hello

April 11, 2003

Oh, i woke up also, felt myself jump, don't know if they shocked me for a test or what....also he just used a local to install the ICD in my chest, it hurt like hell, felt him shoving it in, and moving it around......lol Don't wanna do that again anytime soon.....Jerry

http://www.casinocashportal.com Proud Member Of The Gambling Portal Webmasters Associationhttp://www.gpwa.net

Hello >Date: Tue, 08 Apr 2003 22:53:30 -0000 > >Hi my name is Jerry and i got my ICD on Friday April 5th, 2003 >All i can say is if i get zapped...from what i've heard, i hope it's >after my surgery heals....LOL Good luck to you all...You can find >me on AIM as jerohio or zappedinohio Take care Jerry >

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April 13, 2003

Hi Jerry;

First of all there is such a thing called phantom shock. After they put in and test your icd, body remembers it and some how you get that same feeling when you are sleeping and it wakes you up that when you feel that thump. the only way to know if you got shocked is go get it checked. Good luck to you. Oh one more thing if you don't mind i don't know if you put that gambling commercial in your email or not but we try to keep it commercial-free here. Thanks for understanding. Regards TURK

Hello >Date: Tue, 08 Apr 2003 22:53:30 -0000 > >Hi my name is Jerry and i got my ICD on Friday April 5th, 2003 >All i can say is if i get zapped...from what i've heard, i hope it's >after my surgery heals....LOL Good luck to you all...You can find >me on AIM as jerohio or zappedinohio Take care Jerry >

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April 13, 2003

Thanks for the info Turk, sorry about the signature on my website, i thought i had removed it from the Zap mail

Thanks Jerry

Hello >Date: Tue, 08 Apr 2003 22:53:30 -0000 > >Hi my name is Jerry and i got my ICD on Friday April 5th, 2003 >All i can say is if i get zapped...from what i've heard, i hope it's >after my surgery heals....LOL Good luck to you all...You can find >me on AIM as jerohio or zappedinohio Take care Jerry >

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April 21, 2003

What is caliper? Can you explain?

Jay

Hello

Hello Everyone

I am a new member. My daughter Li Iee is 4 years old

and is SMA type II. I would like to know if anyone of

you have tried the physio treatment using " caliper " or

not. If yes, what is the outcome ? By the way, is it

true that the caliper must be tailored made only?

Have a nice day !

Regards,

Mee Ling

__________________________________________________

Plus

For a better Internet experience

http://www..co.uk/btoffer

April 28, 2003

Hi Karin,

It sounds to me like you have very good questions already. I can't think of

anything to add. My Sam (almost 7) was diagnosed as IgA deficient since he

was about 2.5 yrs. old. Recently, we had more blood work done b/c he just

keeps getting sinus/ear infection after sinus/ear infection, and we found out

he's also IgG subclass 2 deficient. I know Sam's not considered CVID, but his

IgM is fine, so I don't have the knowledge to say what they might call your

son's immune deficiency. We're holding off on starting the IVIG for now, but

may have to change our mind. By the way, I used to get IVIG (now I get it

subcutaenously- which is easier for me), and it only hurt if I " blew " a veing

(meaning that the stuff was leaking out of the vein into the surrounding

tissue. If that happens, it was best for me to restart the IV unless I was

right near the end. If I was near the end, then a warm wet washcloth helped

ease the pain. Good Luck and keep us posted!

Anne R. (IgA def., Specific antibody def.)

(mother of Sam - IgA def., IgG subclass 2 def.) and

April 30, 2003

Welcome and congrats on taking the challenge!

> My name is and Sunshine told me about this group. She has

been an inspriation to me to start BFL not just for 12 weeks but for

a life change of good eating habits and exercise. I look forward to

getting to know you'all and learning more about this wonderful

program as I am on day 3-woohoo!!! I have a 22month old daughter and

want to have another but want to be in top shape before hand.

>

April 30, 2003

Welcome ,

BFL and this group are great. Congrats on choosing a healthy

lifestyle.

Becky

> My name is and Sunshine told me about this group. She has

been an inspriation to me to start BFL not just for 12 weeks but for

a life change of good eating habits and exercise. I look forward to

getting to know you'all and learning more about this wonderful

program as I am on day 3-woohoo!!! I have a 22month old daughter and

want to have another but want to be in top shape before hand.

>

May 1, 2003

Hi ! Glad you are here!! These ladies are a wealth of information!!

Sunshine

hello

My name is and Sunshine told me about this group. She has been an

inspriation to me to start BFL not just for 12 weeks but for a life change of

good eating habits and exercise. I look forward to getting to know you'all and

learning more about this wonderful program as I am on day 3-woohoo!!! I have a

22month old daughter and want to have another but want to be in top shape before

hand.

May 2, 2003

Welcome ,

I am so glad that you decided to join the group. You sure will get

lots of help, advice, laughter and tears with this bunch. But believe me

being young has nothing to do with needing this group. I have 5 children

and have been a parent for 27 years but this group brings wisdom and

information that you will never find anywhere else no matter how much

research you do. I'm glad you joined. Hey guys, so am I. (glad I joined)

I don't know what I would do without all you bunch of nuts!!! LOL>

Loree

Hello

> Hello everyone,

> I have been a silent participate in this email group since my son

Joshauh

> (pronounced joshua) who has downs was born. I love this support group. I

> have been very lucky that Joshauh has not had any complications other than

> the occasional croup, but he is only 2 so who knows what the future will

> bring. It is nice to know that I have access to alot of people who are

able

> to truly say 'I know what ur going through' and can give me some really

> helpful advice.

> I was only 20 when my son was born. I was confused when the doctor told

> me that he had downs. I thought well did I do something wrong. When the

> reality really hit me I started to think about all the complications that

> could happen and how was I a young single parent, at the time, was going

to

> be able to handle it.It is great that there are people like my family,

> friends, and this group who are there to help you through tuff times. I

just

> wanted to say thanx.

>

> , mother of Joshauh 2 d/s

>

> Bringing life into the world is the greatest feeling a woman can

> have.......once the pain of labor is over.........and they learn to sleep

> all night............and they use the potty all by themselves........hell

> once there grown and got kids of there own!!!

>

> _________________________________________________________________

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>

> Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

>

June 8, 2003

Hi ne! Welcome back!

Ling

Hello

> Hello everyone,

> I was a member of this group long ago and missed the comradery and

> caring. I am 62 yrs old, widowed with chronic auto-immune hepatitis

> plus other AI related problems. Have been in remision for a while

> now, on no meds. I have 4 grown sons plus 3 adopted (1 boy- 2 girls)

> I still have a 15 yr old daughter at home. I retired from nursing 10

> years ago. Glad to be back!! ne

>

June 13, 2003

Thanks for the welcomes!

JB- I have pics on Leanandstrong.com, but they are a little old,

I really need to update! I think my last ones are from challenge 5

and I'm on 7.

Beth- I paint anything that will hold still. From murals on walls,

to rocks You're on week 6! Good for you, you are halfway there!

Tinkle- I never met another Jonda till I got on the internet, I've

had 5 or 6 write me since then. Most seem to pronounce it Yonda tho.

So is your sister a Yonda or a Jonda?

Jonda

June 14, 2003

Hi Brett, glad you're here. I look forward to hearing your BFL

experiences as well as your hubby's. Together you can make quite a

synergistic team. I wish you much success.

Stasia

June 14, 2003

Welcome to the group, Brett. You will LOVE it here, we have some

AWESOME ladies around here, they are all so smart and supportive.

Have a good day!!

Beej

> Wow, just joined the group yesterday, I can't believe how active it

> is. I am excited to start sharing my progress.

>

> I am now on day 5 of my first challenge. My husband and I are both

> participating. We finally decided we had to do something. I just

> got lazy and my husband in comming off a knee reconstruction.

>

> This week has been easier than I expected. I have never eaten this

> much on a daily basis before in my life. The workouts have been

> great and I actually feel a lot better already. I am going to wait

4

> weeks before I weigh or measure again, I am not so much interested

> in losing weight and I am inches, so I am going to avoid the scale

> for a while (it will be difficult I am used to weighting myself

> daily).

>

> I am looking forward to the comming days and weeks, and am glad I

> found people to share it with.

>

> Thank you,

>

> Brett Shields

June 23, 2003

hi donna,

welcome to the list. it's a good bunch of people with diversity in age

that's refreshing. i'm 37 w/sma2. but 16 doesn't feel that long ago. at

the time i dropped out of high school to get out of a nursing home a nd

live on my own. i remember the social awkwardness of high school...the

things that helped me be more confident:

- being 95% in charge of my health care decisions by the time i was 15

- being in charge of my chores (shopping down the street when mom worked,

and bossing younger sibs around - smile)

- having other disabled friends both the same age and older living on their

own to learn from

- knowing mom wouldn't always provide my care, so learning how to teach it

to new people

- receiving the same parental lectures from my folks as my non-disabled

sibs about sex, pregnancy, drugs, education and work ethic

- going to summer camp

- being exposed early to the idea of a disability culture and civil rights

movement (check out the book " no pity " by joseph shapiro)

the list goes on but i'm sure you get the gist. disabled peers and mentors

are key...doesn't need to be same disability.

cheers!

alana

At 10:26 PM 6/22/03 -0700, you wrote:

>Hi, my name is Donna, I am a single parent with 2 teenagers - 18 year old

>Joe and 16 year old . has SMA II. She is very smart and funny

>and makes our life very special. I was searching for a group that might

>be able to give me some advice about teens. It's hard enough being a

>teenager these days, but being in a wheelchair and having medical problems

>makes things more difficult. Maybe I can find some encouraging words for

>a stubborn girl. I look forward to getting to know you all.

>

>Thank you, Donna

July 9, 2003

, I was at ASBS but did not sign the list. Please send a survey to me.

mew9d@...

Thanks!

Beth Whelan

-----Original Message-----From: [mailto:laura.greiman@...]Sent: Wednesday, July 09, 2003 1:28 AM Subject: HelloHello everyone! My name is Greiman and I am a Registered Dietitian at Sharp Memorial Hospital in San Diego, CA. I work with our Bariatric Program (Lite Futures) part time in addition to working in the hospital. For those of you at ASBS this year, I was the one to volunteer to put together a survey of all dietitians working with Bariatric patients to find out what everyone is doing in terms of protein, vitamins, etc with the hopes of using this information to guide future research and forming national guidelines. My goal is to have this survey out by the end of July from the list of emails obtained at the ASBS meeting. If you were unable to attend, please let me know and I will send you a survey. Thanks!

July 9, 2003

I was unable to attend but would love to see the results of your survey.

Beverly Millison MS RD/LD CDE

Clinical Coordinator, MNT

Medical Center of ville

972-219-5113 - office

972-420-1891 - fax

Beverly.Millison@...

Hello

Hello everyone! My name is Greiman and I am a Registered

Dietitian at Sharp Memorial Hospital in San Diego, CA. I work with

our Bariatric Program (Lite Futures) part time in addition to working

in the hospital. For those of you at ASBS this year, I was the one

to volunteer to put together a survey of all dietitians working with

Bariatric patients to find out what everyone is doing in terms of

protein, vitamins, etc with the hopes of using this information to

guide future research and forming national guidelines. My goal is to

have this survey out by the end of July from the list of emails

obtained at the ASBS meeting. If you were unable to attend, please

let me know and I will send you a survey. Thanks!

July 9, 2003

Hi ,

I was not at the meeting but would be willing to participate int the survey.

, RD

Joslin Center for Diabetes at Mease Countryside hospital

1840 Mease Dr, Suite 104

Safety Harbor, Fl 34695

727 725-6165 or fax 727 725-6215

Thanks,

> Hello

>

> Hello everyone! My name is Greiman and I am a Registered

> Dietitian at Sharp Memorial Hospital in San Diego, CA. I work with

> our Bariatric Program (Lite Futures) part time in addition to working

> in the hospital. For those of you at ASBS this year, I was the one

> to volunteer to put together a survey of all dietitians working with

> Bariatric patients to find out what everyone is doing in terms of

> protein, vitamins, etc with the hopes of using this information to

> guide future research and forming national guidelines. My goal is to

> have this survey out by the end of July from the list of emails

> obtained at the ASBS meeting. If you were unable to attend, please

> let me know and I will send you a survey. Thanks!

>

July 9, 2003

I would like a survey. Thanks.

Heidi Hoover, MS,RD,LD

VA Medical Center (120)

One Veterans Drive

Minneapolis,MN 55417

612-467-2566

Heidi.hoover@...