Guest guest Posted July 23, 2009 Report Share Posted July 23, 2009 Hi there I will try to answer your questions: 1) Prednisolone is the ingredient in prednisone - same thing. 2) The genetic testing we did was not invasive at all. Urine/blood but we only tested to HIDS really as Emma's symptoms and history didn't fit any other syndromes 3) We only had the fevers as a symptom - never any throat involvement/ulcers etc. Sometimes Emma got tummy aches and in the end before T & A she started complaining of joint pains. 4) Never heard of calcium intake being related to Hope this helps Inga Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2009 Report Share Posted July 23, 2009 My daughters genetic tests were very simple......Our doctor ordered the kit from GeneDX and did it at her office.... two small brushes came in the kit...... and she brushed them on the inside of my daughters mouth. Took a few seconds, No pain at all...... My daughter gets swollen glands, red pussy tonsils (always negative strep), abdominal pain, joint pain (feet and legs), sometimes she says her teeth hurt..... some months are worse then others..... As for strange behavior, she sucks her thumb ALL THE TIME, and also rubs her eye brow a a lot while she sucks her thumb..... trying to brake both habits since shes getting older.... but its not easy..... Hali mom to Sky 3.5 fevers since 12 months old. (leaning towards the T & A) ENT appointment next month. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2009 Report Share Posted July 23, 2009 Hi. Hope to help you out: 1) Prednisone is converted in the liver into Prednisolone so it's the same thing. 2) We didn't do genetic testing. 3) We do have peculiar behaviors only during episodes such as clinching of fists, squinting of eyes. He does complain of joint pains just before and during an episord. 4) I haven't heard of calcium being related to but I'd like to research that. You'll find a lot of these children have Tonsillectomy and Adenoidectomy procedure. It seems to resolve many cases or symptoms of . My son (who is 6 1/2) is having his T & A on Wednesday, after being on Cimetidine for 2+ years. I'm just throwing it out there as a possible suggestion of something to look into. GOOD LUCK! Jodi B. mother to Jake fevering since 2 1/2 years old. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2009 Report Share Posted July 23, 2009 Hi. Hope to help you out: 1) Prednisone is converted in the liver into Prednisolone so it's the same thing. 2) We didn't do genetic testing. 3) We do have peculiar behaviors only during episodes such as clinching of fists, squinting of eyes. He does complain of joint pains just before and during an episord. 4) I haven't heard of calcium being related to but I'd like to research that. You'll find a lot of these children have Tonsillectomy and Adenoidectomy procedure. It seems to resolve many cases or symptoms of . My son (who is 6 1/2) is having his T & A on Wednesday, after being on Cimetidine for 2+ years. I'm just throwing it out there as a possible suggestion of something to look into. GOOD LUCK! Jodi B. mother to Jake fevering since 2 1/2 years old. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2009 Report Share Posted July 23, 2009 Hi. Hope to help you out: 1) Prednisone is converted in the liver into Prednisolone so it's the same thing. 2) We didn't do genetic testing. 3) We do have peculiar behaviors only during episodes such as clinching of fists, squinting of eyes. He does complain of joint pains just before and during an episord. 4) I haven't heard of calcium being related to but I'd like to research that. You'll find a lot of these children have Tonsillectomy and Adenoidectomy procedure. It seems to resolve many cases or symptoms of . My son (who is 6 1/2) is having his T & A on Wednesday, after being on Cimetidine for 2+ years. I'm just throwing it out there as a possible suggestion of something to look into. GOOD LUCK! Jodi B. mother to Jake fevering since 2 1/2 years old. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2009 Report Share Posted July 25, 2009 Number 1. not sure, I think a ssteroid is a steroid but I'm probably wrong, we use Orapred, it works great. Number 2, Specialist know what to rule out for a  diagnosis so needless tests are just trauma you don't need. Number 3. Almost all kids complain of horrible abdominal pain and terrible leg cramps, I can't tell you how many times we thought our little girl was having an appendix attack. The list goes on and on, fatigue, sore throat, eyes swelled shut one time, pale, dark circles under eyes,whining, no appetite,vomiting, roid rage etc etc. Number 4. Ive always thought that PFAPhad something to do with the intestines either reacting negatively to a substance or just injured some way and the body is reacting to it. As the child grows the body either heals or handles the reactions better. I think to pin down a substance would be near impossible (youd go crazy trying all the combinations), For some reason the moons line up just right and their system goes into overdrive thinking its being attacked. The Doctors are not sure why these fevers happen either, most say it's an immature immune system and eventually they should outgrow it. We have had five and a half years of hell and now her fevers are about 45 to 65 days apart and managed with the Orapred. I don't have any proof for my thinking, just what seems like a lifetime of watching and suffering right along with her. Just my opinion from a Dad whos gone the distance. If you need a at a glance calender let me know, I made one on WORD and its great for the fridge, lets you see everthing easily and for a whole year. Good luck and I'll say a prayer for you and your little one.  Steve. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2012 Report Share Posted January 10, 2012 Get the DASH diet book and do the 14 day trial in chapter 9 like your life depended on it. You will learn if you BP is low sodium DASH SENSITIVE.LET us know the results in 2 weeks. Do not vary from the diet in that chapter. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jan 10, 2012, at 18:52, B <syre@...> wrote: Dr. Grim, et al, I don't know why I have htn, no reason to think it is related to my adrenals unless the murder of my son distroyed them. Most likely I have "run of the mill" htn. My dr. (no I don't have a team) barely gives a sh-t about the condition and didn't even tell me to watch my salt and diet (did not even mention it!!!!!) so my team sucks. What can I do? I am losing weight, going vegan and trying to get in the exercise. Numbers still stink. I am so afraid that I will have a debilitating stroke or heart attack. I can cry for the fear of it. I am 58 years old and a gun is pointed at my head. I can lie down and count my pulse from the feel of it! All of my valves are damaged from endocarditis in the early 90's and when my bp is low my pulse is high...visa versa. I'm telling you now, no dr., is going to help me. I am on my own. I am on Medicare so please don't tell me to get a better dr. Fat chance. My "dr." has me on lisinoril 10 mg daily and 25 hydrocortithiazide. I stopped the water pill(no change to my numbers but less poisen in my body). Numbers the same (150/92 ish) sometimes higher. WTF??? Can anyone really give me advise?? Enough of this team talk. I am alone as are most reasonalble income people. The medical care in this country is BS. Advise??? Please! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 Lucille, I just checked the bottom of my 5200. There are 4 black plastic strips screwed on at one end. I can lift up the unscrewed end with my finger. They will also move from side to side if you push them Try that to see if you can release them. Fran In a message dated 1/20/2012 11:59:32 A.M. Eastern Standard Time, lschacht@... writes: I can't use my new Vitamix. the cord is wrapped under the motor and the plug is under a strip of metal with a screw holding it on. The screw head looks like head that is stripped so I can't get it out to release the cord plug. What do I do now????? Lucille Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 Can you rotate the metal strip to allow the cord to come out?Is it flexible, so you can just pop the cord by the strip? I can understand your panic- Get that thing going! On Fri, Jan 20, 2012 at 9:58 AM, Lucille <lschacht@...> wrote:  I can't use my new Vitamix.   the cord is wrapped under the motor and the plug is under a strip of metal with a screw holding it on. The screw head looks like head that is stripped so I can't get it out to release the cord plug. What do I do now?????             Lucille Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 Thanks that worked. It bend up and got it out. It's on so tight that I couldn't turn it to the side. Lucille From: Pooley Sent: Friday, January 20, 2012 12:07 PM Subject: Re: Need Help Can you rotate the metal strip to allow the cord to come out? Is it flexible, so you can just pop the cord by the strip? I can understand your panic- Get that thing going! On Fri, Jan 20, 2012 at 9:58 AM, Lucille <lschacht@...> wrote: I can't use my new Vitamix. the cord is wrapped under the motor and the plug is under a strip of metal with a screw holding it on. The screw head looks like head that is stripped so I can't get it out to release the cord plug. What do I do now????? Lucille Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 Whew! Happy blending!On Fri, Jan 20, 2012 at 10:42 AM, Lucille <lschacht@...> wrote:  Thanks that worked.  It bend up and got it out.   It's on so tight that I couldn't turn it to the side.                    Lucille  From: Pooley Sent: Friday, January 20, 2012 12:07 PM Subject: Re: Need Help Can you rotate the metal strip to allow the cord to come out? Is it flexible, so you can just pop the cord by the strip? I can understand your panic- Get that thing going! On Fri, Jan 20, 2012 at 9:58 AM, Lucille <lschacht@...> wrote:  I can't use my new Vitamix.   the cord is wrapped under the motor and the plug is under a strip of metal with a screw holding it on. The screw head looks like head that is stripped so I can't get it out to release the cord plug. What do I do now?????             Lucille Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 If I am not around to answer questions like this (like when I am at a show :-)... the 800 number for Vitamix Customer service is very handy (on the back of your machine!) OR - feel free to give me a call and if I'm at a show, I'll call you back at the end of the day.But - the screw is only on one side of the strip of metal and the other side is designed to be lifted up (or to raise up) when you pull the cord under it. Very hard to explain without being able to show you. It is there to hold the cord that remains under the machine in its wrapped position. Just give the cord a tug - it should come out from under the strip of metal opposite the screw.Hope this helps! Blessings,Lea Ann SavageSatellite Beach, FL(321) 773-7088 (home)(321-961-9219 (cell)))><'>www.VitamixLady.comwww..com<))>< On Jan 20, 2012, at 11:58 AM, Lucille wrote: I can't use my new Vitamix. the cord is wrapped under the motor and the plug is under a strip of metal with a screw holding it on. The screw head looks like head that is stripped so I can't get it out to release the cord plug. What do I do now????? Lucille Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 It's all fixed now Lea Ann. Someone told me what to do and it worked. thanks. Lucille From: Lea Ann Savage Sent: Friday, January 20, 2012 2:23 PM Subject: Re: Need Help If I am not around to answer questions like this (like when I am at a show :-)... the 800 number for Vitamix Customer service is very handy (on the back of your machine!) OR - feel free to give me a call and if I'm at a show, I'll call you back at the end of the day. But - the screw is only on one side of the strip of metal and the other side is designed to be lifted up (or to raise up) when you pull the cord under it. Very hard to explain without being able to show you. It is there to hold the cord that remains under the machine in its wrapped position. Just give the cord a tug - it should come out from under the strip of metal opposite the screw. Hope this helps! Blessings,Lea Ann SavageSatellite Beach, FL(321) 773-7088 (home)(321-961-9219 (cell)))><'>www.VitamixLady.comwww..com<))>< On Jan 20, 2012, at 11:58 AM, Lucille wrote: I can't use my new Vitamix. the cord is wrapped under the motor and the plug is under a strip of metal with a screw holding it on. The screw head looks like head that is stripped so I can't get it out to release the cord plug. What do I do now????? Lucille Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 Thanks Fran, I was able to lift the strip up to pull the wire out. Lucille From: fradal@... Sent: Friday, January 20, 2012 12:05 PM Subject: Re: Need Help Lucille, I just checked the bottom of my 5200. There are 4 black plastic strips screwed on at one end. I can lift up the unscrewed end with my finger. They will also move from side to side if you push them Try that to see if you can release them. Fran In a message dated 1/20/2012 11:59:32 A.M. Eastern Standard Time, lschacht@... writes: I can't use my new Vitamix. the cord is wrapped under the motor and the plug is under a strip of metal with a screw holding it on. The screw head looks like head that is stripped so I can't get it out to release the cord plug. What do I do now????? Lucille Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 It is so bad I took my district to mediation!! From: mandyjo1964 <mandyjo1964@...>autism Sent: Sunday, January 29, 2012 9:28 PMSubject: Need help Families and Autism I need feedback from anyone who is having difficulty with diagnosis, tests and evaluations. I am currently experiencing issues with my child's school, it seems like I'm fighting the entire district... Anyone with advice or input please join the conversation here...Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 > > It is so bad I took my district to mediation!! > > > From: mandyjo1964 <mandyjo1964@...> > autism > Sent: Sunday, January 29, 2012 9:28 PM > Subject: Need help > > >  > Families and Autism > I need feedback from anyone who is having difficulty with diagnosis, tests and evaluations. I am currently experiencing issues with my child's school, it seems like I'm fighting the entire district... Anyone with advice or input please join the conversation here...Thanks! > We are in the process of getting together some professional opinions to aid us in his next ARD. You would not believe his test scores. But here's the issue, the behavior has to be controlled before he's able to move forward with any academics, and they are advocating taking him out of his social skills class, which is all about behavior. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2012 Report Share Posted March 27, 2012 HI Criminal Offences The Council is told by the police if a registrant has been convicted or cautioned in the United Kingdom. We can also consider convictions and cautions imposed abroad which, if committed in England and Wales, would constitute a criminal offense. The Council can consider any criminal conviction. This includes offences not directly connected with a registrant's profession or practice or which occurred while the registrant was not registered. For example, the Council would consider convictions for fraud whether related to dentistry or to personal finances, drink driving offenses, sexual or physical assault or deception. The offense is considered by the Investigating Committee as to whether it requires a referral to a Practice Committee. BEST REGARDSEBTISAM From: Chandra Rais <chandrarais50@...> " " < > Sent: Tuesday, 27 March 2012, 21:51 Subject: need help what r the incidents that can lead to immediate erasure of the dentist from gdc register??// Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2012 Report Share Posted March 27, 2012 Thanku so much..... N Can u xplain abt the disclosure law... wat will we do if the school teacher rings us to know about the student if he/she was really in practice for appointment???or if the wife rings you to check if the husband was in the practice??? can we say the time they were in our surgery or say nothing??? > > > HI > > > Criminal > Offences > The > Council is told by the police if a registrant has been convicted or > cautioned in the United Kingdom. We can also consider convictions and > cautions imposed abroad which, if committed in England and Wales, would > constitute a criminal offense. > The > Council can consider any criminal conviction. This includes offences not > directly connected with a registrant's profession or practice or which > occurred while the registrant was not registered. For example, the Council > would consider convictions for fraud whether related to dentistry or to > personal finances, drink driving offenses, sexual or physical assault or > deception. > The offense > is considered by the Investigating Committee as to whether it > requires a referral to a Practice Committee. > > BEST REGARDS > EBTISAM > > > ________________________________ > From: Chandra Rais <chandrarais50@...> > " " < > > Sent: Tuesday, 27 March 2012, 21:51 > Subject: need help > > >  > what r the incidents that can lead to immediate erasure of the dentist from gdc register??// > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2012 Report Share Posted March 27, 2012 HIHAVE Y DONE THE BDA DATA PROTECTION GUIDELINES????????U SHOULD N`T DISCLOSE THE INFO WITHOUT THE PT CONSENT a school should not be given information about whether a child attended foran appointment on a particular day. It should be suggested that the child isasked to obtain the dentist’s signature on his or her appointment card tosignify attendance.NOR ANY INFO RELATED TO THE PT APPOINTMENTI HAVE ATTACHED THE DOC ( ITS V IMP)BEST REGARDSEBTISAM From: chandrarais50 <chandrarais50@...> Sent: Tuesday, 27 March 2012, 22:20 Subject: Re: need help Thanku so much..... N Can u xplain abt the disclosure law... wat will we do if the school teacher rings us to know about the student if he/she was really in practice for appointment???or if the wife rings you to check if the husband was in the practice??? can we say the time they were in our surgery or say nothing??? > > > HI > > > Criminal > Offences > The > Council is told by the police if a registrant has been convicted or > cautioned in the United Kingdom. We can also consider convictions and > cautions imposed abroad which, if committed in England and Wales, would > constitute a criminal offense. > The > Council can consider any criminal conviction. This includes offences not > directly connected with a registrant's profession or practice or which > occurred while the registrant was not registered. For example, the Council > would consider convictions for fraud whether related to dentistry or to > personal finances, drink driving offenses, sexual or physical assault or > deception. > The offense > is considered by the Investigating Committee as to whether it > requires a referral to a Practice Committee. > > BEST REGARDS > EBTISAM > > > ________________________________ > From: Chandra Rais <chandrarais50@...> > " " < > > Sent: Tuesday, 27 March 2012, 21:51 > Subject: need help > > >  > what r the incidents that can lead to immediate erasure of the dentist from gdc register??// > 1 of 1 File(s) dataprotection(d).pdf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2012 Report Share Posted March 28, 2012 hi everytime you have to pay for the examgoodluck From: neis39 <neis39@...> Sent: Wednesday, 28 March 2012 1:52 PM Subject: need help Could anyone tell me please, if we fail first time in ore part1 , do we have to pay again for second seat ?or we have 4 times chance to seat for each part? Many thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2012 Report Share Posted March 28, 2012 Thanks.. From: Pramanik kumar Chaudhary <prithivi_1972@...> " " < > Sent: Wednesday, March 28, 2012 9:25 AM Subject: Re: need help hi everytime you have to pay for the examgoodluck From: neis39 <neis39@...> Sent: Wednesday, 28 March 2012 1:52 PM Subject: need help Could anyone tell me please, if we fail first time in ore part1 , do we have to pay again for second seat ?or we have 4 times chance to seat for each part? Many thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2012 Report Share Posted March 28, 2012 no u have to pay for each attempt so if ur not well prepared do not enter u can defer the exam > > Could anyone tell me please, if we fail first time in ore part1 , do we have to pay again for second seat ?or we have 4 times chance to seat for each part? > Many thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2012 Report Share Posted March 28, 2012 I was in doubt ,and I'm preparing for this exam as much as I can, but who knows what will be the result ??By the way thanks for reply Good luck From: Mannar G <garadahm@...> Sent: Wednesday, March 28, 2012 3:39 PM Subject: Re: need help no u have to pay for each attempt so if ur not well prepared do not enter u can defer the exam > > Could anyone tell me please, if we fail first time in ore part1 , do we have to pay again for second seat ?or we have 4 times chance to seat for each part? > Many thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2012 Report Share Posted March 30, 2012 hi guys,it is wonderful to see all of u helping one another and discussing,to start can i know from where u guys are discusing i am new to this forum the topics i am just not able to follow please help ..................i also would like to share my knowledge. thank you in advance and good luck to all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2012 Report Share Posted March 30, 2012 Thanks and I'll try my best and good luck to you as well From: Mannar G <garadahm@...> Sent: Friday, March 30, 2012 3:37 PM Subject: Re: need help if u feel u can answer alot of the questions then dont worry go ahead if u feel clueless defer it to next september good luck and dunt worry even if u fail u can do it again u have 4 attempts but i hope u pass inshala first attempt > > > > Could anyone tell me please, if we fail first time in ore part1 , do we have to pay again for second seat ?or we have 4 times chance to seat for each part? > > Many thanks > > > Quote Link to comment Share on other sites More sharing options...
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