Guest guest Posted April 23, 2006 Report Share Posted April 23, 2006 What's your favorite chocolate? My Designer Whey just ran out, and I " m afraid to replace with something different. Stuff lasts a long time, I don't use it every day. Diane At 09:19 PM 4/21/2006, you wrote: >It's whey protein. I know that some supplement/vitamin stores carry it >but I always buy mine online from Netrition. > ><http://www.netrition.com/syntrax_nectar_page.html>http://www.netrition.com/syn\ trax_nectar_page.html > >I originally bought an 11-flavor sample pack for $15.99 from EnjoyHealth: ><http://www.enjoyhealth.com/samples.htm>http://www.enjoyhealth.com/samples.htm > >That's a good way to taste them all without buying a couple pounds of >one flavor and hoping you like it. > > ---------- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.1.385 / Virus Database: 268.4.5/321 - Release Date: 4/21/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2006 Report Share Posted April 23, 2006 My favorite chocolate is EAS 100% Whey. > What's your favorite chocolate? My Designer Whey just ran out, and I " m > afraid to replace with something different. Stuff lasts a long time, I > don't use it every day. > > Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2006 Report Share Posted April 23, 2006 recommended this on an earlier thread too and I tried it today when my Designer Whey ran out. MUCH better than Designer Whey. It mixes better, tastes better, and is cheaper. Jen > > What's your favorite chocolate? My Designer Whey just ran out, and I " m > > afraid to replace with something different. Stuff lasts a long time, I > > don't use it every day. > > > > Diane > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2006 Report Share Posted May 30, 2006 To me, YES! He sure sounds like a good candidate. 1. Reactive additaves: I do not believe so. You can look through the Valtrex PDR in the Files directory of this group. 2. Regression and no gains. Yes, we have had kids that have gone though the healing-regression with little or no gains thereafter. I think the more important question is, " Has the regression ever been more than temporary? " And no, it hasn't. For kids that do not respond and are going through an extended regression (beyond the six week trial), all have reported normalizing after they stopped the Valtrex. In other words, a minority of folks may experience temporary regressive looking symtpoms while on Valtrex that clears when you stop. The main reason someone may stop is because after the trial periord (6 weeks) they are just not seeing gains. That has been the type of " worst case senario " reported. 3. The typical regressive-healing time is 20-40 days. If it goes longer, most people disconinue the Valtrex and regression stops. Some of these families have moved to Famvir or Acyclovir with better results and some of those families have later moved back to Valtrex for additional gains. 4. Yes 5. Yes! - Stan > > I am hoping to make a decision and start antivirals very soon. I am interested in anti-virals for my children because of visual stims, very low Vit A despite high supplements, low muscle tone, poor coordination, persistent gut issues, clumsy, hyper, chronic swollen glands, oral sensory issues, No response to LDN, I was very sick when pregnant with my son and got some small skin tags during my pregnancy. He was born with scaring of his retina. The only time he has great BMs is when he is on antibiotics. They both have mild OCD issues. My son regressed socially after mild case of the chicken pox. I am sure there are other reasons but all I can think of at the moment. Does this sound like they would be candidates? Can anyone help me with these questions? > > 1. Is there anything in Valtrex (lactose, corn, etc.) that sensitive kids may have a problem with? > > 2. Has anyone ever reported or heard of regression with an antiviral and no gains? > > 3. What is the longest regression anyone has heard reported on this board. I thought I heard anywhere from 30-45 days, is that typical? > > 4. Has anyone seen gut improvement, better BMs or weight gain as a result of doing anti-virals? > > 5. My son has lost most of his more autistic traits (spinning, head banging, non-responsiveness, stimming, etc.) but still appears to have cognitive deficits. Has anyone heard of cognitive gains being reported? > > Thanks for any thoughts and feedback. > > > > --------------------------------- > Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2006 Report Share Posted May 30, 2006 To me, YES! He sure sounds like a good candidate. 1. Reactive additaves: I do not believe so. You can look through the Valtrex PDR in the Files directory of this group. 2. Regression and no gains. Yes, we have had kids that have gone though the healing-regression with little or no gains thereafter. I think the more important question is, " Has the regression ever been more than temporary? " And no, it hasn't. For kids that do not respond and are going through an extended regression (beyond the six week trial), all have reported normalizing after they stopped the Valtrex. In other words, a minority of folks may experience temporary regressive looking symtpoms while on Valtrex that clears when you stop. The main reason someone may stop is because after the trial periord (6 weeks) they are just not seeing gains. That has been the type of " worst case senario " reported. 3. The typical regressive-healing time is 20-40 days. If it goes longer, most people disconinue the Valtrex and regression stops. Some of these families have moved to Famvir or Acyclovir with better results and some of those families have later moved back to Valtrex for additional gains. 4. Yes 5. Yes! - Stan > > I am hoping to make a decision and start antivirals very soon. I am interested in anti-virals for my children because of visual stims, very low Vit A despite high supplements, low muscle tone, poor coordination, persistent gut issues, clumsy, hyper, chronic swollen glands, oral sensory issues, No response to LDN, I was very sick when pregnant with my son and got some small skin tags during my pregnancy. He was born with scaring of his retina. The only time he has great BMs is when he is on antibiotics. They both have mild OCD issues. My son regressed socially after mild case of the chicken pox. I am sure there are other reasons but all I can think of at the moment. Does this sound like they would be candidates? Can anyone help me with these questions? > > 1. Is there anything in Valtrex (lactose, corn, etc.) that sensitive kids may have a problem with? > > 2. Has anyone ever reported or heard of regression with an antiviral and no gains? > > 3. What is the longest regression anyone has heard reported on this board. I thought I heard anywhere from 30-45 days, is that typical? > > 4. Has anyone seen gut improvement, better BMs or weight gain as a result of doing anti-virals? > > 5. My son has lost most of his more autistic traits (spinning, head banging, non-responsiveness, stimming, etc.) but still appears to have cognitive deficits. Has anyone heard of cognitive gains being reported? > > Thanks for any thoughts and feedback. > > > > --------------------------------- > Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2006 Report Share Posted May 30, 2006 Hi Stan! Thanks for the fast reply! I kind of grouped both kids together. They share most of the symptoms and a couple are more for Abi and some are specific to Isaac. Do you have any opinion on whether we should start with OLE/Virastop or Valtrex? I will talk with DANs in a few weeks to see about getting an rx. Is it okay to start OLE with natural antifungals in place or do you think it is necessary to use diflucan (again not sure if I can get an rx). I am sure I will continue to pepper you with endless questions until I finally take the plunge! Thanks again! > > > > I am hoping to make a decision and start antivirals very soon. I > am interested in anti-virals for my children because of visual > stims, very low Vit A despite high supplements, low muscle tone, > poor coordination, persistent gut issues, clumsy, hyper, chronic > swollen glands, oral sensory issues, No response to LDN, I was very > sick when pregnant with my son and got some small skin tags during > my pregnancy. He was born with scaring of his retina. The only > time he has great BMs is when he is on antibiotics. They both have > mild OCD issues. My son regressed socially after mild case of the > chicken pox. I am sure there are other reasons but all I can think > of at the moment. Does this sound like they would be candidates? > Can anyone help me with these questions? > > > > 1. Is there anything in Valtrex (lactose, corn, etc.) that > sensitive kids may have a problem with? > > > > 2. Has anyone ever reported or heard of regression with an > antiviral and no gains? > > > > 3. What is the longest regression anyone has heard reported on > this board. I thought I heard anywhere from 30-45 days, is that > typical? > > > > 4. Has anyone seen gut improvement, better BMs or weight gain > as a result of doing anti-virals? > > > > 5. My son has lost most of his more autistic traits (spinning, > head banging, non-responsiveness, stimming, etc.) but still appears > to have cognitive deficits. Has anyone heard of cognitive gains > being reported? > > > > Thanks for any thoughts and feedback. > > > > > > > > --------------------------------- > > Messenger with Voice. Make PC-to-Phone Calls to the US (and > 30+ countries) for 2¢/min or less. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2006 Report Share Posted May 30, 2006 Hi Stan! Thanks for the fast reply! I kind of grouped both kids together. They share most of the symptoms and a couple are more for Abi and some are specific to Isaac. Do you have any opinion on whether we should start with OLE/Virastop or Valtrex? I will talk with DANs in a few weeks to see about getting an rx. Is it okay to start OLE with natural antifungals in place or do you think it is necessary to use diflucan (again not sure if I can get an rx). I am sure I will continue to pepper you with endless questions until I finally take the plunge! Thanks again! > > > > I am hoping to make a decision and start antivirals very soon. I > am interested in anti-virals for my children because of visual > stims, very low Vit A despite high supplements, low muscle tone, > poor coordination, persistent gut issues, clumsy, hyper, chronic > swollen glands, oral sensory issues, No response to LDN, I was very > sick when pregnant with my son and got some small skin tags during > my pregnancy. He was born with scaring of his retina. The only > time he has great BMs is when he is on antibiotics. They both have > mild OCD issues. My son regressed socially after mild case of the > chicken pox. I am sure there are other reasons but all I can think > of at the moment. Does this sound like they would be candidates? > Can anyone help me with these questions? > > > > 1. Is there anything in Valtrex (lactose, corn, etc.) that > sensitive kids may have a problem with? > > > > 2. Has anyone ever reported or heard of regression with an > antiviral and no gains? > > > > 3. What is the longest regression anyone has heard reported on > this board. I thought I heard anywhere from 30-45 days, is that > typical? > > > > 4. Has anyone seen gut improvement, better BMs or weight gain > as a result of doing anti-virals? > > > > 5. My son has lost most of his more autistic traits (spinning, > head banging, non-responsiveness, stimming, etc.) but still appears > to have cognitive deficits. Has anyone heard of cognitive gains > being reported? > > > > Thanks for any thoughts and feedback. > > > > > > > > --------------------------------- > > Messenger with Voice. Make PC-to-Phone Calls to the US (and > 30+ countries) for 2¢/min or less. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 > 1. Is there anything in Valtrex (lactose, corn, etc.) that sensitive kids may have a problem with? titanium dioxide. I hope it is part of the blue coating that I wash off. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 > 1. Is there anything in Valtrex (lactose, corn, etc.) that sensitive kids may have a problem with? titanium dioxide. I hope it is part of the blue coating that I wash off. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2006 Report Share Posted September 19, 2006 Hi, Patti. My EP said if I got zapped, to call him. If it happened more than once or twice, I should call 911. If you're driving--- that can get serious and some states will suspend your driving privileges for a time. Talk to your EP or cardiologist for some guidelines. Insist on guidelines. I'm still surprised at how little they seem to tell patients. Mike Questions > >When you have the " zap " do u have to call 911 and get checked? Or do >you just go about your regular business? What if i'm driving and I >get zapped? > >Patti > > > > > > >Please visit the Zapper homepage at >http://www.ZapLife.org > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 > I'm still surprised at how little > they seem to tell patients. For the last four years all I've gotten is " good bye and good luck. " I have had to fight tooth and nail for any information and do all my research myself. Lynn ------ Mama, homeschooler, writer, activist, spinner & knitter http://www.siprelle.com NOTICE: The National Security Agency may have read this email without warning, warrant, or notice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 I can't even start to list all the confrontations I've encountered. My son is eight and some people can just be ignorant. Sent from my BlackBerry® wireless handheld Questions I was wondering how you all handle others? Telling them and such. There have been times that I have had parents say something to me about s behavior and this was before his diagnosis and I get so embarrassed I have to leave parks, parties etc. The other day I got into an argument in a store with a woman who yelled at because he stood in front of her cart, I called him and he just stood, I tried to grab him and he pulled away... she went to go around him and he moved in front of her again so she yelled come on kid move! I couldn't believe it. I said come on.. he's a 4 year old and she went on and on about how rude he was and I was. It seems that we have scenarios like this almost every time I take him somewhere. So how do you all handle things like this? Do you explain about the Aspergers? Which brings up another question. I have a cousin who's child as been diagnosed with everything from OCD to ADD and she tells EVERYONE within a mile about it... he's 14 now and uses it to get away with everything even things that clearly are not related. So I guess what I am asking is I am afraid to make this diagnosis define and thereby hindering him or giving him an excuse to cop out how do you help them embrace this and use it to empower them instead? Thanks. Jenn The years that a woman subtracts form her age are not lost. They are added to other women's. ~ Diane de Poitiers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 Jenn; From an adult Aspie, I can say first hand that I am thankful my parents never worried about other people's perception of my wierd or quirkie behavior. I was never "labeled" by them in front of their friends, neighbors or associates. I think if I had been labeled and excused by them, I would have felt there was something wrong with me. When situations occurred, they would mention them at a time when I was open to hearing their advise. If it was me acting like your child in the store, I would probably hear my mother's reponse with sincere empathy in her voice; "I am very sorry you see us that way." If the lady felt further engagement, she would just move on her way and not say another word. When it comes to other people's reaction, I hope you do not feel you should have to explain, or justify actions, especially in front of your child. People do not know the whole story and if they are bold or rude enough to react in public, well then they are judging without the right to do so. I hope you will not let their responses shake you and you can be as strong as my mom and dad were. Yes, at times they were embarassed, but for the most part, they were not worried about what those that were not close to them thought. it was more important to have unconditional love and patience for family If your friends need explaining of a melt down, a quirk, or whatever wierd behavior, it is my perspective that they are not worthy of being friends if they can not unconditionally look aside at things they may not understand. My mom and dad empowered me by not excusing my behaviors. They educated me at appropriate times with love and patience. Most people think I turned out pretty good despite the different wiring I have in my brain. Best of luck to you with your special child. Jenn Kraus <JennK949702@...> wrote: I was wondering how you all handle others? Telling them and such. There have been times that I have had parents say something to me about s behavior and this was before his diagnosis and I get so embarrassed I have to leave parks, parties etc. The other day I got into an argument in a store with a woman who yelled at because he stood in front of her cart, I called him and he just stood, I tried to grab him and he pulled away... she went to go around him and he moved in front of her again so she yelled come on kid move! I couldn't believe it. I said come on.. he's a 4 year old and she went on and on about how rude he was and I was. It seems that we have scenarios like this almost every time I take him somewhere. So how do you all handle things like this? Do you explain about the Aspergers? Which brings up another question. I have a cousin who's child as been diagnosed with everything from OCD to ADD and she tells EVERYONE within a mile about it... he's 14 now and uses it to get away with everything even things that clearly are not related. So I guess what I am asking is I am afraid to make this diagnosis define and thereby hindering him or giving him an excuse to cop out how do you help them embrace this and use it to empower them instead? Thanks. Jenn The years that a woman subtracts form her age are not lost. They are added to other women's.~ Diane de Poitiers Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 In a message dated 10/22/2006 11:35:10 P.M. Eastern Daylight Time, JennK949702@... writes: So how do you all handle things like this? Do you explain about the Aspergers? Dear Jenn, A gentleman in an adult Asperger's group made up some small cards explaining it. I thought it was a great idea. You could just hand a card to someone. The woman sounds like she was loaded for bear anyway, and you're child gave her a target. And it is so trying! with understanding, Francine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 Hi Jenn, We had a REALLY late diagnosis at 10 and my son is now 13. I tell people when I need to and I do it discretely so that he does not hear me doing it. I only tell people if his behavior may seem abnormally rude to them. For example we were in a pet specialty store and my one of my son’s fixations is dogs. He was looking at the books and asked the woman if they had the “Complete Dog Book” she said they were out of stock and my son replied “that makes no sense, you have the “Complete Cat Book” you should really make sure you keep the Complete Dog book in stock” ……I let that one go….. Then he opened another book that he thought he might like and saw the price tag. He then looked at her an said “24.99? that is an outrageous, price what a rip off” at this point, I again reminded him that that is rude to say out loud (and he argued loudly “well it is a rip off mom”!) So while he was looking at something else I went over to the store owner and explained briefly what he had and why he was so “blunt” and apologized. We were getting ready to leave and she asked him how much money he had. He told her and she then offered to sell him one or 2 other dog things she thought he would like to which he responded “no thanks, I am more of a book guy” lol. Maybe at your sons age someone could send you the link to the autism cards you could hand out? Or maybe the Aspergers cards? -Charlotte From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of Jenn Kraus Sent: Wednesday, October 18, 2006 4:19 PM Autism and Aspergers Treatment Subject: Questions I was wondering how you all handle others? Telling them and such. There have been times that I have had parents say something to me about s behavior and this was before his diagnosis and I get so embarrassed I have to leave parks, parties etc. The other day I got into an argument in a store with a woman who yelled at because he stood in front of her cart, I called him and he just stood, I tried to grab him and he pulled away... she went to go around him and he moved in front of her again so she yelled come on kid move! I couldn't believe it. I said come on.. he's a 4 year old and she went on and on about how rude he was and I was. It seems that we have scenarios like this almost every time I take him somewhere. So how do you all handle things like this? Do you explain about the Aspergers? Which brings up another question. I have a cousin who's child as been diagnosed with everything from OCD to ADD and she tells EVERYONE within a mile about it... he's 14 now and uses it to get away with everything even things that clearly are not related. So I guess what I am asking is I am afraid to make this diagnosis define and thereby hindering him or giving him an excuse to cop out how do you help them embrace this and use it to empower them instead? Thanks. Jenn The years that a woman subtracts form her age are not lost. They are added to other women's. ~ Diane de Poitiers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 when my daughter jessica has had out of control or inappropriate behaviors and people seem exasperated i have said "she has a disability, sorry." most people change their attitude. although, i have had a couple of incidents with people who were just plain nasty. but i figure that they are the ones that look ignorant then, lol. << I was wondering how you all handle others? Telling them and such. There have been times that I have had parents say something to me about s behavior and this was before his diagnosis and I get so embarrassed I have to leave parks, parties etc. The other day I got into an argument in a store with a woman who yelled at because he stood in front of her cart, I called him and he just stood, I tried to grab him and he pulled away... she went to go around him and he moved in front of her again so she yelled come on kid move! I couldn't believe it. I said come on.. he's a 4 year old and she went on and on about how rude he was and I was. It seems that we have scenarios like this almost every time I take him somewhere. So how do you all handle things like this? Do you explain about the Aspergers? Which brings up another question. I have a cousin who's child as been diagnosed with everything from OCD to ADD and she tells EVERYONE within a mile about it... he's 14 now and uses it to get away with everything even things that clearly are not related. So I guess what I am asking is I am afraid to make this diagnosis define and thereby hindering him or giving him an excuse to cop out how do you help them embrace this and use it to empower them instead?>> I LOVE SOMEONE WITH AUTISM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 I agree with Charlotte on carrying a card that says autism on it and talks about your son's specific challenges and those of autism in general. Even with Asperger's it's often best to put autism on the card instead of Asperger's Syndrome because Asperger's may confuse people since it's a word not readily known by most people (nor as easily pronounced), while autism is a concept they're more likely to grasp. I'm fairly well adapted in life at 26, but I also carry around a custom card in my wallet about autism in case of a medical situation or some other scenario comes up where I'm not able to describe it on my own to people (ex. becoming very sensory and cognitively overloaded while a police office is talking to me, falling unconscious, being in the hospital, etc.). As far as what you write on the card, everyone who I talked to about carrying autism cards in recent years advised me to use autism on the card rather than Asperger's (as I mentioned above) and to avoid using terms like high-functioning and spectrum, which may be confusing to people. My card basically has some bullets about how I have autism, that it likely won't be apparent to you when you see/talk to me, and some of the major differences in my thinking and actions. I think also that instead of telling people always about autism, sometimes you can selectively disclose about just a specific challenge your child has per the situation (ex. he has very high social anxieties, he's very uncoordinated and has trouble with thinking about how to move his body, he gets overwhelmed sometimes by too much noise or light, etc.) and then just describe that specific challenge in detail. I don't usually talk about having autism to people I don't know, but I do often disclose a specific difficulty (ex. I'm a little bit clumsy sometimes, I'm feeling a little bit fatigued and overwhelmed by the noise, etc.) I've done some weird things at times like buying a sandwich and drink (cup for filling up) at the sandwich shop, filling up the drink, and then leaving before I remembered to go get the sandwich from the counter (which was being made while I filled up the drink). In situations like this I just offered up a rational explanation when I came back quickly about how I was thinking about something else and got sidetracked. I rarely tell people I have autism in these cases because I don't think they have a need to know. My friends (especially close friends), on the other hand, definitely need to know because it's an important part of understanding me as a person and my research and advocacy efforts in the area of autism. I do recommend for the older kids and young adults that they learn about having autism as they get older and if able learn how to advocate for themselves and get in front of their disability rather than behind it. I agree that you don't want them to start thinking it's an excuse for all their behavior. You really want to instill in them how they're different in a positive orientation that emphasizes how everybody has differences and challenges and how people who have them can work to overcome them. You don't want them learning that their disability is an excuse, and I think that you can avoid that by getting in front of it as I say and thinking of it as a challenge rather as a fixed reason for neglecting responsibilities and shirking chores and duties. I also think that the word /late/ is very relative because it's true that 10 is late compared to 2, 3, or 4. However, it's not as late as the teen and adult years when many people with autism spectrum disorders get diagnosed. I didn't self-diagnose until 19 and didn't receive an official diagnosis until I was 25. I should have been diagnosed when I was 13 or 14 when Asperger's was added to the DSM IV, but they missed the boat with me. - on, adult with Asperger's Syndrome Ph.D. Candidate in Information Sciences & Technology The College of Information Sciences & Technology The Pennsylvania State University | University Park, PA 16802 (www.ist.psu.edu) Pennsylvania Regional Director & Board Member The Autistic Self-Advocacy Network (www.autisticselfadvocacy.com) Charlotte wrote: > > Hi Jenn, > > We had a REALLY late diagnosis at 10 and my son is now 13. > > I tell people when I need to and I do it discretely so that he does > not hear me doing it. I only tell people if his behavior may seem > abnormally rude to them. For example we were in a pet specialty store > and my one of my son’s fixations is dogs. He was looking at the books > and asked the woman if they had the “Complete Dog Book” she said they > were out of stock and my son replied “that makes no sense, you have > the “Complete Cat Book” you should really make sure you keep the > Complete Dog book in stock” ……I let that one go….. > > Then he opened another book that he thought he might like and saw the > price tag. He then looked at her an said “24.99? that is an > outrageous, price what a rip off” at this point, I again reminded him > that that is rude to say out loud (and he argued loudly “well it is a > rip off mom”!) > > So while he was looking at something else I went over to the store > owner and explained briefly what he had and why he was so “blunt” and > apologized. We were getting ready to leave and she asked him how much > money he had. He told her and she then offered to sell him one or 2 > other dog things she thought he would like to which he responded “no > thanks, I am more of a book guy” lol. > > Maybe at your sons age someone could send you the link to the autism > cards you could hand out? Or maybe the Aspergers cards? > > -Charlotte > > ------------------------------------------------------------------------ > > *From:* Autism and Aspergers Treatment > [mailto:Autism and Aspergers Treatment ] *On Behalf Of *Jenn Kraus > *Sent:* Wednesday, October 18, 2006 4:19 PM > *To:* Autism and Aspergers Treatment > *Subject:* Questions > > I was wondering how you all handle others? Telling them and such. > There have been times that I have had parents say something to me > about s behavior and this was before his diagnosis and I get so > embarrassed I have to leave parks, parties etc. The other day I got > into an argument in a store with a woman who yelled at because > he stood in front of her cart, I called him and he just stood, I tried > to grab him and he pulled away... she went to go around him and he > moved in front of her again so she yelled come on kid move! I couldn't > believe it. I said come on.. he's a 4 year old and she went on and on > about how rude he was and I was. It seems that we have scenarios like > this almost every time I take him somewhere. So how do you all handle > things like this? Do you explain about the Aspergers? Which brings up > another question. I have a cousin who's child as been diagnosed with > everything from OCD to ADD and she tells EVERYONE within a mile about > it... he's 14 now and uses it to get away with everything even things > that clearly are not related. So I guess what I am asking is I am > afraid to make this diagnosis define and thereby hindering him > or giving him an excuse to cop out how do you help them embrace this > and use it to empower them instead? > > Thanks. > > Jenn > > The years that a woman subtracts form her age are not lost. They are > added to other women's. > ~ Diane de Poitiers > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 Hi Jenn! My 3 year old is autistic and I do tell people that we are around alot. Here is why. When my 13 year old (not autistic) was about 7 or 8, he had an autistic kid on his team. I am sorry to say that this kid used to make me crazy. His Dad was the assistant coach and every time the son went in a game he would " act like a girl " flapp his arms, run slowly on his tip toes, & do a few other things. I really figured the kid was a little feminine and just did not want to play soccer. At the time I knew nothing about autism (and I mean NOTHING). The kid must have been mildly autistic. Anyway, once our Rosie entered our lives and we watched her grow and develop and have her little problems, I started to put 2 and 2 together and now, it is so obvious that this kid from years ago was struggling through autism. I really feel bad that I could have felt the way I did at the time, but that is what happened. I know also that 1/2 the parents on the team felt the same way I did. I can say without any doubts that if we knew the boy was autistic, even though none of us really knew what that was, we would have been completely understanding and supportive. The Dad should have told us. It is so easy to be lazy and just, BAM, pass judgement on kids without considering if there are any real problems beyond their control. I think we all owe it to our children to make sure people around them are as understanding as possible. They won't be understanding if they are convinced your kid is just a spoiled brat. Hope my logic and story helps you. Daly > > I was wondering how you all handle others? Telling them and such. There have been times that I have had parents say something to me about s behavior and this was before his diagnosis and I get so embarrassed I have to leave parks, parties etc. The other day I got into an argument in a store with a woman who yelled at because he stood in front of her cart, I called him and he just stood, I tried to grab him and he pulled away... she went to go around him and he moved in front of her again so she yelled come on kid move! I couldn't believe it. I said come on.. he's a 4 year old and she went on and on about how rude he was and I was. It seems that we have scenarios like this almost every time I take him somewhere. So how do you all handle things like this? Do you explain about the Aspergers? Which brings up another question. I have a cousin who's child as been diagnosed with everything from OCD to ADD and she tells EVERYONE within a mile about it... he's 14 now and uses it to get away with everything even things that clearly are not related. So I guess what I am asking is I am afraid to make this diagnosis define and thereby hindering him or giving him an excuse to cop out how do you help them embrace this and use it to empower them instead? > > > Thanks. > Jenn > > > The years that a woman subtracts form her age are not lost. They are added to other women's. > ~ Diane de Poitiers > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 Jen, there is a card you can print out off of one of the Autism sites that you can hand to strangers and walk away. the card basically says my kid has autism a neurological condition not bad parenting, and goes on about you noticed my child's behavior and I noticed yours we are modifying our child's behavior you modify yours, learn more about autism and gives a web site. I just recently lost my hard drive with all my saved stuff so I don't know what one it was. the local group I used to be in before we moved had these cards laminated and it was supper. hope that helps Greta Jenn Kraus wrote: > > I was wondering how you all handle others? Telling them and such. > There have been times that I have had parents say something to me > about s behavior and this was before his diagnosis and I get so > embarrassed I have to leave parks, parties etc. The other day I got > into an argument in a store with a woman who yelled at because > he stood in front of her cart, I called him and he just stood, I tried > to grab him and he pulled away... she went to go around him and he > moved in front of her again so she yelled come on kid move! I > couldn't believe it. I said come on.. he's a 4 year old and she went > on and on about how rude he was and I was. It seems that we have > scenarios like this almost every time I take him somewhere. So how do > you all handle things like this? Do you explain about the > Aspergers? Which brings up another question. I have a cousin who's > child as been diagnosed with everything from OCD to ADD and she tells > EVERYONE within a mile about it... he's 14 now and uses it to get away > with everything even things that clearly are not related. So I guess > what I am asking is I am afraid to make this diagnosis define > and thereby hindering him or giving him an excuse to cop > out how do you help them embrace this and use it to empower them instead? > > > Thanks. > Jenn > > > The years that a woman subtracts form her age are not lost. They are > added to other women's. > ~ Diane de Poitiers > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2006 Report Share Posted October 28, 2006 carrying these cards sounds like a great idea!! Jenn Science may have found a cure for most evils, but it has found no remedy for the worst of them all: the apathy of human beings.~ Helen Keller * Questions>> I was wondering how you all handle others? Telling them and such. > There have been times that I have had parents say something to me > about s behavior and this was before his diagnosis and I get so > embarrassed I have to leave parks, parties etc. The other day I got > into an argument in a store with a woman who yelled at because > he stood in front of her cart, I called him and he just stood, I tried > to grab him and he pulled away... she went to go around him and he > moved in front of her again so she yelled come on kid move! I couldn't > believe it. I said come on.. he's a 4 year old and she went on and on > about how rude he was and I was. It seems that we have scenarios like > this almost every time I take him somewhere. So how do you all handle > things like this? Do you explain about the Aspergers? Which brings up > another question. I have a cousin who's child as been diagnosed with > everything from OCD to ADD and she tells EVERYONE within a mile about > it... he's 14 now and uses it to get away with everything even things > that clearly are not related. So I guess what I am asking is I am > afraid to make this diagnosis define and thereby hindering him > or giving him an excuse to cop out how do you help them embrace this > and use it to empower them instead?>> Thanks.>> Jenn>> The years that a woman subtracts form her age are not lost. They are > added to other women's.> ~ Diane de Poitiers>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2006 Report Share Posted October 28, 2006 "My mom and dad empowered me by not excusing my behaviors. They educated me at appropriate times with love and patience." Wow how amazing your parents sound! Science may have found a cure for most evils, but it has found no remedy for the worst of them all: the apathy of human beings.~ Helen Keller Re: Questions Jenn; From an adult Aspie, I can say first hand that I am thankful my parents never worried about other people's perception of my wierd or quirkie behavior. I was never "labeled" by them in front of their friends, neighbors or associates. I think if I had been labeled and excused by them, I would have felt there was something wrong with me. When situations occurred, they would mention them at a time when I was open to hearing their advise. If it was me acting like your child in the store, I would probably hear my mother's reponse with sincere empathy in her voice; "I am very sorry you see us that way." If the lady felt further engagement, she would just move on her way and not say another word. When it comes to other people's reaction, I hope you do not feel you should have to explain, or justify actions, especially in front of your child. People do not know the whole story and if they are bold or rude enough to react in public, well then they are judging without the right to do so. I hope you will not let their responses shake you and you can be as strong as my mom and dad were. Yes, at times they were embarassed, but for the most part, they were not worried about what those that were not close to them thought. it was more important to have unconditional love and patience for family If your friends need explaining of a melt down, a quirk, or whatever wierd behavior, it is my perspective that they are not worthy of being friends if they can not unconditionally look aside at things they may not understand. My mom and dad empowered me by not excusing my behaviors. They educated me at appropriate times with love and patience. Most people think I turned out pretty good despite the different wiring I have in my brain. Best of luck to you with your special child. Jenn Kraus <JennK949702comcast (DOT) net> wrote: I was wondering how you all handle others? Telling them and such. There have been times that I have had parents say something to me about s behavior and this was before his diagnosis and I get so embarrassed I have to leave parks, parties etc. The other day I got into an argument in a store with a woman who yelled at because he stood in front of her cart, I called him and he just stood, I tried to grab him and he pulled away... she went to go around him and he moved in front of her again so she yelled come on kid move! I couldn't believe it. I said come on.. he's a 4 year old and she went on and on about how rude he was and I was. It seems that we have scenarios like this almost every time I take him somewhere. So how do you all handle things like this? Do you explain about the Aspergers? Which brings up another question. I have a cousin who's child as been diagnosed with everything from OCD to ADD and she tells EVERYONE within a mile about it... he's 14 now and uses it to get away with everything even things that clearly are not related. So I guess what I am asking is I am afraid to make this diagnosis define and thereby hindering him or giving him an excuse to cop out how do you help them embrace this and use it to empower them instead? Thanks. Jenn The years that a woman subtracts form her age are not lost. They are added to other women's.~ Diane de Poitiers Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2006 Report Share Posted October 28, 2006 It sure does, thanks . I will tell you one thing... if nothing else has taught me not to be judgmental!!! Jenn Science may have found a cure for most evils, but it has found no remedy for the worst of them all: the apathy of human beings.~ Helen Keller Re: Questions Hi Jenn! My 3 year old is autistic and I do tell people that we are around alot. Here is why. When my 13 year old (not autistic) was about 7 or 8, he had an autistic kid on his team. I am sorry to say that this kid used to make me crazy. His Dad was the assistant coach and every time the son went in a game he would "act like a girl" flapp his arms, run slowly on his tip toes, & do a few other things. I really figured the kid was a little feminine and just did not want to play soccer. At the time I knew nothing about autism (and I mean NOTHING). The kid must have been mildly autistic.Anyway, once our Rosie entered our lives and we watched her grow and develop and have her little problems, I started to put 2 and 2 together and now, it is so obvious that this kid from years ago was struggling through autism. I really feel bad that I could have felt the way I did at the time, but that is what happened. I know also that 1/2 the parents on the team felt the same way I did.I can say without any doubts that if we knew the boy was autistic, even though none of us really knew what that was, we would have been completely understanding and supportive. The Dad should have told us. It is so easy to be lazy and just, BAM, pass judgement on kids without considering if there are any real problems beyond their control. I think we all owe it to our children to make sure people around them are as understanding as possible. They won't be understanding if they are convinced your kid is just a spoiled brat.Hope my logic and story helps you. Daly>> I was wondering how you all handle others? Telling them and such. There have been times that I have had parents say something to me about s behavior and this was before his diagnosis and I get so embarrassed I have to leave parks, parties etc. The other day I got into an argument in a store with a woman who yelled at because he stood in front of her cart, I called him and he just stood, I tried to grab him and he pulled away... she went to go around him and he moved in front of her again so she yelled come on kid move! I couldn't believe it. I said come on.. he's a 4 year old and she went on and on about how rude he was and I was. It seems that we have scenarios like this almost every time I take him somewhere. So how do you all handle things like this? Do you explain about the Aspergers? Which brings up another question. I have a cousin who's child as been diagnosed with everything from OCD to ADD and she tells EVERYONE within a mile about it... he's 14 now and uses it to get away with everything even things that clearly are not related. So I guess what I am asking is I am afraid to make this diagnosis define and thereby hindering him or giving him an excuse to cop out how do you help them embrace this and use it to empower them instead?> > > Thanks.> Jenn> > > The years that a woman subtracts form her age are not lost. They are added to other women's.> ~ Diane de Poitiers> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 What a wonderful response, thank you for sharing. Re: Questions Jenn; From an adult Aspie, I can say first hand that I am thankful my parents never worried about other people's perception of my wierd or quirkie behavior. I was never "labeled" by them in front of their friends, neighbors or associates. I think if I had been labeled and excused by them, I would have felt there was something wrong with me. When situations occurred, they would mention them at a time when I was open to hearing their advise. If it was me acting like your child in the store, I would probably hear my mother's reponse with sincere empathy in her voice; "I am very sorry you see us that way." If the lady felt further engagement, she would just move on her way and not say another word. When it comes to other people's reaction, I hope you do not feel you should have to explain, or justify actions, especially in front of your child. People do not know the whole story and if they are bold or rude enough to react in public, well then they are judging without the right to do so. I hope you will not let their responses shake you and you can be as strong as my mom and dad were. Yes, at times they were embarassed, but for the most part, they were not worried about what those that were not close to them thought. it was more important to have unconditional love and patience for family If your friends need explaining of a melt down, a quirk, or whatever wierd behavior, it is my perspective that they are not worthy of being friends if they can not unconditionally look aside at things they may not understand. My mom and dad empowered me by not excusing my behaviors. They educated me at appropriate times with love and patience. Most people think I turned out pretty good despite the different wiring I have in my brain. Best of luck to you with your special child. Jenn Kraus <JennK949702comcast (DOT) net> wrote: I was wondering how you all handle others? Telling them and such. There have been times that I have had parents say something to me about s behavior and this was before his diagnosis and I get so embarrassed I have to leave parks, parties etc. The other day I got into an argument in a store with a woman who yelled at because he stood in front of her cart, I called him and he just stood, I tried to grab him and he pulled away... she went to go around him and he moved in front of her again so she yelled come on kid move! I couldn't believe it. I said come on.. he's a 4 year old and she went on and on about how rude he was and I was. It seems that we have scenarios like this almost every time I take him somewhere. So how do you all handle things like this? Do you explain about the Aspergers? Which brings up another question. I have a cousin who's child as been diagnosed with everything from OCD to ADD and she tells EVERYONE within a mile about it... he's 14 now and uses it to get away with everything even things that clearly are not related. So I guess what I am asking is I am afraid to make this diagnosis define and thereby hindering him or giving him an excuse to cop out how do you help them embrace this and use it to empower them instead? Thanks. Jenn The years that a woman subtracts form her age are not lost. They are added to other women's.~ Diane de Poitiers Get your email and more, right on the new .com No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.408 / Virus Database: 268.13.14/501 - Release Date: 10/26/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 What a wonderful response, thank you for sharing. Re: Questions Jenn; From an adult Aspie, I can say first hand that I am thankful my parents never worried about other people's perception of my wierd or quirkie behavior. I was never "labeled" by them in front of their friends, neighbors or associates. I think if I had been labeled and excused by them, I would have felt there was something wrong with me. When situations occurred, they would mention them at a time when I was open to hearing their advise. If it was me acting like your child in the store, I would probably hear my mother's reponse with sincere empathy in her voice; "I am very sorry you see us that way." If the lady felt further engagement, she would just move on her way and not say another word. When it comes to other people's reaction, I hope you do not feel you should have to explain, or justify actions, especially in front of your child. People do not know the whole story and if they are bold or rude enough to react in public, well then they are judging without the right to do so. I hope you will not let their responses shake you and you can be as strong as my mom and dad were. Yes, at times they were embarassed, but for the most part, they were not worried about what those that were not close to them thought. it was more important to have unconditional love and patience for family If your friends need explaining of a melt down, a quirk, or whatever wierd behavior, it is my perspective that they are not worthy of being friends if they can not unconditionally look aside at things they may not understand. My mom and dad empowered me by not excusing my behaviors. They educated me at appropriate times with love and patience. Most people think I turned out pretty good despite the different wiring I have in my brain. Best of luck to you with your special child. Jenn Kraus <JennK949702comcast (DOT) net> wrote: I was wondering how you all handle others? Telling them and such. There have been times that I have had parents say something to me about s behavior and this was before his diagnosis and I get so embarrassed I have to leave parks, parties etc. The other day I got into an argument in a store with a woman who yelled at because he stood in front of her cart, I called him and he just stood, I tried to grab him and he pulled away... she went to go around him and he moved in front of her again so she yelled come on kid move! I couldn't believe it. I said come on.. he's a 4 year old and she went on and on about how rude he was and I was. It seems that we have scenarios like this almost every time I take him somewhere. So how do you all handle things like this? Do you explain about the Aspergers? Which brings up another question. I have a cousin who's child as been diagnosed with everything from OCD to ADD and she tells EVERYONE within a mile about it... he's 14 now and uses it to get away with everything even things that clearly are not related. So I guess what I am asking is I am afraid to make this diagnosis define and thereby hindering him or giving him an excuse to cop out how do you help them embrace this and use it to empower them instead? Thanks. Jenn The years that a woman subtracts form her age are not lost. They are added to other women's.~ Diane de Poitiers Get your email and more, right on the new .com No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.408 / Virus Database: 268.13.14/501 - Release Date: 10/26/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2006 Report Share Posted November 3, 2006 These may or may not be what you are looking for, but they might be helpful for someone else here (and they are free). http://www.dimensionsspeech.com/joinnar.shtml Of course, you could make your own very easily as well. The Autism Society of Illinois has some, too, for purchase:http://www.autismillinois.org/index.asp?PageAction=VIEWPROD & ProdID=43 ....or you could have my favorite shirt made. I don't have one;I just use the quote on a board if I am doing a training :-) I don't look like I have autism? Well, you don't look stupid. ~~~~~~~~~~ Let's call it even. Have a good day!Lee >> Jenn, I think the cards are a great idea as well. I will have to see if I can find one I can print. If anyone knows what website they are on...... > Quote Link to comment Share on other sites More sharing options...
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