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I know a kid that has autism and add or adhd, and he

takes 2 medicanes.

--- leah leah <okieleah@...> wrote:

> cindy,

> ashton took clonidine for two years by itself then

> the third year we added

> mellaril to help her sleep at night...i got old and

> couldnt handle those all

> nighters anymore so finally gave in.....

>

>

> >From: " Lee " <texasbluebonnets@...>

> >Reply-

> > " DS-Autism " < >

> >Subject: Meds

> >Date: Thu, 22 Mar 2001 17:11:10 -0600

> >

> >I just heard froma clinical Psychologist that when

> a child is placed on

> >meds such as clonidine for behaviors that rarely is

> it just that med alone,

> >that usually Ritalin or something like that is

> prescribed as well. can

> >someone tell me if this is the case witht hem and

> how it affects thier

> >child? is this common to have 2 meds at once?

> >

> >

> >

> >

> >Paraprofessional in Special Education

> >texasbluebonnets@...

> >ICQ# :15118678

> >~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~

> >*If I had the time to be organized, I probably

> would be!*

> >

> >

> >

> >[Non-text portions of this message have been

> removed]

> >

>

>

_________________________________________________________________

> Get your FREE download of MSN Explorer at

> http://explorer.msn.com

>

>

>

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> I just heard froma clinical Psychologist that when a child is placed on

meds such as clonidine for behaviors that rarely is it just that med alone,

that usually Ritalin or something like that is prescribed as well. can

someone tell me if this is the case witht hem and how it affects thier

child? is this common to have 2 meds at once?

Ian was put on clonidine (the catapres patch) to help even out the effects

of the dexedrine. So he's on both of those, plus risperdal.

CK,

Mom to Ian (2/89),

(9/90),

and Rose (6/94)

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is only on Clonidine and there was never even a

suggestion of another med. He's doing pretty well with

it.

Mom to 12

--- Lee <texasbluebonnets@...> wrote:

> I just heard froma clinical Psychologist that when a

> child is placed on meds such as clonidine for

> behaviors that rarely is it just that med alone,

> that usually Ritalin or something like that is

> prescribed as well. can someone tell me if this is

> the case witht hem and how it affects thier child?

> is this common to have 2 meds at once?

>

>

>

>

> Paraprofessional in Special Education

> texasbluebonnets@...

> ICQ# :15118678

> ~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~

> *If I had the time to be organized, I probably would

> be!*

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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Lana,

That is true of bipolar having sleeplessness. It sounds like the dr. is

gradually increasing meds. Certainly you needed to help your son

immediately and you did so. The point given about taking both Lithium and

Depakote sounds like a good question. We use Neurontin but take large

amounts . I found that it does help. He has Aspergers, OCD, ADHD, and we

watch for bipolar, but the cycles can always be explained by OCD instead.

We have rough times from 3 pm - 6 pm, usually because he has held it

together all day. He gets confused about communication with friends,

teachers, parents.

JMW.Marshall@...

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HI Lana:

One point I wanted to suggest you might bring up with the doc on the OCD vs

OCD and bipolar is that very young kids with BP tend to have very rapid

cycling, a number of times each day. Getting worse at night is something

many of us are familiar with when it comes to OCD. My son, Steve, has a

mood disorder, MDD, and I notice that when his depression is bad it is

continuous and not necessarily worse at night. This of course is just

anecdotal stuff about my son, but you might want to ask the doc why the BP

worsening at night. Good luck, take care, aloha, Kathy (h)

kathyh@...

At 11:40 PM 03/26/2001 -0600, you wrote:

>Lana,

>

>That is true of bipolar having sleeplessness. It sounds like the dr. is

>gradually increasing meds. Certainly you needed to help your son

>immediately and you did so. The point given about taking both Lithium and

>Depakote sounds like a good question. We use Neurontin but take large

>amounts . I found that it does help. He has Aspergers, OCD, ADHD, and we

>watch for bipolar, but the cycles can always be explained by OCD instead.

> We have rough times from 3 pm - 6 pm, usually because he has held it

>together all day. He gets confused about communication with friends,

>teachers, parents.

>

>

>JMW.Marshall@...

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nathan use to take clonidine with ritalin but it made him aggressive, many

kids take a couple meds its called a synergistic affect one promotes the

other getting better effects. shawna.

>From: " Lee " <texasbluebonnets@...>

>Reply-

> " DS-Autism " < >

>Subject: Meds

>Date: Thu, 22 Mar 2001 17:11:10 -0600

>

>I just heard froma clinical Psychologist that when a child is placed on

>meds such as clonidine for behaviors that rarely is it just that med alone,

>that usually Ritalin or something like that is prescribed as well. can

>someone tell me if this is the case witht hem and how it affects thier

>child? is this common to have 2 meds at once?

>

>

>

>

>Paraprofessional in Special Education

>texasbluebonnets@...

>ICQ# :15118678

>~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~

>*If I had the time to be organized, I probably would be!*

>

>

>

>

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  • 2 months later...
Guest guest

Dear ,

I'm praying that you find the right medication & dose for JJ. He

sounds like a wonderful little boy - so is all your family. I admire you

very much.

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Hello Amy, if the med is an SSRI and was increased fairly recently, her morning "hyperness" could be a side effect that you will see tail off in the next month or two. There are common side effects to SSRIs (you'll find them listed on the information sheet the pharmacy gives you with the prescription) but young kids especially seem to have any number of idiosyncratic reactions to meds as well. If you are concerned about any behavior/changes you notice in your daughter especially when changing or increasing meds, don't hesitate to call the prescribing doctor, or talk to the pharmacist about it. It may also be that your daughter is feeling better and is waking refreshed from sleep on the med.

Something that helped me when my daughter was first started on SSRI therapy was to keep short notes about my observations. This helped me two ways--I could better remember what had been going on and so do a better job communicating with my daughter's doctor. Also, I saw that frustrating or annoying side effects often only lasted several days or a couple of weeks, not *forever* as my memory would have it!

Kathy R. in Indiana

----- Original Message -----

From: todd mowry

my daughter is very hyper when she wakes up in the morning since her meds have been increased. is this normal? thank you, amy

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she went from 10mg of paxil to 20mg. i think paxil is an ssri isn't it?

Re: meds

Hello Amy, if the med is an SSRI and was increased fairly recently, her morning " hyperness " could be a side effect that you will see tail off in the next month or two. There are common side effects to SSRIs (you'll find them listed on the information sheet the pharmacy gives you with the prescription) but young kids especially seem to have any number of idiosyncratic reactions to meds as well. If you are concerned about any behavior/changes you notice in your daughter especially when changing or increasing meds, don't hesitate to call the prescribing doctor, or talk to the pharmacist about it. It may also be that your daughter is feeling better and is waking refreshed from sleep on the med.

Something that helped me when my daughter was first started on SSRI therapy was to keep short notes about my observations. This helped me two ways--I could better remember what had been going on and so do a better job communicating with my daughter's doctor. Also, I saw that frustrating or annoying side effects often only lasted several days or a couple of weeks, not *forever* as my memory would have it!

Kathy R. in Indiana

----- Original Message -----

From: todd mowry

my daughter is very hyper when she wakes up in the morning since her meds have been increased. is this normal? thank you, amyYou may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... .

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Hi Amy, sorry it took so long to reply. Yes Paxil is one of the SSRIs. The others are Prozac, Luvox, Zoloft and Celexa.

Kathy R. in Indiana

----- Original Message -----

From: todd mowry

she went from 10mg of paxil to 20mg. i think paxil is an ssri isn't it?

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thank you! can i throw in another thing? my dh and i are getting weary of the bedtime ritual. jordan writes her worries/fears in one journal and good things in another. her worries/fears journal tonight had some things about us getting a divorce, being gay, and the usual aches, pains and complaints that we hear every night. on top of all of this, the time it takes for her to get her writing in her notebooks done, discuss it with us, take her bath, wash her hair, eat her 2 crackers, put her lotion on, and finally get into bed and then i pray... i'm tired! is there any light at the end of all of this? its too bad that we have to battle this at night when we're tired and spent in all ways. would you have any encouraging words for me? thank you, amy

Re: meds

Hi Amy, sorry it took so long to reply. Yes Paxil is one of the SSRIs. The others are Prozac, Luvox, Zoloft and Celexa.

Kathy R. in Indiana

----- Original Message -----

From: todd mowry

she went from 10mg of paxil to 20mg. i think paxil is an ssri isn't it?You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... .

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Amy,

I can certainly sympathize with you. 's nighttime rituals are

not that extensive, but it seems to take him a LONG TIME to get to

bed. He seems to suffer from OCD slowness and doesn't transition very

well from one activity to another especially when he is tired. Many

times he has skipped the shower because it is just too late. I have

always felt compelled to stay up until he is in bed because if I

don't, it would be even later before he got to bed. My husband

disagrees with this and he is probably right. We have an incentive

now that we didn't have...if he doesn't get at least 7 hrs. of sleep,

he can't drive the next day. That has helped him focus, expecially

when morning wake-up time is not open ended.

I like the writing activity that Jordan does. Could that be moved to

another part of the day? Perhaps after dinner? Also, the nightly

discussion following her journal writing...since they are repetitive,

maybe you could tell her that she can share the contents with you

every other day, and then every third day and ultimately once a week,

maybe on Saturday or Sunday. When gets repetitive with

questions, I now respond, " asked and answered. " Or when he

reitterates concerns over and over I now respond, " I know...I'm

sorry " and go on about my business. The less attention I pay to his

illogical concerns, the less validity they seem to have.

How much sleep does Jordan get? I have found that sleep deprivation

makes it harder for to boss back...he just doesn't have the

energy and cognative wherewithall.

I have been able to back off of the bedtime stuff this summer,

because there is not so much at stake and can sleep later in

the morning. I dread when we get back to school though. Hopefully,

this driving incentive will help this upcoming year.

Hang in there! You are not alone.

Melinda S.

Dallas

> thank you! can i throw in another thing? my dh and i are getting

weary of the bedtime ritual. jordan writes her worries/fears in one

journal and good things in another. her worries/fears journal tonight

had some things about us getting a divorce, being gay, and the usual

aches, pains and complaints that we hear every night. on top of all

of this, the time it takes for her to get her writing in her

notebooks done, discuss it with us, take her bath, wash her hair, eat

her 2 crackers, put her lotion on, and finally get into bed and then

i pray... i'm tired! is there any light at the end of all of this?

its too bad that we have to battle this at night when we're tired and

spent in all ways. would you have any encouraging words for me? thank

you, amy

> Re: meds

>

>

> Hi Amy, sorry it took so long to reply. Yes Paxil is one of the

SSRIs. The others are Prozac, Luvox, Zoloft and Celexa.

>

> Kathy R. in Indiana

> ----- Original Message -----

> From: todd mowry

>

> she went from 10mg of paxil to 20mg. i think paxil is an ssri

isn't it?

>

>

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Hi Amy:

What you are describing is a chain of rituals that Jordan is involved in.

YOu can help her by encouraging her to work on shortening and then

eliminating these rituals. Rewards can help with this form of E & RP. She

will feel anxious but the incentive of a reward might be able to get her to

cut back on the rituals. Perhaps she can share which might be the easiest

to tackle first.

ALthough it is scary to stop participating in the rituals, that is the path

to extracting yourself from Jordan's OCD and modelling for her bossing back

behaviors. Good luck, take care, aloha, Kathy (h)

kathyh@...

At 09:21 PM 06/20/2001 -0700, you wrote:

> thank you! can i throw in another thing? my dh and i are getting weary

>of the bedtime ritual. jordan writes her worries/fears in one journal and

>good things in another. her worries/fears journal tonight had some things

>about us getting a divorce, being gay, and the usual aches, pains and

>complaints that we hear every night. on top of all of this, the time it

>takes for her to get her writing in her notebooks done, discuss it with us,

>take her bath, wash her hair, eat her 2 crackers, put her lotion on, and

>finally get into bed and then i pray... i'm tired! is there any light at

>the end of all of this? its too bad that we have to battle this at night

>when we're tired and spent in all ways. would you have any encouraging

>words for me? thank you, amy -----Original Message-----

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  • 3 weeks later...
Guest guest

I'm on :

Anaprox DS

Hyzaar

Tenormin

Synthroid

Premarin

Zantac

Calcium

Imodium

Carafate

Entex PSE

Combivent

Biaxin

Calan SR

Phrenilin Forte

ultram

Depakote

The doc took me off the Demadex, made me very ill, as my heart couldn't take it! They are going to try the Aldactone next if they have to add another med.

Let's hope no side affect's for ya!!! They are terrible... I have become allergic to quit a few meds in my time!!!

{{{ Medicine Hugs }}}

Helen

Hello HelenWhat meds are you on?I'm on Digoxin, Demadex, Accupril, Aldactone, Cozaar, and Coreg. Theysay that the chances of side effects and interactions reach 100% whenyou're taking five meds so I'm currently having guessing games as towhich side effect I'll encounter first.Regards,

<center></center>

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  • 3 months later...

Hi everyone, has anyone heard of tongue acupunture. I know it sound awful,

but I have just been reading an article about it being used successfully in

Hong Kong to treat children with conditions such as autism and cerebral

palsy. Apparently, withing 8 weeks of the treatment the children were

showing improvement in various symptoms including attention problems and

poor communication. There was a remarkable improvement in the above 2

symptoms as well as to read, write and learn.

( UK)

meds

> <We have found that risperdal alone has never been as effective for

Ben as it is when combined with other meds, especially an SSRI.

> The same goes for ritalin. Alone, it overstimulates him. In combination

with risperdal and an SSRI it helps him focus pretty well and seems to slow

him down. MB>

>

> Hi, Everyone......MB.....we found out the same thing. Gareth needs a

combo of meds. ...Risperdal, Luvox or Prozac, and Ritalin work the best for

him. He goes back and forth between Prozac and Luvox.

Terry....thanks for the added support. You're right, though, if they did

not need the meds, then why are they doing so well on them as when they

didn't have them? The autism definitely changed my perspective on life

too!!!

> Take care, Everyone.

> Margaret

>

>

>

>

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  • 2 months later...

I honestly don't know. Besides mixing the medicane

in yougart, applesauce, etc. I hope that y'll figure

something out.

--- mfroof@... wrote:

> <Has anyone ever heard of re-introducing former

> med's with success. I can't

> understand how a tiny, 44 in., 47 lb. little boy can

> tolerate such

> controlled medications as he's been on......most of

> them would knock out a

> normal sized adult! Thanks for any input,

> >

>

> Hi, Everyone.........We go back and forth with

> the Luvox and Prozac.

> When one stops working, we go back to the previous.

> Gareth can only handle a

> small dose....once we try to raise it, the

> aggitation/nastiness/beligerence

> starts. They are the only 2 SSRI drugs that work

> for Gareth. Your

> comment about the drugs would knock out a normal

> person also caught my eye.

> I found out during our trip to Arizona (everyone had

> head colds) that Sudafed

> knocks out both my boys!!! Here it's non-drowsy for

> adults, yet they both

> crashed in the cars or at the hotel within an hour

> after giving it to them!!!

> Perhaps you need a med that is supposed to speed

> up the mind......maybe it

> will do the opposite!!!

> Marisa.....good luck on Monday with the Dr. Don't

> give up....

> Take care, Everyone.

> Margaret

>

=====

__________________________________________________

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  • 1 month later...

In a message dated 2/6/02 3:00:28 PM Pacific Standard Time,

writes:

> It's a trial and error system. It's also a big

> pain in the butt!!! I also agree with Joan.....I have always kept

> charts on his behavior with each med. You can only do one at a time after

> his system is cleared of the last one. If you want, I can share the chart

> I

> have made up for Gareth. It makes it real simple in keeping track of

> behaviors.

>

>

Margaret, that's okay, really.....the only thing we've discontinued right now

is Lithium, which he's been off of almost two weeks now....we thought Exelon

too, but we're not going to.....

Thanks anyway,

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Hi Margaret,

Brook's doctor didn't want to try Luvox or Prozac for him. However, since

we will be going to the psychopharmacology clinic I will see what ideas the

psychiatrist has as they have more experience in this area than the Dr. he is

seeing now. She is a developmental pediatrician and is not as familiar with

all the meds. That is why she wants us to go to the clinic. Thanks for your

suggestion.

Marisa

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  • 3 weeks later...
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In a message dated 3/8/2002 9:01:36 AM Eastern Standard Time, mfroof@...

writes:

> Hi, Everyone.....Charlyne.....in a nut shell, Yes. His behavior on 'too

> elevated' drug levels is just as bad as no drugs.

Hi Margaret,

Thanks for clarifying that. All this makes sense to me now. I would have

thought that the dr. would have given me this info. I knew this group would

be able to offer explanations. You are all my therapists, doctors and give me

a sense of stability.

Charlyne

Mom to Zeb 9 DS/OCD ?

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  • 4 months later...
Guest guest

I have a 12 almost 13 year old daughter and lately she has been having

aggressive behaviors. Does anyone on the list use meds for puberty? If so

what kind, I have just started to see a psychiatrist for these issues and he

just keeps giving her more and more meds. It seems to be making her worse. I

have stopped a few within a couple days when they made her a crying mess.

But, she also needs help. What are the parents of the older girls doing?

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Hi,

My daughter is also almost 13 (Aug 29), and she too has/had aggressive

behaviors. Many people felt/thought(?) this may be due to puberty. My

daughter hasn't started menstruating yet, & my 'plan of action' is, once she

does, to put her on The Pill to help regulate hormones. (Dr said to let her

have about 2 cycles before starting The Pill.

I had done some web-searching & found something called 'Intermittent

Explosive Disorder', which describes a very sudden, explosive behavior. The

neuro recommended Trileptal & her explosions have decreased in both

frequency & intensity. She is also on Adderall XR for concentration (hard

to tell if that's helping).

We actually saw the psych a few days ago (2nd time since April) & he was

very impressed with Maya. He will speak w/ the neuro about possibly adding

a small amount of Prozac or Paxil to help with the perseveration.

We have been thru more psychs than I care to remember & I can FULLY

understand what you are saying about more & more meds. I never could figure

out what med was helping, & what med was hurting, & I too had taken her off

most of her 'chemical cocktail' a few years ago. In fact, I was very

reluctant about going back to a psych because - let's face it - bluntly

put - their profession is to prescribe meds & I didn't want to be in that

situation again where my daughter was taking a lot of meds & was still

unbearable. Things have improved with the Trileptal.

Anyway, this new psych seems to be ok (it's only our 2nd visit w/ him).

Good luck

Mona

Re: meds

I have a 12 almost 13 year old daughter and lately she has been having

aggressive behaviors. Does anyone on the list use meds for puberty? If so

what kind, I have just started to see a psychiatrist for these issues and

he

just keeps giving her more and more meds. It seems to be making her worse.

I

have stopped a few within a couple days when they made her a crying mess.

But, she also needs help. What are the parents of the older girls doing?

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In a message dated 7/28/02 10:52:28 PM Central Daylight Time, mona@...

writes:

> never could figure

> out what med was helping, & what med was hurting,

That is exactly what I am going through. Right now she is on celexa, tenex,

and triliptal. It seems the triliptal has given her rashes due to

sunlight/heat (geel it is summer) so he wanted to switch her to sequal (sp)

she was on it 2 days and went nuts, I took her off it asap.

Thank you so much for your post, it really helped to validate my opinion of

this drug business.

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Funny you should mention Tenex - as my daughter became aggressive on that

(it was like walking on eggshells so she wouldn't get upset). This was many

years ago, when Tenex first came out.

Re: meds

In a message dated 7/28/02 10:52:28 PM Central Daylight Time,

mona@...

writes:

> never could figure

> out what med was helping, & what med was hurting,

That is exactly what I am going through. Right now she is on celexa,

tenex,

and triliptal. It seems the triliptal has given her rashes due to

sunlight/heat (geel it is summer) so he wanted to switch her to sequal

(sp)

she was on it 2 days and went nuts, I took her off it asap.

Thank you so much for your post, it really helped to validate my opinion

of

this drug business.

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Turk, do you mind telling me why you quit taking zoloft? I am on it and tried to cut back and then started getting depressed so went back on it. I was going to ask my doctor if there is a similar med that is cheaper because it is soooooo expensive.

Ruth in PA

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