advice

[Guest guest]

In

that combination I would guess Occupational Therapy and Sensory Integration

Tonya

Advice

Please advise: What is OT/SI?

Thanks in advance.

[Guest guest]

Occupational therapy and Sensory integration. Angmayelouise <mayelouise@...> wrote: Please advise: What is OT/SI?Thanks in advance.Jesus had no servants, yet they called Him Master. Had no degree, yet they called Him Teacher. Had no medicines, yet they called Him Healer. Had no army, yet kings feared Him. He won no military battles, yet He conquered the world. He committed no crime, yet they crucified Him. He was buried in a tomb, yet He lives

today.

Everyone is raving about the all-new beta.

[Guest guest]

Just to clarify,OT-Occupational theray,SI-Sensory Integration,you can combine

the two as Sensory integrated Occupational Therapy which the therapist is

usually trained (SIPT)Sensory Integration Processing therapy(I beleive thats the

definition).This type of " OT " evaluates what types of sensory dysfunction may

exist in the individual child/adult.The Sensory Integrated trained therapist

would be able to assess and determine what those areas are and perform certain

tasks/exercises with the child to help " de-sensitize " those areas and help

regulate the nervous system.This helps those with Sensory dysfunction be better

able to feel " grounded " and comfortable in their bodies.

Stacey

From: " ~~@~~Ang~~@~~ " <heaven1977_25@...>

Date: 2006/12/08 Fri PM 06:58:46 CST

autism

Subject: Re: Advice

Occupational therapy  and Sensory integration.   Ang

mayelouise <mayelouise@...> wrote: Please advise: What is OT/SI?

Thanks in advance.

Jesus had no servants, yet they called Him Master.   

Had no degree,   yet they called Him Teacher.   

Had no medicines, yet they called Him Healer.   

Had no army, yet kings feared Him.   

He won no military battles, yet He conquered the world.   

He committed no crime, yet they crucified Him.   

He was buried in a tomb, yet He lives today.   

 

Everyone is raving about the all-new beta.

[Guest guest]

Just to clarify,OT-Occupational theray,SI-Sensory Integration,you can combine

the two as Sensory integrated Occupational Therapy which the therapist is

usually trained (SIPT)Sensory Integration Processing therapy(I beleive thats the

definition).This type of " OT " evaluates what types of sensory dysfunction may

exist in the individual child/adult.The Sensory Integrated trained therapist

would be able to assess and determine what those areas are and perform certain

tasks/exercises with the child to help " de-sensitize " those areas and help

regulate the nervous system.This helps those with Sensory dysfunction be better

able to feel " grounded " and comfortable in their bodies.

Stacey

From: " ~~@~~Ang~~@~~ " <heaven1977_25@...>

Date: 2006/12/08 Fri PM 06:58:46 CST

autism

Subject: Re: Advice

Occupational therapy  and Sensory integration.   Ang

mayelouise <mayelouise@...> wrote: Please advise: What is OT/SI?

Thanks in advance.

Jesus had no servants, yet they called Him Master.   

Had no degree,   yet they called Him Teacher.   

Had no medicines, yet they called Him Healer.   

Had no army, yet kings feared Him.   

He won no military battles, yet He conquered the world.   

He committed no crime, yet they crucified Him.   

He was buried in a tomb, yet He lives today.   

 

Everyone is raving about the all-new beta.

[Guest guest]

Just to clarify,OT-Occupational theray,SI-Sensory Integration,you can combine

the two as Sensory integrated Occupational Therapy which the therapist is

usually trained (SIPT)Sensory Integration Processing therapy(I beleive thats the

definition).This type of " OT " evaluates what types of sensory dysfunction may

exist in the individual child/adult.The Sensory Integrated trained therapist

would be able to assess and determine what those areas are and perform certain

tasks/exercises with the child to help " de-sensitize " those areas and help

regulate the nervous system.This helps those with Sensory dysfunction be better

able to feel " grounded " and comfortable in their bodies.

Stacey

From: " ~~@~~Ang~~@~~ " <heaven1977_25@...>

Date: 2006/12/08 Fri PM 06:58:46 CST

autism

Subject: Re: Advice

Occupational therapy  and Sensory integration.   Ang

mayelouise <mayelouise@...> wrote: Please advise: What is OT/SI?

Thanks in advance.

Jesus had no servants, yet they called Him Master.   

Had no degree,   yet they called Him Teacher.   

Had no medicines, yet they called Him Healer.   

Had no army, yet kings feared Him.   

He won no military battles, yet He conquered the world.   

He committed no crime, yet they crucified Him.   

He was buried in a tomb, yet He lives today.   

 

Everyone is raving about the all-new beta.

[Guest guest]

THANK YOU STACEY. THANK YOU EVERYONE!

(maye) mother of 2 PDD boys.

Please advise: What is

OT/SI?

> Thanks in advance.

>

>

>

>

> Jesus had no servants, yet they called Him Master.   

> Had no degree,   yet they called Him Teacher.   

> Had no medicines, yet they called Him Healer.   

> Had no army, yet kings feared Him.   

> He won no military battles, yet He conquered the world.   

> He committed no crime, yet they crucified Him.   

> He was buried in a tomb, yet He lives today.   

>  

>

> Everyone is raving about the all-new beta.

>

[Guest guest]

Hi ; I have Gutmans book and permanently lent out Bounous'.

I used to distribute Immunocow; now I'm wiser; my website points

out:

Gustavo Bounous discovered early in his groundbreaking research

that regular uncooked whey produces glutathione, your body's most

powerful healing agent. In animal studies, undenatured whey

protein concentrate consistently raised glutathione levels beyond

those of any other protein studied, including soy (Bounous G. and

Gold P., Clin. Invest. Med. 1991).

Obviously, Bounous' early use of standard junk undenatured whey

escapes Immunotech distributors to this very day.

I still maintain a references page for glutathione and sell

undenatured wheys.

Duncan

On 25 Dec 2006 at 11:14, Longevity wrote:

> Advice

> Posted by: " H. R. Blais " hrblais@... hrblais

> Date: Sun Dec 24, 2006 1:05 pm ((PST))

>

> Hello Duncan,

>

> I was reading your post with excellent advice for Nanette. My question

> is, you are using Dr. Bounous' information as well as Dr. Gutman's,

> are you a client/member or distributor of Immunotec Research?

>

> Please advise.

>

>

[Guest guest]

Umm yea I wouldn't suggest squatting to pee in poison ivy or peeing on an electric fence.LOL .Teaching and parenting is a learning experience you do things, try things ,what works you stick with, what doesn't you get rid of.Sometimes you have to see things from different views and go with what works for you.I myself can beat a subject into the ground lol .Because I want to get to a point with it that I can finally see a way that will work for me.Like brainstorming throw out many ideas til you find the one that works..vickie Advice

I don't want you guys to think you are wasting your time giving me

advice. Although it might appear that I'm not listening or am being

defensive I am actually learning from it all.

As my husband says "Some people have to pee on the electric fence more

then once to get the idea." I afraid that I am one of those types of

learners. Thankfully I haven't had the occasion to pee on an electric

fence although I have squatted in the woods in a patch of poison ivy

before. I wish I can say that I would NEVER do that again...

Humbly, Jodi

Park yourself in front of a world of choices in alternative vehicles.Visit the Auto Green Center.

[Guest guest]

I personally think the boy has learned these from someone at school. Or

some kid is telling him to do it.

I used to work with kids who had been abused as well as child predators.

I don’t have my doctorate, and I would not begin to evaluate that

through email, but this smacks of a set up to me. Sure.. could it be

puberty?? Maybe and its not beyond 11 and 12 yr old boys to be goofing

off about stuff like that.

Have any of the teachers heard him say this? Or is this one kids word

against another. And pardon me that that is BULL LARKY that other kids

don’t do this. I distinctly remember my friends making highly

inappropriate jokes at a younger age 20 + yrs ago. One girl took the hot

dog out of her bun and proudly displayed her NEW “member”. Who are the

kids that are near him JUST before he goes and behaves this way? I also

remember in highschool horrible sexual rumors were spread about a girl

who had some sort of Delay. Heck it could have been DS I was about 14

yrs old. Kids tormented her daily in the hall. I felt bad for her and

sat by her during the only class we had together.. Art. If I knew then

what I know now.. I would have decked those kids.

Ask for a Behavioral Analysis assessment before subjecting your child

to abuse evals. Although, our kids are at higher risk to be molested,

and this could be acting out, Or just even inappropriate behavior by

your son.. You do have to protect him too in the case that its NOT his

behavior issue. Our kids get blamed so fast for their “ behavior “ .

I did have a child that was sexually abused.. there was some evidence

too, by someone who is no where near our lives now. So I know what its

like. I also had a completely different child make a totally false

accusation around the age of 3/4 yrs. So I have seen both sides of that

as well. In the later case, there were neighbor hood kids who I later

found out talked about stuff they saw at school and on the bus to

another of my children. So I suspect that is where my younger got the

idea. They are about 8 yrs old.. LOL.. Yeah.. “ other kids don’t’ do

that “ BOLOGNA. What they told my ten yr old homeschooled kid freaked

her out and sent her running to me. Sides.. didn’t you say some 12 yr

olds got in trouble for the same thing!!! How can that be if the “

other kids don’t act like this”.

I also worked with my local Women’s Crisis center who ran the only

program in my area for children who had been abused. We designed a

clinic specific to deal with this in a hospital setting. So I am not

full of bologna. But I have no experience with interviewing, or the

process when it comes to a child with a delay. ( pardon the term)

What I am trying to say.. is some kids are telling the truth.. but there

are “ witch hunts” out there. I personally think your boy is the target

of a “ practical joke” some other boys set up, and I would be afraid

they would try to accuse him falsely.

Should you have him evaled.. insist you be in the room. They should not

give him leading questions. Names should not be mentioned and body

parts should nt be either, by the interviewer. They should not ask

questions like “ does mommy ever touch your < fill in the blank> “

I would also INSIST that the interview process be done with a special ed

specialist present as well. I mean you don’t want the interview to be “

traumatizing” to the child either. You don’t want him grilled, coerced

or pressured in any way. OR given information he does not have by some

well meaning , but over zealous interviewer.

I would call the children’s hospital closest to you, talk to a social

worker there about WHO should be doing this interview. OR you could call

your local womens crisis center.. as they should service children too.

Explain to them that you think your child is being set up or abused at

school. And frankly if another kid is telling him to do this.. then it

is abuse. And THOSE are the kids who need to be interviewed.

You could sit in on classes one day… or have a close friend do it for

you, someone the kids would not recognize and keep watch for a day or

too. Find out who might be with or around your son just before this

behavior begins. I think that will provide your answer.

Steph

advice

Hello group,

If anyone has had experience with this Please help.

The school wanted a meeting yesterday due to some behavior concerns from

Austin. These had started last year and have resurfaced this year.

He has done some touching of peoples bottoms, lifting shirt/skirt and

says

things (touch my pee pee) and this has raised red flags at school. I

asked

could he be learning these behaviors at school " oh no, the other kids

don't

do this " They called in the psychologist who says something has happened

to

him for these things to be occurring and they want him evaluated by

someone

who screens kids for abuse. I know in my heart nothing has happened at

home

or any place else. He is with an aid at school, there are some

instances, a

half hour in the classroom when the aid is not there (there are reg. Ed

assistants in the classroom during that time) and at lunch the aid is

not

right there with him, sometimes she may go assist someone else, but is

close

by to Austin. The recess time the aid I don't think is right there by

his

side. My understanding is that he does not go into the bathroom when

there

are other boys in there. Austin does not say these things at home,

remember

he has a brother soon to be 3 who is into self exploration. Yes I think

abuse should be ruled out. My husband and I feel this is a behavior

issue.

The staff that works with Austin are not experts, the " special Ed "

teacher

really doesn't have experience she is a reg. Ed teacher, in this state

they

can teach spec. Ed 3 years after that they must receive certification.

The

aids don't have specialized training. This is a rural school with

limited

experience " having kids with special needs. After the abuse is ruled

out,

then they said we would have a behavioral evaluation. I worry the person

doing the evaluation may not have experience with special needs. I think

you could lead Austin into saying something without him understanding

what

he is saying. Sorry for such a long email, I very concerned about this.

Just recently in our state we had 2 reg. Ed boys jailed, I believe they

were

12, because they swatted girls on the bottom. Charges eventually were

dropped. But I think they may still have a record and needed counseling.

Thank you,

Kelli mom to Austin 12 in Oct. And 3 in Nov.

[Guest guest]

Firstly, I agree with the advice given by Steph.

My first thoughts were - he has learnt this behaviour from someone else -

whether that be from others within the school, or somewhere else you go -

gym/football etc.

Rather than calling in the abuse team, I think a better idea for now is to

work on the behaviour, very simply by telling him it is not appropriate. He

could be doing it for attention - hey he is a boy and boys do enjoy

getting great reactions.

In all of this - keep in mind that Austin is a young boy first - a boy who

will be a boy, just because he is a person with DS doesn't stop him from

doing a lot of 'normal' boy things. Unfortunately for people with any kind

of disability, once they step outside the guidelines of acceptability it

becomes a major problem whereas their peers would get a 'slap on the wrist'

and told to pull their socks up, with a person with a disability they call

in all types of behavioural experts. The main thing is don't over react -

it may be normal behaviour just Austin being Austin. Is this something your

husband or brothers would have done as a child?

As to, the other kids in the school not doing this - what utter crap -

unless they are with all the kids all the time, they have no idea what

happens.

Hope all works out the best for you and Austin and please don't over react,

but do keep an eye on things just in case there is some kind of abuse going

- thought imo probably not.

Keep smiling

Jan, mother of Trent 23yo w/DS from the LandDownUnder

advice

Hello group,

If anyone has had experience with this Please help.

The school wanted a meeting yesterday due to some behavior concerns from

Austin. These had started last year and have resurfaced this year.

He has done some touching of peoples bottoms, lifting shirt/skirt and says

things (touch my pee pee) and this has raised red flags at school. I asked

could he be learning these behaviors at school " oh no, the other kids don't

do this " They called in the psychologist who says something has happened to

him for these things to be occurring and they want him evaluated by someone

who screens kids for abuse. I know in my heart nothing has happened at home

or any place else. He is with an aid at school, there are some instances, a

half hour in the classroom when the aid is not there (there are reg. Ed

assistants in the classroom during that time) and at lunch the aid is not

right there with him, sometimes she may go assist someone else, but is close

by to Austin. The recess time the aid I don't think is right there by his

side. My understanding is that he does not go into the bathroom when there

are other boys in there. Austin does not say these things at home, remember

he has a brother soon to be 3 who is into self exploration. Yes I think

abuse should be ruled out. My husband and I feel this is a behavior issue.

The staff that works with Austin are not experts, the " special Ed " teacher

really doesn't have experience she is a reg. Ed teacher, in this state they

can teach spec. Ed 3 years after that they must receive certification. The

aids don't have specialized training. This is a rural school with limited

experience " having kids with special needs. After the abuse is ruled out,

then they said we would have a behavioral evaluation. I worry the person

doing the evaluation may not have experience with special needs. I think

you could lead Austin into saying something without him understanding what

he is saying. Sorry for such a long email, I very concerned about this.

Just recently in our state we had 2 reg. Ed boys jailed, I believe they were

12, because they swatted girls on the bottom. Charges eventually were

dropped. But I think they may still have a record and needed counseling.

Thank you,

Kelli mom to Austin 12 in Oct. And 3 in Nov.

[Guest guest]

As the mother of three boys, 18 (with ds and master butt toucher),a 6, and 3

year old I think this is not abnormal behavior. At the risk of everyone

thinking more " normal " boys are twisted the three year old tried to pee on his

six year old brother today. I also work in a day care and many children make

comments and do things that make you wonder but aren't abnormal. Many of our

kids function in that preschool age developmentally but have normal hormones so

things get a little off sometimes.

I also would focus on appropriate touching and teaching appropriate social

skills. I would attempt to get a statement added to his IEP stating something

along the lines of " due to ___'s cognitive disability he is unable to

understand the consequences of x,y, z behavior. A, B, and C will be in place to

prevent issues related to this behavior " OThers will probably have better

wording. My point is that it is their responsibility to keep him and everyone

else

safe so if someone comes back with accusations about him doing any

inappropriate touching it can go back on the school since there are steps in

place.

karyn

_Re: advice _

(/message/52484;_ylc=X3oDMTJyZGYxZHFtBF9T\

Azk3MzU5NzE1BGdycElkAzIwODA2MzkEZ3Jwc3BJZAMxNzA1Mzk1ODM1BG1zZ0

lkAzUyNDg0BHNlYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExOTAyNTMyMTg-)

Posted by: " Jan Marie " _janmarie21@... _

(mailto:janmarie21@...?Subject= Re:%20advice) _janmarie21au _

(janmarie21au)

Wed Sep 19, 2007 2:38 pm (PST)

Firstly, I agree with the advice given by Steph.

My first thoughts were - he has learnt this behaviour from someone else -

whether that be from others within the school, or somewhere else you go -

gym/football etc.

Rather than calling in the abuse team, I think a better idea for now is to

work on the behaviour, very simply by telling him it is not appropriate. He

could be doing it for attention - hey he is a boy and boys do enjoy

getting great reactions.

In all of this - keep in mind that Austin is a young boy first - a boy who

will be a boy, just because he is a person with DS doesn't stop him from

doing a lot of 'normal' boy things. Unfortunately for people with any kind

of disability, once they step outside the guidelines of acceptability it

becomes a major problem whereas their peers would get a 'slap on the wrist'

and told to pull their socks up, with a person with a disability they call

in all types of behavioural experts. The main thing is don't over react -

it may be normal behaviour just Austin being Austin. Is this something your

husband or brothers would have done as a child?

As to, the other kids in the school not doing this - what utter crap -

unless they are with all the kids all the time, they have no idea what

happens.

Hope all works out the best for you and Austin and please don't over react,

but do keep an eye on things just in case there is some kind of abuse going

- thought imo probably not.

Keep smiling

Jan, mother of Trent 23yo w/DS from the LandDownUnder

advice

Hello group,

If anyone has had experience with this Please help.

The school wanted a meeting yesterday due to some behavior concerns from

Austin. These had started last year and have resurfaced this year.

He has done some touching of peoples bottoms, lifting shirt/skirt and says

things (touch my pee pee) and this has raised red flags at school. I asked

could he be learning these behaviors at school " oh no, the other kids don't

do this " They called in the psychologist who says something has happened to

him for these things to be occurring and they want him evaluated by someone

who screens kids for abuse. I know in my heart nothing has happened at home

or any place else. He is with an aid at school, there are some instances, a

half hour in the classroom when the aid is not there (there are reg. Ed

assistants in the classroom during that time) and at lunch the aid is not

right there with him, sometimes she may go assist someone else, but is close

by to Austin. The recess time the aid I don't think is right there by his

side. My understanding is that he does not go into the bathroom when there

are other boys in there. Austin does not say these things at home, remember

he has a brother soon to be 3 who is into self exploration. Yes I think

abuse should be ruled out. My husband and I feel this is a behavior issue.

The staff that works with Austin are not experts, the " special Ed " teacher

really doesn't have experience she is a reg. Ed teacher, in this state they

can teach spec. Ed 3 years after that they must receive certification. The

aids don't have specialized training. This is a rural school with limited

experience " having kids with special needs. After the abuse is ruled out,

then they said we would have a behavioral evaluation. I worry the person

doing the evaluation may not have experience with special needs. I think

you could lead Austin into saying something without him understanding what

he is saying. Sorry for such a long email, I very concerned about this.

Just recently in our state we had 2 reg. Ed boys jailed, I believe they were

12, because they swatted girls on the bottom. Charges eventually were

dropped. But I think they may still have a record and needed counseling.

Thank you,

Kelli mom to Austin 12 in Oct. And 3 in Nov.

************************************** See what's new at http://www.aol.com

[Guest guest]

Kellie,

I work with CPS (use to do it myself) and the best thing you can do is fully

cooperate with the investigation. Austin has not made any statements that

someone has done anything to him. Some of the behaviors you have described

is seen in other pre- teen and teenage boys with DS. You do need to teach

Austin the proper names of his body parts and depending on his

understanding, what is a secret touch and to say no if someone is touching

him where his bathing shorts cover. You also need to work with him on

telling you if someone tells him to keep a secret or if someone does touch

him. Do alot of role playing. I've been working with on learning

that no one but a doctor can touch his private parts. As for how to handle

these behaviors in school - ignore, ignore, ignore! I think when our kids

act out (to what others consider) sexually, those around them have a

tendency to really react. The kids got the attention and will continue to

do the behavior in the future due to the over reaction.

While has never ask for someone to touch his pee pee, he has touched

boobs (breasts as he calls them now), swats people on the butt and lifted up

skirts/dresses/shirts. These are not sexualized behaviors - and I can say

that I have over reacted alot myself. Imagine being out in public and the

dress suddenly gets lifted - of course I am going to over react...and

just thinks it's funny and will do it again.

I'm wondering how many kids the psychologist sees who has DS or other

Developmental Disabilities? How many hours of training has he or she had in

this area (I can tell you that in the 10+ years I have been in the field,

only once was a training offered). I'd take Austin to his pediatrician, too

and get their input.

BTW, Austin is learning by being around his non-disabled peers. I've heard

stories of kids at this age putting our kids up to things and then our kids

get in trouble. Middle school...urgh!

advice

>

> Hello group,

> If anyone has had experience with this Please help.

> The school wanted a meeting yesterday due to some behavior concerns from

> Austin. These had started last year and have resurfaced this year.

> He has done some touching of peoples bottoms, lifting shirt/skirt and says

> things (touch my pee pee) and this has raised red flags at school. I asked

> could he be learning these behaviors at school " oh no, the other kids

> don't

> do this " They called in the psychologist who says something has happened

> to

> him for these things to be occurring and they want him evaluated by

> someone

> who screens kids for abuse. I know in my heart nothing has happened at

> home

> or any place else. He is with an aid at school, there are some instances,

> a

> half hour in the classroom when the aid is not there (there are reg. Ed

> assistants in the classroom during that time) and at lunch the aid is not

> right there with him, sometimes she may go assist someone else, but is

> close

> by to Austin. The recess time the aid I don't think is right there by his

> side. My understanding is that he does not go into the bathroom when

> there

> are other boys in there. Austin does not say these things at home,

> remember

> he has a brother soon to be 3 who is into self exploration. Yes I think

> abuse should be ruled out. My husband and I feel this is a behavior

> issue.

> The staff that works with Austin are not experts, the " special Ed " teacher

> really doesn't have experience she is a reg. Ed teacher, in this state

> they

> can teach spec. Ed 3 years after that they must receive certification.

> The

> aids don't have specialized training. This is a rural school with limited

> experience " having kids with special needs. After the abuse is ruled out,

> then they said we would have a behavioral evaluation. I worry the person

> doing the evaluation may not have experience with special needs. I think

> you could lead Austin into saying something without him understanding what

> he is saying. Sorry for such a long email, I very concerned about this.

> Just recently in our state we had 2 reg. Ed boys jailed, I believe they

> were

> 12, because they swatted girls on the bottom. Charges eventually were

> dropped. But I think they may still have a record and needed counseling.

>

> Thank you,

>

> Kelli mom to Austin 12 in Oct. And 3 in Nov.

>

>

>

>

>

>

[Guest guest]

Re: advice

At the risk of everyone thinking more " normal " boys are twisted the three year

old tried to pee on his six year old brother today.

I have to laugh at this one, I have 3 boys as well. ?Nick is the oldest and he

just happens to have DS but all three boys have at one time or another had

peeing contest, I think, on each other (at least the reports I hear make it

sound that way {one or more of the boys coming out to tattle on the others}).

..

________________________________________________________________________

Email and AIM finally together. You've gotta check out free AOL Mail! -

http://mail.aol.com

[Guest guest]

is 4 next month , and even tho we have been thru the whole

private thing, after his bath he is sitting on the couch naked and says

''Look mummy Im playing with my PENIS'' I told him- you must got your

room . ''oh thats right playing with your penis is private isn't it

mummy'' Mind you the way he was choking it I have no idea how it will

last 60 years

And my 2 boys have tried weeing on each other- usally cones up

with ''man that is soooo GROSS ''

For thos e who do not know me - is 10 in Nov and has DS ,

Natasha is 5 1/2 and bossy and is 4 next month and likes his

penis- he has even named it already!! ( last 2 kidlets are NDA- not

diagnosed with anything )

Aussie Leis- mum to , Natasha and

You kids better behave yourselves...

I'm stayin behind to baby sit!

Wolverine

KVanRyzin@... wrote:

>

> the three year old tried to pee on his

> six year old brother today.

>

[Guest guest]

That's sort of how we got our non ds son to pee in the potty.. we made

it a game. " Sink the Battle Ship " .

" ready, Aim, FIRE ! " He nick named it his " pee pee shooter " his

self.

That and Daddy taught him to " pee on a tree " . <sigh> Course then he

wanted to pee on a tree any time he had to go. Many times his sisters

have tattled.. " MOM.. Bubs is peein on that tree .. EWWW GROSS " .

Then we caught him singing and peeing at the same time.. Hands on hips (

OH NO ) " peein like a man, peein with no hands "

Poor kid, he has no brothers (yet) to pee on.

Steph

Re: advice

At the risk of everyone thinking more " normal " boys are twisted the

three year old tried to pee on his six year old brother today.

I have to laugh at this one, I have 3 boys as well. ?Nick is the oldest

and he just happens to have DS but all three boys have at one time or

another had peeing contest, I think, on each other (at least the reports

I hear make it sound that way {one or more of the boys coming out to

tattle on the others}).

..

__________________________________________________________

Email and AIM finally together. You've gotta check out free AOL Mail! -

http://mail. <http://mail.aol.com> aol.com

[Guest guest]

They're just covering their arse, Karyn. I've signed dozens of those

things. Consult your attorney about signing the thing if you have

doubts about doing so.

granny

On Wed, Mar 26, 2008 at 11:17 PM, thebombtexas <thebombtexas@...> wrote:

>

>

>

>

> Adena has the opportunity to participate in therapeutic horseback

> riding through her school. They only have a couple sessions left this

> year. This was one reason I selected the school for her because of

> this. They sent me home the paperwork to sign. One of the forms is a

> release form . I have no problem with that but in order to

> participate, I must sign a release from liability including negligence

> and premises liability that may result from any unreasonably dangerous

> premise. So if they have an employee that is negligent and not doing

> their job or not maintaining the grounds and this causes an accident

> that could harm or kill Adena, I cannot hold them liable. I am not

> sue-happy but I am concerned about signing a form that releases them

> from any liability if they have a negligent employee. I realize all of

> the other children in the class participate and it seems no one else

> has this concern. I just wanted to see if I am being crazy. If this

> were your child, what would you do? I know I can't protect her from

> everything and accidents can happen anywhere anytime without cause.

>

> of course my husband is out of town at a conference and not answering

> his cell phone so I can't get his input!

>

> Karyn

> Mom to Adena, 3

>

>

[Guest guest]

A friend of mine is a paralegal. She said you can still sue even tho you

sign one of those " blanket waivers " .

Di

An eye for an eye makes the whole world blind.

Mahatma Gandhi

Re: Advice

> They're just covering their arse, Karyn. I've signed dozens of those

> things. Consult your attorney about signing the thing if you have

> doubts about doing so.

>

> granny

>

> On Wed, Mar 26, 2008 at 11:17 PM, thebombtexas <thebombtexas@...>

> wrote:

>>

>>

>>

>>

>> Adena has the opportunity to participate in therapeutic horseback

>> riding through her school. They only have a couple sessions left this

>> year. This was one reason I selected the school for her because of

>> this. They sent me home the paperwork to sign. One of the forms is a

>> release form . I have no problem with that but in order to

>> participate, I must sign a release from liability including negligence

>> and premises liability that may result from any unreasonably dangerous

>> premise. So if they have an employee that is negligent and not doing

>> their job or not maintaining the grounds and this causes an accident

>> that could harm or kill Adena, I cannot hold them liable. I am not

>> sue-happy but I am concerned about signing a form that releases them

>> from any liability if they have a negligent employee. I realize all of

>> the other children in the class participate and it seems no one else

>> has this concern. I just wanted to see if I am being crazy. If this

>> were your child, what would you do? I know I can't protect her from

>> everything and accidents can happen anywhere anytime without cause.

>>

>> of course my husband is out of town at a conference and not answering

>> his cell phone so I can't get his input!

>>

>> Karyn

>> Mom to Adena, 3

>>

>>

>

> ------------------------------------

>

> Click reply to all for messages to go to the list. Just hit reply for

> messages to go to the sender of the message.

[Guest guest]

Mandy: don't hang in there any longer. Go to the emergency room if you have

to. In August I had my gall bladder removed. Two days later, I had so much

pain I thought i was going to die litterally. My next door neighbors had to

call an ambulance to get me back to the hospital. Turns out the surgeon made a

mistake (forgott to seal of a Duct of Luschka. Had I not gone to the emergency

room I was told I would have died. My pain then was way of the charts - - -

morphine didn't help. I'm still furious with the docto. Please go to the

emergency room. You should never have been told to go home and tough it out.

Please go. Love you, Welynda

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

---------------------------------

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Mandy: don't hang in there any longer. Go to the emergency room if you have

to. In August I had my gall bladder removed. Two days later, I had so much

pain I thought i was going to die litterally. My next door neighbors had to

call an ambulance to get me back to the hospital. Turns out the surgeon made a

mistake (forgott to seal of a Duct of Luschka. Had I not gone to the emergency

room I was told I would have died. My pain then was way of the charts - - -

morphine didn't help. I'm still furious with the docto. Please go to the

emergency room. You should never have been told to go home and tough it out.

Please go. Love you, Welynda

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

---------------------------------

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

,

It is well established in the medical literature concerning muscle pain and weakness from using statins. While these side effects can occur anywhere you have nerves and muscles, the legs is the most common place patients report weakness and pain.

Memory loss is another complaint, however the medical community has failed to recognize this serious effect from cholesterol inhibition. Cholesterol plays an important role in nerve synapses in the brain. About 25% of the body's cholesterol is in the brain. I watched my own father's cognitive skills deteriorate rapidly on zocor. I also saw the same thing happen to a friend. For more on statins and memory, go to spacedoc.net Dr. Graveline suffered amnesia from lipitor. He has devoted the last 10 years to study of statins and side effects.

Keep in mind that your physician is in the cholesterol lowering business. He/She makes a living lowering peoples cholesterol. There is a financial interest in these drugs and no one dare suggest that the drug could have possibly done this to you.

By the way, half of all heart attacks and strokes happen to people with low to normal cholesterol.

Bobby

http://geocities.com/flyinresorts/blog.html--- On Fri, 8/7/09, bluealicia2001 <audrey29@...> wrote:

From: bluealicia2001 <audrey29@...>Subject: AdviceLipitor Date: Friday, August 7, 2009, 9:24 AM

I joined this group some time ago because I was having problems with what I thought was side effects of statins. It has been a bitter fight with my GP because I have osteoarthritis in my legs and my doctor will not have it that part of the pain trouble could be statins. She changed my tablets from simvastitin to Lipitor 10mg - still have bad leg pains. However what I am worried about now is my husband. He has the same level of cholesterol that I have 4.1 and yet his GP (different from mine) has him on 40mg Simvastitin a day. Just recently he has started to suffer with bad leg pains, weakness in his legs, tiredness, some mild memory loss (I am scared to death of him starting with Alzheimers)and not at all as active as he was. We saw his GP on Wednesday who was not at all convinced that it is the tablets but after an argument he has agreed to take him off for six weeks and then he will have a blood test. His chiropodist told him that he has a large

number of patients on statins who are complaining of bad leg pain and weakness. Has anyone else had memory loss as well as pains and weakness? I am worried sick.Thanks.

[Guest guest]

Yes, absolutely. I noticed a definite deterioration in my memory a

little after a year on Mevacor. I noticed that I was forgetting

customers orders at work, which was very unusual and scary. I read

somewhere that there was a possible link with memory loss, and

discontinued the mevacor immediately. In about two weeks it was like a

cloud lifted from my brain. Now, five years later, I still don't have

100% of the memory I used to. I also had severe muscle pain in my upper

arms, and the beginning of a hand tremor, both of which disappeared

when the mevacor was out of my system.

Linden

Advice

Lipitor

Date: Friday, August 7, 2009, 9:24 AM

 

I joined this group some time ago because I was having problems with

what I thought was side effects of statins. It has been a bitter fight

with my GP because I have osteoarthritis in my legs and my doctor will

not have it that part of the pain trouble could be statins. She changed

my tablets from simvastitin to Lipitor 10mg - still have bad leg pains.

However what I am worried about now is my husband. He has the same

level of cholesterol that I have 4.1 and yet his GP (diffe

rent from

mine) has him on 40mg Simvastitin a day. Just recently he has started

to suffer with bad leg pains, weakness in his legs, tiredness, some

mild memory loss (I am scared to death of him starting with

Alzheimers)and not at all as active as he was. We saw his GP on

Wednesday who was not at all convinced that it is the tablets but after

an argument he has agreed to take him off for six weeks and then he

will have a blood test. His chiropodist told him that he has a large

number of patients on statins who are complaining of bad leg pain and

weakness. Has anyone else had memory loss as well as pains and

weakness? I am worried sick.

Thanks.

[Guest guest]

Thank you so much for your comments. It is so confusing when you think that at

one time you could always rely on advice given by your doctor.

I am going to try and keep my husband off the simvastitins but at the back of my

mind I am afraid I keep thinking WHAT IF?????? and would I blame myself if he

does have a heart attack or stroke.

Some time ago I was given heart tablets by my GP according to a directive from

the Health Service saying anyone who had had a heart problem had to have them (I

had a heart attack about 21 years ago). On taking the tablets I was so ill that

I had to go back and tell the doctor. He said he could not understand having to

put me on them when I had not been taking heart tablets for years and was more

or less ok - he then said it was the quality of life you have to take into

account. Why do doctors now let themselves be ruled by the Government? Probably

if we have a change of government next year all these tablets will be stopped

and we will be told then that they were bad for us.

Regards, .

[Guest guest]

Jill,

First off {{{Jill}}}, reading your story sounds so much like my story with Nick.

Nick is now 18. The first 5/6 years really weren't that rough other than being

a single parent to a child that just happened to have Down Syndrome. I got

married in 1999 just a little over 2 months before Nick turned 6, had a baby

February 16 (he was due March 21 and stayed in the NICU until the week he was

actually due), had a step-daughter that was with us EOW and a few evenings a

week as well and in May of 2000 we moved into our current home. Nick's

behaviors really deteriorated starting that year. Jeff, my husband, figured it

was more due to Nick reaching those developmental levels than anything else. I

often wonder if the behaviors started due to all the changes. Doesn't really

matter why they started because almost 13 years later we are still dealing with

them. (I know not much comfort.) Oh, I forgot to mention around the time

(born in 2000) was moved into the same bedroom Nick slept in we started

noticing that Nick wasn't sleeping through the night (Nick has always managed

10-minute power naps but still slept all night until this point). So we also

blamed the behaviors on sleep (or lack of) issues.

Nick currently takes Focalin Xr (15mg.) - for ADD, Lexapro (10 mg.) - for OCD,

Guanfacine (1mg. 3x a day morning/after school/bedtime), Trazadone (100 mg. at

bedtime with the option of adding 50 mg. more if he wakes up before 2am),

Melatonin (we use GNC brand 3mg. Time Release and he takes 12 mg.) and Benedryll

(50 mg. -- allergies plus sleep). I am happy to say that the last week Nick has

slept all night! (or at the very least stayed in his bed and not set off the

alarm -- doorway is alarmed so I wake up if he gets up due to his getting into

stuff) Jeff is wanting to dc the Focalin Xr as Nick has increased his talking

to invisible people routine (I think part of it is self-talk but since he names

the other people and at times talks for them as well we aren't positive). Nick

has been taking Focalin Xr for approximately 3 years now.

Most people who get to know Nick will comment about how smart he is (often Nick

is too smart for his own good). Nick often chooses to live down to people's

expectations versus proving those expectations wrong (probably because it is

easier to do that). I have always told people to raise their expectations and

never let Nick know you think he can't do something because he is perfectly

willing to let you do it for him.

For years Nick would just about die before allowing a book (or any reading

material) to be torn up. These last few years he has been more inclined to tear

something up versus take care of it. Like you I'm sure he has some valid reason

in his mind but the only respond you get when you ask why is " I like it " or " I

dunno " or " Sorry. "

I truly think too that because it is so much easier to catch and discipline the

wrong stuff that often we catch it more than we do the good stuff. (After all,

when they are being good and we can relax we do just that until the next crisis

occurs. Truthfully, that method of parenting leads us to just putting out fires

versus actually preventing them in the first place. Maybe one of these days

I'll figure out how to prevent the fires, until then I'll be fighting fires.)

Cari

Advice

I keep thinking things are getting better with Kit and then she does something

and makes me think she's not getting better. She has always been my " wild

child " --from almost as soon as she could walk. She has been extremely active

and constantly into everything. BTW, she is 10 years old now. I took a year

off from my job when she turned 5 so I could, hopefully, work with her

consistently to help with self-control, toileting issues and behavior concerns

(she is also very dominating, controlloing and often just not nice (can be mean

to family members and rude to her peers, so she would be better prepared for

school. K-2 grades were extremely difficult years at school--she had many many

accidents, and many difficult behaviors--often ending up in detention and

several times " emergency removed " from school. The past two years have been

MUCH better. At 5.5 after much thought and talking to many people (possibly

even many of you) we began to try me dication. Over a course of a

bout 2-3 years and seeing several different specialists we tried about 8

different meds (some of them pretty potent things I typically wouldn't have

tried with such a young child) or combination of meds. I also sought help from

child psychologists and behavior specialists. Things have gotten

better--especially at school--I can only remember one time this year where I've

been called because of her behavior. For the past 2-3 years she has been only

on on one medication, Focalin XR. It does seem to help take the edge off, but

certainly isn't a total fix.

Some of her behaviors include, non-stop chatter (which often seems

meaningless to me, but probably isn't to her) which is often loud, some

perseveration of words/questions hearing " mom " 44 times in 10 minutes (that's an

actual count) can be quite annoying, or " where going? " in the car over and over

when she knows exactly where we are going, she will change her clothes 20 times

a day or more (I've locked most rooms and she only has a handful of clothes she

is supposed to be allowed to change into), hoarding/packing bag--she will take

her suitcase, beach bags, purses, etc...and just fill them with all kinds of

things and then carry them around (often we can't find remotes, batteries, mail,

etc...because she has them in one of her many bags), being bossy and demanding,

when it's time for lunch or something similar in her attempt to be helpful she

will pull everyhting out of refrigerator, or if I mention doing laundry in a day

or two she will immediately r un upstairs and brin

g down any clothes she can find (clean or dirty), at restaurants she continues

to make a " room " around her eating place--putting the menu up, lining her

silverware, ketchup bottle, salt/pepper shakers, etc.. around her plate area,

destroying things (she will still write on walls, clothes, tv's, etc...,

tear/cut things up) often there is a purpose to this in her mind, but it is

still destructive.

Today I am in tears because I'm just tired of it and am not sure what else to

do. It seems I have to constantly be with her and make sure she is not in

trouble. Maybe this is just going to be the way it is with her, but it is

exhausting. She was upstairs in her room this am (I just redid her bedroom for

her for xmas and she loves it) and I thought was playing nicely or watching a

video. When I went upstairs, her room was covered in clothes--somehow she got

in the room that is usually locked--and had all the summer clothes and boxes of

garage sale/Goodwill clothes all over her bedroom. I had made her a cute

corkboard and covered it with pictures of her, family, friends, pets, etc...

She loved to look at it and talk about the pictures. Well she had taken ALL of

the pictures off and the pictures out of the three picture frames in her room

and cut them into tiny pieces (some with a purpose to put them in the picture

section of a wallet she had found). Ugh.

People often think Mac is so " high functioning " and " brighter " compared to

Kit. I don't necessarily believe that. She is very bright, but unfortunately,

often all people see (at times including me) are behaviors. These things aren't

constant all day long, but at least one or two of them happens

everyday--somedays, of course, are better/worse than others. She is GREAT 1:1

(for the most part) and can be a happy, cooperative, entertaining, loving,little

girl in a group. I would just like to see that side of her more often. Any

words of wisdom from those of you have been through this or continue to go

through this.

Thanks for listening/reading. I feel better just being able to share this

with all of you.

Jill

Mom to Mac (13, 8th grade, Ds) and Kit (10, 4th grade, Ds)

[Guest guest]

Hi Jill,

I feel sorry that you are going through all of this, I know it can be

exhausting, but I am sure some behavior problems will pass as Kit grows older.

My daughter Ana (19) used to pack things, too, including remote controls, cell

phones, whatever she felt putting in her bags.  We went crazy looking for

things, because we did not know which bag to look for.   Like you say, probably

she had a purpose, but not necessarily make sense to us.  With time she stopped

doing that.  

Most of the time Ana is very nice and sweet to everybody, but there was a time

that  she was very rude to my mother-in law ( a very difficult situation ),

luckily my MIL was clever enough to not pay attention to the times Ana

completely ignored her, even turning her head the other way.  MIL would speak

to Ana if Ana wanted to talk to her, MIL would ignore her when Ana ignore her. 

Thank God that is not happening anymore.  I felt terribly bad!  Of course I

addressed the situation and punish Ana by taking things away. 

Perseveration is also a behavior that has improved, she still says Mom

repeatedly and keeps asking the same question over and over, but a little less

than before.

She liked to take all her cloths from her closet, would try folding it (her way)

and put it back; so all my work arranging her room and closet was for nothing. 

Ana was not so destructive, but she did make her brothers cry in many occasions,

when she destroyed toys or ruined some  of their video games.  They were very

tough on her, so she learned the hard way.

Ana likes to set the table, and even before I or my husband start preparing

meals, she is already busy setting the table.  She used to put a lot of things,

but now has learned which sauces (mayo, ketchup, etc.) will be needed with the

meal being prepared.  She now knows if we are having soup, she puts the spoons

and the soup plates, etc.

I think Ana does this to feel helpful, but before she did not know exactly what

has to be done; she just did it!

I hope Kit's problems improve with time.

Hugs,

Bonnie (in Belgium)

>________________________________

> De: Jill son <thrill@...>

>Para: ; denisemanly@...;

Down Syndrome Treatment

>CC: equinn@...

>Enviado: Sábado, 21 de enero, 2012 18:29:23

>Asunto: Advice

>

>

> 

>I keep thinking things are getting better with Kit and then she does something

and makes me think she's not getting better. She has always been my " wild

child " --from almost as soon as she could walk. She has been extremely active

and constantly into everything. BTW, she is 10 years old now. I took a year

off from my job when she turned 5 so I could, hopefully, work with her

consistently to help with self-control, toileting issues and behavior concerns

(she is also very dominating, controlloing and often just not nice (can be mean

to family members and rude to her peers, so she would be better prepared for

school. K-2 grades were extremely difficult years at school--she had many many

accidents, and many difficult behaviors--often ending up in detention and

several times " emergency removed " from school. The past two years have been

MUCH better. At 5.5 after much thought and talking to many people (possibly

even many of you) we began to try

medication. Over a course of a

>bout 2-3 years and seeing several different specialists we tried about 8

different meds (some of them pretty potent things I typically wouldn't have

tried with such a young child) or combination of meds. I also sought help from

child psychologists and behavior specialists. Things have gotten

better--especially at school--I can only remember one time this year where I've

been called because of her behavior. For the past 2-3 years she has been only

on on one medication, Focalin XR. It does seem to help take the edge off, but

certainly isn't a total fix.

>Some of her behaviors include, non-stop chatter (which often seems meaningless

to me, but probably isn't to her) which is often loud, some perseveration of

words/questions hearing " mom " 44 times in 10 minutes (that's an actual count)

can be quite annoying, or " where going? " in the car over and over when she knows

exactly where we are going, she will change her clothes 20 times a day or more

(I've locked most rooms and she only has a handful of clothes she is supposed to

be allowed to change into), hoarding/packing bag--she will take her suitcase,

beach bags, purses, etc...and just fill them with all kinds of things and then

carry them around (often we can't find remotes, batteries, mail, etc...because

she has them in one of her many bags), being bossy and demanding, when it's time

for lunch or something similar in her attempt to be helpful she will pull

everyhting out of refrigerator, or if I mention doing laundry in a day or two

she will immediately

run upstairs and brin

>g down any clothes she can find (clean or dirty), at restaurants she continues

to make a " room " around her eating place--putting the menu up, lining her

silverware, ketchup bottle, salt/pepper shakers, etc.. around her plate area,

destroying things (she will still write on walls, clothes, tv's, etc...,

tear/cut things up) often there is a purpose to this in her mind, but it is

still destructive.

>Today I am in tears because I'm just tired of it and am not sure what else to

do. It seems I have to constantly be with her and make sure she is not in

trouble. Maybe this is just going to be the way it is with her, but it is

exhausting. She was upstairs in her room this am (I just redid her bedroom for

her for xmas and she loves it) and I thought was playing nicely or watching a

video. When I went upstairs, her room was covered in clothes--somehow she got

in the room that is usually locked--and had all the summer clothes and boxes of

garage sale/Goodwill clothes all over her bedroom. I had made her a cute

corkboard and covered it with pictures of her, family, friends, pets, etc...

She loved to look at it and talk about the pictures. Well she had taken ALL of

the pictures off and the pictures out of the three picture frames in her room

and cut them into tiny pieces (some with a purpose to put them in the picture

section of a wallet she had found).

Ugh.

>People often think Mac is so " high functioning " and " brighter " compared to Kit.

I don't necessarily believe that. She is very bright, but unfortunately, often

all people see (at times including me) are behaviors. These things aren't

constant all day long, but at least one or two of them happens

everyday--somedays, of course, are better/worse than others. She is GREAT 1:1

(for the most part) and can be a happy, cooperative, entertaining, loving,little

girl in a group. I would just like to see that side of her more often. Any

words of wisdom from those of you have been through this or continue to go

through this.

>Thanks for listening/reading. I feel better just being able to share this with

all of you.

>

>Jill

>Mom to Mac (13, 8th grade, Ds) and Kit (10, 4th grade, Ds)

>

>

>

>

>

>

[Guest guest]

,

I am forwarding your message to the group so everyone can read it

Bonnie

>________________________________

> De: cindy mccarthy <cindylmccarthy@...>

>Para: B. <bonniand@...>

>Enviado: Domingo, 22 de enero, 2012 3:31:06

>Asunto: Re: Advice

>

>

>I am very unqualified to speak.  My daughter with Ds is only 2.  But I an a

mom to 11.  Two of my older non Ds children have struggled with diet related

strong personality /behavior issues.  I had no idea until they were older that

it was at all food related.  My oldest son benefited greatly from EFAs and

vitamin B complex. he not only suffered from seeyousoon and anxiety but even saw

things.  he want horribly disobedient but struggled in other ways.  With

suuplements it is a night and day difference. 

>One of my daughters has an issue with gluten.  Looking back at her horrible

behavior when she was younger I believe it was driven by this.  bladder

control, wild behavior,  tantrums... Oh.. the stories I could tell.

>Both are great now.  I have no idea if this would be helpful at all but

figured it was worth mentioning.

>

>On Jan 21, 2012 3:01 PM, " B. " <bonniand@...> wrote:

>

>

>> 

>>Hi Jill,

>>

>>I feel sorry that you are going through all of this, I know it can be

exhausting, but I am sure some behavior problems will pass as Kit grows older.

>>

>>My daughter Ana (19) used to pack things, too, including remote controls, cell

phones, whatever she felt putting in her bags.  We went crazy looking for

things, because we did not know which bag to look for.   Like you say, probably

she had a purpose, but not necessarily make sense to us.  With time she stopped

doing that.  

>>

>>Most of the time Ana is very nice and sweet to everybody, but there was a time

that  she was very rude to my mother-in law ( a very difficult situation ),

luckily my MIL was clever enough to not pay attention to the times Ana

completely ignored her, even turning her head the other way.  MIL would speak

to Ana if Ana wanted to talk to her, MIL would ignore her when Ana ignore her. 

Thank God that is not happening anymore.  I felt terribly bad!  Of course I

addressed the situation and punish Ana by taking things away. 

>>

>>Perseveration is also a behavior that has improved, she still says Mom

repeatedly and keeps asking the same question over and over, but a little less

than before.

>>

>>She liked to take all her cloths from her closet, would try folding it (her

way) and put it back; so all my work arranging her room and closet was for

nothing. 

>>

>>Ana was not so destructive, but she did make her brothers cry in many

occasions, when she destroyed toys or ruined some  of their video games.  They

were very tough on her, so she learned the hard way.

>>

>>Ana likes to set the table, and even before I or my husband start preparing

meals, she is already busy setting the table.  She used to put a lot of things,

but now has learned which sauces (mayo, ketchup, etc.) will be needed with the

meal being prepared.  She now knows if we are having soup, she puts the spoons

and the soup plates, etc.

>>

>>I think Ana does this to feel helpful, but before she did not know exactly

what has to be done; she just did it!

>>

>>I hope Kit's problems improve with time.

>>

>>Hugs,

>>

>>Bonnie (in Belgium)

>>

>>>________________________________

>>> De: Jill son <thrill@...>

>>>Para: ; denisemanly@...;

Down Syndrome Treatment

>>>CC: equinn@...

>>>Enviado: Sábado, 21 de enero, 2012 18:29:23

>>>Asunto: Advice

>>>

>>>

>>> 

>>>I keep thinking things are getting better with Kit and then she does

something and makes me think she's not getting better. She has always been my

" wild child " --from almost as soon as she could walk. She has been extremely

active and constantly into everything. BTW, she is 10 years old now. I took a

year off from my job when she turned 5 so I could, hopefully, work with her

consistently to help with self-control, toileting issues and behavior concerns

(she is also very dominating, controlloing and often just not nice (can be mean

to family members and rude to her peers, so she would be better prepared for

school. K-2 grades were extremely difficult years at school--she had many many

accidents, and many difficult behaviors--often ending up in detention and

several times " emergency removed " from school. The past two years have been

MUCH better. At 5.5 after much thought and talking to many people (possibly

even many of you) we began to try

>>medication. Over a course of a

>>>bout 2-3 years and seeing several different specialists we tried about 8

different meds (some of them pretty potent things I typically wouldn't have

tried with such a young child) or combination of meds. I also sought help from

child psychologists and behavior specialists. Things have gotten

better--especially at school--I can only remember one time this year where I've

been called because of her behavior. For the past 2-3 years she has been only

on on one medication, Focalin XR. It does seem to help take the edge off, but

certainly isn't a total fix.

>>>Some of her behaviors include, non-stop chatter (which often seems

meaningless to me, but probably isn't to her) which is often loud, some

perseveration of words/questions hearing " mom " 44 times in 10 minutes (that's an

actual count) can be quite annoying, or " where going? " in the car over and over

when she knows exactly where we are going, she will change her clothes 20 times

a day or more (I've locked most rooms and she only has a handful of clothes she

is supposed to be allowed to change into), hoarding/packing bag--she will take

her suitcase, beach bags, purses, etc...and just fill them with all kinds of

things and then carry them around (often we can't find remotes, batteries, mail,

etc...because she has them in one of her many bags), being bossy and demanding,

when it's time for lunch or something similar in her attempt to be helpful she

will pull everyhting out of refrigerator, or if I mention doing laundry in a day

or two she will immediately

>>run upstairs and brin

>>>g down any clothes she can find (clean or dirty), at restaurants she

continues to make a " room " around her eating place--putting the menu up, lining

her silverware, ketchup bottle, salt/pepper shakers, etc.. around her plate

area, destroying things (she will still write on walls, clothes, tv's, etc...,

tear/cut things up) often there is a purpose to this in her mind, but it is

still destructive.

>>>Today I am in tears because I'm just tired of it and am not sure what else to

do. It seems I have to constantly be with her and make sure she is not in

trouble. Maybe this is just going to be the way it is with her, but it is

exhausting. She was upstairs in her room this am (I just redid her bedroom for

her for xmas and she loves it) and I thought was playing nicely or watching a

video. When I went upstairs, her room was covered in clothes--somehow she got

in the room that is usually locked--and had all the summer clothes and boxes of

garage sale/Goodwill clothes all over her bedroom. I had made her a cute

corkboard and covered it with pictures of her, family, friends, pets, etc...

She loved to look at it and talk about the pictures. Well she had taken ALL of

the pictures off and the pictures out of the three picture frames in her room

and cut them into tiny pieces (some with a purpose to put them in the picture

section of a wallet she had

found).

>>Ugh.

>>>People often think Mac is so " high functioning " and " brighter " compared to

Kit. I don't necessarily believe that. She is very bright, but unfortunately,

often all people see (at times including me) are behaviors. These things aren't

constant all day long, but at least one or two of them happens

everyday--somedays, of course, are better/worse than others. She is GREAT 1:1

(for the most part) and can be a happy, cooperative, entertaining, loving,little

girl in a group. I would just like to see that side of her more often. Any

words of wisdom from those of you have been through this or continue to go

through this.

>>>Thanks for listening/reading. I feel better just being able to share this

with all of you.

>>>

>>>Jill

>>>Mom to Mac (13, 8th grade, Ds) and Kit (10, 4th grade, Ds)

>>>

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