Re: Re: New to this group, and I hope you can help me

[Guest guest]

Hi dear miteymaid...These things always in my experience get worse before they get better... that has happened to me even with antibiotics. I have very little happening at the moment, but it has been many months of vigilence and using antibiotics. I don't know what Dr. Zhang's track record is with our problem(s). He may be slightly off the mark, meaning you may have other things going on that were not addressed... is he addressing Lyme and coinfections? My understanding through reading is that Lyme always comes with mycoplasma... the fact that the rest of the family is not attracting or sensitive tells me your issues are internal. Just my thought. And by the way, sorry we didn't do a phone conference. I was not doing well and neither was Aandraya. Some people think this is a bug (external), I don't think that. It feels internal to me and external. The jury is out on that.From: "miteymaid" <miteymaid@...>bird mites Sent: Sunday, April 8, 2012 5:46:32 AMSubject: Re: New to this group, and I hope you can help meI went to Dr. Zhang and he gave me some pills to keep taking to desensitize me, problem is he didn't believe they could be living on me or in me and now after 2 weeks I'm feeling a lot more pin bricks all over me all the time whereas before I was mainly getting bites on my feet and fingers at night..I think the idea of desensitizing is a good one as I still think these mites are around my daughter's family and cats but they're not bothered whereas I am but the fact that I'm not getting something to also kill them worries me since I'm feeling worse and feeling that he doesn't fully comprehend my situation and therefore I'm not being treated properly and may just be making my situation worse.> > > >> > Hello all, I know, after reading many of the posts here, that many of> > you are suffering terribly from multiple diseases, perhaps caused by> > bird mites, perhaps not. I can't really tell as I am joining in the> > middle of some of your discussions.> >> > But, I could really use some advice from people who are undergoing> > issues with bird mites or have undergone them.> >> > I guess I was living in blissful ignorance up til now. Wish I could go> > back to that time before I ever heard of bird mites. I raised> > canaries. Well, I took them over from my father when he passed away a> > year ago. One day I noticed these little brown specks jumping onto my> > hand from the bird cages. Lots of calls and conversations with> > Entomologists and Pest Controllers led me to understand that these> > were red bird mites (chicken mites). I already had been scratching a> > lot and thought it was fleas from my dogs. So, I got rid of all my> > birds. I have an impaired immune system due to a rare disease called> > Dercums. Lots of pain and fatigue and many other things.> >> > After giving all of my birds to a fellow bird fancier, I immediately> > fumigated my home. (Nygaard IGR with Onslaught and DE for the attic).> > This seemed to help for a day or two and then I was attacked in droves> > of them (having no bird to feed on, I was the next best. along with my> > little dog, who is old and not well. My teen age son and his younger> > dog have been fairly unaffected). I did everything I could. I vacuumed> > constantly, sprayed with ammonia, bleach, kleen free, washed all my> > clothes in hot water with borax and ammonia, etc. etc.). But after> > three weeks I could not take it any longer. So, called Pest Company> > back out and they treated again. This time with a product called> > Zenprox. This time I went through all of my closets and threw away> > almost all of my clothes. What I kept went into plastic bags with moth> > balls and were kept outside or in the garage. Again, the mites> > returned. So a couple of days ago, the Pest Control company came out> > and sprayed again with Onslaught and an exciter (don't know the> > product name) and drilled holds into the walls where the mites were> > the worst (like my bedroom and the room where the birds had been kept)> > and put a fogger into the walls. I had been away for a week in a local> > motel just so I could get some rest and to combat multiple cold sores> > and a bladder infection. Upon returning yesterday I noticed the mites> > are still here. Relentless. I even started wearing a dog collar at> > night to keep them out of my mouth.> >> > That is the absolute worst thing that has been happening. They just> > won't stay out of my mouth. I am constantly coughing up mites. I am> > gargling incessantly and wear Vicks Vapor Rub all over my mouth, nose> > and neck to discourage them during the day. But they still get in. I> > have been battling these mites for over 6 weeks now and nothing is> > working. I spent 3 hours vacuuming yesterday but the PCO did not want> > me to doing anything other than that because she did not want anything> > to counteract the fumigant. Most of my clothes I keep outside now> > (even the ones that I wear). They are in plastic tubs with moth> > chrystals in them. I am washing all my bed linens every day and> > whatever clothes I have worn. This morning my back hurts between my> > shoulder blades and I am coughing up brown stuff. I am very worried> > that somehow mites have gotten into my lungs. I know they aren't> > supposed to be able to live off of humans, nor are they supposed to> > live inside a human body. But I can't say that I believe this.> >> > Has anyone in this group encountered anything similar to this? Or are> > there any suggestions or advice anyone can give me. My daughter is> > getting married this summer and my happiness for her and ability to> > help plan her wedding has all been destroyed by these mites. I just> > don't know what to do.> >> > Forgive me please as I know many of you are suffering far worse than> > me, but still, I could really use some help.> >> > Thank you so much and my best wishes to everyone here.> >> > Terry> >> >>------------------------------------

[Guest guest]

If you had positive antibodies to Lyme and Bart then you have to treat those infections. Depending on how deep seeded the infections are herbs may not be enough. My friend is seeing Dr. Raxlen out there and loves him, I think he's in MA.AandrayaOn Apr 10, 2012, at 10:12 AM, miteymaid <miteymaid@...> wrote:

Thanks . Yes, I think they are external and either in my skin or somewhere within me also. Since I started these herbs my elbow has been stiff also along with the pricks so I asked him if this could be from the herbs or maybe bartonella flaring up du to changing body chemistry but I didn't really get an answer. This makes me really reluctant to proceed although I am still taking them. Also when he says the herbs can't do harm I read and see they can be quite toxic. Aandraya, what I'm getting is circulation P, Tang-kuei and Arctium formula 822M and AI#3capsules. I didn't have clinical signs for Lyme just the biting although I do have antibodies for Lyme and bartonella. Also where I moved I can't get a good night's sleep so that makes it harder for me to communicate. This has been an ongoing issue for me living in nyc. Thank you Kajay for the delusional parasitosis article. I have used my own exterminator to spray my apartment with onslaught and Nyguard every month. That

seemed to knock them down but not get rid of them and when I had this trouble with my management I started to wonder how often I could get away with spraying without affecting my own health that way. In the kitchen I clean with the tko or lysol, also the bathroom. Wash everything everyday and spray wintergreen alchol on vinyl mattress cover, those things seem to help with the itching.

> > >

> > >

> > > Hello all, I know, after reading many of the posts here, that many of

> > > you are suffering terribly from multiple diseases, perhaps caused by

> > > bird mites, perhaps not. I can't really tell as I am joining in the

> > > middle of some of your discussions.

> > >

> > > But, I could really use some advice from people who are undergoing

> > > issues with bird mites or have undergone them.

> > >

> > > I guess I was living in blissful ignorance up til now. Wish I could go

> > > back to that time before I ever heard of bird mites. I raised

> > > canaries. Well, I took them over from my father when he passed away a

> > > year ago. One day I noticed these little brown specks jumping onto my

> > > hand from the bird cages. Lots of calls and conversations with

> > > Entomologists and Pest Controllers led me to understand that these

> > > were red bird mites (chicken mites). I already had been scratching a

> > > lot and thought it was fleas from my dogs. So, I got rid of all my

> > > birds. I have an impaired immune system due to a rare disease called

> > > Dercums. Lots of pain and fatigue and many other things.

> > >

> > > After giving all of my birds to a fellow bird fancier, I immediately

> > > fumigated my home. (Nygaard IGR with Onslaught and DE for the attic).

> > > This seemed to help for a day or two and then I was attacked in droves

> > > of them (having no bird to feed on, I was the next best. along with my

> > > little dog, who is old and not well. My teen age son and his younger

> > > dog have been fairly unaffected). I did everything I could. I vacuumed

> > > constantly, sprayed with ammonia, bleach, kleen free, washed all my

> > > clothes in hot water with borax and ammonia, etc. etc.). But after

> > > three weeks I could not take it any longer. So, called Pest Company

> > > back out and they treated again. This time with a product called

> > > Zenprox. This time I went through all of my closets and threw away

> > > almost all of my clothes. What I kept went into plastic bags with moth

> > > balls and were kept outside or in the garage. Again, the mites

> > > returned. So a couple of days ago, the Pest Control company came out

> > > and sprayed again with Onslaught and an exciter (don't know the

> > > product name) and drilled holds into the walls where the mites were

> > > the worst (like my bedroom and the room where the birds had been kept)

> > > and put a fogger into the walls. I had been away for a week in a local

> > > motel just so I could get some rest and to combat multiple cold sores

> > > and a bladder infection. Upon returning yesterday I noticed the mites

> > > are still here. Relentless. I even started wearing a dog collar at

> > > night to keep them out of my mouth.

> > >

> > > That is the absolute worst thing that has been happening. They just

> > > won't stay out of my mouth. I am constantly coughing up mites. I am

> > > gargling incessantly and wear Vicks Vapor Rub all over my mouth, nose

> > > and neck to discourage them during the day. But they still get in. I

> > > have been battling these mites for over 6 weeks now and nothing is

> > > working. I spent 3 hours vacuuming yesterday but the PCO did not want

> > > me to doing anything other than that because she did not want anything

> > > to counteract the fumigant. Most of my clothes I keep outside now

> > > (even the ones that I wear). They are in plastic tubs with moth

> > > chrystals in them. I am washing all my bed linens every day and

> > > whatever clothes I have worn. This morning my back hurts between my

> > > shoulder blades and I am coughing up brown stuff. I am very worried

> > > that somehow mites have gotten into my lungs. I know they aren't

> > > supposed to be able to live off of humans, nor are they supposed to

> > > live inside a human body. But I can't say that I believe this.

> > >

> > > Has anyone in this group encountered anything similar to this? Or are

> > > there any suggestions or advice anyone can give me. My daughter is

> > > getting married this summer and my happiness for her and ability to

> > > help plan her wedding has all been destroyed by these mites. I just

> > > don't know what to do.

> > >

> > > Forgive me please as I know many of you are suffering far worse than

> > > me, but still, I could really use some help.

> > >

> > > Thank you so much and my best wishes to everyone here.

> > >

> > > Terry

> > >

> > >

> >

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

Hi Miteymaid

I put ant traps at my realtives house , it helped .

Cvs brand , it was psoed 4 years or so ago

CVS ANT CONTROL SYSTEM (ant trap)

ingridients

Sodium tetraborate pentahydrate 5%

ortho boric acid 4%

other ingredients 91%

( I wonder if the other ingredients 91%, is aspertame , it usually is in ant

traps)

Here is the post I learned it from

It is from Som an old poster His info posted by Frito

here is the copy paste of it :

Re: Hello From SOM

Frito, SOM had just left when I subscribed. Is he still battling this? Bless

his heart....

>>

>> Hi Terry,

>>

>> Sorry to hear what you're going through. I went through something very

>> similar about a year ago, and although I was able to get rid of the

>> mites (or whatever they were--I could never identify them) I was left

>> with Morgellons and still battling it.

>>

>> Basically I had an infestation with something I suspect was a type of

>> bird mite. There was a point where I also felt they were in my digestive

>> tract, I had a strange sensation down my throat and I was coughing up a

>> lot of spit.

>>

>> This worked for me, so you could try and see. I started having a tbsp of

>> organic apple cider 3 times a day or so. I also had a tsp of baking soda

>> diluted in a glass of water. It has to be very well diluted. The cider I

>> think was what worked the best, I felt relief right away with it.

>>

>> Then I also had to get rid of the mites in my room. They infested my

>> entire room and there was a point where I honestly thought I'd never get

>> rid of them. The

[Guest guest]

Miteymaid-Few Lyme literate doctors take insurance. You can submit the bill yourself to your insurance though, depending on what insur. you have. My friend here in MN is seeing Dr. R and loves him. There is also a Dr. Bock (?) out your way who is highly Lyme literate. You have the infection, if it's not addressed it will progress. I am going to see Dr. Jemsek who is in DC, there's a bit of a wait to get in there. Here me on this, you need an LLMD now and you may get through treatment in less than a year!AandrayaOn Apr 11, 2012, at 7:50 AM, miteymaid <miteymaid@...> wrote:

I looked up Dr. Raxlen and he's in NYC but he doesn't take insurance. However I've made note of his number and address. Thanks Aandraya. I am still thinking what to do next. I'd also really like to get them out of my environment. I did try the traps Bill but they din't seem to make any difference in my case. I tried spreading some baking soda in floor cracks although not all over. I also wish I could sleep better so I could think better, NYC living.

> > > > >

> > > > >

> > > > > Hello all, I know, after reading many of the posts here, that

> > many of

> > > > > you are suffering terribly from multiple diseases, perhaps

> > caused by

> > > > > bird mites, perhaps not. I can't really tell as I am joining

> > in the

> > > > > middle of some of your discussions.

> > > > >

> > > > > But, I could really use some advice from people who are

> > undergoing

> > > > > issues with bird mites or have undergone them.

> > > > >

> > > > > I guess I was living in blissful ignorance up til now. Wish I

> > could go

> > > > > back to that time before I ever heard of bird mites. I raised

> > > > > canaries. Well, I took them over from my father when he passed

> > away a

> > > > > year ago. One day I noticed these little brown specks jumping

> > onto my

> > > > > hand from the bird cages. Lots of calls and conversations with

> > > > > Entomologists and Pest Controllers led me to understand that

> > these

> > > > > were red bird mites (chicken mites). I already had been

> > scratching a

> > > > > lot and thought it was fleas from my dogs. So, I got rid of

> > all my

> > > > > birds. I have an impaired immune system due to a rare disease

> > called

> > > > > Dercums. Lots of pain and fatigue and many other things.

> > > > >

> > > > > After giving all of my birds to a fellow bird fancier, I

> > immediately

> > > > > fumigated my home. (Nygaard IGR with Onslaught and DE for the

> > attic).

> > > > > This seemed to help for a day or two and then I was attacked

> > in droves

> > > > > of them (having no bird to feed on, I was the next best. along

> > with my

> > > > > little dog, who is old and not well. My teen age son and his

> > younger

> > > > > dog have been fairly unaffected). I did everything I could. I

> > vacuumed

> > > > > constantly, sprayed with ammonia, bleach, kleen free, washed

> > all my

> > > > > clothes in hot water with borax and ammonia, etc. etc.). But

> > after

> > > > > three weeks I could not take it any longer. So, called Pest

> > Company

> > > > > back out and they treated again. This time with a product called

> > > > > Zenprox. This time I went through all of my closets and threw

> > away

> > > > > almost all of my clothes. What I kept went into plastic bags

> > with moth

> > > > > balls and were kept outside or in the garage. Again, the mites

> > > > > returned. So a couple of days ago, the Pest Control company

> > came out

> > > > > and sprayed again with Onslaught and an exciter (don't know the

> > > > > product name) and drilled holds into the walls where the mites

> > were

> > > > > the worst (like my bedroom and the room where the birds had

> > been kept)

> > > > > and put a fogger into the walls. I had been away for a week in

> > a local

> > > > > motel just so I could get some rest and to combat multiple

> > cold sores

> > > > > and a bladder infection. Upon returning yesterday I noticed

> > the mites

> > > > > are still here. Relentless. I even started wearing a dog

> > collar at

> > > > > night to keep them out of my mouth.

> > > > >

> > > > > That is the absolute worst thing that has been happening. They

> > just

> > > > > won't stay out of my mouth. I am constantly coughing up mites.

> > I am

> > > > > gargling incessantly and wear Vicks Vapor Rub all over my

> > mouth, nose

> > > > > and neck to discourage them during the day. But they still get

> > in. I

> > > > > have been battling these mites for over 6 weeks now and

> > nothing is

> > > > > working. I spent 3 hours vacuuming yesterday but the PCO did

> > not want

> > > > > me to doing anything other than that because she did not want

> > anything

> > > > > to counteract the fumigant. Most of my clothes I keep outside

> > now

> > > > > (even the ones that I wear). They are in plastic tubs with moth

> > > > > chrystals in them. I am washing all my bed linens every day and

> > > > > whatever clothes I have worn. This morning my back hurts

> > between my

> > > > > shoulder blades and I am coughing up brown stuff. I am very

> > worried

> > > > > that somehow mites have gotten into my lungs. I know they aren't

> > > > > supposed to be able to live off of humans, nor are they

> > supposed to

> > > > > live inside a human body. But I can't say that I believe this.

> > > > >

> > > > > Has anyone in this group encountered anything similar to this?

> > Or are

> > > > > there any suggestions or advice anyone can give me. My

> > daughter is

> > > > > getting married this summer and my happiness for her and

> > ability to

> > > > > help plan her wedding has all been destroyed by these mites. I

> > just

> > > > > don't know what to do.

> > > > >

> > > > > Forgive me please as I know many of you are suffering far

> > worse than

> > > > > me, but still, I could really use some help.

> > > > >

> > > > > Thank you so much and my best wishes to everyone here.

> > > > >

> > > > > Terry

> > > > >

> > > > >

> > > >

> > >

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > >