Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 This doctor said he has had people label his patients, "Oh, they are just a hypochondriac." Then he told me, "Something is causing them to be a hypochondriac. What is it?" From: "Goldstein@..." <Goldstein@...> bird mites Sent: Wednesday, April 25, 2012 3:45 PM Subject: Re: LLMD - First visit trip report + partial labs So true. I truly believe what Dr. Klinghardt says... and others. In 1986 I came down with Lyme Disease. At the same time I also had mercury toxicity from the fillings in my teeth. I saw two wonderful MDs who were driven out of the State of California that told me I needed to get the amalgam "silver" (mercury) fillings out of my teeth. They sent me to a Dr. Dahler from Holland who lived nearby and he removed all of the fillings accordingly. Dr. Dahler had had cancer while living in Holland, had his fillings removed and the cancer went away. He was later driven out of California too. I noted dramatic changes after those mercury fillings were removed, all positive. I am so grateful that I've been able to see cutting edge doctors, not doctors who stick you in a box and throw up their hands when the task becomes too big to tackle.My point is that many physical things such as chemicals and infection can and do cause mental illness--including electrosmog.From: "Aandraya" <aandraya@...>bird mites Sent: Wednesday, April 25, 2012 11:23:25 AMSubject: Re: LLMD - First visit trip report + partial labs Most people with mental illness respond to antibiotic treatment because they have chronic infections that have affected the brain. Dr. Klinghardt and European psychiatrists are on the cutting edge of this area. Lyme is often one of the pathogens.Aandraya On Apr 25, 2012, at 10:48 AM, Aggi Assmann <aggi_assmann@...> wrote: Clinical potential of minocycline for schizophrenia. Miyaoka T. Source Department of Psychiatry, Shimane University School of Medicine, Izumo, Japan. miyanyan@... Abstract Minocycline, an antibiotic of the tetracycline family, has been shown to display neurorestorative or neuroprotective properties in various models of neurodegenerative diseases. In particular, it has been shown to delay motor alterations, inflammation and apoptosis in models of Huntington's disease, amyotrophic lateral sclerosis and Parkinson's disease. Despite controversies about its efficacy, the relative safety and tolerability of minocycline have led to various clinical trials. Recently, we reported the antipsychotic effects of minocycline in patients with schizophrenia. In a pilot investigation, we administered minocycline as an open-label adjunct to antipsychotic medication to patients with schizophrenia. The results of this trial suggested that minocycline might be a safe and effective adjunct to antipsychotic medications, and that augmentation with minocycline may prove to be a viable strategy for "boosting" antipsychotic efficacy and for treating schizophrenia. The present review summarizes the available data supporting the clinical testing of minocycline for patients with schizophrenia. In addition, we extend our discussion to the potential applications of minocycline for combining this treatment with cellular and molecular therapy Von: "Goldstein@..." <Goldstein@...>An: bird mites Gesendet: 17:40 Mittwoch, 25.April 2012Betreff: Re: LLMD - First visit trip report + partial labs I looked it up and I didn't see anything about schizophrenia. What I read said abx is broad spectrum, treats bacterial infections, acne, etc. From: "Kajay109" <morjella@...>bird mites Sent: Wednesday, April 25, 2012 8:34:04 AMSubject: Re: LLMD - First visit trip report + partial labs If it works, I really don't care what's on the label, right :-) ?Thanks, Aggi! From: Aggi Assmann <aggi_assmann@...>"bird mites " <bird mites > Sent: Wednesday, April 25, 2012 11:20 AMSubject: Re: LLMD - First visit trip report + partial labs Shocking Kajay, you are not crazy ?1? ;-) You do realise that Minocycline is for schizophrenia though ? I do hope you got that for your depression only! Very interesting info indeed, thank you so much for this ! Hug hug Von: Kajay109 <morjella@...>An: "bird mites@groupscom" <bird mites >; "GeorgiaLyme " <GeorgiaLyme > Gesendet: 17:09 Mittwoch, 25.April 2012Betreff: LLMD - First visit trip report + partial labs [2 Attachments] I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now.I. Symptoms A. LLMD asked what symptoms brought me to him: Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) Night sweats (always a sign of infection; possible causes staph, tuberculosis) Restless legs syndrome (related, I think) Severe spasms in feet, sometimes traveling up legs to body - terrifying B. LLMD asked me if these symptoms are or have been present: Brain fog (no) Headaches (no) Chronic fatigue (no) Muscular aches (no) or spasms (yes) Overall aches (no) Sinus issues (yes until F-5 Mar 2011) Lesions (yes until F-5 Mar 2011) Depression (yes, in 1997) Bulls eye rash (yes, in 90's and again in 2009)II. Neuro-Muscular Tests A. Standing: He had me walk three different ways. He had me stand and allow him to just observe my face (tells a doc a lot about us) He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. B. Sitting: He had me push/pull with feet, quads, arms, shoulders etc. He had me stick out my tongue and relax it. I felt it spasming! "You have Twelfth Nerve Palsy," he said, and at that point he diagnosed Lyme. III. Causes. A. Pruritis. Possible causes include staph, yeast, mycoplasma, leprosy, others. B. Night Sweats. 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. "Capsules." Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. C. Restless Legs Syndrome. Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). D. Severe Spasms in Feet. Discussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. E. Bulls Eye Rash. Occurs only in small percentage of cases. IV. Co-Infections. Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. A. Babesiosis. Does not believe I have this. B. Bartonella. Can't remember if he thinks I might or might not have this.V. Antibiotics. Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme.VI. About Lyme. 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. 20% of ticks carry Lyme - not just deer ticks. For every five ticks that bite a turkey hunter, one carries Lyme. 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. Ticks, like snakes, are active most of the year, if not all. VII. Diagnosis. Diagnosis of Twelfth Nerve Palsy confirms Lyme. Immune system healthy.VIII. Prescription. Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. IX. Conclusion. The most important thing my new LLMD told me today is that Lyme is curable. He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. That's a relief :-)Will post again when I have more news.Kajay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 , I am not sure what "high titers" is? Also, what is the FL number after Iver?Thx,Kajay From: "Goldstein@..." <Goldstein@...> bird mites Sent: Wednesday, April 25, 2012 3:50 PM Subject: Re: Re: LLMD - First visit trip report + partial labs Here is what my LLMD just changed for me. I just got off the phone with her. She put me on some new drugs (old as I've been on a few of these 3 years ago)...Here are the changes:Mycoplasma (I had high titers from Lab Corp and this can go into the lungs) -ClarithromycinBartonella - Doxy & Rifampin start again, add in CiproShe wants me to start the Nattokinase and InterfaseShe wants to see what I do from those 4 antibiotics and Nattokinase and InterfaseShe also wants me to get Itraconazole - I had been on Diflucan--didn't seem to do much, but it also attacks Lyme.She said to stop Bicillin for now and I just finished 10 days of Metronidazole (Flagyl).If things don't improve she will add Ivermectin (I've been on before) for FL1953.So that's my story Kajay. I so wish you the best of everything with this stuff you have!From: "Kajay109" <morjella@...>bird mites Sent: Wednesday, April 25, 2012 12:42:26 PMSubject: Re: Re: LLMD - First visit trip report + partial labs Hi, , Thank you for the kind words :-)What he said is that the Minocycline will not single out the Lyme and that it will also attack some co-infections.He didn't prescribe any herbals, it isn't his area of expertise. However, he has a high success rate, apparently.Even if they tell me tomorrow that I cannot share his name, I am going to share everything I learn. As always, I am going to TRY to distinguish between what I am certain he said and what I am guessing about. That is why I think it is important to share the documentation, because some of you will see in it things that I would not think to mention. Hopefully at least that will be helpful to those who want the information.Kajay From: mitesbegone <no_reply > bird mites Sent: Wednesday, April 25, 2012 12:52 PM Subject: Re: LLMD - First visit trip report + partial labs Does it seem to be working for you ? > > This is such valuable information Kajay. Thank you for giving us the update on your progress. So happy to hear you went to a LLMD to get treated. You are very thorough too in what you sent, including attachments! I'm impressed! I am also a believer that information from others helps us enormously. I talk to my LLMD today about my ongoing issues and where to go from here. I don't know Minocycline... have not used it. Sounds like he will treat Lyme first and not co-infections (maybe you don't have them...). My doc started on all of them at once and still don't know how sound that was. She gave me scripts for meds and where to buy herbals. > > > > > LLMD - First visit trip report + partial labs [2 Attachments] > > [ Attachment(s) from Kajay109 included below] > > > > > > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > I. Symptoms > > A. LLMD asked what symptoms brought me to him: > > Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) > Night sweats (always a sign of infection; possible causes staph, tuberculosis) > Restless legs syndrome (related, I think) > Severe spasms in feet, sometimes traveling up legs to body - terrifying > > B. LLMD asked me if these symptoms are or have been present: > > Brain fog (no) > Headaches (no) > Chronic fatigue (no) > Muscular aches (no) or spasms (yes) > Overall aches (no) > Sinus issues (yes until F-5 Mar 2011) > Lesions (yes until F-5 Mar 2011) > Depression (yes, in 1997) > Bulls eye rash (yes, in 90's and again in 2009) > > II. Neuro-Muscular Tests > > A. Standing: > He had me walk three different ways. > He had me stand and allow him to just observe my face (tells a doc a lot about us) > He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. > B. Sitting: > He had me push/pull with feet, quads, arms, shoulders etc. > He had me stick out my tongue and relax it. I felt it spasming! " You have Twelfth Nerve Palsy ," he said, and at that point he diagnosed Lyme . > > III. Causes . > > A. Pruritis . P ossible causes include staph, yeast, mycoplasma, leprosy, others . > B. Night Sweats . 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. " Capsules ." Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. > C. Restless Legs Syndrome . Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). > D. Severe Spasms in Feet . D iscussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. > E. Bulls Eye Rash . Occurs only in small percentage of cases. > > IV. Co-Infections . Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. > A. Babesiosis . Does not believe I have this. > B. Bartonella . Can't remember if he thinks I might or might not have this. > > V. Antibiotics . Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > VI. About Lyme . > > > • 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > • Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > • 20% of ticks carry Lyme - not just deer ticks. > • For every five ticks that bite a turkey hunter, one carries Lyme. > • 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > • Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > • Ticks, like snakes, are active most of the year, if not all. > > VII. Diagnosis . > > > • Diagnosis of Twelfth Nerve Palsy confirms Lyme. > • Immune system healthy. > > VIII. Prescription . Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > > > > > > > > > IX. Conclusion . The most important thing my new LLMD told me today is that Lyme is curable . He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > That's a relief :-) > > Will post again when I have more news. > > Kajay > > > > > Attachment(s) from Kajay109 > > 2 of 2 Photo(s) > > > > 2012 > 2012 > > 2011 > 2011 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 So very sorry to hear about him. I know how terrible that disease is. So tragic it can't be controlled. So many end up homeless. God bless, Terry > > Many schizophrenics have terrible infections too that have possibly gone to the brain. I had a nephew with schizophrenia who passed maybe 6 years ago... he lived in terrible conditions. He was in his 40's - God rest his soul. > > Re: LLMD - First visit trip report + partial labs > > > > > > > Shocking Kajay, you are not crazy ?1? ;-) > > You do realise that Minocycline is for schizophrenia though ? > I do hope you got that for your depression only! > > Very interesting info indeed, thank you so much for this ! > > Hug hug > > > > > > Von: Kajay109 <morjella@...> > An: " bird mites@groupscom " <bird mites >; " GeorgiaLyme " <GeorgiaLyme > > Gesendet: 17:09 Mittwoch, 25.April 2012 > Betreff: LLMD - First visit trip report + partial labs [2 Attachments] > > > > > > > > > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > I. Symptoms > > A. LLMD asked what symptoms brought me to him: > > Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) > Night sweats (always a sign of infection; possible causes staph, tuberculosis) > Restless legs syndrome (related, I think) > Severe spasms in feet, sometimes traveling up legs to body - terrifying > > B. LLMD asked me if these symptoms are or have been present: > > Brain fog (no) > Headaches (no) > Chronic fatigue (no) > Muscular aches (no) or spasms (yes) > Overall aches (no) > Sinus issues (yes until F-5 Mar 2011) > Lesions (yes until F-5 Mar 2011) > Depression (yes, in 1997) > Bulls eye rash (yes, in 90's and again in 2009) > > II. Neuro-Muscular Tests > > A. Standing: > He had me walk three different ways. > He had me stand and allow him to just observe my face (tells a doc a lot about us) > He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. > B. Sitting: > He had me push/pull with feet, quads, arms, shoulders etc. > He had me stick out my tongue and relax it. I felt it spasming! " You have Twelfth Nerve Palsy , " he said, and at that point he diagnosed Lyme . > > III. Causes . > > A. Pruritis . P ossible causes include staph, yeast, mycoplasma, leprosy, others . > B. Night Sweats . 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. " Capsules . " Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. > C. Restless Legs Syndrome . Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). > D. Severe Spasms in Feet . D iscussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. > E. Bulls Eye Rash . Occurs only in small percentage of cases. > > IV. Co-Infections . Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. > A. Babesiosis . Does not believe I have this. > B. Bartonella . Can't remember if he thinks I might or might not have this. > > V. Antibiotics . Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > VI. About Lyme . > > > • 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > • Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > • 20% of ticks carry Lyme - not just deer ticks. > • For every five ticks that bite a turkey hunter, one carries Lyme. > • 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > • Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > • Ticks, like snakes, are active most of the year, if not all. > > VII. Diagnosis . > > > • Diagnosis of Twelfth Nerve Palsy confirms Lyme. > • Immune system healthy. > > VIII. Prescription . Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > > > > > > > > > IX. Conclusion . The most important thing my new LLMD told me today is that Lyme is curable . He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > That's a relief :-) > > Will post again when I have more news. > > Kajay > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 Kayjay, would you mind telling me about how long you battled them? And then how long you have battled the post infections? Just trying to get a feel for what I am up against. Many thanks, Terry > > Also, Aggi, I haven't been depressed for years! Not since I took my life back from these little rascals! > > ;-) > > > >  > ================ > Clinical potential of minocycline for schizophrenia. > Miyaoka T. > Source > Department of Psychiatry, Shimane University School of Medicine, Izumo, Japan. miyanyan@... > Abstract > Minocycline, an antibiotic of the tetracycline family, has been shown to display neurorestorative or neuroprotective properties in various models of neurodegenerative diseases. In particular, it has been shown to delay motor alterations, inflammation and apoptosis in models of Huntington's disease, amyotrophic lateral sclerosis and Parkinson's disease. Despite controversies about its efficacy, the relative safety and tolerability of minocycline have led to various clinical trials. Recently, we reported the antipsychotic effects of minocycline in patients with schizophrenia. In a pilot investigation, we administered minocycline as an open-label adjunct to antipsychotic medication to patients with schizophrenia. The results of this trial suggested that minocycline might be a safe and effective adjunct to antipsychotic medications, and that augmentation with minocycline may prove to be a viable strategy for " boosting " antipsychotic efficacy and for treating > schizophrenia. The present review summarizes the available data supporting the clinical testing of minocycline for patients with schizophrenia. In addition, we extend our discussion to the potential applications of minocycline for combining this treatment with cellular and molecular therapy > > > Von: " Goldstein@... " <Goldstein@...> > An: bird mites > Gesendet: 17:40 Mittwoch, 25.April 2012 > Betreff: Re: LLMD - First visit trip report + partial labs > > >  > I looked it up and I didn't see anything about schizophrenia.  What I read said abx is broad spectrum, treats bacterial infections, acne, etc. > > From: " Kajay109 " <morjella@...> > bird mites > Sent: Wednesday, April 25, 2012 8:34:04 AM > Subject: Re: LLMD - First visit trip report + partial labs > > > > > If it works, I really don't care what's on the label, right :-) ? > Thanks, Aggi! > > From: Aggi Assmann <aggi_assmann@...> > " bird mites " <bird mites > > Sent: Wednesday, April 25, 2012 11:20 AM > Subject: Re: LLMD - First visit trip report + partial labs > > >  > Shocking Kajay, you are not crazy ?1? ;-) >  > You do realise that Minocycline is for schizophrenia though ? > I do hope you got that for your depression only! >  > Very interesting info indeed, thank you so much for this ! >  > Hug hug >  >  > Von: Kajay109 <morjella@...> > An: " bird mites@groupscom " <bird mites >; " GeorgiaLyme " <GeorgiaLyme > > Gesendet: 17:09 Mittwoch, 25.April 2012 > Betreff: LLMD - First visit trip report + partial labs [2 Attachments] > > >  > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > I. Symptoms > >    A. LLMD asked what symptoms brought me to him: > >               Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) >                Night sweats (always a sign of infection; possible causes staph, tuberculosis) >                Restless legs syndrome (related, I think) >                Severe spasms in feet, sometimes traveling up legs to body - terrifying >    >    B. LLMD asked me if these symptoms are or have been present: > >               Brain fog (no) >               Headaches(no) >                Chronic fatigue(no) >               Muscular aches(no) or spasms (yes) >                Overall aches(no) >               Sinus issues (yes until F-5 Mar 2011) >               Lesions (yes until F-5 Mar 2011) >               Depression (yes, in 1997) >               Bulls eye rash(yes, in 90's and again in 2009) > > II. Neuro-Muscular Tests > >    A.   Standing: >                He had me walk three different ways. >              He had me stand and allow him to just observe my face (tells a doc a lot about us) >               He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. >    B.   Sitting: >               He had me push/pull with feet, quads, arms, shoulders etc. >             He had me stick out my tongue and relax it. I felt it spasming! " You have Twelfth Nerve Palsy, " he said, and at that point he diagnosed Lyme. > > III. Causes. > >    A.   Pruritis. Possible causes include staph, yeast, mycoplasma, leprosy, others. >    B.   Night Sweats. 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. " Capsules. " Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. >    C.   Restless Legs Syndrome. Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). >    D.   Severe Spasms in Feet. Discussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. >    E.   Bulls Eye Rash. Occurs only in small percentage of cases. > > IV. Co-Infections. Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. >    A.   Babesiosis. Does not believe I have this. >    B.   Bartonella. Can't remember if he thinks I might or might not have this. > > V.   Antibiotics. Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > VI.  About Lyme. > > * 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > > * Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > * 20% of ticks carry Lyme - not just deer ticks. > * For every five ticks that bite a turkey hunter, one carries Lyme. > * 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > * Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > * Ticks, like snakes, are active most of the year, if not all. VII. Diagnosis. > > * Diagnosis of Twelfth Nerve Palsy confirms Lyme. > * Immune system healthy.VIII. Prescription. Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > IX. Conclusion. The most important thing my new LLMD told me today is that Lyme is curable. He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > That's a relief :-) > > Will post again when I have more news. > > Kajay > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 Interesting !We spoke about the Natokinase couple of days back.Was it Aandraya or Kajay who mentioned it for the problem of biofilm? Did you tell your LLMD, or was it her own suggestion? Von: "Goldstein@..." <Goldstein@...>An: bird mites Gesendet: 21:50 Mittwoch, 25.April 2012Betreff: Re: Re: LLMD - First visit trip report + partial labs Here is what my LLMD just changed for me. I just got off the phone with her. She put me on some new drugs (old as I've been on a few of these 3 years ago)... Here are the changes: Mycoplasma (I had high titers from Lab Corp and this can go into the lungs) -Clarithromycin Bartonella - Doxy & Rifampin start again, add in Cipro She wants me to start the Nattokinase and Interfase She wants to see what I do from those 4 antibiotics and Nattokinase and Interfase She also wants me to get Itraconazole - I had been on Diflucan--didn't seem to do much, but it also attacks Lyme. She said to stop Bicillin for now and I just finished 10 days of Metronidazole (Flagyl). If things don't improve she will add Ivermectin (I've been on before) for FL1953. So that's my story Kajay. I so wish you the best of everything with this stuff you have! From: "Kajay109" <morjella@...>bird mites Sent: Wednesday, April 25, 2012 12:42:26 PMSubject: Re: Re: LLMD - First visit trip report + partial labs Hi, , Thank you for the kind words :-) What he said is that the Minocycline will not single out the Lyme and that it will also attack some co-infections. He didn't prescribe any herbals, it isn't his area of expertise. However, he has a high success rate, apparently. Even if they tell me tomorrow that I cannot share his name, I am going to share everything I learn. As always, I am going to TRY to distinguish between what I am certain he said and what I am guessing about. That is why I think it is important to share the documentation, because some of you will see in it things that I would not think to mention. Hopefully at least that will be helpful to those who want the information. Kajay From: mitesbegone <no_reply >bird mites Sent: Wednesday, April 25, 2012 12:52 PMSubject: Re: LLMD - First visit trip report + partial labs Does it seem to be working for you ?>> This is such valuable information Kajay. Thank you for giving us the update on your progress. So happy to hear you went to a LLMD to get treated. You are very thorough too in what you sent, including attachments! I'm impressed! I am also a believer that information from others helps us enormously. I talk to my LLMD today about my ongoing issues and where to go from here. I don't know Minocycline... have not used it. Sounds like he will treat Lyme first and not co-infections (maybe you don't have them...). My doc started on all of them at once and still don't know how sound that was. She gave me scripts for meds and where to buy herbals. > > > > > ----- Original Message -----> From: "Kajay109" <morjella@...> > "bird mites@groupscom" <bird mites >, GeorgiaLyme > Sent: Wednesday, April 25, 2012 8:09:20 AM > Subject: LLMD - First visit trip report + partial labs [2 Attachments] > > [ Attachment(s) from Kajay109 included below] > > > > > > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > I. Symptoms > > A. LLMD asked what symptoms brought me to him: > > Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) > Night sweats (always a sign of infection; possible causes staph, tuberculosis) > Restless legs syndrome (related, I think) > Severe spasms in feet, sometimes traveling up legs to body - terrifying > > B. LLMD asked me if these symptoms are or have been present: > > Brain fog (no) > Headaches (no) > Chronic fatigue (no) > Muscular aches (no) or spasms (yes) > Overall aches (no) > Sinus issues (yes until F-5 Mar 2011) > Lesions (yes until F-5 Mar 2011) > Depression (yes, in 1997) > Bulls eye rash (yes, in 90's and again in 2009) > > II. Neuro-Muscular Tests > > A. Standing: > He had me walk three different ways. > He had me stand and allow him to just observe my face (tells a doc a lot about us) > He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. > B. Sitting: > He had me push/pull with feet, quads, arms, shoulders etc. > He had me stick out my tongue and relax it. I felt it spasming! " You have Twelfth Nerve Palsy ," he said, and at that point he diagnosed Lyme . > > III. Causes . > > A. Pruritis . P ossible causes include staph, yeast, mycoplasma, leprosy, others . > B. Night Sweats . 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. " Capsules ." Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. > C. Restless Legs Syndrome . Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). > D. Severe Spasms in Feet . D iscussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. > E. Bulls Eye Rash . Occurs only in small percentage of cases. > > IV. Co-Infections . Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. > A. Babesiosis . Does not believe I have this. > B. Bartonella . Can't remember if he thinks I might or might not have this. > > V. Antibiotics . Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > VI. About Lyme . > > > • 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > • Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > • 20% of ticks carry Lyme - not just deer ticks. > • For every five ticks that bite a turkey hunter, one carries Lyme. > • 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > • Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > • Ticks, like snakes, are active most of the year, if not all. > > VII. Diagnosis . > > > • Diagnosis of Twelfth Nerve Palsy confirms Lyme. > • Immune system healthy. > > VIII. Prescription . Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > > > > > > > > > IX. Conclusion . The most important thing my new LLMD told me today is that Lyme is curable . He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > That's a relief :-) > > Will post again when I have more news. > > Kajay > > > > > Attachment(s) from Kajay109 > > 2 of 2 Photo(s) > > > > 2012> 2012 > > 2011> 2011> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 I have RLS as well, which can be so irritating when trying to sleep. But it isn't chronic thankfully. Just intermittent hits. About once or twice a month for a couple of days each time. Terry > > He said I probably have co-infections, but he wants to hit the Lyme hard first and said that the Minocycline would probably take out many of the co-issues as well. After reading what Aggi posted about it... > > " Minocycline, an antibiotic of > the tetracycline family, has been shown to display neurorestorative or > neuroprotective properties in various models of neurodegenerative > diseases. In particular, it has been shown to delay motor alterations, > inflammation and apoptosis in models of Huntington's disease, > amyotrophic lateral sclerosis and Parkinson's disease. Despite > controversies about its efficacy, the relative safety and tolerability > of minocycline... " > > I am hopeful that it will not only address the Lyme, but my most obvious and troublesome side effect, Restless Legs Syndrome, for which I took a Parkinson's med for 15 years. It is also encouraging that it is considered relatively safe and tolerable. > > Thank you, Aggi! > > Kajay > > > > ________________________________ > From: " Goldstein@... " <Goldstein@...> > bird mites > Sent: Wednesday, April 25, 2012 11:38 AM > Subject: Re: LLMD - First visit trip report + partial labs > > >  > This is such valuable information Kajay.  Thank you for giving us the update on your progress.  So happy to hear you went to a LLMD to get treated.  You are very thorough too in what you sent, including attachments!  I'm impressed!  I am also a believer that information from others helps us enormously.  I talk to my LLMD today about my ongoing issues and where to go from here.  I don't know Minocycline... have not used it.  Sounds like he will treat Lyme first and not co-infections (maybe you don't have them...).  My doc started on all of them at once and still don't know how sound that was.  She gave me scripts for meds and where to buy herbals.  > > > > ________________________________ > From: " Kajay109 " <morjella@...> > " bird mites@groupscom " <bird mites >, GeorgiaLyme > Sent: Wednesday, April 25, 2012 8:09:20 AM > Subject: LLMD - First visit trip report + partial labs [2 Attachments] > > [Attachment(s) from Kajay109 included below] > > > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > I. Symptoms > >    A. LLMD asked what symptoms brought me to him: > >               Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) >                Night sweats (always a sign of infection; possible causes staph, tuberculosis) >                Restless legs syndrome (related, I think) >                Severe spasms in feet, sometimes traveling up legs to body - terrifying >    >    B. LLMD asked me if these symptoms are or have been present: > >               Brain fog (no) >               Headaches(no) >                Chronic fatigue(no) >               Muscular aches(no) or spasms (yes) >                Overall aches(no) >               Sinus issues (yes until F-5 Mar 2011) >               Lesions (yes until F-5 Mar 2011) >               Depression (yes, in 1997) >               Bulls eye rash(yes, in 90's and again in 2009) > > II. Neuro-Muscular Tests > >    A.   Standing: >                He had me walk three different ways. >              He had me stand and allow him to just observe my face (tells a doc a lot about us) >               He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. >    B.   Sitting: >               He had me push/pull with feet, quads, arms, shoulders etc. >             He had me stick out my tongue and relax it. I felt it spasming! " You have Twelfth Nerve Palsy, " he said, and at that point he diagnosed Lyme. > > III. Causes. > >    A.   Pruritis. Possible causes include staph, yeast, mycoplasma, leprosy, others. >    B.   Night Sweats. 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. " Capsules. " Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. >    C.   Restless Legs Syndrome. Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). >    D.   Severe Spasms in Feet. Discussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. >    E.   Bulls Eye Rash. Occurs only in small percentage of cases. > > IV. Co-Infections. Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. >    A.   Babesiosis. Does not believe I have this. >    B.   Bartonella. Can't remember if he thinks I might or might not have this. > > V.   Antibiotics. Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > VI.  About Lyme. > > * 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > > * Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > * 20% of ticks carry Lyme - not just deer ticks. > * For every five ticks that bite a turkey hunter, one carries Lyme. > * 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > * Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > * Ticks, like snakes, are active most of the year, if not all. VII. Diagnosis. > > * Diagnosis of Twelfth Nerve Palsy confirms Lyme. > * Immune system healthy.VIII. Prescription. Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > IX. Conclusion. The most important thing my new LLMD told me today is that Lyme is curable. He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > That's a relief :-) > > Will > post again when I have more news. > > Kajay > > > Attachment(s) from Kajay109 > 2 of 2 Photo(s) > 2012 > 2011 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 Okay...I absolutely need to join the " been there, done that, won that " group!!! Terry > > Feels great, doesn't it ? I am way past my depression as well. Life is good again... Thanks to all > of you here !!!!! > > > ________________________________ > Von: Kajay109 <morjella@...> > An: " bird mites " <bird mites > > Gesendet: 17:53 Mittwoch, 25.April 2012 > Betreff: Re: LLMD - First visit trip report + partial labs > > >  > Also, Aggi, I haven't been depressed for years! Not since I took my life back from these little rascals! > > ;-) > > > >  > ================ > Clinical potential of minocycline for schizophrenia. > Miyaoka T. > Source > Department of Psychiatry, Shimane University School of Medicine, Izumo, Japan. miyanyan@... > Abstract > Minocycline, an antibiotic of the tetracycline family, has been shown to display neurorestorative or neuroprotective properties in various models of neurodegenerative diseases. In particular, it has been shown to delay motor alterations, inflammation and apoptosis in models of Huntington's disease, amyotrophic lateral sclerosis and Parkinson's disease. Despite controversies about its efficacy, the relative safety and tolerability of minocycline have led to various clinical trials. Recently, we reported the antipsychotic effects of minocycline in patients with schizophrenia. In a pilot investigation, we administered minocycline as an open-label adjunct to antipsychotic medication to patients with schizophrenia. The results of this trial suggested that minocycline might be a safe and effective adjunct to antipsychotic medications, and that augmentation with minocycline may prove to be a viable strategy for " boosting " antipsychotic efficacy and for treating > schizophrenia. The present review summarizes the available data supporting the clinical testing of minocycline for patients with schizophrenia. In addition, we extend our discussion to the potential applications of minocycline for combining this treatment with cellular and molecular therapy > > > > ________________________________ > Von: " Goldstein@... " <Goldstein@...> > An: bird mites > Gesendet: 17:40 Mittwoch, 25.April 2012 > Betreff: Re: LLMD - First visit trip report + partial labs > > >  > I looked it up and I didn't see anything about schizophrenia.  What I read said abx is broad spectrum, treats bacterial infections, acne, etc. > > > ________________________________ > From: " Kajay109 " <morjella@...> > bird mites > Sent: Wednesday, April 25, 2012 8:34:04 AM > Subject: Re: LLMD - First visit trip report + partial labs > > > > > If it works, I really don't care what's on the label, right :-) ? > Thanks, Aggi! > > > ________________________________ > From: Aggi Assmann <aggi_assmann@...> > " bird mites " <bird mites > > Sent: Wednesday, April 25, 2012 11:20 AM > Subject: Re: LLMD - First visit trip report + partial labs > > >  > Shocking Kajay, you are not crazy ?1? ;-) >  > You do realise that Minocycline is for schizophrenia though ? > I do hope you got that for your depression only! >  > Very interesting info indeed, thank you so much for this ! >  > Hug hug >  >  > > ________________________________ > Von: Kajay109 <morjella@...> > An: " bird mites@groupscom " <bird mites >; " GeorgiaLyme " <GeorgiaLyme > > Gesendet: 17:09 Mittwoch, 25.April 2012 > Betreff: LLMD - First visit trip report + partial labs [2 Attachments] > > >  > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > I. Symptoms > >    A. LLMD asked what symptoms brought me to him: > >               Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) >                Night sweats (always a sign of infection; possible causes staph, tuberculosis) >                Restless legs syndrome (related, I think) >                Severe spasms in feet, sometimes traveling up legs to body - terrifying >    >    B. LLMD asked me if these symptoms are or have been present: > >               Brain fog (no) >               Headaches(no) >                Chronic fatigue(no) >               Muscular aches(no) or spasms (yes) >                Overall aches(no) >               Sinus issues (yes until F-5 Mar 2011) >               Lesions (yes until F-5 Mar 2011) >               Depression (yes, in 1997) >               Bulls eye rash(yes, in 90's and again in 2009) > > II. Neuro-Muscular Tests > >    A.   Standing: >                He had me walk three different ways. >              He had me stand and allow him to just observe my face (tells a doc a lot about us) >               He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. >    B.   Sitting: >               He had me push/pull with feet, quads, arms, shoulders etc. >             He had me stick out my tongue and relax it. I felt it spasming! " You have Twelfth Nerve Palsy, " he said, and at that point he diagnosed Lyme. > > III. Causes. > >    A.   Pruritis. Possible causes include staph, yeast, mycoplasma, leprosy, others. >    B.   Night Sweats. 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. " Capsules. " Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. >    C.   Restless Legs Syndrome. Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). >    D.   Severe Spasms in Feet. Discussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. >    E.   Bulls Eye Rash. Occurs only in small percentage of cases. > > IV. Co-Infections. Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. >    A.   Babesiosis. Does not believe I have this. >    B.   Bartonella. Can't remember if he thinks I might or might not have this. > > V.   Antibiotics. Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > VI.  About Lyme. > > * 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > > * Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > * 20% of ticks carry Lyme - not just deer ticks. > * For every five ticks that bite a turkey hunter, one carries Lyme. > * 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > * Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > * Ticks, like snakes, are active most of the year, if not all. VII. Diagnosis. > > * Diagnosis of Twelfth Nerve Palsy confirms Lyme. > * Immune system healthy.VIII. Prescription. Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > IX. Conclusion. The most important thing my new LLMD told me today is that Lyme is curable. He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > That's a relief :-) > > Will post again when I have more news. > > Kajay > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 Yeah, I get that, I really do. I hope though when my trials are over with, that I can be a stalwart soldier like the rest of you... > > One day we will come here only because we WANT to, not because we need to. There are already those who do, in service to those of us who are still sick. I understand completely those who want to distance themselves from any thought of the mitemare though. > > Kajay > > > > ________________________________ > From: " Goldstein@... " <Goldstein@...> > bird mites > Sent: Wednesday, April 25, 2012 12:06 PM > Subject: Re: LLMD - First visit trip report + partial labs > > >  >  loving it! > > ________________________________ > From: " Aggi Assmann " <aggi_assmann@...> > bird mites > Sent: Wednesday, April 25, 2012 8:57:04 AM > Subject: Re: LLMD - First visit trip report + partial labs > > > > > Feels great, doesn't it ? I am way past my depression as well. Life is good again... Thanks to all > of you here !!!!! > > Von: Kajay109 <morjella@...> > An: " bird mites " <bird mites > > Gesendet: 17:53 Mittwoch, 25.April 2012 > Betreff: Re: LLMD - First visit trip report + partial labs > > >  > Also, Aggi, I haven't been depressed for years! Not since I took my life back from these little rascals! > > ;-) > > > >  > ================ > Clinical potential of minocycline for schizophrenia. > Miyaoka T. > Source > Department of Psychiatry, Shimane University School of Medicine, Izumo, Japan. miyanyan@... > Abstract > Minocycline, an antibiotic of the tetracycline family, has been shown to display neurorestorative or neuroprotective properties in various models of neurodegenerative diseases. In particular, it has been shown to delay motor alterations, inflammation and apoptosis in models of Huntington's disease, amyotrophic lateral sclerosis and Parkinson's disease. Despite controversies about its efficacy, the relative safety and tolerability of minocycline have led to various clinical trials. Recently, we reported the antipsychotic effects of minocycline in patients with schizophrenia. In a pilot investigation, we administered minocycline as an open-label adjunct to antipsychotic medication to patients with schizophrenia. The results of this trial suggested that minocycline might be a safe and effective adjunct to antipsychotic medications, and that augmentation with minocycline may prove to be a viable strategy for " boosting " antipsychotic efficacy and for treating > schizophrenia. The present review summarizes the available data supporting the clinical testing of minocycline for patients with schizophrenia. In addition, we extend our discussion to the potential applications of minocycline for combining this treatment with cellular and molecular therapy > > > Von: " Goldstein@... " <Goldstein@...> > An: bird mites > Gesendet: 17:40 Mittwoch, 25.April 2012 > Betreff: Re: LLMD - First visit trip report + partial labs > > >  > I looked it up and I didn't see anything about schizophrenia.  What I read said abx is broad spectrum, treats bacterial infections, acne, etc. > > From: " Kajay109 " <morjella@...> > bird mites > Sent: Wednesday, April 25, 2012 8:34:04 AM > Subject: Re: LLMD - First visit trip report + partial labs > > > > > If it works, I really don't care what's on the label, right :-) ? > Thanks, Aggi! > > From: Aggi Assmann <aggi_assmann@...> > " bird mites " <bird mites > > Sent: Wednesday, April 25, 2012 11:20 AM > Subject: Re: LLMD - First visit trip report + partial labs > > >  > Shocking Kajay, you are not crazy ?1? ;-) >  > You do realise that Minocycline is for schizophrenia though ? > I do hope you got that for your depression only! >  > Very interesting info indeed, thank you so much for this ! >  > Hug hug >  >  > Von: Kajay109 <morjella@...> > An: " bird mites@groupscom " <bird mites >; " GeorgiaLyme " <GeorgiaLyme > > Gesendet: 17:09 Mittwoch, 25.April 2012 > Betreff: LLMD - First visit trip report + partial labs [2 Attachments] > > >  > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > I. Symptoms > >    A. LLMD asked what symptoms brought me to him: > >               Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) >                Night sweats (always a sign of infection; possible causes staph, tuberculosis) >                Restless legs syndrome (related, I think) >                Severe spasms in feet, sometimes traveling up legs to body - terrifying >    >    B. LLMD asked me if these symptoms are or have been present: > >               Brain fog (no) >               Headaches(no) >                Chronic fatigue(no) >               Muscular aches(no) or spasms (yes) >                Overall aches(no) >               Sinus issues (yes until F-5 Mar 2011) >               Lesions (yes until F-5 Mar 2011) >               Depression (yes, in 1997) >               Bulls eye rash(yes, in 90's and again in 2009) > > II. Neuro-Muscular Tests > >    A.   Standing: >                He had me walk three different ways. >              He had me stand and allow him to just observe my face (tells a doc a lot about us) >               He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. >    B.   Sitting: >               He had me push/pull with feet, quads, arms, shoulders etc. >             He had me stick out my tongue and relax it. I felt it spasming! " You have Twelfth Nerve Palsy, " he said, and at that point he diagnosed Lyme. > > III. Causes. > >    A.   Pruritis. Possible causes include staph, yeast, mycoplasma, leprosy, others. >    B.   Night Sweats. 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. " Capsules. " Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. >    C.   Restless Legs Syndrome. Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). >    D.   Severe Spasms in Feet. Discussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. >    E.   Bulls Eye Rash. Occurs only in small percentage of cases. > > IV. Co-Infections. Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. >    A.   Babesiosis. Does not believe I have this. >    B.   Bartonella. Can't remember if he thinks I might or might not have this. > > V.   Antibiotics. Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > VI.  About Lyme. > > * 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > > * Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > * 20% of ticks carry Lyme - not just deer ticks. > * For every five ticks that bite a turkey hunter, one carries Lyme. > * 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > * Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > * Ticks, like snakes, are active most of the year, if not all. VII. Diagnosis. > > * Diagnosis of Twelfth Nerve Palsy confirms Lyme. > * Immune system healthy.VIII. Prescription. Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > IX. Conclusion. The most important thing my new LLMD told me today is that Lyme is curable. He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > That's a relief :-) > > Will post again when I have more news. > > Kajay > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 Welcome to the club Terry :-) Von: mitesbegone <no_reply >An: bird mites Gesendet: 22:57 Mittwoch, 25.April 2012Betreff: Re: LLMD - First visit trip report + partial labs Okay...I absolutely need to join the "been there, done that, won that" group!!!Terry>> Feels great, doesn't it ? I am way past my depression as well. Life is good again... Thanks to all > of you here !!!!!> > > ________________________________> Von: Kajay109 <morjella@...>> An: "bird mites " <bird mites > > Gesendet: 17:53 Mittwoch, 25.April 2012> Betreff: Re: LLMD - First visit trip report + partial labs> > >  > Also, Aggi, I haven't been depressed for years! Not since I took my life back from these little rascals!> > ;-)> > > >  > ================> Clinical potential of minocycline for schizophrenia.> Miyaoka T.> Source> Department of Psychiatry, Shimane University School of Medicine, Izumo, Japan. miyanyan@...> Abstract> Minocycline, an antibiotic of the tetracycline family, has been shown to display neurorestorative or neuroprotective properties in various models of neurodegenerative diseases. In particular, it has been shown to delay motor alterations, inflammation and apoptosis in models of Huntington's disease, amyotrophic lateral sclerosis and Parkinson's disease. Despite controversies about its efficacy, the relative safety and tolerability of minocycline have led to various clinical trials. Recently, we reported the antipsychotic effects of minocycline in patients with schizophrenia. In a pilot investigation, we administered minocycline as an open-label adjunct to antipsychotic medication to patients with schizophrenia. The results of this trial suggested that minocycline might be a safe and effective adjunct to antipsychotic medications, and that augmentation with minocycline may prove to be a viable strategy for "boosting" antipsychotic efficacy and for treating> schizophrenia. The present review summarizes the available data supporting the clinical testing of minocycline for patients with schizophrenia. In addition, we extend our discussion to the potential applications of minocycline for combining this treatment with cellular and molecular therapy> > > > ________________________________> Von: "Goldstein@..." <Goldstein@...>> An: bird mites > Gesendet: 17:40 Mittwoch, 25.April 2012> Betreff: Re: LLMD - First visit trip report + partial labs> > >  > I looked it up and I didn't see anything about schizophrenia.  What I read said abx is broad spectrum, treats bacterial infections, acne, etc.> > > ________________________________> From: "Kajay109" <morjella@...>> bird mites > Sent: Wednesday, April 25, 2012 8:34:04 AM> Subject: Re: LLMD - First visit trip report + partial labs> > > > > If it works, I really don't care what's on the label, right :-) ?> Thanks, Aggi! > > > ________________________________> From: Aggi Assmann <aggi_assmann@...>> "bird mites " <bird mites > > Sent: Wednesday, April 25, 2012 11:20 AM> Subject: Re: LLMD - First visit trip report + partial labs> > >  > Shocking Kajay, you are not crazy ?1? ;-)>  > You do realise that Minocycline is for schizophrenia though ? > I do hope you got that for your depression only!>  > Very interesting info indeed, thank you so much for this !>  > Hug hug >  >  > > ________________________________> Von: Kajay109 <morjella@...>> An: "bird mites@groupscom" <bird mites >; "GeorgiaLyme " <GeorgiaLyme > > Gesendet: 17:09 Mittwoch, 25.April 2012> Betreff: LLMD - First visit trip report + partial labs [2 Attachments]> > >  > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now.> > I. Symptoms> >    A. LLMD asked what symptoms brought me to him:> >               Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others)>                Night sweats (always a sign of infection; possible causes staph, tuberculosis)>                Restless legs syndrome (related, I think)>                Severe spasms in feet, sometimes traveling up legs to body - terrifying>    >    B. LLMD asked me if these symptoms are or have been present:> >               Brain fog (no)>               Headaches(no)>                Chronic fatigue(no)>               Muscular aches(no) or spasms (yes)>                Overall aches(no)>               Sinus issues (yes until F-5 Mar 2011)>               Lesions (yes until F-5 Mar 2011)>               Depression (yes, in 1997)>               Bulls eye rash(yes, in 90's and again in 2009)> > II. Neuro-Muscular Tests> >    A.   Standing:>                He had me walk three different ways.>              He had me stand and allow him to just observe my face (tells a doc a lot about us)>               He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. >    B.   Sitting:>               He had me push/pull with feet, quads, arms, shoulders etc.>             He had me stick out my tongue and relax it. I felt it spasming! "You have Twelfth Nerve Palsy," he said, and at that point he diagnosed Lyme. > > III. Causes. > >    A.   Pruritis. Possible causes include staph, yeast, mycoplasma, leprosy, others.>    B.   Night Sweats. 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. "Capsules." Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return.>    C.   Restless Legs Syndrome. Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline).>    D.   Severe Spasms in Feet. Discussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms.>    E.   Bulls Eye Rash. Occurs only in small percentage of cases. > > IV. Co-Infections. Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme.>    A.   Babesiosis. Does not believe I have this.>    B.   Bartonella. Can't remember if he thinks I might or might not have this.> > V.   Antibiotics. Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme.> > VI.  About Lyme. > > * 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite.> > * Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize.> * 20% of ticks carry Lyme - not just deer ticks.> * For every five ticks that bite a turkey hunter, one carries Lyme.> * 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones).> * Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > * Ticks, like snakes, are active most of the year, if not all. VII. Diagnosis. > > * Diagnosis of Twelfth Nerve Palsy confirms Lyme. > * Immune system healthy.VIII. Prescription. Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics.> > > IX. Conclusion. The most important thing my new LLMD told me today is that Lyme is curable. He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > That's a relief :-)> > Will post again when I have more news.> > Kajay> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 Thanks I am a newbie on the fringe...As soon as I see my LLMD next week and finish up with these mites (which God willing will be this week)...I am SO THERE! Thanks, Terry > > > > Feels great, doesn't it ? I am way past my depression as well. Life is good again... Thanks to all > > of you here !!!!! > > > > > > ________________________________ > > Von: Kajay109 <morjella@> > > An: " bird mites " <bird mites > > > Gesendet: 17:53 Mittwoch, 25.April 2012 > > Betreff: Re: LLMD - First visit trip report + partial labs > > > > > >  > > Also, Aggi, I haven't been depressed for years! Not since I took my life back from these little rascals! > > > > ;-) > > > > > > > >  > > ================ > > Clinical potential of minocycline for schizophrenia. > > Miyaoka T. > > Source > > Department of Psychiatry, Shimane University School of Medicine, Izumo, Japan. miyanyan@ > > Abstract > > Minocycline, an antibiotic of the tetracycline family, has been shown to display neurorestorative or neuroprotective properties in various models of neurodegenerative diseases. In particular, it has been shown to delay motor alterations, inflammation and apoptosis in models of Huntington's disease, amyotrophic lateral sclerosis and Parkinson's disease. Despite controversies about its efficacy, the relative safety and tolerability of minocycline have led to various clinical trials. Recently, we reported the antipsychotic effects of minocycline in patients with schizophrenia. In a pilot investigation, we administered minocycline as an open-label adjunct to antipsychotic medication to patients with schizophrenia. The results of this trial suggested that minocycline might be a safe and effective adjunct to antipsychotic medications, and that augmentation with minocycline may prove to be a viable strategy for " boosting " antipsychotic efficacy and for > treating > > schizophrenia. The present review summarizes the available data supporting the clinical testing of minocycline for patients with schizophrenia. In addition, we extend our discussion to the potential applications of minocycline for combining this treatment with cellular and molecular therapy > > > > > > > > ________________________________ > > Von: " Goldstein@ " <Goldstein@> > > An: bird mites > > Gesendet: 17:40 Mittwoch, 25.April 2012 > > Betreff: Re: LLMD - First visit trip report + partial labs > > > > > >  > > I looked it up and I didn't see anything about schizophrenia.  What I read said abx is broad spectrum, treats bacterial infections, acne, etc. > > > > > > ________________________________ > > From: " Kajay109 " <morjella@> > > bird mites > > Sent: Wednesday, April 25, 2012 8:34:04 AM > > Subject: Re: LLMD - First visit trip report + partial labs > > > > > > > > > > If it works, I really don't care what's on the label, right :-) ? > > Thanks, Aggi! > > > > > > ________________________________ > > From: Aggi Assmann <aggi_assmann@> > > " bird mites " <bird mites > > > Sent: Wednesday, April 25, 2012 11:20 AM > > Subject: Re: LLMD - First visit trip report + partial labs > > > > > >  > > Shocking Kajay, you are not crazy ?1? ;-) > >  > > You do realise that Minocycline is for schizophrenia though ? > > I do hope you got that for your depression only! > >  > > Very interesting info indeed, thank you so much for this ! > >  > > Hug hug > >  > >  > > > > ________________________________ > > Von: Kajay109 <morjella@> > > An: " bird mites@groupscom " <bird mites >; " GeorgiaLyme " <GeorgiaLyme > > > Gesendet: 17:09 Mittwoch, 25.April 2012 > > Betreff: LLMD - First visit trip report + partial labs [2 Attachments] > > > > > >  > > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > > > I. Symptoms > > > >    A. LLMD asked what symptoms brought me to him: > > > >               Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) > >                Night sweats (always a sign of infection; possible causes staph, tuberculosis) > >                Restless legs syndrome (related, I think) > >                Severe spasms in feet, sometimes traveling up legs to body - terrifying > >    > >    B. LLMD asked me if these symptoms are or have been present: > > > >               Brain fog (no) > >               Headaches(no) > >                Chronic fatigue(no) > >               Muscular aches(no) or spasms (yes) > >                Overall aches(no) > >               Sinus issues (yes until F-5 Mar 2011) > >               Lesions (yes until F-5 Mar 2011) > >               Depression (yes, in 1997) > >               Bulls eye rash(yes, in 90's and again in 2009) > > > > II. Neuro-Muscular Tests > > > >    A.   Standing: > >                He had me walk three different ways. > >              He had me stand and allow him to just observe my face (tells a doc a lot about us) > >               He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. > >    B.   Sitting: > >               He had me push/pull with feet, quads, arms, shoulders etc. > >             He had me stick out my tongue and relax it. I felt it spasming! " You have Twelfth Nerve Palsy, " he said, and at that point he diagnosed Lyme. > > > > III. Causes. > > > >    A.   Pruritis. Possible causes include staph, yeast, mycoplasma, leprosy, others. > >    B.   Night Sweats. 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. " Capsules. " Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. > >    C.   Restless Legs Syndrome. Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). > >    D.   Severe Spasms in Feet. Discussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. > >    E.   Bulls Eye Rash. Occurs only in small percentage of cases. > > > > IV. Co-Infections. Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. > >    A.   Babesiosis. Does not believe I have this. > >    B.   Bartonella. Can't remember if he thinks I might or might not have this. > > > > V.   Antibiotics. Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > > > VI.  About Lyme. > > > > * 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > > > > * Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > > * 20% of ticks carry Lyme - not just deer ticks. > > * For every five ticks that bite a turkey hunter, one carries Lyme. > > * 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > > * Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > > * Ticks, like snakes, are active most of the year, if not all. VII. Diagnosis. > > > > * Diagnosis of Twelfth Nerve Palsy confirms Lyme. > > * Immune system healthy.VIII. Prescription. Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > > > > IX. Conclusion. The most important thing my new LLMD told me today is that Lyme is curable. He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > > > That's a relief :-) > > > > Will post again when I have more news. > > > > Kajay > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 I am sooo wishing you the best of luck for your appointment ! Hope you found a good LLMD !! Von: mitesbegone <no_reply >An: bird mites Gesendet: 23:01 Mittwoch, 25.April 2012Betreff: Re: LLMD - First visit trip report + partial labs Thanks I am a newbie on the fringe...As soon as I see my LLMD next week and finish up with these mites (which God willing will be this week)...I am SO THERE!Thanks, Terry> >> > Feels great, doesn't it ? I am way past my depression as well. Life is good again... Thanks to all > > of you here !!!!!> > > > > > ________________________________> > Von: Kajay109 <morjella@>> > An: "bird mites " <bird mites > > > Gesendet: 17:53 Mittwoch, 25.April 2012> > Betreff: Re: LLMD - First visit trip report + partial labs> > > > > >  > > Also, Aggi, I haven't been depressed for years! Not since I took my life back from these little rascals!> > > > ;-)> > > > > > > >  > > ================> > Clinical potential of minocycline for schizophrenia.> > Miyaoka T.> > Source> > Department of Psychiatry, Shimane University School of Medicine, Izumo, Japan. miyanyan@> > Abstract> > Minocycline, an antibiotic of the tetracycline family, has been shown to display neurorestorative or neuroprotective properties in various models of neurodegenerative diseases. In particular, it has been shown to delay motor alterations, inflammation and apoptosis in models of Huntington's disease, amyotrophic lateral sclerosis and Parkinson's disease. Despite controversies about its efficacy, the relative safety and tolerability of minocycline have led to various clinical trials. Recently, we reported the antipsychotic effects of minocycline in patients with schizophrenia. In a pilot investigation, we administered minocycline as an open-label adjunct to antipsychotic medication to patients with schizophrenia. The results of this trial suggested that minocycline might be a safe and effective adjunct to antipsychotic medications, and that augmentation with minocycline may prove to be a viable strategy for "boosting" antipsychotic efficacy and for> treating> > schizophrenia. The present review summarizes the available data supporting the clinical testing of minocycline for patients with schizophrenia. In addition, we extend our discussion to the potential applications of minocycline for combining this treatment with cellular and molecular therapy> > > > > > > > ________________________________> > Von: "Goldstein@" <Goldstein@>> > An: bird mites > > Gesendet: 17:40 Mittwoch, 25.April 2012> > Betreff: Re: LLMD - First visit trip report + partial labs> > > > > >  > > I looked it up and I didn't see anything about schizophrenia.  What I read said abx is broad spectrum, treats bacterial infections, acne, etc.> > > > > > ________________________________> > From: "Kajay109" <morjella@>> > bird mites > > Sent: Wednesday, April 25, 2012 8:34:04 AM> > Subject: Re: LLMD - First visit trip report + partial labs> > > > > > > > > > If it works, I really don't care what's on the label, right :-) ?> > Thanks, Aggi! > > > > > > ________________________________> > From: Aggi Assmann <aggi_assmann@>> > "bird mites " <bird mites > > > Sent: Wednesday, April 25, 2012 11:20 AM> > Subject: Re: LLMD - First visit trip report + partial labs> > > > > >  > > Shocking Kajay, you are not crazy ?1? ;-)> >  > > You do realise that Minocycline is for schizophrenia though ? > > I do hope you got that for your depression only!> >  > > Very interesting info indeed, thank you so much for this !> >  > > Hug hug > >  > >  > > > > ________________________________> > Von: Kajay109 <morjella@>> > An: "bird mites@groupscom" <bird mites >; "GeorgiaLyme " <GeorgiaLyme > > > Gesendet: 17:09 Mittwoch, 25.April 2012> > Betreff: LLMD - First visit trip report + partial labs [2 Attachments]> > > > > >  > > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now.> > > > I. Symptoms> > > >    A. LLMD asked what symptoms brought me to him:> > > >               Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others)> >                Night sweats (always a sign of infection; possible causes staph, tuberculosis)> >                Restless legs syndrome (related, I think)> >                Severe spasms in feet, sometimes traveling up legs to body - terrifying> >    > >    B. LLMD asked me if these symptoms are or have been present:> > > >               Brain fog (no)> >               Headaches(no)> >                Chronic fatigue(no)> >               Muscular aches(no) or spasms (yes)> >                Overall aches(no)> >               Sinus issues (yes until F-5 Mar 2011)> >               Lesions (yes until F-5 Mar 2011)> >               Depression (yes, in 1997)> >               Bulls eye rash(yes, in 90's and again in 2009)> > > > II. Neuro-Muscular Tests> > > >    A.   Standing:> >                He had me walk three different ways.> >              He had me stand and allow him to just observe my face (tells a doc a lot about us)> >               He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. > >    B.   Sitting:> >               He had me push/pull with feet, quads, arms, shoulders etc.> >             He had me stick out my tongue and relax it. I felt it spasming! "You have Twelfth Nerve Palsy," he said, and at that point he diagnosed Lyme. > > > > III. Causes. > > > >    A.   Pruritis. Possible causes include staph, yeast, mycoplasma, leprosy, others.> >    B.   Night Sweats. 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. "Capsules." Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return.> >    C.   Restless Legs Syndrome. Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline).> >    D.   Severe Spasms in Feet. Discussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms.> >    E.   Bulls Eye Rash. Occurs only in small percentage of cases. > > > > IV. Co-Infections. Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme.> >    A.   Babesiosis. Does not believe I have this.> >    B.   Bartonella. Can't remember if he thinks I might or might not have this.> > > > V.   Antibiotics. Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme.> > > > VI.  About Lyme. > > > > * 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite.> > > > * Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize.> > * 20% of ticks carry Lyme - not just deer ticks.> > * For every five ticks that bite a turkey hunter, one carries Lyme.> > * 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones).> > * Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > > * Ticks, like snakes, are active most of the year, if not all. VII. Diagnosis. > > > > * Diagnosis of Twelfth Nerve Palsy confirms Lyme. > > * Immune system healthy.VIII. Prescription. Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics.> > > > > > IX. Conclusion. The most important thing my new LLMD told me today is that Lyme is curable. He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > > > That's a relief :-)> > > > Will post again when I have more news.> > > > Kajay> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 Speaking on behalf of the newbies...I am glad you are here. You and the rest of the awesome group....Terry > > I FULLY SUPPORT WHAT YOU SAID KAJAY. I have noticed with myself, that there are days I am not even bothered to log on here, > then there are others, where I feel totally responsible and just want to help the newbies. Where would I have been without you guys... > probably six feet under ... ;-) > > > ________________________________ > Von: Kajay109 <morjella@...> > An: " bird mites " <bird mites > > Gesendet: 18:10 Mittwoch, 25.April 2012 > Betreff: Re: LLMD - First visit trip report + partial labs > > >  > One day we will come here only because we WANT to, not because we need to. There are already those who do, in service to those of us who are still sick. I understand completely those who want to distance themselves from any thought of the mitemare though. > > Kajay > > > > ________________________________ > From: " Goldstein@... " <Goldstein@...> > bird mites > Sent: Wednesday, April 25, 2012 12:06 PM > Subject: Re: LLMD - First visit trip report + partial labs > > >  >  loving it! > > > ________________________________ > From: " Aggi Assmann " <aggi_assmann@...> > bird mites > Sent: Wednesday, April 25, 2012 8:57:04 AM > Subject: Re: LLMD - First visit trip report + partial labs > > > > > Feels great, doesn't it ? I am way past my depression as well. Life is good again... Thanks to all > of you here !!!!! > > > ________________________________ > Von: Kajay109 <morjella@...> > An: " bird mites " <bird mites > > Gesendet: 17:53 Mittwoch, 25.April 2012 > Betreff: Re: LLMD - First visit trip report + partial labs > > >  > Also, Aggi, I haven't been depressed for years! Not since I took my life back from these little rascals! > > ;-) > > > >  > ================ > Clinical potential of minocycline for schizophrenia. > Miyaoka T. > Source > Department of Psychiatry, Shimane University School of Medicine, Izumo, Japan. miyanyan@... > Abstract > Minocycline, an antibiotic of the tetracycline family, has been shown to display neurorestorative or neuroprotective properties in various models of neurodegenerative diseases. In particular, it has been shown to delay motor alterations, inflammation and apoptosis in models of Huntington's disease, amyotrophic lateral sclerosis and Parkinson's disease. Despite controversies about its efficacy, the relative safety and tolerability of minocycline have led to various clinical trials. Recently, we reported the antipsychotic effects of minocycline in patients with schizophrenia. In a pilot investigation, we administered minocycline as an open-label adjunct to antipsychotic medication to patients with schizophrenia. The results of this trial suggested that minocycline might be a safe and effective adjunct to antipsychotic medications, and that augmentation with minocycline may prove to be a viable strategy for " boosting " antipsychotic efficacy and for treating > schizophrenia. The present review summarizes the available data supporting the clinical testing of minocycline for patients with schizophrenia. In addition, we extend our discussion to the potential applications of minocycline for combining this treatment with cellular and molecular therapy > > > > ________________________________ > Von: " Goldstein@... " <Goldstein@...> > An: bird mites > Gesendet: 17:40 Mittwoch, 25.April 2012 > Betreff: Re: LLMD - First visit trip report + partial labs > > >  > I looked it up and I didn't see anything about schizophrenia.  What I read said abx is broad spectrum, treats bacterial infections, acne, etc. > > > ________________________________ > From: " Kajay109 " <morjella@...> > bird mites > Sent: Wednesday, April 25, 2012 8:34:04 AM > Subject: Re: LLMD - First visit trip report + partial labs > > > > > If it works, I really don't care what's on the label, right :-) ? > Thanks, Aggi! > > > ________________________________ > From: Aggi Assmann <aggi_assmann@...> > " bird mites " <bird mites > > Sent: Wednesday, April 25, 2012 11:20 AM > Subject: Re: LLMD - First visit trip report + partial labs > > >  > Shocking Kajay, you are not crazy ?1? ;-) >  > You do realise that Minocycline is for schizophrenia though ? > I do hope you got that for your depression only! >  > Very interesting info indeed, thank you so much for this ! >  > Hug hug >  >  > > ________________________________ > Von: Kajay109 <morjella@...> > An: " bird mites@groupscom " <bird mites >; " GeorgiaLyme " <GeorgiaLyme > > Gesendet: 17:09 Mittwoch, 25.April 2012 > Betreff: LLMD - First visit trip report + partial labs [2 Attachments] > > >  > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > I. Symptoms > >    A. LLMD asked what symptoms brought me to him: > >               Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) >                Night sweats (always a sign of infection; possible causes staph, tuberculosis) >                Restless legs syndrome (related, I think) >                Severe spasms in feet, sometimes traveling up legs to body - terrifying >    >    B. LLMD asked me if these symptoms are or have been present: > >               Brain fog (no) >               Headaches(no) >                Chronic fatigue(no) >               Muscular aches(no) or spasms (yes) >                Overall aches(no) >               Sinus issues (yes until F-5 Mar 2011) >               Lesions (yes until F-5 Mar 2011) >               Depression (yes, in 1997) >               Bulls eye rash(yes, in 90's and again in 2009) > > II. Neuro-Muscular Tests > >    A.   Standing: >                He had me walk three different ways. >              He had me stand and allow him to just observe my face (tells a doc a lot about us) >               He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. >    B.   Sitting: >               He had me push/pull with feet, quads, arms, shoulders etc. >             He had me stick out my tongue and relax it. I felt it spasming! " You have Twelfth Nerve Palsy, " he said, and at that point he diagnosed Lyme. > > III. Causes. > >    A.   Pruritis. Possible causes include staph, yeast, mycoplasma, leprosy, others. >    B.   Night Sweats. 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. " Capsules. " Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. >    C.   Restless Legs Syndrome. Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). >    D.   Severe Spasms in Feet. Discussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. >    E.   Bulls Eye Rash. Occurs only in small percentage of cases. > > IV. Co-Infections. Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. >    A.   Babesiosis. Does not believe I have this. >    B.   Bartonella. Can't remember if he thinks I might or might not have this. > > V.   Antibiotics. Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > VI.  About Lyme. > > * 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > > * Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > * 20% of ticks carry Lyme - not just deer ticks. > * For every five ticks that bite a turkey hunter, one carries Lyme. > * 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > * Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > * Ticks, like snakes, are active most of the year, if not all. VII. Diagnosis. > > * Diagnosis of Twelfth Nerve Palsy confirms Lyme. > * Immune system healthy.VIII. Prescription. Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > IX. Conclusion. The most important thing my new LLMD told me today is that Lyme is curable. He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > That's a relief :-) > > Will post again when I have more news. > > Kajay > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 Terry and Kayjay-RLS will resolve with Lyme treatment. It may get worse for a while though when you first start abx.AandrayaOn Apr 25, 2012, at 3:56 PM, mitesbegone <no_reply > wrote: I have RLS as well, which can be so irritating when trying to sleep. But it isn't chronic thankfully. Just intermittent hits. About once or twice a month for a couple of days each time. Terry > > He said I probably have co-infections, but he wants to hit the Lyme hard first and said that the Minocycline would probably take out many of the co-issues as well. After reading what Aggi posted about it... > > "Minocycline, an antibiotic of > the tetracycline family, has been shown to display neurorestorative or > neuroprotective properties in various models of neurodegenerative > diseases. In particular, it has been shown to delay motor alterations, > inflammation and apoptosis in models of Huntington's disease, > amyotrophic lateral sclerosis and Parkinson's disease. Despite > controversies about its efficacy, the relative safety and tolerability > of minocycline..." > > I am hopeful that it will not only address the Lyme, but my most obvious and troublesome side effect, Restless Legs Syndrome, for which I took a Parkinson's med for 15 years. It is also encouraging that it is considered relatively safe and tolerable. > > Thank you, Aggi! > > Kajay > > > > ________________________________ > From: "Goldstein@..." <Goldstein@...> > bird mites > Sent: Wednesday, April 25, 2012 11:38 AM > Subject: Re: LLMD - First visit trip report + partial labs > > >  > This is such valuable information Kajay.  Thank you for giving us the update on your progress.  So happy to hear you went to a LLMD to get treated.  You are very thorough too in what you sent, including attachments!  I'm impressed!  I am also a believer that information from others helps us enormously.  I talk to my LLMD today about my ongoing issues and where to go from here.  I don't know Minocycline... have not used it.  Sounds like he will treat Lyme first and not co-infections (maybe you don't have them...).  My doc started on all of them at once and still don't know how sound that was.  She gave me scripts for meds and where to buy herbals.  > > > > ________________________________ > From: "Kajay109" <morjella@...> > "bird mites@groupscom" <bird mites >, GeorgiaLyme > Sent: Wednesday, April 25, 2012 8:09:20 AM > Subject: LLMD - First visit trip report + partial labs [2 Attachments] > > [Attachment(s) from Kajay109 included below] > > > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > I. Symptoms > >    A. LLMD asked what symptoms brought me to him: > >               Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) >                Night sweats (always a sign of infection; possible causes staph, tuberculosis) >                Restless legs syndrome (related, I think) >                Severe spasms in feet, sometimes traveling up legs to body - terrifying >    >    B. LLMD asked me if these symptoms are or have been present: > >               Brain fog (no) >               Headaches(no) >                Chronic fatigue(no) >               Muscular aches(no) or spasms (yes) >                Overall aches(no) >               Sinus issues (yes until F-5 Mar 2011) >               Lesions (yes until F-5 Mar 2011) >               Depression (yes, in 1997) >               Bulls eye rash(yes, in 90's and again in 2009) > > II. Neuro-Muscular Tests > >    A.   Standing: >                He had me walk three different ways. >              He had me stand and allow him to just observe my face (tells a doc a lot about us) >               He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. >    B.   Sitting: >               He had me push/pull with feet, quads, arms, shoulders etc. >             He had me stick out my tongue and relax it. I felt it spasming! "You have Twelfth Nerve Palsy," he said, and at that point he diagnosed Lyme. > > III. Causes. > >    A.   Pruritis. Possible causes include staph, yeast, mycoplasma, leprosy, others. >    B.   Night Sweats. 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. "Capsules." Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. >    C.   Restless Legs Syndrome. Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). >    D.   Severe Spasms in Feet. Discussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. >    E.   Bulls Eye Rash. Occurs only in small percentage of cases. > > IV. Co-Infections. Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. >    A.   Babesiosis. Does not believe I have this. >    B.   Bartonella. Can't remember if he thinks I might or might not have this. > > V.   Antibiotics. Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > VI.  About Lyme. > > * 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > > * Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > * 20% of ticks carry Lyme - not just deer ticks. > * For every five ticks that bite a turkey hunter, one carries Lyme. > * 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > * Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > * Ticks, like snakes, are active most of the year, if not all. VII. Diagnosis. > > * Diagnosis of Twelfth Nerve Palsy confirms Lyme. > * Immune system healthy.VIII. Prescription. Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > IX. Conclusion. The most important thing my new LLMD told me today is that Lyme is curable. He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > That's a relief :-) > > Will > post again when I have more news. > > Kajay > > > Attachment(s) from Kajay109 > 2 of 2 Photo(s) > 2012 > 2011 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 It is interesting that you mention the silver fillings. I had fillings put in just recently (within last year), and had to have three separate root canals as well. I wonder if there is a connection there? > > > > > > > > > > Clinical potential of minocycline for schizophrenia. > > Miyaoka T . > Source > > Department of Psychiatry, Shimane University School of Medicine, Izumo, Japan. miyanyan@... > Abstract > > Minocycline, an antibiotic of the tetracycline family, has been shown to display neurorestorative or neuroprotective properties in various models of neurodegenerative diseases. In particular, it has been shown to delay motor alterations, inflammation and apoptosis in models of Huntington's disease, amyotrophic lateral sclerosis and Parkinson's disease. Despite controversies about its efficacy, the relative safety and tolerability of minocycline have led to various clinical trials. Recently, we reported the antipsychotic effects of minocycline in patients with schizophrenia. In a pilot investigation, we administered minocycline as an open-label adjunct to antipsychotic medication to patients with schizophrenia. The results of this trial suggested that minocycline might be a safe and effective adjunct to antipsychotic medications, and that augmentation with minocycline may prove to be a viable strategy for " boosting " antipsychotic efficacy and for treating schizophrenia. The present review summarizes the available data supporting the clinical testing of minocycline for patients with schizophrenia. In addition, we extend our discussion to the potential applications of minocycline for combining this treatment with cellular and molecular therapy > > > > > > > Von: " Goldstein@... " < Goldstein@... > > An: bird mites > Gesendet: 17:40 Mittwoch, 25.April 2012 > Betreff: Re: LLMD - First visit trip report + partial labs > > > > > > I looked it up and I didn't see anything about schizophrenia. What I read said abx is broad spectrum, treats bacterial infections, acne, etc. > > > From: " Kajay109 " < morjella@... > > bird mites > Sent: Wednesday, April 25, 2012 8:34:04 AM > Subject: Re: LLMD - First visit trip report + partial labs > > > > > > If it works, I really don't care what's on the label, right :-) ? > Thanks, Aggi! > > > > > > From: Aggi Assmann <aggi_assmann@...> > " bird mites " <bird mites > > Sent: Wednesday, April 25, 2012 11:20 AM > Subject: Re: LLMD - First visit trip report + partial labs > > > > > > > Shocking Kajay, you are not crazy ?1? ;-) > > You do realise that Minocycline is for schizophrenia though ? > I do hope you got that for your depression only! > > Very interesting info indeed, thank you so much for this ! > > Hug hug > > > > > > Von: Kajay109 <morjella@...> > An: " bird mites@groupscom " <bird mites >; " GeorgiaLyme " <GeorgiaLyme > > Gesendet: 17:09 Mittwoch, 25.April 2012 > Betreff: LLMD - First visit trip report + partial labs [2 Attachments] > > > > > > > > > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > I. Symptoms > > A. LLMD asked what symptoms brought me to him: > > Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) > Night sweats (always a sign of infection; possible causes staph, tuberculosis) > Restless legs syndrome (related, I think) > Severe spasms in feet, sometimes traveling up legs to body - terrifying > > B. LLMD asked me if these symptoms are or have been present: > > Brain fog (no) > Headaches (no) > Chronic fatigue (no) > Muscular aches (no) or spasms (yes) > Overall aches (no) > Sinus issues (yes until F-5 Mar 2011) > Lesions (yes until F-5 Mar 2011) > Depression (yes, in 1997) > Bulls eye rash (yes, in 90's and again in 2009) > > II. Neuro-Muscular Tests > > A. Standing: > He had me walk three different ways. > He had me stand and allow him to just observe my face (tells a doc a lot about us) > He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. > B. Sitting: > He had me push/pull with feet, quads, arms, shoulders etc. > He had me stick out my tongue and relax it. I felt it spasming! " You have Twelfth Nerve Palsy , " he said, and at that point he diagnosed Lyme . > > III. Causes . > > A. Pruritis . P ossible causes include staph, yeast, mycoplasma, leprosy, others . > B. Night Sweats . 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. " Capsules . " Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. > C. Restless Legs Syndrome . Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). > D. Severe Spasms in Feet . D iscussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. > E. Bulls Eye Rash . Occurs only in small percentage of cases. > > IV. Co-Infections . Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. > A. Babesiosis . Does not believe I have this. > B. Bartonella . Can't remember if he thinks I might or might not have this. > > V. Antibiotics . Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > VI. About Lyme . > > > • 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > • Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > • 20% of ticks carry Lyme - not just deer ticks. > • For every five ticks that bite a turkey hunter, one carries Lyme. > • 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > • Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > • Ticks, like snakes, are active most of the year, if not all. > > VII. Diagnosis . > > > • Diagnosis of Twelfth Nerve Palsy confirms Lyme. > • Immune system healthy. > > VIII. Prescription . Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > > > > > > > > > IX. Conclusion . The most important thing my new LLMD told me today is that Lyme is curable . He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > That's a relief :-) > > Will post again when I have more news. > > Kajay > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 Were they silver? Very dangerous stuff if you have an illness already especially.From: "mitesbegone" <no_reply >bird mites Sent: Wednesday, April 25, 2012 2:57:40 PMSubject: Re: LLMD - First visit trip report + partial labsIt is interesting that you mention the silver fillings. I had fillings put in just recently (within last year), and had to have three separate root canals as well. I wonder if there is a connection there? > > > > > > > > > > Clinical potential of minocycline for schizophrenia. > > Miyaoka T . > Source > > Department of Psychiatry, Shimane University School of Medicine, Izumo, Japan. miyanyan@... > Abstract > > Minocycline, an antibiotic of the tetracycline family, has been shown to display neurorestorative or neuroprotective properties in various models of neurodegenerative diseases. In particular, it has been shown to delay motor alterations, inflammation and apoptosis in models of Huntington's disease, amyotrophic lateral sclerosis and Parkinson's disease. Despite controversies about its efficacy, the relative safety and tolerability of minocycline have led to various clinical trials. Recently, we reported the antipsychotic effects of minocycline in patients with schizophrenia. In a pilot investigation, we administered minocycline as an open-label adjunct to antipsychotic medication to patients with schizophrenia. The results of this trial suggested that minocycline might be a safe and effective adjunct to antipsychotic medications, and that augmentation with minocycline may prove to be a viable strategy for "boosting" antipsychotic efficacy and for treating schizophrenia. The present review summarizes the available data supporting the clinical testing of minocycline for patients with schizophrenia. In addition, we extend our discussion to the potential applications of minocycline for combining this treatment with cellular and molecular therapy > > > > > > > Von: " Goldstein@... " < Goldstein@... > > An: bird mites > Gesendet: 17:40 Mittwoch, 25.April 2012 > Betreff: Re: LLMD - First visit trip report + partial labs > > > > > > I looked it up and I didn't see anything about schizophrenia. What I read said abx is broad spectrum, treats bacterial infections, acne, etc. > > > From: "Kajay109" < morjella@... > > bird mites > Sent: Wednesday, April 25, 2012 8:34:04 AM > Subject: Re: LLMD - First visit trip report + partial labs > > > > > > If it works, I really don't care what's on the label, right :-) ? > Thanks, Aggi! > > > > > > From: Aggi Assmann <aggi_assmann@...> > "bird mites " <bird mites > > Sent: Wednesday, April 25, 2012 11:20 AM > Subject: Re: LLMD - First visit trip report + partial labs > > > > > > > Shocking Kajay, you are not crazy ?1? ;-) > > You do realise that Minocycline is for schizophrenia though ? > I do hope you got that for your depression only! > > Very interesting info indeed, thank you so much for this ! > > Hug hug > > > > > > Von: Kajay109 <morjella@...> > An: "bird mites@groupscom" <bird mites >; "GeorgiaLyme " <GeorgiaLyme > > Gesendet: 17:09 Mittwoch, 25.April 2012 > Betreff: LLMD - First visit trip report + partial labs [2 Attachments] > > > > > > > > > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > I. Symptoms > > A. LLMD asked what symptoms brought me to him: > > Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) > Night sweats (always a sign of infection; possible causes staph, tuberculosis) > Restless legs syndrome (related, I think) > Severe spasms in feet, sometimes traveling up legs to body - terrifying > > B. LLMD asked me if these symptoms are or have been present: > > Brain fog (no) > Headaches (no) > Chronic fatigue (no) > Muscular aches (no) or spasms (yes) > Overall aches (no) > Sinus issues (yes until F-5 Mar 2011) > Lesions (yes until F-5 Mar 2011) > Depression (yes, in 1997) > Bulls eye rash (yes, in 90's and again in 2009) > > II. Neuro-Muscular Tests > > A. Standing: > He had me walk three different ways. > He had me stand and allow him to just observe my face (tells a doc a lot about us) > He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. > B. Sitting: > He had me push/pull with feet, quads, arms, shoulders etc. > He had me stick out my tongue and relax it. I felt it spasming! " You have Twelfth Nerve Palsy ," he said, and at that point he diagnosed Lyme . > > III. Causes . > > A. Pruritis . P ossible causes include staph, yeast, mycoplasma, leprosy, others . > B. Night Sweats . 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. " Capsules ." Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. > C. Restless Legs Syndrome . Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). > D. Severe Spasms in Feet . D iscussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. > E. Bulls Eye Rash . Occurs only in small percentage of cases. > > IV. Co-Infections . Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. > A. Babesiosis . Does not believe I have this. > B. Bartonella . Can't remember if he thinks I might or might not have this. > > V. Antibiotics . Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > VI. About Lyme . > > > • 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > • Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > • 20% of ticks carry Lyme - not just deer ticks. > • For every five ticks that bite a turkey hunter, one carries Lyme. > • 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > • Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > • Ticks, like snakes, are active most of the year, if not all. > > VII. Diagnosis . > > > • Diagnosis of Twelfth Nerve Palsy confirms Lyme. > • Immune system healthy. > > VIII. Prescription . Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > > > > > > > > > IX. Conclusion . The most important thing my new LLMD told me today is that Lyme is curable . He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > That's a relief :-) > > Will post again when I have more news. > > Kajay>------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 Thanks dear. His mom and dad passed last year.From: "mitesbegone" <no_reply >bird mites Sent: Wednesday, April 25, 2012 1:48:16 PMSubject: Re: LLMD - First visit trip report + partial labsSo very sorry to hear about him. I know how terrible that disease is. So tragic it can't be controlled. So many end up homeless. God bless, Terry>> Many schizophrenics have terrible infections too that have possibly gone to the brain. I had a nephew with schizophrenia who passed maybe 6 years ago... he lived in terrible conditions. He was in his 40's - God rest his soul. > > Re: LLMD - First visit trip report + partial labs > > > > > > > Shocking Kajay, you are not crazy ?1? ;-) > > You do realise that Minocycline is for schizophrenia though ? > I do hope you got that for your depression only! > > Very interesting info indeed, thank you so much for this ! > > Hug hug > > > > > > Von: Kajay109 <morjella@...> > An: "bird mites@groupscom" <bird mites >; "GeorgiaLyme " <GeorgiaLyme > > Gesendet: 17:09 Mittwoch, 25.April 2012 > Betreff: LLMD - First visit trip report + partial labs [2 Attachments] > > > > > > > > > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > I. Symptoms > > A. LLMD asked what symptoms brought me to him: > > Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) > Night sweats (always a sign of infection; possible causes staph, tuberculosis) > Restless legs syndrome (related, I think) > Severe spasms in feet, sometimes traveling up legs to body - terrifying > > B. LLMD asked me if these symptoms are or have been present: > > Brain fog (no) > Headaches (no) > Chronic fatigue (no) > Muscular aches (no) or spasms (yes) > Overall aches (no) > Sinus issues (yes until F-5 Mar 2011) > Lesions (yes until F-5 Mar 2011) > Depression (yes, in 1997) > Bulls eye rash (yes, in 90's and again in 2009) > > II. Neuro-Muscular Tests > > A. Standing: > He had me walk three different ways. > He had me stand and allow him to just observe my face (tells a doc a lot about us) > He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. > B. Sitting: > He had me push/pull with feet, quads, arms, shoulders etc. > He had me stick out my tongue and relax it. I felt it spasming! " You have Twelfth Nerve Palsy ," he said, and at that point he diagnosed Lyme . > > III. Causes . > > A. Pruritis . P ossible causes include staph, yeast, mycoplasma, leprosy, others . > B. Night Sweats . 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. " Capsules ." Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. > C. Restless Legs Syndrome . Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). > D. Severe Spasms in Feet . D iscussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. > E. Bulls Eye Rash . Occurs only in small percentage of cases. > > IV. Co-Infections . Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. > A. Babesiosis . Does not believe I have this. > B. Bartonella . Can't remember if he thinks I might or might not have this. > > V. Antibiotics . Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > VI. About Lyme . > > > • 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > • Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > • 20% of ticks carry Lyme - not just deer ticks. > • For every five ticks that bite a turkey hunter, one carries Lyme. > • 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > • Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > • Ticks, like snakes, are active most of the year, if not all. > > VII. Diagnosis . > > > • Diagnosis of Twelfth Nerve Palsy confirms Lyme. > • Immune system healthy. > > VIII. Prescription . Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > > > > > > > > > IX. Conclusion . The most important thing my new LLMD told me today is that Lyme is curable . He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > That's a relief :-) > > Will post again when I have more news. > > Kajay>------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 FL1953 is a newly discovered parasite and treated with Ivermectin. I believe it is Fry Labs who looks at the blood for diagnosis. Titers are just a way of measuring concentration for something. From: "Kajay109" <morjella@...>bird mites Sent: Wednesday, April 25, 2012 1:48:32 PMSubject: Re: Re: LLMD - First visit trip report + partial labs , I am not sure what "high titers" is? Also, what is the FL number after Iver?Thx,Kajay From: "Goldstein@..." <Goldstein@...> bird mites Sent: Wednesday, April 25, 2012 3:50 PM Subject: Re: Re: LLMD - First visit trip report + partial labs Here is what my LLMD just changed for me. I just got off the phone with her. She put me on some new drugs (old as I've been on a few of these 3 years ago)...Here are the changes:Mycoplasma (I had high titers from Lab Corp and this can go into the lungs) -ClarithromycinBartonella - Doxy & Rifampin start again, add in CiproShe wants me to start the Nattokinase and InterfaseShe wants to see what I do from those 4 antibiotics and Nattokinase and InterfaseShe also wants me to get Itraconazole - I had been on Diflucan--didn't seem to do much, but it also attacks Lyme.She said to stop Bicillin for now and I just finished 10 days of Metronidazole (Flagyl).If things don't improve she will add Ivermectin (I've been on before) for FL1953.So that's my story Kajay. I so wish you the best of everything with this stuff you have!From: "Kajay109" <morjella@...>bird mites Sent: Wednesday, April 25, 2012 12:42:26 PMSubject: Re: Re: LLMD - First visit trip report + partial labs Hi, , Thank you for the kind words :-)What he said is that the Minocycline will not single out the Lyme and that it will also attack some co-infections.He didn't prescribe any herbals, it isn't his area of expertise. However, he has a high success rate, apparently.Even if they tell me tomorrow that I cannot share his name, I am going to share everything I learn. As always, I am going to TRY to distinguish between what I am certain he said and what I am guessing about. That is why I think it is important to share the documentation, because some of you will see in it things that I would not think to mention. Hopefully at least that will be helpful to those who want the information.Kajay From: mitesbegone <no_reply > bird mites Sent: Wednesday, April 25, 2012 12:52 PM Subject: Re: LLMD - First visit trip report + partial labs Does it seem to be working for you ? > > This is such valuable information Kajay. Thank you for giving us the update on your progress. So happy to hear you went to a LLMD to get treated. You are very thorough too in what you sent, including attachments! I'm impressed! I am also a believer that information from others helps us enormously. I talk to my LLMD today about my ongoing issues and where to go from here. I don't know Minocycline... have not used it. Sounds like he will treat Lyme first and not co-infections (maybe you don't have them...). My doc started on all of them at once and still don't know how sound that was. She gave me scripts for meds and where to buy herbals. > > > > > LLMD - First visit trip report + partial labs [2 Attachments] > > [ Attachment(s) from Kajay109 included below] > > > > > > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > I. Symptoms > > A. LLMD asked what symptoms brought me to him: > > Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) > Night sweats (always a sign of infection; possible causes staph, tuberculosis) > Restless legs syndrome (related, I think) > Severe spasms in feet, sometimes traveling up legs to body - terrifying > > B. LLMD asked me if these symptoms are or have been present: > > Brain fog (no) > Headaches (no) > Chronic fatigue (no) > Muscular aches (no) or spasms (yes) > Overall aches (no) > Sinus issues (yes until F-5 Mar 2011) > Lesions (yes until F-5 Mar 2011) > Depression (yes, in 1997) > Bulls eye rash (yes, in 90's and again in 2009) > > II. Neuro-Muscular Tests > > A. Standing: > He had me walk three different ways. > He had me stand and allow him to just observe my face (tells a doc a lot about us) > He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. > B. Sitting: > He had me push/pull with feet, quads, arms, shoulders etc. > He had me stick out my tongue and relax it. I felt it spasming! " You have Twelfth Nerve Palsy ," he said, and at that point he diagnosed Lyme . > > III. Causes . > > A. Pruritis . P ossible causes include staph, yeast, mycoplasma, leprosy, others . > B. Night Sweats . 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. " Capsules ." Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. > C. Restless Legs Syndrome . Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). > D. Severe Spasms in Feet . D iscussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. > E. Bulls Eye Rash . Occurs only in small percentage of cases. > > IV. Co-Infections . Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. > A. Babesiosis . Does not believe I have this. > B. Bartonella . Can't remember if he thinks I might or might not have this. > > V. Antibiotics . Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > VI. About Lyme . > > > • 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > • Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > • 20% of ticks carry Lyme - not just deer ticks. > • For every five ticks that bite a turkey hunter, one carries Lyme. > • 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > • Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > • Ticks, like snakes, are active most of the year, if not all. > > VII. Diagnosis . > > > • Diagnosis of Twelfth Nerve Palsy confirms Lyme. > • Immune system healthy. > > VIII. Prescription . Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > > > > > > > > > IX. Conclusion . The most important thing my new LLMD told me today is that Lyme is curable . He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > That's a relief :-) > > Will post again when I have more news. > > Kajay > > > > > Attachment(s) from Kajay109 > > 2 of 2 Photo(s) > > > > 2012 > 2012 > > 2011 > 2011 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 It was her suggestion. I think it thins the blood, but could be wrong.From: "Aggi Assmann" <aggi_assmann@...>bird mites Sent: Wednesday, April 25, 2012 1:54:22 PMSubject: Re: Re: LLMD - First visit trip report + partial labs Interesting !We spoke about the Natokinase couple of days back.Was it Aandraya or Kajay who mentioned it for the problem of biofilm? Did you tell your LLMD, or was it her own suggestion? Von: "Goldstein@..." <Goldstein@...>An: bird mites Gesendet: 21:50 Mittwoch, 25.April 2012Betreff: Re: Re: LLMD - First visit trip report + partial labs Here is what my LLMD just changed for me. I just got off the phone with her. She put me on some new drugs (old as I've been on a few of these 3 years ago)... Here are the changes: Mycoplasma (I had high titers from Lab Corp and this can go into the lungs) -Clarithromycin Bartonella - Doxy & Rifampin start again, add in Cipro She wants me to start the Nattokinase and Interfase She wants to see what I do from those 4 antibiotics and Nattokinase and Interfase She also wants me to get Itraconazole - I had been on Diflucan--didn't seem to do much, but it also attacks Lyme. She said to stop Bicillin for now and I just finished 10 days of Metronidazole (Flagyl). If things don't improve she will add Ivermectin (I've been on before) for FL1953. So that's my story Kajay. I so wish you the best of everything with this stuff you have! From: "Kajay109" <morjella@...>bird mites Sent: Wednesday, April 25, 2012 12:42:26 PMSubject: Re: Re: LLMD - First visit trip report + partial labs Hi, , Thank you for the kind words :-) What he said is that the Minocycline will not single out the Lyme and that it will also attack some co-infections. He didn't prescribe any herbals, it isn't his area of expertise. However, he has a high success rate, apparently. Even if they tell me tomorrow that I cannot share his name, I am going to share everything I learn. As always, I am going to TRY to distinguish between what I am certain he said and what I am guessing about. That is why I think it is important to share the documentation, because some of you will see in it things that I would not think to mention. Hopefully at least that will be helpful to those who want the information. Kajay From: mitesbegone <no_reply >bird mites Sent: Wednesday, April 25, 2012 12:52 PMSubject: Re: LLMD - First visit trip report + partial labs Does it seem to be working for you ?>> This is such valuable information Kajay. Thank you for giving us the update on your progress. So happy to hear you went to a LLMD to get treated. You are very thorough too in what you sent, including attachments! I'm impressed! I am also a believer that information from others helps us enormously. I talk to my LLMD today about my ongoing issues and where to go from here. I don't know Minocycline... have not used it. Sounds like he will treat Lyme first and not co-infections (maybe you don't have them...). My doc started on all of them at once and still don't know how sound that was. She gave me scripts for meds and where to buy herbals. > > > > > ----- Original Message -----> From: "Kajay109" <morjella@...> > "bird mites@groupscom" <bird mites >, GeorgiaLyme > Sent: Wednesday, April 25, 2012 8:09:20 AM > Subject: LLMD - First visit trip report + partial labs [2 Attachments] > > [ Attachment(s) from Kajay109 included below] > > > > > > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > I. Symptoms > > A. LLMD asked what symptoms brought me to him: > > Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) > Night sweats (always a sign of infection; possible causes staph, tuberculosis) > Restless legs syndrome (related, I think) > Severe spasms in feet, sometimes traveling up legs to body - terrifying > > B. LLMD asked me if these symptoms are or have been present: > > Brain fog (no) > Headaches (no) > Chronic fatigue (no) > Muscular aches (no) or spasms (yes) > Overall aches (no) > Sinus issues (yes until F-5 Mar 2011) > Lesions (yes until F-5 Mar 2011) > Depression (yes, in 1997) > Bulls eye rash (yes, in 90's and again in 2009) > > II. Neuro-Muscular Tests > > A. Standing: > He had me walk three different ways. > He had me stand and allow him to just observe my face (tells a doc a lot about us) > He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. > B. Sitting: > He had me push/pull with feet, quads, arms, shoulders etc. > He had me stick out my tongue and relax it. I felt it spasming! " You have Twelfth Nerve Palsy ," he said, and at that point he diagnosed Lyme . > > III. Causes . > > A. Pruritis . P ossible causes include staph, yeast, mycoplasma, leprosy, others . > B. Night Sweats . 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. " Capsules ." Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. > C. Restless Legs Syndrome . Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). > D. Severe Spasms in Feet . D iscussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. > E. Bulls Eye Rash . Occurs only in small percentage of cases. > > IV. Co-Infections . Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. > A. Babesiosis . Does not believe I have this. > B. Bartonella . Can't remember if he thinks I might or might not have this. > > V. Antibiotics . Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > VI. About Lyme . > > > • 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > • Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > • 20% of ticks carry Lyme - not just deer ticks. > • For every five ticks that bite a turkey hunter, one carries Lyme. > • 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > • Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > • Ticks, like snakes, are active most of the year, if not all. > > VII. Diagnosis . > > > • Diagnosis of Twelfth Nerve Palsy confirms Lyme. > • Immune system healthy. > > VIII. Prescription . Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > > > > > > > > > IX. Conclusion . The most important thing my new LLMD told me today is that Lyme is curable . He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > That's a relief :-) > > Will post again when I have more news. > > Kajay > > > > > Attachment(s) from Kajay109 > > 2 of 2 Photo(s) > > > > 2012> 2012 > > 2011> 2011> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 I am so sorry that happened. I really don't know how it did that. I wonder if it could be the wi fi at the hotel? My apologies... > > > > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > > > I. Symptoms > > > > ��� A. LLMD asked what symptoms brought me to him: > > > > ������� ������� Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) > > �������������ï\ ¿½ï¿½ Night sweats (always a sign of infection; possible causes staph, tuberculosis) > > �������������ï\ ¿½ï¿½ Restless legs syndrome (related, I think) > > �������������ï\ ¿½ï¿½Severe spasms in feet, sometimes traveling up legs to body - terrifying > > ��� > > ��� B. LLMD asked me if these symptoms are or have been present: > > > > ����������� ��� Brain fog (no) > > ����������� ��� Headaches(no) > > �������������ï\ ¿½ï¿½ Chronic fatigue(no) > > ����������� ��� Muscular aches(no) or spasms (yes) > > �������������ï\ ¿½ï¿½ Overall aches(no) > > ������� ������� Sinus issues (yes until F-5 Mar 2011) > > ����������� ��� Lesions (yes until F-5 Mar 2011) > > ����������� ��� Depression (yes, in 1997) > > ����������� ��� Bulls eye rash(yes, in 90's and again in 2009) > > > > II. Neuro-Muscular Tests > > > > ��� A.��� Standing: > > �������������ï\ ¿½ï¿½ He had me walk three different ways. > > ������� ��� ��� He had me stand and allow him to just observe my face (tells a doc a lot about us) > > ����������� ��� He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. > > ��� B.��� Sitting: > > ����������� ��� He had me push/pull with feet, quads, arms, shoulders etc. > > ��� ��� ��� ��� He had me stick out my tongue and relax it. I felt it spasming! " You have Twelfth Nerve Palsy, " he said, and at that point he diagnosed Lyme. > > > > III. Causes. > > > > ��� A.��� Pruritis. Possible causes include staph, yeast, mycoplasma, leprosy, others. > > ��� B.��� Night Sweats. 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. " Capsules. " Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. > > ��� C.��� Restless Legs Syndrome. Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). > > ��� D.��� Severe Spasms in Feet. Discussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. > > ��� E.��� Bulls Eye Rash.�Occurs only in small percentage of cases. > > > > IV. Co-Infections. Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. > > ��� A.��� Babesiosis. Does not believe I have this. > > ��� B.��� Bartonella. Can't remember if he thinks I might or might not have this. > > > > V.��� Antibiotics. Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > > > VI.�� About Lyme. > > > > * 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > > > > * Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > > * 20% of ticks carry Lyme - not just deer ticks. > > * For every five ticks that bite a turkey hunter, one carries Lyme. > > * 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > > * Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > > * Ticks, like snakes, are active most of the year, if not all. VII.� Diagnosis. > > > > * Diagnosis of Twelfth Nerve Palsy confirms Lyme. > > * Immune system healthy.VIII. Prescription. Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > > > > IX.� Conclusion. The most important thing my new LLMD told me today is that Lyme is curable. He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > > > That's a relief :-) > > > > Will post again when I have more news. > > > > Kajay > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 I believe I have and thank you for your welcome wishes. Aandraya helped me locate him. I will keep you all posted. Thanks, Terry > > > > > > Feels great, doesn't it ? I am way past my depression as well. Life is good again... Thanks to all > > > of you here !!!!! > > > > > > > > > ________________________________ > > > Von: Kajay109 <morjella@> > > > An: " bird mites " <bird mites > > > > Gesendet: 17:53 Mittwoch, 25.April 2012 > > > Betreff: Re: LLMD - First visit trip report + partial labs > > > > > > > > >  > > > Also, Aggi, I haven't been depressed for years! Not since I took my life back from these little rascals! > > > > > > ;-) > > > > > > > > > > > >  > > > ================ > > > Clinical potential of minocycline for schizophrenia. > > > Miyaoka T. > > > Source > > > Department of Psychiatry, Shimane University School of Medicine, Izumo, Japan. miyanyan@ > > > Abstract > > > Minocycline, an antibiotic of the tetracycline family, has been shown to display neurorestorative or neuroprotective properties in various models of neurodegenerative diseases. In particular, it has been shown to delay motor alterations, inflammation and apoptosis in models of Huntington's disease, amyotrophic lateral sclerosis and Parkinson's disease. Despite controversies about its efficacy, the relative safety and tolerability of minocycline have led to various clinical trials. Recently, we reported the antipsychotic effects of minocycline in patients with schizophrenia. In a pilot investigation, we administered minocycline as an open-label adjunct to antipsychotic medication to patients with schizophrenia. The results of this trial suggested that minocycline might be a safe and effective adjunct to antipsychotic medications, and that augmentation with minocycline may prove to be a viable strategy for " boosting " antipsychotic efficacy and for > > treating > > > schizophrenia. The present review summarizes the available data supporting the clinical testing of minocycline for patients with schizophrenia. In addition, we extend our discussion to the potential applications of minocycline for combining this treatment with cellular and molecular therapy > > > > > > > > > > > > ________________________________ > > > Von: " Goldstein@ " <Goldstein@> > > > An: bird mites > > > Gesendet: 17:40 Mittwoch, 25.April 2012 > > > Betreff: Re: LLMD - First visit trip report + partial labs > > > > > > > > >  > > > I looked it up and I didn't see anything about schizophrenia.  What I read said abx is broad spectrum, treats bacterial infections, acne, etc. > > > > > > > > > ________________________________ > > > From: " Kajay109 " <morjella@> > > > bird mites > > > Sent: Wednesday, April 25, 2012 8:34:04 AM > > > Subject: Re: LLMD - First visit trip report + partial labs > > > > > > > > > > > > > > > If it works, I really don't care what's on the label, right :-) ? > > > Thanks, Aggi! > > > > > > > > > ________________________________ > > > From: Aggi Assmann <aggi_assmann@> > > > " bird mites " <bird mites > > > > Sent: Wednesday, April 25, 2012 11:20 AM > > > Subject: Re: LLMD - First visit trip report + partial labs > > > > > > > > >  > > > Shocking Kajay, you are not crazy ?1? ;-) > > >  > > > You do realise that Minocycline is for schizophrenia though ? > > > I do hope you got that for your depression only! > > >  > > > Very interesting info indeed, thank you so much for this ! > > >  > > > Hug hug > > >  > > >  > > > > > > ________________________________ > > > Von: Kajay109 <morjella@> > > > An: " bird mites@groupscom " <bird mites >; " GeorgiaLyme " <GeorgiaLyme > > > > Gesendet: 17:09 Mittwoch, 25.April 2012 > > > Betreff: LLMD - First visit trip report + partial labs [2 Attachments] > > > > > > > > >  > > > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > > > > > I. Symptoms > > > > > >    A. LLMD asked what symptoms brought me to him: > > > > > >               Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) > > >         ÂÂÂ\  Ãƒâ€šÃ‚ Ã‚ Â Â Â Â Night sweats (always a sign of infection; possible causes staph, tuberculosis) > > >         ÂÂÂ\  Ãƒâ€šÃ‚ Ã‚ Â Â Â Â Restless legs syndrome (related, I think) > > >         ÂÂÂ\  Ãƒâ€šÃ‚ Ã‚ Â Â Â Â Severe spasms in feet, sometimes traveling up legs to body - terrifying > > >    > > >    B. LLMD asked me if these symptoms are or have been present: > > > > > >         ÂÂÂ\  Ãƒâ€šÃ‚ Ã‚ Â Â Â Brain fog (no) > > >         ÂÂÂ\  Ãƒâ€šÃ‚ Ã‚ Â Â Â Headaches(no) > > >         ÂÂÂ\  Ãƒâ€šÃ‚ Ã‚ Â Â Â Â Chronic fatigue(no) > > >         ÂÂÂ\  Ãƒâ€šÃ‚ Ã‚ Â Â Â Muscular aches(no) or spasms (yes) > > >         ÂÂÂ\  Ãƒâ€šÃ‚ Ã‚ Â Â Â Â Overall aches(no) > > >               Sinus issues (yes until F-5 Mar 2011) > > >         ÂÂÂ\  Ãƒâ€šÃ‚ Ã‚ Â Â Â Lesions (yes until F-5 Mar 2011) > > >         ÂÂÂ\  Ãƒâ€šÃ‚ Ã‚ Â Â Â Depression (yes, in 1997) > > >         ÂÂÂ\  Ãƒâ€šÃ‚ Ã‚ Â Â Â Bulls eye rash(yes, in 90's and again in 2009) > > > > > > II. Neuro-Muscular Tests > > > > > >    A.   Standing: > > >         ÂÂÂ\  Ãƒâ€šÃ‚ Ã‚ Â Â Â Â He had me walk three different ways. > > >              He had me stand and allow him to just observe my face (tells a doc a lot about us) > > >         ÂÂÂ\  Ãƒâ€šÃ‚ Ã‚ Â Â Â He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. > > >    B.   Sitting: > > >         ÂÂÂ\  Ãƒâ€šÃ‚ Ã‚ Â Â Â He had me push/pull with feet, quads, arms, shoulders etc. > > >             He had me stick out my tongue and relax it. I felt it spasming! " You have Twelfth Nerve Palsy, " he said, and at that point he diagnosed Lyme. > > > > > > III. Causes. > > > > > >    A.   Pruritis. Possible causes include staph, yeast, mycoplasma, leprosy, others. > > >    B.   Night Sweats. 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. " Capsules. " Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. > > >    C.   Restless Legs Syndrome. Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). > > >    D.   Severe Spasms in Feet. Discussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. > > >    E.   Bulls Eye Rash. Occurs only in small percentage of cases. > > > > > > IV. Co-Infections. Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. > > >    A.   Babesiosis. Does not believe I have this. > > >    B.   Bartonella. Can't remember if he thinks I might or might not have this. > > > > > > V.   Antibiotics. Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > > > > > VI.  About Lyme. > > > > > > * 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > > > > > > * Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > > > * 20% of ticks carry Lyme - not just deer ticks. > > > * For every five ticks that bite a turkey hunter, one carries Lyme. > > > * 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > > > * Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > > > * Ticks, like snakes, are active most of the year, if not all. VII. Diagnosis. > > > > > > * Diagnosis of Twelfth Nerve Palsy confirms Lyme. > > > * Immune system healthy.VIII. Prescription. Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > > > > > > > IX. Conclusion. The most important thing my new LLMD told me today is that Lyme is curable. He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > > > > > That's a relief :-) > > > > > > Will post again when I have more news. > > > > > > Kajay > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 Yes, they were. My dentist did not say anything to me about it as far as being a problem. I wondered about it since as soon as I got the fillings I had my whole mouth well up with an abscess in my jaw. Almost spread into the bone. Oh no...I guess I need to research this. Any idea where to start. I know my dentist is going to be tough. I don't think I like them very much anyway. I swore I would not go back to them. Dang! Thanks for letting me know. Terry > > > > > > > > > > > > > > > > > > > > Clinical potential of minocycline for schizophrenia. > > > > Miyaoka T . > > Source > > > > Department of Psychiatry, Shimane University School of Medicine, Izumo, Japan. miyanyan@ > > Abstract > > > > Minocycline, an antibiotic of the tetracycline family, has been shown to display neurorestorative or neuroprotective properties in various models of neurodegenerative diseases. In particular, it has been shown to delay motor alterations, inflammation and apoptosis in models of Huntington's disease, amyotrophic lateral sclerosis and Parkinson's disease. Despite controversies about its efficacy, the relative safety and tolerability of minocycline have led to various clinical trials. Recently, we reported the antipsychotic effects of minocycline in patients with schizophrenia. In a pilot investigation, we administered minocycline as an open-label adjunct to antipsychotic medication to patients with schizophrenia. The results of this trial suggested that minocycline might be a safe and effective adjunct to antipsychotic medications, and that augmentation with minocycline may prove to be a viable strategy for " boosting " antipsychotic efficacy and for treating schizophrenia. The present review summarizes the available data supporting the clinical testing of minocycline for patients with schizophrenia. In addition, we extend our discussion to the potential applications of minocycline for combining this treatment with cellular and molecular therapy > > > > > > > > > > > > > > Von: " Goldstein@ " < Goldstein@ > > > An: bird mites > > Gesendet: 17:40 Mittwoch, 25.April 2012 > > Betreff: Re: LLMD - First visit trip report + partial labs > > > > > > > > > > > > I looked it up and I didn't see anything about schizophrenia. What I read said abx is broad spectrum, treats bacterial infections, acne, etc. > > > > > > From: " Kajay109 " < morjella@ > > > bird mites > > Sent: Wednesday, April 25, 2012 8:34:04 AM > > Subject: Re: LLMD - First visit trip report + partial labs > > > > > > > > > > > > If it works, I really don't care what's on the label, right :-) ? > > Thanks, Aggi! > > > > > > > > > > > > From: Aggi Assmann <aggi_assmann@> > > " bird mites " <bird mites > > > Sent: Wednesday, April 25, 2012 11:20 AM > > Subject: Re: LLMD - First visit trip report + partial labs > > > > > > > > > > > > > > Shocking Kajay, you are not crazy ?1? ;-) > > > > You do realise that Minocycline is for schizophrenia though ? > > I do hope you got that for your depression only! > > > > Very interesting info indeed, thank you so much for this ! > > > > Hug hug > > > > > > > > > > > > Von: Kajay109 <morjella@> > > An: " bird mites@groupscom " <bird mites >; " GeorgiaLyme " <GeorgiaLyme > > > Gesendet: 17:09 Mittwoch, 25.April 2012 > > Betreff: LLMD - First visit trip report + partial labs [2 Attachments] > > > > > > > > > > > > > > > > > > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > > > I. Symptoms > > > > A. LLMD asked what symptoms brought me to him: > > > > Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) > > Night sweats (always a sign of infection; possible causes staph, tuberculosis) > > Restless legs syndrome (related, I think) > > Severe spasms in feet, sometimes traveling up legs to body - terrifying > > > > B. LLMD asked me if these symptoms are or have been present: > > > > Brain fog (no) > > Headaches (no) > > Chronic fatigue (no) > > Muscular aches (no) or spasms (yes) > > Overall aches (no) > > Sinus issues (yes until F-5 Mar 2011) > > Lesions (yes until F-5 Mar 2011) > > Depression (yes, in 1997) > > Bulls eye rash (yes, in 90's and again in 2009) > > > > II. Neuro-Muscular Tests > > > > A. Standing: > > He had me walk three different ways. > > He had me stand and allow him to just observe my face (tells a doc a lot about us) > > He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. > > B. Sitting: > > He had me push/pull with feet, quads, arms, shoulders etc. > > He had me stick out my tongue and relax it. I felt it spasming! " You have Twelfth Nerve Palsy , " he said, and at that point he diagnosed Lyme . > > > > III. Causes . > > > > A. Pruritis . P ossible causes include staph, yeast, mycoplasma, leprosy, others . > > B. Night Sweats . 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. " Capsules . " Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. > > C. Restless Legs Syndrome . Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). > > D. Severe Spasms in Feet . D iscussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. > > E. Bulls Eye Rash . Occurs only in small percentage of cases. > > > > IV. Co-Infections . Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. > > A. Babesiosis . Does not believe I have this. > > B. Bartonella . Can't remember if he thinks I might or might not have this. > > > > V. Antibiotics . Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > > > VI. About Lyme . > > > > > > • 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > > • Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > > • 20% of ticks carry Lyme - not just deer ticks. > > • For every five ticks that bite a turkey hunter, one carries Lyme. > > • 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > > • Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > > • Ticks, like snakes, are active most of the year, if not all. > > > > VII. Diagnosis . > > > > > > • Diagnosis of Twelfth Nerve Palsy confirms Lyme. > > • Immune system healthy. > > > > VIII. Prescription . Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > > > > > > > > > > > > > > > > > > > > IX. Conclusion . The most important thing my new LLMD told me today is that Lyme is curable . He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > > > That's a relief :-) > > > > Will post again when I have more news. > > > > Kajay > > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 Oh how very sad. What a sad tragic life for him, you and his whole family. > > > > Many schizophrenics have terrible infections too that have possibly gone to the brain. I had a nephew with schizophrenia who passed maybe 6 years ago... he lived in terrible conditions. He was in his 40's - God rest his soul. > > > > Re: LLMD - First visit trip report + partial labs > > > > > > > > > > > > > > Shocking Kajay, you are not crazy ?1? ;-) > > > > You do realise that Minocycline is for schizophrenia though ? > > I do hope you got that for your depression only! > > > > Very interesting info indeed, thank you so much for this ! > > > > Hug hug > > > > > > > > > > > > Von: Kajay109 <morjella@> > > An: " bird mites@groupscom " <bird mites >; " GeorgiaLyme " <GeorgiaLyme > > > Gesendet: 17:09 Mittwoch, 25.April 2012 > > Betreff: LLMD - First visit trip report + partial labs [2 Attachments] > > > > > > > > > > > > > > > > > > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > > > I. Symptoms > > > > A. LLMD asked what symptoms brought me to him: > > > > Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) > > Night sweats (always a sign of infection; possible causes staph, tuberculosis) > > Restless legs syndrome (related, I think) > > Severe spasms in feet, sometimes traveling up legs to body - terrifying > > > > B. LLMD asked me if these symptoms are or have been present: > > > > Brain fog (no) > > Headaches (no) > > Chronic fatigue (no) > > Muscular aches (no) or spasms (yes) > > Overall aches (no) > > Sinus issues (yes until F-5 Mar 2011) > > Lesions (yes until F-5 Mar 2011) > > Depression (yes, in 1997) > > Bulls eye rash (yes, in 90's and again in 2009) > > > > II. Neuro-Muscular Tests > > > > A. Standing: > > He had me walk three different ways. > > He had me stand and allow him to just observe my face (tells a doc a lot about us) > > He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. > > B. Sitting: > > He had me push/pull with feet, quads, arms, shoulders etc. > > He had me stick out my tongue and relax it. I felt it spasming! " You have Twelfth Nerve Palsy , " he said, and at that point he diagnosed Lyme . > > > > III. Causes . > > > > A. Pruritis . P ossible causes include staph, yeast, mycoplasma, leprosy, others . > > B. Night Sweats . 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. " Capsules . " Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. > > C. Restless Legs Syndrome . Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). > > D. Severe Spasms in Feet . D iscussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. > > E. Bulls Eye Rash . Occurs only in small percentage of cases. > > > > IV. Co-Infections . Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. > > A. Babesiosis . Does not believe I have this. > > B. Bartonella . Can't remember if he thinks I might or might not have this. > > > > V. Antibiotics . Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > > > VI. About Lyme . > > > > > > • 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > > • Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > > • 20% of ticks carry Lyme - not just deer ticks. > > • For every five ticks that bite a turkey hunter, one carries Lyme. > > • 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > > • Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > > • Ticks, like snakes, are active most of the year, if not all. > > > > VII. Diagnosis . > > > > > > • Diagnosis of Twelfth Nerve Palsy confirms Lyme. > > • Immune system healthy. > > > > VIII. Prescription . Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > > > > > > > > > > > > > > > > > > > > IX. Conclusion . The most important thing my new LLMD told me today is that Lyme is curable . He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > > > That's a relief :-) > > > > Will post again when I have more news. > > > > Kajay > > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 I read a book called It's All in Your Head, by Hal Huggins, DDS.http://www.whale.to/b/huggins_h.htmlFrom: "mitesbegone" <no_reply >bird mites Sent: Wednesday, April 25, 2012 3:17:44 PMSubject: Re: LLMD - First visit trip report + partial labsYes, they were. My dentist did not say anything to me about it as far as being a problem. I wondered about it since as soon as I got the fillings I had my whole mouth well up with an abscess in my jaw. Almost spread into the bone. Oh no...I guess I need to research this. Any idea where to start. I know my dentist is going to be tough. I don't think I like them very much anyway. I swore I would not go back to them. Dang! Thanks for letting me know.Terry > > > > > > > > > > > > > > > > > > > > Clinical potential of minocycline for schizophrenia. > > > > Miyaoka T . > > Source > > > > Department of Psychiatry, Shimane University School of Medicine, Izumo, Japan. miyanyan@ > > Abstract > > > > Minocycline, an antibiotic of the tetracycline family, has been shown to display neurorestorative or neuroprotective properties in various models of neurodegenerative diseases. In particular, it has been shown to delay motor alterations, inflammation and apoptosis in models of Huntington's disease, amyotrophic lateral sclerosis and Parkinson's disease. Despite controversies about its efficacy, the relative safety and tolerability of minocycline have led to various clinical trials. Recently, we reported the antipsychotic effects of minocycline in patients with schizophrenia. In a pilot investigation, we administered minocycline as an open-label adjunct to antipsychotic medication to patients with schizophrenia. The results of this trial suggested that minocycline might be a safe and effective adjunct to antipsychotic medications, and that augmentation with minocycline may prove to be a viable strategy for "boosting" antipsychotic efficacy and for treating schizophrenia. The present review summarizes the available data supporting the clinical testing of minocycline for patients with schizophrenia. In addition, we extend our discussion to the potential applications of minocycline for combining this treatment with cellular and molecular therapy > > > > > > > > > > > > > > Von: " Goldstein@ " < Goldstein@ > > > An: bird mites > > Gesendet: 17:40 Mittwoch, 25.April 2012 > > Betreff: Re: LLMD - First visit trip report + partial labs > > > > > > > > > > > > I looked it up and I didn't see anything about schizophrenia. What I read said abx is broad spectrum, treats bacterial infections, acne, etc. > > > > > > From: "Kajay109" < morjella@ > > > bird mites > > Sent: Wednesday, April 25, 2012 8:34:04 AM > > Subject: Re: LLMD - First visit trip report + partial labs > > > > > > > > > > > > If it works, I really don't care what's on the label, right :-) ? > > Thanks, Aggi! > > > > > > > > > > > > From: Aggi Assmann <aggi_assmann@> > > "bird mites " <bird mites > > > Sent: Wednesday, April 25, 2012 11:20 AM > > Subject: Re: LLMD - First visit trip report + partial labs > > > > > > > > > > > > > > Shocking Kajay, you are not crazy ?1? ;-) > > > > You do realise that Minocycline is for schizophrenia though ? > > I do hope you got that for your depression only! > > > > Very interesting info indeed, thank you so much for this ! > > > > Hug hug > > > > > > > > > > > > Von: Kajay109 <morjella@> > > An: "bird mites@groupscom" <bird mites >; "GeorgiaLyme " <GeorgiaLyme > > > Gesendet: 17:09 Mittwoch, 25.April 2012 > > Betreff: LLMD - First visit trip report + partial labs [2 Attachments] > > > > > > > > > > > > > > > > > > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > > > I. Symptoms > > > > A. LLMD asked what symptoms brought me to him: > > > > Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) > > Night sweats (always a sign of infection; possible causes staph, tuberculosis) > > Restless legs syndrome (related, I think) > > Severe spasms in feet, sometimes traveling up legs to body - terrifying > > > > B. LLMD asked me if these symptoms are or have been present: > > > > Brain fog (no) > > Headaches (no) > > Chronic fatigue (no) > > Muscular aches (no) or spasms (yes) > > Overall aches (no) > > Sinus issues (yes until F-5 Mar 2011) > > Lesions (yes until F-5 Mar 2011) > > Depression (yes, in 1997) > > Bulls eye rash (yes, in 90's and again in 2009) > > > > II. Neuro-Muscular Tests > > > > A. Standing: > > He had me walk three different ways. > > He had me stand and allow him to just observe my face (tells a doc a lot about us) > > He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. > > B. Sitting: > > He had me push/pull with feet, quads, arms, shoulders etc. > > He had me stick out my tongue and relax it. I felt it spasming! " You have Twelfth Nerve Palsy ," he said, and at that point he diagnosed Lyme . > > > > III. Causes . > > > > A. Pruritis . P ossible causes include staph, yeast, mycoplasma, leprosy, others . > > B. Night Sweats . 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. " Capsules ." Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. > > C. Restless Legs Syndrome . Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). > > D. Severe Spasms in Feet . D iscussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. > > E. Bulls Eye Rash . Occurs only in small percentage of cases. > > > > IV. Co-Infections . Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. > > A. Babesiosis . Does not believe I have this. > > B. Bartonella . Can't remember if he thinks I might or might not have this. > > > > V. Antibiotics . Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > > > VI. About Lyme . > > > > > > • 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > > • Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > > • 20% of ticks carry Lyme - not just deer ticks. > > • For every five ticks that bite a turkey hunter, one carries Lyme. > > • 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > > • Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > > • Ticks, like snakes, are active most of the year, if not all. > > > > VII. Diagnosis . > > > > > > • Diagnosis of Twelfth Nerve Palsy confirms Lyme. > > • Immune system healthy. > > > > VIII. Prescription . Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > > > > > > > > > > > > > > > > > > > > IX. Conclusion . The most important thing my new LLMD told me today is that Lyme is curable . He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > > > That's a relief :-) > > > > Will post again when I have more news. > > > > Kajay > > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 Oh thanks, I will check it out. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Clinical potential of minocycline for schizophrenia. > > > > > > Miyaoka T . > > > Source > > > > > > Department of Psychiatry, Shimane University School of Medicine, Izumo, Japan. miyanyan@ > > > Abstract > > > > > > Minocycline, an antibiotic of the tetracycline family, has been shown to display neurorestorative or neuroprotective properties in various models of neurodegenerative diseases. In particular, it has been shown to delay motor alterations, inflammation and apoptosis in models of Huntington's disease, amyotrophic lateral sclerosis and Parkinson's disease. Despite controversies about its efficacy, the relative safety and tolerability of minocycline have led to various clinical trials. Recently, we reported the antipsychotic effects of minocycline in patients with schizophrenia. In a pilot investigation, we administered minocycline as an open-label adjunct to antipsychotic medication to patients with schizophrenia. The results of this trial suggested that minocycline might be a safe and effective adjunct to antipsychotic medications, and that augmentation with minocycline may prove to be a viable strategy for " boosting " antipsychotic efficacy and for treating schizophrenia. The present review summarizes the available data supporting the clinical testing of minocycline for patients with schizophrenia. In addition, we extend our discussion to the potential applications of minocycline for combining this treatment with cellular and molecular therapy > > > > > > > > > > > > > > > > > > > > > Von: " Goldstein@ " < Goldstein@ > > > > An: bird mites > > > Gesendet: 17:40 Mittwoch, 25.April 2012 > > > Betreff: Re: LLMD - First visit trip report + partial labs > > > > > > > > > > > > > > > > > > I looked it up and I didn't see anything about schizophrenia. What I read said abx is broad spectrum, treats bacterial infections, acne, etc. > > > > > > > > > From: " Kajay109 " < morjella@ > > > > bird mites > > > Sent: Wednesday, April 25, 2012 8:34:04 AM > > > Subject: Re: LLMD - First visit trip report + partial labs > > > > > > > > > > > > > > > > > > If it works, I really don't care what's on the label, right :-) ? > > > Thanks, Aggi! > > > > > > > > > > > > > > > > > > From: Aggi Assmann <aggi_assmann@> > > > " bird mites " <bird mites > > > > Sent: Wednesday, April 25, 2012 11:20 AM > > > Subject: Re: LLMD - First visit trip report + partial labs > > > > > > > > > > > > > > > > > > > > > Shocking Kajay, you are not crazy ?1? ;-) > > > > > > You do realise that Minocycline is for schizophrenia though ? > > > I do hope you got that for your depression only! > > > > > > Very interesting info indeed, thank you so much for this ! > > > > > > Hug hug > > > > > > > > > > > > > > > > > > Von: Kajay109 <morjella@> > > > An: " bird mites@groupscom " <bird mites >; " GeorgiaLyme " <GeorgiaLyme > > > > Gesendet: 17:09 Mittwoch, 25.April 2012 > > > Betreff: LLMD - First visit trip report + partial labs [2 Attachments] > > > > > > > > > > > > > > > > > > > > > > > > > > > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > > > > > I. Symptoms > > > > > > A. LLMD asked what symptoms brought me to him: > > > > > > Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) > > > Night sweats (always a sign of infection; possible causes staph, tuberculosis) > > > Restless legs syndrome (related, I think) > > > Severe spasms in feet, sometimes traveling up legs to body - terrifying > > > > > > B. LLMD asked me if these symptoms are or have been present: > > > > > > Brain fog (no) > > > Headaches (no) > > > Chronic fatigue (no) > > > Muscular aches (no) or spasms (yes) > > > Overall aches (no) > > > Sinus issues (yes until F-5 Mar 2011) > > > Lesions (yes until F-5 Mar 2011) > > > Depression (yes, in 1997) > > > Bulls eye rash (yes, in 90's and again in 2009) > > > > > > II. Neuro-Muscular Tests > > > > > > A. Standing: > > > He had me walk three different ways. > > > He had me stand and allow him to just observe my face (tells a doc a lot about us) > > > He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. > > > B. Sitting: > > > He had me push/pull with feet, quads, arms, shoulders etc. > > > He had me stick out my tongue and relax it. I felt it spasming! " You have Twelfth Nerve Palsy , " he said, and at that point he diagnosed Lyme . > > > > > > III. Causes . > > > > > > A. Pruritis . P ossible causes include staph, yeast, mycoplasma, leprosy, others . > > > B. Night Sweats . 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. " Capsules . " Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. > > > C. Restless Legs Syndrome . Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). > > > D. Severe Spasms in Feet . D iscussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. > > > E. Bulls Eye Rash . Occurs only in small percentage of cases. > > > > > > IV. Co-Infections . Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. > > > A. Babesiosis . Does not believe I have this. > > > B. Bartonella . Can't remember if he thinks I might or might not have this. > > > > > > V. Antibiotics . Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > > > > > VI. About Lyme . > > > > > > > > > • 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > > > • Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > > > • 20% of ticks carry Lyme - not just deer ticks. > > > • For every five ticks that bite a turkey hunter, one carries Lyme. > > > • 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > > > • Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > > > • Ticks, like snakes, are active most of the year, if not all. > > > > > > VII. Diagnosis . > > > > > > > > > • Diagnosis of Twelfth Nerve Palsy confirms Lyme. > > > • Immune system healthy. > > > > > > VIII. Prescription . Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > IX. Conclusion . The most important thing my new LLMD told me today is that Lyme is curable . He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > > > > > That's a relief :-) > > > > > > Will post again when I have more news. > > > > > > Kajay > > > > > > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 Sorry my answers are so short BTW, I have terrible hand pain. Wish I could give more details, but I feel for ya!From: "mitesbegone" <no_reply >bird mites Sent: Wednesday, April 25, 2012 3:45:38 PMSubject: Re: LLMD - First visit trip report + partial labsOh thanks, I will check it out. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Clinical potential of minocycline for schizophrenia. > > > > > > Miyaoka T . > > > Source > > > > > > Department of Psychiatry, Shimane University School of Medicine, Izumo, Japan. miyanyan@ > > > Abstract > > > > > > Minocycline, an antibiotic of the tetracycline family, has been shown to display neurorestorative or neuroprotective properties in various models of neurodegenerative diseases. In particular, it has been shown to delay motor alterations, inflammation and apoptosis in models of Huntington's disease, amyotrophic lateral sclerosis and Parkinson's disease. Despite controversies about its efficacy, the relative safety and tolerability of minocycline have led to various clinical trials. Recently, we reported the antipsychotic effects of minocycline in patients with schizophrenia. In a pilot investigation, we administered minocycline as an open-label adjunct to antipsychotic medication to patients with schizophrenia. The results of this trial suggested that minocycline might be a safe and effective adjunct to antipsychotic medications, and that augmentation with minocycline may prove to be a viable strategy for "boosting" antipsychotic efficacy and for treating schizophrenia. The present review summarizes the available data supporting the clinical testing of minocycline for patients with schizophrenia. In addition, we extend our discussion to the potential applications of minocycline for combining this treatment with cellular and molecular therapy > > > > > > > > > > > > > > > > > > > > > Von: " Goldstein@ " < Goldstein@ > > > > An: bird mites > > > Gesendet: 17:40 Mittwoch, 25.April 2012 > > > Betreff: Re: LLMD - First visit trip report + partial labs > > > > > > > > > > > > > > > > > > I looked it up and I didn't see anything about schizophrenia. What I read said abx is broad spectrum, treats bacterial infections, acne, etc. > > > > > > > > > From: "Kajay109" < morjella@ > > > > bird mites > > > Sent: Wednesday, April 25, 2012 8:34:04 AM > > > Subject: Re: LLMD - First visit trip report + partial labs > > > > > > > > > > > > > > > > > > If it works, I really don't care what's on the label, right :-) ? > > > Thanks, Aggi! > > > > > > > > > > > > > > > > > > From: Aggi Assmann <aggi_assmann@> > > > "bird mites " <bird mites > > > > Sent: Wednesday, April 25, 2012 11:20 AM > > > Subject: Re: LLMD - First visit trip report + partial labs > > > > > > > > > > > > > > > > > > > > > Shocking Kajay, you are not crazy ?1? ;-) > > > > > > You do realise that Minocycline is for schizophrenia though ? > > > I do hope you got that for your depression only! > > > > > > Very interesting info indeed, thank you so much for this ! > > > > > > Hug hug > > > > > > > > > > > > > > > > > > Von: Kajay109 <morjella@> > > > An: "bird mites@groupscom" <bird mites >; "GeorgiaLyme " <GeorgiaLyme > > > > Gesendet: 17:09 Mittwoch, 25.April 2012 > > > Betreff: LLMD - First visit trip report + partial labs [2 Attachments] > > > > > > > > > > > > > > > > > > > > > > > > > > > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > > > > > I. Symptoms > > > > > > A. LLMD asked what symptoms brought me to him: > > > > > > Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) > > > Night sweats (always a sign of infection; possible causes staph, tuberculosis) > > > Restless legs syndrome (related, I think) > > > Severe spasms in feet, sometimes traveling up legs to body - terrifying > > > > > > B. LLMD asked me if these symptoms are or have been present: > > > > > > Brain fog (no) > > > Headaches (no) > > > Chronic fatigue (no) > > > Muscular aches (no) or spasms (yes) > > > Overall aches (no) > > > Sinus issues (yes until F-5 Mar 2011) > > > Lesions (yes until F-5 Mar 2011) > > > Depression (yes, in 1997) > > > Bulls eye rash (yes, in 90's and again in 2009) > > > > > > II. Neuro-Muscular Tests > > > > > > A. Standing: > > > He had me walk three different ways. > > > He had me stand and allow him to just observe my face (tells a doc a lot about us) > > > He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. > > > B. Sitting: > > > He had me push/pull with feet, quads, arms, shoulders etc. > > > He had me stick out my tongue and relax it. I felt it spasming! " You have Twelfth Nerve Palsy ," he said, and at that point he diagnosed Lyme . > > > > > > III. Causes . > > > > > > A. Pruritis . P ossible causes include staph, yeast, mycoplasma, leprosy, others . > > > B. Night Sweats . 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. " Capsules ." Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. > > > C. Restless Legs Syndrome . Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). > > > D. Severe Spasms in Feet . D iscussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. > > > E. Bulls Eye Rash . Occurs only in small percentage of cases. > > > > > > IV. Co-Infections . Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. > > > A. Babesiosis . Does not believe I have this. > > > B. Bartonella . Can't remember if he thinks I might or might not have this. > > > > > > V. Antibiotics . Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > > > > > VI. About Lyme . > > > > > > > > > • 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > > > • Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > > > • 20% of ticks carry Lyme - not just deer ticks. > > > • For every five ticks that bite a turkey hunter, one carries Lyme. > > > • 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > > > • Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > > > • Ticks, like snakes, are active most of the year, if not all. > > > > > > VII. Diagnosis . > > > > > > > > > • Diagnosis of Twelfth Nerve Palsy confirms Lyme. > > > • Immune system healthy. > > > > > > VIII. Prescription . Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > IX. Conclusion . The most important thing my new LLMD told me today is that Lyme is curable . He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > > > > > That's a relief :-) > > > > > > Will post again when I have more news. > > > > > > Kajay > > > > > > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
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