Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 Simple, just find yourself a ROSHI front-end. Sorry, they are no longer available./ChuckD.... http://www.roshi.com/ epilepsy Dear members,I am going to see a client with epilepsy.This is going to be the first epilepsy client.I would appreciate any advices you can give me before I see him.What kind of protocols do you use for epilepsy?Are there anything I should avoid beside training lower frequecy than 4Hz?Thank you.Jo Sato Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 Jo, The classic Sterman protocol for epilepsy was C3/C4 bipolar training up 12-15 Hz and down theta. You probably want to avoid training very fast or very slow frequencies and just focus on the middle speeds. Pete Van DeusenBrainTrainer ()16246 SW 92nd Ave, Miami, FL 33157305/321-1595 epilepsy Dear members,I am going to see a client with epilepsy.This is going to be the first epilepsy client.I would appreciate any advices you can give me before I see him.What kind of protocols do you use for epilepsy?Are there anything I should avoid beside training lower frequecy than 4Hz?Thank you.Jo Sato Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 Pete, I did the first session as you just described. Thank you. Jo -----Original Message----- From: Van Deusen [mailto:pvdtlc@...] Sent: Friday, March 26, 2004 3:36 AM Subject: Re: epilepsy Jo, The classic Sterman protocol for epilepsy was C3/C4 bipolar training up 12-15 Hz and down theta. You probably want to avoid training very fast or very slow frequencies and just focus on the middle speeds. Pete Van Deusen BrainTrainer () 16246 SW 92nd Ave, Miami, FL 33157 305/321-1595 ----- Original Message ----- From: sato3jp Sent: Monday, March 22, 2004 10:38 PM Subject: epilepsy Dear members, I am going to see a client with epilepsy. This is going to be the first epilepsy client. I would appreciate any advices you can give me before I see him. What kind of protocols do you use for epilepsy? Are there anything I should avoid beside training lower frequecy than 4Hz? Thank you. Jo Sato Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2004 Report Share Posted April 3, 2004 Dear Jo Sato, Sometimes with epilepsy, training can only be done at one site such as C4 with 11-14 hz increase. I always conduct a QEEG to ascertain the appropriate sites and training levels. One of my clients, a 3 1/2 year old who seized 30 times an hour from birth can only utilize training at C4. Any training for more than 3 minutes at C3 results in irritibility and tears. I also train down 5-7 and use 22-30 to monitor movement, ie, eyeblinks, etc. By the way, he now averages about 4 seizures an hour and most often none for several hours. He also, is beginning to talk and is attempting to stand. Merlyn Hurd Ph.D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2004 Report Share Posted April 4, 2004 Jo, I sought out BF for my own seizures. There were not grand mal though. They would hit me every 25-45 days, and last 3-5 days. My first trainer I went to, who I responded very well to, would first train at C3, reducing theta (4-7hz) and increase beta (15-18 Hz) at C4. About 18 minutes. Then we'd switch to C4, training down theta, and up SMR/12-15hz. About 12 minutes. I believe she would set the goals so that I was achieving them about 80% of the time. I worked with others after her when I moved from that state, and they would train the same locations, same frequencies, but I didn't have positive responses to it. I had a variety of positive responses from her training. My seizures did not stop, but they decreased in number of episodes per day, number of days in a row, and lower severity of the seizures. I see I have a note in my log about what someone else had recommended too: T3/T4/A1 increase 9-12hz, decrease 2.5 - 6.5, decrease 23-38 Another note I see is a something called the Tansey Method, of increasing 14hz at Cz, and notes that it is supposed to improve ADHD, Tourettes and petite mal. And, another note for Absence seizures: C4-A2, Increase 11-14hz, decrease 2-7hz. I'd be interested in hearing what you find... By the way, my seizures have decreased in recent months. The only thing I can think of that has been different is that I've been going for acupuncture, and that has allowed me to release some significant grief, and maybe it was the pressure of the grief and assorted other stresses and pressures that were stimulating the seizures. I'm also addressing those pressures via antidepressants, meditation, and qi gong. Best wishes to you, Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Lynn, Thank you very much for your reply. I will talk to the parents and decide what to do. Thank you again. Jo -----Original Message----- From: LGoldhamme@... [mailto:LGoldhamme@...] Sent: Monday, April 05, 2004 2:51 PM Subject: Re: Epilepsy Jo, I sought out BF for my own seizures. There were not grand mal though. They would hit me every 25-45 days, and last 3-5 days. My first trainer I went to, who I responded very well to, would first train at C3, reducing theta (4-7hz) and increase beta (15-18 Hz) at C4. About 18 minutes. Then we'd switch to C4, training down theta, and up SMR/12-15hz. About 12 minutes. I believe she would set the goals so that I was achieving them about 80% of the time. I worked with others after her when I moved from that state, and they would train the same locations, same frequencies, but I didn't have positive responses to it. I had a variety of positive responses from her training. My seizures did not stop, but they decreased in number of episodes per day, number of days in a row, and lower severity of the seizures. I see I have a note in my log about what someone else had recommended too: T3/T4/A1 increase 9-12hz, decrease 2.5 - 6.5, decrease 23-38 Another note I see is a something called the Tansey Method, of increasing 14hz at Cz, and notes that it is supposed to improve ADHD, Tourettes and petite mal. And, another note for Absence seizures: C4-A2, Increase 11-14hz, decrease 2-7hz. I'd be interested in hearing what you find... By the way, my seizures have decreased in recent months. The only thing I can think of that has been different is that I've been going for acupuncture, and that has allowed me to release some significant grief, and maybe it was the pressure of the grief and assorted other stresses and pressures that were stimulating the seizures. I'm also addressing those pressures via antidepressants, meditation, and qi gong. Best wishes to you, Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Hello, Merlyn, I don't know, but from this report, methinks that you haven't been putting your ROSHI to much use. Best, /ChuckD.... Re: Epilepsy Dear Jo Sato, Sometimes with epilepsy, training can only be done at one site such as C4 with 11-14 hz increase. I always conduct a QEEG to ascertain the appropriate sites and training levels. One of my clients, a 3 1/2 year old who seized 30 times an hour from birth can only utilize training at C4. Any training for more than 3 minutes at C3 results in irritibility and tears. I also train down 5-7 and use 22-30 to monitor movement, ie, eyeblinks, etc. By the way, he now averages about 4 seizures an hour and most often none for several hours. He also, is beginning to talk and is attempting to stand. Merlyn Hurd Ph.D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2004 Report Share Posted September 30, 2004 CATHY, I DIDNT KNOW THAT, NOAH TURNED 8 IN MAY AND I HAVENT NOTICED ANYTHING AND WHAT DO I LOOK FOR? THANKS SANDY NOAHS MOM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2004 Report Share Posted September 30, 2004 We also felt like some of Noah's meltdowns were early seizures. Dawn --- Carlson <ckcarlson@...> wrote: > Tristan, age 8, has been diagnosed with seizures and > will start on Trileptal Monday. It seems there are > other children with autism that have started having > seizures at age 8. We know the data show that kids > with autism entering puberty are at risk of this, > but age 8? In restrospect and after studying > epilpetic seizures I believe that some of his > tantrums were really seizures. I would appreciate > feedback from any of you whose child has or had > seizures. > > > > [Non-text portions of this message have been > removed] > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2004 Report Share Posted September 30, 2004 We also felt like some of Noah's meltdowns were early seizures. Dawn --- Carlson <ckcarlson@...> wrote: > Tristan, age 8, has been diagnosed with seizures and > will start on Trileptal Monday. It seems there are > other children with autism that have started having > seizures at age 8. We know the data show that kids > with autism entering puberty are at risk of this, > but age 8? In restrospect and after studying > epilpetic seizures I believe that some of his > tantrums were really seizures. I would appreciate > feedback from any of you whose child has or had > seizures. > > > > [Non-text portions of this message have been > removed] > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 Hi Gidon. I do not know anything about ear insulflation for epilepsy. I do, however, know from personal experience with my mother and a nephew that L Taurine is excellent for seizure prevention in some people. I also know that Wheat can be a cause of seizures. Also, magnesium orotate is helpful for calming the brain. Blessings Donna http://www.excellentthings.com epilepsy > Does anybody have any experience with epilepsy and ear insufalation? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 Dear Gidon, We had a fellow about ten years ago with a long history of episodic seizures, who did 12 months of ear insufflation, after going off his medication. In all that time he did not have a seizure, so he was given a clean bill of health, and obtained his first driver's licence at age 38. Since then he has continued at a maintenance level, with no medication, and no seizures. Best of Health! Dr. Saul Pressman epilepsy > Does anybody have any experience with epilepsy and ear insufalation? > > > > OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other alternative self-help subjects. > > THERE IS NO MEDICAL ADVICE HERE! > > This list is the 1st Amendment in action. The things you will find here are for information and research purposes only. We are people sharing information we believe in. If you act on ideas found here, you do so at your own risk. Self-help requires intelligence, common sense, and the ability to take responsibility for your own actions. By joining the list you agree to hold yourself FULLY responsible FOR yourself. Do not use any ideas found here without consulting a medical professional, unless you are a researcher or health care provider. > > You can unsubscribe via e-mail by sending A NEW e-mail to the following address - NOT TO THE OXYPLUS LIST! - > DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the message! : > > oxyplus-unsubscribeegroups > > oxyplus-normalonelist - switch your subscription to normal mode. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 I got somebody completely free from seizures (already for 25 years or so), with a simple list of anti-oxydants plus mega-B-complex/Brewer's yeast. I would not be surprised if manganese would help as well. Pregnenolone (a neurohormone) seems to work absolute miracles with epilepsy. Dirk Chardet epilepsy > Does anybody have any experience with epilepsy and ear insufalation? > OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other alternative self-help subjects. THERE IS NO MEDICAL ADVICE HERE! This list is the 1st Amendment in action. The things you will find here are for information and research purposes only. We are people sharing information we believe in. If you act on ideas found here, you do so at your own risk. Self-help requires intelligence, common sense, and the ability to take responsibility for your own actions. By joining the list you agree to hold yourself FULLY responsible FOR yourself. Do not use any ideas found here without consulting a medical professional, unless you are a researcher or health care provider. You can unsubscribe via e-mail by sending A NEW e-mail to the following address - NOT TO THE OXYPLUS LIST! - DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the message! : oxyplus-unsubscribeegroups oxyplus-normalonelist - switch your subscription to normal mode. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2006 Report Share Posted July 8, 2006 Ma , thank you for sharing your story with me. I also do believe that my son's epilepsy is connected with his food - when his first seizure occured we were on gfcf diet but he got very sick (he had flue with fever, low appetite) and I was fool enough to give him a bit of a milk chocolate what was his favourite before the diet. I think a day later he had his first seizure. We treated him with homeopathic remedies and the seizures had gone but we are still on gfcfsf and we see great improvements in behaviour.We are also treating his gut problems with naturals and going to start MB12 soon. Thank you for your response, Ágnes Electromagnetic Therapy question #2> > > Please feel free to continue to comment about the VIBE as well...> > Anyone try the Bemer system?> > - Stan> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2006 Report Share Posted July 8, 2006 Ma , thank you for sharing your story with me. I also do believe that my son's epilepsy is connected with his food - when his first seizure occured we were on gfcf diet but he got very sick (he had flue with fever, low appetite) and I was fool enough to give him a bit of a milk chocolate what was his favourite before the diet. I think a day later he had his first seizure. We treated him with homeopathic remedies and the seizures had gone but we are still on gfcfsf and we see great improvements in behaviour.We are also treating his gut problems with naturals and going to start MB12 soon. Thank you for your response, Ágnes Electromagnetic Therapy question #2> > > Please feel free to continue to comment about the VIBE as well...> > Anyone try the Bemer system?> > - Stan> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 Agnes, We have also dealt with years of increasing seizures that were not responsive to medications, dosage escalations etc BUT, they have been very responsive to gfcfsf. If our daughter diet stays pure, she is seizure free. If not, we see seizures in 8-12 hours. The number and intensity seems related to the amount of untolerated food that she ate. I realize that we're in the minority with this dramatic response. After years of 'watching' helplessly as seizures took their toll, I glad to have found this intervention. > > HiHi > Hi Stan, > I am a new to this group from Central Europe. I have a 6 years old boy with ASD and epilepsy. DAN treatment (nor either biomedical treatments) was not available here at all earlier. At the moment a foundation invited a DAN doctor from the U.S. who received parents in a hospital for a few days every month from January and gave us a kind of treatment schedule for our kids. MB12 and Valtrex are both included in my son's treatment and we are going to start it soon. > The reason of my writing to you is that I tried a Bemer equipment two years ago - I wanted to help my little son but first I tried it myself and I had a terrible experience. I felt very warm inside and I had a feeling that something from my chest went up to my head. I cannot describe it better (my English is not too good) but later on (two hours later) I also had a terrible panic attack. I used to have this panic syndrome earlier, before the birth of my son but following a two years' therapy on Paroxat, the attacks had gone and I did not need the meds any longer. But after the Bemer trial (two years ago as I mentioned above), I got into such a bad state that I had to take Paroxat again and slowly got better. I cannot be 100% sure that the Bemer equipment alone has caused everything (I was a bit overloaded and depressed at that time because of my son's epilepsy) but it surely had a very intensive effect on me right after using it. Afterwards, I did not try it on my son, I simply would like to warn you to be careful with electromagnetic therapy, it might not be good for everyone.(I was doing a ten minutes' program for beginners based on the instructions of a doctor from whom we borrowed the equipment for ten days). > > I am very glad that I found this group, I am learning a lot from you every day! > Stan, you are great, I wish we had a few 'Stans' here in Hungary as well! > Regards, > Ágnes > > > Electromagnetic Therapy question #2 > > > Please feel free to continue to comment about the VIBE as well... > > Anyone try the Bemer system? > > - Stan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 Agnes, We have also dealt with years of increasing seizures that were not responsive to medications, dosage escalations etc BUT, they have been very responsive to gfcfsf. If our daughter diet stays pure, she is seizure free. If not, we see seizures in 8-12 hours. The number and intensity seems related to the amount of untolerated food that she ate. I realize that we're in the minority with this dramatic response. After years of 'watching' helplessly as seizures took their toll, I glad to have found this intervention. > > HiHi > Hi Stan, > I am a new to this group from Central Europe. I have a 6 years old boy with ASD and epilepsy. DAN treatment (nor either biomedical treatments) was not available here at all earlier. At the moment a foundation invited a DAN doctor from the U.S. who received parents in a hospital for a few days every month from January and gave us a kind of treatment schedule for our kids. MB12 and Valtrex are both included in my son's treatment and we are going to start it soon. > The reason of my writing to you is that I tried a Bemer equipment two years ago - I wanted to help my little son but first I tried it myself and I had a terrible experience. I felt very warm inside and I had a feeling that something from my chest went up to my head. I cannot describe it better (my English is not too good) but later on (two hours later) I also had a terrible panic attack. I used to have this panic syndrome earlier, before the birth of my son but following a two years' therapy on Paroxat, the attacks had gone and I did not need the meds any longer. But after the Bemer trial (two years ago as I mentioned above), I got into such a bad state that I had to take Paroxat again and slowly got better. I cannot be 100% sure that the Bemer equipment alone has caused everything (I was a bit overloaded and depressed at that time because of my son's epilepsy) but it surely had a very intensive effect on me right after using it. Afterwards, I did not try it on my son, I simply would like to warn you to be careful with electromagnetic therapy, it might not be good for everyone.(I was doing a ten minutes' program for beginners based on the instructions of a doctor from whom we borrowed the equipment for ten days). > > I am very glad that I found this group, I am learning a lot from you every day! > Stan, you are great, I wish we had a few 'Stans' here in Hungary as well! > Regards, > Ágnes > > > Electromagnetic Therapy question #2 > > > Please feel free to continue to comment about the VIBE as well... > > Anyone try the Bemer system? > > - Stan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2008 Report Share Posted October 21, 2008 She may need more fat in her diet, especially omega-3's. Plenty of literature in Pub Med. Regards, Monika M. Woolsey, MS, RD http://www.afterthediet.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2009 Report Share Posted November 24, 2009 FWIW, my daughter also tests positive to Herpes-6. We've used valtrex, tons of lysine, vit C, OLE, and most other things folks report might help. SHe still has a viral load that nothing has touched-w evidence of a comfortable, happily growing wart in her ear[gross, I know]. Hulda is convinced that seizures are related to a specific parasite-I don't recall which at the moment- which prompted me to get a zapper-no impact on seizure level. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2009 Report Share Posted November 24, 2009 Hi My nieces levels of Herpes 6 has dropped since using the homeopathics.... I have been in touch with the German homeopath and sent her a list of questions.. so await the answer... We brought both the zapper- with no effect, and a green light laser.. which seemed to increase her seizures.. at the time that this device was Dr K's gadget of the month so to speak. My neice has been on a herpes 6 homeopathic formulation from Belgium.. along with three other remedies/ concoctions I have never heard of. As an aside... how did you get your daughters blood tested for the herpes virus? Best wishes Tracey On Tue, Nov 24, 2009 at 2:06 PM, mbrookh <mbrookh@...> wrote: FWIW, my daughter also tests positive to Herpes-6. We've used valtrex, tons of lysine, vit C, OLE, and most other things folks report might help. SHe still has a viral load that nothing has touched-w evidence of a comfortable, happily growing wart in her ear[gross, I know]. Hulda is convinced that seizures are related to a specific parasite-I don't recall which at the moment- which prompted me to get a zapper-no impact on seizure level. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2009 Report Share Posted November 24, 2009 Tracey, It was years ago when we did the antimyelin antibodies and a few others. I think it was through Dr. Gupta's lab. I would be interested in any info you can get @ the herpes 6 and homeopathic remedies. We do not have the expertise here in US that you have for those remedies and I've not had success in finding a good one. Thanks, > > > > > > > FWIW, my daughter also tests positive to Herpes-6. We've used valtrex, tons > > of lysine, vit C, OLE, and most other things folks report might help. SHe > > still has a viral load that nothing has touched-w evidence of a comfortable, > > happily growing wart in her ear[gross, I know]. Hulda is convinced > > that seizures are related to a specific parasite-I don't recall which at the > > moment- which prompted me to get a zapper-no impact on seizure level. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2012 Report Share Posted April 7, 2012 LA of choice for epileptic patient plz ? Balsam Sent from my iPad Quote Link to comment Share on other sites More sharing options...
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