Guest guest Posted March 15, 2012 Report Share Posted March 15, 2012 Thanks for the detailed insightful post. You have done your homework here and I agree with everything you have stated here. Maybe you could put some info in the 'links' or 'files' section for others? Let me know and I would be glad to assist with this. Take care, Tim > > > Hi mldashseattle, > > > So many people here acquired birdmites the EXACTLY way you describe. So many others... birds do seem to be the primary carriers, although rodents can carry some of the same mites. I am sorry this didn't all disappear for you after the mite experience, even with all 3 moves. Did your bites turn into lesions? I have the tiny red bumps too. They are still on my underarms mainly (hundreds) and scattered throughout my body. I never had those bumps before this happened to me 4 years ago. Some of the bites had turned into lesions which have since disappeared (were on my abdomen) and I did have several large long lasting red rashes that wrapped around my abdomen and neck. Those are gone now. > > > I am at the stage where this does not keep me up at night, although I still get biting sensations on my feet. I think now much of what I have is a neurological symptom of Lyme and/or co-infections from what was delivered by the mites... bacterias, fungi and parasites. > > > My husband was afflicted by this too with many many bites on his body -- we have remained in our house too. We were not able to move, but I wanted to very badly. It was not possible financially for us to move. I am on disability and my husband is not a high income maker, so there would not have been a way for us. Some that have moved have done really really well. Cecilia and Doris moved, got rid of everything they owned. Doris has absolutely no symptoms remaining and Cecilia, who lives in Sweden, has remaining infection, but not bothered by it terribly. Life goes on for them. Aggi, who lives in Germany, is also doing really well, 99% cured and has gotten on with her life. I know you have heard from some of these individuals already. > > > There can be infection delivered by mites, but not all people get these infections. Some people develop Morgellons - Lyme and body producing fibers (I did). Some mites are transmitting Lyme, some co-infections like Bartonella and who knows what else. All these mites seem to carry something different, maybe a different strain of Borrelia, plus combinations of other co-infections, parasites. If you remain sick has a lot to do with genetics and the detoxification ability of the body, prior exposures to toxins. The body has a genetic ability to detox and some genetically do not have this ability. There is much being revealed about this topic now. Aandraya has talked about how many of the crawling sensations are typical Bartonella... all of these infections affect the brain and central nervous system. Not everyone gets these infections, but most do get something. Is Lyme endemic in your area? I know you live in Seattle and my family lives in northern Oregon... my sister has Lyme in OR. Lyme is everywhere now. I think birds are carrying bartonella and it is being transmitted to mites, or maybe it is the other way around, mites are carrying bartonella and giving it to birds, I don't know which. Birds migrate everywhere... Canada is being hit hard by Lyme disease now according to a Lyme Literate doctor who knows about these things. > > > There is post-traumatic stress from this experience, but the anxiety may be caused by an infection that has passed through the blood, brain barrier. I know many of us have had this affect the brain, myself included... with treatment it gets better. Can you find a Lyme Literate doctor in Washington? I know there are no LLMDs in Oregon, as I've looked for my sister, but there are 3 doctors that are naturopaths who treat and are trained to treat Lyme and coinfections. They can prescribe too... I've talked to one of them personally. > > > Bartonella causes welts... I had those too. They actually appeared like a stretch mark, red then turning white. > > > Here are the names of doctors I am aware of in Oregon and Washington who might be able help you: > > > Lyme Treating Doctors > Dr. I Newman, MD, ND , MSOM > Classical & Modern Medicine > Rising Health > 8301 NE Hazel Dell Ave. > Vancouver, WA 98665 > Phone: (360) 696-3800 > Fax: (360) 696-0906 > http://www.drdanielnewman.com/ > > Dr. Stacey Raffety, BSN, LAc, ND (most experience in the Portland area) > Tigard Holistic Health Clinic > 11930 SW Greenburg Road > Tigard, Oregon 97223 > Phone: (503) 639-1712 > Fax: (971) 249-0319 > http://www.tigardholistic.com/ > > Dr. Chapman, ND (trained under Drs. Stricker & ) > 1567 SE Tacoma Street > Portland, OR 97202 > (503) 233-8113 > http://chapmannd.org > http://www.sellwoodfamilymedicine.com/ > > Dr. Usha Honeyman, DC, ND, DABCI > 1368 NW Lincoln Ave., Corvallis, OR 97330 > phone: (541) 754-6323 > http://www.ushahoneyman.com > > > > I hope you can get some help. Let us know if you need any more help. > > > > > New Member of the club... > > I've been reading through all these posts for a few days. I'm so glad to have found this forum. > > My problem began in the summer of 2009 when I moved into an apartment with a pigeon nesting on the small balcony off my bedroom. When the mother left the baby small black mites began to enter my room and the problems began. The first week my body was covered in tiny red itchy welts. I had a pest company spray my apartment several times. I kept my clothes in totes with moth balls, washed and dried my clothes and bedding daily.. drying all clothes before wearing them. I never wear the same thing twice in a row. > > Nearly three years and three apartments later I am still experiencing problems. I get tiny red bumps all over my body, mostly on my chest and legs. They don't itch terribly, but they look awful. I also experience the crawling sensation periodically throughout the day. > > Here are a few things I would love to get feedback on. > > I am able to sleep throughout the night, this hasn't been an issue for me since at least a month after it all began in 2009. If I do have problems sleeping it's because of anxiety rather than feeling like bugs are on me - what does this mean when so many of you are kept up at night because of the sensations? > > I have lived with two different people at the height of my problem, neither seemed to be affected. Why is that? > > Why could I see them in the beginning of my infestation, but no longer can see a thing? This is the part drives me the most crazy. If I can't see them, how do I effectively treat? > > I have never felt like I have had internal issues regarding the mites. I don't cough, have itchy nostrils or ears or eyes. My scalp itches on occasion, but I've chalked that up to being winter and having a dry scalp in general. > > I feel relatively calm considering, but to counter that incredibly anxious, distraught, and hopeless. > > I worry that just because I can't seen the red welts that I'm being bitten.. although I just don't know. I am inconstant fear that I will spread this to ones I love. > > I remember thinking in the summer of 2009, " This is fine, in a few months it'll be all over, " and now here I am, still in the middle of all it. > > I am thankful that I've found this community and to see that there are people who have come out of this alright. > > ML > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2012 Report Share Posted March 15, 2012 I would love to do that Tim. Thank you for all you do and have done for us.From: bird mites-owner To: bird mites Sent: Thursday, March 15, 2012 12:03:36 PMSubject: Re: New Member of the club......Thanks Thanks for the detailed insightful post. You have done your homeworkhere and I agree with everything you have stated here.Maybe you could put some info in the 'links' or 'files' section forothers? Let me know and I would be glad to assist with this.Take care,Tim>>> Hi mldashseattle,>>> So many people here acquired birdmites the EXACTLY way you describe.So many others... birds do seem to be the primary carriers, althoughrodents can carry some of the same mites. I am sorry this didn't alldisappear for you after the mite experience, even with all 3 moves. Didyour bites turn into lesions? I have the tiny red bumps too. They arestill on my underarms mainly (hundreds) and scattered throughout mybody. I never had those bumps before this happened to me 4 years ago.Some of the bites had turned into lesions which have since disappeared(were on my abdomen) and I did have several large long lasting redrashes that wrapped around my abdomen and neck. Those are gone now.>>> I am at the stage where this does not keep me up at night, although Istill get biting sensations on my feet. I think now much of what I haveis a neurological symptom of Lyme and/or co-infections from what wasdelivered by the mites... bacterias, fungi and parasites.>>> My husband was afflicted by this too with many many bites on his body-- we have remained in our house too. We were not able to move, but Iwanted to very badly. It was not possible financially for us to move. Iam on disability and my husband is not a high income maker, so therewould not have been a way for us. Some that have moved have done reallyreally well. Cecilia and Doris moved, got rid of everything they owned.Doris has absolutely no symptoms remaining and Cecilia, who lives inSweden, has remaining infection, but not bothered by it terribly. Lifegoes on for them. Aggi, who lives in Germany, is also doing really well,99% cured and has gotten on with her life. I know you have heard fromsome of these individuals already.>>> There can be infection delivered by mites, but not all people getthese infections. Some people develop Morgellons - Lyme and bodyproducing fibers (I did). Some mites are transmitting Lyme, someco-infections like Bartonella and who knows what else. All these mitesseem to carry something different, maybe a different strain of Borrelia,plus combinations of other co-infections, parasites. If you remain sickhas a lot to do with genetics and the detoxification ability of thebody, prior exposures to toxins. The body has a genetic ability to detoxand some genetically do not have this ability. There is much beingrevealed about this topic now. Aandraya has talked about how many of thecrawling sensations are typical Bartonella... all of these infectionsaffect the brain and central nervous system. Not everyone gets theseinfections, but most do get something. Is Lyme endemic in your area? Iknow you live in Seattle and my family lives in northern Oregon... mysister has Lyme in OR. Lyme is everywhere now. I think birds arecarrying bartonella and it is being transmitted to mites, or maybe it isthe other way around, mites are carrying bartonella and giving it tobirds, I don't know which. Birds migrate everywhere... Canada is beinghit hard by Lyme disease now according to a Lyme Literate doctor whoknows about these things.>>> There is post-traumatic stress from this experience, but the anxietymay be caused by an infection that has passed through the blood, brainbarrier. I know many of us have had this affect the brain, myselfincluded... with treatment it gets better. Can you find a Lyme Literatedoctor in Washington? I know there are no LLMDs in Oregon, as I'velooked for my sister, but there are 3 doctors that are naturopaths whotreat and are trained to treat Lyme and coinfections. They can prescribetoo... I've talked to one of them personally.>>> Bartonella causes welts... I had those too. They actually appearedlike a stretch mark, red then turning white.>>> Here are the names of doctors I am aware of in Oregon and Washingtonwho might be able help you:>>> Lyme Treating Doctors> Dr. I Newman, MD, ND , MSOM> Classical & Modern Medicine> Rising Health> 8301 NE Hazel Dell Ave.> Vancouver, WA 98665> Phone: (360) 696-3800> Fax: (360) 696-0906> http://www.drdanielnewman.com/>> Dr. Stacey Raffety, BSN, LAc, ND (most experience in the Portlandarea)> Tigard Holistic Health Clinic> 11930 SW Greenburg Road> Tigard, Oregon 97223> Phone: (503) 639-1712> Fax: (971) 249-0319> http://www.tigardholistic.com/>> Dr. Chapman, ND (trained under Drs. Stricker & )> 1567 SE Tacoma Street> Portland, OR 97202> (503) 233-8113> http://chapmannd.org> http://www.sellwoodfamilymedicine.com/>> Dr. Usha Honeyman, DC, ND, DABCI> 1368 NW Lincoln Ave., Corvallis, OR 97330> phone: (541) 754-6323> http://www.ushahoneyman.com>>>> I hope you can get some help. Let us know if you need any more help.>>> >> New Member of the club...>> I've been reading through all these posts for a few days. I'm so gladto have found this forum.>> My problem began in the summer of 2009 when I moved into an apartmentwith a pigeon nesting on the small balcony off my bedroom. When themother left the baby small black mites began to enter my room and theproblems began. The first week my body was covered in tiny red itchywelts. I had a pest company spray my apartment several times. I kept myclothes in totes with moth balls, washed and dried my clothes andbedding daily.. drying all clothes before wearing them. I never wear thesame thing twice in a row.>> Nearly three years and three apartments later I am still experiencingproblems. I get tiny red bumps all over my body, mostly on my chest andlegs. They don't itch terribly, but they look awful. I also experiencethe crawling sensation periodically throughout the day.>> Here are a few things I would love to get feedback on.>> I am able to sleep throughout the night, this hasn't been an issue forme since at least a month after it all began in 2009. If I do haveproblems sleeping it's because of anxiety rather than feeling like bugsare on me - what does this mean when so many of you are kept up at nightbecause of the sensations?>> I have lived with two different people at the height of my problem,neither seemed to be affected. Why is that?>> Why could I see them in the beginning of my infestation, but no longercan see a thing? This is the part drives me the most crazy. If I can'tsee them, how do I effectively treat?>> I have never felt like I have had internal issues regarding the mites.I don't cough, have itchy nostrils or ears or eyes. My scalp itches onoccasion, but I've chalked that up to being winter and having a dryscalp in general.>> I feel relatively calm considering, but to counter that incrediblyanxious, distraught, and hopeless.>> I worry that just because I can't seen the red welts that I'm beingbitten.. although I just don't know. I am inconstant fear that I willspread this to ones I love.>> I remember thinking in the summer of 2009, "This is fine, in a fewmonths it'll be all over," and now here I am, still in the middle of allit.>> I am thankful that I've found this community and to see that there arepeople who have come out of this alright.>> ML>>>> ------------------------------------>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2012 Report Share Posted March 16, 2012 Thank you all for such detailed responses. It is such a relief to know that I am not alone. I have only done internet research on Lyme and Bartonella and I'm unsure that those are necessarily what is going on with me? I do not have the stretch mark like rashes found with Bartonella. What does appear on my skin are what look like bits. They do not turn into lesions, they are just raised, red bumps/welts that are about a centimeter or less in circumference. They are randomly placed and not usually in bunches - like currently I have three on my upper arm, two with in an inch of each other and the other down and about three inches from the two. These red bumps are the reason I believe I still have the mites and that they are biting me.... But I never see them. If I feel a pinprick sensation that feels like I bite I will immediate go to the source, but there is never anything there. That said and after all I've read, perhaps it is part of a passed on infection or psychosis? I'd almost rather it be an infection, that way I would at least be at peace knowing I'm not spreading this on to my loved ones. I will order the recommended Doxy - No one has had trouble ordering it online without a prescription? I still have the worry that the mites are with me still and that I will pass them on to others.. What has been everyone's experience with this? Have you been able to live in the same space as others and have them be OK and unaffected? I appreciate you all very much. ML > > > > > > Hi mldashseattle, > > > > > > So many people here acquired birdmites the EXACTLY way you describe. > So many others... birds do seem to be the primary carriers, although > rodents can carry some of the same mites. I am sorry this didn't all > disappear for you after the mite experience, even with all 3 moves. Did > your bites turn into lesions? I have the tiny red bumps too. They are > still on my underarms mainly (hundreds) and scattered throughout my > body. I never had those bumps before this happened to me 4 years ago. > Some of the bites had turned into lesions which have since disappeared > (were on my abdomen) and I did have several large long lasting red > rashes that wrapped around my abdomen and neck. Those are gone now. > > > > > > I am at the stage where this does not keep me up at night, although I > still get biting sensations on my feet. I think now much of what I have > is a neurological symptom of Lyme and/or co-infections from what was > delivered by the mites... bacterias, fungi and parasites. > > > > > > My husband was afflicted by this too with many many bites on his body > -- we have remained in our house too. We were not able to move, but I > wanted to very badly. It was not possible financially for us to move. I > am on disability and my husband is not a high income maker, so there > would not have been a way for us. Some that have moved have done really > really well. Cecilia and Doris moved, got rid of everything they owned. > Doris has absolutely no symptoms remaining and Cecilia, who lives in > Sweden, has remaining infection, but not bothered by it terribly. Life > goes on for them. Aggi, who lives in Germany, is also doing really well, > 99% cured and has gotten on with her life. I know you have heard from > some of these individuals already. > > > > > > There can be infection delivered by mites, but not all people get > these infections. Some people develop Morgellons - Lyme and body > producing fibers (I did). Some mites are transmitting Lyme, some > co-infections like Bartonella and who knows what else. All these mites > seem to carry something different, maybe a different strain of Borrelia, > plus combinations of other co-infections, parasites. If you remain sick > has a lot to do with genetics and the detoxification ability of the > body, prior exposures to toxins. The body has a genetic ability to detox > and some genetically do not have this ability. There is much being > revealed about this topic now. Aandraya has talked about how many of the > crawling sensations are typical Bartonella... all of these infections > affect the brain and central nervous system. Not everyone gets these > infections, but most do get something. Is Lyme endemic in your area? I > know you live in Seattle and my family lives in northern Oregon... my > sister has Lyme in OR. Lyme is everywhere now. I think birds are > carrying bartonella and it is being transmitted to mites, or maybe it is > the other way around, mites are carrying bartonella and giving it to > birds, I don't know which. Birds migrate everywhere... Canada is being > hit hard by Lyme disease now according to a Lyme Literate doctor who > knows about these things. > > > > > > There is post-traumatic stress from this experience, but the anxiety > may be caused by an infection that has passed through the blood, brain > barrier. I know many of us have had this affect the brain, myself > included... with treatment it gets better. Can you find a Lyme Literate > doctor in Washington? I know there are no LLMDs in Oregon, as I've > looked for my sister, but there are 3 doctors that are naturopaths who > treat and are trained to treat Lyme and coinfections. They can prescribe > too... I've talked to one of them personally. > > > > > > Bartonella causes welts... I had those too. They actually appeared > like a stretch mark, red then turning white. > > > > > > Here are the names of doctors I am aware of in Oregon and Washington > who might be able help you: > > > > > > Lyme Treating Doctors > > Dr. I Newman, MD, ND , MSOM > > Classical & Modern Medicine > > Rising Health > > 8301 NE Hazel Dell Ave. > > Vancouver, WA 98665 > > Phone: (360) 696-3800 > > Fax: (360) 696-0906 > > http://www.drdanielnewman.com/ > > > > Dr. Stacey Raffety, BSN, LAc, ND (most experience in the Portland > area) > > Tigard Holistic Health Clinic > > 11930 SW Greenburg Road > > Tigard, Oregon 97223 > > Phone: (503) 639-1712 > > Fax: (971) 249-0319 > > http://www.tigardholistic.com/ > > > > Dr. Chapman, ND (trained under Drs. Stricker & ) > > 1567 SE Tacoma Street > > Portland, OR 97202 > > (503) 233-8113 > > http://chapmannd.org > > http://www.sellwoodfamilymedicine.com/ > > > > Dr. Usha Honeyman, DC, ND, DABCI > > 1368 NW Lincoln Ave., Corvallis, OR 97330 > > phone: (541) 754-6323 > > http://www.ushahoneyman.com > > > > > > > > I hope you can get some help. Let us know if you need any more help. > > > > > > > > > > New Member of the club... > > > > I've been reading through all these posts for a few days. I'm so glad > to have found this forum. > > > > My problem began in the summer of 2009 when I moved into an apartment > with a pigeon nesting on the small balcony off my bedroom. When the > mother left the baby small black mites began to enter my room and the > problems began. The first week my body was covered in tiny red itchy > welts. I had a pest company spray my apartment several times. I kept my > clothes in totes with moth balls, washed and dried my clothes and > bedding daily.. drying all clothes before wearing them. I never wear the > same thing twice in a row. > > > > Nearly three years and three apartments later I am still experiencing > problems. I get tiny red bumps all over my body, mostly on my chest and > legs. They don't itch terribly, but they look awful. I also experience > the crawling sensation periodically throughout the day. > > > > Here are a few things I would love to get feedback on. > > > > I am able to sleep throughout the night, this hasn't been an issue for > me since at least a month after it all began in 2009. If I do have > problems sleeping it's because of anxiety rather than feeling like bugs > are on me - what does this mean when so many of you are kept up at night > because of the sensations? > > > > I have lived with two different people at the height of my problem, > neither seemed to be affected. Why is that? > > > > Why could I see them in the beginning of my infestation, but no longer > can see a thing? This is the part drives me the most crazy. If I can't > see them, how do I effectively treat? > > > > I have never felt like I have had internal issues regarding the mites. > I don't cough, have itchy nostrils or ears or eyes. My scalp itches on > occasion, but I've chalked that up to being winter and having a dry > scalp in general. > > > > I feel relatively calm considering, but to counter that incredibly > anxious, distraught, and hopeless. > > > > I worry that just because I can't seen the red welts that I'm being > bitten.. although I just don't know. I am inconstant fear that I will > spread this to ones I love. > > > > I remember thinking in the summer of 2009, " This is fine, in a few > months it'll be all over, " and now here I am, still in the middle of all > it. > > > > I am thankful that I've found this community and to see that there are > people who have come out of this alright. > > > > ML > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2012 Report Share Posted March 16, 2012 Hi ml I also have small lumps under skin on my feet where I get most problems Espec after pin prick sensation they are there n skin red sore swolen inflamed Then redness goes away but blister thingsoften stil there I too not sure if still mites or if bartonela lyme etc Beginin to think it under the skin Because ih boy I scrub feet hands where bites,are n still goes,on Came across mycil cream yestrday fir athletes foot Bought n.putin on feet hands now As contains benzalkonium chloride that is in lysol or dettol Looked back saw posts on it here Figure worth a try Benzyl peroxide didnt help me But bites stronger on it Dunno if a herx Its a penetrant so figured if any mites there maybe would being em out? Was goin to stop doxy today as feel ill But maybe just smal break As only took one yesterday n when feel bites,worse today...panics me But maybe it the benzalchonium Maybe we need to get samples from skin to entomologist But we are all doin everything we can to physicaly fight this I dont live with anyone But I havent spread it to anyone I wonder too if a new animal would be safe with me n in my flat? Not in old flat as was badly infested But its,just my feet n hands bothered now Yes thank god its progress And everyone finds that progress Oh patience! So ml hang in there ------------------------------ On Fri, Mar 16, 2012 00:10 PDT mldashseattle wrote: >Thank you all for such detailed responses. It is such a relief to know that I am not alone. > >I have only done internet research on Lyme and Bartonella and I'm unsure that those are necessarily what is going on with me? I do not have the stretch mark like rashes found with Bartonella. What does appear on my skin are what look like bits. They do not turn into lesions, they are just raised, red bumps/welts that are about a centimeter or less in circumference. They are randomly placed and not usually in bunches - like currently I have three on my upper arm, two with in an inch of each other and the other down and about three inches from the two. > >These red bumps are the reason I believe I still have the mites and that they are biting me.... But I never see them. If I feel a pinprick sensation that feels like I bite I will immediate go to the source, but there is never anything there. That said and after all I've read, perhaps it is part of a passed on infection or psychosis? I'd almost rather it be an infection, that way I would at least be at peace knowing I'm not spreading this on to my loved ones. > >I will order the recommended Doxy - No one has had trouble ordering it online without a prescription? > >I still have the worry that the mites are with me still and that I will pass them on to others.. What has been everyone's experience with this? Have you been able to live in the same space as others and have them be OK and unaffected? > >I appreciate you all very much. > >ML > > >> > >> > >> > Hi mldashseattle, >> > >> > >> > So many people here acquired birdmites the EXACTLY way you describe. >> So many others... birds do seem to be the primary carriers, although >> rodents can carry some of the same mites. I am sorry this didn't all >> disappear for you after the mite experience, even with all 3 moves. Did >> your bites turn into lesions? I have the tiny red bumps too. They are >> still on my underarms mainly (hundreds) and scattered throughout my >> body. I never had those bumps before this happened to me 4 years ago. >> Some of the bites had turned into lesions which have since disappeared >> (were on my abdomen) and I did have several large long lasting red >> rashes that wrapped around my abdomen and neck. Those are gone now. >> > >> > >> > I am at the stage where this does not keep me up at night, although I >> still get biting sensations on my feet. I think now much of what I have >> is a neurological symptom of Lyme and/or co-infections from what was >> delivered by the mites... bacterias, fungi and parasites. >> > >> > >> > My husband was afflicted by this too with many many bites on his body >> -- we have remained in our house too. We were not able to move, but I >> wanted to very badly. It was not possible financially for us to move. I >> am on disability and my husband is not a high income maker, so there >> would not have been a way for us. Some that have moved have done really >> really well. Cecilia and Doris moved, got rid of everything they owned. >> Doris has absolutely no symptoms remaining and Cecilia, who lives in >> Sweden, has remaining infection, but not bothered by it terribly. Life >> goes on for them. Aggi, who lives in Germany, is also doing really well, >> 99% cured and has gotten on with her life. I know you have heard from >> some of these individuals already. >> > >> > >> > There can be infection delivered by mites, but not all people get >> these infections. Some people develop Morgellons - Lyme and body >> producing fibers (I did). Some mites are transmitting Lyme, some >> co-infections like Bartonella and who knows what else. All these mites >> seem to carry something different, maybe a different strain of Borrelia, >> plus combinations of other co-infections, parasites. If you remain sick >> has a lot to do with genetics and the detoxification ability of the >> body, prior exposures to toxins. The body has a genetic ability to detox >> and some genetically do not have this ability. There is much being >> revealed about this topic now. Aandraya has talked about how many of the >> crawling sensations are typical Bartonella... all of these infections >> affect the brain and central nervous system. Not everyone gets these >> infections, but most do get something. Is Lyme endemic in your area? I >> know you live in Seattle and my family lives in northern Oregon... my >> sister has Lyme in OR. Lyme is everywhere now. I think birds are >> carrying bartonella and it is being transmitted to mites, or maybe it is >> the other way around, mites are carrying bartonella and giving it to >> birds, I don't know which. Birds migrate everywhere... Canada is being >> hit hard by Lyme disease now according to a Lyme Literate doctor who >> knows about these things. >> > >> > >> > There is post-traumatic stress from this experience, but the anxiety >> may be caused by an infection that has passed through the blood, brain >> barrier. I know many of us have had this affect the brain, myself >> included... with treatment it gets better. Can you find a Lyme Literate >> doctor in Washington? I know there are no LLMDs in Oregon, as I've >> looked for my sister, but there are 3 doctors that are naturopaths who >> treat and are trained to treat Lyme and coinfections. They can prescribe >> too... I've talked to one of them personally. >> > >> > >> > Bartonella causes welts... I had those too. They actually appeared >> like a stretch mark, red then turning white. >> > >> > >> > Here are the names of doctors I am aware of in Oregon and Washington >> who might be able help you: >> > >> > >> > Lyme Treating Doctors >> > Dr. I Newman, MD, ND , MSOM >> > Classical & Modern Medicine >> > Rising Health >> > 8301 NE Hazel Dell Ave. >> > Vancouver, WA 98665 >> > Phone: (360) 696-3800 >> > Fax: (360) 696-0906 >> > http://www.drdanielnewman.com/ >> > >> > Dr. Stacey Raffety, BSN, LAc, ND (most experience in the Portland >> area) >> > Tigard Holistic Health Clinic >> > 11930 SW Greenburg Road >> > Tigard, Oregon 97223 >> > Phone: (503) 639-1712 >> > Fax: (971) 249-0319 >> > http://www.tigardholistic.com/ >> > >> > Dr. Chapman, ND (trained under Drs. Stricker & ) >> > 1567 SE Tacoma Street >> > Portland, OR 97202 >> > (503) 233-8113 >> > http://chapmannd.org >> > http://www.sellwoodfamilymedicine.com/ >> > >> > Dr. Usha Honeyman, DC, ND, DABCI >> > 1368 NW Lincoln Ave., Corvallis, OR 97330 >> > phone: (541) 754-6323 >> > http://www.ushahoneyman.com >> > >> > >> > >> > I hope you can get some help. Let us know if you need any more help. >> > >> > >> > >> > >> > New Member of the club... >> > >> > I've been reading through all these posts for a few days. I'm so glad >> to have found this forum. >> > >> > My problem began in the summer of 2009 when I moved into an apartment >> with a pigeon nesting on the small balcony off my bedroom. When the >> mother left the baby small black mites began to enter my room and the >> problems began. The first week my body was covered in tiny red itchy >> welts. I had a pest company spray my apartment several times. I kept my >> clothes in totes with moth balls, washed and dried my clothes and >> bedding daily.. drying all clothes before wearing them. I never wear the >> same thing twice in a row. >> > >> > Nearly three years and three apartments later I am still experiencing >> problems. I get tiny red bumps all over my body, mostly on my chest and >> legs. They don't itch terribly, but they look awful. I also experience >> the crawling sensation periodically throughout the day. >> > >> > Here are a few things I would love to get feedback on. >> > >> > I am able to sleep throughout the night, this hasn't been an issue for >> me since at least a month after it all began in 2009. If I do have >> problems sleeping it's because of anxiety rather than feeling like bugs >> are on me - what does this mean when so many of you are kept up at night >> because of the sensations? >> > >> > I have lived with two different people at the height of my problem, >> neither seemed to be affected. Why is that? >> > >> > Why could I see them in the beginning of my infestation, but no longer >> can see a thing? This is the part drives me the most crazy. If I can't >> see them, how do I effectively treat? >> > >> > I have never felt like I have had internal issues regarding the mites. >> I don't cough, have itchy nostrils or ears or eyes. My scalp itches on >> occasion, but I've chalked that up to being winter and having a dry >> scalp in general. >> > >> > I feel relatively calm considering, but to counter that incredibly >> anxious, distraught, and hopeless. >> > >> > I worry that just because I can't seen the red welts that I'm being >> bitten.. although I just don't know. I am inconstant fear that I will >> spread this to ones I love. >> > >> > I remember thinking in the summer of 2009, " This is fine, in a few >> months it'll be all over, " and now here I am, still in the middle of all >> it. >> > >> > I am thankful that I've found this community and to see that there are >> people who have come out of this alright. >> > >> > ML >> > >> > >> > >> > ------------------------------------ >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2012 Report Share Posted March 16, 2012 Dear ML, I did and sometimes still have exactly the same symptoms as you, but no symptoms of Lyme or co-infections either. I was diagnosed with a blood-sucking mite in 2010, although I have never knowingly seen one. Mites are usually opaque to off-white or greyish and microscopically small. You won't see them unless they feed and then turn brownish or red. Throughout my infestation I have been in close contact with people, my boyfriend, my parents, best friends plus colleagues and yet have never transmitted the mites to anyone. I could go for a walk hand in hand with my boyfriend and he never felt anything on him, whereas I was covered in mites and bites and I always thought, I wish I had a special light to make visable for him what was going on, because for my partner it was very hard to believe or even understand what I was going through. It is so important to communicate about it. I was lucky being able to talk to my mum and one of my best friends, because she had rodent mites a couple of years back, and of course to my friends on the forum here. Don't know what I would have done without them. Don't worry about the prescriptions. You do not need them at the recommended pharmacies. My overall condition is 99% better after taking an anti-fungal first, followed by abx. Good luck with your recovery ! Aggi Von: mldashseattle <mldashseattle@...>An: bird mites Gesendet: 8:10 Freitag, 16.März 2012Betreff: Re: New Member of the club......Thanks Thank you all for such detailed responses. It is such a relief to know that I am not alone.I have only done internet research on Lyme and Bartonella and I'm unsure that those are necessarily what is going on with me? I do not have the stretch mark like rashes found with Bartonella. What does appear on my skin are what look like bits. They do not turn into lesions, they are just raised, red bumps/welts that are about a centimeter or less in circumference. They are randomly placed and not usually in bunches - like currently I have three on my upper arm, two with in an inch of each other and the other down and about three inches from the two. These red bumps are the reason I believe I still have the mites and that they are biting me.... But I never see them. If I feel a pinprick sensation that feels like I bite I will immediate go to the source, but there is never anything there. That said and after all I've read, perhaps it is part of a passed on infection or psychosis? I'd almost rather it be an infection, that way I would at least be at peace knowing I'm not spreading this on to my loved ones.I will order the recommended Doxy - No one has had trouble ordering it online without a prescription?I still have the worry that the mites are with me still and that I will pass them on to others.. What has been everyone's experience with this? Have you been able to live in the same space as others and have them be OK and unaffected? I appreciate you all very much. ML > > > > > > Hi mldashseattle, > > > > > > So many people here acquired birdmites the EXACTLY way you describe. > So many others... birds do seem to be the primary carriers, although > rodents can carry some of the same mites. I am sorry this didn't all > disappear for you after the mite experience, even with all 3 moves. Did > your bites turn into lesions? I have the tiny red bumps too. They are > still on my underarms mainly (hundreds) and scattered throughout my > body. I never had those bumps before this happened to me 4 years ago. > Some of the bites had turned into lesions which have since disappeared > (were on my abdomen) and I did have several large long lasting red > rashes that wrapped around my abdomen and neck. Those are gone now. > > > > > > I am at the stage where this does not keep me up at night, although I > still get biting sensations on my feet. I think now much of what I have > is a neurological symptom of Lyme and/or co-infections from what was > delivered by the mites... bacterias, fungi and parasites. > > > > > > My husband was afflicted by this too with many many bites on his body > -- we have remained in our house too. We were not able to move, but I > wanted to very badly. It was not possible financially for us to move. I > am on disability and my husband is not a high income maker, so there > would not have been a way for us. Some that have moved have done really > really well. Cecilia and Doris moved, got rid of everything they owned. > Doris has absolutely no symptoms remaining and Cecilia, who lives in > Sweden, has remaining infection, but not bothered by it terribly. Life > goes on for them. Aggi, who lives in Germany, is also doing really well, > 99% cured and has gotten on with her life. I know you have heard from > some of these individuals already. > > > > > > There can be infection delivered by mites, but not all people get > these infections. Some people develop Morgellons - Lyme and body > producing fibers (I did). Some mites are transmitting Lyme, some > co-infections like Bartonella and who knows what else. All these mites > seem to carry something different, maybe a different strain of Borrelia, > plus combinations of other co-infections, parasites. If you remain sick > has a lot to do with genetics and the detoxification ability of the > body, prior exposures to toxins. The body has a genetic ability to detox > and some genetically do not have this ability. There is much being > revealed about this topic now. Aandraya has talked about how many of the > crawling sensations are typical Bartonella... all of these infections > affect the brain and central nervous system. Not everyone gets these > infections, but most do get something. Is Lyme endemic in your area? I > know you live in Seattle and my family lives in northern Oregon... my > sister has Lyme in OR. Lyme is everywhere now. I think birds are > carrying bartonella and it is being transmitted to mites, or maybe it is > the other way around, mites are carrying bartonella and giving it to > birds, I don't know which. Birds migrate everywhere... Canada is being > hit hard by Lyme disease now according to a Lyme Literate doctor who > knows about these things. > > > > > > There is post-traumatic stress from this experience, but the anxiety > may be caused by an infection that has passed through the blood, brain > barrier. I know many of us have had this affect the brain, myself > included... with treatment it gets better. Can you find a Lyme Literate > doctor in Washington? I know there are no LLMDs in Oregon, as I've > looked for my sister, but there are 3 doctors that are naturopaths who > treat and are trained to treat Lyme and coinfections. They can prescribe > too... I've talked to one of them personally. > > > > > > Bartonella causes welts... I had those too. They actually appeared > like a stretch mark, red then turning white. > > > > > > Here are the names of doctors I am aware of in Oregon and Washington > who might be able help you: > > > > > > Lyme Treating Doctors > > Dr. I Newman, MD, ND , MSOM > > Classical & Modern Medicine > > Rising Health > > 8301 NE Hazel Dell Ave. > > Vancouver, WA 98665 > > Phone: (360) 696-3800 > > Fax: (360) 696-0906 > > http://www.drdanielnewman.com/ > > > > Dr. Stacey Raffety, BSN, LAc, ND (most experience in the Portland > area) > > Tigard Holistic Health Clinic > > 11930 SW Greenburg Road > > Tigard, Oregon 97223 > > Phone: (503) 639-1712 > > Fax: (971) 249-0319 > > http://www.tigardholistic.com/ > > > > Dr. Chapman, ND (trained under Drs. Stricker & ) > > 1567 SE Tacoma Street > > Portland, OR 97202 > > (503) 233-8113 > > http://chapmannd.org > > http://www.sellwoodfamilymedicine.com/ > > > > Dr. Usha Honeyman, DC, ND, DABCI > > 1368 NW Lincoln Ave., Corvallis, OR 97330 > > phone: (541) 754-6323 > > http://www.ushahoneyman.com > > > > > > > > I hope you can get some help. Let us know if you need any more help. > > > > > > > > > > New Member of the club... > > > > I've been reading through all these posts for a few days. I'm so glad > to have found this forum. > > > > My problem began in the summer of 2009 when I moved into an apartment > with a pigeon nesting on the small balcony off my bedroom. When the > mother left the baby small black mites began to enter my room and the > problems began. The first week my body was covered in tiny red itchy > welts. I had a pest company spray my apartment several times. I kept my > clothes in totes with moth balls, washed and dried my clothes and > bedding daily.. drying all clothes before wearing them. I never wear the > same thing twice in a row. > > > > Nearly three years and three apartments later I am still experiencing > problems. I get tiny red bumps all over my body, mostly on my chest and > legs. They don't itch terribly, but they look awful. I also experience > the crawling sensation periodically throughout the day. > > > > Here are a few things I would love to get feedback on. > > > > I am able to sleep throughout the night, this hasn't been an issue for > me since at least a month after it all began in 2009. If I do have > problems sleeping it's because of anxiety rather than feeling like bugs > are on me - what does this mean when so many of you are kept up at night > because of the sensations? > > > > I have lived with two different people at the height of my problem, > neither seemed to be affected. Why is that? > > > > Why could I see them in the beginning of my infestation, but no longer > can see a thing? This is the part drives me the most crazy. If I can't > see them, how do I effectively treat? > > > > I have never felt like I have had internal issues regarding the mites. > I don't cough, have itchy nostrils or ears or eyes. My scalp itches on > occasion, but I've chalked that up to being winter and having a dry > scalp in general. > > > > I feel relatively calm considering, but to counter that incredibly > anxious, distraught, and hopeless. > > > > I worry that just because I can't seen the red welts that I'm being > bitten.. although I just don't know. I am inconstant fear that I will > spread this to ones I love. > > > > I remember thinking in the summer of 2009, "This is fine, in a few > months it'll be all over," and now here I am, still in the middle of all > it. > > > > I am thankful that I've found this community and to see that there are > people who have come out of this alright. > > > > ML > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2012 Report Share Posted March 16, 2012 Hi ML,My husband and I both had the biting mites. I don't know if we passed it along to anyone... people are not forthcoming about it if they are experiencing something strange . My father-in-law had a very itchy spot on his back that he could not resolve... he died at 95 last August, but I used to do his laundry for him in his washer/dryer. At first I used gloves to do it, but then I stopped after a while doing that. I always used ammonia and detergent in his wash. I was so careful about cleaning places we or I had sat in his house too, using Windex to clean the chair seats. Since it seemed like he was not getting anything from me or us, I let up on these practices... I'll never know if he did catch something from my doing his laundry. We saw him every Saturday and did chores for him.I still have those bumps too, but not too often. Often those bumps turn into little hard bumps, no longer red, and do not heal. I've been doing injections with antibiotics and it seems like some of those bumps have flattened and maybe are healing. Still too early to tell for sure.I don't worry about passing this on any more. I just have not seen clear evidence that anything can be passed along. If I still have some mites, they seem to be happy living on me, most likely imbedded. This idea is contrary to what is known about bird mites... bird mites apparently bite, but do drop off after a feed.From: "mldashseattle" <mldashseattle@...>bird mites Sent: Friday, March 16, 2012 12:10:48 AMSubject: Re: New Member of the club......Thanks Thank you all for such detailed responses. It is such a relief to know that I am not alone.I have only done internet research on Lyme and Bartonella and I'm unsure that those are necessarily what is going on with me? I do not have the stretch mark like rashes found with Bartonella. What does appear on my skin are what look like bits. They do not turn into lesions, they are just raised, red bumps/welts that are about a centimeter or less in circumference. They are randomly placed and not usually in bunches - like currently I have three on my upper arm, two with in an inch of each other and the other down and about three inches from the two. These red bumps are the reason I believe I still have the mites and that they are biting me.... But I never see them. If I feel a pinprick sensation that feels like I bite I will immediate go to the source, but there is never anything there. That said and after all I've read, perhaps it is part of a passed on infection or psychosis? I'd almost rather it be an infection, that way I would at least be at peace knowing I'm not spreading this on to my loved ones.I will order the recommended Doxy - No one has had trouble ordering it online without a prescription?I still have the worry that the mites are with me still and that I will pass them on to others.. What has been everyone's experience with this? Have you been able to live in the same space as others and have them be OK and unaffected? I appreciate you all very much. ML > > > > > > Hi mldashseattle, > > > > > > So many people here acquired birdmites the EXACTLY way you describe. > So many others... birds do seem to be the primary carriers, although > rodents can carry some of the same mites. I am sorry this didn't all > disappear for you after the mite experience, even with all 3 moves. Did > your bites turn into lesions? I have the tiny red bumps too. They are > still on my underarms mainly (hundreds) and scattered throughout my > body. I never had those bumps before this happened to me 4 years ago. > Some of the bites had turned into lesions which have since disappeared > (were on my abdomen) and I did have several large long lasting red > rashes that wrapped around my abdomen and neck. Those are gone now. > > > > > > I am at the stage where this does not keep me up at night, although I > still get biting sensations on my feet. I think now much of what I have > is a neurological symptom of Lyme and/or co-infections from what was > delivered by the mites... bacterias, fungi and parasites. > > > > > > My husband was afflicted by this too with many many bites on his body > -- we have remained in our house too. We were not able to move, but I > wanted to very badly. It was not possible financially for us to move. I > am on disability and my husband is not a high income maker, so there > would not have been a way for us. Some that have moved have done really > really well. Cecilia and Doris moved, got rid of everything they owned. > Doris has absolutely no symptoms remaining and Cecilia, who lives in > Sweden, has remaining infection, but not bothered by it terribly. Life > goes on for them. Aggi, who lives in Germany, is also doing really well, > 99% cured and has gotten on with her life. I know you have heard from > some of these individuals already. > > > > > > There can be infection delivered by mites, but not all people get > these infections. Some people develop Morgellons - Lyme and body > producing fibers (I did). Some mites are transmitting Lyme, some > co-infections like Bartonella and who knows what else. All these mites > seem to carry something different, maybe a different strain of Borrelia, > plus combinations of other co-infections, parasites. If you remain sick > has a lot to do with genetics and the detoxification ability of the > body, prior exposures to toxins. The body has a genetic ability to detox > and some genetically do not have this ability. There is much being > revealed about this topic now. Aandraya has talked about how many of the > crawling sensations are typical Bartonella... all of these infections > affect the brain and central nervous system. Not everyone gets these > infections, but most do get something. Is Lyme endemic in your area? I > know you live in Seattle and my family lives in northern Oregon... my > sister has Lyme in OR. Lyme is everywhere now. I think birds are > carrying bartonella and it is being transmitted to mites, or maybe it is > the other way around, mites are carrying bartonella and giving it to > birds, I don't know which. Birds migrate everywhere... Canada is being > hit hard by Lyme disease now according to a Lyme Literate doctor who > knows about these things. > > > > > > There is post-traumatic stress from this experience, but the anxiety > may be caused by an infection that has passed through the blood, brain > barrier. I know many of us have had this affect the brain, myself > included... with treatment it gets better. Can you find a Lyme Literate > doctor in Washington? I know there are no LLMDs in Oregon, as I've > looked for my sister, but there are 3 doctors that are naturopaths who > treat and are trained to treat Lyme and coinfections. They can prescribe > too... I've talked to one of them personally. > > > > > > Bartonella causes welts... I had those too. They actually appeared > like a stretch mark, red then turning white. > > > > > > Here are the names of doctors I am aware of in Oregon and Washington > who might be able help you: > > > > > > Lyme Treating Doctors > > Dr. I Newman, MD, ND , MSOM > > Classical & Modern Medicine > > Rising Health > > 8301 NE Hazel Dell Ave. > > Vancouver, WA 98665 > > Phone: (360) 696-3800 > > Fax: (360) 696-0906 > > http://www.drdanielnewman.com/ > > > > Dr. Stacey Raffety, BSN, LAc, ND (most experience in the Portland > area) > > Tigard Holistic Health Clinic > > 11930 SW Greenburg Road > > Tigard, Oregon 97223 > > Phone: (503) 639-1712 > > Fax: (971) 249-0319 > > http://www.tigardholistic.com/ > > > > Dr. Chapman, ND (trained under Drs. Stricker & ) > > 1567 SE Tacoma Street > > Portland, OR 97202 > > (503) 233-8113 > > http://chapmannd.org > > http://www.sellwoodfamilymedicine.com/ > > > > Dr. Usha Honeyman, DC, ND, DABCI > > 1368 NW Lincoln Ave., Corvallis, OR 97330 > > phone: (541) 754-6323 > > http://www.ushahoneyman.com > > > > > > > > I hope you can get some help. Let us know if you need any more help. > > > > > > > > > > New Member of the club... > > > > I've been reading through all these posts for a few days. I'm so glad > to have found this forum. > > > > My problem began in the summer of 2009 when I moved into an apartment > with a pigeon nesting on the small balcony off my bedroom. When the > mother left the baby small black mites began to enter my room and the > problems began. The first week my body was covered in tiny red itchy > welts. I had a pest company spray my apartment several times. I kept my > clothes in totes with moth balls, washed and dried my clothes and > bedding daily.. drying all clothes before wearing them. I never wear the > same thing twice in a row. > > > > Nearly three years and three apartments later I am still experiencing > problems. I get tiny red bumps all over my body, mostly on my chest and > legs. They don't itch terribly, but they look awful. I also experience > the crawling sensation periodically throughout the day. > > > > Here are a few things I would love to get feedback on. > > > > I am able to sleep throughout the night, this hasn't been an issue for > me since at least a month after it all began in 2009. If I do have > problems sleeping it's because of anxiety rather than feeling like bugs > are on me - what does this mean when so many of you are kept up at night > because of the sensations? > > > > I have lived with two different people at the height of my problem, > neither seemed to be affected. Why is that? > > > > Why could I see them in the beginning of my infestation, but no longer > can see a thing? This is the part drives me the most crazy. If I can't > see them, how do I effectively treat? > > > > I have never felt like I have had internal issues regarding the mites. > I don't cough, have itchy nostrils or ears or eyes. My scalp itches on > occasion, but I've chalked that up to being winter and having a dry > scalp in general. > > > > I feel relatively calm considering, but to counter that incredibly > anxious, distraught, and hopeless. > > > > I worry that just because I can't seen the red welts that I'm being > bitten.. although I just don't know. I am inconstant fear that I will > spread this to ones I love. > > > > I remember thinking in the summer of 2009, "This is fine, in a few > months it'll be all over," and now here I am, still in the middle of all > it. > > > > I am thankful that I've found this community and to see that there are > people who have come out of this alright. > > > > ML > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2012 Report Share Posted March 16, 2012 Hi and ML, I have been reading that the Nothern Fowl Mites live in and on the host their entire life cycle. This is why I suspected me having a combo of NFM and D. Galinae (red bird mite), because I for sure had the burrowing feeling as well ! Von: "Goldstein@..." <Goldstein@...>An: bird mites Gesendet: 14:28 Freitag, 16.März 2012Betreff: Re: Re: New Member of the club......Thanks Hi ML, My husband and I both had the biting mites. I don't know if we passed it along to anyone... people are not forthcoming about it if they are experiencing something strange . My father-in-law had a very itchy spot on his back that he could not resolve... he died at 95 last August, but I used to do his laundry for him in his washer/dryer. At first I used gloves to do it, but then I stopped after a while doing that. I always used ammonia and detergent in his wash. I was so careful about cleaning places we or I had sat in his house too, using Windex to clean the chair seats. Since it seemed like he was not getting anything from me or us, I let up on these practices... I'll never know if he did catch something from my doing his laundry. We saw him every Saturday and did chores for him. I still have those bumps too, but not too often. Often those bumps turn into little hard bumps, no longer red, and do not heal. I've been doing injections with antibiotics and it seems like some of those bumps have flattened and maybe are healing. Still too early to tell for sure. I don't worry about passing this on any more. I just have not seen clear evidence that anything can be passed along. If I still have some mites, they seem to be happy living on me, most likely imbedded. This idea is contrary to what is known about bird mites... bird mites apparently bite, but do drop off after a feed. From: "mldashseattle" <mldashseattle@...>bird mites Sent: Friday, March 16, 2012 12:10:48 AMSubject: Re: New Member of the club......Thanks Thank you all for such detailed responses. It is such a relief to know that I am not alone.I have only done internet research on Lyme and Bartonella and I'm unsure that those are necessarily what is going on with me? I do not have the stretch mark like rashes found with Bartonella. What does appear on my skin are what look like bits. They do not turn into lesions, they are just raised, red bumps/welts that are about a centimeter or less in circumference. They are randomly placed and not usually in bunches - like currently I have three on my upper arm, two with in an inch of each other and the other down and about three inches from the two. These red bumps are the reason I believe I still have the mites and that they are biting me.... But I never see them. If I feel a pinprick sensation that feels like I bite I will immediate go to the source, but there is never anything there. That said and after all I've read, perhaps it is part of a passed on infection or psychosis? I'd almost rather it be an infection, that way I would at least be at peace knowing I'm not spreading this on to my loved ones.I will order the recommended Doxy - No one has had trouble ordering it online without a prescription?I still have the worry that the mites are with me still and that I will pass them on to others.. What has been everyone's experience with this? Have you been able to live in the same space as others and have them be OK and unaffected? I appreciate you all very much. ML > > > > > > Hi mldashseattle, > > > > > > So many people here acquired birdmites the EXACTLY way you describe. > So many others... birds do seem to be the primary carriers, although > rodents can carry some of the same mites. I am sorry this didn't all > disappear for you after the mite experience, even with all 3 moves. Did > your bites turn into lesions? I have the tiny red bumps too. They are > still on my underarms mainly (hundreds) and scattered throughout my > body. I never had those bumps before this happened to me 4 years ago. > Some of the bites had turned into lesions which have since disappeared > (were on my abdomen) and I did have several large long lasting red > rashes that wrapped around my abdomen and neck. Those are gone now. > > > > > > I am at the stage where this does not keep me up at night, although I > still get biting sensations on my feet. I think now much of what I have > is a neurological symptom of Lyme and/or co-infections from what was > delivered by the mites... bacterias, fungi and parasites. > > > > > > My husband was afflicted by this too with many many bites on his body > -- we have remained in our house too. We were not able to move, but I > wanted to very badly. It was not possible financially for us to move. I > am on disability and my husband is not a high income maker, so there > would not have been a way for us. Some that have moved have done really > really well. Cecilia and Doris moved, got rid of everything they owned. > Doris has absolutely no symptoms remaining and Cecilia, who lives in > Sweden, has remaining infection, but not bothered by it terribly. Life > goes on for them. Aggi, who lives in Germany, is also doing really well, > 99% cured and has gotten on with her life. I know you have heard from > some of these individuals already. > > > > > > There can be infection delivered by mites, but not all people get > these infections. Some people develop Morgellons - Lyme and body > producing fibers (I did). Some mites are transmitting Lyme, some > co-infections like Bartonella and who knows what else. All these mites > seem to carry something different, maybe a different strain of Borrelia, > plus combinations of other co-infections, parasites. If you remain sick > has a lot to do with genetics and the detoxification ability of the > body, prior exposures to toxins. The body has a genetic ability to detox > and some genetically do not have this ability. There is much being > revealed about this topic now. Aandraya has talked about how many of the > crawling sensations are typical Bartonella... all of these infections > affect the brain and central nervous system. Not everyone gets these > infections, but most do get something. Is Lyme endemic in your area? I > know you live in Seattle and my family lives in northern Oregon... my > sister has Lyme in OR. Lyme is everywhere now. I think birds are > carrying bartonella and it is being transmitted to mites, or maybe it is > the other way around, mites are carrying bartonella and giving it to > birds, I don't know which. Birds migrate everywhere... Canada is being > hit hard by Lyme disease now according to a Lyme Literate doctor who > knows about these things. > > > > > > There is post-traumatic stress from this experience, but the anxiety > may be caused by an infection that has passed through the blood, brain > barrier. I know many of us have had this affect the brain, myself > included... with treatment it gets better. Can you find a Lyme Literate > doctor in Washington? I know there are no LLMDs in Oregon, as I've > looked for my sister, but there are 3 doctors that are naturopaths who > treat and are trained to treat Lyme and coinfections. They can prescribe > too... I've talked to one of them personally. > > > > > > Bartonella causes welts... I had those too. They actually appeared > like a stretch mark, red then turning white. > > > > > > Here are the names of doctors I am aware of in Oregon and Washington > who might be able help you: > > > > > > Lyme Treating Doctors > > Dr. I Newman, MD, ND , MSOM > > Classical & Modern Medicine > > Rising Health > > 8301 NE Hazel Dell Ave. > > Vancouver, WA 98665 > > Phone: (360) 696-3800 > > Fax: (360) 696-0906 > > http://www.drdanielnewman.com/ > > > > Dr. Stacey Raffety, BSN, LAc, ND (most experience in the Portland > area) > > Tigard Holistic Health Clinic > > 11930 SW Greenburg Road > > Tigard, Oregon 97223 > > Phone: (503) 639-1712 > > Fax: (971) 249-0319 > > http://www.tigardholistic.com/ > > > > Dr. Chapman, ND (trained under Drs. Stricker & ) > > 1567 SE Tacoma Street > > Portland, OR 97202 > > (503) 233-8113 > > http://chapmannd.org > > http://www.sellwoodfamilymedicine.com/ > > > > Dr. Usha Honeyman, DC, ND, DABCI > > 1368 NW Lincoln Ave., Corvallis, OR 97330 > > phone: (541) 754-6323 > > http://www.ushahoneyman.com > > > > > > > > I hope you can get some help. Let us know if you need any more help. > > > > > > > > > > New Member of the club... > > > > I've been reading through all these posts for a few days. I'm so glad > to have found this forum. > > > > My problem began in the summer of 2009 when I moved into an apartment > with a pigeon nesting on the small balcony off my bedroom. When the > mother left the baby small black mites began to enter my room and the > problems began. The first week my body was covered in tiny red itchy > welts. I had a pest company spray my apartment several times. I kept my > clothes in totes with moth balls, washed and dried my clothes and > bedding daily.. drying all clothes before wearing them. I never wear the > same thing twice in a row. > > > > Nearly three years and three apartments later I am still experiencing > problems. I get tiny red bumps all over my body, mostly on my chest and > legs. They don't itch terribly, but they look awful. I also experience > the crawling sensation periodically throughout the day. > > > > Here are a few things I would love to get feedback on. > > > > I am able to sleep throughout the night, this hasn't been an issue for > me since at least a month after it all began in 2009. If I do have > problems sleeping it's because of anxiety rather than feeling like bugs > are on me - what does this mean when so many of you are kept up at night > because of the sensations? > > > > I have lived with two different people at the height of my problem, > neither seemed to be affected. Why is that? > > > > Why could I see them in the beginning of my infestation, but no longer > can see a thing? This is the part drives me the most crazy. If I can't > see them, how do I effectively treat? > > > > I have never felt like I have had internal issues regarding the mites. > I don't cough, have itchy nostrils or ears or eyes. My scalp itches on > occasion, but I've chalked that up to being winter and having a dry > scalp in general. > > > > I feel relatively calm considering, but to counter that incredibly > anxious, distraught, and hopeless. > > > > I worry that just because I can't seen the red welts that I'm being > bitten.. although I just don't know. I am inconstant fear that I will > spread this to ones I love. > > > > I remember thinking in the summer of 2009, "This is fine, in a few > months it'll be all over," and now here I am, still in the middle of all > it. > > > > I am thankful that I've found this community and to see that there are > people who have come out of this alright. > > > > ML > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2012 Report Share Posted March 16, 2012 That's a good point Aggi. Maybe that is what I had too.Btw, I wish I were over there. My daughter has pneumonia right now and I have been very upset thinking I could help her and so far away. My granddaughter is sick too.From: "Aggi Assmann" <aggi_assmann@...>bird mites Sent: Friday, March 16, 2012 6:39:42 AMSubject: Re: Re: New Member of the club......Thanks Hi and ML, I have been reading that the Nothern Fowl Mites live in and on the host their entire life cycle. This is why I suspected me having a combo of NFM and D. Galinae (red bird mite), because I for sure had the burrowing feeling as well ! Von: "Goldstein@..." <Goldstein@...>An: bird mites Gesendet: 14:28 Freitag, 16.März 2012Betreff: Re: Re: New Member of the club......Thanks Hi ML, My husband and I both had the biting mites. I don't know if we passed it along to anyone... people are not forthcoming about it if they are experiencing something strange . My father-in-law had a very itchy spot on his back that he could not resolve... he died at 95 last August, but I used to do his laundry for him in his washer/dryer. At first I used gloves to do it, but then I stopped after a while doing that. I always used ammonia and detergent in his wash. I was so careful about cleaning places we or I had sat in his house too, using Windex to clean the chair seats. Since it seemed like he was not getting anything from me or us, I let up on these practices... I'll never know if he did catch something from my doing his laundry. We saw him every Saturday and did chores for him. I still have those bumps too, but not too often. Often those bumps turn into little hard bumps, no longer red, and do not heal. I've been doing injections with antibiotics and it seems like some of those bumps have flattened and maybe are healing. Still too early to tell for sure. I don't worry about passing this on any more. I just have not seen clear evidence that anything can be passed along. If I still have some mites, they seem to be happy living on me, most likely imbedded. This idea is contrary to what is known about bird mites... bird mites apparently bite, but do drop off after a feed. From: "mldashseattle" <mldashseattle@...>bird mites Sent: Friday, March 16, 2012 12:10:48 AMSubject: Re: New Member of the club......Thanks Thank you all for such detailed responses. It is such a relief to know that I am not alone.I have only done internet research on Lyme and Bartonella and I'm unsure that those are necessarily what is going on with me? I do not have the stretch mark like rashes found with Bartonella. What does appear on my skin are what look like bits. They do not turn into lesions, they are just raised, red bumps/welts that are about a centimeter or less in circumference. They are randomly placed and not usually in bunches - like currently I have three on my upper arm, two with in an inch of each other and the other down and about three inches from the two. These red bumps are the reason I believe I still have the mites and that they are biting me.... But I never see them. If I feel a pinprick sensation that feels like I bite I will immediate go to the source, but there is never anything there. That said and after all I've read, perhaps it is part of a passed on infection or psychosis? I'd almost rather it be an infection, that way I would at least be at peace knowing I'm not spreading this on to my loved ones.I will order the recommended Doxy - No one has had trouble ordering it online without a prescription?I still have the worry that the mites are with me still and that I will pass them on to others.. What has been everyone's experience with this? Have you been able to live in the same space as others and have them be OK and unaffected? I appreciate you all very much. ML > > > > > > Hi mldashseattle, > > > > > > So many people here acquired birdmites the EXACTLY way you describe. > So many others... birds do seem to be the primary carriers, although > rodents can carry some of the same mites. I am sorry this didn't all > disappear for you after the mite experience, even with all 3 moves. Did > your bites turn into lesions? I have the tiny red bumps too. They are > still on my underarms mainly (hundreds) and scattered throughout my > body. I never had those bumps before this happened to me 4 years ago. > Some of the bites had turned into lesions which have since disappeared > (were on my abdomen) and I did have several large long lasting red > rashes that wrapped around my abdomen and neck. Those are gone now. > > > > > > I am at the stage where this does not keep me up at night, although I > still get biting sensations on my feet. I think now much of what I have > is a neurological symptom of Lyme and/or co-infections from what was > delivered by the mites... bacterias, fungi and parasites. > > > > > > My husband was afflicted by this too with many many bites on his body > -- we have remained in our house too. We were not able to move, but I > wanted to very badly. It was not possible financially for us to move. I > am on disability and my husband is not a high income maker, so there > would not have been a way for us. Some that have moved have done really > really well. Cecilia and Doris moved, got rid of everything they owned. > Doris has absolutely no symptoms remaining and Cecilia, who lives in > Sweden, has remaining infection, but not bothered by it terribly. Life > goes on for them. Aggi, who lives in Germany, is also doing really well, > 99% cured and has gotten on with her life. I know you have heard from > some of these individuals already. > > > > > > There can be infection delivered by mites, but not all people get > these infections. Some people develop Morgellons - Lyme and body > producing fibers (I did). Some mites are transmitting Lyme, some > co-infections like Bartonella and who knows what else. All these mites > seem to carry something different, maybe a different strain of Borrelia, > plus combinations of other co-infections, parasites. If you remain sick > has a lot to do with genetics and the detoxification ability of the > body, prior exposures to toxins. The body has a genetic ability to detox > and some genetically do not have this ability. There is much being > revealed about this topic now. Aandraya has talked about how many of the > crawling sensations are typical Bartonella... all of these infections > affect the brain and central nervous system. Not everyone gets these > infections, but most do get something. Is Lyme endemic in your area? I > know you live in Seattle and my family lives in northern Oregon... my > sister has Lyme in OR. Lyme is everywhere now. I think birds are > carrying bartonella and it is being transmitted to mites, or maybe it is > the other way around, mites are carrying bartonella and giving it to > birds, I don't know which. Birds migrate everywhere... Canada is being > hit hard by Lyme disease now according to a Lyme Literate doctor who > knows about these things. > > > > > > There is post-traumatic stress from this experience, but the anxiety > may be caused by an infection that has passed through the blood, brain > barrier. I know many of us have had this affect the brain, myself > included... with treatment it gets better. Can you find a Lyme Literate > doctor in Washington? I know there are no LLMDs in Oregon, as I've > looked for my sister, but there are 3 doctors that are naturopaths who > treat and are trained to treat Lyme and coinfections. They can prescribe > too... I've talked to one of them personally. > > > > > > Bartonella causes welts... I had those too. They actually appeared > like a stretch mark, red then turning white. > > > > > > Here are the names of doctors I am aware of in Oregon and Washington > who might be able help you: > > > > > > Lyme Treating Doctors > > Dr. I Newman, MD, ND , MSOM > > Classical & Modern Medicine > > Rising Health > > 8301 NE Hazel Dell Ave. > > Vancouver, WA 98665 > > Phone: (360) 696-3800 > > Fax: (360) 696-0906 > > http://www.drdanielnewman.com/ > > > > Dr. Stacey Raffety, BSN, LAc, ND (most experience in the Portland > area) > > Tigard Holistic Health Clinic > > 11930 SW Greenburg Road > > Tigard, Oregon 97223 > > Phone: (503) 639-1712 > > Fax: (971) 249-0319 > > http://www.tigardholistic.com/ > > > > Dr. Chapman, ND (trained under Drs. Stricker & ) > > 1567 SE Tacoma Street > > Portland, OR 97202 > > (503) 233-8113 > > http://chapmannd.org > > http://www.sellwoodfamilymedicine.com/ > > > > Dr. Usha Honeyman, DC, ND, DABCI > > 1368 NW Lincoln Ave., Corvallis, OR 97330 > > phone: (541) 754-6323 > > http://www.ushahoneyman.com > > > > > > > > I hope you can get some help. Let us know if you need any more help. > > > > > > > > > > New Member of the club... > > > > I've been reading through all these posts for a few days. I'm so glad > to have found this forum. > > > > My problem began in the summer of 2009 when I moved into an apartment > with a pigeon nesting on the small balcony off my bedroom. When the > mother left the baby small black mites began to enter my room and the > problems began. The first week my body was covered in tiny red itchy > welts. I had a pest company spray my apartment several times. I kept my > clothes in totes with moth balls, washed and dried my clothes and > bedding daily.. drying all clothes before wearing them. I never wear the > same thing twice in a row. > > > > Nearly three years and three apartments later I am still experiencing > problems. I get tiny red bumps all over my body, mostly on my chest and > legs. They don't itch terribly, but they look awful. I also experience > the crawling sensation periodically throughout the day. > > > > Here are a few things I would love to get feedback on. > > > > I am able to sleep throughout the night, this hasn't been an issue for > me since at least a month after it all began in 2009. If I do have > problems sleeping it's because of anxiety rather than feeling like bugs > are on me - what does this mean when so many of you are kept up at night > because of the sensations? > > > > I have lived with two different people at the height of my problem, > neither seemed to be affected. Why is that? > > > > Why could I see them in the beginning of my infestation, but no longer > can see a thing? This is the part drives me the most crazy. If I can't > see them, how do I effectively treat? > > > > I have never felt like I have had internal issues regarding the mites. > I don't cough, have itchy nostrils or ears or eyes. My scalp itches on > occasion, but I've chalked that up to being winter and having a dry > scalp in general. > > > > I feel relatively calm considering, but to counter that incredibly > anxious, distraught, and hopeless. > > > > I worry that just because I can't seen the red welts that I'm being > bitten.. although I just don't know. I am inconstant fear that I will > spread this to ones I love. > > > > I remember thinking in the summer of 2009, "This is fine, in a few > months it'll be all over," and now here I am, still in the middle of all > it. > > > > I am thankful that I've found this community and to see that there are > people who have come out of this alright. > > > > ML > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2012 Report Share Posted March 16, 2012 Oh no, you must be worrying to death and not be able to be with them. Is your daughter in hospital right now? So sorry dear ! Worries never seem to cease for you either - as if you didn't have enough yourself... Healing wishes and kisses, Aggi Von: "Goldstein@..." <Goldstein@...>An: bird mites Gesendet: 14:54 Freitag, 16.März 2012Betreff: Re: Re: New Member of the club......Thanks That's a good point Aggi. Maybe that is what I had too. Btw, I wish I were over there. My daughter has pneumonia right now and I have been very upset thinking I could help her and so far away. My granddaughter is sick too. From: "Aggi Assmann" <aggi_assmann@...>bird mites Sent: Friday, March 16, 2012 6:39:42 AMSubject: Re: Re: New Member of the club......Thanks Hi and ML, I have been reading that the Nothern Fowl Mites live in and on the host their entire life cycle. This is why I suspected me having a combo of NFM and D. Galinae (red bird mite), because I for sure had the burrowing feeling as well ! Von: "Goldstein@..." <Goldstein@...>An: bird mites Gesendet: 14:28 Freitag, 16.März 2012Betreff: Re: Re: New Member of the club......Thanks Hi ML, My husband and I both had the biting mites. I don't know if we passed it along to anyone... people are not forthcoming about it if they are experiencing something strange . My father-in-law had a very itchy spot on his back that he could not resolve... he died at 95 last August, but I used to do his laundry for him in his washer/dryer. At first I used gloves to do it, but then I stopped after a while doing that. I always used ammonia and detergent in his wash. I was so careful about cleaning places we or I had sat in his house too, using Windex to clean the chair seats. Since it seemed like he was not getting anything from me or us, I let up on these practices... I'll never know if he did catch something from my doing his laundry. We saw him every Saturday and did chores for him. I still have those bumps too, but not too often. Often those bumps turn into little hard bumps, no longer red, and do not heal. I've been doing injections with antibiotics and it seems like some of those bumps have flattened and maybe are healing. Still too early to tell for sure. I don't worry about passing this on any more. I just have not seen clear evidence that anything can be passed along. If I still have some mites, they seem to be happy living on me, most likely imbedded. This idea is contrary to what is known about bird mites... bird mites apparently bite, but do drop off after a feed. From: "mldashseattle" <mldashseattle@...>bird mites Sent: Friday, March 16, 2012 12:10:48 AMSubject: Re: New Member of the club......Thanks Thank you all for such detailed responses. It is such a relief to know that I am not alone.I have only done internet research on Lyme and Bartonella and I'm unsure that those are necessarily what is going on with me? I do not have the stretch mark like rashes found with Bartonella. What does appear on my skin are what look like bits. They do not turn into lesions, they are just raised, red bumps/welts that are about a centimeter or less in circumference. They are randomly placed and not usually in bunches - like currently I have three on my upper arm, two with in an inch of each other and the other down and about three inches from the two. These red bumps are the reason I believe I still have the mites and that they are biting me.... But I never see them. If I feel a pinprick sensation that feels like I bite I will immediate go to the source, but there is never anything there. That said and after all I've read, perhaps it is part of a passed on infection or psychosis? I'd almost rather it be an infection, that way I would at least be at peace knowing I'm not spreading this on to my loved ones.I will order the recommended Doxy - No one has had trouble ordering it online without a prescription?I still have the worry that the mites are with me still and that I will pass them on to others.. What has been everyone's experience with this? Have you been able to live in the same space as others and have them be OK and unaffected? I appreciate you all very much. ML > > > > > > Hi mldashseattle, > > > > > > So many people here acquired birdmites the EXACTLY way you describe. > So many others... birds do seem to be the primary carriers, although > rodents can carry some of the same mites. I am sorry this didn't all > disappear for you after the mite experience, even with all 3 moves. Did > your bites turn into lesions? I have the tiny red bumps too. They are > still on my underarms mainly (hundreds) and scattered throughout my > body. I never had those bumps before this happened to me 4 years ago. > Some of the bites had turned into lesions which have since disappeared > (were on my abdomen) and I did have several large long lasting red > rashes that wrapped around my abdomen and neck. Those are gone now. > > > > > > I am at the stage where this does not keep me up at night, although I > still get biting sensations on my feet. I think now much of what I have > is a neurological symptom of Lyme and/or co-infections from what was > delivered by the mites... bacterias, fungi and parasites. > > > > > > My husband was afflicted by this too with many many bites on his body > -- we have remained in our house too. We were not able to move, but I > wanted to very badly. It was not possible financially for us to move. I > am on disability and my husband is not a high income maker, so there > would not have been a way for us. Some that have moved have done really > really well. Cecilia and Doris moved, got rid of everything they owned. > Doris has absolutely no symptoms remaining and Cecilia, who lives in > Sweden, has remaining infection, but not bothered by it terribly. Life > goes on for them. Aggi, who lives in Germany, is also doing really well, > 99% cured and has gotten on with her life. I know you have heard from > some of these individuals already. > > > > > > There can be infection delivered by mites, but not all people get > these infections. Some people develop Morgellons - Lyme and body > producing fibers (I did). Some mites are transmitting Lyme, some > co-infections like Bartonella and who knows what else. All these mites > seem to carry something different, maybe a different strain of Borrelia, > plus combinations of other co-infections, parasites. If you remain sick > has a lot to do with genetics and the detoxification ability of the > body, prior exposures to toxins. The body has a genetic ability to detox > and some genetically do not have this ability. There is much being > revealed about this topic now. Aandraya has talked about how many of the > crawling sensations are typical Bartonella... all of these infections > affect the brain and central nervous system. Not everyone gets these > infections, but most do get something. Is Lyme endemic in your area? I > know you live in Seattle and my family lives in northern Oregon... my > sister has Lyme in OR. Lyme is everywhere now. I think birds are > carrying bartonella and it is being transmitted to mites, or maybe it is > the other way around, mites are carrying bartonella and giving it to > birds, I don't know which. Birds migrate everywhere... Canada is being > hit hard by Lyme disease now according to a Lyme Literate doctor who > knows about these things. > > > > > > There is post-traumatic stress from this experience, but the anxiety > may be caused by an infection that has passed through the blood, brain > barrier. I know many of us have had this affect the brain, myself > included... with treatment it gets better. Can you find a Lyme Literate > doctor in Washington? I know there are no LLMDs in Oregon, as I've > looked for my sister, but there are 3 doctors that are naturopaths who > treat and are trained to treat Lyme and coinfections. They can prescribe > too... I've talked to one of them personally. > > > > > > Bartonella causes welts... I had those too. They actually appeared > like a stretch mark, red then turning white. > > > > > > Here are the names of doctors I am aware of in Oregon and Washington > who might be able help you: > > > > > > Lyme Treating Doctors > > Dr. I Newman, MD, ND , MSOM > > Classical & Modern Medicine > > Rising Health > > 8301 NE Hazel Dell Ave. > > Vancouver, WA 98665 > > Phone: (360) 696-3800 > > Fax: (360) 696-0906 > > http://www.drdanielnewman.com/ > > > > Dr. Stacey Raffety, BSN, LAc, ND (most experience in the Portland > area) > > Tigard Holistic Health Clinic > > 11930 SW Greenburg Road > > Tigard, Oregon 97223 > > Phone: (503) 639-1712 > > Fax: (971) 249-0319 > > http://www.tigardholistic.com/ > > > > Dr. Chapman, ND (trained under Drs. Stricker & ) > > 1567 SE Tacoma Street > > Portland, OR 97202 > > (503) 233-8113 > > http://chapmannd.org > > http://www.sellwoodfamilymedicine.com/ > > > > Dr. Usha Honeyman, DC, ND, DABCI > > 1368 NW Lincoln Ave., Corvallis, OR 97330 > > phone: (541) 754-6323 > > http://www.ushahoneyman.com > > > > > > > > I hope you can get some help. Let us know if you need any more help. > > > > > > > > > > New Member of the club... > > > > I've been reading through all these posts for a few days. I'm so glad > to have found this forum. > > > > My problem began in the summer of 2009 when I moved into an apartment > with a pigeon nesting on the small balcony off my bedroom. When the > mother left the baby small black mites began to enter my room and the > problems began. The first week my body was covered in tiny red itchy > welts. I had a pest company spray my apartment several times. I kept my > clothes in totes with moth balls, washed and dried my clothes and > bedding daily.. drying all clothes before wearing them. I never wear the > same thing twice in a row. > > > > Nearly three years and three apartments later I am still experiencing > problems. I get tiny red bumps all over my body, mostly on my chest and > legs. They don't itch terribly, but they look awful. I also experience > the crawling sensation periodically throughout the day. > > > > Here are a few things I would love to get feedback on. > > > > I am able to sleep throughout the night, this hasn't been an issue for > me since at least a month after it all began in 2009. If I do have > problems sleeping it's because of anxiety rather than feeling like bugs > are on me - what does this mean when so many of you are kept up at night > because of the sensations? > > > > I have lived with two different people at the height of my problem, > neither seemed to be affected. Why is that? > > > > Why could I see them in the beginning of my infestation, but no longer > can see a thing? This is the part drives me the most crazy. If I can't > see them, how do I effectively treat? > > > > I have never felt like I have had internal issues regarding the mites. > I don't cough, have itchy nostrils or ears or eyes. My scalp itches on > occasion, but I've chalked that up to being winter and having a dry > scalp in general. > > > > I feel relatively calm considering, but to counter that incredibly > anxious, distraught, and hopeless. > > > > I worry that just because I can't seen the red welts that I'm being > bitten.. although I just don't know. I am inconstant fear that I will > spread this to ones I love. > > > > I remember thinking in the summer of 2009, "This is fine, in a few > months it'll be all over," and now here I am, still in the middle of all > it. > > > > I am thankful that I've found this community and to see that there are > people who have come out of this alright. > > > > ML > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2012 Report Share Posted March 16, 2012 Aw linda!:-( Sorry ur daughter n grandaughter sick. Thats realy dificult for u bein so faraway Im sorry n let us know how they are,ok And she will know u r thinkin of them all the time,but its tough X ------------------------------ On Fri, Mar 16, 2012 6:54 AM PDT Goldstein@... wrote: >That's a good point Aggi. Maybe that is what I had too. > > >Btw, I wish I were over there. My daughter has pneumonia right now and I have been very upset thinking I could help her and so far away. My granddaughter is sick too. > > > > > New Member of the club... >> > >> > I've been reading through all these posts for a few days. I'm so glad >> to have found this forum. >> > >> > My problem began in the summer of 2009 when I moved into an apartment >> with a pigeon nesting on the small balcony off my bedroom. When the >> mother left the baby small black mites began to enter my room and the >> problems began. The first week my body was covered in tiny red itchy >> welts. I had a pest company spray my apartment several times. I kept my >> clothes in totes with moth balls, washed and dried my clothes and >> bedding daily.. drying all clothes before wearing them. I never wear the >> same thing twice in a row. >> > >> > Nearly three years and three apartments later I am still experiencing >> problems. I get tiny red bumps all over my body, mostly on my chest and >> legs. They don't itch terribly, but they look awful. I also experience >> the crawling sensation periodically throughout the day. >> > >> > Here are a few things I would love to get feedback on. >> > >> > I am able to sleep throughout the night, this hasn't been an issue for >> me since at least a month after it all began in 2009. If I do have >> problems sleeping it's because of anxiety rather than feeling like bugs >> are on me - what does this mean when so many of you are kept up at night >> because of the sensations? >> > >> > I have lived with two different people at the height of my problem, >> neither seemed to be affected. Why is that? >> > >> > Why could I see them in the beginning of my infestation, but no longer >> can see a thing? This is the part drives me the most crazy. If I can't >> see them, how do I effectively treat? >> > >> > I have never felt like I have had internal issues regarding the mites. >> I don't cough, have itchy nostrils or ears or eyes. My scalp itches on >> occasion, but I've chalked that up to being winter and having a dry >> scalp in general. >> > >> > I feel relatively calm considering, but to counter that incredibly >> anxious, distraught, and hopeless. >> > >> > I worry that just because I can't seen the red welts that I'm being >> bitten.. although I just don't know. I am inconstant fear that I will >> spread this to ones I love. >> > >> > I remember thinking in the summer of 2009, " This is fine, in a few >> months it'll be all over, " and now here I am, still in the middle of all >> it. >> > >> > I am thankful that I've found this community and to see that there are >> people who have come out of this alright. >> > >> > ML >> > >> > >> > >> > ------------------------------------ >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2012 Report Share Posted March 16, 2012 Thanks Aggi. She is at home, but one of the things that makes it hard is that she has to take care of the kids while so sick. From: "Aggi Assmann" <aggi_assmann@...>bird mites Sent: Friday, March 16, 2012 7:16:28 AMSubject: Re: Re: New Member of the club......Thanks Oh no, you must be worrying to death and not be able to be with them. Is your daughter in hospital right now? So sorry dear ! Worries never seem to cease for you either - as if you didn't have enough yourself... Healing wishes and kisses, Aggi Von: "Goldstein@..." <Goldstein@...>An: bird mites Gesendet: 14:54 Freitag, 16.März 2012Betreff: Re: Re: New Member of the club......Thanks That's a good point Aggi. Maybe that is what I had too. Btw, I wish I were over there. My daughter has pneumonia right now and I have been very upset thinking I could help her and so far away. My granddaughter is sick too. From: "Aggi Assmann" <aggi_assmann@...>bird mites Sent: Friday, March 16, 2012 6:39:42 AMSubject: Re: Re: New Member of the club......Thanks Hi and ML, I have been reading that the Nothern Fowl Mites live in and on the host their entire life cycle. This is why I suspected me having a combo of NFM and D. Galinae (red bird mite), because I for sure had the burrowing feeling as well ! Von: "Goldstein@..." <Goldstein@...>An: bird mites Gesendet: 14:28 Freitag, 16.März 2012Betreff: Re: Re: New Member of the club......Thanks Hi ML, My husband and I both had the biting mites. I don't know if we passed it along to anyone... people are not forthcoming about it if they are experiencing something strange . My father-in-law had a very itchy spot on his back that he could not resolve... he died at 95 last August, but I used to do his laundry for him in his washer/dryer. At first I used gloves to do it, but then I stopped after a while doing that. I always used ammonia and detergent in his wash. I was so careful about cleaning places we or I had sat in his house too, using Windex to clean the chair seats. Since it seemed like he was not getting anything from me or us, I let up on these practices... I'll never know if he did catch something from my doing his laundry. We saw him every Saturday and did chores for him. I still have those bumps too, but not too often. Often those bumps turn into little hard bumps, no longer red, and do not heal. I've been doing injections with antibiotics and it seems like some of those bumps have flattened and maybe are healing. Still too early to tell for sure. I don't worry about passing this on any more. I just have not seen clear evidence that anything can be passed along. If I still have some mites, they seem to be happy living on me, most likely imbedded. This idea is contrary to what is known about bird mites... bird mites apparently bite, but do drop off after a feed. From: "mldashseattle" <mldashseattle@...>bird mites Sent: Friday, March 16, 2012 12:10:48 AMSubject: Re: New Member of the club......Thanks Thank you all for such detailed responses. It is such a relief to know that I am not alone.I have only done internet research on Lyme and Bartonella and I'm unsure that those are necessarily what is going on with me? I do not have the stretch mark like rashes found with Bartonella. What does appear on my skin are what look like bits. They do not turn into lesions, they are just raised, red bumps/welts that are about a centimeter or less in circumference. They are randomly placed and not usually in bunches - like currently I have three on my upper arm, two with in an inch of each other and the other down and about three inches from the two. These red bumps are the reason I believe I still have the mites and that they are biting me.... But I never see them. If I feel a pinprick sensation that feels like I bite I will immediate go to the source, but there is never anything there. That said and after all I've read, perhaps it is part of a passed on infection or psychosis? I'd almost rather it be an infection, that way I would at least be at peace knowing I'm not spreading this on to my loved ones.I will order the recommended Doxy - No one has had trouble ordering it online without a prescription?I still have the worry that the mites are with me still and that I will pass them on to others.. What has been everyone's experience with this? Have you been able to live in the same space as others and have them be OK and unaffected? I appreciate you all very much. ML > > > > > > Hi mldashseattle, > > > > > > So many people here acquired birdmites the EXACTLY way you describe. > So many others... birds do seem to be the primary carriers, although > rodents can carry some of the same mites. I am sorry this didn't all > disappear for you after the mite experience, even with all 3 moves. Did > your bites turn into lesions? I have the tiny red bumps too. They are > still on my underarms mainly (hundreds) and scattered throughout my > body. I never had those bumps before this happened to me 4 years ago. > Some of the bites had turned into lesions which have since disappeared > (were on my abdomen) and I did have several large long lasting red > rashes that wrapped around my abdomen and neck. Those are gone now. > > > > > > I am at the stage where this does not keep me up at night, although I > still get biting sensations on my feet. I think now much of what I have > is a neurological symptom of Lyme and/or co-infections from what was > delivered by the mites... bacterias, fungi and parasites. > > > > > > My husband was afflicted by this too with many many bites on his body > -- we have remained in our house too. We were not able to move, but I > wanted to very badly. It was not possible financially for us to move. I > am on disability and my husband is not a high income maker, so there > would not have been a way for us. Some that have moved have done really > really well. Cecilia and Doris moved, got rid of everything they owned. > Doris has absolutely no symptoms remaining and Cecilia, who lives in > Sweden, has remaining infection, but not bothered by it terribly. Life > goes on for them. Aggi, who lives in Germany, is also doing really well, > 99% cured and has gotten on with her life. I know you have heard from > some of these individuals already. > > > > > > There can be infection delivered by mites, but not all people get > these infections. Some people develop Morgellons - Lyme and body > producing fibers (I did). Some mites are transmitting Lyme, some > co-infections like Bartonella and who knows what else. All these mites > seem to carry something different, maybe a different strain of Borrelia, > plus combinations of other co-infections, parasites. If you remain sick > has a lot to do with genetics and the detoxification ability of the > body, prior exposures to toxins. The body has a genetic ability to detox > and some genetically do not have this ability. There is much being > revealed about this topic now. Aandraya has talked about how many of the > crawling sensations are typical Bartonella... all of these infections > affect the brain and central nervous system. Not everyone gets these > infections, but most do get something. Is Lyme endemic in your area? I > know you live in Seattle and my family lives in northern Oregon... my > sister has Lyme in OR. Lyme is everywhere now. I think birds are > carrying bartonella and it is being transmitted to mites, or maybe it is > the other way around, mites are carrying bartonella and giving it to > birds, I don't know which. Birds migrate everywhere... Canada is being > hit hard by Lyme disease now according to a Lyme Literate doctor who > knows about these things. > > > > > > There is post-traumatic stress from this experience, but the anxiety > may be caused by an infection that has passed through the blood, brain > barrier. I know many of us have had this affect the brain, myself > included... with treatment it gets better. Can you find a Lyme Literate > doctor in Washington? I know there are no LLMDs in Oregon, as I've > looked for my sister, but there are 3 doctors that are naturopaths who > treat and are trained to treat Lyme and coinfections. They can prescribe > too... I've talked to one of them personally. > > > > > > Bartonella causes welts... I had those too. They actually appeared > like a stretch mark, red then turning white. > > > > > > Here are the names of doctors I am aware of in Oregon and Washington > who might be able help you: > > > > > > Lyme Treating Doctors > > Dr. I Newman, MD, ND , MSOM > > Classical & Modern Medicine > > Rising Health > > 8301 NE Hazel Dell Ave. > > Vancouver, WA 98665 > > Phone: (360) 696-3800 > > Fax: (360) 696-0906 > > http://www.drdanielnewman.com/ > > > > Dr. Stacey Raffety, BSN, LAc, ND (most experience in the Portland > area) > > Tigard Holistic Health Clinic > > 11930 SW Greenburg Road > > Tigard, Oregon 97223 > > Phone: (503) 639-1712 > > Fax: (971) 249-0319 > > http://www.tigardholistic.com/ > > > > Dr. Chapman, ND (trained under Drs. Stricker & ) > > 1567 SE Tacoma Street > > Portland, OR 97202 > > (503) 233-8113 > > http://chapmannd.org > > http://www.sellwoodfamilymedicine.com/ > > > > Dr. Usha Honeyman, DC, ND, DABCI > > 1368 NW Lincoln Ave., Corvallis, OR 97330 > > phone: (541) 754-6323 > > http://www.ushahoneyman.com > > > > > > > > I hope you can get some help. Let us know if you need any more help. > > > > > > > > > > New Member of the club... > > > > I've been reading through all these posts for a few days. I'm so glad > to have found this forum. > > > > My problem began in the summer of 2009 when I moved into an apartment > with a pigeon nesting on the small balcony off my bedroom. When the > mother left the baby small black mites began to enter my room and the > problems began. The first week my body was covered in tiny red itchy > welts. I had a pest company spray my apartment several times. I kept my > clothes in totes with moth balls, washed and dried my clothes and > bedding daily.. drying all clothes before wearing them. I never wear the > same thing twice in a row. > > > > Nearly three years and three apartments later I am still experiencing > problems. I get tiny red bumps all over my body, mostly on my chest and > legs. They don't itch terribly, but they look awful. I also experience > the crawling sensation periodically throughout the day. > > > > Here are a few things I would love to get feedback on. > > > > I am able to sleep throughout the night, this hasn't been an issue for > me since at least a month after it all began in 2009. If I do have > problems sleeping it's because of anxiety rather than feeling like bugs > are on me - what does this mean when so many of you are kept up at night > because of the sensations? > > > > I have lived with two different people at the height of my problem, > neither seemed to be affected. Why is that? > > > > Why could I see them in the beginning of my infestation, but no longer > can see a thing? This is the part drives me the most crazy. If I can't > see them, how do I effectively treat? > > > > I have never felt like I have had internal issues regarding the mites. > I don't cough, have itchy nostrils or ears or eyes. My scalp itches on > occasion, but I've chalked that up to being winter and having a dry > scalp in general. > > > > I feel relatively calm considering, but to counter that incredibly > anxious, distraught, and hopeless. > > > > I worry that just because I can't seen the red welts that I'm being > bitten.. although I just don't know. I am inconstant fear that I will > spread this to ones I love. > > > > I remember thinking in the summer of 2009, "This is fine, in a few > months it'll be all over," and now here I am, still in the middle of all > it. > > > > I am thankful that I've found this community and to see that there are > people who have come out of this alright. > > > > ML > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2012 Report Share Posted March 16, 2012 Aggi, Thank you for your responses. You said that you were diagnosed with a blood-sucking mite? Did a MD diagnosed you? I have had no interactions with medical professionals in the last couple years regarding this issue because I have not found them helpful. I have also never sent any samples into anyone because I'm not sure what the samples would be of or to who. I'm going to order the doxy on Monday, but it looks like it will still take up to 3 weeks or so for it to arrive. What antifungal did you use? Is there anything else that you did, Aggi, other than using the anti-fungal and doxy? ML > > > > > > > > > Hi mldashseattle, > > > > > > > > > So many people here acquired birdmites the EXACTLY way you describe. > > So many others... birds do seem to be the primary carriers, although > > rodents can carry some of the same mites. I am sorry this didn't all > > disappear for you after the mite experience, even with all 3 moves. Did > > your bites turn into lesions? I have the tiny red bumps too. They are > > still on my underarms mainly (hundreds) and scattered throughout my > > body. I never had those bumps before this happened to me 4 years ago. > > Some of the bites had turned into lesions which have since disappeared > > (were on my abdomen) and I did have several large long lasting red > > rashes that wrapped around my abdomen and neck. Those are gone now. > > > > > > > > > I am at the stage where this does not keep me up at night, although I > > still get biting sensations on my feet. I think now much of what I have > > is a neurological symptom of Lyme and/or co-infections from what was > > delivered by the mites... bacterias, fungi and parasites. > > > > > > > > > My husband was afflicted by this too with many many bites on his body > > -- we have remained in our house too. We were not able to move, but I > > wanted to very badly. It was not possible financially for us to move. I > > am on disability and my husband is not a high income maker, so there > > would not have been a way for us. Some that have moved have done really > > really well. Cecilia and Doris moved, got rid of everything they owned. > > Doris has absolutely no symptoms remaining and Cecilia, who lives in > > Sweden, has remaining infection, but not bothered by it terribly. Life > > goes on for them. Aggi, who lives in Germany, is also doing really well, > > 99% cured and has gotten on with her life. I know you have heard from > > some of these individuals already. > > > > > > > > > There can be infection delivered by mites, but not all people get > > these infections. Some people develop Morgellons - Lyme and body > > producing fibers (I did). Some mites are transmitting Lyme, some > > co-infections like Bartonella and who knows what else. All these mites > > seem to carry something different, maybe a different strain of Borrelia, > > plus combinations of other co-infections, parasites. If you remain sick > > has a lot to do with genetics and the detoxification ability of the > > body, prior exposures to toxins. The body has a genetic ability to detox > > and some genetically do not have this ability. There is much being > > revealed about this topic now. Aandraya has talked about how many of the > > crawling sensations are typical Bartonella... all of these infections > > affect the brain and central nervous system. Not everyone gets these > > infections, but most do get something. Is Lyme endemic in your area? I > > know you live in Seattle and my family lives in northern Oregon... my > > sister has Lyme in OR. Lyme is everywhere now. I think birds are > > carrying bartonella and it is being transmitted to mites, or maybe it is > > the other way around, mites are carrying bartonella and giving it to > > birds, I don't know which. Birds migrate everywhere... Canada is being > > hit hard by Lyme disease now according to a Lyme Literate doctor who > > knows about these things. > > > > > > > > > There is post-traumatic stress from this experience, but the anxiety > > may be caused by an infection that has passed through the blood, brain > > barrier. I know many of us have had this affect the brain, myself > > included... with treatment it gets better. Can you find a Lyme Literate > > doctor in Washington? I know there are no LLMDs in Oregon, as I've > > looked for my sister, but there are 3 doctors that are naturopaths who > > treat and are trained to treat Lyme and coinfections. They can prescribe > > too... I've talked to one of them personally. > > > > > > > > > Bartonella causes welts... I had those too. They actually appeared > > like a stretch mark, red then turning white. > > > > > > > > > Here are the names of doctors I am aware of in Oregon and Washington > > who might be able help you: > > > > > > > > > Lyme Treating Doctors > > > Dr. I Newman, MD, ND , MSOM > > > Classical & Modern Medicine > > > Rising Health > > > 8301 NE Hazel Dell Ave. > > > Vancouver, WA 98665 > > > Phone: (360) 696-3800 > > > Fax: (360) 696-0906 > > > http://www.drdanielnewman.com/ > > > > > > Dr. Stacey Raffety, BSN, LAc, ND (most experience in the Portland > > area) > > > Tigard Holistic Health Clinic > > > 11930 SW Greenburg Road > > > Tigard, Oregon 97223 > > > Phone: (503) 639-1712 > > > Fax: (971) 249-0319 > > > http://www.tigardholistic.com/ > > > > > > Dr. Chapman, ND (trained under Drs. Stricker & ) > > > 1567 SE Tacoma Street > > > Portland, OR 97202 > > > (503) 233-8113 > > > http://chapmannd.org > > > http://www.sellwoodfamilymedicine.com/ > > > > > > Dr. Usha Honeyman, DC, ND, DABCI > > > 1368 NW Lincoln Ave., Corvallis, OR 97330 > > > phone: (541) 754-6323 > > > http://www.ushahoneyman.com > > > > > > > > > > > > I hope you can get some help. Let us know if you need any more help. > > > > > > > > > > > > > > > New Member of the club... > > > > > > I've been reading through all these posts for a few days. I'm so glad > > to have found this forum. > > > > > > My problem began in the summer of 2009 when I moved into an apartment > > with a pigeon nesting on the small balcony off my bedroom. When the > > mother left the baby small black mites began to enter my room and the > > problems began. The first week my body was covered in tiny red itchy > > welts. I had a pest company spray my apartment several times. I kept my > > clothes in totes with moth balls, washed and dried my clothes and > > bedding daily.. drying all clothes before wearing them. I never wear the > > same thing twice in a row. > > > > > > Nearly three years and three apartments later I am still experiencing > > problems. I get tiny red bumps all over my body, mostly on my chest and > > legs. They don't itch terribly, but they look awful. I also experience > > the crawling sensation periodically throughout the day. > > > > > > Here are a few things I would love to get feedback on. > > > > > > I am able to sleep throughout the night, this hasn't been an issue for > > me since at least a month after it all began in 2009. If I do have > > problems sleeping it's because of anxiety rather than feeling like bugs > > are on me - what does this mean when so many of you are kept up at night > > because of the sensations? > > > > > > I have lived with two different people at the height of my problem, > > neither seemed to be affected. Why is that? > > > > > > Why could I see them in the beginning of my infestation, but no longer > > can see a thing? This is the part drives me the most crazy. If I can't > > see them, how do I effectively treat? > > > > > > I have never felt like I have had internal issues regarding the mites. > > I don't cough, have itchy nostrils or ears or eyes. My scalp itches on > > occasion, but I've chalked that up to being winter and having a dry > > scalp in general. > > > > > > I feel relatively calm considering, but to counter that incredibly > > anxious, distraught, and hopeless. > > > > > > I worry that just because I can't seen the red welts that I'm being > > bitten.. although I just don't know. I am inconstant fear that I will > > spread this to ones I love. > > > > > > I remember thinking in the summer of 2009, " This is fine, in a few > > months it'll be all over, " and now here I am, still in the middle of all > > it. > > > > > > I am thankful that I've found this community and to see that there are > > people who have come out of this alright. > > > > > > ML > > > > > > > > > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2012 Report Share Posted March 17, 2012 Actually very few people with bartonella get the striae, many if not most get the "bite-like" marks. Sometimes they itch, other times not. Also, some people get burn looking streaks once they start treatment. You live in WA? Lyme/Bart are endemic there.Aandraya On Mar 16, 2012, at 2:10 AM, mldashseattle <mldashseattle@...> wrote: Thank you all for such detailed responses. It is such a relief to know that I am not alone. I have only done internet research on Lyme and Bartonella and I'm unsure that those are necessarily what is going on with me? I do not have the stretch mark like rashes found with Bartonella. What does appear on my skin are what look like bits. They do not turn into lesions, they are just raised, red bumps/welts that are about a centimeter or less in circumference. They are randomly placed and not usually in bunches - like currently I have three on my upper arm, two with in an inch of each other and the other down and about three inches from the two. These red bumps are the reason I believe I still have the mites and that they are biting me.... But I never see them. If I feel a pinprick sensation that feels like I bite I will immediate go to the source, but there is never anything there. That said and after all I've read, perhaps it is part of a passed on infection or psychosis? I'd almost rather it be an infection, that way I would at least be at peace knowing I'm not spreading this on to my loved ones. I will order the recommended Doxy - No one has had trouble ordering it online without a prescription? I still have the worry that the mites are with me still and that I will pass them on to others.. What has been everyone's experience with this? Have you been able to live in the same space as others and have them be OK and unaffected? I appreciate you all very much. ML > > > > > > Hi mldashseattle, > > > > > > So many people here acquired birdmites the EXACTLY way you describe. > So many others... birds do seem to be the primary carriers, although > rodents can carry some of the same mites. I am sorry this didn't all > disappear for you after the mite experience, even with all 3 moves. Did > your bites turn into lesions? I have the tiny red bumps too. They are > still on my underarms mainly (hundreds) and scattered throughout my > body. I never had those bumps before this happened to me 4 years ago. > Some of the bites had turned into lesions which have since disappeared > (were on my abdomen) and I did have several large long lasting red > rashes that wrapped around my abdomen and neck. Those are gone now. > > > > > > I am at the stage where this does not keep me up at night, although I > still get biting sensations on my feet. I think now much of what I have > is a neurological symptom of Lyme and/or co-infections from what was > delivered by the mites... bacterias, fungi and parasites. > > > > > > My husband was afflicted by this too with many many bites on his body > -- we have remained in our house too. We were not able to move, but I > wanted to very badly. It was not possible financially for us to move. I > am on disability and my husband is not a high income maker, so there > would not have been a way for us. Some that have moved have done really > really well. Cecilia and Doris moved, got rid of everything they owned. > Doris has absolutely no symptoms remaining and Cecilia, who lives in > Sweden, has remaining infection, but not bothered by it terribly. Life > goes on for them. Aggi, who lives in Germany, is also doing really well, > 99% cured and has gotten on with her life. I know you have heard from > some of these individuals already. > > > > > > There can be infection delivered by mites, but not all people get > these infections. Some people develop Morgellons - Lyme and body > producing fibers (I did). Some mites are transmitting Lyme, some > co-infections like Bartonella and who knows what else. All these mites > seem to carry something different, maybe a different strain of Borrelia, > plus combinations of other co-infections, parasites. If you remain sick > has a lot to do with genetics and the detoxification ability of the > body, prior exposures to toxins. The body has a genetic ability to detox > and some genetically do not have this ability. There is much being > revealed about this topic now. Aandraya has talked about how many of the > crawling sensations are typical Bartonella... all of these infections > affect the brain and central nervous system. Not everyone gets these > infections, but most do get something. Is Lyme endemic in your area? I > know you live in Seattle and my family lives in northern Oregon... my > sister has Lyme in OR. Lyme is everywhere now. I think birds are > carrying bartonella and it is being transmitted to mites, or maybe it is > the other way around, mites are carrying bartonella and giving it to > birds, I don't know which. Birds migrate everywhere... Canada is being > hit hard by Lyme disease now according to a Lyme Literate doctor who > knows about these things. > > > > > > There is post-traumatic stress from this experience, but the anxiety > may be caused by an infection that has passed through the blood, brain > barrier. I know many of us have had this affect the brain, myself > included... with treatment it gets better. Can you find a Lyme Literate > doctor in Washington? I know there are no LLMDs in Oregon, as I've > looked for my sister, but there are 3 doctors that are naturopaths who > treat and are trained to treat Lyme and coinfections. They can prescribe > too... I've talked to one of them personally. > > > > > > Bartonella causes welts... I had those too. They actually appeared > like a stretch mark, red then turning white. > > > > > > Here are the names of doctors I am aware of in Oregon and Washington > who might be able help you: > > > > > > Lyme Treating Doctors > > Dr. I Newman, MD, ND , MSOM > > Classical & Modern Medicine > > Rising Health > > 8301 NE Hazel Dell Ave. > > Vancouver, WA 98665 > > Phone: (360) 696-3800 > > Fax: (360) 696-0906 > > http://www.drdanielnewman.com/ > > > > Dr. Stacey Raffety, BSN, LAc, ND (most experience in the Portland > area) > > Tigard Holistic Health Clinic > > 11930 SW Greenburg Road > > Tigard, Oregon 97223 > > Phone: (503) 639-1712 > > Fax: (971) 249-0319 > > http://www.tigardholistic.com/ > > > > Dr. Chapman, ND (trained under Drs. Stricker & ) > > 1567 SE Tacoma Street > > Portland, OR 97202 > > (503) 233-8113 > > http://chapmannd.org > > http://www.sellwoodfamilymedicine.com/ > > > > Dr. Usha Honeyman, DC, ND, DABCI > > 1368 NW Lincoln Ave., Corvallis, OR 97330 > > phone: (541) 754-6323 > > http://www.ushahoneyman.com > > > > > > > > I hope you can get some help. Let us know if you need any more help. > > > > > > > > > > New Member of the club... > > > > I've been reading through all these posts for a few days. I'm so glad > to have found this forum. > > > > My problem began in the summer of 2009 when I moved into an apartment > with a pigeon nesting on the small balcony off my bedroom. When the > mother left the baby small black mites began to enter my room and the > problems began. The first week my body was covered in tiny red itchy > welts. I had a pest company spray my apartment several times. I kept my > clothes in totes with moth balls, washed and dried my clothes and > bedding daily.. drying all clothes before wearing them. I never wear the > same thing twice in a row. > > > > Nearly three years and three apartments later I am still experiencing > problems. I get tiny red bumps all over my body, mostly on my chest and > legs. They don't itch terribly, but they look awful. I also experience > the crawling sensation periodically throughout the day. > > > > Here are a few things I would love to get feedback on. > > > > I am able to sleep throughout the night, this hasn't been an issue for > me since at least a month after it all began in 2009. If I do have > problems sleeping it's because of anxiety rather than feeling like bugs > are on me - what does this mean when so many of you are kept up at night > because of the sensations? > > > > I have lived with two different people at the height of my problem, > neither seemed to be affected. Why is that? > > > > Why could I see them in the beginning of my infestation, but no longer > can see a thing? This is the part drives me the most crazy. If I can't > see them, how do I effectively treat? > > > > I have never felt like I have had internal issues regarding the mites. > I don't cough, have itchy nostrils or ears or eyes. My scalp itches on > occasion, but I've chalked that up to being winter and having a dry > scalp in general. > > > > I feel relatively calm considering, but to counter that incredibly > anxious, distraught, and hopeless. > > > > I worry that just because I can't seen the red welts that I'm being > bitten.. although I just don't know. I am inconstant fear that I will > spread this to ones I love. > > > > I remember thinking in the summer of 2009, "This is fine, in a few > months it'll be all over," and now here I am, still in the middle of all > it. > > > > I am thankful that I've found this community and to see that there are > people who have come out of this alright. > > > > ML > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2012 Report Share Posted March 17, 2012 C-The subcutaneous nodules and skin papules are classic bartonella. Of the over 100 people I've known with bartonella/Lyme- all have the blister things too. They take a long time to go away, eventually turn a whitish color but they are not scars, it's the last stage of the infection. They will look kind of like shite freckles- a mottled look. The lumps and bumps under the skin soften and distintegrate with treatment as well.AandrayaOn Mar 16, 2012, at 5:18 AM, ILIKE TREES <wherearetheangels@...> wrote: Hi ml I also have small lumps under skin on my feet where I get most problems Espec after pin prick sensation they are there n skin red sore swolen inflamed Then redness goes away but blister thingsoften stil there I too not sure if still mites or if bartonela lyme etc Beginin to think it under the skin Because ih boy I scrub feet hands where bites,are n still goes,on Came across mycil cream yestrday fir athletes foot Bought n.putin on feet hands now As contains benzalkonium chloride that is in lysol or dettol Looked back saw posts on it here Figure worth a try Benzyl peroxide didnt help me But bites stronger on it Dunno if a herx Its a penetrant so figured if any mites there maybe would being em out? Was goin to stop doxy today as feel ill But maybe just smal break As only took one yesterday n when feel bites,worse today...panics me But maybe it the benzalchonium Maybe we need to get samples from skin to entomologist But we are all doin everything we can to physicaly fight this I dont live with anyone But I havent spread it to anyone I wonder too if a new animal would be safe with me n in my flat? Not in old flat as was badly infested But its,just my feet n hands bothered now Yes thank god its progress And everyone finds that progress Oh patience! So ml hang in there ------------------------------ On Fri, Mar 16, 2012 00:10 PDT mldashseattle wrote: >Thank you all for such detailed responses. It is such a relief to know that I am not alone. > >I have only done internet research on Lyme and Bartonella and I'm unsure that those are necessarily what is going on with me? I do not have the stretch mark like rashes found with Bartonella. What does appear on my skin are what look like bits. They do not turn into lesions, they are just raised, red bumps/welts that are about a centimeter or less in circumference. They are randomly placed and not usually in bunches - like currently I have three on my upper arm, two with in an inch of each other and the other down and about three inches from the two. > >These red bumps are the reason I believe I still have the mites and that they are biting me.... But I never see them. If I feel a pinprick sensation that feels like I bite I will immediate go to the source, but there is never anything there. That said and after all I've read, perhaps it is part of a passed on infection or psychosis? I'd almost rather it be an infection, that way I would at least be at peace knowing I'm not spreading this on to my loved ones. > >I will order the recommended Doxy - No one has had trouble ordering it online without a prescription? > >I still have the worry that the mites are with me still and that I will pass them on to others.. What has been everyone's experience with this? Have you been able to live in the same space as others and have them be OK and unaffected? > >I appreciate you all very much. > >ML > > >> > >> > >> > Hi mldashseattle, >> > >> > >> > So many people here acquired birdmites the EXACTLY way you describe. >> So many others... birds do seem to be the primary carriers, although >> rodents can carry some of the same mites. I am sorry this didn't all >> disappear for you after the mite experience, even with all 3 moves. Did >> your bites turn into lesions? I have the tiny red bumps too. They are >> still on my underarms mainly (hundreds) and scattered throughout my >> body. I never had those bumps before this happened to me 4 years ago. >> Some of the bites had turned into lesions which have since disappeared >> (were on my abdomen) and I did have several large long lasting red >> rashes that wrapped around my abdomen and neck. Those are gone now. >> > >> > >> > I am at the stage where this does not keep me up at night, although I >> still get biting sensations on my feet. I think now much of what I have >> is a neurological symptom of Lyme and/or co-infections from what was >> delivered by the mites... bacterias, fungi and parasites. >> > >> > >> > My husband was afflicted by this too with many many bites on his body >> -- we have remained in our house too. We were not able to move, but I >> wanted to very badly. It was not possible financially for us to move. I >> am on disability and my husband is not a high income maker, so there >> would not have been a way for us. Some that have moved have done really >> really well. Cecilia and Doris moved, got rid of everything they owned. >> Doris has absolutely no symptoms remaining and Cecilia, who lives in >> Sweden, has remaining infection, but not bothered by it terribly. Life >> goes on for them. Aggi, who lives in Germany, is also doing really well, >> 99% cured and has gotten on with her life. I know you have heard from >> some of these individuals already. >> > >> > >> > There can be infection delivered by mites, but not all people get >> these infections. Some people develop Morgellons - Lyme and body >> producing fibers (I did). Some mites are transmitting Lyme, some >> co-infections like Bartonella and who knows what else. All these mites >> seem to carry something different, maybe a different strain of Borrelia, >> plus combinations of other co-infections, parasites. If you remain sick >> has a lot to do with genetics and the detoxification ability of the >> body, prior exposures to toxins. The body has a genetic ability to detox >> and some genetically do not have this ability. There is much being >> revealed about this topic now. Aandraya has talked about how many of the >> crawling sensations are typical Bartonella... all of these infections >> affect the brain and central nervous system. Not everyone gets these >> infections, but most do get something. Is Lyme endemic in your area? I >> know you live in Seattle and my family lives in northern Oregon... my >> sister has Lyme in OR. Lyme is everywhere now. I think birds are >> carrying bartonella and it is being transmitted to mites, or maybe it is >> the other way around, mites are carrying bartonella and giving it to >> birds, I don't know which. Birds migrate everywhere... Canada is being >> hit hard by Lyme disease now according to a Lyme Literate doctor who >> knows about these things. >> > >> > >> > There is post-traumatic stress from this experience, but the anxiety >> may be caused by an infection that has passed through the blood, brain >> barrier. I know many of us have had this affect the brain, myself >> included... with treatment it gets better. Can you find a Lyme Literate >> doctor in Washington? I know there are no LLMDs in Oregon, as I've >> looked for my sister, but there are 3 doctors that are naturopaths who >> treat and are trained to treat Lyme and coinfections. They can prescribe >> too... I've talked to one of them personally. >> > >> > >> > Bartonella causes welts... I had those too. They actually appeared >> like a stretch mark, red then turning white. >> > >> > >> > Here are the names of doctors I am aware of in Oregon and Washington >> who might be able help you: >> > >> > >> > Lyme Treating Doctors >> > Dr. I Newman, MD, ND , MSOM >> > Classical & Modern Medicine >> > Rising Health >> > 8301 NE Hazel Dell Ave. >> > Vancouver, WA 98665 >> > Phone: (360) 696-3800 >> > Fax: (360) 696-0906 >> > http://www.drdanielnewman.com/ >> > >> > Dr. Stacey Raffety, BSN, LAc, ND (most experience in the Portland >> area) >> > Tigard Holistic Health Clinic >> > 11930 SW Greenburg Road >> > Tigard, Oregon 97223 >> > Phone: (503) 639-1712 >> > Fax: (971) 249-0319 >> > http://www.tigardholistic.com/ >> > >> > Dr. Chapman, ND (trained under Drs. Stricker & ) >> > 1567 SE Tacoma Street >> > Portland, OR 97202 >> > (503) 233-8113 >> > http://chapmannd.org >> > http://www.sellwoodfamilymedicine.com/ >> > >> > Dr. Usha Honeyman, DC, ND, DABCI >> > 1368 NW Lincoln Ave., Corvallis, OR 97330 >> > phone: (541) 754-6323 >> > http://www.ushahoneyman.com >> > >> > >> > >> > I hope you can get some help. Let us know if you need any more help. >> > >> > >> > >> > >> > New Member of the club... >> > >> > I've been reading through all these posts for a few days. I'm so glad >> to have found this forum. >> > >> > My problem began in the summer of 2009 when I moved into an apartment >> with a pigeon nesting on the small balcony off my bedroom. When the >> mother left the baby small black mites began to enter my room and the >> problems began. The first week my body was covered in tiny red itchy >> welts. I had a pest company spray my apartment several times. I kept my >> clothes in totes with moth balls, washed and dried my clothes and >> bedding daily.. drying all clothes before wearing them. I never wear the >> same thing twice in a row. >> > >> > Nearly three years and three apartments later I am still experiencing >> problems. I get tiny red bumps all over my body, mostly on my chest and >> legs. They don't itch terribly, but they look awful. I also experience >> the crawling sensation periodically throughout the day. >> > >> > Here are a few things I would love to get feedback on. >> > >> > I am able to sleep throughout the night, this hasn't been an issue for >> me since at least a month after it all began in 2009. If I do have >> problems sleeping it's because of anxiety rather than feeling like bugs >> are on me - what does this mean when so many of you are kept up at night >> because of the sensations? >> > >> > I have lived with two different people at the height of my problem, >> neither seemed to be affected. Why is that? >> > >> > Why could I see them in the beginning of my infestation, but no longer >> can see a thing? This is the part drives me the most crazy. If I can't >> see them, how do I effectively treat? >> > >> > I have never felt like I have had internal issues regarding the mites. >> I don't cough, have itchy nostrils or ears or eyes. My scalp itches on >> occasion, but I've chalked that up to being winter and having a dry >> scalp in general. >> > >> > I feel relatively calm considering, but to counter that incredibly >> anxious, distraught, and hopeless. >> > >> > I worry that just because I can't seen the red welts that I'm being >> bitten.. although I just don't know. I am inconstant fear that I will >> spread this to ones I love. >> > >> > I remember thinking in the summer of 2009, "This is fine, in a few >> months it'll be all over," and now here I am, still in the middle of all >> it. >> > >> > I am thankful that I've found this community and to see that there are >> people who have come out of this alright. >> > >> > ML >> > >> > >> > >> > ------------------------------------ >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2012 Report Share Posted March 17, 2012 Thanks Aa Yes,bartonella makes sense Should I get round to buying banderol again? Cudnt stomach doxy again Think need a good break When woke today tum stil sore tho havent had doxy since thurs Masaged feet today Lots if toxins Feel as lumpy bits Sore toes after Little black things Maybe fungal Is there any homeopathy good fir lyme bartonela My friends a homeopath Was goin to ask order in n I pay for She knows rheres,one for lyme But nothing else that she knows ------------------------------ On Sat, Mar 17, 2012 15:00 PDT Aandraya wrote: >C- >The subcutaneous nodules and skin papules are classic bartonella. Of the over 100 people I've known with bartonella/Lyme- all have the blister things too. They take a long time to go away, eventually turn a whitish color but they are not scars, it's the last stage of the infection. They will look kind of like shite freckles- a mottled look. The lumps and bumps under the skin soften and distintegrate with treatment as well. > >Aandraya > > > >On Mar 16, 2012, at 5:18 AM, ILIKE TREES <wherearetheangels@...> wrote: > >> >> Hi ml >> I also have small lumps under skin on my feet where I get most problems >> Espec after pin prick sensation they are there n skin red sore swolen inflamed >> Then redness goes away but blister thingsoften stil there >> I too not sure if still mites or if bartonela lyme etc >> Beginin to think it under the skin >> Because ih boy I scrub feet hands where bites,are n still goes,on >> Came across mycil cream yestrday fir athletes foot >> Bought n.putin on feet hands now >> As contains benzalkonium chloride that is in lysol or dettol >> Looked back saw posts on it here >> Figure worth a try >> Benzyl peroxide didnt help me >> But bites stronger on it >> Dunno if a herx >> Its a penetrant so figured if any mites there maybe would being em out? >> Was goin to stop doxy today as feel ill >> But maybe just smal break >> As only took one yesterday n when feel bites,worse today...panics me >> But maybe it the benzalchonium >> Maybe we need to get samples from skin to entomologist >> But we are all doin everything we can to physicaly fight this >> I dont live with anyone >> But I havent spread it to anyone >> I wonder too if a new animal would be safe with me n in my flat? >> Not in old flat as was badly infested >> But its,just my feet n hands bothered now >> Yes thank god its progress >> And everyone finds that progress >> Oh patience! >> So ml hang in there >> >> ------------------------------ >> On Fri, Mar 16, 2012 00:10 PDT mldashseattle wrote: >> >> >Thank you all for such detailed responses. It is such a relief to know that I am not alone. >> > >> >I have only done internet research on Lyme and Bartonella and I'm unsure that those are necessarily what is going on with me? I do not have the stretch mark like rashes found with Bartonella. What does appear on my skin are what look like bits. They do not turn into lesions, they are just raised, red bumps/welts that are about a centimeter or less in circumference. They are randomly placed and not usually in bunches - like currently I have three on my upper arm, two with in an inch of each other and the other down and about three inches from the two. >> > >> >These red bumps are the reason I believe I still have the mites and that they are biting me.... But I never see them. If I feel a pinprick sensation that feels like I bite I will immediate go to the source, but there is never anything there. That said and after all I've read, perhaps it is part of a passed on infection or psychosis? I'd almost rather it be an infection, that way I would at least be at peace knowing I'm not spreading this on to my loved ones. >> > >> >I will order the recommended Doxy - No one has had trouble ordering it online without a prescription? >> > >> >I still have the worry that the mites are with me still and that I will pass them on to others.. What has been everyone's experience with this? Have you been able to live in the same space as others and have them be OK and unaffected? >> > >> >I appreciate you all very much. >> > >> >ML >> > >> > >> > > >> > > >> > > Hi mldashseattle, >> > > >> > > >> > > So many people here acquired birdmites the EXACTLY way you describe. >> > So many others... birds do seem to be the primary carriers, although >> > rodents can carry some of the same mites. I am sorry this didn't all >> > disappear for you after the mite experience, even with all 3 moves. Did >> > your bites turn into lesions? I have the tiny red bumps too. They are >> > still on my underarms mainly (hundreds) and scattered throughout my >> > body. I never had those bumps before this happened to me 4 years ago. >> > Some of the bites had turned into lesions which have since disappeared >> > (were on my abdomen) and I did have several large long lasting red >> > rashes that wrapped around my abdomen and neck. Those are gone now. >> > > >> > > >> > > I am at the stage where this does not keep me up at night, although I >> > still get biting sensations on my feet. I think now much of what I have >> > is a neurological symptom of Lyme and/or co-infections from what was >> > delivered by the mites... bacterias, fungi and parasites. >> > > >> > > >> > > My husband was afflicted by this too with many many bites on his body >> > -- we have remained in our house too. We were not able to move, but I >> > wanted to very badly. It was not possible financially for us to move. I >> > am on disability and my husband is not a high income maker, so there >> > would not have been a way for us. Some that have moved have done really >> > really well. Cecilia and Doris moved, got rid of everything they owned. >> > Doris has absolutely no symptoms remaining and Cecilia, who lives in >> > Sweden, has remaining infection, but not bothered by it terribly. Life >> > goes on for them. Aggi, who lives in Germany, is also doing really well, >> > 99% cured and has gotten on with her life. I know you have heard from >> > some of these individuals already. >> > > >> > > >> > > There can be infection delivered by mites, but not all people get >> > these infections. Some people develop Morgellons - Lyme and body >> > producing fibers (I did). Some mites are transmitting Lyme, some >> > co-infections like Bartonella and who knows what else. All these mites >> > seem to carry something different, maybe a different strain of Borrelia, >> > plus combinations of other co-infections, parasites. If you remain sick >> > has a lot to do with genetics and the detoxification ability of the >> > body, prior exposures to toxins. The body has a genetic ability to detox >> > and some genetically do not have this ability. There is much being >> > revealed about this topic now. Aandraya has talked about how many of the >> > crawling sensations are typical Bartonella... all of these infections >> > affect the brain and central nervous system. Not everyone gets these >> > infections, but most do get something. Is Lyme endemic in your area? I >> > know you live in Seattle and my family lives in northern Oregon... my >> > sister has Lyme in OR. Lyme is everywhere now. I think birds are >> > carrying bartonella and it is being transmitted to mites, or maybe it is >> > the other way around, mites are carrying bartonella and giving it to >> > birds, I don't know which. Birds migrate everywhere... Canada is being >> > hit hard by Lyme disease now according to a Lyme Literate doctor who >> > knows about these things. >> > > >> > > >> > > There is post-traumatic stress from this experience, but the anxiety >> > may be caused by an infection that has passed through the blood, brain >> > barrier. I know many of us have had this affect the brain, myself >> > included... with treatment it gets better. Can you find a Lyme Literate >> > doctor in Washington? I know there are no LLMDs in Oregon, as I've >> > looked for my sister, but there are 3 doctors that are naturopaths who >> > treat and are trained to treat Lyme and coinfections. They can prescribe >> > too... I've talked to one of them personally. >> > > >> > > >> > > Bartonella causes welts... I had those too. They actually appeared >> > like a stretch mark, red then turning white. >> > > >> > > >> > > Here are the names of doctors I am aware of in Oregon and Washington >> > who might be able help you: >> > > >> > > >> > > Lyme Treating Doctors >> > > Dr. I Newman, MD, ND , MSOM >> > > Classical & Modern Medicine >> > > Rising Health >> > > 8301 NE Hazel Dell Ave. >> > > Vancouver, WA 98665 >> > > Phone: (360) 696-3800 >> > > Fax: (360) 696-0906 >> > > http://www.drdanielnewman.com/ >> > > >> > > Dr. Stacey Raffety, BSN, LAc, ND (most experience in the Portland >> > area) >> > > Tigard Holistic Health Clinic >> > > 11930 SW Greenburg Road >> > > Tigard, Oregon 97223 >> > > Phone: (503) 639-1712 >> > > Fax: (971) 249-0319 >> > > http://www.tigardholistic.com/ >> > > >> > > Dr. Chapman, ND (trained under Drs. Stricker & ) >> > > 1567 SE Tacoma Street >> > > Portland, OR 97202 >> > > (503) 233-8113 >> > > http://chapmannd.org >> > > http://www.sellwoodfamilymedicine.com/ >> > > >> > > Dr. Usha Honeyman, DC, ND, DABCI >> > > 1368 NW Lincoln Ave., Corvallis, OR 97330 >> > > phone: (541) 754-6323 >> > > http://www.ushahoneyman.com >> > > >> > > >> > > >> > > I hope you can get some help. Let us know if you need any more help. >> > > >> > > >> > > >> > > >> > > New Member of the club... >> > > >> > > I've been reading through all these posts for a few days. I'm so glad >> > to have found this forum. >> > > >> > > My problem began in the summer of 2009 when I moved into an apartment >> > with a pigeon nesting on the small balcony off my bedroom. When the >> > mother left the baby small black mites began to enter my room and the >> > problems began. The first week my body was covered in tiny red itchy >> > welts. I had a pest company spray my apartment several times. I kept my >> > clothes in totes with moth balls, washed and dried my clothes and >> > bedding daily.. drying all clothes before wearing them. I never wear the >> > same thing twice in a row. >> > > >> > > Nearly three years and three apartments later I am still experiencing >> > problems. I get tiny red bumps all over my body, mostly on my chest and >> > legs. They don't itch terribly, but they look awful. I also experience >> > the crawling sensation periodically throughout the day. >> > > >> > > Here are a few things I would love to get feedback on. >> > > >> > > I am able to sleep throughout the night, this hasn't been an issue for >> > me since at least a month after it all began in 2009. If I do have >> > problems sleeping it's because of anxiety rather than feeling like bugs >> > are on me - what does this mean when so many of you are kept up at night >> > because of the sensations? >> > > >> > > I have lived with two different people at the height of my problem, >> > neither seemed to be affected. Why is that? >> > > >> > > Why could I see them in the beginning of my infestation, but no longer >> > can see a thing? This is the part drives me the most crazy. If I can't >> > see them, how do I effectively treat? >> > > >> > > I have never felt like I have had internal issues regarding the mites. >> > I don't cough, have itchy nostrils or ears or eyes. My scalp itches on >> > occasion, but I've chalked that up to being winter and having a dry >> > scalp in general. >> > > >> > > I feel relatively calm considering, but to counter that incredibly >> > anxious, distraught, and hopeless. >> > > >> > > I worry that just because I can't seen the red welts that I'm being >> > bitten.. although I just don't know. I am inconstant fear that I will >> > spread this to ones I love. >> > > >> > > I remember thinking in the summer of 2009, " This is fine, in a few >> > months it'll be all over, " and now here I am, still in the middle of all >> > it. >> > > >> > > I am thankful that I've found this community and to see that there are >> > people who have come out of this alright. >> > > >> > > ML >> > > >> > > >> > > >> > > ------------------------------------ >> > > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2012 Report Share Posted March 17, 2012 C- Bartonella can be really insidious, almost as much as Lyme. I'd keep doing the herbs, go back to Doxy later, and see if you can get your hands on some Rifampin, it's one of the target abx for rifampin. The other is levaquin but very expensive. Doxy and Rifampin are done together. Enula is one of the herbs that's supposed to target Bart, haven't used it yet. I've used A-Bart from Byron White formulas and Houtinuya. When Bart is severe like we have it, it's always found with Lyme. The Banderol/Samento is a could combo. For me I responded the best to levaquin and rifampin, again my case was extreme according to my doctors. Still treating it, but my improvements have been dramatic.Aandraya On Mar 17, 2012, at 5:12 PM, ILIKE TREES <wherearetheangels@...> wrote: Thanks Aa Yes,bartonella makes sense Should I get round to buying banderol again? Cudnt stomach doxy again Think need a good break When woke today tum stil sore tho havent had doxy since thurs Masaged feet today Lots if toxins Feel as lumpy bits Sore toes after Little black things Maybe fungal Is there any homeopathy good fir lyme bartonela My friends a homeopath Was goin to ask order in n I pay for She knows rheres,one for lyme But nothing else that she knows ------------------------------ On Sat, Mar 17, 2012 15:00 PDT Aandraya wrote: >C- >The subcutaneous nodules and skin papules are classic bartonella. Of the over 100 people I've known with bartonella/Lyme- all have the blister things too. They take a long time to go away, eventually turn a whitish color but they are not scars, it's the last stage of the infection. They will look kind of like shite freckles- a mottled look. The lumps and bumps under the skin soften and distintegrate with treatment as well. > >Aandraya > > > >On Mar 16, 2012, at 5:18 AM, ILIKE TREES <wherearetheangels@...> wrote: > >> >> Hi ml >> I also have small lumps under skin on my feet where I get most problems >> Espec after pin prick sensation they are there n skin red sore swolen inflamed >> Then redness goes away but blister thingsoften stil there >> I too not sure if still mites or if bartonela lyme etc >> Beginin to think it under the skin >> Because ih boy I scrub feet hands where bites,are n still goes,on >> Came across mycil cream yestrday fir athletes foot >> Bought n.putin on feet hands now >> As contains benzalkonium chloride that is in lysol or dettol >> Looked back saw posts on it here >> Figure worth a try >> Benzyl peroxide didnt help me >> But bites stronger on it >> Dunno if a herx >> Its a penetrant so figured if any mites there maybe would being em out? >> Was goin to stop doxy today as feel ill >> But maybe just smal break >> As only took one yesterday n when feel bites,worse today...panics me >> But maybe it the benzalchonium >> Maybe we need to get samples from skin to entomologist >> But we are all doin everything we can to physicaly fight this >> I dont live with anyone >> But I havent spread it to anyone >> I wonder too if a new animal would be safe with me n in my flat? >> Not in old flat as was badly infested >> But its,just my feet n hands bothered now >> Yes thank god its progress >> And everyone finds that progress >> Oh patience! >> So ml hang in there >> >> ------------------------------ >> On Fri, Mar 16, 2012 00:10 PDT mldashseattle wrote: >> >> >Thank you all for such detailed responses. It is such a relief to know that I am not alone. >> > >> >I have only done internet research on Lyme and Bartonella and I'm unsure that those are necessarily what is going on with me? I do not have the stretch mark like rashes found with Bartonella. What does appear on my skin are what look like bits. They do not turn into lesions, they are just raised, red bumps/welts that are about a centimeter or less in circumference. They are randomly placed and not usually in bunches - like currently I have three on my upper arm, two with in an inch of each other and the other down and about three inches from the two. >> > >> >These red bumps are the reason I believe I still have the mites and that they are biting me.... But I never see them. If I feel a pinprick sensation that feels like I bite I will immediate go to the source, but there is never anything there. That said and after all I've read, perhaps it is part of a passed on infection or psychosis? I'd almost rather it be an infection, that way I would at least be at peace knowing I'm not spreading this on to my loved ones. >> > >> >I will order the recommended Doxy - No one has had trouble ordering it online without a prescription? >> > >> >I still have the worry that the mites are with me still and that I will pass them on to others.. What has been everyone's experience with this? Have you been able to live in the same space as others and have them be OK and unaffected? >> > >> >I appreciate you all very much. >> > >> >ML >> > >> > >> > > >> > > >> > > Hi mldashseattle, >> > > >> > > >> > > So many people here acquired birdmites the EXACTLY way you describe. >> > So many others... birds do seem to be the primary carriers, although >> > rodents can carry some of the same mites. I am sorry this didn't all >> > disappear for you after the mite experience, even with all 3 moves. Did >> > your bites turn into lesions? I have the tiny red bumps too. They are >> > still on my underarms mainly (hundreds) and scattered throughout my >> > body. I never had those bumps before this happened to me 4 years ago. >> > Some of the bites had turned into lesions which have since disappeared >> > (were on my abdomen) and I did have several large long lasting red >> > rashes that wrapped around my abdomen and neck. Those are gone now. >> > > >> > > >> > > I am at the stage where this does not keep me up at night, although I >> > still get biting sensations on my feet. I think now much of what I have >> > is a neurological symptom of Lyme and/or co-infections from what was >> > delivered by the mites... bacterias, fungi and parasites. >> > > >> > > >> > > My husband was afflicted by this too with many many bites on his body >> > -- we have remained in our house too. We were not able to move, but I >> > wanted to very badly. It was not possible financially for us to move. I >> > am on disability and my husband is not a high income maker, so there >> > would not have been a way for us. Some that have moved have done really >> > really well. Cecilia and Doris moved, got rid of everything they owned. >> > Doris has absolutely no symptoms remaining and Cecilia, who lives in >> > Sweden, has remaining infection, but not bothered by it terribly. Life >> > goes on for them. Aggi, who lives in Germany, is also doing really well, >> > 99% cured and has gotten on with her life. I know you have heard from >> > some of these individuals already. >> > > >> > > >> > > There can be infection delivered by mites, but not all people get >> > these infections. Some people develop Morgellons - Lyme and body >> > producing fibers (I did). Some mites are transmitting Lyme, some >> > co-infections like Bartonella and who knows what else. All these mites >> > seem to carry something different, maybe a different strain of Borrelia, >> > plus combinations of other co-infections, parasites. If you remain sick >> > has a lot to do with genetics and the detoxification ability of the >> > body, prior exposures to toxins. The body has a genetic ability to detox >> > and some genetically do not have this ability. There is much being >> > revealed about this topic now. Aandraya has talked about how many of the >> > crawling sensations are typical Bartonella... all of these infections >> > affect the brain and central nervous system. Not everyone gets these >> > infections, but most do get something. Is Lyme endemic in your area? I >> > know you live in Seattle and my family lives in northern Oregon... my >> > sister has Lyme in OR. Lyme is everywhere now. I think birds are >> > carrying bartonella and it is being transmitted to mites, or maybe it is >> > the other way around, mites are carrying bartonella and giving it to >> > birds, I don't know which. Birds migrate everywhere... Canada is being >> > hit hard by Lyme disease now according to a Lyme Literate doctor who >> > knows about these things. >> > > >> > > >> > > There is post-traumatic stress from this experience, but the anxiety >> > may be caused by an infection that has passed through the blood, brain >> > barrier. I know many of us have had this affect the brain, myself >> > included... with treatment it gets better. Can you find a Lyme Literate >> > doctor in Washington? I know there are no LLMDs in Oregon, as I've >> > looked for my sister, but there are 3 doctors that are naturopaths who >> > treat and are trained to treat Lyme and coinfections. They can prescribe >> > too... I've talked to one of them personally. >> > > >> > > >> > > Bartonella causes welts... I had those too. They actually appeared >> > like a stretch mark, red then turning white. >> > > >> > > >> > > Here are the names of doctors I am aware of in Oregon and Washington >> > who might be able help you: >> > > >> > > >> > > Lyme Treating Doctors >> > > Dr. I Newman, MD, ND , MSOM >> > > Classical & Modern Medicine >> > > Rising Health >> > > 8301 NE Hazel Dell Ave. >> > > Vancouver, WA 98665 >> > > Phone: (360) 696-3800 >> > > Fax: (360) 696-0906 >> > > http://www.drdanielnewman.com/ >> > > >> > > Dr. Stacey Raffety, BSN, LAc, ND (most experience in the Portland >> > area) >> > > Tigard Holistic Health Clinic >> > > 11930 SW Greenburg Road >> > > Tigard, Oregon 97223 >> > > Phone: (503) 639-1712 >> > > Fax: (971) 249-0319 >> > > http://www.tigardholistic.com/ >> > > >> > > Dr. Chapman, ND (trained under Drs. Stricker & ) >> > > 1567 SE Tacoma Street >> > > Portland, OR 97202 >> > > (503) 233-8113 >> > > http://chapmannd.org >> > > http://www.sellwoodfamilymedicine.com/ >> > > >> > > Dr. Usha Honeyman, DC, ND, DABCI >> > > 1368 NW Lincoln Ave., Corvallis, OR 97330 >> > > phone: (541) 754-6323 >> > > http://www.ushahoneyman.com >> > > >> > > >> > > >> > > I hope you can get some help. Let us know if you need any more help. >> > > >> > > >> > > >> > > >> > > New Member of the club... >> > > >> > > I've been reading through all these posts for a few days. I'm so glad >> > to have found this forum. >> > > >> > > My problem began in the summer of 2009 when I moved into an apartment >> > with a pigeon nesting on the small balcony off my bedroom. When the >> > mother left the baby small black mites began to enter my room and the >> > problems began. The first week my body was covered in tiny red itchy >> > welts. I had a pest company spray my apartment several times. I kept my >> > clothes in totes with moth balls, washed and dried my clothes and >> > bedding daily.. drying all clothes before wearing them. I never wear the >> > same thing twice in a row. >> > > >> > > Nearly three years and three apartments later I am still experiencing >> > problems. I get tiny red bumps all over my body, mostly on my chest and >> > legs. They don't itch terribly, but they look awful. I also experience >> > the crawling sensation periodically throughout the day. >> > > >> > > Here are a few things I would love to get feedback on. >> > > >> > > I am able to sleep throughout the night, this hasn't been an issue for >> > me since at least a month after it all began in 2009. If I do have >> > problems sleeping it's because of anxiety rather than feeling like bugs >> > are on me - what does this mean when so many of you are kept up at night >> > because of the sensations? >> > > >> > > I have lived with two different people at the height of my problem, >> > neither seemed to be affected. Why is that? >> > > >> > > Why could I see them in the beginning of my infestation, but no longer >> > can see a thing? This is the part drives me the most crazy. If I can't >> > see them, how do I effectively treat? >> > > >> > > I have never felt like I have had internal issues regarding the mites. >> > I don't cough, have itchy nostrils or ears or eyes. My scalp itches on >> > occasion, but I've chalked that up to being winter and having a dry >> > scalp in general. >> > > >> > > I feel relatively calm considering, but to counter that incredibly >> > anxious, distraught, and hopeless. >> > > >> > > I worry that just because I can't seen the red welts that I'm being >> > bitten.. although I just don't know. I am inconstant fear that I will >> > spread this to ones I love. >> > > >> > > I remember thinking in the summer of 2009, "This is fine, in a few >> > months it'll be all over," and now here I am, still in the middle of all >> > it. >> > > >> > > I am thankful that I've found this community and to see that there are >> > people who have come out of this alright. >> > > >> > > ML >> > > >> > > >> > > >> > > ------------------------------------ >> > > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2012 Report Share Posted March 17, 2012 Homeopathy seems to depend on individual and practitioner, some respond to it for Lyme, most need abx as well. Again, depends on the case. I know many who were or were almost beyond the point of no return. Even Dr. Klinghardt says homeopathy will no longer work for these multiple chronic infections... Probably for milder cases.AandrayaOn Mar 17, 2012, at 5:12 PM, ILIKE TREES <wherearetheangels@...> wrote: Thanks Aa Yes,bartonella makes sense Should I get round to buying banderol again? Cudnt stomach doxy again Think need a good break When woke today tum stil sore tho havent had doxy since thurs Masaged feet today Lots if toxins Feel as lumpy bits Sore toes after Little black things Maybe fungal Is there any homeopathy good fir lyme bartonela My friends a homeopath Was goin to ask order in n I pay for She knows rheres,one for lyme But nothing else that she knows ------------------------------ On Sat, Mar 17, 2012 15:00 PDT Aandraya wrote: >C- >The subcutaneous nodules and skin papules are classic bartonella. Of the over 100 people I've known with bartonella/Lyme- all have the blister things too. They take a long time to go away, eventually turn a whitish color but they are not scars, it's the last stage of the infection. They will look kind of like shite freckles- a mottled look. The lumps and bumps under the skin soften and distintegrate with treatment as well. > >Aandraya > > > >On Mar 16, 2012, at 5:18 AM, ILIKE TREES <wherearetheangels@...> wrote: > >> >> Hi ml >> I also have small lumps under skin on my feet where I get most problems >> Espec after pin prick sensation they are there n skin red sore swolen inflamed >> Then redness goes away but blister thingsoften stil there >> I too not sure if still mites or if bartonela lyme etc >> Beginin to think it under the skin >> Because ih boy I scrub feet hands where bites,are n still goes,on >> Came across mycil cream yestrday fir athletes foot >> Bought n.putin on feet hands now >> As contains benzalkonium chloride that is in lysol or dettol >> Looked back saw posts on it here >> Figure worth a try >> Benzyl peroxide didnt help me >> But bites stronger on it >> Dunno if a herx >> Its a penetrant so figured if any mites there maybe would being em out? >> Was goin to stop doxy today as feel ill >> But maybe just smal break >> As only took one yesterday n when feel bites,worse today...panics me >> But maybe it the benzalchonium >> Maybe we need to get samples from skin to entomologist >> But we are all doin everything we can to physicaly fight this >> I dont live with anyone >> But I havent spread it to anyone >> I wonder too if a new animal would be safe with me n in my flat? >> Not in old flat as was badly infested >> But its,just my feet n hands bothered now >> Yes thank god its progress >> And everyone finds that progress >> Oh patience! >> So ml hang in there >> >> ------------------------------ >> On Fri, Mar 16, 2012 00:10 PDT mldashseattle wrote: >> >> >Thank you all for such detailed responses. It is such a relief to know that I am not alone. >> > >> >I have only done internet research on Lyme and Bartonella and I'm unsure that those are necessarily what is going on with me? I do not have the stretch mark like rashes found with Bartonella. What does appear on my skin are what look like bits. They do not turn into lesions, they are just raised, red bumps/welts that are about a centimeter or less in circumference. They are randomly placed and not usually in bunches - like currently I have three on my upper arm, two with in an inch of each other and the other down and about three inches from the two. >> > >> >These red bumps are the reason I believe I still have the mites and that they are biting me.... But I never see them. If I feel a pinprick sensation that feels like I bite I will immediate go to the source, but there is never anything there. That said and after all I've read, perhaps it is part of a passed on infection or psychosis? I'd almost rather it be an infection, that way I would at least be at peace knowing I'm not spreading this on to my loved ones. >> > >> >I will order the recommended Doxy - No one has had trouble ordering it online without a prescription? >> > >> >I still have the worry that the mites are with me still and that I will pass them on to others.. What has been everyone's experience with this? Have you been able to live in the same space as others and have them be OK and unaffected? >> > >> >I appreciate you all very much. >> > >> >ML >> > >> > >> > > >> > > >> > > Hi mldashseattle, >> > > >> > > >> > > So many people here acquired birdmites the EXACTLY way you describe. >> > So many others... birds do seem to be the primary carriers, although >> > rodents can carry some of the same mites. I am sorry this didn't all >> > disappear for you after the mite experience, even with all 3 moves. Did >> > your bites turn into lesions? I have the tiny red bumps too. They are >> > still on my underarms mainly (hundreds) and scattered throughout my >> > body. I never had those bumps before this happened to me 4 years ago. >> > Some of the bites had turned into lesions which have since disappeared >> > (were on my abdomen) and I did have several large long lasting red >> > rashes that wrapped around my abdomen and neck. Those are gone now. >> > > >> > > >> > > I am at the stage where this does not keep me up at night, although I >> > still get biting sensations on my feet. I think now much of what I have >> > is a neurological symptom of Lyme and/or co-infections from what was >> > delivered by the mites... bacterias, fungi and parasites. >> > > >> > > >> > > My husband was afflicted by this too with many many bites on his body >> > -- we have remained in our house too. We were not able to move, but I >> > wanted to very badly. It was not possible financially for us to move. I >> > am on disability and my husband is not a high income maker, so there >> > would not have been a way for us. Some that have moved have done really >> > really well. Cecilia and Doris moved, got rid of everything they owned. >> > Doris has absolutely no symptoms remaining and Cecilia, who lives in >> > Sweden, has remaining infection, but not bothered by it terribly. Life >> > goes on for them. Aggi, who lives in Germany, is also doing really well, >> > 99% cured and has gotten on with her life. I know you have heard from >> > some of these individuals already. >> > > >> > > >> > > There can be infection delivered by mites, but not all people get >> > these infections. Some people develop Morgellons - Lyme and body >> > producing fibers (I did). Some mites are transmitting Lyme, some >> > co-infections like Bartonella and who knows what else. All these mites >> > seem to carry something different, maybe a different strain of Borrelia, >> > plus combinations of other co-infections, parasites. If you remain sick >> > has a lot to do with genetics and the detoxification ability of the >> > body, prior exposures to toxins. The body has a genetic ability to detox >> > and some genetically do not have this ability. There is much being >> > revealed about this topic now. Aandraya has talked about how many of the >> > crawling sensations are typical Bartonella... all of these infections >> > affect the brain and central nervous system. Not everyone gets these >> > infections, but most do get something. Is Lyme endemic in your area? I >> > know you live in Seattle and my family lives in northern Oregon... my >> > sister has Lyme in OR. Lyme is everywhere now. I think birds are >> > carrying bartonella and it is being transmitted to mites, or maybe it is >> > the other way around, mites are carrying bartonella and giving it to >> > birds, I don't know which. Birds migrate everywhere... Canada is being >> > hit hard by Lyme disease now according to a Lyme Literate doctor who >> > knows about these things. >> > > >> > > >> > > There is post-traumatic stress from this experience, but the anxiety >> > may be caused by an infection that has passed through the blood, brain >> > barrier. I know many of us have had this affect the brain, myself >> > included... with treatment it gets better. Can you find a Lyme Literate >> > doctor in Washington? I know there are no LLMDs in Oregon, as I've >> > looked for my sister, but there are 3 doctors that are naturopaths who >> > treat and are trained to treat Lyme and coinfections. They can prescribe >> > too... I've talked to one of them personally. >> > > >> > > >> > > Bartonella causes welts... I had those too. They actually appeared >> > like a stretch mark, red then turning white. >> > > >> > > >> > > Here are the names of doctors I am aware of in Oregon and Washington >> > who might be able help you: >> > > >> > > >> > > Lyme Treating Doctors >> > > Dr. I Newman, MD, ND , MSOM >> > > Classical & Modern Medicine >> > > Rising Health >> > > 8301 NE Hazel Dell Ave. >> > > Vancouver, WA 98665 >> > > Phone: (360) 696-3800 >> > > Fax: (360) 696-0906 >> > > http://www.drdanielnewman.com/ >> > > >> > > Dr. Stacey Raffety, BSN, LAc, ND (most experience in the Portland >> > area) >> > > Tigard Holistic Health Clinic >> > > 11930 SW Greenburg Road >> > > Tigard, Oregon 97223 >> > > Phone: (503) 639-1712 >> > > Fax: (971) 249-0319 >> > > http://www.tigardholistic.com/ >> > > >> > > Dr. Chapman, ND (trained under Drs. Stricker & ) >> > > 1567 SE Tacoma Street >> > > Portland, OR 97202 >> > > (503) 233-8113 >> > > http://chapmannd.org >> > > http://www.sellwoodfamilymedicine.com/ >> > > >> > > Dr. Usha Honeyman, DC, ND, DABCI >> > > 1368 NW Lincoln Ave., Corvallis, OR 97330 >> > > phone: (541) 754-6323 >> > > http://www.ushahoneyman.com >> > > >> > > >> > > >> > > I hope you can get some help. Let us know if you need any more help. >> > > >> > > >> > > >> > > >> > > New Member of the club... >> > > >> > > I've been reading through all these posts for a few days. I'm so glad >> > to have found this forum. >> > > >> > > My problem began in the summer of 2009 when I moved into an apartment >> > with a pigeon nesting on the small balcony off my bedroom. When the >> > mother left the baby small black mites began to enter my room and the >> > problems began. The first week my body was covered in tiny red itchy >> > welts. I had a pest company spray my apartment several times. I kept my >> > clothes in totes with moth balls, washed and dried my clothes and >> > bedding daily.. drying all clothes before wearing them. I never wear the >> > same thing twice in a row. >> > > >> > > Nearly three years and three apartments later I am still experiencing >> > problems. I get tiny red bumps all over my body, mostly on my chest and >> > legs. They don't itch terribly, but they look awful. I also experience >> > the crawling sensation periodically throughout the day. >> > > >> > > Here are a few things I would love to get feedback on. >> > > >> > > I am able to sleep throughout the night, this hasn't been an issue for >> > me since at least a month after it all began in 2009. If I do have >> > problems sleeping it's because of anxiety rather than feeling like bugs >> > are on me - what does this mean when so many of you are kept up at night >> > because of the sensations? >> > > >> > > I have lived with two different people at the height of my problem, >> > neither seemed to be affected. Why is that? >> > > >> > > Why could I see them in the beginning of my infestation, but no longer >> > can see a thing? This is the part drives me the most crazy. If I can't >> > see them, how do I effectively treat? >> > > >> > > I have never felt like I have had internal issues regarding the mites. >> > I don't cough, have itchy nostrils or ears or eyes. My scalp itches on >> > occasion, but I've chalked that up to being winter and having a dry >> > scalp in general. >> > > >> > > I feel relatively calm considering, but to counter that incredibly >> > anxious, distraught, and hopeless. >> > > >> > > I worry that just because I can't seen the red welts that I'm being >> > bitten.. although I just don't know. I am inconstant fear that I will >> > spread this to ones I love. >> > > >> > > I remember thinking in the summer of 2009, "This is fine, in a few >> > months it'll be all over," and now here I am, still in the middle of all >> > it. >> > > >> > > I am thankful that I've found this community and to see that there are >> > people who have come out of this alright. >> > > >> > > ML >> > > >> > > >> > > >> > > ------------------------------------ >> > > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2012 Report Share Posted March 18, 2012 Thanks Aa Yes will order more banderol Need rest abx Felt sooo ill last week But im pleased I stuck it 3 weeks considering! Cant take samento My tum hurt on it too! But will research enula I think u said Becoz banderol was not enough Or maybe it just takes a long long time as u said! ------------------------------ On Sat, Mar 17, 2012 17:57 PDT Aandraya wrote: >C- Bartonella can be really insidious, almost as much as Lyme. I'd keep doing the herbs, go back to Doxy later, and see if you can get your hands on some Rifampin, it's one of the target abx for rifampin. The other is levaquin but very expensive. Doxy and Rifampin are done together. Enula is one of the herbs that's supposed to target Bart, haven't used it yet. I've used A-Bart from Byron White formulas and Houtinuya. When Bart is severe like we have it, it's always found with Lyme. The Banderol/Samento is a could combo. For me I responded the best to levaquin and rifampin, again my case was extreme according to my doctors. Still treating it, but my improvements have been dramatic. > >Aandraya > > > >On Mar 17, 2012, at 5:12 PM, ILIKE TREES <wherearetheangels@...> wrote: > >> >> Thanks Aa >> Yes,bartonella makes sense >> Should I get round to buying banderol again? >> Cudnt stomach doxy again >> Think need a good break >> When woke today tum stil sore tho havent had doxy since thurs >> Masaged feet today >> Lots if toxins >> Feel as lumpy bits >> Sore toes after >> Little black things >> Maybe fungal >> Is there any homeopathy good fir lyme bartonela >> My friends a homeopath >> Was goin to ask order in n I pay for >> She knows rheres,one for lyme >> But nothing else that she knows >> >> ------------------------------ >> On Sat, Mar 17, 2012 15:00 PDT Aandraya wrote: >> >> >C- >> >The subcutaneous nodules and skin papules are classic bartonella. Of the over 100 people I've known with bartonella/Lyme- all have the blister things too. They take a long time to go away, eventually turn a whitish color but they are not scars, it's the last stage of the infection. They will look kind of like shite freckles- a mottled look. The lumps and bumps under the skin soften and distintegrate with treatment as well. >> > >> >Aandraya >> > >> > >> > >> >On Mar 16, 2012, at 5:18 AM, ILIKE TREES <wherearetheangels@...> wrote: >> > >> > >> > Hi ml >> > I also have small lumps under skin on my feet where I get most problems >> > Espec after pin prick sensation they are there n skin red sore swolen inflamed >> > Then redness goes away but blister thingsoften stil there >> > I too not sure if still mites or if bartonela lyme etc >> > Beginin to think it under the skin >> > Because ih boy I scrub feet hands where bites,are n still goes,on >> > Came across mycil cream yestrday fir athletes foot >> > Bought n.putin on feet hands now >> > As contains benzalkonium chloride that is in lysol or dettol >> > Looked back saw posts on it here >> > Figure worth a try >> > Benzyl peroxide didnt help me >> > But bites stronger on it >> > Dunno if a herx >> > Its a penetrant so figured if any mites there maybe would being em out? >> > Was goin to stop doxy today as feel ill >> > But maybe just smal break >> > As only took one yesterday n when feel bites,worse today...panics me >> > But maybe it the benzalchonium >> > Maybe we need to get samples from skin to entomologist >> > But we are all doin everything we can to physicaly fight this >> > I dont live with anyone >> > But I havent spread it to anyone >> > I wonder too if a new animal would be safe with me n in my flat? >> > Not in old flat as was badly infested >> > But its,just my feet n hands bothered now >> > Yes thank god its progress >> > And everyone finds that progress >> > Oh patience! >> > So ml hang in there >> > >> > ------------------------------ >> > On Fri, Mar 16, 2012 00:10 PDT mldashseattle wrote: >> > >> > >Thank you all for such detailed responses. It is such a relief to know that I am not alone. >> > > >> > >I have only done internet research on Lyme and Bartonella and I'm unsure that those are necessarily what is going on with me? I do not have the stretch mark like rashes found with Bartonella. What does appear on my skin are what look like bits. They do not turn into lesions, they are just raised, red bumps/welts that are about a centimeter or less in circumference. They are randomly placed and not usually in bunches - like currently I have three on my upper arm, two with in an inch of each other and the other down and about three inches from the two. >> > > >> > >These red bumps are the reason I believe I still have the mites and that they are biting me.... But I never see them. If I feel a pinprick sensation that feels like I bite I will immediate go to the source, but there is never anything there. That said and after all I've read, perhaps it is part of a passed on infection or psychosis? I'd almost rather it be an infection, that way I would at least be at peace knowing I'm not spreading this on to my loved ones. >> > > >> > >I will order the recommended Doxy - No one has had trouble ordering it online without a prescription? >> > > >> > >I still have the worry that the mites are with me still and that I will pass them on to others.. What has been everyone's experience with this? Have you been able to live in the same space as others and have them be OK and unaffected? >> > > >> > >I appreciate you all very much. >> > > >> > >ML >> > > >> > > >> > > > >> > > > >> > > > Hi mldashseattle, >> > > > >> > > > >> > > > So many people here acquired birdmites the EXACTLY way you describe. >> > > So many others... birds do seem to be the primary carriers, although >> > > rodents can carry some of the same mites. I am sorry this didn't all >> > > disappear for you after the mite experience, even with all 3 moves. Did >> > > your bites turn into lesions? I have the tiny red bumps too. They are >> > > still on my underarms mainly (hundreds) and scattered throughout my >> > > body. I never had those bumps before this happened to me 4 years ago. >> > > Some of the bites had turned into lesions which have since disappeared >> > > (were on my abdomen) and I did have several large long lasting red >> > > rashes that wrapped around my abdomen and neck. Those are gone now. >> > > > >> > > > >> > > > I am at the stage where this does not keep me up at night, although I >> > > still get biting sensations on my feet. I think now much of what I have >> > > is a neurological symptom of Lyme and/or co-infections from what was >> > > delivered by the mites... bacterias, fungi and parasites. >> > > > >> > > > >> > > > My husband was afflicted by this too with many many bites on his body >> > > -- we have remained in our house too. We were not able to move, but I >> > > wanted to very badly. It was not possible financially for us to move. I >> > > am on disability and my husband is not a high income maker, so there >> > > would not have been a way for us. Some that have moved have done really >> > > really well. Cecilia and Doris moved, got rid of everything they owned. >> > > Doris has absolutely no symptoms remaining and Cecilia, who lives in >> > > Sweden, has remaining infection, but not bothered by it terribly. Life >> > > goes on for them. Aggi, who lives in Germany, is also doing really well, >> > > 99% cured and has gotten on with her life. I know you have heard from >> > > some of these individuals already. >> > > > >> > > > >> > > > There can be infection delivered by mites, but not all people get >> > > these infections. Some people develop Morgellons - Lyme and body >> > > producing fibers (I did). Some mites are transmitting Lyme, some >> > > co-infections like Bartonella and who knows what else. All these mites >> > > seem to carry something different, maybe a different strain of Borrelia, >> > > plus combinations of other co-infections, parasites. If you remain sick >> > > has a lot to do with genetics and the detoxification ability of the >> > > body, prior exposures to toxins. The body has a genetic ability to detox >> > > and some genetically do not have this ability. There is much being >> > > revealed about this topic now. Aandraya has talked about how many of the >> > > crawling sensations are typical Bartonella... all of these infections >> > > affect the brain and central nervous system. Not everyone gets these >> > > infections, but most do get something. Is Lyme endemic in your area? I >> > > know you live in Seattle and my family lives in northern Oregon... my >> > > sister has Lyme in OR. Lyme is everywhere now. I think birds are >> > > carrying bartonella and it is being transmitted to mites, or maybe it is >> > > the other way around, mites are carrying bartonella and giving it to >> > > birds, I don't know which. Birds migrate everywhere... Canada is being >> > > hit hard by Lyme disease now according to a Lyme Literate doctor who >> > > knows about these things. >> > > > >> > > > >> > > > There is post-traumatic stress from this experience, but the anxiety >> > > may be caused by an infection that has passed through the blood, brain >> > > barrier. I know many of us have had this affect the brain, myself >> > > included... with treatment it gets better. Can you find a Lyme Literate >> > > doctor in Washington? I know there are no LLMDs in Oregon, as I've >> > > looked for my sister, but there are 3 doctors that are naturopaths who >> > > treat and are trained to treat Lyme and coinfections. They can prescribe >> > > too... I've talked to one of them personally. >> > > > >> > > > >> > > > Bartonella causes welts... I had those too. They actually appeared >> > > like a stretch mark, red then turning white. >> > > > >> > > > >> > > > Here are the names of doctors I am aware of in Oregon and Washington >> > > who might be able help you: >> > > > >> > > > >> > > > Lyme Treating Doctors >> > > > Dr. I Newman, MD, ND , MSOM >> > > > Classical & Modern Medicine >> > > > Rising Health >> > > > 8301 NE Hazel Dell Ave. >> > > > Vancouver, WA 98665 >> > > > Phone: (360) 696-3800 >> > > > Fax: (360) 696-0906 >> > > > http://www.drdanielnewman.com/ >> > > > >> > > > Dr. Stacey Raffety, BSN, LAc, ND (most experience in the Portland >> > > area) >> > > > Tigard Holistic Health Clinic >> > > > 11930 SW Greenburg Road >> > > > Tigard, Oregon 97223 >> > > > Phone: (503) 639-1712 >> > > > Fax: (971) 249-0319 >> > > > http://www.tigardholistic.com/ >> > > > >> > > > Dr. Chapman, ND (trained under Drs. Stricker & ) >> > > > 1567 SE Tacoma Street >> > > > Portland, OR 97202 >> > > > (503) 233-8113 >> > > > http://chapmannd.org >> > > > http://www.sellwoodfamilymedicine.com/ >> > > > >> > > > Dr. Usha Honeyman, DC, ND, DABCI >> > > > 1368 NW Lincoln Ave., Corvallis, OR 97330 >> > > > phone: (541) 754-6323 >> > > > http://www.ushahoneyman.com >> > > > >> > > > >> > > > >> > > > I hope you can get some help. Let us know if you need any more help. >> > > > >> > > > >> > > > >> > > > >> > > > New Member of the club... >> > > > >> > > > I've been reading through all these posts for a few days. I'm so glad >> > > to have found this forum. >> > > > >> > > > My problem began in the summer of 2009 when I moved into an apartment >> > > with a pigeon nesting on the small balcony off my bedroom. When the >> > > mother left the baby small black mites began to enter my room and the >> > > problems began. The first week my body was covered in tiny red itchy >> > > welts. I had a pest company spray my apartment several times. I kept my >> > > clothes in totes with moth balls, washed and dried my clothes and >> > > bedding daily.. drying all clothes before wearing them. I never wear the >> > > same thing twice in a row. >> > > > >> > > > Nearly three years and three apartments later I am still experiencing >> > > problems. I get tiny red bumps all over my body, mostly on my chest and >> > > legs. They don't itch terribly, but they look awful. I also experience >> > > the crawling sensation periodically throughout the day. >> > > > >> > > > Here are a few things I would love to get feedback on. >> > > > >> > > > I am able to sleep throughout the night, this hasn't been an issue for >> > > me since at least a month after it all began in 2009. If I do have >> > > problems sleeping it's because of anxiety rather than feeling like bugs >> > > are on me - what does this mean when so many of you are kept up at night >> > > because of the sensations? >> > > > >> > > > I have lived with two different people at the height of my problem, >> > > neither seemed to be affected. Why is that? >> > > > >> > > > Why could I see them in the beginning of my infestation, but no longer >> > > can see a thing? This is the part drives me the most crazy. If I can't >> > > see them, how do I effectively treat? >> > > > >> > > > I have never felt like I have had internal issues regarding the mites. >> > > I don't cough, have itchy nostrils or ears or eyes. My scalp itches on >> > > occasion, but I've chalked that up to being winter and having a dry >> > > scalp in general. >> > > > >> > > > I feel relatively calm considering, but to counter that incredibly >> > > anxious, distraught, and hopeless. >> > > > >> > > > I worry that just because I can't seen the red welts that I'm being >> > > bitten.. although I just don't know. I am inconstant fear that I will >> > > spread this to ones I love. >> > > > >> > > > I remember thinking in the summer of 2009, " This is fine, in a few >> > > months it'll be all over, " and now here I am, still in the middle of all >> > > it. >> > > > >> > > > I am thankful that I've found this community and to see that there are >> > > people who have come out of this alright. >> > > > >> > > > ML >> > > > >> > > > >> > > > >> > > > ------------------------------------ >> > > > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2012 Report Share Posted March 18, 2012 Yes that makes sense That milder cases would work But maybe not complex Is worth a try Can it be taken the homeopathy alongside abx? At same time couple hours apart? ------------------------------ On Sat, Mar 17, 2012 18:00 PDT Aandraya wrote: >Homeopathy seems to depend on individual and practitioner, some respond to it for Lyme, most need abx as well. Again, depends on the case. I know many who were or were almost beyond the point of no return. Even Dr. Klinghardt says homeopathy will no longer work for these multiple chronic infections... Probably for milder cases. > >Aandraya > > > >On Mar 17, 2012, at 5:12 PM, ILIKE TREES <wherearetheangels@...> wrote: > >> >> Thanks Aa >> Yes,bartonella makes sense >> Should I get round to buying banderol again? >> Cudnt stomach doxy again >> Think need a good break >> When woke today tum stil sore tho havent had doxy since thurs >> Masaged feet today >> Lots if toxins >> Feel as lumpy bits >> Sore toes after >> Little black things >> Maybe fungal >> Is there any homeopathy good fir lyme bartonela >> My friends a homeopath >> Was goin to ask order in n I pay for >> She knows rheres,one for lyme >> But nothing else that she knows >> >> ------------------------------ >> On Sat, Mar 17, 2012 15:00 PDT Aandraya wrote: >> >> >C- >> >The subcutaneous nodules and skin papules are classic bartonella. Of the over 100 people I've known with bartonella/Lyme- all have the blister things too. They take a long time to go away, eventually turn a whitish color but they are not scars, it's the last stage of the infection. They will look kind of like shite freckles- a mottled look. The lumps and bumps under the skin soften and distintegrate with treatment as well. >> > >> >Aandraya >> > >> > >> > >> >On Mar 16, 2012, at 5:18 AM, ILIKE TREES <wherearetheangels@...> wrote: >> > >> > >> > Hi ml >> > I also have small lumps under skin on my feet where I get most problems >> > Espec after pin prick sensation they are there n skin red sore swolen inflamed >> > Then redness goes away but blister thingsoften stil there >> > I too not sure if still mites or if bartonela lyme etc >> > Beginin to think it under the skin >> > Because ih boy I scrub feet hands where bites,are n still goes,on >> > Came across mycil cream yestrday fir athletes foot >> > Bought n.putin on feet hands now >> > As contains benzalkonium chloride that is in lysol or dettol >> > Looked back saw posts on it here >> > Figure worth a try >> > Benzyl peroxide didnt help me >> > But bites stronger on it >> > Dunno if a herx >> > Its a penetrant so figured if any mites there maybe would being em out? >> > Was goin to stop doxy today as feel ill >> > But maybe just smal break >> > As only took one yesterday n when feel bites,worse today...panics me >> > But maybe it the benzalchonium >> > Maybe we need to get samples from skin to entomologist >> > But we are all doin everything we can to physicaly fight this >> > I dont live with anyone >> > But I havent spread it to anyone >> > I wonder too if a new animal would be safe with me n in my flat? >> > Not in old flat as was badly infested >> > But its,just my feet n hands bothered now >> > Yes thank god its progress >> > And everyone finds that progress >> > Oh patience! >> > So ml hang in there >> > >> > ------------------------------ >> > On Fri, Mar 16, 2012 00:10 PDT mldashseattle wrote: >> > >> > >Thank you all for such detailed responses. It is such a relief to know that I am not alone. >> > > >> > >I have only done internet research on Lyme and Bartonella and I'm unsure that those are necessarily what is going on with me? I do not have the stretch mark like rashes found with Bartonella. What does appear on my skin are what look like bits. They do not turn into lesions, they are just raised, red bumps/welts that are about a centimeter or less in circumference. They are randomly placed and not usually in bunches - like currently I have three on my upper arm, two with in an inch of each other and the other down and about three inches from the two. >> > > >> > >These red bumps are the reason I believe I still have the mites and that they are biting me.... But I never see them. If I feel a pinprick sensation that feels like I bite I will immediate go to the source, but there is never anything there. That said and after all I've read, perhaps it is part of a passed on infection or psychosis? I'd almost rather it be an infection, that way I would at least be at peace knowing I'm not spreading this on to my loved ones. >> > > >> > >I will order the recommended Doxy - No one has had trouble ordering it online without a prescription? >> > > >> > >I still have the worry that the mites are with me still and that I will pass them on to others.. What has been everyone's experience with this? Have you been able to live in the same space as others and have them be OK and unaffected? >> > > >> > >I appreciate you all very much. >> > > >> > >ML >> > > >> > > >> > > > >> > > > >> > > > Hi mldashseattle, >> > > > >> > > > >> > > > So many people here acquired birdmites the EXACTLY way you describe. >> > > So many others... birds do seem to be the primary carriers, although >> > > rodents can carry some of the same mites. I am sorry this didn't all >> > > disappear for you after the mite experience, even with all 3 moves. Did >> > > your bites turn into lesions? I have the tiny red bumps too. They are >> > > still on my underarms mainly (hundreds) and scattered throughout my >> > > body. I never had those bumps before this happened to me 4 years ago. >> > > Some of the bites had turned into lesions which have since disappeared >> > > (were on my abdomen) and I did have several large long lasting red >> > > rashes that wrapped around my abdomen and neck. Those are gone now. >> > > > >> > > > >> > > > I am at the stage where this does not keep me up at night, although I >> > > still get biting sensations on my feet. I think now much of what I have >> > > is a neurological symptom of Lyme and/or co-infections from what was >> > > delivered by the mites... bacterias, fungi and parasites. >> > > > >> > > > >> > > > My husband was afflicted by this too with many many bites on his body >> > > -- we have remained in our house too. We were not able to move, but I >> > > wanted to very badly. It was not possible financially for us to move. I >> > > am on disability and my husband is not a high income maker, so there >> > > would not have been a way for us. Some that have moved have done really >> > > really well. Cecilia and Doris moved, got rid of everything they owned. >> > > Doris has absolutely no symptoms remaining and Cecilia, who lives in >> > > Sweden, has remaining infection, but not bothered by it terribly. Life >> > > goes on for them. Aggi, who lives in Germany, is also doing really well, >> > > 99% cured and has gotten on with her life. I know you have heard from >> > > some of these individuals already. >> > > > >> > > > >> > > > There can be infection delivered by mites, but not all people get >> > > these infections. Some people develop Morgellons - Lyme and body >> > > producing fibers (I did). Some mites are transmitting Lyme, some >> > > co-infections like Bartonella and who knows what else. All these mites >> > > seem to carry something different, maybe a different strain of Borrelia, >> > > plus combinations of other co-infections, parasites. If you remain sick >> > > has a lot to do with genetics and the detoxification ability of the >> > > body, prior exposures to toxins. The body has a genetic ability to detox >> > > and some genetically do not have this ability. There is much being >> > > revealed about this topic now. Aandraya has talked about how many of the >> > > crawling sensations are typical Bartonella... all of these infections >> > > affect the brain and central nervous system. Not everyone gets these >> > > infections, but most do get something. Is Lyme endemic in your area? I >> > > know you live in Seattle and my family lives in northern Oregon... my >> > > sister has Lyme in OR. Lyme is everywhere now. I think birds are >> > > carrying bartonella and it is being transmitted to mites, or maybe it is >> > > the other way around, mites are carrying bartonella and giving it to >> > > birds, I don't know which. Birds migrate everywhere... Canada is being >> > > hit hard by Lyme disease now according to a Lyme Literate doctor who >> > > knows about these things. >> > > > >> > > > >> > > > There is post-traumatic stress from this experience, but the anxiety >> > > may be caused by an infection that has passed through the blood, brain >> > > barrier. I know many of us have had this affect the brain, myself >> > > included... with treatment it gets better. Can you find a Lyme Literate >> > > doctor in Washington? I know there are no LLMDs in Oregon, as I've >> > > looked for my sister, but there are 3 doctors that are naturopaths who >> > > treat and are trained to treat Lyme and coinfections. They can prescribe >> > > too... I've talked to one of them personally. >> > > > >> > > > >> > > > Bartonella causes welts... I had those too. They actually appeared >> > > like a stretch mark, red then turning white. >> > > > >> > > > >> > > > Here are the names of doctors I am aware of in Oregon and Washington >> > > who might be able help you: >> > > > >> > > > >> > > > Lyme Treating Doctors >> > > > Dr. I Newman, MD, ND , MSOM >> > > > Classical & Modern Medicine >> > > > Rising Health >> > > > 8301 NE Hazel Dell Ave. >> > > > Vancouver, WA 98665 >> > > > Phone: (360) 696-3800 >> > > > Fax: (360) 696-0906 >> > > > http://www.drdanielnewman.com/ >> > > > >> > > > Dr. Stacey Raffety, BSN, LAc, ND (most experience in the Portland >> > > area) >> > > > Tigard Holistic Health Clinic >> > > > 11930 SW Greenburg Road >> > > > Tigard, Oregon 97223 >> > > > Phone: (503) 639-1712 >> > > > Fax: (971) 249-0319 >> > > > http://www.tigardholistic.com/ >> > > > >> > > > Dr. Chapman, ND (trained under Drs. Stricker & ) >> > > > 1567 SE Tacoma Street >> > > > Portland, OR 97202 >> > > > (503) 233-8113 >> > > > http://chapmannd.org >> > > > http://www.sellwoodfamilymedicine.com/ >> > > > >> > > > Dr. Usha Honeyman, DC, ND, DABCI >> > > > 1368 NW Lincoln Ave., Corvallis, OR 97330 >> > > > phone: (541) 754-6323 >> > > > http://www.ushahoneyman.com >> > > > >> > > > >> > > > >> > > > I hope you can get some help. Let us know if you need any more help. >> > > > >> > > > >> > > > >> > > > >> > > > New Member of the club... >> > > > >> > > > I've been reading through all these posts for a few days. I'm so glad >> > > to have found this forum. >> > > > >> > > > My problem began in the summer of 2009 when I moved into an apartment >> > > with a pigeon nesting on the small balcony off my bedroom. When the >> > > mother left the baby small black mites began to enter my room and the >> > > problems began. The first week my body was covered in tiny red itchy >> > > welts. I had a pest company spray my apartment several times. I kept my >> > > clothes in totes with moth balls, washed and dried my clothes and >> > > bedding daily.. drying all clothes before wearing them. I never wear the >> > > same thing twice in a row. >> > > > >> > > > Nearly three years and three apartments later I am still experiencing >> > > problems. I get tiny red bumps all over my body, mostly on my chest and >> > > legs. They don't itch terribly, but they look awful. I also experience >> > > the crawling sensation periodically throughout the day. >> > > > >> > > > Here are a few things I would love to get feedback on. >> > > > >> > > > I am able to sleep throughout the night, this hasn't been an issue for >> > > me since at least a month after it all began in 2009. If I do have >> > > problems sleeping it's because of anxiety rather than feeling like bugs >> > > are on me - what does this mean when so many of you are kept up at night >> > > because of the sensations? >> > > > >> > > > I have lived with two different people at the height of my problem, >> > > neither seemed to be affected. Why is that? >> > > > >> > > > Why could I see them in the beginning of my infestation, but no longer >> > > can see a thing? This is the part drives me the most crazy. If I can't >> > > see them, how do I effectively treat? >> > > > >> > > > I have never felt like I have had internal issues regarding the mites. >> > > I don't cough, have itchy nostrils or ears or eyes. My scalp itches on >> > > occasion, but I've chalked that up to being winter and having a dry >> > > scalp in general. >> > > > >> > > > I feel relatively calm considering, but to counter that incredibly >> > > anxious, distraught, and hopeless. >> > > > >> > > > I worry that just because I can't seen the red welts that I'm being >> > > bitten.. although I just don't know. I am inconstant fear that I will >> > > spread this to ones I love. >> > > > >> > > > I remember thinking in the summer of 2009, " This is fine, in a few >> > > months it'll be all over, " and now here I am, still in the middle of all >> > > it. >> > > > >> > > > I am thankful that I've found this community and to see that there are >> > > people who have come out of this alright. >> > > > >> > > > ML >> > > > >> > > > >> > > > >> > > > ------------------------------------ >> > > > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2012 Report Share Posted March 18, 2012 Until I am able to get doxy what should I be doing in the mean time? Also, what are the chances that I still have mites with me? In my environment? ML > >> > > > > >> > > > > >> > > > Hi mldashseattle, > >> > > > > >> > > > > >> > > > So many people here acquired birdmites the EXACTLY way you describe. > >> > > So many others... birds do seem to be the primary carriers, although > >> > > rodents can carry some of the same mites. I am sorry this didn't all > >> > > disappear for you after the mite experience, even with all 3 moves. Did > >> > > your bites turn into lesions? I have the tiny red bumps too. They are > >> > > still on my underarms mainly (hundreds) and scattered throughout my > >> > > body. I never had those bumps before this happened to me 4 years ago. > >> > > Some of the bites had turned into lesions which have since disappeared > >> > > (were on my abdomen) and I did have several large long lasting red > >> > > rashes that wrapped around my abdomen and neck. Those are gone now. > >> > > > > >> > > > > >> > > > I am at the stage where this does not keep me up at night, although I > >> > > still get biting sensations on my feet. I think now much of what I have > >> > > is a neurological symptom of Lyme and/or co-infections from what was > >> > > delivered by the mites... bacterias, fungi and parasites. > >> > > > > >> > > > > >> > > > My husband was afflicted by this too with many many bites on his body > >> > > -- we have remained in our house too. We were not able to move, but I > >> > > wanted to very badly. It was not possible financially for us to move. I > >> > > am on disability and my husband is not a high income maker, so there > >> > > would not have been a way for us. Some that have moved have done really > >> > > really well. Cecilia and Doris moved, got rid of everything they owned. > >> > > Doris has absolutely no symptoms remaining and Cecilia, who lives in > >> > > Sweden, has remaining infection, but not bothered by it terribly. Life > >> > > goes on for them. Aggi, who lives in Germany, is also doing really well, > >> > > 99% cured and has gotten on with her life. I know you have heard from > >> > > some of these individuals already. > >> > > > > >> > > > > >> > > > There can be infection delivered by mites, but not all people get > >> > > these infections. Some people develop Morgellons - Lyme and body > >> > > producing fibers (I did). Some mites are transmitting Lyme, some > >> > > co-infections like Bartonella and who knows what else. All these mites > >> > > seem to carry something different, maybe a different strain of Borrelia, > >> > > plus combinations of other co-infections, parasites. If you remain sick > >> > > has a lot to do with genetics and the detoxification ability of the > >> > > body, prior exposures to toxins. The body has a genetic ability to detox > >> > > and some genetically do not have this ability. There is much being > >> > > revealed about this topic now. Aandraya has talked about how many of the > >> > > crawling sensations are typical Bartonella... all of these infections > >> > > affect the brain and central nervous system. Not everyone gets these > >> > > infections, but most do get something. Is Lyme endemic in your area? I > >> > > know you live in Seattle and my family lives in northern Oregon... my > >> > > sister has Lyme in OR. Lyme is everywhere now. I think birds are > >> > > carrying bartonella and it is being transmitted to mites, or maybe it is > >> > > the other way around, mites are carrying bartonella and giving it to > >> > > birds, I don't know which. Birds migrate everywhere... Canada is being > >> > > hit hard by Lyme disease now according to a Lyme Literate doctor who > >> > > knows about these things. > >> > > > > >> > > > > >> > > > There is post-traumatic stress from this experience, but the anxiety > >> > > may be caused by an infection that has passed through the blood, brain > >> > > barrier. I know many of us have had this affect the brain, myself > >> > > included... with treatment it gets better. Can you find a Lyme Literate > >> > > doctor in Washington? I know there are no LLMDs in Oregon, as I've > >> > > looked for my sister, but there are 3 doctors that are naturopaths who > >> > > treat and are trained to treat Lyme and coinfections. They can prescribe > >> > > too... I've talked to one of them personally. > >> > > > > >> > > > > >> > > > Bartonella causes welts... I had those too. They actually appeared > >> > > like a stretch mark, red then turning white. > >> > > > > >> > > > > >> > > > Here are the names of doctors I am aware of in Oregon and Washington > >> > > who might be able help you: > >> > > > > >> > > > > >> > > > Lyme Treating Doctors > >> > > > Dr. I Newman, MD, ND , MSOM > >> > > > Classical & Modern Medicine > >> > > > Rising Health > >> > > > 8301 NE Hazel Dell Ave. > >> > > > Vancouver, WA 98665 > >> > > > Phone: (360) 696-3800 > >> > > > Fax: (360) 696-0906 > >> > > > http://www.drdanielnewman.com/ > >> > > > > >> > > > Dr. Stacey Raffety, BSN, LAc, ND (most experience in the Portland > >> > > area) > >> > > > Tigard Holistic Health Clinic > >> > > > 11930 SW Greenburg Road > >> > > > Tigard, Oregon 97223 > >> > > > Phone: (503) 639-1712 > >> > > > Fax: (971) 249-0319 > >> > > > http://www.tigardholistic.com/ > >> > > > > >> > > > Dr. Chapman, ND (trained under Drs. Stricker & ) > >> > > > 1567 SE Tacoma Street > >> > > > Portland, OR 97202 > >> > > > (503) 233-8113 > >> > > > http://chapmannd.org > >> > > > http://www.sellwoodfamilymedicine.com/ > >> > > > > >> > > > Dr. Usha Honeyman, DC, ND, DABCI > >> > > > 1368 NW Lincoln Ave., Corvallis, OR 97330 > >> > > > phone: (541) 754-6323 > >> > > > http://www.ushahoneyman.com > >> > > > > >> > > > > >> > > > > >> > > > I hope you can get some help. Let us know if you need any more help. > >> > > > > >> > > > > >> > > > > >> > > > > >> > > > New Member of the club... > >> > > > > >> > > > I've been reading through all these posts for a few days. I'm so glad > >> > > to have found this forum. > >> > > > > >> > > > My problem began in the summer of 2009 when I moved into an apartment > >> > > with a pigeon nesting on the small balcony off my bedroom. When the > >> > > mother left the baby small black mites began to enter my room and the > >> > > problems began. The first week my body was covered in tiny red itchy > >> > > welts. I had a pest company spray my apartment several times. I kept my > >> > > clothes in totes with moth balls, washed and dried my clothes and > >> > > bedding daily.. drying all clothes before wearing them. I never wear the > >> > > same thing twice in a row. > >> > > > > >> > > > Nearly three years and three apartments later I am still experiencing > >> > > problems. I get tiny red bumps all over my body, mostly on my chest and > >> > > legs. They don't itch terribly, but they look awful. I also experience > >> > > the crawling sensation periodically throughout the day. > >> > > > > >> > > > Here are a few things I would love to get feedback on. > >> > > > > >> > > > I am able to sleep throughout the night, this hasn't been an issue for > >> > > me since at least a month after it all began in 2009. If I do have > >> > > problems sleeping it's because of anxiety rather than feeling like bugs > >> > > are on me - what does this mean when so many of you are kept up at night > >> > > because of the sensations? > >> > > > > >> > > > I have lived with two different people at the height of my problem, > >> > > neither seemed to be affected. Why is that? > >> > > > > >> > > > Why could I see them in the beginning of my infestation, but no longer > >> > > can see a thing? This is the part drives me the most crazy. If I can't > >> > > see them, how do I effectively treat? > >> > > > > >> > > > I have never felt like I have had internal issues regarding the mites. > >> > > I don't cough, have itchy nostrils or ears or eyes. My scalp itches on > >> > > occasion, but I've chalked that up to being winter and having a dry > >> > > scalp in general. > >> > > > > >> > > > I feel relatively calm considering, but to counter that incredibly > >> > > anxious, distraught, and hopeless. > >> > > > > >> > > > I worry that just because I can't seen the red welts that I'm being > >> > > bitten.. although I just don't know. I am inconstant fear that I will > >> > > spread this to ones I love. > >> > > > > >> > > > I remember thinking in the summer of 2009, " This is fine, in a few > >> > > months it'll be all over, " and now here I am, still in the middle of all > >> > > it. > >> > > > > >> > > > I am thankful that I've found this community and to see that there are > >> > > people who have come out of this alright. > >> > > > > >> > > > ML > >> > > > > >> > > > > >> > > > > >> > > > ------------------------------------ > >> > > > > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2012 Report Share Posted March 18, 2012 I had Lyme western blot positive. Treated with antibiotics, and alternatives. However I had a insect infestation also. Was there a connection, probably. Point is without treatment of environment, and my body, internally and externally, I would have not healed! > > >> > > > > > >> > > > > > >> > > > Hi mldashseattle, > > >> > > > > > >> > > > > > >> > > > So many people here acquired birdmites the EXACTLY way you describe. > > >> > > So many others... birds do seem to be the primary carriers, although > > >> > > rodents can carry some of the same mites. I am sorry this didn't all > > >> > > disappear for you after the mite experience, even with all 3 moves. Did > > >> > > your bites turn into lesions? I have the tiny red bumps too. They are > > >> > > still on my underarms mainly (hundreds) and scattered throughout my > > >> > > body. I never had those bumps before this happened to me 4 years ago. > > >> > > Some of the bites had turned into lesions which have since disappeared > > >> > > (were on my abdomen) and I did have several large long lasting red > > >> > > rashes that wrapped around my abdomen and neck. Those are gone now. > > >> > > > > > >> > > > > > >> > > > I am at the stage where this does not keep me up at night, although I > > >> > > still get biting sensations on my feet. I think now much of what I have > > >> > > is a neurological symptom of Lyme and/or co-infections from what was > > >> > > delivered by the mites... bacterias, fungi and parasites. > > >> > > > > > >> > > > > > >> > > > My husband was afflicted by this too with many many bites on his body > > >> > > -- we have remained in our house too. We were not able to move, but I > > >> > > wanted to very badly. It was not possible financially for us to move. I > > >> > > am on disability and my husband is not a high income maker, so there > > >> > > would not have been a way for us. Some that have moved have done really > > >> > > really well. Cecilia and Doris moved, got rid of everything they owned. > > >> > > Doris has absolutely no symptoms remaining and Cecilia, who lives in > > >> > > Sweden, has remaining infection, but not bothered by it terribly. Life > > >> > > goes on for them. Aggi, who lives in Germany, is also doing really well, > > >> > > 99% cured and has gotten on with her life. I know you have heard from > > >> > > some of these individuals already. > > >> > > > > > >> > > > > > >> > > > There can be infection delivered by mites, but not all people get > > >> > > these infections. Some people develop Morgellons - Lyme and body > > >> > > producing fibers (I did). Some mites are transmitting Lyme, some > > >> > > co-infections like Bartonella and who knows what else. All these mites > > >> > > seem to carry something different, maybe a different strain of Borrelia, > > >> > > plus combinations of other co-infections, parasites. If you remain sick > > >> > > has a lot to do with genetics and the detoxification ability of the > > >> > > body, prior exposures to toxins. The body has a genetic ability to detox > > >> > > and some genetically do not have this ability. There is much being > > >> > > revealed about this topic now. Aandraya has talked about how many of the > > >> > > crawling sensations are typical Bartonella... all of these infections > > >> > > affect the brain and central nervous system. Not everyone gets these > > >> > > infections, but most do get something. Is Lyme endemic in your area? I > > >> > > know you live in Seattle and my family lives in northern Oregon... my > > >> > > sister has Lyme in OR. Lyme is everywhere now. I think birds are > > >> > > carrying bartonella and it is being transmitted to mites, or maybe it is > > >> > > the other way around, mites are carrying bartonella and giving it to > > >> > > birds, I don't know which. Birds migrate everywhere... Canada is being > > >> > > hit hard by Lyme disease now according to a Lyme Literate doctor who > > >> > > knows about these things. > > >> > > > > > >> > > > > > >> > > > There is post-traumatic stress from this experience, but the anxiety > > >> > > may be caused by an infection that has passed through the blood, brain > > >> > > barrier. I know many of us have had this affect the brain, myself > > >> > > included... with treatment it gets better. Can you find a Lyme Literate > > >> > > doctor in Washington? I know there are no LLMDs in Oregon, as I've > > >> > > looked for my sister, but there are 3 doctors that are naturopaths who > > >> > > treat and are trained to treat Lyme and coinfections. They can prescribe > > >> > > too... I've talked to one of them personally. > > >> > > > > > >> > > > > > >> > > > Bartonella causes welts... I had those too. They actually appeared > > >> > > like a stretch mark, red then turning white. > > >> > > > > > >> > > > > > >> > > > Here are the names of doctors I am aware of in Oregon and Washington > > >> > > who might be able help you: > > >> > > > > > >> > > > > > >> > > > Lyme Treating Doctors > > >> > > > Dr. I Newman, MD, ND , MSOM > > >> > > > Classical & Modern Medicine > > >> > > > Rising Health > > >> > > > 8301 NE Hazel Dell Ave. > > >> > > > Vancouver, WA 98665 > > >> > > > Phone: (360) 696-3800 > > >> > > > Fax: (360) 696-0906 > > >> > > > http://www.drdanielnewman.com/ > > >> > > > > > >> > > > Dr. Stacey Raffety, BSN, LAc, ND (most experience in the Portland > > >> > > area) > > >> > > > Tigard Holistic Health Clinic > > >> > > > 11930 SW Greenburg Road > > >> > > > Tigard, Oregon 97223 > > >> > > > Phone: (503) 639-1712 > > >> > > > Fax: (971) 249-0319 > > >> > > > http://www.tigardholistic.com/ > > >> > > > > > >> > > > Dr. Chapman, ND (trained under Drs. Stricker & ) > > >> > > > 1567 SE Tacoma Street > > >> > > > Portland, OR 97202 > > >> > > > (503) 233-8113 > > >> > > > http://chapmannd.org > > >> > > > http://www.sellwoodfamilymedicine.com/ > > >> > > > > > >> > > > Dr. Usha Honeyman, DC, ND, DABCI > > >> > > > 1368 NW Lincoln Ave., Corvallis, OR 97330 > > >> > > > phone: (541) 754-6323 > > >> > > > http://www.ushahoneyman.com > > >> > > > > > >> > > > > > >> > > > > > >> > > > I hope you can get some help. Let us know if you need any more help. > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > New Member of the club... > > >> > > > > > >> > > > I've been reading through all these posts for a few days. I'm so glad > > >> > > to have found this forum. > > >> > > > > > >> > > > My problem began in the summer of 2009 when I moved into an apartment > > >> > > with a pigeon nesting on the small balcony off my bedroom. When the > > >> > > mother left the baby small black mites began to enter my room and the > > >> > > problems began. The first week my body was covered in tiny red itchy > > >> > > welts. I had a pest company spray my apartment several times. I kept my > > >> > > clothes in totes with moth balls, washed and dried my clothes and > > >> > > bedding daily.. drying all clothes before wearing them. I never wear the > > >> > > same thing twice in a row. > > >> > > > > > >> > > > Nearly three years and three apartments later I am still experiencing > > >> > > problems. I get tiny red bumps all over my body, mostly on my chest and > > >> > > legs. They don't itch terribly, but they look awful. I also experience > > >> > > the crawling sensation periodically throughout the day. > > >> > > > > > >> > > > Here are a few things I would love to get feedback on. > > >> > > > > > >> > > > I am able to sleep throughout the night, this hasn't been an issue for > > >> > > me since at least a month after it all began in 2009. If I do have > > >> > > problems sleeping it's because of anxiety rather than feeling like bugs > > >> > > are on me - what does this mean when so many of you are kept up at night > > >> > > because of the sensations? > > >> > > > > > >> > > > I have lived with two different people at the height of my problem, > > >> > > neither seemed to be affected. Why is that? > > >> > > > > > >> > > > Why could I see them in the beginning of my infestation, but no longer > > >> > > can see a thing? This is the part drives me the most crazy. If I can't > > >> > > see them, how do I effectively treat? > > >> > > > > > >> > > > I have never felt like I have had internal issues regarding the mites. > > >> > > I don't cough, have itchy nostrils or ears or eyes. My scalp itches on > > >> > > occasion, but I've chalked that up to being winter and having a dry > > >> > > scalp in general. > > >> > > > > > >> > > > I feel relatively calm considering, but to counter that incredibly > > >> > > anxious, distraught, and hopeless. > > >> > > > > > >> > > > I worry that just because I can't seen the red welts that I'm being > > >> > > bitten.. although I just don't know. I am inconstant fear that I will > > >> > > spread this to ones I love. > > >> > > > > > >> > > > I remember thinking in the summer of 2009, " This is fine, in a few > > >> > > months it'll be all over, " and now here I am, still in the middle of all > > >> > > it. > > >> > > > > > >> > > > I am thankful that I've found this community and to see that there are > > >> > > people who have come out of this alright. > > >> > > > > > >> > > > ML > > >> > > > > > >> > > > > > >> > > > > > >> > > > ------------------------------------ > > >> > > > > > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 I never got help of any doctors, they would only provide me with an ointment for the bites. First derm I went to diagnosed me with scabies, which is all they know when it comes to mites in connection with humans, unfortunately... I had been in contact with an entomologist of a university. He advised me to push the mattress of the bed aside between midnight and one o'clock a.m., when mites are most active and then stick a clear tape on the bed frame over and over again, which I did. The very next morning I sent off the tapes and the analysis was positive, a blood-sucking mite, which he could not specify any further. Besides, I had not seen anything on these tapes with my hand-held magnifier. The anti-fungal is called Itraconazole, 100 mg caps. I took one in the morning and one at night and I've noticed a difference after about 5 days already. Took it for about 4 weeks, then switched to the doxy. What has also helped was the intake of MSM, pure natural sulfur in capsules. I took the max. dosis of 4000mg per day and it has helped, but did not get rid of the bugs, it only keeps them more away. Von: mldashseattle <mldashseattle@...>An: bird mites Gesendet: 5:21 Samstag, 17.März 2012Betreff: Re: New Member of the club......Thanks Aggi,Thank you for your responses.You said that you were diagnosed with a blood-sucking mite? Did a MD diagnosed you? I have had no interactions with medical professionals in the last couple years regarding this issue because I have not found them helpful. I have also never sent any samples into anyone because I'm not sure what the samples would be of or to who.I'm going to order the doxy on Monday, but it looks like it will still take up to 3 weeks or so for it to arrive.What antifungal did you use?Is there anything else that you did, Aggi, other than using the anti-fungal and doxy?ML > > > > > > > > > Hi mldashseattle, > > > > > > > > > So many people here acquired birdmites the EXACTLY way you describe. > > So many others... birds do seem to be the primary carriers, although > > rodents can carry some of the same mites. I am sorry this didn't all > > disappear for you after the mite experience, even with all 3 moves. Did > > your bites turn into lesions? I have the tiny red bumps too. They are > > still on my underarms mainly (hundreds) and scattered throughout my > > body. I never had those bumps before this happened to me 4 years ago. > > Some of the bites had turned into lesions which have since disappeared > > (were on my abdomen) and I did have several large long lasting red > > rashes that wrapped around my abdomen and neck. Those are gone now. > > > > > > > > > I am at the stage where this does not keep me up at night, although I > > still get biting sensations on my feet. I think now much of what I have > > is a neurological symptom of Lyme and/or co-infections from what was > > delivered by the mites... bacterias, fungi and parasites. > > > > > > > > > My husband was afflicted by this too with many many bites on his body > > -- we have remained in our house too. We were not able to move, but I > > wanted to very badly. It was not possible financially for us to move. I > > am on disability and my husband is not a high income maker, so there > > would not have been a way for us. Some that have moved have done really > > really well. Cecilia and Doris moved, got rid of everything they owned. > > Doris has absolutely no symptoms remaining and Cecilia, who lives in > > Sweden, has remaining infection, but not bothered by it terribly. Life > > goes on for them. Aggi, who lives in Germany, is also doing really well, > > 99% cured and has gotten on with her life. I know you have heard from > > some of these individuals already. > > > > > > > > > There can be infection delivered by mites, but not all people get > > these infections. Some people develop Morgellons - Lyme and body > > producing fibers (I did). Some mites are transmitting Lyme, some > > co-infections like Bartonella and who knows what else. All these mites > > seem to carry something different, maybe a different strain of Borrelia, > > plus combinations of other co-infections, parasites. If you remain sick > > has a lot to do with genetics and the detoxification ability of the > > body, prior exposures to toxins. The body has a genetic ability to detox > > and some genetically do not have this ability. There is much being > > revealed about this topic now. Aandraya has talked about how many of the > > crawling sensations are typical Bartonella... all of these infections > > affect the brain and central nervous system. Not everyone gets these > > infections, but most do get something. Is Lyme endemic in your area? I > > know you live in Seattle and my family lives in northern Oregon... my > > sister has Lyme in OR. Lyme is everywhere now. I think birds are > > carrying bartonella and it is being transmitted to mites, or maybe it is > > the other way around, mites are carrying bartonella and giving it to > > birds, I don't know which. Birds migrate everywhere... Canada is being > > hit hard by Lyme disease now according to a Lyme Literate doctor who > > knows about these things. > > > > > > > > > There is post-traumatic stress from this experience, but the anxiety > > may be caused by an infection that has passed through the blood, brain > > barrier. I know many of us have had this affect the brain, myself > > included... with treatment it gets better. Can you find a Lyme Literate > > doctor in Washington? I know there are no LLMDs in Oregon, as I've > > looked for my sister, but there are 3 doctors that are naturopaths who > > treat and are trained to treat Lyme and coinfections. They can prescribe > > too... I've talked to one of them personally. > > > > > > > > > Bartonella causes welts... I had those too. They actually appeared > > like a stretch mark, red then turning white. > > > > > > > > > Here are the names of doctors I am aware of in Oregon and Washington > > who might be able help you: > > > > > > > > > Lyme Treating Doctors > > > Dr. I Newman, MD, ND , MSOM > > > Classical & Modern Medicine > > > Rising Health > > > 8301 NE Hazel Dell Ave. > > > Vancouver, WA 98665 > > > Phone: (360) 696-3800 > > > Fax: (360) 696-0906 > > > http://www.drdanielnewman.com/ > > > > > > Dr. Stacey Raffety, BSN, LAc, ND (most experience in the Portland > > area) > > > Tigard Holistic Health Clinic > > > 11930 SW Greenburg Road > > > Tigard, Oregon 97223 > > > Phone: (503) 639-1712 > > > Fax: (971) 249-0319 > > > http://www.tigardholistic.com/ > > > > > > Dr. Chapman, ND (trained under Drs. Stricker & ) > > > 1567 SE Tacoma Street > > > Portland, OR 97202 > > > (503) 233-8113 > > > http://chapmannd.org > > > http://www.sellwoodfamilymedicine.com/ > > > > > > Dr. Usha Honeyman, DC, ND, DABCI > > > 1368 NW Lincoln Ave., Corvallis, OR 97330 > > > phone: (541) 754-6323 > > > http://www.ushahoneyman.com > > > > > > > > > > > > I hope you can get some help. Let us know if you need any more help. > > > > > > > > > > > > > > > New Member of the club... > > > > > > I've been reading through all these posts for a few days. I'm so glad > > to have found this forum. > > > > > > My problem began in the summer of 2009 when I moved into an apartment > > with a pigeon nesting on the small balcony off my bedroom. When the > > mother left the baby small black mites began to enter my room and the > > problems began. The first week my body was covered in tiny red itchy > > welts. I had a pest company spray my apartment several times. I kept my > > clothes in totes with moth balls, washed and dried my clothes and > > bedding daily.. drying all clothes before wearing them. I never wear the > > same thing twice in a row. > > > > > > Nearly three years and three apartments later I am still experiencing > > problems. I get tiny red bumps all over my body, mostly on my chest and > > legs. They don't itch terribly, but they look awful. I also experience > > the crawling sensation periodically throughout the day. > > > > > > Here are a few things I would love to get feedback on. > > > > > > I am able to sleep throughout the night, this hasn't been an issue for > > me since at least a month after it all began in 2009. If I do have > > problems sleeping it's because of anxiety rather than feeling like bugs > > are on me - what does this mean when so many of you are kept up at night > > because of the sensations? > > > > > > I have lived with two different people at the height of my problem, > > neither seemed to be affected. Why is that? > > > > > > Why could I see them in the beginning of my infestation, but no longer > > can see a thing? This is the part drives me the most crazy. If I can't > > see them, how do I effectively treat? > > > > > > I have never felt like I have had internal issues regarding the mites. > > I don't cough, have itchy nostrils or ears or eyes. My scalp itches on > > occasion, but I've chalked that up to being winter and having a dry > > scalp in general. > > > > > > I feel relatively calm considering, but to counter that incredibly > > anxious, distraught, and hopeless. > > > > > > I worry that just because I can't seen the red welts that I'm being > > bitten.. although I just don't know. I am inconstant fear that I will > > spread this to ones I love. > > > > > > I remember thinking in the summer of 2009, "This is fine, in a few > > months it'll be all over," and now here I am, still in the middle of all > > it. > > > > > > I am thankful that I've found this community and to see that there are > > people who have come out of this alright. > > > > > > ML > > > > > > > > > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 Aggi, have you found that you are able to function fairly normally? You said you've been able to be in close contact with your friends, family, and partner and they remain unaffected? My most major concern is that I will affect and infect other people. That would be the worst possible thing to happen in my world. You haven't been able to get rid of the mites, but their activity has lessened? ML > > > > > > > > > > > > Hi mldashseattle, > > > > > > > > > > > > So many people here acquired birdmites the EXACTLY way you describe. > > > So many others... birds do seem to be the primary carriers, although > > > rodents can carry some of the same mites. I am sorry this didn't all > > > disappear for you after the mite experience, even with all 3 moves. Did > > > your bites turn into lesions? I have the tiny red bumps too. They are > > > still on my underarms mainly (hundreds) and scattered throughout my > > > body. I never had those bumps before this happened to me 4 years ago. > > > Some of the bites had turned into lesions which have since disappeared > > > (were on my abdomen) and I did have several large long lasting red > > > rashes that wrapped around my abdomen and neck. Those are gone now. > > > > > > > > > > > > I am at the stage where this does not keep me up at night, although I > > > still get biting sensations on my feet. I think now much of what I have > > > is a neurological symptom of Lyme and/or co-infections from what was > > > delivered by the mites... bacterias, fungi and parasites. > > > > > > > > > > > > My husband was afflicted by this too with many many bites on his body > > > -- we have remained in our house too. We were not able to move, but I > > > wanted to very badly. It was not possible financially for us to move. I > > > am on disability and my husband is not a high income maker, so there > > > would not have been a way for us. Some that have moved have done really > > > really well. Cecilia and Doris moved, got rid of everything they owned. > > > Doris has absolutely no symptoms remaining and Cecilia, who lives in > > > Sweden, has remaining infection, but not bothered by it terribly. Life > > > goes on for them. Aggi, who lives in Germany, is also doing really well, > > > 99% cured and has gotten on with her life. I know you have heard from > > > some of these individuals already. > > > > > > > > > > > > There can be infection delivered by mites, but not all people get > > > these infections. Some people develop Morgellons - Lyme and body > > > producing fibers (I did). Some mites are transmitting Lyme, some > > > co-infections like Bartonella and who knows what else. All these mites > > > seem to carry something different, maybe a different strain of Borrelia, > > > plus combinations of other co-infections, parasites. If you remain sick > > > has a lot to do with genetics and the detoxification ability of the > > > body, prior exposures to toxins. The body has a genetic ability to detox > > > and some genetically do not have this ability. There is much being > > > revealed about this topic now. Aandraya has talked about how many of the > > > crawling sensations are typical Bartonella... all of these infections > > > affect the brain and central nervous system. Not everyone gets these > > > infections, but most do get something. Is Lyme endemic in your area? I > > > know you live in Seattle and my family lives in northern Oregon... my > > > sister has Lyme in OR. Lyme is everywhere now. I think birds are > > > carrying bartonella and it is being transmitted to mites, or maybe it is > > > the other way around, mites are carrying bartonella and giving it to > > > birds, I don't know which. Birds migrate everywhere... Canada is being > > > hit hard by Lyme disease now according to a Lyme Literate doctor who > > > knows about these things. > > > > > > > > > > > > There is post-traumatic stress from this experience, but the anxiety > > > may be caused by an infection that has passed through the blood, brain > > > barrier. I know many of us have had this affect the brain, myself > > > included... with treatment it gets better. Can you find a Lyme Literate > > > doctor in Washington? I know there are no LLMDs in Oregon, as I've > > > looked for my sister, but there are 3 doctors that are naturopaths who > > > treat and are trained to treat Lyme and coinfections. They can prescribe > > > too... I've talked to one of them personally. > > > > > > > > > > > > Bartonella causes welts... I had those too. They actually appeared > > > like a stretch mark, red then turning white. > > > > > > > > > > > > Here are the names of doctors I am aware of in Oregon and Washington > > > who might be able help you: > > > > > > > > > > > > Lyme Treating Doctors > > > > Dr. I Newman, MD, ND , MSOM > > > > Classical & Modern Medicine > > > > Rising Health > > > > 8301 NE Hazel Dell Ave. > > > > Vancouver, WA 98665 > > > > Phone: (360) 696-3800 > > > > Fax: (360) 696-0906 > > > > http://www.drdanielnewman.com/ > > > > > > > > Dr. Stacey Raffety, BSN, LAc, ND (most experience in the Portland > > > area) > > > > Tigard Holistic Health Clinic > > > > 11930 SW Greenburg Road > > > > Tigard, Oregon 97223 > > > > Phone: (503) 639-1712 > > > > Fax: (971) 249-0319 > > > > http://www.tigardholistic.com/ > > > > > > > > Dr. Chapman, ND (trained under Drs. Stricker & ) > > > > 1567 SE Tacoma Street > > > > Portland, OR 97202 > > > > (503) 233-8113 > > > > http://chapmannd.org > > > > http://www.sellwoodfamilymedicine.com/ > > > > > > > > Dr. Usha Honeyman, DC, ND, DABCI > > > > 1368 NW Lincoln Ave., Corvallis, OR 97330 > > > > phone: (541) 754-6323 > > > > http://www.ushahoneyman.com > > > > > > > > > > > > > > > > I hope you can get some help. Let us know if you need any more help. > > > > > > > > > > > > > > > > > > > > New Member of the club... > > > > > > > > I've been reading through all these posts for a few days. I'm so glad > > > to have found this forum. > > > > > > > > My problem began in the summer of 2009 when I moved into an apartment > > > with a pigeon nesting on the small balcony off my bedroom. When the > > > mother left the baby small black mites began to enter my room and the > > > problems began. The first week my body was covered in tiny red itchy > > > welts. I had a pest company spray my apartment several times. I kept my > > > clothes in totes with moth balls, washed and dried my clothes and > > > bedding daily.. drying all clothes before wearing them. I never wear the > > > same thing twice in a row. > > > > > > > > Nearly three years and three apartments later I am still experiencing > > > problems. I get tiny red bumps all over my body, mostly on my chest and > > > legs. They don't itch terribly, but they look awful. I also experience > > > the crawling sensation periodically throughout the day. > > > > > > > > Here are a few things I would love to get feedback on. > > > > > > > > I am able to sleep throughout the night, this hasn't been an issue for > > > me since at least a month after it all began in 2009. If I do have > > > problems sleeping it's because of anxiety rather than feeling like bugs > > > are on me - what does this mean when so many of you are kept up at night > > > because of the sensations? > > > > > > > > I have lived with two different people at the height of my problem, > > > neither seemed to be affected. Why is that? > > > > > > > > Why could I see them in the beginning of my infestation, but no longer > > > can see a thing? This is the part drives me the most crazy. If I can't > > > see them, how do I effectively treat? > > > > > > > > I have never felt like I have had internal issues regarding the mites. > > > I don't cough, have itchy nostrils or ears or eyes. My scalp itches on > > > occasion, but I've chalked that up to being winter and having a dry > > > scalp in general. > > > > > > > > I feel relatively calm considering, but to counter that incredibly > > > anxious, distraught, and hopeless. > > > > > > > > I worry that just because I can't seen the red welts that I'm being > > > bitten.. although I just don't know. I am inconstant fear that I will > > > spread this to ones I love. > > > > > > > > I remember thinking in the summer of 2009, " This is fine, in a few > > > months it'll be all over, " and now here I am, still in the middle of all > > > it. > > > > > > > > I am thankful that I've found this community and to see that there are > > > people who have come out of this alright. > > > > > > > > ML > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 Lyme and bartonella(maybe babesia) can be sexually and congenitally transmitted if the effected person is not in treatment. Some doctors believe it can be passed through kissing though there are no studies. As far as the bugs go I never passed them to anyone.Aandraya On Mar 20, 2012, at 1:08 PM, mldashseattle <mldashseattle@...> wrote: Aggi, have you found that you are able to function fairly normally? You said you've been able to be in close contact with your friends, family, and partner and they remain unaffected? My most major concern is that I will affect and infect other people. That would be the worst possible thing to happen in my world. You haven't been able to get rid of the mites, but their activity has lessened? ML > > > > > > > > > > > > Hi mldashseattle, > > > > > > > > > > > > So many people here acquired birdmites the EXACTLY way you describe. > > > So many others... birds do seem to be the primary carriers, although > > > rodents can carry some of the same mites. I am sorry this didn't all > > > disappear for you after the mite experience, even with all 3 moves. Did > > > your bites turn into lesions? I have the tiny red bumps too. They are > > > still on my underarms mainly (hundreds) and scattered throughout my > > > body. I never had those bumps before this happened to me 4 years ago. > > > Some of the bites had turned into lesions which have since disappeared > > > (were on my abdomen) and I did have several large long lasting red > > > rashes that wrapped around my abdomen and neck. Those are gone now. > > > > > > > > > > > > I am at the stage where this does not keep me up at night, although I > > > still get biting sensations on my feet. I think now much of what I have > > > is a neurological symptom of Lyme and/or co-infections from what was > > > delivered by the mites... bacterias, fungi and parasites. > > > > > > > > > > > > My husband was afflicted by this too with many many bites on his body > > > -- we have remained in our house too. We were not able to move, but I > > > wanted to very badly. It was not possible financially for us to move. I > > > am on disability and my husband is not a high income maker, so there > > > would not have been a way for us. Some that have moved have done really > > > really well. Cecilia and Doris moved, got rid of everything they owned. > > > Doris has absolutely no symptoms remaining and Cecilia, who lives in > > > Sweden, has remaining infection, but not bothered by it terribly. Life > > > goes on for them. Aggi, who lives in Germany, is also doing really well, > > > 99% cured and has gotten on with her life. I know you have heard from > > > some of these individuals already. > > > > > > > > > > > > There can be infection delivered by mites, but not all people get > > > these infections. Some people develop Morgellons - Lyme and body > > > producing fibers (I did). Some mites are transmitting Lyme, some > > > co-infections like Bartonella and who knows what else. All these mites > > > seem to carry something different, maybe a different strain of Borrelia, > > > plus combinations of other co-infections, parasites. If you remain sick > > > has a lot to do with genetics and the detoxification ability of the > > > body, prior exposures to toxins. The body has a genetic ability to detox > > > and some genetically do not have this ability. There is much being > > > revealed about this topic now. Aandraya has talked about how many of the > > > crawling sensations are typical Bartonella... all of these infections > > > affect the brain and central nervous system. Not everyone gets these > > > infections, but most do get something. Is Lyme endemic in your area? I > > > know you live in Seattle and my family lives in northern Oregon... my > > > sister has Lyme in OR. Lyme is everywhere now. I think birds are > > > carrying bartonella and it is being transmitted to mites, or maybe it is > > > the other way around, mites are carrying bartonella and giving it to > > > birds, I don't know which. Birds migrate everywhere... Canada is being > > > hit hard by Lyme disease now according to a Lyme Literate doctor who > > > knows about these things. > > > > > > > > > > > > There is post-traumatic stress from this experience, but the anxiety > > > may be caused by an infection that has passed through the blood, brain > > > barrier. I know many of us have had this affect the brain, myself > > > included... with treatment it gets better. Can you find a Lyme Literate > > > doctor in Washington? I know there are no LLMDs in Oregon, as I've > > > looked for my sister, but there are 3 doctors that are naturopaths who > > > treat and are trained to treat Lyme and coinfections. They can prescribe > > > too... I've talked to one of them personally. > > > > > > > > > > > > Bartonella causes welts... I had those too. They actually appeared > > > like a stretch mark, red then turning white. > > > > > > > > > > > > Here are the names of doctors I am aware of in Oregon and Washington > > > who might be able help you: > > > > > > > > > > > > Lyme Treating Doctors > > > > Dr. I Newman, MD, ND , MSOM > > > > Classical & Modern Medicine > > > > Rising Health > > > > 8301 NE Hazel Dell Ave. > > > > Vancouver, WA 98665 > > > > Phone: (360) 696-3800 > > > > Fax: (360) 696-0906 > > > > http://www.drdanielnewman.com/ > > > > > > > > Dr. Stacey Raffety, BSN, LAc, ND (most experience in the Portland > > > area) > > > > Tigard Holistic Health Clinic > > > > 11930 SW Greenburg Road > > > > Tigard, Oregon 97223 > > > > Phone: (503) 639-1712 > > > > Fax: (971) 249-0319 > > > > http://www.tigardholistic.com/ > > > > > > > > Dr. Chapman, ND (trained under Drs. Stricker & ) > > > > 1567 SE Tacoma Street > > > > Portland, OR 97202 > > > > (503) 233-8113 > > > > http://chapmannd.org > > > > http://www.sellwoodfamilymedicine.com/ > > > > > > > > Dr. Usha Honeyman, DC, ND, DABCI > > > > 1368 NW Lincoln Ave., Corvallis, OR 97330 > > > > phone: (541) 754-6323 > > > > http://www.ushahoneyman.com > > > > > > > > > > > > > > > > I hope you can get some help. Let us know if you need any more help. > > > > > > > > > > > > > > > > > > > > New Member of the club... > > > > > > > > I've been reading through all these posts for a few days. I'm so glad > > > to have found this forum. > > > > > > > > My problem began in the summer of 2009 when I moved into an apartment > > > with a pigeon nesting on the small balcony off my bedroom. When the > > > mother left the baby small black mites began to enter my room and the > > > problems began. The first week my body was covered in tiny red itchy > > > welts. I had a pest company spray my apartment several times. I kept my > > > clothes in totes with moth balls, washed and dried my clothes and > > > bedding daily.. drying all clothes before wearing them. I never wear the > > > same thing twice in a row. > > > > > > > > Nearly three years and three apartments later I am still experiencing > > > problems. I get tiny red bumps all over my body, mostly on my chest and > > > legs. They don't itch terribly, but they look awful. I also experience > > > the crawling sensation periodically throughout the day. > > > > > > > > Here are a few things I would love to get feedback on. > > > > > > > > I am able to sleep throughout the night, this hasn't been an issue for > > > me since at least a month after it all began in 2009. If I do have > > > problems sleeping it's because of anxiety rather than feeling like bugs > > > are on me - what does this mean when so many of you are kept up at night > > > because of the sensations? > > > > > > > > I have lived with two different people at the height of my problem, > > > neither seemed to be affected. Why is that? > > > > > > > > Why could I see them in the beginning of my infestation, but no longer > > > can see a thing? This is the part drives me the most crazy. If I can't > > > see them, how do I effectively treat? > > > > > > > > I have never felt like I have had internal issues regarding the mites. > > > I don't cough, have itchy nostrils or ears or eyes. My scalp itches on > > > occasion, but I've chalked that up to being winter and having a dry > > > scalp in general. > > > > > > > > I feel relatively calm considering, but to counter that incredibly > > > anxious, distraught, and hopeless. > > > > > > > > I worry that just because I can't seen the red welts that I'm being > > > bitten.. although I just don't know. I am inconstant fear that I will > > > spread this to ones I love. > > > > > > > > I remember thinking in the summer of 2009, "This is fine, in a few > > > months it'll be all over," and now here I am, still in the middle of all > > > it. > > > > > > > > I am thankful that I've found this community and to see that there are > > > people who have come out of this alright. > > > > > > > > ML > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 Trust me ML, it would have been for me, too ! But during this long-term affliction I have only noticed people scratching their heads from time to time. Not one got the house infested due to my presence or has been attacked, swarmed and bit to death like I had been. Thank god this is not my present life anymore ! The mites are not totally gone as I am still facing bites occasionally, and every biting mite reproduces again straight away. Birdmites can also live up to 14 months without a blood meal, now you do your homework :-) Don't worry ML, there is something in YOUR body, that does attract them, may it be a fungal issue or a chronic infection or either one. This is why you should take meds for both conditions. Von: mldashseattle <mldashseattle@...>An: bird mites Gesendet: 19:08 Dienstag, 20.März 2012Betreff: Re: New Member of the club......Thanks Aggi, have you found that you are able to function fairly normally? You said you've been able to be in close contact with your friends, family, and partner and they remain unaffected? My most major concern is that I will affect and infect other people. That would be the worst possible thing to happen in my world. You haven't been able to get rid of the mites, but their activity has lessened?ML > > > > > > > > > > > > Hi mldashseattle, > > > > > > > > > > > > So many people here acquired birdmites the EXACTLY way you describe. > > > So many others... birds do seem to be the primary carriers, although > > > rodents can carry some of the same mites. I am sorry this didn't all > > > disappear for you after the mite experience, even with all 3 moves. Did > > > your bites turn into lesions? I have the tiny red bumps too. They are > > > still on my underarms mainly (hundreds) and scattered throughout my > > > body. I never had those bumps before this happened to me 4 years ago. > > > Some of the bites had turned into lesions which have since disappeared > > > (were on my abdomen) and I did have several large long lasting red > > > rashes that wrapped around my abdomen and neck. Those are gone now. > > > > > > > > > > > > I am at the stage where this does not keep me up at night, although I > > > still get biting sensations on my feet. I think now much of what I have > > > is a neurological symptom of Lyme and/or co-infections from what was > > > delivered by the mites... bacterias, fungi and parasites. > > > > > > > > > > > > My husband was afflicted by this too with many many bites on his body > > > -- we have remained in our house too. We were not able to move, but I > > > wanted to very badly. It was not possible financially for us to move. I > > > am on disability and my husband is not a high income maker, so there > > > would not have been a way for us. Some that have moved have done really > > > really well. Cecilia and Doris moved, got rid of everything they owned. > > > Doris has absolutely no symptoms remaining and Cecilia, who lives in > > > Sweden, has remaining infection, but not bothered by it terribly. Life > > > goes on for them. Aggi, who lives in Germany, is also doing really well, > > > 99% cured and has gotten on with her life. I know you have heard from > > > some of these individuals already. > > > > > > > > > > > > There can be infection delivered by mites, but not all people get > > > these infections. Some people develop Morgellons - Lyme and body > > > producing fibers (I did). Some mites are transmitting Lyme, some > > > co-infections like Bartonella and who knows what else. All these mites > > > seem to carry something different, maybe a different strain of Borrelia, > > > plus combinations of other co-infections, parasites. If you remain sick > > > has a lot to do with genetics and the detoxification ability of the > > > body, prior exposures to toxins. The body has a genetic ability to detox > > > and some genetically do not have this ability. There is much being > > > revealed about this topic now. Aandraya has talked about how many of the > > > crawling sensations are typical Bartonella... all of these infections > > > affect the brain and central nervous system. Not everyone gets these > > > infections, but most do get something. Is Lyme endemic in your area? I > > > know you live in Seattle and my family lives in northern Oregon... my > > > sister has Lyme in OR. Lyme is everywhere now. I think birds are > > > carrying bartonella and it is being transmitted to mites, or maybe it is > > > the other way around, mites are carrying bartonella and giving it to > > > birds, I don't know which. Birds migrate everywhere... Canada is being > > > hit hard by Lyme disease now according to a Lyme Literate doctor who > > > knows about these things. > > > > > > > > > > > > There is post-traumatic stress from this experience, but the anxiety > > > may be caused by an infection that has passed through the blood, brain > > > barrier. I know many of us have had this affect the brain, myself > > > included... with treatment it gets better. Can you find a Lyme Literate > > > doctor in Washington? I know there are no LLMDs in Oregon, as I've > > > looked for my sister, but there are 3 doctors that are naturopaths who > > > treat and are trained to treat Lyme and coinfections. They can prescribe > > > too... I've talked to one of them personally. > > > > > > > > > > > > Bartonella causes welts... I had those too. They actually appeared > > > like a stretch mark, red then turning white. > > > > > > > > > > > > Here are the names of doctors I am aware of in Oregon and Washington > > > who might be able help you: > > > > > > > > > > > > Lyme Treating Doctors > > > > Dr. I Newman, MD, ND , MSOM > > > > Classical & Modern Medicine > > > > Rising Health > > > > 8301 NE Hazel Dell Ave. > > > > Vancouver, WA 98665 > > > > Phone: (360) 696-3800 > > > > Fax: (360) 696-0906 > > > > http://www.drdanielnewman.com/ > > > > > > > > Dr. Stacey Raffety, BSN, LAc, ND (most experience in the Portland > > > area) > > > > Tigard Holistic Health Clinic > > > > 11930 SW Greenburg Road > > > > Tigard, Oregon 97223 > > > > Phone: (503) 639-1712 > > > > Fax: (971) 249-0319 > > > > http://www.tigardholistic.com/ > > > > > > > > Dr. Chapman, ND (trained under Drs. Stricker & ) > > > > 1567 SE Tacoma Street > > > > Portland, OR 97202 > > > > (503) 233-8113 > > > > http://chapmannd.org > > > > http://www.sellwoodfamilymedicine.com/ > > > > > > > > Dr. Usha Honeyman, DC, ND, DABCI > > > > 1368 NW Lincoln Ave., Corvallis, OR 97330 > > > > phone: (541) 754-6323 > > > > http://www.ushahoneyman.com > > > > > > > > > > > > > > > > I hope you can get some help. Let us know if you need any more help. > > > > > > > > > > > > > > > > > > > > New Member of the club... > > > > > > > > I've been reading through all these posts for a few days. I'm so glad > > > to have found this forum. > > > > > > > > My problem began in the summer of 2009 when I moved into an apartment > > > with a pigeon nesting on the small balcony off my bedroom. When the > > > mother left the baby small black mites began to enter my room and the > > > problems began. The first week my body was covered in tiny red itchy > > > welts. I had a pest company spray my apartment several times. I kept my > > > clothes in totes with moth balls, washed and dried my clothes and > > > bedding daily.. drying all clothes before wearing them. I never wear the > > > same thing twice in a row. > > > > > > > > Nearly three years and three apartments later I am still experiencing > > > problems. I get tiny red bumps all over my body, mostly on my chest and > > > legs. They don't itch terribly, but they look awful. I also experience > > > the crawling sensation periodically throughout the day. > > > > > > > > Here are a few things I would love to get feedback on. > > > > > > > > I am able to sleep throughout the night, this hasn't been an issue for > > > me since at least a month after it all began in 2009. If I do have > > > problems sleeping it's because of anxiety rather than feeling like bugs > > > are on me - what does this mean when so many of you are kept up at night > > > because of the sensations? > > > > > > > > I have lived with two different people at the height of my problem, > > > neither seemed to be affected. Why is that? > > > > > > > > Why could I see them in the beginning of my infestation, but no longer > > > can see a thing? This is the part drives me the most crazy. If I can't > > > see them, how do I effectively treat? > > > > > > > > I have never felt like I have had internal issues regarding the mites. > > > I don't cough, have itchy nostrils or ears or eyes. My scalp itches on > > > occasion, but I've chalked that up to being winter and having a dry > > > scalp in general. > > > > > > > > I feel relatively calm considering, but to counter that incredibly > > > anxious, distraught, and hopeless. > > > > > > > > I worry that just because I can't seen the red welts that I'm being > > > bitten.. although I just don't know. I am inconstant fear that I will > > > spread this to ones I love. > > > > > > > > I remember thinking in the summer of 2009, "This is fine, in a few > > > months it'll be all over," and now here I am, still in the middle of all > > > it. > > > > > > > > I am thankful that I've found this community and to see that there are > > > people who have come out of this alright. > > > > > > > > ML > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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