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@miteymaid: your word should have been enough

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No, miteymaid, he didn't dismiss you because of no proof. He dismissed because of Hinkle's table of symptoms from her infamous, poorly supported, and fact-challenged article Delusory Parasitosis, which is listed as an authoritative (albeit dead wrong) resource in the trade encyclopedias (hard copy and computer databased) for three fields that significantly impact the lives of people who have parasites under

the skin and in their privates: entomologists/microbiologists, pest control operators, and medical doctors (which includes dermatologists).Your word should have been enough. Unfortunately, after your doc checked his computer and found the following table, he came back to the

examination room or to his office or wherever he dismissed you convinced that he was delivering a correct diagnosis, that is, a nondiagnosis, because he came back convinced that you needed a shrink, not a medical doctor. His facial expression and demeanor were completely different when he came back, weren't they?SUCCESS STORIESNo, hon, we are pretty much on our own. Unfortunately so many people have now suffered with this that, fortunately, we do now have some success stories, many due to faithful and determined adherence to not one but several different protocols. The key is to let go of waiting for the meds and families and friends to help or support and just get busy finding the successful protocols,

which the group veterans freely provide week

in and week out to newbies (thank God), pick whatever makes sense to you and that you can afford and tolerate. NEW ERUPTIONS/LESIONSMeanwhile, a quick fix for newly erupted lesions, something you can carry with you at all times, is one of those white sticks (about 99 cents) that men use to stop bleeding when they cut themselves shaving. Styptic pencils not only stop the bleeding, they are also useful in killing the critters that come into contact with it. Stick one in your purse with your lipstick, one by the bed, kitchen sink, computer, work. Buy one and break it into several pieces. They go a long way. SECONDARY INFECTION

PREVENTIONCritical: get yourself something that stops itching. Secondary infections from scratching present one of the big dangers for us since the itching can be so uncontrollable. Quick fixes are hand sanitizer, aveeno anti-itch or stress relief, and some lotions (I like Pink Oil, a hair lotion for very dry hair). Whatever you use, you will have to rub it into the skin until the itching stops. OPEN WOUND TREATMENT

For

healing open wounds, I use Aveeno mixed with pure aloe vera gel and antibiotic ointment or lotion. Pink Oil seems to help me also, but it has fragrance in it so many can't use it.

PREVENTION AND ISOLATIONIf you are where you can wear disposable gloves, always wear fresh disposable gloves when you handle infected parts of your body. For example, my feet are herxing badly and continually due to the F-8 and the Enzpire capsules from Gordon. The capsules are running them out (not fast enough for me, but if I take too much I get nauseous, so I'm having to pace myself) of my feet in particular. I think what I have in my feet is actually springtails or fungus beetles. Not sure which, don't care, just want them OUT. However, if I have to remove a biter from the outside of my socks (I wear boots for this reason) or if I have to remove my socks and apply something for the itching, if I do not wear gloves, I quickly develop a fresh infestation on the fingers I use. So I try to wear

disposable gloves, and I go through a ton of them. I like vinyl, which go on easier than latex (I get the lightly powdered Noble brand from webstaurantstore.com, the cheapest disposable gloves I have found and fast shipping) and do not disintegrate as quickly. FACE / EYE ITCHIf my face or eyes itch, and I cannot get to my gloves or am in public where I cannot put them on anyway, I use a rough paper towel (do not reuse same spot), even in the corner of my eye. I would rather wash the itchy area and would rather wear gloves, but this is what I do in a pinch. I do not touch my face or eyes with the same part of the paper towel that my hands have touched. Isolation is critical to prevent the spread of the infection on our own

bodies.kajay From: healinghope <mfrreman@...> bird mites Sent: Friday, March 23, 2012 1:42 PM Subject: Re: So the fibers survive coconut oil?

I used many herbs. The most helpful were these 2 cocktails. I also too derma nerve, and kidney rejuvenator. All of these cocktails were designed for animal care, however the viparabac is for humans. I have used it with great results on my dog after coyote attack to.

http://wolfcreekranch.net/viparabac_plus.html

http://wolfcreekranch1.tripod.com/adizone.html

> > > >

> > > > Hi Jess,

> > > >

> > > > It is really good to hear from you. I've thought about you often.

> > > > I'm in the same boat with the similar questions about fibers. I

> > > > wonder if there is any way to get rid of the fibers permanently. I

> > > > feel them floating and landing on my hands at times. I don't know of

> > > > anyone who has had fibers that actually got rid of them. Many on this

> > > > site did not have fibers, but had mites only. Their exposure to mites

> > > > did not bring fibers. Mites for sure can be killed, although with

> > > > tremendous difficulty. I don't know what makes the fibers, but they

> > > > are part of what defines Morgellons. So many people who had mites end

> > > > up with the fibers. Some people think they are a by-product of a mite

> > > > or parasite, or bacteria and some ppl believe they are alive. I'm a

> > > > member of the group that believes they are living, although don't have

> > > > any idea how that could be. Maybe investigators, although very

> > > > controversial, believe they are nano products, and I think they maybe

> > > > are. That's just an opinion... I'm not the one to come up with this

> > > > as there are plenty of knowledgable people who have said this... Dr.

> > > > Hildegard Staninger for one. When I had a microscope and was

> > > > collecting fibers and looking at them under the digital scope I found

> > > > some interesting things. I would put the fibers on slides, cover them

> > > > in emersion oil and a thin glass sheet over the top and look at the

> > > > fibers over a period of months. I stored them in a special box

> > > > designed for slides. The fibers themselves changed over time from

> > > > month to month (some did, some did not). Some developed what looked

> > > > like a pin head. I never saw any of them move.

> > > >

> > > > I really wish I had a microscope again, but I haven't found one that

> > > > hooks up with software for an iMac which I have now.

> > > >

> > > > I think there are things that disrupt the energy of the fibers.

> > > > Scientists may have found a way to create life and I think the fibers

> > > > are self creating... in the human body they have what they need to

> > > > reproduce successfully. They also seem to reproduce in homes. Some

> > > > may be programmed to carry diseases.

> > > >

> > > > I did not find coconut oil helpful on the body. When I put it on my

> > > > hands and feet it seemed to dry my skin out further so I stopped using

> > > > it. So no, it isn't just you Jess. It never was just you.

> > > >

> > > >

> > > >

> > > > ----------------------------------------------------------

> > > > *From: *"jessnyc" <helpnynow@>

> > > > **"Birdmites.org Website" <bird mites >

> > > > *Sent: *Monday, March 19, 2012 3:29:50 PM

> > > > *Subject: * So the fibers survive coconut oil?

> > > >

> > > > I had thought that coconut oil was a remedy for these fibers. I bought

> > > > some and had a small jar next to me at all times.

> > > >

> > > > When the oil was in liquid form, I noticed that the fibers somehow

> > > > managed to get in the oil, my little jar had suddenly like 10 or more

> > > > fibers. After a while I saw they all stuck together, and eventually I

> > > > began seeing more and more of them.

> > > >

> > > > I wonder if they reproduced in the oil and assembled themselves

> > > > together? That's what it looked like to me, my little jar is full of

> > > > some big and some tiny fibers, they're mostly blue red or black, some

> > > > are also white and hard to see.

> > > >

> > > > I guess this shows they don't die with coconut oil, they thrive and

> > > > reproduce in it.

> > > >

> > > > Jesus, is there anything remedy that actually kills them? I haven't

> > > > found anything that would really kill them.

> > > >

> > > > Has anyone had any success with coconut oil? Or is it just me?

> > > >

> > > > Jess.

> > > >

> > > >

> > > >

> > > >

> > > > ------------------------------------

> > > >

> > > >

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Yes, they treat me like I'm from Mars. Sometimes I think this is the story of my

life, nothing that affects me is real, I'm just making it up because I'm crazy.

Now my building won't even let me hire my own exterminator because the

entomologist from their exterminating company said, as you say, nothing I've

observed is real, I'm just delusional. He says he's a scientist so what he's

read is the bottom line. I do think these things are under my skin also which is

how I'll approach my current doctor when I return. I have trouble with my

stomach taking the meds also which doesn't help. It's so infuriating to bang

your head against the wall in addition to trying to treat the condition.Now I'm

also wondering if it would pay to get a regular microscope with a large viewing

screen to start putting lint roller tapes through. Those hand held ones might be

good though maybe not strong enough, but would then also have to buy a laptop.

Threw out everything when I moved here.Never seen anything on me with naked eye

but twice saw a mass of black dots for a few seconds and also twice noticed my

floor Moving with a mass of something after I sprayed. Also felt them really bad

in the papers I brought over and had in my freezer.

E

> > > > >

> > > > > Hi Jess,

> > > > >

> > > > > It is really good to hear from you. I've thought about you often.

> > > > > I'm in the same boat with the similar questions about fibers. I

> > > > > wonder if there is any way to get rid of the fibers permanently. I

> > > > > feel them floating and landing on my hands at times. I don't know of

> > > > > anyone who has had fibers that actually got rid of them. Many on this

> > > > > site did not have fibers, but had mites only. Their exposure to mites

> > > > > did not bring fibers. Mites for sure can be killed, although with

> > > > > tremendous difficulty. I don't know what makes the fibers, but they

> > > > > are part of what defines Morgellons. So many people who had mites end

> > > > > up with the fibers. Some people think they are a by-product of a mite

> > > > > or parasite, or bacteria and some ppl believe they are alive. I'm a

> > > > > member of the group that believes they are living, although don't have

> > > > > any idea how that could be. Maybe investigators, although very

> > > > > controversial, believe they are nano products, and I think they maybe

> > > > > are. That's just an opinion... I'm not the one to come up with this

> > > > > as there are plenty of knowledgable people who have said this... Dr.

> > > > > Hildegard Staninger for one. When I had a microscope and was

> > > > > collecting fibers and looking at them under the digital scope I found

> > > > > some interesting things. I would put the fibers on slides, cover them

> > > > > in emersion oil and a thin glass sheet over the top and look at the

> > > > > fibers over a period of months. I stored them in a special box

> > > > > designed for slides. The fibers themselves changed over time from

> > > > > month to month (some did, some did not). Some developed what looked

> > > > > like a pin head. I never saw any of them move.

> > > > >

> > > > > I really wish I had a microscope again, but I haven't found one that

> > > > > hooks up with software for an iMac which I have now.

> > > > >

> > > > > I think there are things that disrupt the energy of the fibers.

> > > > > Scientists may have found a way to create life and I think the fibers

> > > > > are self creating... in the human body they have what they need to

> > > > > reproduce successfully. They also seem to reproduce in homes. Some

> > > > > may be programmed to carry diseases.

> > > > >

> > > > > I did not find coconut oil helpful on the body. When I put it on my

> > > > > hands and feet it seemed to dry my skin out further so I stopped using

> > > > > it. So no, it isn't just you Jess. It never was just you.

> > > > >

> > > > >

> > > > >

> > > > > ----------------------------------------------------------

> > > > > *From: * " jessnyc " <helpnynow@>

> > > > > ** " Birdmites.org Website " <bird mites >

> > > > > *Sent: *Monday, March 19, 2012 3:29:50 PM

> > > > > *Subject: * So the fibers survive coconut oil?

> > > > >

> > > > > I had thought that coconut oil was a remedy for these fibers. I bought

> > > > > some and had a small jar next to me at all times.

> > > > >

> > > > > When the oil was in liquid form, I noticed that the fibers somehow

> > > > > managed to get in the oil, my little jar had suddenly like 10 or more

> > > > > fibers. After a while I saw they all stuck together, and eventually I

> > > > > began seeing more and more of them.

> > > > >

> > > > > I wonder if they reproduced in the oil and assembled themselves

> > > > > together? That's what it looked like to me, my little jar is full of

> > > > > some big and some tiny fibers, they're mostly blue red or black, some

> > > > > are also white and hard to see.

> > > > >

> > > > > I guess this shows they don't die with coconut oil, they thrive and

> > > > > reproduce in it.

> > > > >

> > > > > Jesus, is there anything remedy that actually kills them? I haven't

> > > > > found anything that would really kill them.

> > > > >

> > > > > Has anyone had any success with coconut oil? Or is it just me?

> > > > >

> > > > > Jess.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ------------------------------------

> > > > >

> > > > >

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I have quit trying to control what others think. They can't help me anyway, the only thing that could happen by people accepting the truth is that those of us with jobs would be told to go home and not come back till we are well. I am not personally prepared to "out" myself--I couldn't afford my treatments. And no one wants to hear that in the many years I have battled this, because I have made it a priority to do everything I could to avoid transmitting it to others, I have not transmitted it to any of my coworkers or friends. Oh, I tried to tell everyone at first and was just as frustrated and angry as you. Then I realized I was wasting my energy and even more, my time, as well as placing myself in jeopardy. Even if they accept it, they will not hear what I want to hear. Here is how it would go in their

minds.This is them thinking: "omg, it's real" "I gotta get out of here" "Don't come near me"Then from a safe distance, they would ask us the usual questions we get from those who might believe but still need some convincing, and who think they can tell us in a few sentences how to get over what we have already fought for months to years - in vain - to get over. That is, our friends and family insist that we see the doctor, that the doctor will help us, and that if he/she says we don't have anything, we must not, because he/she is the doctor, and there they are, back to not believing, back in their comfort

zone.I just got tired of it and dug into the battle. It was demanding all my energy anyway.Kajay From: miteymaid <miteymaid@...> bird mites Sent: Sunday, March 25, 2012 10:41 AM Subject: Re: @miteymaid: your word should have been enough

Yes, they treat me like I'm from Mars. Sometimes I think this is the story of my life, nothing that affects me is real, I'm just making it up because I'm crazy. Now my building won't even let me hire my own exterminator because the entomologist from their exterminating company said, as you say, nothing I've observed is real, I'm just delusional. He says he's a scientist so what he's read is the bottom line. I do think these things are under my skin also which is how I'll approach my current doctor when I return. I have trouble with my stomach taking the meds also which doesn't help. It's so infuriating to bang your head against the wall in addition to trying to treat the condition.Now I'm also wondering if it would pay to get a regular microscope with a large viewing screen to start putting lint roller tapes through. Those hand held ones might be good though maybe not strong enough, but would then also have to buy a laptop. Threw out everything when I

moved here.Never seen anything on me with naked eye but twice saw a mass of black dots for a few seconds and also twice noticed my floor Moving with a mass of something after I sprayed. Also felt them really bad in the papers I brought over and had in my freezer.

E

> > > > >

> > > > > Hi Jess,

> > > > >

> > > > > It is really good to hear from you. I've thought about you often.

> > > > > I'm in the same boat with the similar questions about fibers. I

> > > > > wonder if there is any way to get rid of the fibers permanently. I

> > > > > feel them floating and landing on my hands at times. I don't know of

> > > > > anyone who has had fibers that actually got rid of them. Many on this

> > > > > site did not have fibers, but had mites only. Their exposure to mites

> > > > > did not bring fibers. Mites for sure can be killed, although with

> > > > > tremendous difficulty. I don't know what makes the fibers, but they

> > > > > are part of what defines Morgellons. So many people who had mites end

> > > > > up with the fibers. Some people think they are a by-product of a mite

> > > > > or parasite, or bacteria and some ppl believe they are alive. I'm a

> > > > > member of the group that believes they are living, although don't have

> > > > > any idea how that could be. Maybe investigators, although very

> > > > > controversial, believe they are nano products, and I think they maybe

> > > > > are. That's just an opinion... I'm not the one to come up with this

> > > > > as there are plenty of knowledgable people who have said this... Dr.

> > > > > Hildegard Staninger for one. When I had a microscope and was

> > > > > collecting fibers and looking at them under the digital scope I found

> > > > > some interesting things. I would put the fibers on slides, cover them

> > > > > in emersion oil and a thin glass sheet over the top and look at the

> > > > > fibers over a period of months. I stored them in a special box

> > > > > designed for slides. The fibers themselves changed over time from

> > > > > month to month (some did, some did not). Some developed what looked

> > > > > like a pin head. I never saw any of them move.

> > > > >

> > > > > I really wish I had a microscope again, but I haven't found one that

> > > > > hooks up with software for an iMac which I have now.

> > > > >

> > > > > I think there are things that disrupt the energy of the fibers.

> > > > > Scientists may have found a way to create life and I think the fibers

> > > > > are self creating... in the human body they have what they need to

> > > > > reproduce successfully. They also seem to reproduce in homes. Some

> > > > > may be programmed to carry diseases.

> > > > >

> > > > > I did not find coconut oil helpful on the body. When I put it on my

> > > > > hands and feet it seemed to dry my skin out further so I stopped using

> > > > > it. So no, it isn't just you Jess. It never was just you.

> > > > >

> > > > >

> > > > >

> > > > > ----------------------------------------------------------

> > > > > *From: *"jessnyc" <helpnynow@>

> > > > > **"Birdmites.org Website" <bird mites >

> > > > > *Sent: *Monday, March 19, 2012 3:29:50 PM

> > > > > *Subject: * So the fibers survive coconut oil?

> > > > >

> > > > > I had thought that coconut oil was a remedy for these fibers. I bought

> > > > > some and had a small jar next to me at all times.

> > > > >

> > > > > When the oil was in liquid form, I noticed that the fibers somehow

> > > > > managed to get in the oil, my little jar had suddenly like 10 or more

> > > > > fibers. After a while I saw they all stuck together, and eventually I

> > > > > began seeing more and more of them.

> > > > >

> > > > > I wonder if they reproduced in the oil and assembled themselves

> > > > > together? That's what it looked like to me, my little jar is full of

> > > > > some big and some tiny fibers, they're mostly blue red or black, some

> > > > > are also white and hard to see.

> > > > >

> > > > > I guess this shows they don't die with coconut oil, they thrive and

> > > > > reproduce in it.

> > > > >

> > > > > Jesus, is there anything remedy that actually kills them? I haven't

> > > > > found anything that would really kill them.

> > > > >

> > > > > Has anyone had any success with coconut oil? Or is it just me?

> > > > >

> > > > > Jess.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ------------------------------------

> > > > >

> > > > >

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About the microscope. I had a digital microscope, wore it out, know what various critters look like from every angle, and gained nothing from the hundreds, if not thousands, of hours I obsessed over all those images. I still have some online, though just a fraction of what I photographed. It might help you to have some images, and it might not. They did not help me with other people. They did help me to understand what I was and am still up against. I am still hoping the F-products will finish all the critters off for me, and it does prevent me from having lesions, but so far I am definitely not well. I am still having to do all my daily protocols and it has been exactly a year this month since I started my miraculous

journey with F-5 (now up to F-8). Thank goodness I figured out how to live with these suckers the best I could years ago, because they are hanging on, and so, therefore, must I. I'm going to start actively re-examining all of the protocols people have sent for Morjella to see which I am going to add to the F-8. Apparently it is not going to get me well all by itself. And though I love the Manuca honey in my coffee, it is outrageously expensive and doesn't seem to do anything for me, so that I will probably drop. Except it is really good! I'll ask this again periodically: Has anyone sent me something to post at Morjella that hasn't been published there yet? I'd like to get that caught up and think I might have let something someone sent me slip through the cracks. If you don't mind,

would you check, and either remind me of a keyword or resend it to me for posting? And if so, I will get that sucker up ASAP this time. From: miteymaid <miteymaid@...> bird mites Sent: Sunday, March 25, 2012 10:41 AM Subject: Re: @miteymaid: your word should have been enough

Yes, they treat me like I'm from Mars. Sometimes I think this is the story of my life, nothing that affects me is real, I'm just making it up because I'm crazy. Now my building won't even let me hire my own exterminator because the entomologist from their exterminating company said, as you say, nothing I've observed is real, I'm just delusional. He says he's a scientist so what he's read is the bottom line. I do think these things are under my skin also which is how I'll approach my current doctor when I return. I have trouble with my stomach taking the meds also which doesn't help. It's so infuriating to bang your head against the wall in addition to trying to treat the condition.Now I'm also wondering if it would pay to get a regular microscope with a large viewing screen to start putting lint roller tapes through. Those hand held ones might be good though maybe not strong enough, but would then also have to buy a laptop. Threw out everything when I

moved here.Never seen anything on me with naked eye but twice saw a mass of black dots for a few seconds and also twice noticed my floor Moving with a mass of something after I sprayed. Also felt them really bad in the papers I brought over and had in my freezer.

E

> > > > >

> > > > > Hi Jess,

> > > > >

> > > > > It is really good to hear from you. I've thought about you often.

> > > > > I'm in the same boat with the similar questions about fibers. I

> > > > > wonder if there is any way to get rid of the fibers permanently. I

> > > > > feel them floating and landing on my hands at times. I don't know of

> > > > > anyone who has had fibers that actually got rid of them. Many on this

> > > > > site did not have fibers, but had mites only. Their exposure to mites

> > > > > did not bring fibers. Mites for sure can be killed, although with

> > > > > tremendous difficulty. I don't know what makes the fibers, but they

> > > > > are part of what defines Morgellons. So many people who had mites end

> > > > > up with the fibers. Some people think they are a by-product of a mite

> > > > > or parasite, or bacteria and some ppl believe they are alive. I'm a

> > > > > member of the group that believes they are living, although don't have

> > > > > any idea how that could be. Maybe investigators, although very

> > > > > controversial, believe they are nano products, and I think they maybe

> > > > > are. That's just an opinion... I'm not the one to come up with this

> > > > > as there are plenty of knowledgable people who have said this... Dr.

> > > > > Hildegard Staninger for one. When I had a microscope and was

> > > > > collecting fibers and looking at them under the digital scope I found

> > > > > some interesting things. I would put the fibers on slides, cover them

> > > > > in emersion oil and a thin glass sheet over the top and look at the

> > > > > fibers over a period of months. I stored them in a special box

> > > > > designed for slides. The fibers themselves changed over time from

> > > > > month to month (some did, some did not). Some developed what looked

> > > > > like a pin head. I never saw any of them move.

> > > > >

> > > > > I really wish I had a microscope again, but I haven't found one that

> > > > > hooks up with software for an iMac which I have now.

> > > > >

> > > > > I think there are things that disrupt the energy of the fibers.

> > > > > Scientists may have found a way to create life and I think the fibers

> > > > > are self creating... in the human body they have what they need to

> > > > > reproduce successfully. They also seem to reproduce in homes. Some

> > > > > may be programmed to carry diseases.

> > > > >

> > > > > I did not find coconut oil helpful on the body. When I put it on my

> > > > > hands and feet it seemed to dry my skin out further so I stopped using

> > > > > it. So no, it isn't just you Jess. It never was just you.

> > > > >

> > > > >

> > > > >

> > > > > ----------------------------------------------------------

> > > > > *From: *"jessnyc" <helpnynow@>

> > > > > **"Birdmites.org Website" <bird mites >

> > > > > *Sent: *Monday, March 19, 2012 3:29:50 PM

> > > > > *Subject: * So the fibers survive coconut oil?

> > > > >

> > > > > I had thought that coconut oil was a remedy for these fibers. I bought

> > > > > some and had a small jar next to me at all times.

> > > > >

> > > > > When the oil was in liquid form, I noticed that the fibers somehow

> > > > > managed to get in the oil, my little jar had suddenly like 10 or more

> > > > > fibers. After a while I saw they all stuck together, and eventually I

> > > > > began seeing more and more of them.

> > > > >

> > > > > I wonder if they reproduced in the oil and assembled themselves

> > > > > together? That's what it looked like to me, my little jar is full of

> > > > > some big and some tiny fibers, they're mostly blue red or black, some

> > > > > are also white and hard to see.

> > > > >

> > > > > I guess this shows they don't die with coconut oil, they thrive and

> > > > > reproduce in it.

> > > > >

> > > > > Jesus, is there anything remedy that actually kills them? I haven't

> > > > > found anything that would really kill them.

> > > > >

> > > > > Has anyone had any success with coconut oil? Or is it just me?

> > > > >

> > > > > Jess.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ------------------------------------

> > > > >

> > > > >

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Guest guest

My response too Kajay and just go on with life. From: "Kajay109" <morjella@...>bird mites Sent: Sunday, March 25, 2012 8:38:10 AMSubject: Re: Re: @miteymaid: your word should have been enough

I have quit trying to control what others think. They can't help me anyway, the only thing that could happen by people accepting the truth is that those of us with jobs would be told to go home and not come back till we are well. I am not personally prepared to "out" myself--I couldn't afford my treatments. And no one wants to hear that in the many years I have battled this, because I have made it a priority to do everything I could to avoid transmitting it to others, I have not transmitted it to any of my coworkers or friends. Oh, I tried to tell everyone at first and was just as frustrated and angry as you. Then I realized I was wasting my energy and even more, my time, as well as placing myself in jeopardy. Even if they accept it, they will not hear what I want to hear. Here is how it would go in their

minds.This is them thinking: "omg, it's real" "I gotta get out of here" "Don't come near me"Then from a safe distance, they would ask us the usual questions we get from those who might believe but still need some convincing, and who think they can tell us in a few sentences how to get over what we have already fought for months to years - in vain - to get over. That is, our friends and family insist that we see the doctor, that the doctor will help us, and that if he/she says we don't have anything, we must not, because he/she is the doctor, and there they are, back to not believing, back in their comfort

zone.I just got tired of it and dug into the battle. It was demanding all my energy anyway.Kajay From: miteymaid <miteymaid@...> bird mites Sent: Sunday, March 25, 2012 10:41 AM Subject: Re: @miteymaid: your word should have been enough

Yes, they treat me like I'm from Mars. Sometimes I think this is the story of my life, nothing that affects me is real, I'm just making it up because I'm crazy. Now my building won't even let me hire my own exterminator because the entomologist from their exterminating company said, as you say, nothing I've observed is real, I'm just delusional. He says he's a scientist so what he's read is the bottom line. I do think these things are under my skin also which is how I'll approach my current doctor when I return. I have trouble with my stomach taking the meds also which doesn't help. It's so infuriating to bang your head against the wall in addition to trying to treat the condition.Now I'm also wondering if it would pay to get a regular microscope with a large viewing screen to start putting lint roller tapes through. Those hand held ones might be good though maybe not strong enough, but would then also have to buy a laptop. Threw out everything when I

moved here.Never seen anything on me with naked eye but twice saw a mass of black dots for a few seconds and also twice noticed my floor Moving with a mass of something after I sprayed. Also felt them really bad in the papers I brought over and had in my freezer.

E

> > > > >

> > > > > Hi Jess,

> > > > >

> > > > > It is really good to hear from you. I've thought about you often.

> > > > > I'm in the same boat with the similar questions about fibers. I

> > > > > wonder if there is any way to get rid of the fibers permanently. I

> > > > > feel them floating and landing on my hands at times. I don't know of

> > > > > anyone who has had fibers that actually got rid of them. Many on this

> > > > > site did not have fibers, but had mites only. Their exposure to mites

> > > > > did not bring fibers. Mites for sure can be killed, although with

> > > > > tremendous difficulty. I don't know what makes the fibers, but they

> > > > > are part of what defines Morgellons. So many people who had mites end

> > > > > up with the fibers. Some people think they are a by-product of a mite

> > > > > or parasite, or bacteria and some ppl believe they are alive. I'm a

> > > > > member of the group that believes they are living, although don't have

> > > > > any idea how that could be. Maybe investigators, although very

> > > > > controversial, believe they are nano products, and I think they maybe

> > > > > are. That's just an opinion... I'm not the one to come up with this

> > > > > as there are plenty of knowledgable people who have said this... Dr.

> > > > > Hildegard Staninger for one. When I had a microscope and was

> > > > > collecting fibers and looking at them under the digital scope I found

> > > > > some interesting things. I would put the fibers on slides, cover them

> > > > > in emersion oil and a thin glass sheet over the top and look at the

> > > > > fibers over a period of months. I stored them in a special box

> > > > > designed for slides. The fibers themselves changed over time from

> > > > > month to month (some did, some did not). Some developed what looked

> > > > > like a pin head. I never saw any of them move.

> > > > >

> > > > > I really wish I had a microscope again, but I haven't found one that

> > > > > hooks up with software for an iMac which I have now.

> > > > >

> > > > > I think there are things that disrupt the energy of the fibers.

> > > > > Scientists may have found a way to create life and I think the fibers

> > > > > are self creating... in the human body they have what they need to

> > > > > reproduce successfully. They also seem to reproduce in homes. Some

> > > > > may be programmed to carry diseases.

> > > > >

> > > > > I did not find coconut oil helpful on the body. When I put it on my

> > > > > hands and feet it seemed to dry my skin out further so I stopped using

> > > > > it. So no, it isn't just you Jess. It never was just you.

> > > > >

> > > > >

> > > > >

> > > > > ----------------------------------------------------------

> > > > > *From: *"jessnyc" <helpnynow@>

> > > > > **"Birdmites.org Website" <bird mites >

> > > > > *Sent: *Monday, March 19, 2012 3:29:50 PM

> > > > > *Subject: * So the fibers survive coconut oil?

> > > > >

> > > > > I had thought that coconut oil was a remedy for these fibers. I bought

> > > > > some and had a small jar next to me at all times.

> > > > >

> > > > > When the oil was in liquid form, I noticed that the fibers somehow

> > > > > managed to get in the oil, my little jar had suddenly like 10 or more

> > > > > fibers. After a while I saw they all stuck together, and eventually I

> > > > > began seeing more and more of them.

> > > > >

> > > > > I wonder if they reproduced in the oil and assembled themselves

> > > > > together? That's what it looked like to me, my little jar is full of

> > > > > some big and some tiny fibers, they're mostly blue red or black, some

> > > > > are also white and hard to see.

> > > > >

> > > > > I guess this shows they don't die with coconut oil, they thrive and

> > > > > reproduce in it.

> > > > >

> > > > > Jesus, is there anything remedy that actually kills them? I haven't

> > > > > found anything that would really kill them.

> > > > >

> > > > > Has anyone had any success with coconut oil? Or is it just me?

> > > > >

> > > > > Jess.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ------------------------------------

> > > > >

> > > > >

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:-) From: "Goldstein@..." <Goldstein@...> bird mites Sent: Sunday, March 25, 2012 2:39 PM Subject: Re: Re: @miteymaid: your word should have been enough

My response too Kajay and just go on with life. From: "Kajay109" <morjella@...>bird mites Sent: Sunday, March 25, 2012 8:38:10 AMSubject: Re: Re: @miteymaid: your word should have been enough

I have quit trying to control what others think....I just got tired of it and dug into the battle. It was demanding all my energy anyway.Kajay From: miteymaid <miteymaid@...> bird mites Sent: Sunday, March 25, 2012 10:41 AM Subject: Re: @miteymaid: your word

should have been enough

Yes, they treat me like I'm from Mars....

E

>> No, miteymaid, he didn't dismiss you because of no proof...Your word should have been enough. ...

> kajay

>

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I don't talk about it much to people either now. Don't want to freak them out.

Some ignore it, some will stay away from me. Better to not say much and take

precautions. But I have to go out everyday to do laundry for 2 hours and $10 and

would be afraid to travel far as I try washing everything everyday.

> > > > > >

> > > > > > Hi Jess,

> > > > > >

> > > > > > It is really good to hear from you. I've thought about you often.

> > > > > > I'm in the same boat with the similar questions about fibers. I

> > > > > > wonder if there is any way to get rid of the fibers permanently. I

> > > > > > feel them floating and landing on my hands at times. I don't know of

> > > > > > anyone who has had fibers that actually got rid of them. Many on

this

> > > > > > site did not have fibers, but had mites only. Their exposure to

mites

> > > > > > did not bring fibers. Mites for sure can be killed, although with

> > > > > > tremendous difficulty. I don't know what makes the fibers, but they

> > > > > > are part of what defines Morgellons. So many people who had mites

end

> > > > > > up with the fibers. Some people think they are a by-product of a

mite

> > > > > > or parasite, or bacteria and some ppl believe they are alive. I'm a

> > > > > > member of the group that believes they are living, although don't

have

> > > > > > any idea how that could be. Maybe investigators, although very

> > > > > > controversial, believe they are nano products, and I think they

maybe

> > > > > > are. That's just an opinion... I'm not the one to come up with this

> > > > > > as there are plenty of knowledgable people who have said this... Dr.

> > > > > > Hildegard Staninger for one. When I had a microscope and was

> > > > > > collecting fibers and looking at them under the digital scope I

found

> > > > > > some interesting things. I would put the fibers on slides, cover

them

> > > > > > in emersion oil and a thin glass sheet over the top and look at the

> > > > > > fibers over a period of months. I stored them in a special box

> > > > > > designed for slides. The fibers themselves changed over time from

> > > > > > month to month (some did, some did not). Some developed what looked

> > > > > > like a pin head. I never saw any of them move.

> > > > > >

> > > > > > I really wish I had a microscope again, but I haven't found one that

> > > > > > hooks up with software for an iMac which I have now.

> > > > > >

> > > > > > I think there are things that disrupt the energy of the fibers.

> > > > > > Scientists may have found a way to create life and I think the

fibers

> > > > > > are self creating... in the human body they have what they need to

> > > > > > reproduce successfully. They also seem to reproduce in homes. Some

> > > > > > may be programmed to carry diseases.

> > > > > >

> > > > > > I did not find coconut oil helpful on the body. When I put it on my

> > > > > > hands and feet it seemed to dry my skin out further so I stopped

using

> > > > > > it. So no, it isn't just you Jess. It never was just you.

> > > > > >

> > > > > >

> > > > > >

> > > > > > ----------------------------------------------------------

> > > > > > *From: * " jessnyc " <helpnynow@>

> > > > > > ** " Birdmites.org Website " < bird mites >

> > > > > > *Sent: *Monday, March 19, 2012 3:29:50 PM

> > > > > > *Subject: * So the fibers survive coconut oil?

> > > > > >

> > > > > > I had thought that coconut oil was a remedy for these fibers. I

bought

> > > > > > some and had a small jar next to me at all times.

> > > > > >

> > > > > > When the oil was in liquid form, I noticed that the fibers somehow

> > > > > > managed to get in the oil, my little jar had suddenly like 10 or

more

> > > > > > fibers. After a while I saw they all stuck together, and eventually

I

> > > > > > began seeing more and more of them.

> > > > > >

> > > > > > I wonder if they reproduced in the oil and assembled themselves

> > > > > > together? That's what it looked like to me, my little jar is full of

> > > > > > some big and some tiny fibers, they're mostly blue red or black,

some

> > > > > > are also white and hard to see.

> > > > > >

> > > > > > I guess this shows they don't die with coconut oil, they thrive and

> > > > > > reproduce in it.

> > > > > >

> > > > > > Jesus, is there anything remedy that actually kills them? I haven't

> > > > > > found anything that would really kill them.

> > > > > >

> > > > > > Has anyone had any success with coconut oil? Or is it just me?

> > > > > >

> > > > > > Jess.

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > > ------------------------------------

> > > > > >

> > > > > >

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Hi, Kajay, The outline for treatments I sent out for everyone to fill in and pass around never came back. I don't think I communicated well. Anyway, I can try again this summer. I do have some interesting protocols to give you, but as I am still completing them, I would like to contribute after the outcome is clear. Thanks for all you do.Love and light, From: Kajay109

<morjella@...> "bird mites " <bird mites > Sent: Sunday, March 25, 2012 11:51 AM Subject: Re: Re: @miteymaid: your word should have been enough

About the microscope. I had a digital microscope, wore it out, know what various critters look like from every angle, and gained nothing from the hundreds, if not thousands, of hours I obsessed over all those images. I still have some online, though just a fraction of what I photographed. It might help you to have some images, and it might not. They did not help me with other people. They did help me to understand what I was and am still up against. I am still hoping the F-products will finish all the critters off for me, and it does prevent me from having lesions, but so far I am definitely not well. I am still having to do all my daily protocols and it has been exactly a year this month since I started my miraculous

journey with F-5 (now up to F-8). Thank goodness I figured out how to live with these suckers the best I could years ago, because they are hanging on, and so, therefore, must I. I'm going to start actively re-examining all of the protocols people have sent for Morjella to see which I am going to add to the F-8. Apparently it is not going to get me well all by itself. And though I love the Manuca honey in my coffee, it is outrageously expensive and doesn't seem to do anything for me, so that I will probably drop. Except it is really good! I'll ask this again periodically: Has anyone sent me something to post at Morjella that hasn't been published there yet? I'd like to get that caught up and think I might have let something someone sent me slip through the cracks. If you don't mind,

would you check, and either remind me of a keyword or resend it to me for posting? And if so, I will get that sucker up ASAP this time. From: miteymaid <miteymaid@...> bird mites Sent: Sunday, March 25, 2012 10:41 AM Subject: Re: @miteymaid: your word should have been enough

Yes, they treat me like I'm from Mars. Sometimes I think this is the story of my life, nothing that affects me is real, I'm just making it up because I'm crazy. Now my building won't even let me hire my own exterminator because the entomologist from their exterminating company said, as you say, nothing I've observed is real, I'm just delusional. He says he's a scientist so what he's read is the bottom line. I do think these things are under my skin also which is how I'll approach my current doctor when I return. I have trouble with my stomach taking the meds also which doesn't help. It's so infuriating to bang your head against the wall in addition to trying to treat the condition.Now I'm also wondering if it would pay to get a regular microscope with a large viewing screen to start putting lint roller tapes through. Those hand held ones might be good though maybe not strong enough, but would then also have to buy a laptop. Threw out everything when I

moved here.Never seen anything on me with naked eye but twice saw a mass of black dots for a few seconds and also twice noticed my floor Moving with a mass of something after I sprayed. Also felt them really bad in the papers I brought over and had in my freezer.

E

> > > > >

> > > > > Hi Jess,

> > > > >

> > > > > It is really good to hear from you. I've thought about you often.

> > > > > I'm in the same boat with the similar questions about fibers. I

> > > > > wonder if there is any way to get rid of the fibers permanently. I

> > > > > feel them floating and landing on my hands at times. I don't know of

> > > > > anyone who has had fibers that actually got rid of them. Many on this

> > > > > site did not have fibers, but had mites only. Their exposure to mites

> > > > > did not bring fibers. Mites for sure can be killed, although with

> > > > > tremendous difficulty. I don't know what makes the fibers, but they

> > > > > are part of what defines Morgellons. So many people who had mites end

> > > > > up with the fibers. Some people think they are a by-product of a mite

> > > > > or parasite, or bacteria and some ppl believe they are alive. I'm a

> > > > > member of the group that believes they are living, although don't have

> > > > > any idea how that could be. Maybe investigators, although very

> > > > > controversial, believe they are nano products, and I think they maybe

> > > > > are. That's just an opinion... I'm not the one to come up with this

> > > > > as there are plenty of knowledgable people who have said this... Dr.

> > > > > Hildegard Staninger for one. When I had a microscope and was

> > > > > collecting fibers and looking at them under the digital scope I found

> > > > > some interesting things. I would put the fibers on slides, cover them

> > > > > in emersion oil and a thin glass sheet over the top and look at the

> > > > > fibers over a period of months. I stored them in a special box

> > > > > designed for slides. The fibers themselves changed over time from

> > > > > month to month (some did, some did not). Some developed what looked

> > > > > like a pin head. I never saw any of them move.

> > > > >

> > > > > I really wish I had a microscope again, but I haven't found one that

> > > > > hooks up with software for an iMac which I have now.

> > > > >

> > > > > I think there are things that disrupt the energy of the fibers.

> > > > > Scientists may have found a way to create life and I think the fibers

> > > > > are self creating... in the human body they have what they need to

> > > > > reproduce successfully. They also seem to reproduce in homes. Some

> > > > > may be programmed to carry diseases.

> > > > >

> > > > > I did not find coconut oil helpful on the body. When I put it on my

> > > > > hands and feet it seemed to dry my skin out further so I stopped using

> > > > > it. So no, it isn't just you Jess. It never was just you.

> > > > >

> > > > >

> > > > >

> > > > > ----------------------------------------------------------

> > > > > *From: *"jessnyc" <helpnynow@>

> > > > > **"Birdmites.org Website" <bird mites >

> > > > > *Sent: *Monday, March 19, 2012 3:29:50 PM

> > > > > *Subject: * So the fibers survive coconut oil?

> > > > >

> > > > > I had thought that coconut oil was a remedy for these fibers. I bought

> > > > > some and had a small jar next to me at all times.

> > > > >

> > > > > When the oil was in liquid form, I noticed that the fibers somehow

> > > > > managed to get in the oil, my little jar had suddenly like 10 or more

> > > > > fibers. After a while I saw they all stuck together, and eventually I

> > > > > began seeing more and more of them.

> > > > >

> > > > > I wonder if they reproduced in the oil and assembled themselves

> > > > > together? That's what it looked like to me, my little jar is full of

> > > > > some big and some tiny fibers, they're mostly blue red or black, some

> > > > > are also white and hard to see.

> > > > >

> > > > > I guess this shows they don't die with coconut oil, they thrive and

> > > > > reproduce in it.

> > > > >

> > > > > Jesus, is there anything remedy that actually kills them? I haven't

> > > > > found anything that would really kill them.

> > > > >

> > > > > Has anyone had any success with coconut oil? Or is it just me?

> > > > >

> > > > > Jess.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ------------------------------------

> > > > >

> > > > >

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Kajay,

After a month the entomologist for the exterminating co. For my building wrote

them a letter telling them I had delusional parasitosis and I was not allowed to

use my own exterminator and if I didn't like it I could leave. I am so f....

Mad. This is the first person who had the nerve to call me this and I wish I

could sue him for slander. You describe what is happening and he completely

rejects everything you say. Where is the scientific principle behind negation

and not observation? Yes, I think Hinkle should be trussed and quartered

for propagating her own falsehoods. I am so angry and insulted. When I think of

all the people trying to deal with this stuff, who never asked for it to happen

and then to be told they are all crazy boggles the sensible mind. It wasn't long

ago that we heard that cigarettes didn't cause cancer too.

> > > > >

> > > > > Hi Jess,

> > > > >

> > > > > It is really good to hear from you. I've thought about you often.

> > > > > I'm in the same boat with the similar questions about fibers. I

> > > > > wonder if there is any way to get rid of the fibers permanently. I

> > > > > feel them floating and landing on my hands at times. I don't know of

> > > > > anyone who has had fibers that actually got rid of them. Many on this

> > > > > site did not have fibers, but had mites only. Their exposure to mites

> > > > > did not bring fibers. Mites for sure can be killed, although with

> > > > > tremendous difficulty. I don't know what makes the fibers, but they

> > > > > are part of what defines Morgellons. So many people who had mites end

> > > > > up with the fibers. Some people think they are a by-product of a mite

> > > > > or parasite, or bacteria and some ppl believe they are alive. I'm a

> > > > > member of the group that believes they are living, although don't have

> > > > > any idea how that could be. Maybe investigators, although very

> > > > > controversial, believe they are nano products, and I think they maybe

> > > > > are. That's just an opinion... I'm not the one to come up with this

> > > > > as there are plenty of knowledgable people who have said this... Dr.

> > > > > Hildegard Staninger for one. When I had a microscope and was

> > > > > collecting fibers and looking at them under the digital scope I found

> > > > > some interesting things. I would put the fibers on slides, cover them

> > > > > in emersion oil and a thin glass sheet over the top and look at the

> > > > > fibers over a period of months. I stored them in a special box

> > > > > designed for slides. The fibers themselves changed over time from

> > > > > month to month (some did, some did not). Some developed what looked

> > > > > like a pin head. I never saw any of them move.

> > > > >

> > > > > I really wish I had a microscope again, but I haven't found one that

> > > > > hooks up with software for an iMac which I have now.

> > > > >

> > > > > I think there are things that disrupt the energy of the fibers.

> > > > > Scientists may have found a way to create life and I think the fibers

> > > > > are self creating... in the human body they have what they need to

> > > > > reproduce successfully. They also seem to reproduce in homes. Some

> > > > > may be programmed to carry diseases.

> > > > >

> > > > > I did not find coconut oil helpful on the body. When I put it on my

> > > > > hands and feet it seemed to dry my skin out further so I stopped using

> > > > > it. So no, it isn't just you Jess. It never was just you.

> > > > >

> > > > >

> > > > >

> > > > > ----------------------------------------------------------

> > > > > *From: * " jessnyc " <helpnynow@>

> > > > > ** " Birdmites.org Website " <bird mites >

> > > > > *Sent: *Monday, March 19, 2012 3:29:50 PM

> > > > > *Subject: * So the fibers survive coconut oil?

> > > > >

> > > > > I had thought that coconut oil was a remedy for these fibers. I bought

> > > > > some and had a small jar next to me at all times.

> > > > >

> > > > > When the oil was in liquid form, I noticed that the fibers somehow

> > > > > managed to get in the oil, my little jar had suddenly like 10 or more

> > > > > fibers. After a while I saw they all stuck together, and eventually I

> > > > > began seeing more and more of them.

> > > > >

> > > > > I wonder if they reproduced in the oil and assembled themselves

> > > > > together? That's what it looked like to me, my little jar is full of

> > > > > some big and some tiny fibers, they're mostly blue red or black, some

> > > > > are also white and hard to see.

> > > > >

> > > > > I guess this shows they don't die with coconut oil, they thrive and

> > > > > reproduce in it.

> > > > >

> > > > > Jesus, is there anything remedy that actually kills them? I haven't

> > > > > found anything that would really kill them.

> > > > >

> > > > > Has anyone had any success with coconut oil? Or is it just me?

> > > > >

> > > > > Jess.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ------------------------------------

> > > > >

> > > > >

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Guest guest

Exactly. Been just as angry and frustrated as you are now. Felt completely helpless, outraged, and wanted to picket Ms. Hinkle's dept at U of GA. Sanity ruled, however, because I realized that anything emotional that I did would reduce, not increase, any credibility I would ever hope to obtain, and of course violence is never the answer, even though the fantasy of it can occasionally be quite satisfying :-)We cannot expect support or help from anyone other than our own community. Sad, but true. I get it, though. Boy do I get it. Here we are dealing with something that completely disrupts our lives in every respect from financial to romantic, and from which

we have no idea whether we can ever come back in any of those ways, while at the same time we are being jabbed with an icepick dozens of times a minute, sometimes almost every second, and the people we should be able to turn to in safety--even if they do not know how to help us--transform into the enemy, into threats to our freedom, jobs, and physical well-being...the minute they log onto their databases and read that article.The truth is, though, that in life we can never count on others to save us. We are born alone, suffer alone, die alone. In the meantime we hope to achieve love, joy, service, in an environment of safety and freedom of action and choice. But these are perks not to be taken for granted. We should have them, ideally, but not everyone does. We certainly lose much of that through this illness. I have heard it said that loss of hearing produces more and greater depression than

loss of eyesight because it produces greater isolation. The isolation is one of the worst effects for us. That is one of the key reasons this group (bless you Tim) is so valuable: WE ARE NO LONGER ALONE. I cannot tell you the relief I felt the first time I spoke on the phone with another human being who not only believed me, but who had been helping people connect for some time, and that is at Safe2use.com. , if you read this, you saved my life. Then I began reading 's scabies board letters, which she had well indexed. Here and there, I found a tip, another tip, and these led me to my own experiments and to a level of survivable sanity, if that term makes any sense. What I learned from people's letters, though I didn't yet know about Hinkle's article or realize it was the reason for the credibility issues we have all faced, was that most dermatologists and entomologists were

unwilling, unable, uninterested, or all of these, to help any of us. Very few sufferers reported that their dermatologists or MDs or pest control operators worked with them to discover a cause.There is only one person sufficiently motivated to do whatever it takes to get me well. And that is me. Everyone else has their own lives, challenges, contraints, regulations, licenses, employers, governments, children, illnesses, fires and floods, to fight. My life is my responsibility. Like it or not, it is the truth. I had no idea how much I had been coddled and sheltered in my life until I hit the wall with this disease, meaning, where I had always been able to call my mom or dad, my brothers, my doc, my friends, talk to my husband, look it up in the yellow pages or online--suddenly it was like I was thrown to suffer in a dark room with a predatory beast. I screamed at my wall, beat my fists till they bled,

cried, and cried. I finally got it all out. The disease did not wait for me to reach that point, of course, and I realized I had better get busy or it was going to win, to kill me, sooner rather than later. And that is when my battle REALLY began. That is when I started finding ways, if not to get well, at least to survive the fight.kajay From: miteymaid

<miteymaid@...> bird mites Sent: Sunday, April 1, 2012 4:23 PM Subject: Re: @miteymaid: your word should have been enough

Kajay,

After a month the entomologist for the exterminating co. For my building wrote them a letter telling them I had delusional parasitosis and I was not allowed to use my own exterminator and if I didn't like it I could leave. I am so f.... Mad. This is the first person who had the nerve to call me this and I wish I could sue him for slander. You describe what is happening and he completely rejects everything you say. Where is the scientific principle behind negation and not observation? Yes, I think Hinkle should be trussed and quartered for propagating her own falsehoods. I am so angry and insulted. When I think of all the people trying to deal with this stuff, who never asked for it to happen and then to be told they are all crazy boggles the sensible mind. It wasn't long ago that we heard that cigarettes didn't cause cancer too.

> > > > >

> > > > > Hi Jess,

> > > > >

> > > > > It is really good to hear from you. I've thought about you often.

> > > > > I'm in the same boat with the similar questions about fibers. I

> > > > > wonder if there is any way to get rid of the fibers permanently. I

> > > > > feel them floating and landing on my hands at times. I don't know of

> > > > > anyone who has had fibers that actually got rid of them. Many on this

> > > > > site did not have fibers, but had mites only. Their exposure to mites

> > > > > did not bring fibers. Mites for sure can be killed, although with

> > > > > tremendous difficulty. I don't know what makes the fibers, but they

> > > > > are part of what defines Morgellons. So many people who had mites end

> > > > > up with the fibers. Some people think they are a by-product of a mite

> > > > > or parasite, or bacteria and some ppl believe they are alive. I'm a

> > > > > member of the group that believes they are living, although don't have

> > > > > any idea how that could be. Maybe investigators, although very

> > > > > controversial, believe they are nano products, and I think they maybe

> > > > > are. That's just an opinion... I'm not the one to come up with this

> > > > > as there are plenty of knowledgable people who have said this... Dr.

> > > > > Hildegard Staninger for one. When I had a microscope and was

> > > > > collecting fibers and looking at them under the digital scope I found

> > > > > some interesting things. I would put the fibers on slides, cover them

> > > > > in emersion oil and a thin glass sheet over the top and look at the

> > > > > fibers over a period of months. I stored them in a special box

> > > > > designed for slides. The fibers themselves changed over time from

> > > > > month to month (some did, some did not). Some developed what looked

> > > > > like a pin head. I never saw any of them move.

> > > > >

> > > > > I really wish I had a microscope again, but I haven't found one that

> > > > > hooks up with software for an iMac which I have now.

> > > > >

> > > > > I think there are things that disrupt the energy of the fibers.

> > > > > Scientists may have found a way to create life and I think the fibers

> > > > > are self creating... in the human body they have what they need to

> > > > > reproduce successfully. They also seem to reproduce in homes. Some

> > > > > may be programmed to carry diseases.

> > > > >

> > > > > I did not find coconut oil helpful on the body. When I put it on my

> > > > > hands and feet it seemed to dry my skin out further so I stopped using

> > > > > it. So no, it isn't just you Jess. It never was just you.

> > > > >

> > > > >

> > > > >

> > > > > ----------------------------------------------------------

> > > > > *From: *"jessnyc" <helpnynow@>

> > > > > **"Birdmites.org Website" <bird mites >

> > > > > *Sent: *Monday, March 19, 2012 3:29:50 PM

> > > > > *Subject: * So the fibers survive coconut oil?

> > > > >

> > > > > I had thought that coconut oil was a remedy for these fibers. I bought

> > > > > some and had a small jar next to me at all times.

> > > > >

> > > > > When the oil was in liquid form, I noticed that the fibers somehow

> > > > > managed to get in the oil, my little jar had suddenly like 10 or more

> > > > > fibers. After a while I saw they all stuck together, and eventually I

> > > > > began seeing more and more of them.

> > > > >

> > > > > I wonder if they reproduced in the oil and assembled themselves

> > > > > together? That's what it looked like to me, my little jar is full of

> > > > > some big and some tiny fibers, they're mostly blue red or black, some

> > > > > are also white and hard to see.

> > > > >

> > > > > I guess this shows they don't die with coconut oil, they thrive and

> > > > > reproduce in it.

> > > > >

> > > > > Jesus, is there anything remedy that actually kills them? I haven't

> > > > > found anything that would really kill them.

> > > > >

> > > > > Has anyone had any success with coconut oil? Or is it just me?

> > > > >

> > > > > Jess.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ------------------------------------

> > > > >

> > > > >

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What a great mail of encourage and understanding!

Cecilia

From: Kajay109 <morjella@...>"bird mites " <bird mites > Sent: Sunday, April 1, 2012 11:29 PMSubject: Re: Re: @miteymaid: your word should have been enough

Exactly. Been just as angry and frustrated as you are now. Felt completely helpless, outraged, and wanted to picket Ms. Hinkle's dept at U of GA.

Sanity ruled, however, because I realized that anything emotional that I did would reduce, not increase, any credibility I would ever hope to obtain, and of course violence is never the answer, even though the fantasy of it can occasionally be quite satisfying :-)

We cannot expect support or help from anyone other than our own community. Sad, but true.

I get it, though. Boy do I get it. Here we are dealing with something that completely disrupts our lives in every respect from financial to romantic, and from which we have no idea whether we can ever come back in any of those ways, while at the same time we are being jabbed with an icepick dozens of times a minute, sometimes almost every second, and the people we should be able to turn to in safety--even if they do not know how to help us--transform into the enemy, into threats to our freedom, jobs, and physical well-being...the minute they log onto their databases and read that article.

The truth is, though, that in life we can never count on others to save us. We are born alone, suffer alone, die alone. In the meantime we hope to achieve love, joy, service, in an environment of safety and freedom of action and choice. But these are perks not to be taken for granted. We should have them, ideally, but not everyone does. We certainly lose much of that through this illness. I have heard it said that loss of hearing produces more and greater depression than loss of eyesight because it produces greater isolation. The isolation is one of the worst effects for us. That is one of the key reasons this group (bless you Tim) is so valuable: WE ARE NO LONGER ALONE.

I cannot tell you the relief I felt the first time I spoke on the phone with another human being who not only believed me, but who had been helping people connect for some time, and that is at Safe2use.com. , if you read this, you saved my life. Then I began reading 's scabies board letters, which she had well indexed. Here and there, I found a tip, another tip, and these led me to my own experiments and to a level of survivable sanity, if that term makes any sense. What I learned from people's letters, though I didn't yet know about Hinkle's article or realize it was the reason for the credibility issues we have all faced, was that most dermatologists and entomologists were unwilling, unable, uninterested, or all of these, to help any of us. Very few sufferers reported that their dermatologists or MDs or pest control operators worked with them to discover a

cause.

There is only one person sufficiently motivated to do whatever it takes to get me well. And that is me. Everyone else has their own lives, challenges, contraints, regulations, licenses, employers, governments, children, illnesses, fires and floods, to fight. My life is my responsibility. Like it or not, it is the truth. I had no idea how much I had been coddled and sheltered in my life until I hit the wall with this disease, meaning, where I had always been able to call my mom or dad, my brothers, my doc, my friends, talk to my husband, look it up in the yellow pages or online--suddenly it was like I was thrown to suffer in a dark room with a predatory beast. I screamed at my wall, beat my fists till they bled, cried, and cried.

I finally got it all out.

The disease did not wait for me to reach that point, of course, and I realized I had better get busy or it was going to win, to kill me, sooner rather than later.

And that is when my battle REALLY began. That is when I started finding ways, if not to get well, at least to survive the fight.

kajay

From: miteymaid <miteymaid@...>bird mites Sent: Sunday, April 1, 2012 4:23 PMSubject: Re: @miteymaid: your word should have been enough

Kajay,After a month the entomologist for the exterminating co. For my building wrote them a letter telling them I had delusional parasitosis and I was not allowed to use my own exterminator and if I didn't like it I could leave. I am so f.... Mad. This is the first person who had the nerve to call me this and I wish I could sue him for slander. You describe what is happening and he completely rejects everything you say. Where is the scientific principle behind negation and not observation? Yes, I think Hinkle should be trussed and quartered for propagating her own falsehoods. I am so angry and insulted. When I think of all the people trying to deal with this stuff, who never asked for it to happen and then to be told they are all crazy boggles the sensible mind. It wasn't long ago that we heard that cigarettes didn't cause cancer too.> > > > > > > > > > Hi Jess,> > > > >> > > > > It is really good to hear from you. I've thought about you often.> > > > > I'm in the same boat with the similar questions

about fibers. I> > > > > wonder if there is any way to get rid of the fibers permanently. I> > > > > feel them floating and landing on my hands at times. I don't know of> > > > > anyone who has had fibers that actually got rid of them. Many on this> > > > > site did not have fibers, but had mites only. Their exposure to mites> > > > > did not bring fibers. Mites for sure can be killed, although with> > > > > tremendous difficulty. I don't know what makes the fibers, but they> > > > > are part of what defines Morgellons. So many people who had mites end> > > > > up with the fibers. Some people think they are a by-product of a mite> > > > > or parasite, or bacteria and some ppl believe they are alive. I'm a> > > > > member of the group that believes they are living,

although don't have> > > > > any idea how that could be. Maybe investigators, although very> > > > > controversial, believe they are nano products, and I think they maybe> > > > > are. That's just an opinion... I'm not the one to come up with this> > > > > as there are plenty of knowledgable people who have said this... Dr.> > > > > Hildegard Staninger for one. When I had a microscope and was> > > > > collecting fibers and looking at them under the digital scope I found> > > > > some interesting things. I would put the fibers on slides, cover them> > > > > in emersion oil and a thin glass sheet over the top and look at the> > > > > fibers over a period of months. I stored them in a special box> > > > > designed for slides. The fibers themselves changed over time

from> > > > > month to month (some did, some did not). Some developed what looked> > > > > like a pin head. I never saw any of them move. > > > > >> > > > > I really wish I had a microscope again, but I haven't found one that> > > > > hooks up with software for an iMac which I have now. > > > > >> > > > > I think there are things that disrupt the energy of the fibers.> > > > > Scientists may have found a way to create life and I think the fibers> > > > > are self creating... in the human body they have what they need to> > > > > reproduce successfully. They also seem to reproduce in homes. Some> > > > > may be programmed to carry diseases. > > > > >> > > > > I did not find coconut oil helpful on the body. When

I put it on my> > > > > hands and feet it seemed to dry my skin out further so I stopped using> > > > > it. So no, it isn't just you Jess. It never was just you. > > > > >> > > > > > > > > >> > > > > ----------------------------------------------------------> > > > > *From: *"jessnyc" <helpnynow@>> > > > > **"Birdmites.org Website" <bird mites >> > > > > *Sent: *Monday, March 19, 2012 3:29:50 PM> > > > > *Subject: * So the fibers survive coconut oil?> > > > >> > > > > I had thought that coconut oil was a remedy for these fibers. I bought>

> > > > some and had a small jar next to me at all times.> > > > >> > > > > When the oil was in liquid form, I noticed that the fibers somehow> > > > > managed to get in the oil, my little jar had suddenly like 10 or more> > > > > fibers. After a while I saw they all stuck together, and eventually I> > > > > began seeing more and more of them.> > > > >> > > > > I wonder if they reproduced in the oil and assembled themselves> > > > > together? That's what it looked like to me, my little jar is full of> > > > > some big and some tiny fibers, they're mostly blue red or black, some> > > > > are also white and hard to see.> > > > >> > > > > I guess this shows they don't die with coconut oil, they thrive and> >

> > > reproduce in it.> > > > >> > > > > Jesus, is there anything remedy that actually kills them? I haven't> > > > > found anything that would really kill them.> > > > >> > > > > Has anyone had any success with coconut oil? Or is it just me?> > > > >> > > > > Jess.> > > > >> > > > >> > > > >> > > > >> > > > > ------------------------------------> > > > >> > > > >

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Bless you Kajay and Tim ! You have just sent tears to my eyes and shiver down my spine.

I guess every single one of us could have posted this, but you found the most perfect words for

describing the situation or should I say desaster...

Von: Kajay109 <morjella@...>An: "bird mites " <bird mites > Gesendet: 23:29 Sonntag, 1.April 2012Betreff: Re: Re: @miteymaid: your word should have been enough

Exactly. Been just as angry and frustrated as you are now. Felt completely helpless, outraged, and wanted to picket Ms. Hinkle's dept at U of GA.

Sanity ruled, however, because I realized that anything emotional that I did would reduce, not increase, any credibility I would ever hope to obtain, and of course violence is never the answer, even though the fantasy of it can occasionally be quite satisfying :-)

We cannot expect support or help from anyone other than our own community. Sad, but true.

I get it, though. Boy do I get it. Here we are dealing with something that completely disrupts our lives in every respect from financial to romantic, and from which we have no idea whether we can ever come back in any of those ways, while at the same time we are being jabbed with an icepick dozens of times a minute, sometimes almost every second, and the people we should be able to turn to in safety--even if they do not know how to help us--transform into the enemy, into threats to our freedom, jobs, and physical well-being...the minute they log onto their databases and read that article.

The truth is, though, that in life we can never count on others to save us. We are born alone, suffer alone, die alone. In the meantime we hope to achieve love, joy, service, in an environment of safety and freedom of action and choice. But these are perks not to be taken for granted. We should have them, ideally, but not everyone does. We certainly lose much of that through this illness. I have heard it said that loss of hearing produces more and greater depression than loss of eyesight because it produces greater isolation. The isolation is one of the worst effects for us. That is one of the key reasons this group (bless you Tim) is so valuable: WE ARE NO LONGER ALONE.

I cannot tell you the relief I felt the first time I spoke on the phone with another human being who not only believed me, but who had been helping people connect for some time, and that is at Safe2use.com. , if you read this, you saved my life. Then I began reading 's scabies board letters, which she had well indexed. Here and there, I found a tip, another tip, and these led me to my own experiments and to a level of survivable sanity, if that term makes any sense. What I learned from people's letters, though I didn't yet know about Hinkle's article or realize it was the reason for the credibility issues we have all faced, was that most dermatologists and entomologists were unwilling, unable, uninterested, or all of these, to help any of us. Very few sufferers reported that their dermatologists or MDs or pest control operators worked with them to discover a cause.

There is only one person sufficiently motivated to do whatever it takes to get me well. And that is me. Everyone else has their own lives, challenges, contraints, regulations, licenses, employers, governments, children, illnesses, fires and floods, to fight. My life is my responsibility. Like it or not, it is the truth. I had no idea how much I had been coddled and sheltered in my life until I hit the wall with this disease, meaning, where I had always been able to call my mom or dad, my brothers, my doc, my friends, talk to my husband, look it up in the yellow pages or online--suddenly it was like I was thrown to suffer in a dark room with a predatory beast. I screamed at my wall, beat my fists till they bled, cried, and cried.

I finally got it all out.

The disease did not wait for me to reach that point, of course, and I realized I had better get busy or it was going to win, to kill me, sooner rather than later.

And that is when my battle REALLY began. That is when I started finding ways, if not to get well, at least to survive the fight.

kajay

From: miteymaid <miteymaid@...>bird mites Sent: Sunday, April 1, 2012 4:23 PMSubject: Re: @miteymaid: your word should have been enough

Kajay,After a month the entomologist for the exterminating co. For my building wrote them a letter telling them I had delusional parasitosis and I was not allowed to use my own exterminator and if I didn't like it I could leave. I am so f.... Mad. This is the first person who had the nerve to call me this and I wish I could sue him for slander. You describe what is happening and he completely rejects everything you say. Where is the scientific principle behind negation and not observation? Yes, I think Hinkle should be trussed and quartered for propagating her own falsehoods. I am so angry and insulted. When I think of all the people trying to deal with this stuff, who never asked for it to happen and then to be told they are all crazy boggles the sensible mind. It wasn't long ago that we heard that cigarettes didn't cause cancer too.> > > > > > > > > > Hi Jess,> > > > >> > > > > It is really good to hear from you. I've thought about you often.> > > > > I'm in the same boat with the similar questions

about fibers. I> > > > > wonder if there is any way to get rid of the fibers permanently. I> > > > > feel them floating and landing on my hands at times. I don't know of> > > > > anyone who has had fibers that actually got rid of them. Many on this> > > > > site did not have fibers, but had mites only. Their exposure to mites> > > > > did not bring fibers. Mites for sure can be killed, although with> > > > > tremendous difficulty. I don't know what makes the fibers, but they> > > > > are part of what defines Morgellons. So many people who had mites end> > > > > up with the fibers. Some people think they are a by-product of a mite> > > > > or parasite, or bacteria and some ppl believe they are alive. I'm a> > > > > member of the group that believes they are living,

although don't have> > > > > any idea how that could be. Maybe investigators, although very> > > > > controversial, believe they are nano products, and I think they maybe> > > > > are. That's just an opinion... I'm not the one to come up with this> > > > > as there are plenty of knowledgable people who have said this... Dr.> > > > > Hildegard Staninger for one. When I had a microscope and was> > > > > collecting fibers and looking at them under the digital scope I found> > > > > some interesting things. I would put the fibers on slides, cover them> > > > > in emersion oil and a thin glass sheet over the top and look at the> > > > > fibers over a period of months. I stored them in a special box> > > > > designed for slides. The fibers themselves changed over time

from> > > > > month to month (some did, some did not). Some developed what looked> > > > > like a pin head. I never saw any of them move. > > > > >> > > > > I really wish I had a microscope again, but I haven't found one that> > > > > hooks up with software for an iMac which I have now. > > > > >> > > > > I think there are things that disrupt the energy of the fibers.> > > > > Scientists may have found a way to create life and I think the fibers> > > > > are self creating... in the human body they have what they need to> > > > > reproduce successfully. They also seem to reproduce in homes. Some> > > > > may be programmed to carry diseases. > > > > >> > > > > I did not find coconut oil helpful on the body. When

I put it on my> > > > > hands and feet it seemed to dry my skin out further so I stopped using> > > > > it. So no, it isn't just you Jess. It never was just you. > > > > >> > > > > > > > > >> > > > > ----------------------------------------------------------> > > > > *From: *"jessnyc" <helpnynow@>> > > > > **"Birdmites.org Website" <bird mites >> > > > > *Sent: *Monday, March 19, 2012 3:29:50 PM> > > > > *Subject: * So the fibers survive coconut oil?> > > > >> > > > > I had thought that coconut oil was a remedy for these fibers. I bought>

> > > > some and had a small jar next to me at all times.> > > > >> > > > > When the oil was in liquid form, I noticed that the fibers somehow> > > > > managed to get in the oil, my little jar had suddenly like 10 or more> > > > > fibers. After a while I saw they all stuck together, and eventually I> > > > > began seeing more and more of them.> > > > >> > > > > I wonder if they reproduced in the oil and assembled themselves> > > > > together? That's what it looked like to me, my little jar is full of> > > > > some big and some tiny fibers, they're mostly blue red or black, some> > > > > are also white and hard to see.> > > > >> > > > > I guess this shows they don't die with coconut oil, they thrive and> >

> > > reproduce in it.> > > > >> > > > > Jesus, is there anything remedy that actually kills them? I haven't> > > > > found anything that would really kill them.> > > > >> > > > > Has anyone had any success with coconut oil? Or is it just me?> > > > >> > > > > Jess.> > > > >> > > > >> > > > >> > > > >> > > > > ------------------------------------> > > > >> > > > >

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Thanks Kajay for your response.

> > > > > >

> > > > > > Hi Jess,

> > > > > >

> > > > > > It is really good to hear from you. I've thought about you often.

> > > > > > I'm in the same boat with the similar questions about fibers. I

> > > > > > wonder if there is any way to get rid of the fibers permanently. I

> > > > > > feel them floating and landing on my hands at times. I don't know of

> > > > > > anyone who has had fibers that actually got rid of them. Many on

this

> > > > > > site did not have fibers, but had mites only. Their exposure to

mites

> > > > > > did not bring fibers. Mites for sure can be killed, although with

> > > > > > tremendous difficulty. I don't know what makes the fibers, but they

> > > > > > are part of what defines Morgellons. So many people who had mites

end

> > > > > > up with the fibers. Some people think they are a by-product of a

mite

> > > > > > or parasite, or bacteria and some ppl believe they are alive. I'm a

> > > > > > member of the group that believes they are living, although don't

have

> > > > > > any idea how that could be. Maybe investigators, although very

> > > > > > controversial, believe they are nano products, and I think they

maybe

> > > > > > are. That's just an opinion... I'm not the one to come up with this

> > > > > > as there are plenty of knowledgable people who have said this... Dr.

> > > > > > Hildegard Staninger for one. When I had a microscope and was

> > > > > > collecting fibers and looking at them under the digital scope I

found

> > > > > > some interesting things. I would put the fibers on slides, cover

them

> > > > > > in emersion oil and a thin glass sheet over the top and look at the

> > > > > > fibers over a period of months. I stored them in a special box

> > > > > > designed for slides. The fibers themselves changed over time from

> > > > > > month to month (some did, some did not). Some developed what looked

> > > > > > like a pin head. I never saw any of them move.

> > > > > >

> > > > > > I really wish I had a microscope again, but I haven't found one that

> > > > > > hooks up with software for an iMac which I have now.

> > > > > >

> > > > > > I think there are things that disrupt the energy of the fibers.

> > > > > > Scientists may have found a way to create life and I think the

fibers

> > > > > > are self creating... in the human body they have what they need to

> > > > > > reproduce successfully. They also seem to reproduce in homes. Some

> > > > > > may be programmed to carry diseases.

> > > > > >

> > > > > > I did not find coconut oil helpful on the body. When I put it on my

> > > > > > hands and feet it seemed to dry my skin out further so I stopped

using

> > > > > > it. So no, it isn't just you Jess. It never was just you.

> > > > > >

> > > > > >

> > > > > >

> > > > > > ----------------------------------------------------------

> > > > > > *From: * " jessnyc " <helpnynow@>

> > > > > > ** " Birdmites.org Website " <bird mites >

> > > > > > *Sent: *Monday, March 19, 2012 3:29:50 PM

> > > > > > *Subject: * So the fibers survive coconut oil?

> > > > > >

> > > > > > I had thought that coconut oil was a remedy for these fibers. I

bought

> > > > > > some and had a small jar next to me at all times.

> > > > > >

> > > > > > When the oil was in liquid form, I noticed that the fibers somehow

> > > > > > managed to get in the oil, my little jar had suddenly like 10 or

more

> > > > > > fibers. After a while I saw they all stuck together, and eventually

I

> > > > > > began seeing more and more of them.

> > > > > >

> > > > > > I wonder if they reproduced in the oil and assembled themselves

> > > > > > together? That's what it looked like to me, my little jar is full of

> > > > > > some big and some tiny fibers, they're mostly blue red or black,

some

> > > > > > are also white and hard to see.

> > > > > >

> > > > > > I guess this shows they don't die with coconut oil, they thrive and

> > > > > > reproduce in it.

> > > > > >

> > > > > > Jesus, is there anything remedy that actually kills them? I haven't

> > > > > > found anything that would really kill them.

> > > > > >

> > > > > > Has anyone had any success with coconut oil? Or is it just me?

> > > > > >

> > > > > > Jess.

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > > ------------------------------------

> > > > > >

> > > > > >

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I also think that some people, when they don't know or have an answer, it's

easier for them to turn around and blame you and that, they think gets them off

the hook, and makes them think they're less ignorant.

> > > > > > >

> > > > > > > Hi Jess,

> > > > > > >

> > > > > > > It is really good to hear from you. I've thought about you often.

> > > > > > > I'm in the same boat with the similar questions about fibers. I

> > > > > > > wonder if there is any way to get rid of the fibers permanently. I

> > > > > > > feel them floating and landing on my hands at times. I don't know

of

> > > > > > > anyone who has had fibers that actually got rid of them. Many on

this

> > > > > > > site did not have fibers, but had mites only. Their exposure to

mites

> > > > > > > did not bring fibers. Mites for sure can be killed, although with

> > > > > > > tremendous difficulty. I don't know what makes the fibers, but

they

> > > > > > > are part of what defines Morgellons. So many people who had mites

end

> > > > > > > up with the fibers. Some people think they are a by-product of a

mite

> > > > > > > or parasite, or bacteria and some ppl believe they are alive. I'm

a

> > > > > > > member of the group that believes they are living, although don't

have

> > > > > > > any idea how that could be. Maybe investigators, although very

> > > > > > > controversial, believe they are nano products, and I think they

maybe

> > > > > > > are. That's just an opinion... I'm not the one to come up with

this

> > > > > > > as there are plenty of knowledgable people who have said this...

Dr.

> > > > > > > Hildegard Staninger for one. When I had a microscope and was

> > > > > > > collecting fibers and looking at them under the digital scope I

found

> > > > > > > some interesting things. I would put the fibers on slides, cover

them

> > > > > > > in emersion oil and a thin glass sheet over the top and look at

the

> > > > > > > fibers over a period of months. I stored them in a special box

> > > > > > > designed for slides. The fibers themselves changed over time from

> > > > > > > month to month (some did, some did not). Some developed what

looked

> > > > > > > like a pin head. I never saw any of them move.

> > > > > > >

> > > > > > > I really wish I had a microscope again, but I haven't found one

that

> > > > > > > hooks up with software for an iMac which I have now.

> > > > > > >

> > > > > > > I think there are things that disrupt the energy of the fibers.

> > > > > > > Scientists may have found a way to create life and I think the

fibers

> > > > > > > are self creating... in the human body they have what they need to

> > > > > > > reproduce successfully. They also seem to reproduce in homes. Some

> > > > > > > may be programmed to carry diseases.

> > > > > > >

> > > > > > > I did not find coconut oil helpful on the body. When I put it on

my

> > > > > > > hands and feet it seemed to dry my skin out further so I stopped

using

> > > > > > > it. So no, it isn't just you Jess. It never was just you.

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > > ----------------------------------------------------------

> > > > > > > *From: * " jessnyc " <helpnynow@>

> > > > > > > ** " Birdmites.org Website " <bird mites >

> > > > > > > *Sent: *Monday, March 19, 2012 3:29:50 PM

> > > > > > > *Subject: * So the fibers survive coconut oil?

> > > > > > >

> > > > > > > I had thought that coconut oil was a remedy for these fibers. I

bought

> > > > > > > some and had a small jar next to me at all times.

> > > > > > >

> > > > > > > When the oil was in liquid form, I noticed that the fibers somehow

> > > > > > > managed to get in the oil, my little jar had suddenly like 10 or

more

> > > > > > > fibers. After a while I saw they all stuck together, and

eventually I

> > > > > > > began seeing more and more of them.

> > > > > > >

> > > > > > > I wonder if they reproduced in the oil and assembled themselves

> > > > > > > together? That's what it looked like to me, my little jar is full

of

> > > > > > > some big and some tiny fibers, they're mostly blue red or black,

some

> > > > > > > are also white and hard to see.

> > > > > > >

> > > > > > > I guess this shows they don't die with coconut oil, they thrive

and

> > > > > > > reproduce in it.

> > > > > > >

> > > > > > > Jesus, is there anything remedy that actually kills them? I

haven't

> > > > > > > found anything that would really kill them.

> > > > > > >

> > > > > > > Has anyone had any success with coconut oil? Or is it just me?

> > > > > > >

> > > > > > > Jess.

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > > ------------------------------------

> > > > > > >

> > > > > > >

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Thank you, Aggi! That is so sweet! From: Aggi Assmann <aggi_assmann@...> "bird mites " <bird mites > Sent: Monday, April 2, 2012 10:21 AM Subject: Re: Re: @miteymaid: your word should have been enough

Bless you Kajay and Tim ! You have just sent tears to my eyes and shiver down my spine.

I guess every single one of us could have posted this, but you found the most perfect words for

describing the situation or should I say desaster...

Von: Kajay109 <morjella@...>An: "bird mites " <bird mites > Gesendet: 23:29 Sonntag, 1.April 2012Betreff: Re: Re: @miteymaid: your word should have been enough

Exactly. Been just as angry and frustrated as you are now. Felt completely helpless, outraged, and wanted to picket Ms. Hinkle's dept at U of GA.

Sanity ruled, however, because I realized that anything emotional that I did would reduce, not increase, any credibility I would ever hope to obtain, and of course violence is never the answer, even though the fantasy of it can occasionally be quite satisfying :-)

We cannot expect support or help from anyone other than our own community. Sad, but true.

I get it, though. Boy do I get it. Here we are dealing with something that completely disrupts our lives in every respect from financial to romantic, and from which we have no idea whether we can ever come back in any of those ways, while at the same time we are being jabbed with an icepick dozens of times a minute, sometimes almost every second, and the people we should be able to turn to in safety--even if they do not know how to help us--transform into the enemy, into threats to our freedom, jobs, and physical well-being...the minute they log onto their databases and read that article.

The truth is, though, that in life we can never count on others to save us. We are born alone, suffer alone, die alone. In the meantime we hope to achieve love, joy, service, in an environment of safety and freedom of action and choice. But these are perks not to be taken for granted. We should have them, ideally, but not everyone does. We certainly lose much of that through this illness. I have heard it said that loss of hearing produces more and greater depression than loss of eyesight because it produces greater isolation. The isolation is one of the worst effects for us. That is one of the key reasons this group (bless you Tim) is so valuable: WE ARE NO LONGER ALONE.

I cannot tell you the relief I felt the first time I spoke on the phone with another human being who not only believed me, but who had been helping people connect for some time, and that is at Safe2use.com. , if you read this, you saved my life. Then I began reading 's scabies board letters, which she had well indexed. Here and there, I found a tip, another tip, and these led me to my own experiments and to a level of survivable sanity, if that term makes any sense. What I learned from people's letters, though I didn't yet know about Hinkle's article or realize it was the reason for the credibility issues we have all faced, was that most dermatologists and entomologists were unwilling, unable, uninterested, or all of these, to help any of us. Very few sufferers reported that their dermatologists or MDs or pest control operators worked with them to discover a cause.

There is only one person sufficiently motivated to do whatever it takes to get me well. And that is me. Everyone else has their own lives, challenges, contraints, regulations, licenses, employers, governments, children, illnesses, fires and floods, to fight. My life is my responsibility. Like it or not, it is the truth. I had no idea how much I had been coddled and sheltered in my life until I hit the wall with this disease, meaning, where I had always been able to call my mom or dad, my brothers, my doc, my friends, talk to my husband, look it up in the yellow pages or online--suddenly it was like I was thrown to suffer in a dark room with a predatory beast. I screamed at my wall, beat my fists till they bled, cried, and cried.

I finally got it all out.

The disease did not wait for me to reach that point, of course, and I realized I had better get busy or it was going to win, to kill me, sooner rather than later.

And that is when my battle REALLY began. That is when I started finding ways, if not to get well, at least to survive the fight.

kajay

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