Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 Many thanks...I have an appointment next Thursday with an LLMD. I doubt I will get the doxy before then, so I will wait and see. Progress moves slowly. Seems like just a short jaunt to the house today had me scratching and itching. And I barely stepped inside the house. I don't know why this is. Perhaps the fungus or mites are just lying in wait for me. I think I am going to have to forego helping with the treatment and just stay away. It isn't so bad at the hotel but I can't get near my house. This is so disconcerting for me. Terry > > > > > > > > > > > > > > > > > > Hi everyone, > > > > > > > > > > > > > > > > > > I was wondering how many of you find black, red and blue > > > > > fibers > > > > > > > all over you? > > > > > > > > > > > > > > > > > > Has anyone tried running a lint roller over your body, > > > > > clothes, > > > > > > > bed > > > > > > > > > sheets, scalp, etc? > > > > > > > > > > > > > > > > > > Whenever I do this, the lint roller ends up with > > hundreds of > > > > > > > > > thousands, of black, red and blue fibers. Some very > > long, some > > > > > > > > > incredibly tiny. > > > > > > > > > > > > > > > > > > I saw a CNN report on Morgellons and this was one of the > > > > > biggest > > > > > > > > > findings, the colored fibers. > > > > > > > > > > > > > > > > > > Just curious about who else has this symptom and what > > has it > > > > > > > been like. > > > > > > > > > > > > > > > > > > Jess > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 Really? Well I am hoping to put an end to their reign of terror! Being disabled I didn't have anywhere to go, like a job, not that I probably could have worked due to exhaustion. When I am in the house, I was just grinning and bearing it..well not so much grinning. But now, after being away for a while and feeling somewhat normal, returning to that situation is just intolerable. I do hope the organic cedar products get rid of them and the LLMD helps me with the rest of this. Thanks for letting me know I was not alone with this aspect of the battle!! Terry > > > > > > > > > > > > > > > > > > > > Hi everyone, > > > > > > > > > > > > > > > > > > > > I was wondering how many of you find black, red and blue > > > > > > fibers > > > > > > > > all over you? > > > > > > > > > > > > > > > > > > > > Has anyone tried running a lint roller over your body, > > > > > > clothes, > > > > > > > > bed > > > > > > > > > > sheets, scalp, etc? > > > > > > > > > > > > > > > > > > > > Whenever I do this, the lint roller ends up with > > > hundreds of > > > > > > > > > > thousands, of black, red and blue fibers. Some very > > > long, some > > > > > > > > > > incredibly tiny. > > > > > > > > > > > > > > > > > > > > I saw a CNN report on Morgellons and this was one of the > > > > > > biggest > > > > > > > > > > findings, the colored fibers. > > > > > > > > > > > > > > > > > > > > Just curious about who else has this symptom and what > > > has it > > > > > > > > been like. > > > > > > > > > > > > > > > > > > > > Jess > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 That sucks!! (no pun intended) Terry > > > > > > > > > > > > > > > > Hi everyone, > > > > > > > > > > > > > > > > I was wondering how many of you find black, red and blue > > > > fibers > > > > > > all over you? > > > > > > > > > > > > > > > > Has anyone tried running a lint roller over your body, > > > > clothes, > > > > > > bed > > > > > > > > sheets, scalp, etc? > > > > > > > > > > > > > > > > Whenever I do this, the lint roller ends up with hundreds of > > > > > > > > thousands, of black, red and blue fibers. Some very long, some > > > > > > > > incredibly tiny. > > > > > > > > > > > > > > > > I saw a CNN report on Morgellons and this was one of the > > > > biggest > > > > > > > > findings, the colored fibers. > > > > > > > > > > > > > > > > Just curious about who else has this symptom and what has it > > > > > > been like. > > > > > > > > > > > > > > > > Jess > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 Sure, I will take any help I can get. Love to see what worked for you... > > > > > > > > > > > > > > > > Hi everyone, > > > > > > > > > > > > > > > > I was wondering how many of you find black, red and blue > > > > fibers > > > > > > all over you? > > > > > > > > > > > > > > > > Has anyone tried running a lint roller over your body, > > > > clothes, > > > > > > bed > > > > > > > > sheets, scalp, etc? > > > > > > > > > > > > > > > > Whenever I do this, the lint roller ends up with hundreds of > > > > > > > > thousands, of black, red and blue fibers. Some very long, some > > > > > > > > incredibly tiny. > > > > > > > > > > > > > > > > I saw a CNN report on Morgellons and this was one of the > > > > biggest > > > > > > > > findings, the colored fibers. > > > > > > > > > > > > > > > > Just curious about who else has this symptom and what has it > > > > > > been like. > > > > > > > > > > > > > > > > Jess > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 Hey Aggi you survived so much pain and hardship. I am so proud of you that you stuck in there. I have often thought of trying the predator mites as I understand they don't bite humans. Was there a reason you did not try them in your house? I have kept all of my clothes in plastic bags until I wash them. Even here at the hotel, as soon as I take them off, I put them in a plastic bag and shove the bag in the freezer. I leave it in there for many hours before taking it out. I have Lysol which I have used on my curtains and other places, but I will use it on more places in the house. I am so very happy that you won this war. Just knowing that you did it without having to give up everything is a huge relief for me. I can't help but think I can do the same after reading your story. I know what you are saying about continuing with your regime. It is hard to stop anything that has become so engrained in you. Even now, after only a few months of fighting this, I have developed habits which I will never break. I too could not sleep. I became so sleep deprived that I often found myself wandering around in circles knowing I had things I had to do but could not remember them. But I would not sit down or lie down because I always got swarmed when I did that. I took to sleeping every 30 hours or so. I had to be totally and completely exhausted before I could lie down. It was only then when I could fall instantly asleep that I could beat the mites. I would fall asleep I think before they got to me. Then I guess nothing would wake me. I started taking little shots of before going to bed so that the alcohol would burn anything in my throat. I would also spread the Vicks all over me, burn menthol crystals in my room until I could barely see (had to stop because it tormented my little dog so) and before going to bed, I scrubbed my body with a sulfur and lavender bar until I was red. I never took the sulfur, but I heard that colloidal silver was good. But nobody here has ever mentioned it so I have not tried it. I lost almost 25 pounds in two months because I could not eat anything. I always saw them in whatever I ate. I took to only drinking soda out of a bottle with a twist cap because I didn't trust having an open container. I never drank soda before that. I tell you, this is miserable and I have NO idea how everyone here survived for so long under these conditions. I am such a baby! I am giving up after only a couple of months...I feel embarrassed that I could not hack it any longer...BUT I have not given up and Walked Away!! I may be down the road a bit, but I am not gone. So, that is my only saving grace I guess. My heart goes out to you and everyone else here who has suffered so and who continues to suffer. Aggi, you and everyone here have such courage. Thank you for sharing your story, Blessings to you, Terry > > > > > > > > > > > > > > > > > > Hi everyone, > > > > > > > > > > > > > > > > > > I was wondering how many of you find black, red and blue > > > > > fibers > > > > > > > all over you? > > > > > > > > > > > > > > > > > > Has anyone tried running a lint roller over your body, > > > > > clothes, > > > > > > > bed > > > > > > > > > sheets, scalp, etc? > > > > > > > > > > > > > > > > > > Whenever I do this, the lint roller ends up with hundreds of > > > > > > > > > thousands, of black, red and blue fibers. Some very long, some > > > > > > > > > incredibly tiny. > > > > > > > > > > > > > > > > > > I saw a CNN report on Morgellons and this was one of the > > > > > biggest > > > > > > > > > findings, the colored fibers. > > > > > > > > > > > > > > > > > > Just curious about who else has this symptom and what has it > > > > > > > been like. > > > > > > > > > > > > > > > > > > Jess > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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