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Hi all.Usually I just read and absorb all the wonderful insight and

information on this list,BUT I need some answers.My son Jordan is 9 and has

been diagnosed with Tourettes since 6 but has had it since around 3.He has

behaviors that are considered ocd tendencies. How do I know if CBT will work

for him?How do I know if maybe he needs to just talk to a psychologist or

someone geared towards tourettes help. He is on catapress and zoloft and

also takes thyroid meds. He has tics that are on the fine line of

compulsions.So how do you differentiate which is which and what help to

proceed with? He does not check or handwash or hoard or be very neat or most

of the things on the actual ocd list. He touches his nose constantly and

smells his fingers.when he does a certain tic he has to count to a specific

number.Are these really cbt issues.We have had 2 extremely bad episodes

happen and some meltdowns over the past 6 months.Please forgive the length

of this post,I just really know he needs someone to talk with but I need

help on where to go for the best try for Jordan.Thank you all.Best

Regards,Hope

Re: School Advice

>From: j.monnens@...

>

>

>

>Pam:

>

>Yes, any changes to an IEP should be written into the plan. If the meeting

>was cancelled, you should request IN WRITING another meeting. They are

>required to schedule a meeting that is as convenient for you as it is for

>the teacher(s). What state are you in? Your state office of special

>education should be able to give you guidelines, but there should also be a

>compliance officer in your school district that you can turn to. Make sure

>ALL communication with the school has a paper trail -- keep notes of phone

>conversations and of anything you send to the school. I keep everything in

>a 3-ring binder. I refer to myself fondly as a PUFH (parental unit from

>hell). I'm not nasty, but I make sure they know I know the laws and that I

>keep records of everything. I have even been known to tape IEP meetings.

>If you need more info, contact me directly.

>

>Jule in Cleveland

>

>

>

>------------------------------------------------------------------------

>Looking for a new hobby? Want to make a new friend?

>

>Come join one of the 145,000 email communities at ONElist!

>------------------------------------------------------------------------

>The is sponsored by the OCSDA. You may visit their

web site at http://www.ocdhelp.org/ and view schedules for chatroom support

at http://www.ocdhelp.org/chat.html

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Hi all I am a parent of a 12 year old beautiful girl recently diagnosed

ocd.

We are trying to find the right med now. She is on luvox 100 mg it has

helped a lot, but has not completely relieved her. Now she has gone from a

straight a student to not caring as much and getting b and c grades.

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  • 3 months later...

Leigh,

I posted a post about what TNI is. I hope it will answer some of your

questions.

Chances are your doctor WILL NOT bring up TNI. It is not considered a

treatment for Down syndrome (unless you are speaking with the company

that makes TNI) in the majority of the medical population. Matter of

fact, a great deal of doctors are not aware of what TNI is either. It

is not an FDA approved " therapy " for Down syndrome, so your doctor may

have a hard time recomending it. I suggest you do a good deal of

research on it before considering it.

Cheers,

Sara

--- Leigh Menconi <lmenconi@...> wrote:

> From: Leigh Menconi <lmenconi@...>

>

>

> My twins were born 14 weeks ago and except for the

> month she spent in

> the hospital, hasn't seen the doctor much.

> I am not familiar

> with any of the vitamin therapies that y'all talk

> about. Is it

> something that I should initiate or will the doctor

> bring it up? What

> is piracetam? What is TNI? Her next appt is in

> three weeks so I have

> some time to do some research before I talk with the

> doctor about it.

> Also, her thyroid screen came back normal while she

> was in the hospital

> but she's growing really slowly. Should I have her

> re-tested? It could

> just be that she isn't eating enough but I read one

> of your emails that

> said she could be losing 10-20 iq points per month

> that it's

> undiagnosed.

>

> She has a VSD and a malformed tricuspid valve but is

> not showing any

> signs of the heart problem except that she tires

> easily (especially

> while feeding) and sleeps alot. She's now a little

> over 7 1/2 pounds

> while her brother is almost 14. People always ask

> how far apart in age

> they are and are flabbergasted when I reply, " Two

> minutes. "

>

> Leigh Menconi

> mom to (4/95) and twins (DS) and

> (5/28/99)

>

>

> ---------------------------

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Hi! I would think that if the thyroid test was normal, there isn't

anything to worry about at this point. It took my kids a LONG time to

grow, too. I thought they'd be 10 lbs forever! Now I think they're

going to be 24 lbs forever!. It certainly wouldn't hurt to ask your

pediatrician about why she's growing slow, but that may just be the way

she is!

Judi - Mom to Sam & , 32 mos. Identical twins

--- Leigh Menconi <lmenconi@...> wrote:

> From: Leigh Menconi <lmenconi@...>

>

>

> My twins were born 14 weeks ago and except for the

> month she spent in

> the hospital, hasn't seen the doctor much.

> I am not familiar

> with any of the vitamin therapies that y'all talk

> about. Is it

> something that I should initiate or will the doctor

> bring it up? What

> is piracetam? What is TNI? Her next appt is in

> three weeks so I have

> some time to do some research before I talk with the

> doctor about it.

> Also, her thyroid screen came back normal while she

> was in the hospital

> but she's growing really slowly. Should I have her

> re-tested? It could

> just be that she isn't eating enough but I read one

> of your emails that

> said she could be losing 10-20 iq points per month

> that it's

> undiagnosed.

>

> She has a VSD and a malformed tricuspid valve but is

> not showing any

> signs of the heart problem except that she tires

> easily (especially

> while feeding) and sleeps alot. She's now a little

> over 7 1/2 pounds

> while her brother is almost 14. People always ask

> how far apart in age

> they are and are flabbergasted when I reply, " Two

> minutes. "

>

> Leigh Menconi

> mom to (4/95) and twins (DS) and

> (5/28/99)

>

>

> ---------------------------

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  • 7 months later...
Guest guest

Dear Stefy,

I put Emu oil in just about everything... except my coffee!

Seriously, I have used it in place of Sweet Almond oil, Coconut oil, jojoba

oil... it makes great cremes, bath bombs,

bath scrubs, soaps, etc...

Let me know if you need a GREAT supplier (it's where I get mine, anyway!)...

-Cyn

Stefanie Gomes wrote:

> I have a couple of questions. First, where can I find a recipe to make liquid

soap? Can I put the emu oil in that?

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Guest guest

Dear Cyn:

I haven't yet used emu oil, but I hear it's great. I'd like to give it a try,

can you give me the name of the supplier

(privately of course)?

Thanks for your help,

Deb

Fragrantly Yours

wrote:

> Dear Stefy,

>

> I put Emu oil in just about everything... except my coffee!

>

> Seriously, I have used it in place of Sweet Almond oil, Coconut oil, jojoba

oil... it makes great cremes, bath bombs,

> bath scrubs, soaps, etc...

>

> Let me know if you need a GREAT supplier (it's where I get mine, anyway!)...

>

> -Cyn

>

> Stefanie Gomes wrote:

>

> > I have a couple of questions. First, where can I find a recipe to make

liquid soap? Can I put the emu oil in that?

>

> ------------------------------------------------------------------------

> 25% Off All Prints!

> Buy one today at Corbis.com

> 1/3357/2/_/671259/_/955665449/

> ------------------------------------------------------------------------

>

>

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  • 5 months later...

In a message dated 9/16/00 5:16:34 AM Central Daylight Time,

egroups writes:

<< few questions (anyone tired of me yet?)

1. does your child like to scratch and dig into your skin? jared does

this quite a bit, majority of the time for no reason that i can see.

he seems to like it and i starting to think he feels other people

enjoy being dug with nails. i know that sounds silly but its driving

me crazy. i am tired of being scratched up and not sure how to stop

it.

2. LICKING!!! grrrrrrrr i am going nuts!!!! has any one here figured

out how to stop the constant licking. its so gross and hes started

doing it at school now too....he used to limit it to home and bus.

any ideas that work, and of course jared thinks its one big joke and

laughs whenever he does it which makes it more annoying.

3. any ideas or programs about working on emotions and how to deal

with them express them work with them ect???

if anyone gets weary of my questions let me know!!!! lol

thanks a lot

MARIE

>>

Marie,

I'm not saying that any of these things work but, here are some things you

can try.

1. The scratching and digging in nails. Yeah, happens here. I try to wear

long sleeve shirts and if he digs his nails into my arm I tell him gentle and

have him rub my arm.

At least it makes him aware of the appropriate way to touch and of course

praise the heck for nice touchs.

2. Give him a toy or something that is OK to lick. If he starts licking other

things then immediately direct back to the toy. Good luck on this one. It is

tough and time intensive if you are going to have any success changing it.

Remember reinforce for appropriate behavior (even if it is licking the toy).

3. My foster son is verbal but this is how we taught emotions. I bought a

poster with all the emotions on it at a teaching shop. I cut it up so we had

a card with each emotion and taught him what each one meant. He had to pick

the card that showed happy out of two presented.

Then we moved onto picture cards with a scenario and taught him what each

picture meant and then moved on to role play.

Feel free to e-mail me if that doesn't make sense.

Good luck,

Karyn

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> 1. does your child like to scratch and dig into your skin? jared

> does

> this quite a bit, majority of the time for no reason that i can

> see.

> he seems to like it and i starting to think he feels other people

> enjoy being dug with nails. i know that sounds silly but its

> driving

> me crazy. i am tired of being scratched up and not sure how to stop

>

Marie,

Matt used to do this much more than he does now. My poor daughter who is

1 year older than he is, always had major scratches all over her,

especially her face. Now he enjoys being scratched deeply or even bit!

(He puts his knuckles or elbow against someone's mouth, forcing it open

and then wants you to bite to leave teeth marks!) The thing that has

helped more than anything is providing him with deep pressure in other

ways. He craves it. Does see an OT? If so, ask him/her about

brushing and deep pressure. We used the brushing for a while, now just

mainly use the deep pressure when he is feeling " sensory deprived " . He

loves his own hands to be dug with nails, his arms, his legs, his feet,

and sometimes his head. Sometimes if you touch his head he really fusses,

othertimes he craves it! I just cant' figure it out. I sometimes think

the licking is also related. Maybe if we brush his teeth and tongue more,

(like 5-6 times a day), he will get that input in his mouth and stop

licking things!

S

>

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Try it today - there's no risk! For your FREE software, visit:

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  • 1 month later...

Salt makes the soap hard and sugar makes more lather. You can add salt or

sugar to any recipe. Just add it to the water just befor you add the lye.

questions

>

> I talked to a soaper who uses both salt and sugar in her soap recipe. I

can't find a recipe that calls for either. Why would she do this?

>

>

>

>

>

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Hi!

The salt will create a harder bar and sugar produces more lather. They are

dissolved into the distilled water before the lye is added. Hope this helps.

in Golden, BC

>

>

> I talked to a soaper who uses both salt and sugar in her soap recipe. I can't

find a recipe that calls for either. Why would she do this?

>

>

>

>

>

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  • 2 months later...

The reason why they holding papers is to show you when they started!

And the date is on the newspaper!

I seen the picture,to me they look phony;I'm not knocking that some people

can change there bodys in 3 months,but not like that,it's kinda impossible!

>From: " Barbara " <barbjones@...>

>Reply-bodyforlifeegroups

><bodyforlifeegroups>

>Subject: questions

>Date: Tue, 16 Jan 2001 12:47:10 -0600

>

>I have a couple of questions. On alot of the before and after pictures I

>have seen, several people are holding a newspaper. Why?

>

>How many 12 week challenges did it take for these people to make these

>kinds of transformations?

>

>Thanks in advance.

>Barb

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

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Hi Barb!

You wrote:

> I have a couple of questions. On alot of the before and after

pictures I have seen, several people are holding a newspaper.

Why? <

The rules of some of the challenges in previous years required

the holding of a newspaper in the before and after shots, as a

method of verifying the duration of a person's challenge. In the

year 2000 challenge, this was not required.

I haven't yet read the " sample " rules for this year's contest, so I

don't know whether this is a requirement. I hope not - since,

when my wife and I took our " Before " pictures on January 2, we

did it just like last year, with no newspaper! :-)

> How many 12 week challenges did it take for these people to

make these kinds of transformations?<

In the first EAS challenge of this kind, a program of *at least *12

weeks was required, but people had the option of taking longer.

So some people did take longer with their programs. Still, how

quickly a transformation was completed was factored into the

judging - i.e., other things being equal, a quicker transformation

was a " plus " to one's score. Consequently, even in the original

contest, some of the most visually striking transformations took

as little as 12 weeks. A few champions did take longer - as long

as 16 weeks in one case, as I recall.

I believe that since that first year, 12 weeks has been required for

everyone, so most of those incredible changes that you see, in

the book and elsewhere, took that little time.

It is of course amazing how far some people have traveled in so

little time. That of course is a source of inspiration. Also though,

many people have made wonderful, positive changes that

weren't quite as dramatic quite as quickly. Part of it is that

everyone " takes to " the program with their own, individual starting

points, and it takes some longer than others to master the

basics. I know that my wife and I would have made more

progress faster, had we sought outside help and support more

actively, sooner than we did. ly, we had no idea how much

was available! :-) Progress not perfection... our mission is to get

better at it with each 12 week round. :-)

There are also many people who have done challenge after

challenge - and made terrific, new progress each time. A great

example of this is Cheryl Cundick, who is featured at

www.bodychangers.com, and is a member of this very group! :-)

Go to www.bodychangers.com, click The Interviews, click Page

2, and there you will see pictured one of her before and after

transformations. That transformation is extremely impressive in

itself. But if you *really* want to be impressed, look at how much

she has done over time! Click where it says " See Cheryl's Most

Recent Transformation Pictures " and I *guarantee* you will be

amazed by her progress (the first picture was taken in August

1999 - the same fateful month that my wife and I started our BFL

journey! :-) ). At that same site, you can either read the transcript

of, or listen to the audio of, Cheryl's interview. One her page and

in her interview, she offers terrific, real-life reflections about BFL

while also offering great tips.

Hers is a truly inspirational example both of the power to make a

major change in 12 weeks - and the power to make even more

in multiple, 12 week challenges.

Enjoy!

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Hi Cheryl!

You're very welcome for the kind words. You've earned them! You've certainly

inspired me and I know you will continue to inspire many others as well.

Enthusiastically,

---

FMBC: Fitness and the Mind-Body Connection

an unofficial Transformation Support site

and " on ramp " for Body-for-LIFE

by and Cherita Axel

http://fitmind.home.mindspring.com

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Ditto, here! Cheryl's was one of the first transformations I stumbled upon

that really inspired me!

Sara

Re: Re: questions

>Hi Cheryl!

>

>You're very welcome for the kind words. You've earned them! You've

certainly

>inspired me and I know you will continue to inspire many others as well.

>

>Enthusiastically,

>

>

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This year's rules do not require a newspaper.

> The rules of some of the challenges in previous years required

> the holding of a newspaper in the before and after shots, as a

> method of verifying the duration of a person's challenge. In the

> year 2000 challenge, this was not required.

>

> I haven't yet read the " sample " rules for this year's contest, so I

> don't know whether this is a requirement. I hope not - since,

> when my wife and I took our " Before " pictures on January 2, we

> did it just like last year, with no newspaper! :-)

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  • 4 weeks later...

Tina,

///Okay... it's day two. I got on the treadmill and my 20 minutes took me

1.25 miles (not the point but anyway) I was in minute 19, well into my 10

and I couldn't keep it up for the full minute. Is this okay? ///

This is great! you may have estimated your 10 level a little too high, but

maybe you'll finish it next time or at least go a little further.

Congratulations and a job well done. You get an A for effort and

enthusiasm.

///I finished

out with my 5 and called it a morning. Is this good, bad, okay?//

Good, keep up the progress each time, just don't stay in the same place. A

little incremental improvement each time.

///Next question - who knows what the benefits of ALC Fuel are? My husband

is taking them and I'm just curious. He read me all kinds of stuff, but

none of it was in plain english. It's called Acetyl-L-Carnitine. How can

something that smells so bad and be so big, be good for you???///

It's supposed to help support muscle growth. I took it for a while, but now

choose to spend limited funds on other supplements. I've gone low tech, so

I don't mean to imply anything negative about L-carnitine. Below is an

excerpt from bodybuilding.com on L-carnitine:

" L-carnitine transfers long-chain fatty acids, such as triglycerides into

mitochondria (a cell's energy powerhouse), where they may be oxidized to

produce energy. L-carnitine is a very popular supplement that promotes

growth and development. It is also used for fat-burning, increasing energy,

and improving resistance to muscle fatigue. As a speculated muscle disease,

liver disease, and kidney disease fighter, L-carnitine has also been shown

to help build muscle and treat some forms of cardiovascular disease. It is

also great in dieting, as it reduces feelings of hunger and weakness.

Studies have been conducted on L-carnitine since as early as 1937. They show

that the body's cardiovascular system can greatly benefit from its intake.

The FDA has approved L-carnitine under the name Carnitor for use in treating

heart disease and low energy levels. Also, there are a variety of published

studies that show L-carnitine is useful in increasing the heart's output and

improving it's functioning, as well as stimulating the heart's energy supply

and improving cardiac performance. Moreover, some experts have shown it

increases endurance and helps regulating heart arrhythmia. "

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Doug,

I started week 4 today and I haven't received the enrollment package. I registered online about 3 weeks ago. Will it be coming shortly? It typically takes awhile, could be 2-3 weeks more, depending on their backlog.

I work out in the morning, should I wait to eat for an hour after the work out? Check the http://www.hussman.com/eas site for recommendations. wait 1 hour for cardio; eat right away after weights incorporating a high Glycemic carb.

Are Myoplex Lite Bars and Shakes the same? No, but each are authorized.

I have been using the BFL guidelines strictly, but I see a lot of other information on the EAS/BFL web site. Has the food chart in the book expanded to include other foods (training zone)? Other foods have been mentioned. If you care to bother with counting carbs, protein and calories you can incorporate foods such as milk. Bill mentioned bananas in his audiotape book, even though they are fairly high in calories. The lists in the book are by way of example, but there is no harm in staying with them strictly especially in your first round.

My fiber intake seems to be low, how can I improve it? Is Raisin Bran with skim mild ok? Increase veggies, use fruit for your authorized carb. You are missing a protein source on the cereal thing and raisin bran may be too high of calorie depending on your portion size

Welcome to the group and enjoy your journey! Kit

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> > My fiber intake seems to be low, how can I improve it? Is Raisin

Bran with

> >

>

> Nah...stay away from most cereals and skim milk, as they cannot

possibly be balanced between protein and carbohydrate.

I assume you mean cereal *with* skim milk. 2 cups of skim milk (the

milk being 2/3 carbs) with a scoop of Atkins meal replacement powder

(mostly protein) should pretty much balance things out (though I

often use soy milk).

Andy

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I use a handmixer also. The only problem I have is the

soap mix splashing and collecting on the air intake

vents. Hard to clean and I worry about it eating up

the wires. I solve this problem by taping a piece of

cheese cloth across the vents. Otherwise no problem.

About the fruit--you would need to add a preservative.

I use citric acid. Some people use benzoin but it is a

resin and some people have allergic reactions to it.

HTH

--- Kathy Muhammad <kmuhammad3@...> wrote:

>

> 1 If you can use dried herbs in soaps, would it be

> possible to use dried

> fruits and would they give off a scent like the

> herbs. Also could you use

> the juice. I saw a recipe using carrot juice.

>

> 2 instead of using a hand blender to blend the soap,

> can you use a electric

> mixer and would this hold up better than the

> blender?

>

> Thank You

> KathyM.

>

>

>

>

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I always use a mixer. Started with a KitchenAide, now I've graduated to a

20qt commercial version. It's nice because you can just turn it on and

leave it until the soap traces. It takes a little while usually, but it

gives a good mix.

Just be sure to keep it on low speed. And use the splatter guards if your

mixer has them.

Marie Gale

Chandler's Soaps

All natural soaps and body care products made by hand on the Chandler Ranch

in Southwest Oregon.

www.chandlerssoaps.com <http://www.chandlerssoaps.com>

> Questions

>

>

>

> 1 If you can use dried herbs in soaps, would it be possible

> to use dried

> fruits and would they give off a scent like the herbs. Also could you use

> the juice. I saw a recipe using carrot juice.

>

> 2 instead of using a hand blender to blend the soap, can you

> use a electric

> mixer and would this hold up better than the blender?

>

> Thank You

> KathyM.

>

>

>

>

>

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  • 1 month later...
Guest guest

Hi Joni,

I recently took my son to a neurologist, by my request, because I guess I wanted to exhaust all possiblities, although my son has ocd, beyond a doubt. The neuro did a basic, neurological exam and said he found nothing to warrant any further testing. The end....

I, too, would like to know whether or not further testing is a good idea. Would a CT scan be advisable....should they have an EEG? I'm not sure what we would exactly be looking for, but my feeling is that if we are going to be putting our children on all these very powerful medications, we owe it to them first to "exhaust all possibilities".

Fran

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Guest guest

I don't want to waste

> time nor money. How will I recognize if she's practicing the E & R

> Therapy? I *should* try to read more about it and find out exactly

> what it is, but it's sooooo hard to find the time to read. Thanks

> for any feedback anyone can offer.

Joni: Kathy and can be more specific about answering this first

question. My understanding is that it takes at least a couple of

sessions to establish the hierarchy and establish a relationship. The

rule of thumb seems to be if you don't see anything happening after 5

visits, it's time to look for someone else. I strongly recommend you

pick up a copy of March's book, OCD in Children and Adolescents.

>

> Question #2-- Should I take my son to see a neurologist?

Unless you have some reason to think that there might be an organic

cause for 's OCD, I don't think there's any reason to see a

neurologist. They are not going to be up on the psychotropic meds.

> Question #3-- Why are so many kids being diagnosed with OCD?

I think more kids are being diagnosed because of better understanding

and identification. When you listen to and Jackie's posts, you

can see how long it took for diagnosis and treatment even 10 years

ago. Milan, a clinical psychologist who also has OCD, (and if

he is at the conference this summer, I encourage everyone to go hear

him -- he is wonderful) had OCD for years before he was diagnosed.

>

> Question #4-- Is there any evidence that the OCD gene is passed by

> the mother to her offspring or by the father?

There is a genetic component to all the mood disorders. Researchers

at Yale and s Hopkins are currently looking for genetic markers.

However, genetics doesn't doom a child to inheriting OCD the way the

Huntingtons Chorea does. Just in the way that diabetes runs in

families, having a parent with the disease doesn't mean that you will

get it. What is inherited is a propensity to the illness, which can

then be triggered by a host of environmental factors. OCD and all

mental illnesses are " no-fault " brain disorders. They aren't the

result of something that we as parents did to our kids, and looking

for the smoking gun can be very self-defeating. If you read some of

the many excellent books on OCD you will find that developing the

illness is more a conspiracy theory than that of a lone gunman.

Jule

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Guest guest

Fran:

Certainly there is no reason NOT to see a neurologist if that puts

your mind at ease. As to a CT scan -- this is not a diagnostic tool

for OCD or any other neurobiological disorder. MRI and PET scans are

being used in research and they do indicate structural differences and

differences in metabolism in the brains of people with OCD (also

schizophrenia and bipolar disorder). However, this is in the research

stage only, and they are nowhere near ready to be used as diagnostic

tools. An EEG can be warrented to rule out some form of epilepsy

(e.g. temporal lobe epilepsy mimics some of the positive symptoms of

schizophrenia, but does not account for the negative symptoms). If

you can find a local NAMI chapter teaching Family to Family or Hand to

Hand, I really recommend it as a source of factual information about

mental illnesses.

Jule

> Hi Joni,

> I recently took my son to a neurologist, by my request,

because I

> guess I wanted to exhaust all possiblities, although my son has ocd,

beyond a

> doubt. The neuro did a basic, neurological exam and said he found

nothing to

> warrant any further testing. The end....

> I, too, would like to know whether or not further testing

is a good

> idea. Would a CT scan be advisable....should they have an EEG? I'm

not sure

> what we would exactly be looking for, but my feeling is that if we

are going

> to be putting our children on all these very powerful medications,

we owe it

> to them first to " exhaust all possibilities " .

> Fran

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