what said, I found no quick fix for the morgellons stuff.  It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote:  Jess, I have a FAR infrared "Rainbow" which I use often.  It does not seem to do much to clear out the fibers.  Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso.  It does warm the body in a way I've never experienced before... raises the body temperature.  After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya.  She knows a lot about this and has gotten rid of the fibers.  She has done far more medications for Lyme and co-infections than anyone I know.  She also knows more about Lyme and co-infections than anyone I know.  I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you.  I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more.  I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears.  I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin.  The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity.  I have stopped gettring the little papules and pimples that I had been getting.  What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up.  I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe?  She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$.  She did not get help until she started antibiotics.  If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote:  Hi Jess, It is really good to hear from you.  I've thought about you often.  I'm in the same boat with the similar questions about fibers.  I wonder if there is any way to get rid of the fibers permanently.  I feel them floating and landing on my hands at times.  I don't know of anyone who has had fibers that actually got rid of them.  Many on this site did not have fibers, but had mites only.  Their exposure to mites did not bring fibers.  Mites for sure can be killed, although with tremendous difficulty.  I don't know what makes the fibers, but they are part of what defines Morgellons.  So many people who had mites end up with the fibers.  Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive.  I'm a member of the group that believes they are living, although don't have any idea how that could be.  Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are.  That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one.  When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things.  I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months.  I stored them in a special box designed for slides.  The fibers themselves changed over time from month to month (some did, some did not).  Some developed what looked like a pin head.  I never saw any of them move.  I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now.  I think there are things that disrupt the energy of the fibers.  Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully.  They also seem to reproduce in homes.  Some may be programmed to carry diseases.  I did not find coconut oil helpful on the body.  When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it.  So no, it isn't just you Jess.  It never was just you.  From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 No kidding, Aandraya, I'm in Condesa! Few blocks from Roma, pretty cool area, isn't it? Where do you live now? Jess On 3/21/2012 7:39 PM, Aandraya wrote:  Jess- Where in Mexico DF do you live?  I used to live in Colonia Roma.  Hope you're doing well. Aa On Mar 21, 2012, at 8:35 PM, jessnyc <helpnynow@...> wrote:  Thank you, , I appreciate so much your concern. Yes, everybody is fine. Most of my family lives a couple of hours away from Mexico City and the seismic area, so they didn't feel anything. I live in Mexico City and I definitely felt everything, made me dizzy! ...but nothing major happened around me, just a few buildings lost their windows and stuff like that, but no victims around my area. Thank you for thinking about me :-) Jess On 3/21/2012 7:29 PM, Goldstein@... wrote:  Jess, Did your family come out okay after that terrible earthquake?  I was thinking about you and your family... I know no one was killed, but so many lost homes.  Very horrible.  So sorry too. From: "jessnyc" <helpnynow@...> bird mites Sent: Tuesday, March 20, 2012 4:57:50 PM Subject: Re: So the fibers survive coconut oil? Thank you, Aandraya. Do you think I could treat myself without going to a doctor? Like, getting the Igenex testing, and then getting the medications you used? How did you know when to stop the treatment, did you get tested continuously? Do you know for a fact that you're fully recovered and that you don't have and left over infection that could begin growing slowly again? I don't think I could afford expensive treatment right now, but I might be able to afford the Igenex testing and the meds alone, I just wonder if that would be enough. I don't think I have any neurological symptoms, and the fiber problem is not as severe as it used to be, although it is still there, but that's the only symptom I have, the fibers. Thanks a lot for the information. Jess On 3/20/2012 2:57 PM, Aandraya wrote:  Jess- the doctors treat them for Lyme and coinfections because they all have it. I personally believe that all Lyme patients who have morgellons type symptoms also have severe bartonella(passed by ticks and insects along with Lyme babesia) Coinfections are microbes that are passed from the same tick or insect- the most common and debilitating are bartonella- bacterial, and babesia- protozoal, sister to malaria.  I had both.  Lyme is borrelia- a spiral shaped bacteria. Aa On Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...> wrote:  Thank you, Aandraya. Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge? Thanks, Jess On 3/20/2012 12:16 AM, Aandraya wrote:  You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron.  I know someone who saw Cameron and she loves him.  He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote:  Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote:  There must be someone who treats Lyme disease there in Mexico.  I'll see if anyone I know might know of someone too.  But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 9:50:47 PM Subject: Re: So the fibers survive coconut oil? It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote:  Jess lives in Mexico.  Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with.  If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin.  But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds.  Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients.  How long have you had this?  If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote:  Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote:  100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms.  Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above.  You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote:  Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote:  Just to add to what said, I found no quick fix for the morgellons stuff.  It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote:  Jess, I have a FAR infrared "Rainbow" which I use often.  It does not seem to do much to clear out the fibers.  Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso.  It does warm the body in a way I've never experienced before... raises the body temperature.  After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya.  She knows a lot about this and has gotten rid of the fibers.  She has done far more medications for Lyme and co-infections than anyone I know.  She also knows more about Lyme and co-infections than anyone I know.  I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you.  I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more.  I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears.  I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin.  The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity.  I have stopped gettring the little papules and pimples that I had been getting.  What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up.  I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe?  She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$.  She did not get help until she started antibiotics.  If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote:  Hi Jess, It is really good to hear from you.  I've thought about you often.  I'm in the same boat with the similar questions about fibers.  I wonder if there is any way to get rid of the fibers permanently.  I feel them floating and landing on my hands at times.  I don't know of anyone who has had fibers that actually got rid of them.  Many on this site did not have fibers, but had mites only.  Their exposure to mites did not bring fibers.  Mites for sure can be killed, although with tremendous difficulty.  I don't know what makes the fibers, but they are part of what defines Morgellons.  So many people who had mites end up with the fibers.  Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive.  I'm a member of the group that believes they are living, although don't have any idea how that could be.  Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are.  That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one.  When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things.  I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months.  I stored them in a special box designed for slides.  The fibers themselves changed over time from month to month (some did, some did not).  Some developed what looked like a pin head.  I never saw any of them move.  I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now.  I think there are things that disrupt the energy of the fibers.  Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully.  They also seem to reproduce in homes.  Some may be programmed to carry diseases.  I did not find coconut oil helpful on the body.  When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it.  So no, it isn't just you Jess.  It never was just you.  From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Links <*> To visit your group on the web, go to:    bird mites/ <*> Your email settings:    Individual Email | Traditional <*> To change settings online go to:    bird mites/join    ( ID required) <*> To change settings via email:    bird mites-digest    bird mites-fullfeatured <*> To unsubscribe from this group, send an email to:    bird mites-unsubscribe <*> Your use of Groups is subject to:    Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 Jess-It's all based on symptoms, that's why you need an experienced LLMD. Testing is unreliable. I am still symptomatic and treating, a CD57 from LabCorp can help define when you're at the end of treatment. Very few insurance companies will pay for Igenix and the other specialty labs, and negative tests don't mean anything. Most LLMDs treat for at least 2 months after patient becomes asymptomatic.Aa On Mar 21, 2012, at 8:41 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya, how do you figure out whether you have Bartonella and Babesia? Will the Igenex testing indicate that too, or do you need a different set of tests? How and when did your doctor tell you "You have defeated the infection, you no longer need to continue treatment"? How did you get to that point? Were you being continuously tested? Thanks a lot, Jess 3/19/2012 8:27 PM, Aandraya wrote: No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 The only labs I do are periodic liver panels, thyroid, standard blood tests, and a CD57 from Labcorp every 8 months. I spent thousands on tests when I first got sick and they were all negative except a bartonella direct microscopy at Fry Labs $800. AaOn Mar 21, 2012, at 8:41 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya, how do you figure out whether you have Bartonella and Babesia? Will the Igenex testing indicate that too, or do you need a different set of tests? How and when did your doctor tell you "You have defeated the infection, you no longer need to continue treatment"? How did you get to that point? Were you being continuously tested? Thanks a lot, Jess 3/19/2012 8:27 PM, Aandraya wrote: No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 Jess-Chicago 25 years, just moved to Minneapolis a year ago due to this illness. Had to stop working. Treat it now and you'll be good to go.AaOn Mar 21, 2012, at 8:42 PM, jessnyc <helpnynow@...> wrote: No kidding, Aandraya, I'm in Condesa! Few blocks from Roma, pretty cool area, isn't it? Where do you live now? Jess On 3/21/2012 7:39 PM, Aandraya wrote: Jess- Where in Mexico DF do you live? I used to live in Colonia Roma. Hope you're doing well. Aa On Mar 21, 2012, at 8:35 PM, jessnyc <helpnynow@...> wrote: Thank you, , I appreciate so much your concern. Yes, everybody is fine. Most of my family lives a couple of hours away from Mexico City and the seismic area, so they didn't feel anything. I live in Mexico City and I definitely felt everything, made me dizzy! ...but nothing major happened around me, just a few buildings lost their windows and stuff like that, but no victims around my area. Thank you for thinking about me :-) Jess On 3/21/2012 7:29 PM, Goldstein@... wrote: Jess, Did your family come out okay after that terrible earthquake? I was thinking about you and your family... I know no one was killed, but so many lost homes. Very horrible. So sorry too. From: "jessnyc" <helpnynow@...> bird mites Sent: Tuesday, March 20, 2012 4:57:50 PM Subject: Re: So the fibers survive coconut oil? Thank you, Aandraya. Do you think I could treat myself without going to a doctor? Like, getting the Igenex testing, and then getting the medications you used? How did you know when to stop the treatment, did you get tested continuously? Do you know for a fact that you're fully recovered and that you don't have and left over infection that could begin growing slowly again? I don't think I could afford expensive treatment right now, but I might be able to afford the Igenex testing and the meds alone, I just wonder if that would be enough. I don't think I have any neurological symptoms, and the fiber problem is not as severe as it used to be, although it is still there, but that's the only symptom I have, the fibers. Thanks a lot for the information. Jess On 3/20/2012 2:57 PM, Aandraya wrote: Jess- the doctors treat them for Lyme and coinfections because they all have it. I personally believe that all Lyme patients who have morgellons type symptoms also have severe bartonella(passed by ticks and insects along with Lyme babesia) Coinfections are microbes that are passed from the same tick or insect- the most common and debilitating are bartonella- bacterial, and babesia- protozoal, sister to malaria. I had both. Lyme is borrelia- a spiral shaped bacteria. Aa On Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...> wrote: Thank you, Aandraya. Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge? Thanks, Jess On 3/20/2012 12:16 AM, Aandraya wrote: You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote: Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote: There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 9:50:47 PM Subject: Re: So the fibers survive coconut oil? It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote: Jess lives in Mexico. Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Links <*> To visit your group on the web, go to: bird mites/ <*> Your email settings: Individual Email | Traditional <*> To change settings online go to: bird mites/join ( ID required) <*> To change settings via email: bird mites-digest bird mites-fullfeatured <*> To unsubscribe from this group, send an email to: bird mites-unsubscribe <*> Your use of Groups is subject to: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 Wow, Aandraya... So for someone who has only fibers and nothing else, what do you think I should do? Go for the CD57 or the Igenix Western Blots? They're all so expensive and I wish I didn't have to pay for all of them, but I need to know what is it exactly that I have. If you have any advice on which one would be #1 I'd appreciate your info. Do you know if all the doctors who treat this are prohibitively expensive? I wonder if there's anyone reasonable out there that won't leave me nearly bankrupt. Thank you, Jess On 3/21/2012 7:52 PM, Aandraya wrote:  The only labs I do are periodic liver panels, thyroid, standard blood tests, and a CD57 from Labcorp every 8 months.  I spent thousands on tests when I first got sick and they were all negative except a bartonella direct microscopy at Fry Labs $800.  Aa On Mar 21, 2012, at 8:41 PM, jessnyc <helpnynow@...> wrote:  Thanks, Aandraya, how do you figure out whether you have Bartonella and Babesia? Will the Igenex testing indicate that too, or do you need a different set of tests? How and when did your doctor tell you "You have defeated the infection, you no longer need to continue treatment"? How did you get to that point? Were you being continuously tested? Thanks a lot, Jess  3/19/2012 8:27 PM, Aandraya wrote:  No, that is one of many combinations I was treated with.  If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin.  But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds.  Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients.  How long have you had this?  If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote:  Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote:  100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms.  Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above.  You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote:  Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote:  Just to add to what said, I found no quick fix for the morgellons stuff.  It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote:  Jess, I have a FAR infrared "Rainbow" which I use often.  It does not seem to do much to clear out the fibers.  Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso.  It does warm the body in a way I've never experienced before... raises the body temperature.  After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya.  She knows a lot about this and has gotten rid of the fibers.  She has done far more medications for Lyme and co-infections than anyone I know.  She also knows more about Lyme and co-infections than anyone I know.  I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you.  I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more.  I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears.  I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin.  The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity.  I have stopped gettring the little papules and pimples that I had been getting.  What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up.  I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe?  She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$.  She did not get help until she started antibiotics.  If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote:  Hi Jess, It is really good to hear from you.  I've thought about you often.  I'm in the same boat with the similar questions about fibers.  I wonder if there is any way to get rid of the fibers permanently.  I feel them floating and landing on my hands at times.  I don't know of anyone who has had fibers that actually got rid of them.  Many on this site did not have fibers, but had mites only.  Their exposure to mites did not bring fibers.  Mites for sure can be killed, although with tremendous difficulty.  I don't know what makes the fibers, but they are part of what defines Morgellons.  So many people who had mites end up with the fibers.  Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive.  I'm a member of the group that believes they are living, although don't have any idea how that could be.  Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are.  That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one.  When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things.  I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months.  I stored them in a special box designed for slides.  The fibers themselves changed over time from month to month (some did, some did not).  Some developed what looked like a pin head.  I never saw any of them move.  I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now.  I think there are things that disrupt the energy of the fibers.  Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully.  They also seem to reproduce in homes.  Some may be programmed to carry diseases.  I did not find coconut oil helpful on the body.  When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it.  So no, it isn't just you Jess.  It never was just you.  From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Links <*> To visit your group on the web, go to:    bird mites/ <*> Your email settings:    Individual Email | Traditional <*> To change settings online go to:    bird mites/join    ( ID required) <*> To change settings via email:    bird mites-digest    bird mites-fullfeatured <*> To unsubscribe from this group, send an email to:    bird mites-unsubscribe <*> Your use of Groups is subject to:    Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 Thank you, Aandraya, how much do you think I should be spending just to get rid of this, including doctors, testing and meds? Over $20,000? On 3/21/2012 7:54 PM, Aandraya wrote:  Jess- Chicago 25 years, just moved to Minneapolis a year ago due to this illness.  Had to stop working.  Treat it now and you'll be good to go. Aa On Mar 21, 2012, at 8:42 PM, jessnyc <helpnynow@...> wrote:  No kidding, Aandraya, I'm in Condesa! Few blocks from Roma, pretty cool area, isn't it? Where do you live now? Jess On 3/21/2012 7:39 PM, Aandraya wrote:  Jess- Where in Mexico DF do you live?  I used to live in Colonia Roma.  Hope you're doing well. Aa On Mar 21, 2012, at 8:35 PM, jessnyc <helpnynow@...> wrote:  Thank you, , I appreciate so much your concern. Yes, everybody is fine. Most of my family lives a couple of hours away from Mexico City and the seismic area, so they didn't feel anything. I live in Mexico City and I definitely felt everything, made me dizzy! ...but nothing major happened around me, just a few buildings lost their windows and stuff like that, but no victims around my area. Thank you for thinking about me :-) Jess On 3/21/2012 7:29 PM, Goldstein@... wrote:  Jess, Did your family come out okay after that terrible earthquake?  I was thinking about you and your family... I know no one was killed, but so many lost homes.  Very horrible.  So sorry too. From: "jessnyc" <helpnynow@...> bird mites Sent: Tuesday, March 20, 2012 4:57:50 PM Subject: Re: So the fibers survive coconut oil? Thank you, Aandraya. Do you think I could treat myself without going to a doctor? Like, getting the Igenex testing, and then getting the medications you used? How did you know when to stop the treatment, did you get tested continuously? Do you know for a fact that you're fully recovered and that you don't have and left over infection that could begin growing slowly again? I don't think I could afford expensive treatment right now, but I might be able to afford the Igenex testing and the meds alone, I just wonder if that would be enough. I don't think I have any neurological symptoms, and the fiber problem is not as severe as it used to be, although it is still there, but that's the only symptom I have, the fibers. Thanks a lot for the information. Jess On 3/20/2012 2:57 PM, Aandraya wrote:  Jess- the doctors treat them for Lyme and coinfections because they all have it. I personally believe that all Lyme patients who have morgellons type symptoms also have severe bartonella(passed by ticks and insects along with Lyme babesia) Coinfections are microbes that are passed from the same tick or insect- the most common and debilitating are bartonella- bacterial, and babesia- protozoal, sister to malaria.  I had both.  Lyme is borrelia- a spiral shaped bacteria. Aa On Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...> wrote:  Thank you, Aandraya. Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge? Thanks, Jess On 3/20/2012 12:16 AM, Aandraya wrote:  You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron.  I know someone who saw Cameron and she loves him.  He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote:  Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote:  There must be someone who treats Lyme disease there in Mexico.  I'll see if anyone I know might know of someone too.  But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 9:50:47 PM Subject: Re: So the fibers survive coconut oil? It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote:  Jess lives in Mexico.  Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with.  If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin.  But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds.  Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients.  How long have you had this?  If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote:  Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote:  100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms.  Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above.  You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote:  Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote:  Just to add to what said, I found no quick fix for the morgellons stuff.  It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote:  Jess, I have a FAR infrared "Rainbow" which I use often.  It does not seem to do much to clear out the fibers.  Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso.  It does warm the body in a way I've never experienced before... raises the body temperature.  After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya.  She knows a lot about this and has gotten rid of the fibers.  She has done far more medications for Lyme and co-infections than anyone I know.  She also knows more about Lyme and co-infections than anyone I know.  I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you.  I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more.  I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears.  I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin.  The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity.  I have stopped gettring the little papules and pimples that I had been getting.  What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up.  I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe?  She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$.  She did not get help until she started antibiotics.  If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote:  Hi Jess, It is really good to hear from you.  I've thought about you often.  I'm in the same boat with the similar questions about fibers.  I wonder if there is any way to get rid of the fibers permanently.  I feel them floating and landing on my hands at times.  I don't know of anyone who has had fibers that actually got rid of them.  Many on this site did not have fibers, but had mites only.  Their exposure to mites did not bring fibers.  Mites for sure can be killed, although with tremendous difficulty.  I don't know what makes the fibers, but they are part of what defines Morgellons.  So many people who had mites end up with the fibers.  Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive.  I'm a member of the group that believes they are living, although don't have any idea how that could be.  Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are.  That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one.  When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things.  I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months.  I stored them in a special box designed for slides.  The fibers themselves changed over time from month to month (some did, some did not).  Some developed what looked like a pin head.  I never saw any of them move.  I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now.  I think there are things that disrupt the energy of the fibers.  Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully.  They also seem to reproduce in homes.  Some may be programmed to carry diseases.  I did not find coconut oil helpful on the body.  When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it.  So no, it isn't just you Jess.  It never was just you.  From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Links <*> To visit your group on the web, go to:    bird mites/ <*> Your email settings:    Individual Email | Traditional <*> To change settings online go to:    bird mites/join    ( ID required) <*> To change settings via email:    bird mites-digest    bird mites-fullfeatured <*> To unsubscribe from this group, send an email to:    bird mites-unsubscribe <*> Your use of Groups is subject to:    Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 Jess-You only need an Igenix western blot, it's $200, but good luck finding a doctor to sign off on it. You can call Igenix and they'll send you a test kit, then you need to find a doctor to sign it. Any lab can draw the blood. I'll send you names of LLMDs that might work for you in a private email. Someone already slammed me for posting names here, some insurance companies are out to get Lyme literate doctors and have their licenses suspended so we try to protect them. If you go to New York there are good doctors out there, that's a Lyme endemic area.AaOn Mar 21, 2012, at 8:58 PM, jessnyc <helpnynow@...> wrote: Wow, Aandraya... So for someone who has only fibers and nothing else, what do you think I should do? Go for the CD57 or the Igenix Western Blots? They're all so expensive and I wish I didn't have to pay for all of them, but I need to know what is it exactly that I have. If you have any advice on which one would be #1 I'd appreciate your info. Do you know if all the doctors who treat this are prohibitively expensive? I wonder if there's anyone reasonable out there that won't leave me nearly bankrupt. Thank you, Jess On 3/21/2012 7:52 PM, Aandraya wrote: The only labs I do are periodic liver panels, thyroid, standard blood tests, and a CD57 from Labcorp every 8 months. I spent thousands on tests when I first got sick and they were all negative except a bartonella direct microscopy at Fry Labs $800. Aa On Mar 21, 2012, at 8:41 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya, how do you figure out whether you have Bartonella and Babesia? Will the Igenex testing indicate that too, or do you need a different set of tests? How and when did your doctor tell you "You have defeated the infection, you no longer need to continue treatment"? How did you get to that point? Were you being continuously tested? Thanks a lot, Jess 3/19/2012 8:27 PM, Aandraya wrote: No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Links <*> To visit your group on the web, go to: bird mites/ <*> Your email settings: Individual Email | Traditional <*> To change settings online go to: bird mites/join ( ID required) <*> To change settings via email: bird mites-digest bird mites-fullfeatured <*> To unsubscribe from this group, send an email to: bird mites-unsubscribe <*> Your use of Groups is subject to: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 The CD57 is good to monitor treatment, any Lab Corp can do it.AaOn Mar 21, 2012, at 8:58 PM, jessnyc <helpnynow@...> wrote: Wow, Aandraya... So for someone who has only fibers and nothing else, what do you think I should do? Go for the CD57 or the Igenix Western Blots? They're all so expensive and I wish I didn't have to pay for all of them, but I need to know what is it exactly that I have. If you have any advice on which one would be #1 I'd appreciate your info. Do you know if all the doctors who treat this are prohibitively expensive? I wonder if there's anyone reasonable out there that won't leave me nearly bankrupt. Thank you, Jess On 3/21/2012 7:52 PM, Aandraya wrote: The only labs I do are periodic liver panels, thyroid, standard blood tests, and a CD57 from Labcorp every 8 months. I spent thousands on tests when I first got sick and they were all negative except a bartonella direct microscopy at Fry Labs $800. Aa On Mar 21, 2012, at 8:41 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya, how do you figure out whether you have Bartonella and Babesia? Will the Igenex testing indicate that too, or do you need a different set of tests? How and when did your doctor tell you "You have defeated the infection, you no longer need to continue treatment"? How did you get to that point? Were you being continuously tested? Thanks a lot, Jess 3/19/2012 8:27 PM, Aandraya wrote: No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Links <*> To visit your group on the web, go to: bird mites/ <*> Your email settings: Individual Email | Traditional <*> To change settings online go to: bird mites/join ( ID required) <*> To change settings via email: bird mites-digest bird mites-fullfeatured <*> To unsubscribe from this group, send an email to: bird mites-unsubscribe <*> Your use of Groups is subject to: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 Jess- No! God I hope not. You are probably in early stage. $5-700 for first doctor visit, $200 for igenix test. Follow up appt are between $2-300 and are every 3-5 months, some will give phone appts. Medication prices are all over the place. Do it right the first time and you won't be in my place, I'm unable to work and 2 yrs into this. If I had started treatment when I just had the fibers it would be a different story. AaOn Mar 21, 2012, at 8:59 PM, jessnyc <helpnynow@...> wrote: Thank you, Aandraya, how much do you think I should be spending just to get rid of this, including doctors, testing and meds? Over $20,000? On 3/21/2012 7:54 PM, Aandraya wrote: Jess- Chicago 25 years, just moved to Minneapolis a year ago due to this illness. Had to stop working. Treat it now and you'll be good to go. Aa On Mar 21, 2012, at 8:42 PM, jessnyc <helpnynow@...> wrote: No kidding, Aandraya, I'm in Condesa! Few blocks from Roma, pretty cool area, isn't it? Where do you live now? Jess On 3/21/2012 7:39 PM, Aandraya wrote: Jess- Where in Mexico DF do you live? I used to live in Colonia Roma. Hope you're doing well. Aa On Mar 21, 2012, at 8:35 PM, jessnyc <helpnynow@...> wrote: Thank you, , I appreciate so much your concern. Yes, everybody is fine. Most of my family lives a couple of hours away from Mexico City and the seismic area, so they didn't feel anything. I live in Mexico City and I definitely felt everything, made me dizzy! ...but nothing major happened around me, just a few buildings lost their windows and stuff like that, but no victims around my area. Thank you for thinking about me :-) Jess On 3/21/2012 7:29 PM, Goldstein@... wrote: Jess, Did your family come out okay after that terrible earthquake? I was thinking about you and your family... I know no one was killed, but so many lost homes. Very horrible. So sorry too. From: "jessnyc" <helpnynow@...> bird mites Sent: Tuesday, March 20, 2012 4:57:50 PM Subject: Re: So the fibers survive coconut oil? Thank you, Aandraya. Do you think I could treat myself without going to a doctor? Like, getting the Igenex testing, and then getting the medications you used? How did you know when to stop the treatment, did you get tested continuously? Do you know for a fact that you're fully recovered and that you don't have and left over infection that could begin growing slowly again? I don't think I could afford expensive treatment right now, but I might be able to afford the Igenex testing and the meds alone, I just wonder if that would be enough. I don't think I have any neurological symptoms, and the fiber problem is not as severe as it used to be, although it is still there, but that's the only symptom I have, the fibers. Thanks a lot for the information. Jess On 3/20/2012 2:57 PM, Aandraya wrote: Jess- the doctors treat them for Lyme and coinfections because they all have it. I personally believe that all Lyme patients who have morgellons type symptoms also have severe bartonella(passed by ticks and insects along with Lyme babesia) Coinfections are microbes that are passed from the same tick or insect- the most common and debilitating are bartonella- bacterial, and babesia- protozoal, sister to malaria. I had both. Lyme is borrelia- a spiral shaped bacteria. Aa On Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...> wrote: Thank you, Aandraya. Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge? Thanks, Jess On 3/20/2012 12:16 AM, Aandraya wrote: You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote: Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote: There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 9:50:47 PM Subject: Re: So the fibers survive coconut oil? It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote: Jess lives in Mexico. Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Links <*> To visit your group on the web, go to: bird mites/ <*> Your email settings: Individual Email | Traditional <*> To change settings online go to: bird mites/join ( ID required) <*> To change settings via email: bird mites-digest bird mites-fullfeatured <*> To unsubscribe from this group, send an email to: bird mites-unsubscribe <*> Your use of Groups is subject to: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 I'm sending hugs big time...From: "jessnyc" <helpnynow@...>bird mites Sent: Wednesday, March 21, 2012 6:35:16 PMSubject: Re: So the fibers survive coconut oil? Thank you, , I appreciate so much your concern. Yes, everybody is fine. Most of my family lives a couple of hours away from Mexico City and the seismic area, so they didn't feel anything. I live in Mexico City and I definitely felt everything, made me dizzy! ...but nothing major happened around me, just a few buildings lost their windows and stuff like that, but no victims around my area. Thank you for thinking about me :-) Jess On 3/21/2012 7:29 PM, Goldstein@... wrote: Jess, Did your family come out okay after that terrible earthquake? I was thinking about you and your family... I know no one was killed, but so many lost homes. Very horrible. So sorry too. From: "jessnyc" <helpnynow@...> bird mites Sent: Tuesday, March 20, 2012 4:57:50 PM Subject: Re: So the fibers survive coconut oil? Thank you, Aandraya. Do you think I could treat myself without going to a doctor? Like, getting the Igenex testing, and then getting the medications you used? How did you know when to stop the treatment, did you get tested continuously? Do you know for a fact that you're fully recovered and that you don't have and left over infection that could begin growing slowly again? I don't think I could afford expensive treatment right now, but I might be able to afford the Igenex testing and the meds alone, I just wonder if that would be enough. I don't think I have any neurological symptoms, and the fiber problem is not as severe as it used to be, although it is still there, but that's the only symptom I have, the fibers. Thanks a lot for the information. Jess On 3/20/2012 2:57 PM, Aandraya wrote: Jess- the doctors treat them for Lyme and coinfections because they all have it. I personally believe that all Lyme patients who have morgellons type symptoms also have severe bartonella(passed by ticks and insects along with Lyme babesia) Coinfections are microbes that are passed from the same tick or insect- the most common and debilitating are bartonella- bacterial, and babesia- protozoal, sister to malaria. I had both. Lyme is borrelia- a spiral shaped bacteria. Aa On Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...> wrote: Thank you, Aandraya. Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge? Thanks, Jess On 3/20/2012 12:16 AM, Aandraya wrote: You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote: Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote: There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 9:50:47 PM Subject: Re: So the fibers survive coconut oil? It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote: Jess lives in Mexico. Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Links <*> To visit your group on the web, go to: bird mites/ <*> Your email settings: Individual Email | Traditional <*> To change settings online go to: bird mites/join ( ID required) <*> To change settings via email: bird mites-digest bird mites-fullfeatured <*> To unsubscribe from this group, send an email to: bird mites-unsubscribe <*> Your use of Groups is subject to: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 Jess,My doctor in CA charges about $450 for first appointment and a half hour is $200. She will do phone follow ups which are about every 3 months. IGeneX is maybe 20 minutes away from my doctor so we just drove right over there to get our blood drawn. If you have the money maybe a doctor in California would work. I don't know which LLMDs are the best... my LLMD works with me. She is not intimidated by the idea of bird mites one single bit. She has seen others who have had bird mites.From: "Aandraya" <aandraya@...>bird mites Sent: Wednesday, March 21, 2012 7:25:53 PMSubject: Re: So the fibers survive coconut oil? Jess- No! God I hope not. You are probably in early stage. $5-700 for first doctor visit, $200 for igenix test. Follow up appt are between $2-300 and are every 3-5 months, some will give phone appts. Medication prices are all over the place. Do it right the first time and you won't be in my place, I'm unable to work and 2 yrs into this. If I had started treatment when I just had the fibers it would be a different story. AaOn Mar 21, 2012, at 8:59 PM, jessnyc <helpnynow@...> wrote: Thank you, Aandraya, how much do you think I should be spending just to get rid of this, including doctors, testing and meds? Over $20,000? On 3/21/2012 7:54 PM, Aandraya wrote: Jess- Chicago 25 years, just moved to Minneapolis a year ago due to this illness. Had to stop working. Treat it now and you'll be good to go. Aa On Mar 21, 2012, at 8:42 PM, jessnyc <helpnynow@...> wrote: No kidding, Aandraya, I'm in Condesa! Few blocks from Roma, pretty cool area, isn't it? Where do you live now? Jess On 3/21/2012 7:39 PM, Aandraya wrote: Jess- Where in Mexico DF do you live? I used to live in Colonia Roma. Hope you're doing well. Aa On Mar 21, 2012, at 8:35 PM, jessnyc <helpnynow@...> wrote: Thank you, , I appreciate so much your concern. Yes, everybody is fine. Most of my family lives a couple of hours away from Mexico City and the seismic area, so they didn't feel anything. I live in Mexico City and I definitely felt everything, made me dizzy! ...but nothing major happened around me, just a few buildings lost their windows and stuff like that, but no victims around my area. Thank you for thinking about me :-) Jess On 3/21/2012 7:29 PM, Goldstein@... wrote: Jess, Did your family come out okay after that terrible earthquake? I was thinking about you and your family... I know no one was killed, but so many lost homes. Very horrible. So sorry too. From: "jessnyc" <helpnynow@...> bird mites Sent: Tuesday, March 20, 2012 4:57:50 PM Subject: Re: So the fibers survive coconut oil? Thank you, Aandraya. Do you think I could treat myself without going to a doctor? Like, getting the Igenex testing, and then getting the medications you used? How did you know when to stop the treatment, did you get tested continuously? Do you know for a fact that you're fully recovered and that you don't have and left over infection that could begin growing slowly again? I don't think I could afford expensive treatment right now, but I might be able to afford the Igenex testing and the meds alone, I just wonder if that would be enough. I don't think I have any neurological symptoms, and the fiber problem is not as severe as it used to be, although it is still there, but that's the only symptom I have, the fibers. Thanks a lot for the information. Jess On 3/20/2012 2:57 PM, Aandraya wrote: Jess- the doctors treat them for Lyme and coinfections because they all have it. I personally believe that all Lyme patients who have morgellons type symptoms also have severe bartonella(passed by ticks and insects along with Lyme babesia) Coinfections are microbes that are passed from the same tick or insect- the most common and debilitating are bartonella- bacterial, and babesia- protozoal, sister to malaria. I had both. Lyme is borrelia- a spiral shaped bacteria. Aa On Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...> wrote: Thank you, Aandraya. Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge? Thanks, Jess On 3/20/2012 12:16 AM, Aandraya wrote: You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote: Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote: There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 9:50:47 PM Subject: Re: So the fibers survive coconut oil? It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote: Jess lives in Mexico. Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Links <*> To visit your group on the web, go to: bird mites/ <*> Your email settings: Individual Email | Traditional <*> To change settings online go to: bird mites/join ( ID required) <*> To change settings via email: bird mites-digest bird mites-fullfeatured <*> To unsubscribe from this group, send an email to: bird mites-unsubscribe <*> Your use of Groups is subject to: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 Hi , Thank you for that information, the only thing that worries me if that even after spending that money, you still have the fibers. Could your doctor not be doing the right thing? What did your IGenex test say? Thank you, Jess On 3/21/2012 10:41 PM, Goldstein@... wrote:  Jess, My doctor in CA charges about $450 for first appointment and a half hour is $200.  She will do phone follow ups which are about every 3 months.  IGeneX is maybe 20 minutes away from my doctor so we just drove right over there to get our blood drawn.  If you have the money maybe a doctor in California would work.  I don't know which LLMDs are the best... my LLMD works with me.  She is not intimidated by the idea of bird mites one single bit.  She has seen others who have had bird mites. From: "Aandraya" <aandraya@...> bird mites Sent: Wednesday, March 21, 2012 7:25:53 PM Subject: Re: So the fibers survive coconut oil? Jess- No! God I hope not.  You are probably in early stage.  $5-700 for first doctor visit, $200 for igenix test.  Follow up appt are between  $2-300 and are every 3-5 months, some will give phone appts.  Medication prices are all over the place.  Do it right the first time and you won't be in my place, I'm unable to work and 2 yrs into this.  If I had started treatment when I just had the fibers it would be a different story. Aa On Mar 21, 2012, at 8:59 PM, jessnyc <helpnynow@...> wrote:  Thank you, Aandraya, how much do you think I should be spending just to get rid of this, including doctors, testing and meds? Over $20,000? On 3/21/2012 7:54 PM, Aandraya wrote:  Jess- Chicago 25 years, just moved to Minneapolis a year ago due to this illness.  Had to stop working.  Treat it now and you'll be good to go. Aa On Mar 21, 2012, at 8:42 PM, jessnyc <helpnynow@...> wrote:  No kidding, Aandraya, I'm in Condesa! Few blocks from Roma, pretty cool area, isn't it? Where do you live now? Jess On 3/21/2012 7:39 PM, Aandraya wrote:  Jess- Where in Mexico DF do you live?  I used to live in Colonia Roma.  Hope you're doing well. Aa On Mar 21, 2012, at 8:35 PM, jessnyc <helpnynow@...> wrote:  Thank you, , I appreciate so much your concern. Yes, everybody is fine. Most of my family lives a couple of hours away from Mexico City and the seismic area, so they didn't feel anything. I live in Mexico City and I definitely felt everything, made me dizzy! ...but nothing major happened around me, just a few buildings lost their windows and stuff like that, but no victims around my area. Thank you for thinking about me :-) Jess On 3/21/2012 7:29 PM, Goldstein@... wrote:  Jess, Did your family come out okay after that terrible earthquake?  I was thinking about you and your family... I know no one was killed, but so many lost homes.  Very horrible.  So sorry too. From: "jessnyc" <helpnynow@...> bird mites Sent: Tuesday, March 20, 2012 4:57:50 PM Subject: Re: So the fibers survive coconut oil? Thank you, Aandraya. Do you think I could treat myself without going to a doctor? Like, getting the Igenex testing, and then getting the medications you used? How did you know when to stop the treatment, did you get tested continuously? Do you know for a fact that you're fully recovered and that you don't have and left over infection that could begin growing slowly again? I don't think I could afford expensive treatment right now, but I might be able to afford the Igenex testing and the meds alone, I just wonder if that would be enough. I don't think I have any neurological symptoms, and the fiber problem is not as severe as it used to be, although it is still there, but that's the only symptom I have, the fibers. Thanks a lot for the information. Jess On 3/20/2012 2:57 PM, Aandraya wrote:  Jess- the doctors treat them for Lyme and coinfections because they all have it. I personally believe that all Lyme patients who have morgellons type symptoms also have severe bartonella(passed by ticks and insects along with Lyme babesia) Coinfections are microbes that are passed from the same tick or insect- the most common and debilitating are bartonella- bacterial, and babesia- protozoal, sister to malaria.  I had both.  Lyme is borrelia- a spiral shaped bacteria. Aa On Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...> wrote:  Thank you, Aandraya. Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge? Thanks, Jess On 3/20/2012 12:16 AM, Aandraya wrote:  You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron.  I know someone who saw Cameron and she loves him.  He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote:  Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote:  There must be someone who treats Lyme disease there in Mexico.  I'll see if anyone I know might know of someone too.  But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 9:50:47 PM Subject: Re: So the fibers survive coconut oil? It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote:  Jess lives in Mexico.  Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with.  If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin.  But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds.  Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients.  How long have you had this?  If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote:  Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote:  100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms.  Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above.  You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote:  Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote:  Just to add to what said, I found no quick fix for the morgellons stuff.  It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote:  Jess, I have a FAR infrared "Rainbow" which I use often.  It does not seem to do much to clear out the fibers.  Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso.  It does warm the body in a way I've never experienced before... raises the body temperature.  After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya.  She knows a lot about this and has gotten rid of the fibers.  She has done far more medications for Lyme and co-infections than anyone I know.  She also knows more about Lyme and co-infections than anyone I know.  I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you.  I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more.  I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears.  I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin.  The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity.  I have stopped gettring the little papules and pimples that I had been getting.  What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up.  I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe?  She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$.  She did not get help until she started antibiotics.  If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote:  Hi Jess, It is really good to hear from you.  I've thought about you often.  I'm in the same boat with the similar questions about fibers.  I wonder if there is any way to get rid of the fibers permanently.  I feel them floating and landing on my hands at times.  I don't know of anyone who has had fibers that actually got rid of them.  Many on this site did not have fibers, but had mites only.  Their exposure to mites did not bring fibers.  Mites for sure can be killed, although with tremendous difficulty.  I don't know what makes the fibers, but they are part of what defines Morgellons.  So many people who had mites end up with the fibers.  Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive.  I'm a member of the group that believes they are living, although don't have any idea how that could be.  Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are.  That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one.  When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things.  I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months.  I stored them in a special box designed for slides.  The fibers themselves changed over time from month to month (some did, some did not).  Some developed what looked like a pin head.  I never saw any of them move.  I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now.  I think there are things that disrupt the energy of the fibers.  Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully.  They also seem to reproduce in homes.  Some may be programmed to carry diseases.  I did not find coconut oil helpful on the body.  When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it.  So no, it isn't just you Jess.  It never was just you.  From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Links <*> To visit your group on the web, go to:    bird mites/ <*> Your email settings:    Individual Email | Traditional <*> To change settings online go to:    bird mites/join    ( ID required) <*> To change settings via email:    bird mites-digest    bird mites-fullfeatured <*> To unsubscribe from this group, send an email to:    bird mites-unsubscribe <*> Your use of Groups is subject to:    Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 I agree... My doc told me she could get me 80% of the way and she has done that. And more, but the Lyme is a ball buster to say the least and I have a complex case. I also believe by the time you are producing fibers and have Morgellons your case of Lyme is more complicated. Much much more. My doctor told me my situation is unique. Aandraya has probably had the best Lyme doctors and she is very brave. She has been through so much and I don't know if I am strong enough physically to go all the way, although I would like to, just don't know physically if I am able. I think Aa can go all the way and will be totally healed at one point. I'm a lot older and have had cancer 13 years ago... so much has been compromised. BUT (great emphasis) I KNOW that if you start the journey with treatment, you do kick back the infection and things improve. So even if you can't afford or don't want to do the antibiotics for years you will be helped by what you do. This is not to say it isn't very difficult, it is. I had to stop the abx for a while. Will resume tx soon. That is a fact.From: "jessnyc" <helpnynow@...>bird mites Sent: Wednesday, March 21, 2012 9:43:16 PMSubject: Re: So the fibers survive coconut oil? Hi , Thank you for that information, the only thing that worries me if that even after spending that money, you still have the fibers. Could your doctor not be doing the right thing? What did your IGenex test say? Thank you, Jess On 3/21/2012 10:41 PM, Goldstein@... wrote: Jess, My doctor in CA charges about $450 for first appointment and a half hour is $200. She will do phone follow ups which are about every 3 months. IGeneX is maybe 20 minutes away from my doctor so we just drove right over there to get our blood drawn. If you have the money maybe a doctor in California would work. I don't know which LLMDs are the best... my LLMD works with me. She is not intimidated by the idea of bird mites one single bit. She has seen others who have had bird mites. From: "Aandraya" <aandraya@...> bird mites Sent: Wednesday, March 21, 2012 7:25:53 PM Subject: Re: So the fibers survive coconut oil? Jess- No! God I hope not. You are probably in early stage. $5-700 for first doctor visit, $200 for igenix test. Follow up appt are between $2-300 and are every 3-5 months, some will give phone appts. Medication prices are all over the place. Do it right the first time and you won't be in my place, I'm unable to work and 2 yrs into this. If I had started treatment when I just had the fibers it would be a different story. Aa On Mar 21, 2012, at 8:59 PM, jessnyc <helpnynow@...> wrote: Thank you, Aandraya, how much do you think I should be spending just to get rid of this, including doctors, testing and meds? Over $20,000? On 3/21/2012 7:54 PM, Aandraya wrote: Jess- Chicago 25 years, just moved to Minneapolis a year ago due to this illness. Had to stop working. Treat it now and you'll be good to go. Aa On Mar 21, 2012, at 8:42 PM, jessnyc <helpnynow@...> wrote: No kidding, Aandraya, I'm in Condesa! Few blocks from Roma, pretty cool area, isn't it? Where do you live now? Jess On 3/21/2012 7:39 PM, Aandraya wrote: Jess- Where in Mexico DF do you live? I used to live in Colonia Roma. Hope you're doing well. Aa On Mar 21, 2012, at 8:35 PM, jessnyc <helpnynow@...> wrote: Thank you, , I appreciate so much your concern. Yes, everybody is fine. Most of my family lives a couple of hours away from Mexico City and the seismic area, so they didn't feel anything. I live in Mexico City and I definitely felt everything, made me dizzy! ...but nothing major happened around me, just a few buildings lost their windows and stuff like that, but no victims around my area. Thank you for thinking about me :-) Jess On 3/21/2012 7:29 PM, Goldstein@... wrote: Jess, Did your family come out okay after that terrible earthquake? I was thinking about you and your family... I know no one was killed, but so many lost homes. Very horrible. So sorry too. From: "jessnyc" <helpnynow@...> bird mites Sent: Tuesday, March 20, 2012 4:57:50 PM Subject: Re: So the fibers survive coconut oil? Thank you, Aandraya. Do you think I could treat myself without going to a doctor? Like, getting the Igenex testing, and then getting the medications you used? How did you know when to stop the treatment, did you get tested continuously? Do you know for a fact that you're fully recovered and that you don't have and left over infection that could begin growing slowly again? I don't think I could afford expensive treatment right now, but I might be able to afford the Igenex testing and the meds alone, I just wonder if that would be enough. I don't think I have any neurological symptoms, and the fiber problem is not as severe as it used to be, although it is still there, but that's the only symptom I have, the fibers. Thanks a lot for the information. Jess On 3/20/2012 2:57 PM, Aandraya wrote: Jess- the doctors treat them for Lyme and coinfections because they all have it. I personally believe that all Lyme patients who have morgellons type symptoms also have severe bartonella(passed by ticks and insects along with Lyme babesia) Coinfections are microbes that are passed from the same tick or insect- the most common and debilitating are bartonella- bacterial, and babesia- protozoal, sister to malaria. I had both. Lyme is borrelia- a spiral shaped bacteria. Aa On Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...> wrote: Thank you, Aandraya. Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge? Thanks, Jess On 3/20/2012 12:16 AM, Aandraya wrote: You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote: Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote: There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 9:50:47 PM Subject: Re: So the fibers survive coconut oil? It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote: Jess lives in Mexico. Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Links <*> To visit your group on the web, go to: bird mites/ <*> Your email settings: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 Thank you, . Does your doctor admit you have "Morgellons" or does she call it something else? How did your Igenex test come out? Thank you, Jess On 3/21/2012 10:52 PM, Goldstein@... wrote:  I agree... My doc told me she could get me 80% of the way and she has done that.  And more, but the Lyme is a ball buster to say the least and I have a complex case.  I also believe by the time you are producing fibers and have Morgellons your case of Lyme is more complicated.  Much much more.  My doctor told me my situation is unique.  Aandraya has probably had the best Lyme doctors and she is very brave.  She has been through so much and I don't know if I am strong enough physically to go all the way, although I would like to, just don't know physically if I am able.  I think Aa can go all the way and will be totally healed at one point.  I'm a lot older and have had cancer 13 years ago... so much has been compromised.  BUT (great emphasis) I KNOW that if you start the journey with treatment, you do kick back the infection and things improve.  So even if you can't afford or don't want to do the antibiotics for years you will be helped by what you do.  This is not to say it isn't very difficult, it is.  I had to stop the abx for a while.  Will resume tx soon.  That is a fact. From: "jessnyc" <helpnynow@...> bird mites Sent: Wednesday, March 21, 2012 9:43:16 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for that information, the only thing that worries me if that even after spending that money, you still have the fibers. Could your doctor not be doing the right thing? What did your IGenex test say? Thank you, Jess On 3/21/2012 10:41 PM, Goldstein@... wrote:  Jess, My doctor in CA charges about $450 for first appointment and a half hour is $200.  She will do phone follow ups which are about every 3 months.  IGeneX is maybe 20 minutes away from my doctor so we just drove right over there to get our blood drawn.  If you have the money maybe a doctor in California would work.  I don't know which LLMDs are the best... my LLMD works with me.  She is not intimidated by the idea of bird mites one single bit.  She has seen others who have had bird mites. From: "Aandraya" <aandraya@...> bird mites Sent: Wednesday, March 21, 2012 7:25:53 PM Subject: Re: So the fibers survive coconut oil? Jess- No! God I hope not.  You are probably in early stage.  $5-700 for first doctor visit, $200 for igenix test.  Follow up appt are between  $2-300 and are every 3-5 months, some will give phone appts.  Medication prices are all over the place.  Do it right the first time and you won't be in my place, I'm unable to work and 2 yrs into this.  If I had started treatment when I just had the fibers it would be a different story. Aa On Mar 21, 2012, at 8:59 PM, jessnyc <helpnynow@...> wrote:  Thank you, Aandraya, how much do you think I should be spending just to get rid of this, including doctors, testing and meds? Over $20,000? On 3/21/2012 7:54 PM, Aandraya wrote:  Jess- Chicago 25 years, just moved to Minneapolis a year ago due to this illness.  Had to stop working.  Treat it now and you'll be good to go. Aa On Mar 21, 2012, at 8:42 PM, jessnyc <helpnynow@...> wrote:  No kidding, Aandraya, I'm in Condesa! Few blocks from Roma, pretty cool area, isn't it? Where do you live now? Jess On 3/21/2012 7:39 PM, Aandraya wrote:  Jess- Where in Mexico DF do you live?  I used to live in Colonia Roma.  Hope you're doing well. Aa On Mar 21, 2012, at 8:35 PM, jessnyc <helpnynow@...> wrote:  Thank you, , I appreciate so much your concern. Yes, everybody is fine. Most of my family lives a couple of hours away from Mexico City and the seismic area, so they didn't feel anything. I live in Mexico City and I definitely felt everything, made me dizzy! ...but nothing major happened around me, just a few buildings lost their windows and stuff like that, but no victims around my area. Thank you for thinking about me :-) Jess On 3/21/2012 7:29 PM, Goldstein@... wrote:  Jess, Did your family come out okay after that terrible earthquake?  I was thinking about you and your family... I know no one was killed, but so many lost homes.  Very horrible.  So sorry too. From: "jessnyc" <helpnynow@...> bird mites Sent: Tuesday, March 20, 2012 4:57:50 PM Subject: Re: So the fibers survive coconut oil? Thank you, Aandraya. Do you think I could treat myself without going to a doctor? Like, getting the Igenex testing, and then getting the medications you used? How did you know when to stop the treatment, did you get tested continuously? Do you know for a fact that you're fully recovered and that you don't have and left over infection that could begin growing slowly again? I don't think I could afford expensive treatment right now, but I might be able to afford the Igenex testing and the meds alone, I just wonder if that would be enough. I don't think I have any neurological symptoms, and the fiber problem is not as severe as it used to be, although it is still there, but that's the only symptom I have, the fibers. Thanks a lot for the information. Jess On 3/20/2012 2:57 PM, Aandraya wrote:  Jess- the doctors treat them for Lyme and coinfections because they all have it. I personally believe that all Lyme patients who have morgellons type symptoms also have severe bartonella(passed by ticks and insects along with Lyme babesia) Coinfections are microbes that are passed from the same tick or insect- the most common and debilitating are bartonella- bacterial, and babesia- protozoal, sister to malaria.  I had both.  Lyme is borrelia- a spiral shaped bacteria. Aa On Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...> wrote:  Thank you, Aandraya. Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge? Thanks, Jess On 3/20/2012 12:16 AM, Aandraya wrote:  You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron.  I know someone who saw Cameron and she loves him.  He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote:  Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote:  There must be someone who treats Lyme disease there in Mexico.  I'll see if anyone I know might know of someone too.  But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 9:50:47 PM Subject: Re: So the fibers survive coconut oil? It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote:  Jess lives in Mexico.  Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with.  If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin.  But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds.  Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients.  How long have you had this?  If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote:  Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote:  100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms.  Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above.  You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote:  Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote:  Just to add to what said, I found no quick fix for the morgellons stuff.  It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote:  Jess, I have a FAR infrared "Rainbow" which I use often.  It does not seem to do much to clear out the fibers.  Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso.  It does warm the body in a way I've never experienced before... raises the body temperature.  After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya.  She knows a lot about this and has gotten rid of the fibers.  She has done far more medications for Lyme and co-infections than anyone I know.  She also knows more about Lyme and co-infections than anyone I know.  I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you.  I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more.  I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears.  I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin.  The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity.  I have stopped gettring the little papules and pimples that I had been getting.  What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up.  I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe?  She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$.  She did not get help until she started antibiotics.  If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote:  Hi Jess, It is really good to hear from you.  I've thought about you often.  I'm in the same boat with the similar questions about fibers.  I wonder if there is any way to get rid of the fibers permanently.  I feel them floating and landing on my hands at times.  I don't know of anyone who has had fibers that actually got rid of them.  Many on this site did not have fibers, but had mites only.  Their exposure to mites did not bring fibers.  Mites for sure can be killed, although with tremendous difficulty.  I don't know what makes the fibers, but they are part of what defines Morgellons.  So many people who had mites end up with the fibers.  Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive.  I'm a member of the group that believes they are living, although don't have any idea how that could be.  Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are.  That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one.  When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things.  I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months.  I stored them in a special box designed for slides.  The fibers themselves changed over time from month to month (some did, some did not).  Some developed what looked like a pin head.  I never saw any of them move.  I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now.  I think there are things that disrupt the energy of the fibers.  Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully.  They also seem to reproduce in homes.  Some may be programmed to carry diseases.  I did not find coconut oil helpful on the body.  When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it.  So no, it isn't just you Jess.  It never was just you.  From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Links <*> To visit your group on the web, go to:    bird mites/ <*> Your email settings: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 She definitely calls it Morgellons. When I first started with her 3 years ago I sent her pictures for my file of all my fibers. I have fewer fibers now (I think). I don't see near as many or as often. She KNOWS Morgellons is largely Lyme Disease and cos. She also thinks plant matter is growing in us as a result of GMOs and pesticide use, herbicides, etc.From: "jessnyc" <helpnynow@...>bird mites Sent: Wednesday, March 21, 2012 9:54:57 PMSubject: Re: So the fibers survive coconut oil? Thank you, . Does your doctor admit you have "Morgellons" or does she call it something else? How did your Igenex test come out? Thank you, Jess On 3/21/2012 10:52 PM, Goldstein@... wrote: I agree... My doc told me she could get me 80% of the way and she has done that. And more, but the Lyme is a ball buster to say the least and I have a complex case. I also believe by the time you are producing fibers and have Morgellons your case of Lyme is more complicated. Much much more. My doctor told me my situation is unique. Aandraya has probably had the best Lyme doctors and she is very brave. She has been through so much and I don't know if I am strong enough physically to go all the way, although I would like to, just don't know physically if I am able. I think Aa can go all the way and will be totally healed at one point. I'm a lot older and have had cancer 13 years ago... so much has been compromised. BUT (great emphasis) I KNOW that if you start the journey with treatment, you do kick back the infection and things improve. So even if you can't afford or don't want to do the antibiotics for years you will be helped by what you do. This is not to say it isn't very difficult, it is. I had to stop the abx for a while. Will resume tx soon. That is a fact. From: "jessnyc" <helpnynow@...> bird mites Sent: Wednesday, March 21, 2012 9:43:16 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for that information, the only thing that worries me if that even after spending that money, you still have the fibers. Could your doctor not be doing the right thing? What did your IGenex test say? Thank you, Jess On 3/21/2012 10:41 PM, Goldstein@... wrote: Jess, My doctor in CA charges about $450 for first appointment and a half hour is $200. She will do phone follow ups which are about every 3 months. IGeneX is maybe 20 minutes away from my doctor so we just drove right over there to get our blood drawn. If you have the money maybe a doctor in California would work. I don't know which LLMDs are the best... my LLMD works with me. She is not intimidated by the idea of bird mites one single bit. She has seen others who have had bird mites. From: "Aandraya" <aandraya@...> bird mites Sent: Wednesday, March 21, 2012 7:25:53 PM Subject: Re: So the fibers survive coconut oil? Jess- No! God I hope not. You are probably in early stage. $5-700 for first doctor visit, $200 for igenix test. Follow up appt are between $2-300 and are every 3-5 months, some will give phone appts. Medication prices are all over the place. Do it right the first time and you won't be in my place, I'm unable to work and 2 yrs into this. If I had started treatment when I just had the fibers it would be a different story. Aa On Mar 21, 2012, at 8:59 PM, jessnyc <helpnynow@...> wrote: Thank you, Aandraya, how much do you think I should be spending just to get rid of this, including doctors, testing and meds? Over $20,000? On 3/21/2012 7:54 PM, Aandraya wrote: Jess- Chicago 25 years, just moved to Minneapolis a year ago due to this illness. Had to stop working. Treat it now and you'll be good to go. Aa On Mar 21, 2012, at 8:42 PM, jessnyc <helpnynow@...> wrote: No kidding, Aandraya, I'm in Condesa! Few blocks from Roma, pretty cool area, isn't it? Where do you live now? Jess On 3/21/2012 7:39 PM, Aandraya wrote: Jess- Where in Mexico DF do you live? I used to live in Colonia Roma. Hope you're doing well. Aa On Mar 21, 2012, at 8:35 PM, jessnyc <helpnynow@...> wrote: Thank you, , I appreciate so much your concern. Yes, everybody is fine. Most of my family lives a couple of hours away from Mexico City and the seismic area, so they didn't feel anything. I live in Mexico City and I definitely felt everything, made me dizzy! ...but nothing major happened around me, just a few buildings lost their windows and stuff like that, but no victims around my area. Thank you for thinking about me :-) Jess On 3/21/2012 7:29 PM, Goldstein@... wrote: Jess, Did your family come out okay after that terrible earthquake? I was thinking about you and your family... I know no one was killed, but so many lost homes. Very horrible. So sorry too. From: "jessnyc" <helpnynow@...> bird mites Sent: Tuesday, March 20, 2012 4:57:50 PM Subject: Re: So the fibers survive coconut oil? Thank you, Aandraya. Do you think I could treat myself without going to a doctor? Like, getting the Igenex testing, and then getting the medications you used? How did you know when to stop the treatment, did you get tested continuously? Do you know for a fact that you're fully recovered and that you don't have and left over infection that could begin growing slowly again? I don't think I could afford expensive treatment right now, but I might be able to afford the Igenex testing and the meds alone, I just wonder if that would be enough. I don't think I have any neurological symptoms, and the fiber problem is not as severe as it used to be, although it is still there, but that's the only symptom I have, the fibers. Thanks a lot for the information. Jess On 3/20/2012 2:57 PM, Aandraya wrote: Jess- the doctors treat them for Lyme and coinfections because they all have it. I personally believe that all Lyme patients who have morgellons type symptoms also have severe bartonella(passed by ticks and insects along with Lyme babesia) Coinfections are microbes that are passed from the same tick or insect- the most common and debilitating are bartonella- bacterial, and babesia- protozoal, sister to malaria. I had both. Lyme is borrelia- a spiral shaped bacteria. Aa On Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...> wrote: Thank you, Aandraya. Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge? Thanks, Jess On 3/20/2012 12:16 AM, Aandraya wrote: You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote: Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote: There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 9:50:47 PM Subject: Re: So the fibers survive coconut oil? It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote: Jess lives in Mexico. Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. 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Guest guest Posted March 22, 2012 Report Share Posted March 22, 2012 I can't wait ... good luck for your experiment !! Von: Benton <sarahbenton48@...>An: "bird mites " <bird mites > Gesendet: 22:12 Mittwoch, 21.März 2012Betreff: Re: So the fibers survive coconut oil? Aggie, give me a little time to answer you. I'm in the middle of a discovery but don't want to comment until the experiment is over. You may be on to something. Love and light, From: Aggi Assmann <aggi_assmann@...>"bird mites " <bird mites > Sent: Wednesday, March 21, 2012 10:20 AMSubject: Re: So the fibers survive coconut oil? Guys, just been reading something really interesting on a website about Lyme disease. It says that the borrelia has a strong affinity to collagen fibres, because wrapped up in these fibres it protects them from being attacked by the immune system of the body. So I couldn't help, but wonder if - it is the borrelia floating around, docking fibres and this is what we see floating through the air (we all seem to have a higher presence of floaters in the air) - the fuzz balls many of us here have reported of are something like the 2nd stage of accumulated fibres, protecting the borrelia embedded deep inside - the mites or whatever parasite biting us transporting the fibres including the borrelia into our system and for this simple reason they just love our couches, mattresses, clothes and carpets best ? Could this all be the Lyme/Morgellon correlation, or is it totally naive thinking that way ? Comments please ! ;-) Von: jessnyc <helpnynow@...>An: bird mites Gesendet: 7:37 Dienstag, 20.März 2012Betreff: Re: So the fibers survive coconut oil? Thank you, Aandraya.Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge?Thanks,JessOn 3/20/2012 12:16 AM, Aandraya wrote: You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote: Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote: There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 9:50:47 PMSubject: Re: So the fibers survive coconut oil?It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks,JessOn 3/19/2012 10:47 PM, Goldstein@... wrote: Jess lives in Mexico. Do you know of anyone there? From: "Aandraya" <aandraya@...>bird mites Sent: Monday, March 19, 2012 7:27:44 PMSubject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya."Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons?Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely?So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now?Thanks a lot,JessOn 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 5:15:42 PMSubject: Re: So the fibers survive coconut oil?Hi ,Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested.One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny.What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again,JessOn 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...>"Birdmites.org Website" <bird mites >Sent: Monday, March 19, 2012 3:29:50 PMSubject: So the fibers survive coconut oil?I had thought that coconut oil was a remedy for these fibers. I boughtsome and had a small jar next to me at all times.When the oil was in liquid form, I noticed that the fibers somehowmanaged to get in the oil, my little jar had suddenly like 10 or morefibers. After a while I saw they all stuck together, and eventually Ibegan seeing more and more of them.I wonder if they reproduced in the oil and assembled themselvestogether? That's what it looked like to me, my little jar is full ofsome big and some tiny fibers, they're mostly blue red or black, someare also white and hard to see.I guess this shows they don't die with coconut oil, they thrive andreproduce in it.Jesus, is there anything remedy that actually kills them? I haven'tfound anything that would really kill them.Has anyone had any success with coconut oil? Or is it just me?Jess.------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2012 Report Share Posted March 22, 2012 Happy for you Jess ! You are having so many problems already... Von: "Goldstein@..." <Goldstein@...>An: bird mites Gesendet: 5:19 Donnerstag, 22.März 2012Betreff: Re: So the fibers survive coconut oil? I'm sending hugs big time... From: "jessnyc" <helpnynow@...>bird mites Sent: Wednesday, March 21, 2012 6:35:16 PMSubject: Re: So the fibers survive coconut oil?Thank you, , I appreciate so much your concern. Yes, everybody is fine. Most of my family lives a couple of hours away from Mexico City and the seismic area, so they didn't feel anything. I live in Mexico City and I definitely felt everything, made me dizzy! ...but nothing major happened around me, just a few buildings lost their windows and stuff like that, but no victims around my area.Thank you for thinking about me :-) JessOn 3/21/2012 7:29 PM, Goldstein@... wrote: Jess, Did your family come out okay after that terrible earthquake? I was thinking about you and your family... I know no one was killed, but so many lost homes. Very horrible. So sorry too. From: "jessnyc" <helpnynow@...>bird mites Sent: Tuesday, March 20, 2012 4:57:50 PMSubject: Re: So the fibers survive coconut oil?Thank you, Aandraya.Do you think I could treat myself without going to a doctor? Like, getting the Igenex testing, and then getting the medications you used? How did you know when to stop the treatment, did you get tested continuously? Do you know for a fact that you're fully recovered and that you don't have and left over infection that could begin growing slowly again? I don't think I could afford expensive treatment right now, but I might be able to afford the Igenex testing and the meds alone, I just wonder if that would be enough.I don't think I have any neurological symptoms, and the fiber problem is not as severe as it used to be, although it is still there, but that's the only symptom I have, the fibers. Thanks a lot for the information.JessOn 3/20/2012 2:57 PM, Aandraya wrote: Jess- the doctors treat them for Lyme and coinfections because they all have it. I personally believe that all Lyme patients who have morgellons type symptoms also have severe bartonella(passed by ticks and insects along with Lyme babesia) Coinfections are microbes that are passed from the same tick or insect- the most common and debilitating are bartonella- bacterial, and babesia- protozoal, sister to malaria. I had both. Lyme is borrelia- a spiral shaped bacteria. Aa On Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...> wrote: Thank you, Aandraya.Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge?Thanks,JessOn 3/20/2012 12:16 AM, Aandraya wrote: You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote: Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote: There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 9:50:47 PMSubject: Re: So the fibers survive coconut oil?It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks,JessOn 3/19/2012 10:47 PM, Goldstein@... wrote: Jess lives in Mexico. Do you know of anyone there? From: "Aandraya" <aandraya@...>bird mites Sent: Monday, March 19, 2012 7:27:44 PMSubject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya."Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons?Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely?So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now?Thanks a lot,JessOn 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 5:15:42 PMSubject: Re: So the fibers survive coconut oil?Hi ,Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested.One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny.What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again,JessOn 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...>"Birdmites.org Website" <bird mites >Sent: Monday, March 19, 2012 3:29:50 PMSubject: So the fibers survive coconut oil?I had thought that coconut oil was a remedy for these fibers. I boughtsome and had a small jar next to me at all times.When the oil was in liquid form, I noticed that the fibers somehowmanaged to get in the oil, my little jar had suddenly like 10 or morefibers. After a while I saw they all stuck together, and eventually Ibegan seeing more and more of them.I wonder if they reproduced in the oil and assembled themselvestogether? That's what it looked like to me, my little jar is full ofsome big and some tiny fibers, they're mostly blue red or black, someare also white and hard to see.I guess this shows they don't die with coconut oil, they thrive andreproduce in it.Jesus, is there anything remedy that actually kills them? I haven'tfound anything that would really kill them.Has anyone had any success with coconut oil? Or is it just me?Jess.------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2012 Report Share Posted March 22, 2012 - what about Morgellons?AaOn Mar 21, 2012, at 11:41 PM, Goldstein@... wrote: Jess,My doctor in CA charges about $450 for first appointment and a half hour is $200. She will do phone follow ups which are about every 3 months. IGeneX is maybe 20 minutes away from my doctor so we just drove right over there to get our blood drawn. If you have the money maybe a doctor in California would work. I don't know which LLMDs are the best... my LLMD works with me. She is not intimidated by the idea of bird mites one single bit. She has seen others who have had bird mites.From: "Aandraya" <aandraya@...>bird mites Sent: Wednesday, March 21, 2012 7:25:53 PMSubject: Re: So the fibers survive coconut oil? Jess- No! God I hope not. You are probably in early stage. $5-700 for first doctor visit, $200 for igenix test. Follow up appt are between $2-300 and are every 3-5 months, some will give phone appts. Medication prices are all over the place. Do it right the first time and you won't be in my place, I'm unable to work and 2 yrs into this. If I had started treatment when I just had the fibers it would be a different story. AaOn Mar 21, 2012, at 8:59 PM, jessnyc <helpnynow@...> wrote: Thank you, Aandraya, how much do you think I should be spending just to get rid of this, including doctors, testing and meds? Over $20,000? On 3/21/2012 7:54 PM, Aandraya wrote: Jess- Chicago 25 years, just moved to Minneapolis a year ago due to this illness. Had to stop working. Treat it now and you'll be good to go. Aa On Mar 21, 2012, at 8:42 PM, jessnyc <helpnynow@...> wrote: No kidding, Aandraya, I'm in Condesa! Few blocks from Roma, pretty cool area, isn't it? Where do you live now? Jess On 3/21/2012 7:39 PM, Aandraya wrote: Jess- Where in Mexico DF do you live? I used to live in Colonia Roma. Hope you're doing well. Aa On Mar 21, 2012, at 8:35 PM, jessnyc <helpnynow@...> wrote: Thank you, , I appreciate so much your concern. Yes, everybody is fine. Most of my family lives a couple of hours away from Mexico City and the seismic area, so they didn't feel anything. I live in Mexico City and I definitely felt everything, made me dizzy! ...but nothing major happened around me, just a few buildings lost their windows and stuff like that, but no victims around my area. Thank you for thinking about me :-) Jess On 3/21/2012 7:29 PM, Goldstein@... wrote: Jess, Did your family come out okay after that terrible earthquake? I was thinking about you and your family... I know no one was killed, but so many lost homes. Very horrible. So sorry too. From: "jessnyc" <helpnynow@...> bird mites Sent: Tuesday, March 20, 2012 4:57:50 PM Subject: Re: So the fibers survive coconut oil? Thank you, Aandraya. Do you think I could treat myself without going to a doctor? Like, getting the Igenex testing, and then getting the medications you used? How did you know when to stop the treatment, did you get tested continuously? Do you know for a fact that you're fully recovered and that you don't have and left over infection that could begin growing slowly again? I don't think I could afford expensive treatment right now, but I might be able to afford the Igenex testing and the meds alone, I just wonder if that would be enough. I don't think I have any neurological symptoms, and the fiber problem is not as severe as it used to be, although it is still there, but that's the only symptom I have, the fibers. Thanks a lot for the information. Jess On 3/20/2012 2:57 PM, Aandraya wrote: Jess- the doctors treat them for Lyme and coinfections because they all have it. I personally believe that all Lyme patients who have morgellons type symptoms also have severe bartonella(passed by ticks and insects along with Lyme babesia) Coinfections are microbes that are passed from the same tick or insect- the most common and debilitating are bartonella- bacterial, and babesia- protozoal, sister to malaria. I had both. Lyme is borrelia- a spiral shaped bacteria. Aa On Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...> wrote: Thank you, Aandraya. Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge? Thanks, Jess On 3/20/2012 12:16 AM, Aandraya wrote: You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote: Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote: There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 9:50:47 PM Subject: Re: So the fibers survive coconut oil? It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote: Jess lives in Mexico. Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Links <*> To visit your group on the web, go to: bird mites/ <*> Your email settings: Individual Email | Traditional <*> To change settings online go to: bird mites/join ( ID required) <*> To change settings via email: bird mites-digest bird mites-fullfeatured <*> To unsubscribe from this group, send an email to: bird mites-unsubscribe <*> Your use of Groups is subject to: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2012 Report Share Posted March 22, 2012 - I think it's more that your insurance company has been dictating what medications they pay for. I never would have been able to do the treatments I've done had I not had my insurance. They have covered 100% of my scripts. Some of my friends have to pick and choose which meds they use and try to get them in Canada when they're cheaper. I was also lucky to start with Dr. Schaller because he started me on an aggressive treatment when I was clueless about everything. A good doctor is key. My second doctor got me off track and now I've been back on track since October but lost ground for a good year. In May I'm going to DC to see Jemsek to do his program. With severe cases jumping around with meds doesn't work. It takes an organized program. Hindsight is 20/20.AandrayaOn Mar 21, 2012, at 11:52 PM, Goldstein@... wrote: I agree... My doc told me she could get me 80% of the way and she has done that. And more, but the Lyme is a ball buster to say the least and I have a complex case. I also believe by the time you are producing fibers and have Morgellons your case of Lyme is more complicated. Much much more. My doctor told me my situation is unique. Aandraya has probably had the best Lyme doctors and she is very brave. She has been through so much and I don't know if I am strong enough physically to go all the way, although I would like to, just don't know physically if I am able. I think Aa can go all the way and will be totally healed at one point. I'm a lot older and have had cancer 13 years ago... so much has been compromised. BUT (great emphasis) I KNOW that if you start the journey with treatment, you do kick back the infection and things improve. So even if you can't afford or don't want to do the antibiotics for years you will be helped by what you do. This is not to say it isn't very difficult, it is. I had to stop the abx for a while. Will resume tx soon. That is a fact.From: "jessnyc" <helpnynow@...>bird mites Sent: Wednesday, March 21, 2012 9:43:16 PMSubject: Re: So the fibers survive coconut oil? Hi , Thank you for that information, the only thing that worries me if that even after spending that money, you still have the fibers. Could your doctor not be doing the right thing? What did your IGenex test say? Thank you, Jess On 3/21/2012 10:41 PM, Goldstein@... wrote: Jess, My doctor in CA charges about $450 for first appointment and a half hour is $200. She will do phone follow ups which are about every 3 months. IGeneX is maybe 20 minutes away from my doctor so we just drove right over there to get our blood drawn. If you have the money maybe a doctor in California would work. I don't know which LLMDs are the best... my LLMD works with me. She is not intimidated by the idea of bird mites one single bit. She has seen others who have had bird mites. From: "Aandraya" <aandraya@...> bird mites Sent: Wednesday, March 21, 2012 7:25:53 PM Subject: Re: So the fibers survive coconut oil? Jess- No! God I hope not. You are probably in early stage. $5-700 for first doctor visit, $200 for igenix test. Follow up appt are between $2-300 and are every 3-5 months, some will give phone appts. Medication prices are all over the place. Do it right the first time and you won't be in my place, I'm unable to work and 2 yrs into this. If I had started treatment when I just had the fibers it would be a different story. Aa On Mar 21, 2012, at 8:59 PM, jessnyc <helpnynow@...> wrote: Thank you, Aandraya, how much do you think I should be spending just to get rid of this, including doctors, testing and meds? Over $20,000? On 3/21/2012 7:54 PM, Aandraya wrote: Jess- Chicago 25 years, just moved to Minneapolis a year ago due to this illness. Had to stop working. Treat it now and you'll be good to go. Aa On Mar 21, 2012, at 8:42 PM, jessnyc <helpnynow@...> wrote: No kidding, Aandraya, I'm in Condesa! Few blocks from Roma, pretty cool area, isn't it? Where do you live now? Jess On 3/21/2012 7:39 PM, Aandraya wrote: Jess- Where in Mexico DF do you live? I used to live in Colonia Roma. Hope you're doing well. Aa On Mar 21, 2012, at 8:35 PM, jessnyc <helpnynow@...> wrote: Thank you, , I appreciate so much your concern. Yes, everybody is fine. Most of my family lives a couple of hours away from Mexico City and the seismic area, so they didn't feel anything. I live in Mexico City and I definitely felt everything, made me dizzy! ...but nothing major happened around me, just a few buildings lost their windows and stuff like that, but no victims around my area. Thank you for thinking about me :-) Jess On 3/21/2012 7:29 PM, Goldstein@... wrote: Jess, Did your family come out okay after that terrible earthquake? I was thinking about you and your family... I know no one was killed, but so many lost homes. Very horrible. So sorry too. From: "jessnyc" <helpnynow@...> bird mites Sent: Tuesday, March 20, 2012 4:57:50 PM Subject: Re: So the fibers survive coconut oil? Thank you, Aandraya. Do you think I could treat myself without going to a doctor? Like, getting the Igenex testing, and then getting the medications you used? How did you know when to stop the treatment, did you get tested continuously? Do you know for a fact that you're fully recovered and that you don't have and left over infection that could begin growing slowly again? I don't think I could afford expensive treatment right now, but I might be able to afford the Igenex testing and the meds alone, I just wonder if that would be enough. I don't think I have any neurological symptoms, and the fiber problem is not as severe as it used to be, although it is still there, but that's the only symptom I have, the fibers. Thanks a lot for the information. Jess On 3/20/2012 2:57 PM, Aandraya wrote: Jess- the doctors treat them for Lyme and coinfections because they all have it. I personally believe that all Lyme patients who have morgellons type symptoms also have severe bartonella(passed by ticks and insects along with Lyme babesia) Coinfections are microbes that are passed from the same tick or insect- the most common and debilitating are bartonella- bacterial, and babesia- protozoal, sister to malaria. I had both. Lyme is borrelia- a spiral shaped bacteria. Aa On Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...> wrote: Thank you, Aandraya. Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge? Thanks, Jess On 3/20/2012 12:16 AM, Aandraya wrote: You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote: Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote: There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 9:50:47 PM Subject: Re: So the fibers survive coconut oil? It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote: Jess lives in Mexico. Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. From: "jessnyc" <helpnynow@...> "Birdmites.org Website" <bird mites > Sent: Monday, March 19, 2012 3:29:50 PM Subject: So the fibers survive coconut oil? I had thought that coconut oil was a remedy for these fibers. I bought some and had a small jar next to me at all times. When the oil was in liquid form, I noticed that the fibers somehow managed to get in the oil, my little jar had suddenly like 10 or more fibers. After a while I saw they all stuck together, and eventually I began seeing more and more of them. I wonder if they reproduced in the oil and assembled themselves together? That's what it looked like to me, my little jar is full of some big and some tiny fibers, they're mostly blue red or black, some are also white and hard to see. I guess this shows they don't die with coconut oil, they thrive and reproduce in it. Jesus, is there anything remedy that actually kills them? I haven't found anything that would really kill them. Has anyone had any success with coconut oil? Or is it just me? Jess. ------------------------------------ Links <*> To visit your group on the web, go to: bird mites/ <*> Your email settings: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2012 Report Share Posted March 22, 2012 I used to think that - maybe agrobacterium, but now I think it's mostly multi-fungal co-existing with all the other pathogens.AaOn Mar 21, 2012, at 11:59 PM, Goldstein@... wrote: She definitely calls it Morgellons. When I first started with her 3 years ago I sent her pictures for my file of all my fibers. I have fewer fibers now (I think). I don't see near as many or as often. She KNOWS Morgellons is largely Lyme Disease and cos. She also thinks plant matter is growing in us as a result of GMOs and pesticide use, herbicides, etc.From: "jessnyc" <helpnynow@...>bird mites Sent: Wednesday, March 21, 2012 9:54:57 PMSubject: Re: So the fibers survive coconut oil? Thank you, . Does your doctor admit you have "Morgellons" or does she call it something else? How did your Igenex test come out? Thank you, Jess On 3/21/2012 10:52 PM, Goldstein@... wrote: I agree... My doc told me she could get me 80% of the way and she has done that. And more, but the Lyme is a ball buster to say the least and I have a complex case. I also believe by the time you are producing fibers and have Morgellons your case of Lyme is more complicated. Much much more. My doctor told me my situation is unique. Aandraya has probably had the best Lyme doctors and she is very brave. She has been through so much and I don't know if I am strong enough physically to go all the way, although I would like to, just don't know physically if I am able. I think Aa can go all the way and will be totally healed at one point. I'm a lot older and have had cancer 13 years ago... so much has been compromised. BUT (great emphasis) I KNOW that if you start the journey with treatment, you do kick back the infection and things improve. So even if you can't afford or don't want to do the antibiotics for years you will be helped by what you do. This is not to say it isn't very difficult, it is. I had to stop the abx for a while. Will resume tx soon. That is a fact. From: "jessnyc" <helpnynow@...> bird mites Sent: Wednesday, March 21, 2012 9:43:16 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for that information, the only thing that worries me if that even after spending that money, you still have the fibers. Could your doctor not be doing the right thing? What did your IGenex test say? Thank you, Jess On 3/21/2012 10:41 PM, Goldstein@... wrote: Jess, My doctor in CA charges about $450 for first appointment and a half hour is $200. She will do phone follow ups which are about every 3 months. IGeneX is maybe 20 minutes away from my doctor so we just drove right over there to get our blood drawn. If you have the money maybe a doctor in California would work. I don't know which LLMDs are the best... my LLMD works with me. She is not intimidated by the idea of bird mites one single bit. She has seen others who have had bird mites. From: "Aandraya" <aandraya@...> bird mites Sent: Wednesday, March 21, 2012 7:25:53 PM Subject: Re: So the fibers survive coconut oil? Jess- No! God I hope not. You are probably in early stage. $5-700 for first doctor visit, $200 for igenix test. Follow up appt are between $2-300 and are every 3-5 months, some will give phone appts. Medication prices are all over the place. Do it right the first time and you won't be in my place, I'm unable to work and 2 yrs into this. If I had started treatment when I just had the fibers it would be a different story. Aa On Mar 21, 2012, at 8:59 PM, jessnyc <helpnynow@...> wrote: Thank you, Aandraya, how much do you think I should be spending just to get rid of this, including doctors, testing and meds? Over $20,000? On 3/21/2012 7:54 PM, Aandraya wrote: Jess- Chicago 25 years, just moved to Minneapolis a year ago due to this illness. Had to stop working. Treat it now and you'll be good to go. Aa On Mar 21, 2012, at 8:42 PM, jessnyc <helpnynow@...> wrote: No kidding, Aandraya, I'm in Condesa! Few blocks from Roma, pretty cool area, isn't it? Where do you live now? Jess On 3/21/2012 7:39 PM, Aandraya wrote: Jess- Where in Mexico DF do you live? I used to live in Colonia Roma. Hope you're doing well. Aa On Mar 21, 2012, at 8:35 PM, jessnyc <helpnynow@...> wrote: Thank you, , I appreciate so much your concern. Yes, everybody is fine. Most of my family lives a couple of hours away from Mexico City and the seismic area, so they didn't feel anything. I live in Mexico City and I definitely felt everything, made me dizzy! ...but nothing major happened around me, just a few buildings lost their windows and stuff like that, but no victims around my area. Thank you for thinking about me :-) Jess On 3/21/2012 7:29 PM, Goldstein@... wrote: Jess, Did your family come out okay after that terrible earthquake? I was thinking about you and your family... I know no one was killed, but so many lost homes. Very horrible. So sorry too. From: "jessnyc" <helpnynow@...> bird mites Sent: Tuesday, March 20, 2012 4:57:50 PM Subject: Re: So the fibers survive coconut oil? Thank you, Aandraya. Do you think I could treat myself without going to a doctor? Like, getting the Igenex testing, and then getting the medications you used? How did you know when to stop the treatment, did you get tested continuously? Do you know for a fact that you're fully recovered and that you don't have and left over infection that could begin growing slowly again? I don't think I could afford expensive treatment right now, but I might be able to afford the Igenex testing and the meds alone, I just wonder if that would be enough. I don't think I have any neurological symptoms, and the fiber problem is not as severe as it used to be, although it is still there, but that's the only symptom I have, the fibers. Thanks a lot for the information. Jess On 3/20/2012 2:57 PM, Aandraya wrote: Jess- the doctors treat them for Lyme and coinfections because they all have it. I personally believe that all Lyme patients who have morgellons type symptoms also have severe bartonella(passed by ticks and insects along with Lyme babesia) Coinfections are microbes that are passed from the same tick or insect- the most common and debilitating are bartonella- bacterial, and babesia- protozoal, sister to malaria. I had both. Lyme is borrelia- a spiral shaped bacteria. Aa On Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...> wrote: Thank you, Aandraya. Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge? Thanks, Jess On 3/20/2012 12:16 AM, Aandraya wrote: You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS. Aa On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote: Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote: There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 9:50:47 PM Subject: Re: So the fibers survive coconut oil? It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks, Jess On 3/19/2012 10:47 PM, Goldstein@... wrote: Jess lives in Mexico. Do you know of anyone there? From: "Aandraya" <aandraya@...> bird mites Sent: Monday, March 19, 2012 7:27:44 PM Subject: Re: So the fibers survive coconut oil? No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment. Aa On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote: Thanks, Aandraya. "Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons? Thanks. On 3/19/2012 7:12 PM, Aandraya wrote: 100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge. Aa On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote: Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely? So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now? Thanks a lot, Jess On 3/19/2012 6:45 PM, Aandraya wrote: Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff. Aandraya On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote: Jess, I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine... Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you! What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting. What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff... Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again. From: "jessnyc" <helpnynow@...> bird mites Sent: Monday, March 19, 2012 5:15:42 PM Subject: Re: So the fibers survive coconut oil? Hi , Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested. One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny. What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again, Jess On 3/19/2012 5:46 PM, Goldstein@... wrote: Hi Jess, It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move. I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now. I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases. I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you. 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