Guest guest Posted April 9, 2012 Report Share Posted April 9, 2012 Oh I am so sorry Kajay. These traumas came together for me last year. I can so relate. We were at the end of our tether all year. So hoping things smooth out for you and the healing energy come for you. No more traumas, just rest, relax and find a balance again. So important. I'm still decompressing, even while trying to recover from infections.Hugs, From: "Kajay109" <morjella@...>"bird mites@groupscom" <bird mites >Sent: Monday, April 9, 2012 10:15:51 AMSubject: credibility - Lots of new info at PubMed. If someone has already posted these search results, please forgive. I rarely check in these days. Death in family, loss of two friends, whole house flood, trauma etc. http://www.ncbi.nlm.nih.gov/pubmed?term=morgellonsOutstanding article: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3257881/?tool=pubmed In addition to a spirochetal association, Morgellons disease is characterized by dermatological lesions associated with filament formation. Symptoms such as fatigue, neurological disorders, and joint pain suggest systemic involvement as well as dermopathy. Peripheral neuropathy, delayed capillary refill, abnormal Romberg’s sign, decreased body temperature, tachycardia, elevated proinflammatory markers, and elevated insulin levels are reported to be objective clinical evidence of the disease. .... Many physicians continue to equate Morgellons disease with delusions of parasitosis. It is unknown when this disease first appeared, but descriptions of delusions of parasitosis date back to the 1950s and 1960s. Some of these early cases mention “threads†or other debris coming from skin and failure of psychotherapy, and thus may have been cases of Morgellons disease. The 2006 report by Savely et al of a patient who had Morgellons disease for 20 years provides evidence that the disease dates to the mid 1980s. .... Patients with Morgellons disease frequently describe crawling, stinging, insect-like sensations, or sensations of “something trying to penetrate the skin from the inside outâ€. These sensations are accompanied by slow-healing skin lesions that appear spontaneously. Skin lesions can be minor to disfiguring and associated with fibrous material either in strands or balls of wound-up fibers. Granules have been observed that may demonstrate attached fibers. “Black specks†or “black oil†associated with lesions have been reported. Fibers may be present under unbroken skin as well as in lesions and scabs. .... Microangiomas found upon examination are reported. Healed lesions demonstrate hyperpigmented scar tissue. Patients report changes to their hair and changes to finger and toenails... the nail wall becomes raised, with inflammation and suppuration of tissue surrounding the nail resulting in nail plate destruction, separation of the nail, and defective growth at the nail matrix. Nail changes in Morgellons disease provide further evidence of spirochetal involvement, as noted above. Other resources http://www.lymeneteurope.org/news/ http://www.ncbi.nlm.nih.gov/pubmed/ http://www.theinfectiousdiseasesdaily.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2012 Report Share Posted April 9, 2012 Thank you, . I remember. Wasn't it a sibling and a parent you lost in one year? From: "Goldstein@..." <Goldstein@...> bird mites Sent: Monday, April 9, 2012 1:19 PM Subject: Re: credibility - Oh I am so sorry Kajay. These traumas came together for me last year. I can so relate. We were at the end of our tether all year. So hoping things smooth out for you and the healing energy come for you. No more traumas, just rest, relax and find a balance again. So important. I'm still decompressing, even while trying to recover from infections.Hugs, From: "Kajay109" <morjella@...>"bird mites@groupscom" <bird mites >Sent: Monday, April 9, 2012 10:15:51 AMSubject: credibility - Lots of new info at PubMed. If someone has already posted these search results, please forgive. I rarely check in these days. Death in family, loss of two friends, whole house flood, trauma etc. http://www.ncbi.nlm.nih.gov/pubmed?term=morgellonsOutstanding article: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3257881/?tool=pubmed In addition to a spirochetal association, Morgellons disease is characterized by dermatological lesions associated with filament formation. Symptoms such as fatigue, neurological disorders, and joint pain suggest systemic involvement as well as dermopathy. Peripheral neuropathy, delayed capillary refill, abnormal Romberg’s sign, decreased body temperature, tachycardia, elevated proinflammatory markers, and elevated insulin levels are reported to be objective clinical evidence of the disease. .... Many physicians continue to equate Morgellons disease with delusions of parasitosis. It is unknown when this disease first appeared, but descriptions of delusions of parasitosis date back to the 1950s and 1960s. Some of these early cases mention “threads†or other debris coming from skin and failure of psychotherapy, and thus may have been cases of Morgellons disease. The 2006 report by Savely et al of a patient who had Morgellons disease for 20 years provides evidence that the disease dates to the mid 1980s. .... Patients with Morgellons disease frequently describe crawling, stinging, insect-like sensations, or sensations of “something trying to penetrate the skin from the inside outâ€. These sensations are accompanied by slow-healing skin lesions that appear spontaneously. Skin lesions can be minor to disfiguring and associated with fibrous material either in strands or balls of wound-up fibers. Granules have been observed that may demonstrate attached fibers. “Black specks†or “black oil†associated with lesions have been reported. Fibers may be present under unbroken skin as well as in lesions and scabs. .... Microangiomas found upon examination are reported. Healed lesions demonstrate hyperpigmented scar tissue. Patients report changes to their hair and changes to finger and toenails... the nail wall becomes raised, with inflammation and suppuration of tissue surrounding the nail resulting in nail plate destruction, separation of the nail, and defective growth at the nail matrix. Nail changes in Morgellons disease provide further evidence of spirochetal involvement, as noted above. Other resources http://www.lymeneteurope.org/news/ http://www.ncbi.nlm.nih.gov/pubmed/ http://www.theinfectiousdiseasesdaily.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2012 Report Share Posted April 9, 2012 Two siblings, older sister, younger brother and father-in-law. It was just a lot to take in.From: "Kajay109" <morjella@...>bird mites Sent: Monday, April 9, 2012 6:32:19 PMSubject: Re: credibility - Thank you, . I remember. Wasn't it a sibling and a parent you lost in one year? From: "Goldstein@..." <Goldstein@...> bird mites Sent: Monday, April 9, 2012 1:19 PM Subject: Re: credibility - Oh I am so sorry Kajay. These traumas came together for me last year. I can so relate. We were at the end of our tether all year. So hoping things smooth out for you and the healing energy come for you. No more traumas, just rest, relax and find a balance again. So important. I'm still decompressing, even while trying to recover from infections.Hugs, From: "Kajay109" <morjella@...>"bird mites@groupscom" <bird mites >Sent: Monday, April 9, 2012 10:15:51 AMSubject: credibility - Lots of new info at PubMed. If someone has already posted these search results, please forgive. I rarely check in these days. Death in family, loss of two friends, whole house flood, trauma etc. http://www.ncbi.nlm.nih.gov/pubmed?term=morgellonsOutstanding article: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3257881/?tool=pubmed In addition to a spirochetal association, Morgellons disease is characterized by dermatological lesions associated with filament formation. Symptoms such as fatigue, neurological disorders, and joint pain suggest systemic involvement as well as dermopathy. Peripheral neuropathy, delayed capillary refill, abnormal Romberg’s sign, decreased body temperature, tachycardia, elevated proinflammatory markers, and elevated insulin levels are reported to be objective clinical evidence of the disease. .... Many physicians continue to equate Morgellons disease with delusions of parasitosis. It is unknown when this disease first appeared, but descriptions of delusions of parasitosis date back to the 1950s and 1960s. Some of these early cases mention “threads†or other debris coming from skin and failure of psychotherapy, and thus may have been cases of Morgellons disease. The 2006 report by Savely et al of a patient who had Morgellons disease for 20 years provides evidence that the disease dates to the mid 1980s. .... Patients with Morgellons disease frequently describe crawling, stinging, insect-like sensations, or sensations of “something trying to penetrate the skin from the inside outâ€. These sensations are accompanied by slow-healing skin lesions that appear spontaneously. Skin lesions can be minor to disfiguring and associated with fibrous material either in strands or balls of wound-up fibers. Granules have been observed that may demonstrate attached fibers. “Black specks†or “black oil†associated with lesions have been reported. Fibers may be present under unbroken skin as well as in lesions and scabs. .... Microangiomas found upon examination are reported. Healed lesions demonstrate hyperpigmented scar tissue. Patients report changes to their hair and changes to finger and toenails... the nail wall becomes raised, with inflammation and suppuration of tissue surrounding the nail resulting in nail plate destruction, separation of the nail, and defective growth at the nail matrix. Nail changes in Morgellons disease provide further evidence of spirochetal involvement, as noted above. Other resources http://www.lymeneteurope.org/news/ http://www.ncbi.nlm.nih.gov/pubmed/ http://www.theinfectiousdiseasesdaily.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2012 Report Share Posted April 10, 2012 Hi Kajay!So sorry to hear about your losses. Really hope things turn out better soon for you. HugsCecilia From: Kajay109 <morjella@...>"bird mites@groupscom" <bird mites > Sent: Monday, April 9, 2012 7:15 PMSubject: credibility - Lots of new info at PubMed. If someone has already posted these search results, please forgive. I rarely check in these days. Death in family, loss of two friends, whole house flood, trauma etc. http://www.ncbi.nlm.nih.gov/pubmed?term=morgellons Outstanding article: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3257881/?tool=pubmed In addition to a spirochetal association, Morgellons disease is characterized by dermatological lesions associated with filament formation. Symptoms such as fatigue, neurological disorders, and joint pain suggest systemic involvement as well as dermopathy. Peripheral neuropathy, delayed capillary refill, abnormal Romberg’s sign, decreased body temperature, tachycardia, elevated proinflammatory markers, and elevated insulin levels are reported to be objective clinical evidence of the disease. .... Many physicians continue to equate Morgellons disease with delusions of parasitosis. It is unknown when this disease first appeared, but descriptions of delusions of parasitosis date back to the 1950s and 1960s. Some of these early cases mention “threads†or other debris coming from skin and failure of psychotherapy, and thus may have been cases of Morgellons disease. The 2006 report by Savely et al of a patient who had Morgellons disease for 20 years provides evidence that the disease dates to the mid 1980s. .... Patients with Morgellons disease frequently describe crawling, stinging, insect-like sensations, or sensations of “something trying to penetrate the skin from the inside outâ€. These sensations are accompanied by slow-healing skin lesions that appear spontaneously. Skin lesions can be minor to disfiguring and associated with fibrous material either in strands or balls of wound-up fibers. Granules have been observed that may demonstrate attached fibers. “Black specks†or “black oil†associated with lesions have been reported. Fibers may be present under unbroken skin as well as in lesions and scabs. .... Microangiomas found upon examination are reported. Healed lesions demonstrate hyperpigmented scar tissue. Patients report changes to their hair and changes to finger and toenails... the nail wall becomes raised, with inflammation and suppuration of tissue surrounding the nail resulting in nail plate destruction, separation of the nail, and defective growth at the nail matrix. Nail changes in Morgellons disease provide further evidence of spirochetal involvement, as noted above. Other resources http://www.lymeneteurope.org/news/ http://www.ncbi.nlm.nih.gov/pubmed/ http://www.theinfectiousdiseasesdaily.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 Oh my gosh Kajay, there could not been any more catastrophies thrown at you.... my deepest sympathies for the horrible loss you are going through, stay strong girl, we do love you ! Von: Kajay109 <morjella@...>An: "bird mites@groupscom" <bird mites > Gesendet: 19:15 Montag, 9.April 2012Betreff: credibility - Lots of new info at PubMed. If someone has already posted these search results, please forgive. I rarely check in these days. Death in family, loss of two friends, whole house flood, trauma etc. http://www.ncbi.nlm.nih.gov/pubmed?term=morgellons Outstanding article: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3257881/?tool=pubmed In addition to a spirochetal association, Morgellons disease is characterized by dermatological lesions associated with filament formation. Symptoms such as fatigue, neurological disorders, and joint pain suggest systemic involvement as well as dermopathy. Peripheral neuropathy, delayed capillary refill, abnormal Romberg’s sign, decreased body temperature, tachycardia, elevated proinflammatory markers, and elevated insulin levels are reported to be objective clinical evidence of the disease. .... Many physicians continue to equate Morgellons disease with delusions of parasitosis. It is unknown when this disease first appeared, but descriptions of delusions of parasitosis date back to the 1950s and 1960s. Some of these early cases mention “threads†or other debris coming from skin and failure of psychotherapy, and thus may have been cases of Morgellons disease. The 2006 report by Savely et al of a patient who had Morgellons disease for 20 years provides evidence that the disease dates to the mid 1980s. .... Patients with Morgellons disease frequently describe crawling, stinging, insect-like sensations, or sensations of “something trying to penetrate the skin from the inside outâ€. These sensations are accompanied by slow-healing skin lesions that appear spontaneously. Skin lesions can be minor to disfiguring and associated with fibrous material either in strands or balls of wound-up fibers. Granules have been observed that may demonstrate attached fibers. “Black specks†or “black oil†associated with lesions have been reported. Fibers may be present under unbroken skin as well as in lesions and scabs. .... Microangiomas found upon examination are reported. Healed lesions demonstrate hyperpigmented scar tissue. Patients report changes to their hair and changes to finger and toenails... the nail wall becomes raised, with inflammation and suppuration of tissue surrounding the nail resulting in nail plate destruction, separation of the nail, and defective growth at the nail matrix. Nail changes in Morgellons disease provide further evidence of spirochetal involvement, as noted above. Other resources http://www.lymeneteurope.org/news/ http://www.ncbi.nlm.nih.gov/pubmed/ http://www.theinfectiousdiseasesdaily.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2012 Report Share Posted April 13, 2012 Thank you, Aggi, and I actually count my blessings.1. This disease made me wake up and start living my life instead of waiting for it to begin. I was 50 (a decade ago) when I made that decision. The disease did that for me.2. I have a wonderful family including my husband and our two dobies, my three brothers, my sister in law, and two nephews. 3. I have never had brain fog, which I attribute to the evening primrose oil I have taken regularly since I entered premenopause at 40 - 20 years ago, after I got this but before I knew what was going on. The evening primrose eliminated all menopausal symptoms - I cruised right through without any of the issues women normally have, plus realized that it also got rid of the allergies that had plagued me since I was 10. The evening primrose is the only thing I have identified that I have used regularly - and almost no one else in here has - and almost everyone else HAS had brain fog. It is circumstantial, but I think there is something to it.4. Not having brain fog has allowed me to keep a decent paying job that (some days) I can tolerate.5. My bosses allow some minor accommodations that make it possible for me to control my environment - pretty much.6. I live in a house that at least on the outside is beautiful even if it looks like a refugee camp on the inside, lol!7. I live in my home town and have a strong support base in my reunion crowd of several hundred.I can't even think right now of all the wonderful things that I DO have, in spite of or, really, at least in part, because of this disease. Like all of you, for instance. Bad reason, good outcome - I have made some wonderful lifelong friends here, and those friends, you included, Aggi, are some days much of my reason for living.Love you back :-)Kajay From: Aggi Assmann <aggi_assmann@...> "bird mites " <bird mites > Sent: Wednesday, April 11, 2012 9:33 AM Subject: Re: credibility - Oh my gosh Kajay, there could not been any more catastrophies thrown at you.... my deepest sympathies for the horrible loss you are going through, stay strong girl, we do love you ! Von: Kajay109 <morjella@...>An: "bird mites@groupscom" <bird mites > Gesendet: 19:15 Montag, 9.April 2012Betreff: credibility - Lots of new info at PubMed. If someone has already posted these search results, please forgive. I rarely check in these days. Death in family, loss of two friends, whole house flood, trauma etc. http://www.ncbi.nlm.nih.gov/pubmed?term=morgellons Outstanding article: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3257881/?tool=pubmed In addition to a spirochetal association, Morgellons disease is characterized by dermatological lesions associated with filament formation. Symptoms such as fatigue, neurological disorders, and joint pain suggest systemic involvement as well as dermopathy. Peripheral neuropathy, delayed capillary refill, abnormal Romberg’s sign, decreased body temperature, tachycardia, elevated proinflammatory markers, and elevated insulin levels are reported to be objective clinical evidence of the disease. .... Many physicians continue to equate Morgellons disease with delusions of parasitosis. It is unknown when this disease first appeared, but descriptions of delusions of parasitosis date back to the 1950s and 1960s. Some of these early cases mention “threads†or other debris coming from skin and failure of psychotherapy, and thus may have been cases of Morgellons disease. The 2006 report by Savely et al of a patient who had Morgellons disease for 20 years provides evidence that the disease dates to the mid 1980s. .... Patients with Morgellons disease frequently describe crawling, stinging, insect-like sensations, or sensations of “something trying to penetrate the skin from the inside outâ€. These sensations are accompanied by slow-healing skin lesions that appear spontaneously. Skin lesions can be minor to disfiguring and associated with fibrous material either in strands or balls of wound-up fibers. Granules have been observed that may demonstrate attached fibers. “Black specks†or “black oil†associated with lesions have been reported. Fibers may be present under unbroken skin as well as in lesions and scabs. .... Microangiomas found upon examination are reported. Healed lesions demonstrate hyperpigmented scar tissue. Patients report changes to their hair and changes to finger and toenails... the nail wall becomes raised, with inflammation and suppuration of tissue surrounding the nail resulting in nail plate destruction, separation of the nail, and defective growth at the nail matrix. Nail changes in Morgellons disease provide further evidence of spirochetal involvement, as noted above. Other resources http://www.lymeneteurope.org/news/ http://www.ncbi.nlm.nih.gov/pubmed/ http://www.theinfectiousdiseasesdaily.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2012 Report Share Posted April 13, 2012 You are blessed Kajay... we all are in many areas of our lives and it is a good practice to recall all these areas or some each day. It really helps with depression and brain function in general. I appreciate so much your openness Kajay. You are so honest and I value that. You have been a real inspiration to me. We have mini or major knock downs from all of this infection/bird mites/Morgellons/unknown pathogens, but then we get back up and start walking on the good red road once again until our maker calls us home. When we are called home is not up to us, so we live as fully as we can in the meantime, the best we know how.I value everyone on this site so much.((((Kajay)))) Love, From: "Kajay109" <morjella@...>bird mites Sent: Friday, April 13, 2012 1:36:17 PMSubject: Re: credibility - Thank you, Aggi, and I actually count my blessings.1. This disease made me wake up and start living my life instead of waiting for it to begin. I was 50 (a decade ago) when I made that decision. The disease did that for me.2. I have a wonderful family including my husband and our two dobies, my three brothers, my sister in law, and two nephews. 3. I have never had brain fog, which I attribute to the evening primrose oil I have taken regularly since I entered premenopause at 40 - 20 years ago, after I got this but before I knew what was going on. The evening primrose eliminated all menopausal symptoms - I cruised right through without any of the issues women normally have, plus realized that it also got rid of the allergies that had plagued me since I was 10. The evening primrose is the only thing I have identified that I have used regularly - and almost no one else in here has - and almost everyone else HAS had brain fog. It is circumstantial, but I think there is something to it.4. Not having brain fog has allowed me to keep a decent paying job that (some days) I can tolerate.5. My bosses allow some minor accommodations that make it possible for me to control my environment - pretty much.6. I live in a house that at least on the outside is beautiful even if it looks like a refugee camp on the inside, lol!7. I live in my home town and have a strong support base in my reunion crowd of several hundred.I can't even think right now of all the wonderful things that I DO have, in spite of or, really, at least in part, because of this disease. Like all of you, for instance. Bad reason, good outcome - I have made some wonderful lifelong friends here, and those friends, you included, Aggi, are some days much of my reason for living.Love you back :-)Kajay From: Aggi Assmann <aggi_assmann@...> "bird mites " <bird mites > Sent: Wednesday, April 11, 2012 9:33 AM Subject: Re: credibility - Oh my gosh Kajay, there could not been any more catastrophies thrown at you.... my deepest sympathies for the horrible loss you are going through, stay strong girl, we do love you ! Von: Kajay109 <morjella@...>An: "bird mites@groupscom" <bird mites > Gesendet: 19:15 Montag, 9.April 2012Betreff: credibility - Lots of new info at PubMed. If someone has already posted these search results, please forgive. I rarely check in these days. Death in family, loss of two friends, whole house flood, trauma etc. http://www.ncbi.nlm.nih.gov/pubmed?term=morgellons Outstanding article: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3257881/?tool=pubmed In addition to a spirochetal association, Morgellons disease is characterized by dermatological lesions associated with filament formation. Symptoms such as fatigue, neurological disorders, and joint pain suggest systemic involvement as well as dermopathy. Peripheral neuropathy, delayed capillary refill, abnormal Romberg’s sign, decreased body temperature, tachycardia, elevated proinflammatory markers, and elevated insulin levels are reported to be objective clinical evidence of the disease. .... Many physicians continue to equate Morgellons disease with delusions of parasitosis. It is unknown when this disease first appeared, but descriptions of delusions of parasitosis date back to the 1950s and 1960s. Some of these early cases mention “threads†or other debris coming from skin and failure of psychotherapy, and thus may have been cases of Morgellons disease. The 2006 report by Savely et al of a patient who had Morgellons disease for 20 years provides evidence that the disease dates to the mid 1980s. .... Patients with Morgellons disease frequently describe crawling, stinging, insect-like sensations, or sensations of “something trying to penetrate the skin from the inside outâ€. These sensations are accompanied by slow-healing skin lesions that appear spontaneously. Skin lesions can be minor to disfiguring and associated with fibrous material either in strands or balls of wound-up fibers. Granules have been observed that may demonstrate attached fibers. “Black specks†or “black oil†associated with lesions have been reported. Fibers may be present under unbroken skin as well as in lesions and scabs. .... Microangiomas found upon examination are reported. Healed lesions demonstrate hyperpigmented scar tissue. Patients report changes to their hair and changes to finger and toenails... the nail wall becomes raised, with inflammation and suppuration of tissue surrounding the nail resulting in nail plate destruction, separation of the nail, and defective growth at the nail matrix. Nail changes in Morgellons disease provide further evidence of spirochetal involvement, as noted above. Other resources http://www.lymeneteurope.org/news/ http://www.ncbi.nlm.nih.gov/pubmed/ http://www.theinfectiousdiseasesdaily.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2012 Report Share Posted April 14, 2012 Thank you, From: "Goldstein@..." <Goldstein@...> bird mites Sent: Friday, April 13, 2012 6:56 PM Subject: Re: credibility - You are blessed Kajay... we all are in many areas of our lives and it is a good practice to recall all these areas or some each day. It really helps with depression and brain function in general. I appreciate so much your openness Kajay. You are so honest and I value that. You have been a real inspiration to me. We have mini or major knock downs from all of this infection/bird mites/Morgellons/unknown pathogens, but then we get back up and start walking on the good red road once again until our maker calls us home. When we are called home is not up to us, so we live as fully as we can in the meantime, the best we know how.I value everyone on this site so much.((((Kajay)))) Love, From: "Kajay109" <morjella@...>To: bird mites Sent: Friday, April 13, 2012 1:36:17 PMSubject: Re: credibility - Thank you, Aggi, and I actually count my blessings.1. This disease made me wake up and start living my life instead of waiting for it to begin. I was 50 (a decade ago) when I made that decision. The disease did that for me.2. I have a wonderful family including my husband and our two dobies, my three brothers, my sister in law, and two nephews. 3. I have never had brain fog, which I attribute to the evening primrose oil I have taken regularly since I entered premenopause at 40 - 20 years ago, after I got this but before I knew what was going on. The evening primrose eliminated all menopausal symptoms - I cruised right through without any of the issues women normally have, plus realized that it also got rid of the allergies that had plagued me since I was 10. The evening primrose is the only thing I have identified that I have used regularly - and almost no one else in here has - and almost everyone else HAS had brain fog. It is circumstantial, but I think there is something to it.4. Not having brain fog has allowed me to keep a decent paying job that (some days) I can tolerate.5. My bosses allow some minor accommodations that make it possible for me to control my environment - pretty much.6. I live in a house that at least on the outside is beautiful even if it looks like a refugee camp on the inside, lol!7. I live in my home town and have a strong support base in my reunion crowd of several hundred.I can't even think right now of all the wonderful things that I DO have, in spite of or, really, at least in part, because of this disease. Like all of you, for instance. Bad reason, good outcome - I have made some wonderful lifelong friends here, and those friends, you included, Aggi, are some days much of my reason for living.Love you back :-)Kajay From: Aggi Assmann <aggi_assmann@...> "bird mites " <bird mites > Sent: Wednesday, April 11, 2012 9:33 AM Subject: Re: credibility - Oh my gosh Kajay, there could not been any more catastrophies thrown at you.... my deepest sympathies for the horrible loss you are going through, stay strong girl, we do love you ! Von: Kajay109 <morjella@...>An: "bird mites@groupscom" <bird mites > Gesendet: 19:15 Montag, 9.April 2012Betreff: credibility - Lots of new info at PubMed. If someone has already posted these search results, please forgive. I rarely check in these days. Death in family, loss of two friends, whole house flood, trauma etc. http://www.ncbi.nlm.nih.gov/pubmed?term=morgellons Outstanding article: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3257881/?tool=pubmed In addition to a spirochetal association, Morgellons disease is characterized by dermatological lesions associated with filament formation. Symptoms such as fatigue, neurological disorders, and joint pain suggest systemic involvement as well as dermopathy. Peripheral neuropathy, delayed capillary refill, abnormal Romberg’s sign, decreased body temperature, tachycardia, elevated proinflammatory markers, and elevated insulin levels are reported to be objective clinical evidence of the disease. .... Many physicians continue to equate Morgellons disease with delusions of parasitosis. It is unknown when this disease first appeared, but descriptions of delusions of parasitosis date back to the 1950s and 1960s. Some of these early cases mention “threads†or other debris coming from skin and failure of psychotherapy, and thus may have been cases of Morgellons disease. The 2006 report by Savely et al of a patient who had Morgellons disease for 20 years provides evidence that the disease dates to the mid 1980s. .... Patients with Morgellons disease frequently describe crawling, stinging, insect-like sensations, or sensations of “something trying to penetrate the skin from the inside outâ€. These sensations are accompanied by slow-healing skin lesions that appear spontaneously. Skin lesions can be minor to disfiguring and associated with fibrous material either in strands or balls of wound-up fibers. Granules have been observed that may demonstrate attached fibers. “Black specks†or “black oil†associated with lesions have been reported. Fibers may be present under unbroken skin as well as in lesions and scabs. .... Microangiomas found upon examination are reported. Healed lesions demonstrate hyperpigmented scar tissue. Patients report changes to their hair and changes to finger and toenails... the nail wall becomes raised, with inflammation and suppuration of tissue surrounding the nail resulting in nail plate destruction, separation of the nail, and defective growth at the nail matrix. Nail changes in Morgellons disease provide further evidence of spirochetal involvement, as noted above. Other resources http://www.lymeneteurope.org/news/ http://www.ncbi.nlm.nih.gov/pubmed/ http://www.theinfectiousdiseasesdaily.com/ Quote Link to comment Share on other sites More sharing options...
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