Re: [GeorgiaLyme] LLMD - First visit trip report

[Guest guest]

Hi, everyone,I have already started receiving requests for the name of this wonderful doctor, whom I am admittedly SO blessed to be able to see myself. I wish I could clone him. He only sees patients three days of the week as he is semi-retired, so I am doubtful of his desire to expand

his patient base very much. Naturally I wish he could see all of us and

get us all well once and for all, and that could happen :-) If he really does (as I think he does) get a lot of Lyme sufferers well, then he might have a high patient turnover. I have emailed his assistant for instructions as to

how they wish me to handle requests for his name. They are closed today

-- I will call tomorrow and follow up on my email, and then I will post

an update to this message to let all of you know what he said and what,

if anything, you can do. Cross your fingers :-)Love,Kajay From: Kajay109 <morjella@...> "bird mites@groupscom" <bird mites >; "GeorgiaLyme " <GeorgiaLyme >

Sent: Wednesday, April 25, 2012 11:09 AM Subject: [GeorgiaLyme] LLMD - First visit trip report + partial labs [2 Attachments]

I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now.I. Symptoms A. LLMD asked what

symptoms brought me to him: Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) Night sweats (always a sign of infection; possible causes staph, tuberculosis) Restless legs syndrome (related, I think) Severe spasms in feet, sometimes traveling up legs to body - terrifying B. LLMD asked me if these symptoms are or have been present: Brain fog (no) Headaches (no) Chronic fatigue (no) Muscular aches (no) or spasms (yes) Overall aches (no) Sinus issues (yes until F-5 Mar 2011) Lesions (yes until F-5 Mar 2011) Depression (yes, in 1997)

Bulls eye rash (yes, in 90's and again in 2009)II. Neuro-Muscular Tests A. Standing: He had me walk three different ways. He had me stand and allow him to just observe my face (tells a doc a lot about

us) He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. B. Sitting: He had me push/pull with feet, quads, arms,

shoulders etc.

He had me stick out my tongue and relax it. I felt it spasming! "You have Twelfth Nerve Palsy," he said, and at that point he diagnosed

Lyme. III.

Causes. A. Pruritis. Possible causes include staph, yeast, mycoplasma, leprosy, others. B. Night Sweats. 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. "Capsules." Said EPO has antibiotic properties. Agreed it does not cure the

infection though since I have to keep going back to the EPO to control the night sweats when they return. C. Restless Legs Syndrome. Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). D. Severe Spasms in Feet. Discussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to

control spasms. E. Bulls Eye Rash. Occurs only in small percentage of cases. IV. Co-Infections. Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. A. Babesiosis. Does not believe I have this. B. Bartonella. Can't remember if he thinks I might or might not have this.V. Antibiotics. Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme.VI. About Lyme. 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite.Turkey hunters sit at the base of trees. They also get

bitten by ticks more often than they realize.20% of ticks carry Lyme - not just deer

ticks.For every five ticks that bite a turkey hunter, one carries Lyme.100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones).Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. Ticks, like snakes, are active most of the year, if not all. VII. Diagnosis. Diagnosis of Twelfth Nerve Palsy confirms Lyme. Immune system healthy.VIII. Prescription. Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics.IX. Conclusion. The most important thing my new LLMD told me today is that Lyme is curable. He said that once we clear up the infections associated with Lyme, that may take

care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. That's a relief :-)Will

post again when I have more news.Kajay

[Guest guest]

CROSSED !!!

Von: Kajay109 <morjella@...>An: "GeorgiaLyme " <GeorgiaLyme >; "bird mites@groupscom" <bird mites > Gesendet: 21:22 Mittwoch, 25.April 2012Betreff: Re: [GeorgiaLyme] LLMD - First visit trip report

Hi, everyone,

I have already started receiving requests for the name of this wonderful doctor, whom I am admittedly SO blessed to be able to see myself. I wish I could clone him. He only sees patients three days of the week as he is semi-retired, so I am doubtful of his desire to expand his patient base very much. Naturally I wish he could see all of us and get us all well once and for all, and that could happen :-)

If he really does (as I think he does) get a lot of Lyme sufferers well, then he might have a high patient turnover.

I have emailed his assistant for instructions as to how they wish me to handle requests for his name. They are closed today -- I will call tomorrow and follow up on my email, and then I will post an update to this message to let all of you know what he said and what, if anything, you can do. Cross your fingers :-)

Love,

Kajay

From: Kajay109 <morjella@...>"bird mites@groupscom" <bird mites >; "GeorgiaLyme " <GeorgiaLyme > Sent: Wednesday, April 25, 2012 11:09 AMSubject: [GeorgiaLyme] LLMD - First visit trip report + partial labs [2 Attachments]

I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now.I. Symptoms A. LLMD asked what symptoms brought me to him: Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) Night sweats (always a sign of infection; possible causes staph, tuberculosis) Restless legs syndrome (related, I think) Severe spasms in feet, sometimes traveling up legs to body - terrifying B. LLMD asked me if these symptoms are or have been present: Brain fog (no) Headaches (no) Chronic fatigue (no) Muscular aches (no) or spasms (yes) Overall aches (no) Sinus issues (yes until F-5 Mar 2011) Lesions (yes until F-5 Mar 2011) Depression (yes, in 1997) Bulls eye rash (yes, in 90's and again in 2009)II. Neuro-Muscular Tests A. Standing: He had me walk three different ways. He had me stand and allow him to just observe my face (tells a doc a lot about us) He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. B. Sitting: He had me push/pull with feet, quads, arms, shoulders etc.

He had me stick out my tongue and relax it. I felt it spasming! "You have Twelfth Nerve Palsy," he said, and at that point he diagnosed Lyme. III. Causes. A. Pruritis. Possible causes include staph, yeast, mycoplasma, leprosy, others. B. Night Sweats. 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. "Capsules." Said EPO has antibiotic properties.

Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. C. Restless Legs Syndrome. Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). D. Severe Spasms in Feet. Discussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support

supplement to control spasms. E. Bulls Eye Rash. Occurs only in small percentage of cases. IV. Co-Infections. Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. A. Babesiosis. Does not believe I have this. B. Bartonella. Can't remember if he thinks I might or might not have this.V. Antibiotics. Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme.VI. About Lyme.

112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite.

Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize.

20% of ticks carry Lyme - not just deer ticks.

For every five ticks that bite a turkey hunter, one carries Lyme.

100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones).

Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state.

Ticks, like snakes, are active most of the year, if not all. VII. Diagnosis.

Diagnosis of Twelfth Nerve Palsy confirms Lyme.

Immune system healthy.VIII. Prescription. Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics.

IX. Conclusion. The most important thing my new LLMD told me today is that Lyme is curable. He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. That's a relief :-)Will post again when I have more news.Kajay

[Guest guest]

Hey, that would be wonderful, but really, he helped you and therefore, he helped

us all. And unless you are on the west coast, I am not sure I could see him.

But thanks for thinking of me. Terry

>

> Hi, everyone,

>

> I have already started receiving requests for the name of this

> wonderful doctor, whom I am admittedly SO blessed to be able to see

> myself. I wish I could clone him. He only sees patients three days of

> the week as he is semi-retired, so I am doubtful of his desire to expand his

patient base very much. Naturally I wish he could see all of us and get us all

well once and for all, and that could happen :-)

>

>

> If he

> really does (as I think he does) get a lot of Lyme sufferers well, then he

might have a high patient turnover.

>

>

> I have emailed his assistant for instructions as to how they wish me to handle

requests for his name. They are closed today -- I will call tomorrow and follow

up on my email, and then I will post an update to this message to let all of you

know what he said and what, if anything, you can do. Cross your fingers :-)

>

> Love,

> Kajay

>

>

>

> ________________________________

> From: Kajay109 <morjella@...>

> " bird mites@groupscom " <bird mites >;

" GeorgiaLyme " <GeorgiaLyme >

> Sent: Wednesday, April 25, 2012 11:09 AM

> Subject: [GeorgiaLyme] LLMD - First visit trip report + partial labs [2

Attachments]

>

>

>  

> [Attachment(s) from Kajay109 included below]

> I wish I had taped my office visit with this doctor. I learned so much from

him but cannot remember it all. Here is what I remember so far. Also, I have

attached an image file showing the results of the lab tests my primary care

practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as

another image file showing the doctor's recommendations for me, the two wet swab

tests he performed in the office, and the lab tests he ordered and that I had

done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will

follow up later and post results. Next office visit is scheduled for two months

from now.

>

> I. Symptoms

>

>     A. LLMD asked what symptoms brought me to him:

>

>                 Pruritis (skin issues including crawling,

lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others)

>                 Night sweats (always a sign of infection;

possible causes staph, tuberculosis)

>                 Restless legs syndrome (related, I think)

>                Severe spasms in feet, sometimes traveling up

legs to body - terrifying

>    

>     B. LLMD asked me if these symptoms are or have been present:

>

>                 Brain fog (no)

>                 Headaches(no)

>                 Chronic fatigue(no)

>                 Muscular aches(no) or spasms (yes)

>                 Overall aches(no)

>                 Sinus issues (yes until F-5 Mar 2011)

>                 Lesions (yes until F-5 Mar 2011)

>                 Depression (yes, in 1997)

>                 Bulls eye rash(yes, in 90's and again in 2009)

>

> II. Neuro-Muscular Tests

>

>     A.    Standing:

>                 He had me walk three different ways.

>                 He had me stand and allow him to just observe my

face (tells a doc a lot about us)

>                 He held my shoulders and leaned my body in every

direction, alternating directions to see my body's neurological response.

>     B.    Sitting:

>                 He had me push/pull with feet, quads, arms,

shoulders etc.

>                 He had me stick out my tongue and relax it. I

felt it spasming! " You have Twelfth Nerve Palsy, " he said, and at that point he

diagnosed Lyme.

>

> III. Causes.

>

>     A.    Pruritis. Possible causes include staph, yeast, mycoplasma,

leprosy, others.

>     B.    Night Sweats. 100% due to infection of some kind.

Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why

Evening Primrose Oil controls. He asked what form I take. " Capsules. " Said EPO

has antibiotic properties. Agreed it does not cure the infection though since I

have to keep going back to the EPO to control the night sweats when they return.

>     C.    Restless Legs Syndrome. Discussed. dn't address directly. He

said that many co-infections and related issues would clear up by using the

antibiotic he prescribed (Minocycline).

>     D.    Severe Spasms in Feet. Discussed. He said many co-infections

and related issues would clear up by using the antibiotic he prescribed

(Minocycline). Seemed fine with my taking a bone support supplement to control

spasms.

>     E.    Bulls Eye Rash. Occurs only in small percentage of cases.

>

> IV. Co-Infections. Only remember discussing the ones I have seen discussed

here. I know he covered others, though. Feels most will be addressed by the

antibiotic he prescribed for the Lyme.

>     A.    Babesiosis. Does not believe I have this.

>     B.    Bartonella. Can't remember if he thinks I might or might not

have this.

>

> V.    Antibiotics. Lyme is an intracellular (within cell) disease, but most

antibiotics do not work within cells, only outside them, and so will not touch

Lyme.

>

> VI.   About Lyme.

>

> * 112 known varieties of Lyme, each with a unique set of outcomes. Many never

know they have it. Others experience debilitating symptoms almost from the

moment of the bite.

>

> * Turkey hunters sit at the base of trees. They also get bitten by ticks more

often than they realize.

> * 20% of ticks carry Lyme - not just deer ticks.

> * For every five ticks that bite a turkey hunter, one carries Lyme.

> * 100% of turkey hunters will contract one of the varieties of Lyme, but many

will never know (the lucky ones).

> * Patients previously diagnosed with delusory parasitosis but then treated

for Lyme have gotten well from the Lyme regardless of their mental state.

> * Ticks, like snakes, are active most of the year, if not all. VII. 

Diagnosis.

>

> * Diagnosis of Twelfth Nerve Palsy confirms Lyme.

> * Immune system healthy.VIII. Prescription. Minocycline 100mg oral capsule,

one a day with food, without calcium. Take yogurt and or probiotics.

>

>

> IX.  Conclusion. The most important thing my new LLMD told me today is that

Lyme is curable. He said that once we clear up the infections associated with

Lyme, that may take care of my other issues (Morg). The second most important

one is that (and he smiled when he said it) I am definitely not crazy.

>

> That's a relief :-)

>

> Will

> post again when I have more news.

>

> Kajay

>

[Guest guest]

Aww! That is so sweet! What I imagine they will say is not to post his name, but to forward them the email addresses of those who ask about him. Of course at some point they will probably say "Stop!!!" but in the meantime :-)...Kajay From: mitesbegone <no_reply > To:

bird mites Sent: Wednesday, April 25, 2012 5:53 PM Subject: Re: [GeorgiaLyme] LLMD - First visit trip report

Hey, that would be wonderful, but really, he helped you and therefore, he helped us all. And unless you are on the west coast, I am not sure I could see him. But thanks for thinking of me. Terry

>

> Hi, everyone,

>

> I have already started receiving requests for the name of this

> wonderful doctor, whom I am admittedly SO blessed to be able to see

> myself. I wish I could clone him. He only sees patients three days of

> the week as he is semi-retired, so I am doubtful of his desire to expand his patient base very much. Naturally I wish he could see all of us and get us all well once and for all, and that could happen :-)

>

>

> If he

> really does (as I think he does) get a lot of Lyme sufferers well, then he might have a high patient turnover.

>

>

> I have emailed his assistant for instructions as to how they wish me to handle requests for his name. They are closed today -- I will call tomorrow and follow up on my email, and then I will post an update to this message to let all of you know what he said and what, if anything, you can do. Cross your fingers :-)

>

> Love,

> Kajay

>

>

>

[Guest guest]

Right on girlfriend! Don't stop until you drop...erhhh, that is probably all of

us right about now.....LOL

> >

> > Hi, everyone,

> >

> > I have already started receiving requests for the name of this

> > wonderful doctor, whom I am admittedly SO blessed to be able to see

> > myself. I wish I could clone him. He only sees patients three days of

> > the week as he is semi-retired, so I am doubtful of his desire to expand his

patient base very much. Naturally I wish he could see all of us and get us all

well once and for all, and that could happen :-)

> >

> >

> > If he

> > really does (as I think he does) get a lot of Lyme sufferers well, then he

might have a high patient turnover.

> >

> >

> > I have emailed his assistant for instructions as to how they wish me to

handle requests for his name. They are closed today -- I will call tomorrow and

follow up on my email, and then I will post an update to this message to let all

of you know what he said and what, if anything, you can do. Cross your fingers

:-)

> >

> > Love,

> > Kajay

> >

> >

> >

>