need help

[Guest guest]

Thanks for the advise. I did make it through the day today with only one

nap. I am lucky that my office is in my house so I can take my nap during

lunch. I did not take any of the medication today but may try to call the Dr.

in

the morning for something else. I think that the anxiety will pass with time.

Before this happened I rarely thought about my defibrillator. The thing that

came to mind during the ordeal was what would happen if I was driving. The

first time I was shocked, I felt that I would have been able to maintain

control. This last episode made me think that I could have easily lost control

of a

vehicle. I would never want to hurt someone else. I believe some states

don't allow a license with a defibrillator. Does anyone know if this is true?

[Guest guest]

Margret... pardon me for being so forward, but I'm one of those that

really hate it when patients begin to medicate themselves... if the

medicine perscriped by the doc is making you sleepy, call doc and

tell him/her so... there are many meds out there and we all react

differently to each one... I'm sure there's one that will work for

you w/out making you feel tired... for instance, my DH is having

great luck w/Zoloft ... he was started on a smaller dose and slowly

built up over a few weeks to where he is now... it's working for him

w/out any side effects at all so far.

JES in NJ

> Hello Margaret:

> As far as medication making you sleep all day i have a comment.

Everyone's body is different, so you have to experiment on how much

to take. My doctor recommended i take clonazepam three times a day

and i am only taking it whenever i get anxious and i only take about

a third of a pill which is just enough for me to totally relax. So

good luck to you with the meds and the job tomorrow. TURK

> Re: Re: Need help

>

>

> Thanks for your answer. It has been a few days and I am feeling

somewhat

> better. I did call my Dr. and get something for anxiety. Only

problem with this

> is it makes me sleep all day. I guess you can't be anxious when

your

> sleeping! I start back to work tomorrow so I will see how they

respond to me. I

> don't work in the office but rather out of my home and spend most

of the time on

> the road. This may be the issue they have with me because I

drive a company

> owned vehicle. I am sure this has made them wonder about the

liability

> involved. I guess an early retirement would not be the worst

thing that could happen

> to me. I do have a small business that I run on the side and

would be able

> to devote more time to it if this happens. Thanks again for your

response.

>

> Margaret

>

>

[Guest guest]

In Rhode Island if you get shocked you can't drive for 6 months - and your doctor has to report you to the DMV. Massachusetts is the same except your doctor doesn't have to report you.

Re: Re: Need help

Thanks for the advise. I did make it through the day today with only one nap. I am lucky that my office is in my house so I can take my nap during lunch. I did not take any of the medication today but may try to call the Dr. in the morning for something else. I think that the anxiety will pass with time. Before this happened I rarely thought about my defibrillator. The thing that came to mind during the ordeal was what would happen if I was driving. The first time I was shocked, I felt that I would have been able to maintain control. This last episode made me think that I could have easily lost control of a vehicle. I would never want to hurt someone else. I believe some states don't allow a license with a defibrillator. Does anyone know if this is true?Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

I WAS TOLD AT USC THAT THEY MADE THAT DECISION UPON FINDING OUT IF YOU WILL LOSE CONCIOUSNESS WHEN BEING ZAPPED. THEN I WAS TOLD ONLY TO DRIVE WITHIN 5 MIN OF HOME UNTILL WE KNEW, I HAVENT BEEN SHOCKED SINCE IMPLANT SO DONT KNOW IF I WILL OR PASS OUT OR NOT. SEEMS KINDA DOUBTFUL IF IT WOKE ME UP DURING IMPLANT, MAN DID IT!!

DEBBIE

>From: "mai_lin"

>Reply- >

>Subject: Re: Re: Need help >Date: Tue, 26 Aug 2003 06:33:48 -0400 > >In Rhode Island if you get shocked you can't drive for 6 months - and your doctor has to report you to the DMV. Massachusetts is the same except your doctor doesn't have to report you. > > > > Re: Re: Need help > > > Thanks for the advise. I did make it through the day today with only one > nap. I am lucky that my office is in my house so I can take my nap during > lunch. I did not take any of the medication today but may try to call the Dr. in > the morning for something else. I think that the anxiety will pass with time. > Before this happened I rarely thought about my defibrillator. The thing that > came to mind during the ordeal was what would happen if I was driving. The > first time I was shocked, I felt that I would have been able to maintain > control. This last episode made me think that I could have easily lost control of a > vehicle. I would never want to hurt someone else. I believe some states > don't allow a license with a defibrillator. Does anyone know if this is true? > >

[Guest guest]

When I recieved the first ICD some 9 yrs ago here in NJ it was 1 full

year before you could drive IF you had passed out... or simply put,

you must be 1 yr symptom free of blacking out... so it's not the ICD

that prevents you from driving but the vagle episodes ... I thought

the same applied for those w/epilepsy, but a friend of ours w/that

medical condition was recently told 6 months so it's possible they've

changed the law and I'm not aware of it... it's interesting to note

however, that the doctor is not responsible for reporting you to the

DMV... it's basically voluntary but don't be involved in an accident

as your insurance will not pay if you weren't suppose to be

driving... at least that's my understanding.

JES in NJ

This last episode made me think that I could have easily lost control

of a

> vehicle. I would never want to hurt someone else. I believe some

states

> don't allow a license with a defibrillator. Does anyone know if

this is true?

[Guest guest]

I am at nearly the oposite end of the spectrum about messing with

meds. I research them BEFORE starting them and learn what the

prescribing protocols are. Then I can make informed judgements about

whether or not it is okay to mess with the dosages myself. I ALWAYS

keep my doctors up to date on what I am actually taking, but often,

they are TOLD, not ASKED about dosage.

You see, I discovered many years ago that I have a hyper sensitive

system. I was on a child's dose of one drug when I was 25 and it was

working beautifully, every new doc I saw tried to up the dose and I

got sick. It finally sunk into MY head, that I knew ME best and what

I needed to learn was the info about the medications.

So, while I don't recommend everyone just start fiddling with their

drugs, I don't think it is necessarily a bad thing, to do your own

homeworks and find your own 'right' levels IF YOU ARE COMFORTABLE

DOING SO. (Important words in all CAPS)

Bridget

> > Hello Margaret:

> > As far as medication making you sleep all day i have a comment.

> Everyone's body is different, so you have to experiment on how much

> to take. My doctor recommended i take clonazepam three times a day

> and i am only taking it whenever i get anxious and i only take

about

> a third of a pill which is just enough for me to totally relax. So

> good luck to you with the meds and the job tomorrow. TURK

> > Re: Re: Need help

> >

> >

> > Thanks for your answer. It has been a few days and I am

feeling

> somewhat

> > better. I did call my Dr. and get something for anxiety. Only

> problem with this

> > is it makes me sleep all day. I guess you can't be anxious

when

> your

> > sleeping! I start back to work tomorrow so I will see how they

> respond to me. I

> > don't work in the office but rather out of my home and spend

most

> of the time on

> > the road. This may be the issue they have with me because I

> drive a company

> > owned vehicle. I am sure this has made them wonder about the

> liability

> > involved. I guess an early retirement would not be the worst

> thing that could happen

> > to me. I do have a small business that I run on the side and

> would be able

> > to devote more time to it if this happens. Thanks again for

your

> response.

> >

> > Margaret

> >

> >

[Guest guest]

The thing I miss most since my implant in 1999 is not being able to drive. I have never ever been shock free for six months and because they have never been able to determine what causes my episodes of VT and when and where it will happen. I have very little if any warning that I'm going into VT. It generally just happens sometimes I pass out sometimes I just blank out until I get the kick of life.

Sharon

[Guest guest]

As a ex-insurance agent, it is very complicated if you report it to insurance company they want a doctors investigation and signed document. If ou don't report it to your insurance comapny and have an accident then there is no coverage as you failedd to inform. At least those are the rules in Ohio for Natiowide and State FArm. Also you should have it on your driver liscense but then the state wants your liscense. I just carry a card with my implant info but then again I haven't driven since 1999.

[Guest guest]

It sounds like I need to do some investigation on the rules on Driving with

an ICD.

[Guest guest]

Begin by discussing body part and what is considered " Private " and why

because they are covered with clothing for a reason so no one can see or touch

those parts.Worked for my kids.. Goodluck Nettie619

[Guest guest]

Well, I don't know how I missed this original post.......but we are having

some similiar issues with Mav here.

He isn't touching..but he's looking at certain parts of bodys in

pictures.......

The other day he got caught at school sending an inappropriate note. He had

a picture of a girl and had drawn circles around her breasts and vagina. Now,

we even took those body parts out of his talker!!!! and yet.... he is

obsessed with them.

I do not LIKE this stage. We talk alot about nice and not nice

touching...and keeping your hands to yourself.

[Guest guest]

In a message dated 9/26/03 10:59:03 PM Eastern Daylight Time,

Nettie619@... writes:

> Begin by discussing body part and what is considered " Private " and why

> because they are covered with clothing for a reason so no one can see or

> touch

> those parts.Worked for my kids.. Goodluck Nettie619

>

That - and consequences for innapropriate behavior, like you used when you

were teaching him not to hit people when he was younger. In my daughter's case

if I take away her markers & coloring books for innaproprite behavior she gets

the message right away.

- Becky

[Guest guest]

,

Hey I didnt get the original post either- but lets keep in mind that is

11 and Mav is 12 and they are probably exhibiting age appropriate pre

adolesent behavior that other boys their age are also experiencing.

I do agree however about how do we get them to know about the appropriatness

of not touching or other things they shouldnt be doing.

One thing that sometimes works with amanda is boundaries- we keep our hands

to ourselves unless someone OKs some kind of touching- privates are out- just

keep saying it- encourage little hugging and touching except for high fiving at

this stage.

Also, know it is typical behavior for pre teen boys and you might want to get

some adolesent boys about the topic.

~ Mom to 13 DS and Diabetes Type 1 and 9 NY

[Guest guest]

In a message dated 9/27/2003 6:12:16 AM US Mountain Standard Time, Linman42

writes:

> they are probably exhibiting age appropriate pre adolesent behavior that

> other boys their age are also experiencing.

>

Oh, I agree that it is all normal....this is my 3rd son to go through puperty

with.

BUT, his inclusion specialist was at the school the other day and the

principal was telling her that they would have to take stronger actions if he

passed

a note like that again. Well, she pointed out to him that as she walked the

halls she saw numerous kids holding hands and at least two couple

kissing.....and nothing was done with them.

Part of it is that they know when and where they can get away with it and

part of it is that they aren't watched like Mav is.

I am sure this will be one of the " behavior " issues brought up at his IEP

meeting on Monday. Should be an interesting IEP since the 6 teachers can only

be

there for 45 minutes of it.

Well, they are going to have to deal with it!

[Guest guest]

Right,

That is my other point- that most of the other kids are doing things much

worse than ours, yet as soon as one of ours does something , it is frowned upon

and made such a big deal over.

Some things that they do will be within the " normal " development realm and

should be handled similiarly- other things may just need more supervision and

perhaps training- like for the inclusion specialists or aides/teacher

assistants.

Good luck on the IEP- dont know when/how we will ever have mine.

OH, cute story- passed by amanda's school during lunch time a few days ago-

she was in this huge group of " dancing girls " . She was soooooo included and

having such a great time. Everyone in the school yard knew where she was when I

asked- " oh shes in that cirlce of dancing girls! " Got her a t-shirt (for 20

bucks at the GAP, am I nuts) that says, " School yard sisters " Couldnt

resist!!! LOL

~ Mom to 13 DS and Diabetes Type 1 and 9 NY

[Guest guest]

Sounds like normal boy behavior to me,, I have done daycare for 16 years and

beleive me when they find something new and find something that is kind of

funny and suppose to be private and sacred they love surprising their moms and

baby sitters with the new information especially when you least expect it!! Like

on a Monday morning at 6a.m. when all kids are coming in one by one and a

child announces to all the kids and parents how his sister has a vagina and he

has a penis and is showing and telling the kids differences in their pants!!

AHHH ---- Because their mom has decided out of the blue that is best to honest

and what private parts are called over the weekend and doesnt give the sitter

the word up on this by monday a.m. Wow ,,, way too much information at 6a.m.

without notice--lol---- Jeanette mom 2--4 kids including 10 who just so

happens to have ds..

[Guest guest]

In a message dated 10/7/03 10:16:39 AM Eastern Daylight Time,

faithkzrulz4@... writes:

> Thank you all for your response I'm just not used to approaching things

> like this : O ) I for now tell him no that is not nice and he seems to be

> getting better now and understands you are not supposed to do that. It is hard

> because billy is non verbal so explaining things to him and knowing if he

> actually understands is difficult.

>

Start by taking for granted that he DOES understand and follow through with

consequences - you'll be amazed by the results.

has apraxia, and avoids talking, and has learned to pretend she

doesn't understand to avoid having to do anything she doesn't want to.. But

I've

discovered that whenever I talked to her like a typical 11 year old I get very

surprising results.

- Becky

[Guest guest]

We have found this with BJ too- and he is nearly 6............

>

>

> Start by taking for granted that he DOES understand and follow through

> with

> consequences - you'll be amazed by the results.

>

> has apraxia, and avoids talking, and has learned to pretend she

> doesn't understand to avoid having to do anything she doesn't want

> to.. But I've

> discovered that whenever I talked to her like a typical 11 year old I

> get very

> surprising results.

>

> - Becky

>

>

>

[Guest guest]

In a message dated 10/25/2003 1:11:26 AM Central Standard Time,

joannm@... writes:

> I'm trying to remember to word for when you have a pocket of fluid built

> up by the incesion site. If I remember it sounded something like sertona?

> Marta, anyone please help.

>

>

>

Serrous fluid collection at an incision site is a seroma...common after

abdominoplasty. It is similar to a hemmetoma but instead of blood in the area it

is

the serrous fluid component of the blood collecting......

in Bama

Rny to Ds revision 12/03

Down102lbs!!

Thanks to Dr. K!

[Guest guest]

In a message dated 10/25/2003 1:11:26 AM Central Standard Time,

joannm@... writes:

> I'm trying to remember to word for when you have a pocket of fluid built

> up by the incesion site. If I remember it sounded something like sertona?

> Marta, anyone please help.

>

>

>

FYI......

ABDOMINOPLASTY

After surgery a collection of serum beneath the skin is called a seroma

Sometimes after an <A

HREF= " http://www.phudson.com/ABDO/abdo.html " >abdominoplasty</A> or <A

HREF= " http://www.phudson.com/LIPOSUCTION/lipo.html " >liposuction</A> serum is

produced beneath

the skin. This leads to a collection of fluid called a seroma. This fluid will

not clot and contains albumin, fat and red blood cells. It is clear and yellow

in color.   A seroma is usually noticed about 7-10 days after surgery and a

few days after drains are removed. It is seen as a swelling in the area

undermined at surgery. It is more common in the lower abdomen than the upper.

Patients

often say they can feel fluid under the skin. When they move it is not

uncommon to feel this fluid move as well.   The initial treatment is to remove

the

fluid with a needle. This is called " aspiration " . Often 150 ml of fluid is

removed each time. This is done once or twice a week and within a month the

fluid

has usually absorbed. A pressure dressing is usually applied a at the same

time to reduce the size of the space under the skin and increase the likelihood

of the pocket closing.   The fluid is rich in protein so it is important that

the patient take extra fluids and protein during this time. There is a small

risk of the fluid becoming infected so many surgeons use antibiotics.   If the

seroma persists then it can cause a layer of fluid producing tissue to line the

pocket under the skin. If this happens then surgery is often needed. Several

methods have been described. Some surgeons like to remove the lining layer.

Others stitch the pocket closed with quilting stitches. In almost all cases

another <A HREF= " http://www.phudson.com/BACKGROUND/drains.html " >drain</A> is

used.   In some cases irritant fluids may be instilled into the

pocket in an attempt to produce inflammation and closure of the pocket. Whether

this helps or encourages more fluid to be made is unclear and the technique

is not commonly used today.

in Bama

Rny to Ds revision 12/03

Down102lbs!!

Thanks to Dr. K!

[Guest guest]

> I'm trying to remember to word for when you have a pocket of fluid

built up by the incesion site. If I remember it sounded something

like sertona? Marta, anyone please help.

seroma

Marta

[Guest guest]

Sue-I sure wish I knew more about these tests and sure hope that some

answers come up for you. carol

On Mon, 02 Feb 2004 22:18:56 -0000 " slms36 " <slms36@...> writes:

> Hi. I have been having a lot of physical problems but don't seem to

> find any answers to why in the tests I've taken. I seem to have a

> lot

> of symptoms of Hpothyroid, anemia, and I'm wondering because I know

> I

> am hypoglycemic if I am having adrenal problems. I've seen an endo

> because I have a goiter but since the thyroid tests are normal he

> doesn't want to treat me. He did send me for a 24 hour urine test.

> The Cortisol level was in normal range. I had another 24 hour test

> done along with the first but I'm not really sure what it was for. I

>

> got the results back and they are in the normal range but I noticed

> a

> lot of thm are low normals. I'd just like to know if anyone's

> familiar with these tests and what they mean. I have also posted my

> results. Any help appreciated.

> Sue

> Catecholamine/VMA 24 hour Urine

> VMA Urine= 0.9 mg/L Not estab. RN

> VMA Urine 24 hour= 2.7 - norms 1.8-6.7

> Epinephrine Urine= 2 ug/L Not estab. RN

> Epinephrine Urine 24 hour= 6 - norms 0-24

> Norepinephrine Ur= 17 ug/L Not estab. RN

> Norepinephrine Ur 24 hour= 51 - norms 0-140

> Dopoamine urine= 46 ug/L Not estab. RN

> Dopoamine urine 24 hour= 138 - norms 65-610

> Metanephrines Frac, Qn, 24 Hr

> Normetaphrine , Ur= 55 ug/L Not estab. RN

> Normetaphrine , Ur 24 hour= 165 - norms 110-1050

> Metaphrine, Ur= 17 ug/L Not estab. RN

> Metaphrine, Ur 24 hour= 51 - norms 35-460

>

>

>

>

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>

>

[Guest guest]

Hi Sue#3,

It is terrible when they can't figure out just what is the problem with yourself... I sent several links last night, did any of them help you at all??? When the Dr. doesn't know and you Do know there is something wrong, then its time for you to start searching for answers yourself... A lot of us have been there done that... Keep looking till you find something that you can show the Dr. and say, This is how I am reacting... Then maybe he/she can get the tests done that you will need... Sorry I'm not anymore help... Keep us posted...

((( Searching Hugs )))

Helen

Hi. I have been having a lot of physical problems but don't seem to find any answers to why in the tests I've taken. I seem to have a lot of symptoms of Hpothyroid, anemia, and I'm wondering because I know I am hypoglycemic if I am having adrenal problems. I've seen an endo because I have a goiter but since the thyroid tests are normal he doesn't want to treat me. He did send me for a 24 hour urine test. The Cortisol level was in normal range. I had another 24 hour test done along with the first but I'm not really sure what it was for. I got the results back and they are in the normal range but I noticed a lot of thm are low normals. I'd just like to know if anyone's familiar with these tests and what they mean. I have also posted my results. Any help appreciated.SueCatecholamine/VMA 24 hour UrineVMA Urine= 0.9 mg/L Not estab. RNVMA Urine 24 hour= 2.7 - norms 1.8-6.7Epinephrine Urine= 2 ug/L Not estab. RNEpinephrine Urine 24 hour= 6 - norms 0-24Norepinephrine Ur= 17 ug/L Not estab. RNNorepinephrine Ur 24 hour= 51 - norms 0-140Dopoamine urine= 46 ug/L Not estab. RNDopoamine urine 24 hour= 138 - norms 65-610Metanephrines Frac, Qn, 24 Hr Normetaphrine , Ur= 55 ug/L Not estab. RNNormetaphrine , Ur 24 hour= 165 - norms 110-1050Metaphrine, Ur= 17 ug/L Not estab. RNMetaphrine, Ur 24 hour= 51 - norms 35-460

One wordfrees us of all the weight and pain of life: That word is,Love! Sophocles Surnames I am following:Mc Intosh/Mac Intosh/Mac k Intosh -- Lambert -- Osterhout -- Spring -- Fauver -- Tilden -- Handy -- Haller -- Leininger -- Beckham -- Godden -- Brown -- -- Barbara -- Losure -- Spade -- Ferris -- -- Chronninger -- Myles -- Weirich -- Shonk -- Inches -- Burditt -- 's -- Frosch/Frozeck -- Turrittin -- Proudfoot/Stoltzfuss -- Mattocks -- Oliver -- Peth -- Etc....angelbear1129@...

[Guest guest]

Hi !

Are you talking about those little 1/3 oz roll-on bottles? The answer is

yes, though I've only tried it once and used cyclomethicone. But you could

use sweet almond or jojoba...jojoba would be a better choice IMO because of

a longer shelf life. You'd only need a few drops of fragrance (I did it to

sniff) and no, since it is all oils, you technically wouldn't need a

preservative.

HTH! :-)

Need help

> Hey guys

>

> Question for you all. I have a request from one of my best customers for

> a roll-on body oil in her favorite Tea Rose scent. Can you just add f/o

> to some Jojoba Oil or Sweet Almond Oil to apply to the skin? I know both

> of these oils have long shelf lives but would they need some sort of

> preservative in them? Have any of you ever done this before? Any help

> would be greatly appreciated. She was hoping to have it by tomorrow.

>

> Thanks

>

>

---

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[Guest guest]

I can help if you send to me.

-Thanks!

Kim

Need help

I'm still working on compiling the intros into a word document. So far,

I have 53 pages!

I'm afraid I may be leaving someone off - or someone did their intro and

just hit reply instead of reply to all. So, would someone be so kind to

work on what I have, copy only the email addresses and paste those on

another word document to share on the list?

Thanks!

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