Re: Nattozyme

[Guest guest]

That would be great Aandraya , thanks so much !

I am pretty sure I have biofilm in my hair and am desperate of getting if out.

The antifungal shampoo does not seem to help either. Can you remember how long

you used to use it? Can you recall the meds you were on at the time your hair issues

got better ?

Von: Aandraya <aandraya@...>An: "bird mites " <bird mites > Gesendet: 0:02 Donnerstag, 26.April 2012Betreff: Nattozyme

Yes, Dr. J in D.C. uses this specific product to attack biofilm, don't k ow why he specifically likes that product, he doesn't sell it, I will ask him though. Lyme is known to create a biofilm that protects it from our immune system, antibiotics, etc. Within this biofilm other colonies of microbes also live- pathogens of fungi, bacteria, parasites, etc.

Aandraya

On Apr 25, 2012, at 3:54 PM, Aggi Assmann <aggi_assmann@...> wrote:

Interesting !We spoke about the Natokinase couple of days back.Was it Aandraya or Kajay who mentioned it for the problem of biofilm?

Did you tell your LLMD, or was it her own suggestion?

Von: "Goldstein@..." <Goldstein@...>An: bird mites Gesendet: 21:50 Mittwoch, 25.April 2012Betreff: Re: Re: LLMD - First visit trip report + partial

labs

Here is what my LLMD just changed for me. I just got off the phone with her. She put me on some new drugs (old as I've been on a few of these 3 years ago)...

Here are the changes:

Mycoplasma (I had high titers from Lab Corp and this can go into the lungs) -Clarithromycin

Bartonella - Doxy & Rifampin start again, add in Cipro

She wants me to start the Nattokinase and Interfase

She wants to see what I do from those 4 antibiotics and Nattokinase and Interfase

She also wants me to get Itraconazole - I had been on Diflucan--didn't seem to do much, but it also attacks Lyme.

She said to stop Bicillin for now and I just finished 10 days of Metronidazole (Flagyl).

If things don't improve she will add Ivermectin (I've been on before) for FL1953.

So that's my story Kajay. I so wish you the best of everything with this stuff you have!

From: "Kajay109" <morjella@...>bird mites Sent: Wednesday, April 25, 2012 12:42:26 PMSubject: Re: Re: LLMD - First visit trip report + partial labs

Hi, ,

Thank you for the kind words :-)

What he said is that the Minocycline will not single out the Lyme and that it will also attack some co-infections.

He didn't prescribe any herbals, it isn't his area of expertise. However, he has a high success rate, apparently.

Even if they tell me tomorrow that I cannot share his name, I am going to share everything I learn. As always, I am going to TRY to distinguish between what I am certain he said and what I am guessing about. That is why I think it is important to share the documentation, because some of you will see in it things that I would not think to mention. Hopefully at least that will be helpful to those who want the information.

Kajay

From: mitesbegone <no_reply >bird mites Sent: Wednesday, April 25, 2012 12:52 PMSubject: Re: LLMD - First visit trip report + partial labs

Does it seem to be working for you ?>> This is such valuable information Kajay. Thank you for giving us the update on your progress. So happy to hear you went to a LLMD to get treated. You are very thorough too in what you sent, including attachments! I'm impressed! I am also a believer that information from others helps us enormously. I talk to my LLMD today about my ongoing issues and where to go from here. I don't know Minocycline... have not used it. Sounds like he will treat Lyme first and not co-infections (maybe you don't have them...). My doc started on all of them at once and still don't know how sound that was. She gave me scripts for meds and where to buy herbals. > > > > > -----

Original Message -----> From: "Kajay109" <morjella@...> > "bird mites@groupscom" <bird mites >, GeorgiaLyme > Sent: Wednesday, April 25, 2012 8:09:20 AM > Subject: LLMD - First visit trip report + partial labs [2 Attachments] > > [ Attachment(s) from Kajay109 included below] > > > > > > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September

2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > I. Symptoms > > A. LLMD asked what symptoms brought me to him: > > Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) > Night sweats (always a sign of infection; possible causes staph, tuberculosis) > Restless legs syndrome (related, I think) > Severe spasms in feet, sometimes traveling up legs to body - terrifying > > B. LLMD asked me if these symptoms are or have been present: > > Brain fog (no) > Headaches (no) > Chronic

fatigue (no) > Muscular aches (no) or spasms (yes) > Overall aches (no) > Sinus issues (yes until F-5 Mar 2011) > Lesions (yes until F-5 Mar 2011) > Depression (yes, in 1997) > Bulls eye rash (yes, in 90's and again in 2009) > > II. Neuro-Muscular Tests > > A. Standing: > He had me walk three different ways. > He had me stand and allow him to just observe my face (tells a doc a lot about us) > He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. > B. Sitting: > He had me push/pull with feet, quads, arms, shoulders etc. > He had me stick out my tongue and relax it. I felt it spasming! " You have Twelfth Nerve Palsy ," he said, and at that point he diagnosed Lyme . > > III. Causes . > > A. Pruritis . P ossible causes include staph, yeast,

mycoplasma, leprosy, others . > B. Night Sweats . 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. " Capsules ." Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. > C. Restless Legs Syndrome . Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). > D. Severe Spasms in Feet . D iscussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. > E. Bulls Eye Rash . Occurs only in small percentage of cases. > > IV. Co-Infections . Only remember discussing

the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. > A. Babesiosis . Does not believe I have this. > B. Bartonella . Can't remember if he thinks I might or might not have this. > > V. Antibiotics . Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > VI. About Lyme . > > > • 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > • Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > • 20% of ticks carry Lyme - not just deer ticks. > • For every five ticks that bite a turkey hunter, one carries

Lyme. > • 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > • Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > • Ticks, like snakes, are active most of the year, if not all. > > VII. Diagnosis . > > > • Diagnosis of Twelfth Nerve Palsy confirms Lyme. > • Immune system healthy. > > VIII. Prescription . Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > > > > > > > > > IX. Conclusion . The most important thing my new LLMD told me today is that Lyme is curable . He said that once we clear up the infections associated with Lyme, that may take care of my other

issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > That's a relief :-) > > Will post again when I have more news. > > Kajay > > > > > Attachment(s) from Kajay109 > > 2 of 2 Photo(s) > > > > 2012> 2012 > > 2011> 2011>

[Guest guest]

Someone wrote on here - I thought it was you, Aggi, I guess not - that they used vinegar on their scalp for 60 days and the crawling ceased permanently.Kajay From: Aggi Assmann <aggi_assmann@...> "bird mites " <bird mites > Sent: Thursday, April 26, 2012 7:42 AM Subject: Re: Nattozyme

That would be great Aandraya , thanks so much !

I am pretty sure I have biofilm in my hair and am desperate of getting if out.

The antifungal shampoo does not seem to help either. Can you remember how long

you used to use it? Can you recall the meds you were on at the time your hair issues

got better ?

Von: Aandraya <aandraya@...>An: "bird mites " <bird mites > Gesendet: 0:02 Donnerstag, 26.April 2012Betreff: Nattozyme

Yes, Dr. J in D.C. uses this specific product to attack biofilm, don't k ow why he specifically likes that product, he doesn't sell it, I will ask him though. Lyme is known to create a biofilm that protects it from our immune system, antibiotics, etc. Within this biofilm other colonies of microbes also live- pathogens of fungi, bacteria, parasites, etc.

Aandraya

On Apr 25, 2012, at 3:54 PM, Aggi Assmann <aggi_assmann@...> wrote:

Interesting !We spoke about the Natokinase couple of days back.Was it Aandraya or Kajay who mentioned it for the problem of biofilm?

Did you tell your LLMD, or was it her own suggestion?

Von: "Goldstein@..." <Goldstein@...>An: bird mites Gesendet: 21:50 Mittwoch, 25.April 2012Betreff: Re: Re: LLMD - First visit trip report + partial

labs

Here is what my LLMD just changed for me. I just got off the phone with her. She put me on some new drugs (old as I've been on a few of these 3 years ago)...

Here are the changes:

Mycoplasma (I had high titers from Lab Corp and this can go into the lungs) -Clarithromycin

Bartonella - Doxy & Rifampin start again, add in Cipro

She wants me to start the Nattokinase and Interfase

She wants to see what I do from those 4 antibiotics and Nattokinase and Interfase

She also wants me to get Itraconazole - I had been on Diflucan--didn't seem to do much, but it also attacks Lyme.

She said to stop Bicillin for now and I just finished 10 days of Metronidazole (Flagyl).

If things don't improve she will add Ivermectin (I've been on before) for FL1953.

So that's my story Kajay. I so wish you the best of everything with this stuff you have!

From: "Kajay109" <morjella@...>bird mites Sent: Wednesday, April 25, 2012 12:42:26 PMSubject: Re: Re: LLMD - First visit trip report + partial labs

Hi, ,

Thank you for the kind words :-)

What he said is that the Minocycline will not single out the Lyme and that it will also attack some co-infections.

He didn't prescribe any herbals, it isn't his area of expertise. However, he has a high success rate, apparently.

Even if they tell me tomorrow that I cannot share his name, I am going to share everything I learn. As always, I am going to TRY to distinguish between what I am certain he said and what I am guessing about. That is why I think it is important to share the documentation, because some of you will see in it things that I would not think to mention. Hopefully at least that will be helpful to those who want the information.

Kajay

From: mitesbegone <no_reply >bird mites Sent: Wednesday, April 25, 2012 12:52 PMSubject: Re: LLMD - First visit trip report + partial labs

Does it seem to be working for you ?>> This is such valuable information Kajay. Thank you for giving us the update on your progress. So happy to hear you went to a LLMD to get treated. You are very thorough too in what you sent, including attachments! I'm impressed! I am also a believer that information from others helps us enormously. I talk to my LLMD today about my ongoing issues and where to go from here. I don't know Minocycline... have not used it. Sounds like he will treat Lyme first and not co-infections (maybe you don't have them...). My doc started on all of them at once and still don't know how sound that was. She gave me scripts for meds and where to buy herbals. > > > > > -----

Original Message -----> From: "Kajay109" <morjella@...> > "bird mites@groupscom" <bird mites >, GeorgiaLyme > Sent: Wednesday, April 25, 2012 8:09:20 AM > Subject: LLMD - First visit trip report + partial labs [2 Attachments] > > [ Attachment(s) from Kajay109 included below] > > > > > > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in

September

2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > I. Symptoms > > A. LLMD asked what symptoms brought me to him: > > Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) > Night sweats (always a sign of infection; possible causes staph, tuberculosis) > Restless legs syndrome (related, I think) > Severe spasms in feet, sometimes traveling up legs to body - terrifying > > B. LLMD asked me if these symptoms are or have been present: > > Brain fog (no) > Headaches (no) > Chronic

fatigue (no) > Muscular aches (no) or spasms (yes) > Overall aches (no) > Sinus issues (yes until F-5 Mar 2011) > Lesions (yes until F-5 Mar 2011) > Depression (yes, in 1997) > Bulls eye rash (yes, in 90's and again in 2009) > > II. Neuro-Muscular Tests > > A. Standing: > He had me walk three different ways. > He had me stand and allow him to just observe my face (tells a doc a lot about us) > He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. > B. Sitting: > He had me push/pull with feet, quads, arms, shoulders etc. > He had me stick out my tongue and relax it. I felt it spasming! " You have Twelfth Nerve Palsy ," he said, and at that point he diagnosed Lyme . > > III. Causes . > > A. Pruritis . P ossible causes include staph, yeast,

mycoplasma, leprosy, others . > B. Night Sweats . 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. " Capsules ." Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. > C. Restless Legs Syndrome . Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). > D. Severe Spasms in Feet . D iscussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. > E. Bulls Eye Rash . Occurs only in small percentage of cases. > > IV. Co-Infections . Only remember discussing

the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. > A. Babesiosis . Does not believe I have this. > B. Bartonella . Can't remember if he thinks I might or might not have this. > > V. Antibiotics . Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > VI. About Lyme . > > > • 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > • Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > • 20% of ticks carry Lyme - not just deer ticks. > • For every five ticks that bite a turkey hunter, one carries

Lyme. > • 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > • Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > • Ticks, like snakes, are active most of the year, if not all. > > VII. Diagnosis . > > > • Diagnosis of Twelfth Nerve Palsy confirms Lyme. > • Immune system healthy. > > VIII. Prescription . Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > > > > > > > > > IX. Conclusion . The most important thing my new LLMD told me today is that Lyme is curable . He said that once we clear up the infections associated with Lyme, that may take care of my other

issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > That's a relief :-) > > Will post again when I have more news. > > Kajay > > > > > Attachment(s) from Kajay109 > > 2 of 2 Photo(s) > > > > 2012> 2012 > > 2011> 2011>

[Guest guest]

Yes Kajay, that was me, BUT

- The biting and crawling on my scalp I got out via a white vinegar dilution, sprayed on for 7 days in a row

- The biofilm (at least I call it biofilm) is a strange phenomenon and hard to describe. It is only at the front plus the right hand side of my hair. It only happens if I go back to areas where the mites had been, mainly office and car, lets say carpeted areas. It usually starts with a magnetic feeling in the hair, then the hair get's all flimsy as though it has been covered with a film. Then the hair starts feeling itchy and it makes me crazy getting it in my face.

Von: Kajay109 <morjella@...>An: "bird mites " <bird mites > Gesendet: 14:37 Donnerstag, 26.April 2012Betreff: Re: Nattozyme

Someone wrote on here - I thought it was you, Aggi, I guess not - that they used vinegar on their scalp for 60 days and the crawling ceased permanently.

Kajay

From: Aggi Assmann <aggi_assmann@...>"bird mites " <bird mites > Sent: Thursday, April 26, 2012 7:42 AMSubject: Re: Nattozyme

That would be great Aandraya , thanks so much !

I am pretty sure I have biofilm in my hair and am desperate of getting if out.

The antifungal shampoo does not seem to help either. Can you remember how long

you used to use it? Can you recall the meds you were on at the time your hair issues

got better ?

Von: Aandraya <aandraya@...>An: "bird mites " <bird mites > Gesendet: 0:02 Donnerstag, 26.April 2012Betreff: Nattozyme

Yes, Dr. J in D.C. uses this specific product to attack biofilm, don't k ow why he specifically likes that product, he doesn't sell it, I will ask him though. Lyme is known to create a biofilm that protects it from our immune system, antibiotics, etc. Within this biofilm other colonies of microbes also live- pathogens of fungi, bacteria, parasites, etc.

Aandraya

On Apr 25, 2012, at 3:54 PM, Aggi Assmann <aggi_assmann@...> wrote:

Interesting !We spoke about the Natokinase couple of days back.Was it Aandraya or Kajay who mentioned it for the problem of biofilm?

Did you tell your LLMD, or was it her own suggestion?

Von: "Goldstein@..." <Goldstein@...>An: bird mites Gesendet: 21:50 Mittwoch, 25.April 2012Betreff: Re: Re: LLMD - First visit trip report + partial

labs

Here is what my LLMD just changed for me. I just got off the phone with her. She put me on some new drugs (old as I've been on a few of these 3 years ago)...

Here are the changes:

Mycoplasma (I had high titers from Lab Corp and this can go into the lungs) -Clarithromycin

Bartonella - Doxy & Rifampin start again, add in Cipro

She wants me to start the Nattokinase and Interfase

She wants to see what I do from those 4 antibiotics and Nattokinase and Interfase

She also wants me to get Itraconazole - I had been on Diflucan--didn't seem to do much, but it also attacks Lyme.

She said to stop Bicillin for now and I just finished 10 days of Metronidazole (Flagyl).

If things don't improve she will add Ivermectin (I've been on before) for FL1953.

So that's my story Kajay. I so wish you the best of everything with this stuff you have!

From: "Kajay109" <morjella@...>bird mites Sent: Wednesday, April 25, 2012 12:42:26 PMSubject: Re: Re: LLMD - First visit trip report + partial labs

Hi, ,

Thank you for the kind words :-)

What he said is that the Minocycline will not single out the Lyme and that it will also attack some co-infections.

He didn't prescribe any herbals, it isn't his area of expertise. However, he has a high success rate, apparently.

Even if they tell me tomorrow that I cannot share his name, I am going to share everything I learn. As always, I am going to TRY to distinguish between what I am certain he said and what I am guessing about. That is why I think it is important to share the documentation, because some of you will see in it things that I would not think to mention. Hopefully at least that will be helpful to those who want the information.

Kajay

From: mitesbegone <no_reply >bird mites Sent: Wednesday, April 25, 2012 12:52 PMSubject: Re: LLMD - First visit trip report + partial labs

Does it seem to be working for you ?>> This is such valuable information Kajay. Thank you for giving us the update on your progress. So happy to hear you went to a LLMD to get treated. You are very thorough too in what you sent, including attachments! I'm impressed! I am also a believer that information from others helps us enormously. I talk to my LLMD today about my ongoing issues and where to go from here. I don't know Minocycline... have not used it. Sounds like he will treat Lyme first and not co-infections (maybe you don't have them...). My doc started on all of them at once and still don't know how sound that was. She gave me scripts for meds and where to buy herbals. > > > > > -----

Original Message -----> From: "Kajay109" <morjella@...> > "bird mites@groupscom" <bird mites >, GeorgiaLyme > Sent: Wednesday, April 25, 2012 8:09:20 AM > Subject: LLMD - First visit trip report + partial labs [2 Attachments] > > [ Attachment(s) from Kajay109 included below] > > > > > > I wish I had taped my office visit with this doctor. I learned so much from him but cannot remember it all. Here is what I remember so far. Also, I have attached an image file showing the results of the lab tests my primary care practitioner conducted on me in September

2011 (2011 LABS ALL.jpg) as well as another image file showing the doctor's recommendations for me, the two wet swab tests he performed in the office, and the lab tests he ordered and that I had done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will follow up later and post results. Next office visit is scheduled for two months from now. > > I. Symptoms > > A. LLMD asked what symptoms brought me to him: > > Pruritis (skin issues including crawling, lesions, biting; possible causes - staph, yeast, mycoplasma, leprosy, others) > Night sweats (always a sign of infection; possible causes staph, tuberculosis) > Restless legs syndrome (related, I think) > Severe spasms in feet, sometimes traveling up legs to body - terrifying > > B. LLMD asked me if these symptoms are or have been present: > > Brain fog (no) > Headaches (no) > Chronic

fatigue (no) > Muscular aches (no) or spasms (yes) > Overall aches (no) > Sinus issues (yes until F-5 Mar 2011) > Lesions (yes until F-5 Mar 2011) > Depression (yes, in 1997) > Bulls eye rash (yes, in 90's and again in 2009) > > II. Neuro-Muscular Tests > > A. Standing: > He had me walk three different ways. > He had me stand and allow him to just observe my face (tells a doc a lot about us) > He held my shoulders and leaned my body in every direction, alternating directions to see my body's neurological response. > B. Sitting: > He had me push/pull with feet, quads, arms, shoulders etc. > He had me stick out my tongue and relax it. I felt it spasming! " You have Twelfth Nerve Palsy ," he said, and at that point he diagnosed Lyme . > > III. Causes . > > A. Pruritis . P ossible causes include staph, yeast,

mycoplasma, leprosy, others . > B. Night Sweats . 100% due to infection of some kind. Possibilities: staph, yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil controls. He asked what form I take. " Capsules ." Said EPO has antibiotic properties. Agreed it does not cure the infection though since I have to keep going back to the EPO to control the night sweats when they return. > C. Restless Legs Syndrome . Discussed. dn't address directly. He said that many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). > D. Severe Spasms in Feet . D iscussed. He said many co-infections and related issues would clear up by using the antibiotic he prescribed (Minocycline). Seemed fine with my taking a bone support supplement to control spasms. > E. Bulls Eye Rash . Occurs only in small percentage of cases. > > IV. Co-Infections . Only remember discussing

the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme. > A. Babesiosis . Does not believe I have this. > B. Bartonella . Can't remember if he thinks I might or might not have this. > > V. Antibiotics . Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme. > > VI. About Lyme . > > > • 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite. > • Turkey hunters sit at the base of trees. They also get bitten by ticks more often than they realize. > • 20% of ticks carry Lyme - not just deer ticks. > • For every five ticks that bite a turkey hunter, one carries

Lyme. > • 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones). > • Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state. > • Ticks, like snakes, are active most of the year, if not all. > > VII. Diagnosis . > > > • Diagnosis of Twelfth Nerve Palsy confirms Lyme. > • Immune system healthy. > > VIII. Prescription . Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. > > > > > > > > > > > IX. Conclusion . The most important thing my new LLMD told me today is that Lyme is curable . He said that once we clear up the infections associated with Lyme, that may take care of my other

issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy. > > That's a relief :-) > > Will post again when I have more news. > > Kajay > > > > > Attachment(s) from Kajay109 > > 2 of 2 Photo(s) > > > > 2012> 2012 > > 2011> 2011>

[Guest guest]

Last night while sitting in bed (at the hotel) when I leaned back against the

headboard it felt as though my hair was attaching to the head board (like a

static electric attachment). I kept pulling back and then my hair was sort of

flying around my face, right side.

I jumped up and ran into the bathroom. I got my soap today so ripped into a bar

of lye soap and peppermint. Scrubbed my hair and body with the lye soap and

then followed with peppermint. Used tea tree condition on my hair. Seemed to

help. Took care of the weirdness in my hair. But I still am feeling itchy.

Doggone it. I spent 3 hours in my house yesterday trying to help with the

fumigation efforts and to guide the handyman and my son. I came back with lots

of little black specks and my throat sort and voice hoarse. Took two showers

after returning. I still have black specks. And when I woke up this morning my

eyes felt gritty. I discovered two more little black specks near my eyes. So,

I whipped out my mini microscope (doing my sleuthing CDC style) and saw that

everything, what was in my eyes, on my body and in my throat were

identical...some kind of brownish-black particles. Like dirt, but had yellow

mixed in, almost a sappy look to it.

So, fungus, bacteria, spores??? I don't know. I am not that familiar with that

stuff, but not mites. They bite into you. Last night I kept feeling pin pricks

on my legs, bottoms of my feet, back, you name (this after two showers!!). So I

jumped up, took out my jar of vicks and spread it all over my face, into my

hair, on my legs and even the bottoms of my feet. Then I sprayed cedar oil all

over the carpet.

Itching stopped and I was able to sleep. It is coming back..milder case, but

sometimes where this stabs into you, it bleeds. I have a spot on my bottom,

which I can't see, but it is bleeding. My nose will bleed and my gums.

I do not think these are mites, but definitely could be mite related. I am

determined to see how I can find a cause to this and see what this is. Perhaps

a biology lab? I don't know.

Anyway, went way off course here about me, but perhaps this is all related.

Hang in there....Terry

> >>

> >> This is such valuable information Kajay. Thank you for giving us the update

on your progress. So happy to hear you went to a LLMD to get treated. You are

very thorough too in what you sent, including attachments! I'm impressed! I am

also a believer that information from others helps us enormously. I talk to my

LLMD today about my ongoing issues and where to go from here. I don't know

Minocycline... have not used it. Sounds like he will treat Lyme first and not

co-infections (maybe you don't have them...). My doc started on all of them at

once and still don't know how sound that was. She gave me scripts for meds and

where to buy herbals.

> >>

> >>

> >>

> >>

> >> LLMD - First visit trip report + partial labs [2

Attachments]

> >>

> >> [ Attachment(s) from Kajay109 included below]

> >>

> >>

> >>

> >>

> >>

> >> I wish I had taped my office visit with this doctor. I learned so much from

him but cannot remember it all. Here is what I remember so far. Also, I have

attached an image file showing the results of the lab tests my primary care

practitioner conducted on me in September 2011 (2011 LABS ALL.jpg) as well as

another image file showing the doctor's recommendations for me, the two wet swab

tests he performed in the office, and the lab tests he ordered and that I had

done at LabCorps after the office visit concluded (2012 DOC-LABS.jpg). Will

follow up later and post results. Next office visit is scheduled for two months

from now.

> >>

> >> I. Symptoms

> >>

> >> A. LLMD asked what symptoms brought me to him:

> >>

> >> Pruritis (skin issues including crawling, lesions, biting; possible causes

- staph, yeast, mycoplasma, leprosy, others)

> >> Night sweats (always a sign of infection; possible causes staph,

tuberculosis)

> >> Restless legs syndrome (related, I think)

> >> Severe spasms in feet, sometimes traveling up legs to body - terrifying

> >>

> >> B. LLMD asked me if these symptoms are or have been present:

> >>

> >> Brain fog (no)

> >> Headaches (no)

> >> Chronic fatigue (no)

> >> Muscular aches (no) or spasms (yes)

> >> Overall aches (no)

> >> Sinus issues (yes until F-5 Mar 2011)

> >> Lesions (yes until F-5 Mar 2011)

> >> Depression (yes, in 1997)

> >> Bulls eye rash (yes, in 90's and again in 2009)

> >>

> >> II. Neuro-Muscular Tests

> >>

> >> A. Standing:

> >> He had me walk three different ways.

> >> He had me stand and allow him to just observe my face (tells a doc a lot

about us)

> >> He held my shoulders and leaned my body in every direction, alternating

directions to see my body's neurological response.

> >> B. Sitting:

> >> He had me push/pull with feet, quads, arms, shoulders etc.

> >> He had me stick out my tongue and relax it. I felt it spasming! " You have

Twelfth Nerve Palsy , " he said, and at that point he diagnosed Lyme .

> >>

> >> III. Causes .

> >>

> >> A. Pruritis . P ossible causes include staph, yeast, mycoplasma, leprosy,

others .

> >> B. Night Sweats . 100% due to infection of some kind. Possibilities: staph,

yeast, mycoplasma, tuberculosis, other. I asked why Evening Primrose Oil

controls. He asked what form I take. " Capsules . " Said EPO has antibiotic

properties. Agreed it does not cure the infection though since I have to keep

going back to the EPO to control the night sweats when they return.

> >> C. Restless Legs Syndrome . Discussed. dn't address directly. He said that

many co-infections and related issues would clear up by using the antibiotic he

prescribed (Minocycline).

> >> D. Severe Spasms in Feet . D iscussed. He said many co-infections and

related issues would clear up by using the antibiotic he prescribed

(Minocycline). Seemed fine with my taking a bone support supplement to control

spasms.

> >> E. Bulls Eye Rash . Occurs only in small percentage of cases.

> >>

> >> IV. Co-Infections . Only remember discussing the ones I have seen discussed

here. I know he covered others, though. Feels most will be addressed by the

antibiotic he prescribed for the Lyme.

> >> A. Babesiosis . Does not believe I have this.

> >> B. Bartonella . Can't remember if he thinks I might or might not have this.

> >>

> >> V. Antibiotics . Lyme is an intracellular (within cell) disease, but most

antibiotics do not work within cells, only outside them, and so will not touch

Lyme.

> >>

> >> VI. About Lyme .

> >>

> >>

> >> • 112 known varieties of Lyme, each with a unique set of outcomes.

Many never know they have it. Others experience debilitating symptoms almost

from the moment of the bite.

> >> • Turkey hunters sit at the base of trees. They also get bitten by

ticks more often than they realize.

> >> • 20% of ticks carry Lyme - not just deer ticks.

> >> • For every five ticks that bite a turkey hunter, one carries Lyme.

> >> • 100% of turkey hunters will contract one of the varieties of Lyme,

but many will never know (the lucky ones).

> >> • Patients previously diagnosed with delusory parasitosis but then

treated for Lyme have gotten well from the Lyme regardless of their mental

state.

> >> • Ticks, like snakes, are active most of the year, if not all.

> >>

> >> VII. Diagnosis .

> >>

> >>

> >> • Diagnosis of Twelfth Nerve Palsy confirms Lyme.

> >> • Immune system healthy.

> >>

> >> VIII. Prescription . Minocycline 100mg oral capsule, one a day with food,

without calcium. Take yogurt and or probiotics.

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >> IX. Conclusion . The most important thing my new LLMD told me today is that

Lyme is curable . He said that once we clear up the infections associated with

Lyme, that may take care of my other issues (Morg). The second most important

one is that (and he smiled when he said it) I am definitely not crazy.

> >>

> >> That's a relief :-)

> >>

> >> Will post again when I have more news.

> >>

> >> Kajay

> >>

> >>

> >>

> >>

> >> Attachment(s) from Kajay109

> >>

> >> 2 of 2 Photo(s)

> >>

> >>

> >>

> >> 2012

> >> 2012

> >>

> >> 2011

> >> 2011

> >>

> >

> >

> >

> >

> >

> >

> >

> >

>