Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 Hi, . There is a program called K-12, nationally. http://www.k12.com/ Fox news has a piece on it, click on the website if you want to see the clip. Depending on the state, K-12 may be considered a public charter school (have access to credentialed teachers, from home or in classrooms, and a community of friends for social stuff) or a homeschool (if the state has not yet adopted the program). I do not believe that ND has adopted K-12, yet. So, right now, it is probably being used as a homeschool program (pay as you go) in ND. Some of the states, such as Nevada, are in the midst of adopting K-12 as a public charter. I am not sure the status of ND but you might want to google K-12 and call the admistrative office to check the status. It's a reasonable choice for families that do not feel the " brick and mortar " schools meet their children's needs, but they are not comfortable flying solo with homeschooling. mom to Dani, CVID hello I am new to your group I have a daughter who is 4 she suffers from Di Syndrome. She has had 3 open heart surgery's: Interrupted Aortic Arch Type B, ASD, VSD, she has pulmonary stenosis, hypocalceimia, asthma, med allergies, t and b cell defincy's due to an absent thymus gland, port, had a g-tube (that has been removed, they are now considering IVIG therapy's, It's been an open debate. She has hyotonia of legs, seizures and more issues to numerous to add. She is suppose to start kindergarten in the fall now we have a Dr that we see who say's he doesn't want her in a regular classroom to be exposed to illnesses. I have sent for all kinds of homeschool information but I am struggling trying to find = the best homeschool cirriculm for her as she is developmentally delayed. We currently have a Early Childhood Special Ed teacher that comes out to our house, Physical therapy, Occupational therapy, speech therapy for her. Does anyone know of a good homeschool program we are in ND. I have called our local school and not to pleased I don't want to go through them I was considering culvers homeschool cirriculm but am unsure. Please help if you have any ideas of where to start. w (ND) This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. To unsubscribe -unsubscribegroups (DOT) To search group archives go to: /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 hi, Thanks for the help I have been trying to figure out what to do for her next year. Is there anyone on the group that home schools their kids and how do they do the schedule, etc. > > Hi, . > > There is a program called K-12, nationally. http://www.k12.com/ > Fox news has a piece on it, click on the website if you want to see the clip. > > Depending on the state, K-12 may be considered a public charter school (have access to credentialed teachers, from home or in classrooms, and a community of friends for social stuff) or a homeschool (if the state has not yet adopted the program). I do not believe that ND has adopted K-12, yet. So, right now, it is probably being used as a homeschool program (pay as you go) in ND. > > Some of the states, such as Nevada, are in the midst of adopting K- 12 as a public charter. I am not sure the status of ND but you might want to google K-12 and call the admistrative office to check the status. It's a reasonable choice for families that do not feel the " brick and mortar " schools meet their children's needs, but they are not comfortable flying solo with homeschooling. > > > mom to Dani, CVID > > > > hello > > > I am new to your group I have a daughter who is 4 she suffers from > Di Syndrome. She has had 3 open heart surgery's: Interrupted > Aortic Arch Type B, ASD, VSD, she has pulmonary stenosis, > hypocalceimia, asthma, med allergies, t and b cell defincy's due to an > absent thymus gland, port, had a g-tube (that has been removed, they > are now considering IVIG therapy's, It's been an open debate. She has > hyotonia of legs, seizures and more issues to numerous to add. She is > suppose to start kindergarten in the fall now we have a Dr that we see > who say's he doesn't want her in a regular classroom to be exposed to > illnesses. I have sent for all kinds of homeschool information but I > am struggling trying to find = the best homeschool cirriculm for her > as she is developmentally delayed. We currently have a Early > Childhood Special Ed teacher that comes out to our house, Physical > therapy, Occupational therapy, speech therapy for her. Does anyone > know of a good homeschool program we are in ND. I have called our > local school and not to pleased I don't want to go through them I was > considering culvers homeschool cirriculm but am unsure. Please help > if you have any ideas of where to start. w (ND) > > > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > To unsubscribe -unsubscribegroups (DOT) > To search group archives go to: /messages > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 Hi , I've been homeschooling my kids (now 9 & 12) for more than 2 years. My 12 year old has CVID and I started homeschooling because he was sick all the time from the germs being passed around public school. Homeschooling has made an enormous difference in his health. There are tons of curricula available. One of the best places to start is " Homeschooling for Dummies. " It gives a great overview of what is out there. There is very little you need to do with a 5-year-old -- probably far less than an hour a day of traditional schooling. There are lots of ways of learning other than textbooks, especially with the really young kids. Some people follow an " unschooling " approach (based on the beliefs of Holt) which means just following the child's interests and not teaching anything formal. You can also pick and choose between more formal and informal approaches that work for you. I'd say that there were very few positives from having a sick kid ... but homeschooling was definitely one of the few. I love homeschooling! I love the time with my kids and the people we've gotten to know. I never would have attempted it if it wasn't for my son's health problems, but it's turned out to be an incredible blessing! Sue in Phoenix Mom to (12, CVID, asthma, celiac) and Angie (9, celiac) " Education is not the filling of a pail, but the lighting of a fire. " -- Yeats wrote: > > I am new to your group I have a daughter who is 4 she suffers from > Di Syndrome. She has had 3 open heart surgery's: Interrupted > Aortic Arch Type B, ASD, VSD, she has pulmonary stenosis, > hypocalceimia, asthma, med allergies, t and b cell defincy's due to an > absent thymus gland, port, had a g-tube (that has been removed, they > are now considering IVIG therapy's, It's been an open debate. She has > hyotonia of legs, seizures and more issues to numerous to add. She is > suppose to start kindergarten in the fall now we have a Dr that we see > who say's he doesn't want her in a regular classroom to be exposed to > illnesses. I have sent for all kinds of homeschool information but I > am struggling trying to find = the best homeschool cirriculm for her > as she is developmentally delayed. We currently have a Early > Childhood Special Ed teacher that comes out to our house, Physical > therapy, Occupational therapy, speech therapy for her. Does anyone > know of a good homeschool program we are in ND. I have called our > local school and not to pleased I don't want to go through them I was > considering culvers homeschool cirriculm but am unsure. Please help > if you have any ideas of where to start. w (ND) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2007 Report Share Posted January 8, 2007 mbinpa wrote: > > > I have joined this support group because my son is selective IgA > deficient and I could use some guidance with the thoughts of what the > future brings his way. from Dale, Mom to Katy, CVID, age 22 married Welcome Beth! I don't know how much research you've done so far on IgA deficiency or how much your doctors understand about it. Doctor proficiency in the area of PID is extremely varied. So, I want to talk about several things, just so that you have all the information that I know to give you. #1 First of all, we've had some kids diagnosed with IgA deficiency because the doctors checked their IgA and found it to be missing. What they didn't check was their IgG and IgM. That's vitally important to know. Have your doctors checked to make sure that his IgG and IgM are normal. #2 Secondly, research a few years ago showed that a lot of people with IgA deficiency also have low subclasses of IgG. Their total number of IgG is good, but they are missing subclasses. There are 4 subclasses of IgG that are testable at this point. So, if that has not been checked, I highly recommend it. #3 Make sure that he is being re-tested at least yearly, and possibly even every 6 months. When my daughter started losing her immune system at age 11, her numbers were just a little low, then each time we checked they were lower. Every 6 months they kept dropping until we started IgG replacement. If he is just in the beginning stages of this, his numbers may still be changing -- so you need to keep an eye on his test results to make sure that CVID is not developing. #4 Finally, in the testing area, has his titers been checked to his vaccinations? In other words, does his body build a response to pneumovax vaccine, and tetanus or diptheria? That would be important to know -- because sometime all the numbers are okay, but the IgG just isn't working. Then if you've actually had all the necessary testing and are absolutely sure that IgA is the only problem -- prophylactic antibiotics, I believe, is the treatment of choice. Most IgA deficient patients take antibiotics to PREVENT infections and then add more antibiotics when there's a breakthrough infection. Also, the use of nasal rinses (I believe several in the group use the rhinoflow machine)and other preventative stuff can help you reach a quality of life. But it is not unusual to have to " over protect " them from infections. Especially if they are in a bad stage. Each infection weakens their system and if you are just piggy-backing one infection on top of another, that's a sign that you need to watch the outside infection possibilities. It's really hard to isolate and it's extremely hard to watch them be socially deprived. What I can tell you is that it seems to get easier as they get older -- just because they can take those precautions themselves. Finally, remember you are not alone in this. Even though there's no treatment for low IgA and there IS for low IgG, most of our kids have both -- so you are in the right place. So, ask your questions. Be sure and contact the Immune Deficiency Foundation and ask for their Patient and Family Handbook. That number is 1-800-296-4433. That book is free and will be shipped to you at no cost. Hope that helps, In His service, dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 , Where are you at in ND??? I live in Mandan...I have a 4 yo with PID, Not otherwise specified...He has an NK cell defect, hypogamm, selective antibody deficiency.......we are doing SCIG and he has been better.. I don't post much anymore, as we are better, and I am working full time... Let me know if I can help with anything. , Mom to ...as above igh--CAPD, cognitive issues and Kaitlyn and Libby...healthy hello I am new to your group I have a daughter who is 4 she suffers from Di Syndrome. She has had 3 open heart surgery's: Interrupted Aortic Arch Type B, ASD, VSD, she has pulmonary stenosis, hypocalceimia, asthma, med allergies, t and b cell defincy's due to an absent thymus gland, port, had a g-tube (that has been removed, they are now considering IVIG therapy's, It's been an open debate. She has hyotonia of legs, seizures and more issues to numerous to add. She is suppose to start kindergarten in the fall now we have a Dr that we see who say's he doesn't want her in a regular classroom to be exposed to illnesses. I have sent for all kinds of homeschool information but I am struggling trying to find = the best homeschool cirriculm for her as she is developmentally delayed. We currently have a Early Childhood Special Ed teacher that comes out to our house, Physical therapy, Occupational therapy, speech therapy for her. Does anyone know of a good homeschool program we are in ND. I have called our local school and not to pleased I don't want to go through them I was considering culvers homeschool cirriculm but am unsure. Please help if you have any ideas of where to start. w (ND) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 We live in wishek. That's neat you are not too far. Meghan has Di Syndrome, Tcell Defiency, Immune compromised, 3 open heart surgery's port, had g tube, DX: Lung diease, heart disease. seizures, asthma, She has been doing ok until we went back to the University of MN they are talking open heart surgery again, we go back again in April for more tests and possibly IVIG therapy. Still debating it. mom to Matt-6, Meghan-4 1/2, Carly-3. <lmschatz@...> wrote: , Where are you at in ND??? I live in Mandan...I have a 4 yo with PID, Not otherwise specified...He has an NK cell defect, hypogamm, selective antibody deficiency.......we are doing SCIG and he has been better.. I don't post much anymore, as we are better, and I am working full time... Let me know if I can help with anything. , Mom to ...as above igh--CAPD, cognitive issues and Kaitlyn and Libby...healthy hello I am new to your group I have a daughter who is 4 she suffers from Di Syndrome. She has had 3 open heart surgery's: Interrupted Aortic Arch Type B, ASD, VSD, she has pulmonary stenosis, hypocalceimia, asthma, med allergies, t and b cell defincy's due to an absent thymus gland, port, had a g-tube (that has been removed, they are now considering IVIG therapy's, It's been an open debate. She has hyotonia of legs, seizures and more issues to numerous to add. She is suppose to start kindergarten in the fall now we have a Dr that we see who say's he doesn't want her in a regular classroom to be exposed to illnesses. I have sent for all kinds of homeschool information but I am struggling trying to find = the best homeschool cirriculm for her as she is developmentally delayed. We currently have a Early Childhood Special Ed teacher that comes out to our house, Physical therapy, Occupational therapy, speech therapy for her. Does anyone know of a good homeschool program we are in ND. I have called our local school and not to pleased I don't want to go through them I was considering culvers homeschool cirriculm but am unsure. Please help if you have any ideas of where to start. w (ND) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Hey Olivia, my name is . Have I met you before? If not, HI!!! I don't know anything about Hip Dysplasia so I will try to help out with scoliosis! No, not all scoliosis is progressive. The majority of infantile scoliosis cases resolves spontaneously (without any intervention) It is only a small number whose curves progress. There is also congenital scoliosis, meaning the child was born with the condition. A diagnosis for progressive scoliosis can be acheived in three months by measuring the RVAD (Rib Vertebra Angle Difference) though no one in Australia uses this amazing technique just yet. Progressive Scoliosis as I understand it is not painful. The hospital stay for a distraction is generally only one day. The day before you will have pre-admission, get x-rays taken etc. The kids fast approx 12 hours before, and the actual procedure takes around 1 or 2 hours. Usually you get to go home the same day. Hope that helps! Love > > Hello , > I had a couple questions to ask,if anybody can help me out. I would greatly appreciate it. > 1.Is it harder to correct them when the baby has scoliosis and hip dysplacia? > 2.Is all scoliosis progressive? > 3.Do they feel any pain with scoliosis or hip dysplacia? > 4.How long do they have to stay in the hospital when they get a cast put on? > > Thank You! > Olivia & Atiana > > > > Love, > Olivia G.Ruiz > > > --------------------------------- > Access over 1 million songs - Music Unlimited. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Olivia, Try emailing Hansen...she is Lily's mom. Lily has the hip displasia as well. I'm in a rush and will respond to your other questions when I get back later today. Noelle (12-2-01) Ian (8-15-04) Hello Hello , I had a couple questions to ask,if anybody can help me out. I would greatly appreciate it. 1.Is it harder to correct them when the baby has scoliosis and hip dysplacia? 2.Is all scoliosis progressive? 3.Do they feel any pain with scoliosis or hip dysplacia? 4.How long do they have to stay in the hospital when they get a cast put on? Thank You! Olivia & Atiana Love, Olivia G.Ruiz --------------------------------- Access over 1 million songs - Music Unlimited. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Hello , Thank you so much for taking the time to write me back. All the little things you and the other girls tell me are very helpful to me.I'm so new to this and I get kinda freaked out about all of it.I wish our appointment would come sooner I'm so tired of waiting.It seems like she kinda got a lil more crooked.Her head is tilting a little bit more to the side now.Well again thank you so much for your time. Olivia & Atiana moniquetiagarcia <moniquetiagarcia@...> wrote: Hey Olivia, my name is . Have I met you before? If not, HI!!! I don't know anything about Hip Dysplasia so I will try to help out with scoliosis! No, not all scoliosis is progressive. The majority of infantile scoliosis cases resolves spontaneously (without any intervention) It is only a small number whose curves progress. There is also congenital scoliosis, meaning the child was born with the condition. A diagnosis for progressive scoliosis can be acheived in three months by measuring the RVAD (Rib Vertebra Angle Difference) though no one in Australia uses this amazing technique just yet. Progressive Scoliosis as I understand it is not painful. The hospital stay for a distraction is generally only one day. The day before you will have pre-admission, get x-rays taken etc. The kids fast approx 12 hours before, and the actual procedure takes around 1 or 2 hours. Usually you get to go home the same day. Hope that helps! Love > > Hello , > I had a couple questions to ask,if anybody can help me out. I would greatly appreciate it. > 1.Is it harder to correct them when the baby has scoliosis and hip dysplacia? > 2.Is all scoliosis progressive? > 3.Do they feel any pain with scoliosis or hip dysplacia? > 4.How long do they have to stay in the hospital when they get a cast put on? > > Thank You! > Olivia & Atiana > > > > Love, > Olivia G.Ruiz > > > --------------------------------- > Access over 1 million songs - Music Unlimited. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Hi Olivia, that's fine! When is the appointment? I know how helpless it feels waiting for a specialist appointment, all the while watching your childs spine get worse. Have you got any exercises to strenghten the back in the meantime? If not, I can send you some ideas that s physio arranged for . They are fun and can be done in your lounge room. They were designed to strenghten the back and torso. I've also got exercises to help with torticollis. (The neck) Let me know and I can post them to you or email. Hang in there. You're doing wonderfully! Love > > > > Hello , > > I had a couple questions to ask,if anybody can help me out. I > would greatly appreciate it. > > 1.Is it harder to correct them when the baby has scoliosis and > hip dysplacia? > > 2.Is all scoliosis progressive? > > 3.Do they feel any pain with scoliosis or hip dysplacia? > > 4.How long do they have to stay in the hospital when they get a > cast put on? > > > > Thank You! > > Olivia & Atiana > > > > > > > > Love, > > Olivia G.Ruiz > > > > > > --------------------------------- > > Access over 1 million songs - Music Unlimited. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 Hi Olivia, , Lily's mom. has experience with scoliosis and hip dysplasia. Hopefully she'll chime in. I'm sure everyone else has answered all the other questions for you. Olivia Ruiz <oliviagruiz2006@...> wrote: Hello , I had a couple questions to ask,if anybody can help me out. I would greatly appreciate it. 1.Is it harder to correct them when the baby has scoliosis and hip dysplacia? 2.Is all scoliosis progressive? 3.Do they feel any pain with scoliosis or hip dysplacia? 4.How long do they have to stay in the hospital when they get a cast put on? Thank You! Olivia & Atiana Love, Olivia G.Ruiz --------------------------------- Access over 1 million songs - Music Unlimited. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 Hi , My appointment isn't till next Wednesday on the 17th. No I haven't got anything from the doctors! I would love if you could email me some excersises to do with Atiana. I would greatly appreciate it. Olivia & Atiana moniquetiagarcia <moniquetiagarcia@...> wrote: Hi Olivia, that's fine! When is the appointment? I know how helpless it feels waiting for a specialist appointment, all the while watching your childs spine get worse. Have you got any exercises to strenghten the back in the meantime? If not, I can send you some ideas that s physio arranged for . They are fun and can be done in your lounge room. They were designed to strenghten the back and torso. I've also got exercises to help with torticollis. (The neck) Let me know and I can post them to you or email. Hang in there. You're doing wonderfully! Love > > > > Hello , > > I had a couple questions to ask,if anybody can help me out. I > would greatly appreciate it. > > 1.Is it harder to correct them when the baby has scoliosis and > hip dysplacia? > > 2.Is all scoliosis progressive? > > 3.Do they feel any pain with scoliosis or hip dysplacia? > > 4.How long do they have to stay in the hospital when they get a > cast put on? > > > > Thank You! > > Olivia & Atiana > > > > > > > > Love, > > Olivia G.Ruiz > > > > > > --------------------------------- > > Access over 1 million songs - Music Unlimited. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 Hi Bert, You already know I have something to say about this... heehee... <<It is important as I know that while Bridget does have Ehlers Danlos (probable) and one wedge shaped vertebrae and a leg length difference Dr D still calls her scoliosis idiopathic with contributing factors.>> My guess is (this is a non-scientific, lay-person speaking) that the wedge hemi is not the CAUSE of the scoliosis. Bridget's scoli is a total, full spine scoli, not just an isolated scoli caused by the wedge. So, because the wedge is not causing the scoli, it is idiopathic because there really isn't a cause, not congenital. The connective tissue disorder (CTD) means the scoli is a symptom of the CTD. Maybe to some it could be classified as an " other " scoliosis (not congenital nor neuromuscular, which are the two main groups they use). Basically her scoli is just what Dr. D said - " idiopathic with contributing factors " that make the scoli more prominent/pronounced. How's that for confusion? Carmell Mom to Kara, idiopathic scoliosis and hypothyroidism, Blake 16, GERD, and Braydon 11, VACTERL-congenital scoliosis (fusion surgery 5/96), VEPTR patient #137 (implant 8/01), Thoracic Insufficiency Syndrome (TIS), rib anomalies, missing coccyx, fatty filum/TC (released 4/99 & 12/06), anal stenosis, chronic constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney, ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic bladder, dysplastic right leg w/right clubfoot with 8 toes (repaired 2/96, 3/96, 1/97, 3/04), tibial torsion, 4cm length discrepancy-wears 3cm lift, pes cavus, SUA, GERD, Gastroparesis, etc. http://carmellb-ivil.tripod.com/myfamily/ Congenital scoliosis support group CongenitalScoliosisSupport/ ________________________________________________________________________________\ ____ Cheap talk? Check out Messenger's low PC-to-Phone call rates. http://voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2007 Report Share Posted January 15, 2007 Thanks Carmell, And, as usual, you really have a way of explaining the confusing in simple terms. It really is just as you say and Bridget's scoliosis falls into a " grey " area. However the combination of casting and bracing is working well for her so far as well as exercise so we are achieving our goal of trying to avoid surgical intervention at this stage. Whether or not the contributing factors allow her to be permanently corrected is still anybody's guess. We will wait and see. OUr Summer holidays arr drawing to a close here and our new school year starts at the end of this month. As a teacher and a mum I love school holidays, they will soon be over. Love Bert Carmell Burns <cjbmom23@...> wrote: Hi Bert, You already know I have something to say about this... heehee... <<It is important as I know that while Bridget does have Ehlers Danlos (probable) and one wedge shaped vertebrae and a leg length difference Dr D still calls her scoliosis idiopathic with contributing factors.>> My guess is (this is a non-scientific, lay-person speaking) that the wedge hemi is not the CAUSE of the scoliosis. Bridget's scoli is a total, full spine scoli, not just an isolated scoli caused by the wedge. So, because the wedge is not causing the scoli, it is idiopathic because there really isn't a cause, not congenital. The connective tissue disorder (CTD) means the scoli is a symptom of the CTD. Maybe to some it could be classified as an " other " scoliosis (not congenital nor neuromuscular, which are the two main groups they use). Basically her scoli is just what Dr. D said - " idiopathic with contributing factors " that make the scoli more prominent/pronounced. How's that for confusion? Carmell Mom to Kara, idiopathic scoliosis and hypothyroidism, Blake 16, GERD, and Braydon 11, VACTERL-congenital scoliosis (fusion surgery 5/96), VEPTR patient #137 (implant 8/01), Thoracic Insufficiency Syndrome (TIS), rib anomalies, missing coccyx, fatty filum/TC (released 4/99 & 12/06), anal stenosis, chronic constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney, ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic bladder, dysplastic right leg w/right clubfoot with 8 toes (repaired 2/96, 3/96, 1/97, 3/04), tibial torsion, 4cm length discrepancy-wears 3cm lift, pes cavus, SUA, GERD, Gastroparesis, etc. http://carmellb-ivil.tripod.com/myfamily/ Congenital scoliosis support group CongenitalScoliosisSupport/ __________________________________________________________ Cheap talk? Check out Messenger's low PC-to-Phone call rates. http://voice. --------------------------------- Don't be flakey. Get for Mobile and always stay connected to friends. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2007 Report Share Posted January 25, 2007 Hi Carol! Welcome to this wonderful group. You will find lots of people to motivate you here. Knowing that you have to post your workout makes you get up and do at least a little something. That's wonderful that you've been married for 19 years and have 3 wonderful sons. My youngest will be graduating, this year as well, and I have a 20 year old who is out on her own. Your son's graduation will be so special, they all look so good in their suits and grad gowns you feel so proud. I've heard a lot about the Turbo Jams and that they are good workouts. I'm so tempted to get one off eBay to see if I like it, trouble is I probably will and will want the whole set! Walking is good exercise too, your dog is a great workout partner for that. Like you most of my weight is on my belly, thighs and hips, bottom heavy I guess is what they call it. I'm not an expert, but there aren't any specific exercises to loose abdominal fat, that needs to be taken care of with diet. Of course weight lifting will build muscles which will burn more calories. I found that I lost about 10 lbs a couple of years ago, when I cut sugar out of my diet. Sorry I can't tell you how long that took I should have kept track, but I do know you can significantly change the way your body looks in a few months. Good luck to you, and it's nice to meet you. I look forward to hearing about your workouts. Kerry Carol wrote: | Hi everyone! | | I am new to this group. I really need something to keep me on track as | far as working out and think this group will help. | | A little bit about me, I am 37, married for 19 years, and have 3 sons | (18,15, and 6). I would like to lose 15 pounds by my sons graduation | in May. I have had the Turbo Jam videos for a while, but never stuck | to them. Yesterday I did the Ab Jam for the first time. I liked it | and felt like I was able to keep up fairly well, although I did follow | the " low intensity " girls. Then I took the dog to the park and we | walked about 3 miles. I love to walk! | | Most of my weight is sitting on my belly. DS6 thinks I am going to | have a baby! Any suggestions for losing belly fat and toning up the | abs? How often should I do the Ab Jam workout to see results. I plan | to keep walking at least 2 miles a day and will shoot for 3 miles--just | depends on the weather and my schedule. Also, my abs are not sore this | morning, should they be? | | Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2007 Report Share Posted January 28, 2007 hi carol !! welcome to the group, it is nice to meet you here. im carolyn, age 43, in ontario canada. ive been out with a cold for the last 4 days so im sorry that im late in welcoming you. > Any suggestions for losing belly fat and toning up the > abs? it all comes down to a well-rounded health/fitness program -- burn more calories than you consume by eating a healthy diet and doing cardio, strength training and flexibility training. belly fat is no different than fat anywhere else on the body. you cannot spot reduce it. > How often should I do the Ab Jam workout to see results. ab jam is a good workout and is great for gaining strength in the core and will tighten things up a bit... i would alternate the standing and floor segments each day... or do the whole workout 3 times a week... it is hard to say what would work best for you, everyone is different. you should experiment to see what you need to do. also, it helps to have a variety of workouts to do. i would get bored just doing ab jam all of the time, and after a while your body will adjust to it. > I plan > to keep walking at least 2 miles a day and will shoot for 3 miles that is very good... walking is great exercise. be sure to keep it challenging though by increasing your pace, pumping your arms, lengthening the duration. i enjoy using audio workouts while walking... either fast music or coached workouts. >Also, my abs are not sore this > morning, should they be? are you concentrating on holding your abs tightly while you are doing your ab workout? think of bringing your belly button in towards your spine and then pulling up on it a bit... attempt to hold this for the whole workout. also tighten your abs while walking and throughout the rest of your day. :*carolyn. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 > > I am new here and looking for some advice. My daughter is 2 and has > been recieving therapy for sensory integration, speech delays and > motor issues. She is starting to talk, but has frequent long fits and > is very difficult to calm down. She repeats one word over and over and > if I do not understand it she will have a melt down. She also seems to > like to bang her head and run into things. She will hit them hard > enough to bruise and doesnt seem phased by it. She is registering a > 6-8 month delay in most areas. Recently her OT has been commenting > that we might want to have her evaluated for autism. I wasnt sure how > I go about this, my fear is that she will either be wrongly diagnosed > with it, or wrongly diagnosed that she doesn't have it. > > I guess I am just trying to see if this sounds like we might be > dealing with autism and looking for any advice or tips. I am finding > it so hard dealing with her daily, she requires so much attention. > thanks! > I'm sure this reply is a little late to help you but I went through something similar. When my son was 2 they tested him for everything from deafness to a disorder where he can't feel pain. Even though autism was not the answer we wanted at least we got an answer finally. My prayers are with you because although the diagnoses is hard, not knowing was harder. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 first off here is what i answered another mother worrying about having another baby after a child with autism I AM A 35 YEAR OLD MOTHER OF 4 KIDS MY OLDEST IS AGE 15( A SON) ,MY NEXT 2 KIDS (BOTH SONS) ARE 13,11 THEY ARE BOTH HF AUTISM,MENTAL RETARDATION AND A FEW OTHER THINGS FOR THE ONE. WELL BEFORE I HAD MY 4 TH CHILD SEVERAL PEOPLE WOULD TELL ME THEIR THOUGHTS ON MY HAVING ANOTHER KID MOST WERE GOOD THOUGHTS BUT ONE STOOD OUT AT ME .SHE TOLD ME I SHOULDNT HAVE ANYMORE CUZ LOOKING AT THE 2 BOYS I WILL PROLLY HAVE ANOTHER CHILD LIKE THAT AND IT WOULD BE TO HARD TO HANDLE .I KNOW SHE MEANT WELL THINKING ABOUT ME NOT BEING ABLE TO HANDLE 3 SPECIAL NEEDS KIDS ,BUT TO FEAR HAVING ANOTHER CHILD FOR A "MAYBE" FEAR .THERE ARE NO GUARANTEES ANYONE WILL HAVE A HEALTHY PERFECT CHILD . I KNOW IT IS A WORRY I KNOW I PRAYED EVERYNIGHT PLEASE GOD DO NOT HAVE HER HAVE ANY DISORDERS WELL MY 4 TH CHILD CAME AND MY PRAYER WAS ANSWERED SHE IS DEVELOPING GOOD SHE IS 4 NOW SHE IS VERY SMART AND ALERT AND QUICK TO LEARN .IF I WOULD OF LISTENED TO THAT WOMAN AND NOT HAVE ANOTHER I WOULD NOT KNOW THE JOYS OF HAVING MY DAUGHTER . as to the schooling just do what you think is best for your son if that is home schooling then do it .as to long term it may get harder .not sure what to say . you can go to a special needs school . well you can vent all you want it is what we are here for to listen and to help if we can . good luck Hello Hello,I am not sure if anyone is still here that was last year. A few years ago I thought my son was Aspergers... .but the doctor diagnosed him with sensory integration disorder until 2 weeks ago. Now, he is pdd-nos. I am told that he presents as an aspergers child but that he had a speech delay....so for now he is pdd-nos.I have been homeschooling my son since November. He is 6 1/2years old.He was doing fantastic in school in September, so without changing the IEP they put him in recess and the cafetaria. Needless to say, he fell apart quickly. I asked the staff if a child was in need of an artificial leg....and walked well on it; do they remove it without a PPT????????? ????????? ?They never believed that he was autistic because "he knows better" and "he is so high functioning" .....should be music to my ears but it makes me sick instead. It implies that either he is "BAD" for the fun of it or because I don't parent correctly... ..even though I have two other children who don't take off their clothes and scream when overloaded.So they wanted to place him in a small enclosed classroom that was...well, to make this short- UNBELIEVABLE.SO now we are homeschooling.Caleb(my son) is doing INCREDIBLE. Learning quickly, socializing better....fewer meltdowns and noncompliance. ....(they are almost totally gone)Me, I am a little tired.....I work 4 days a week (weekends) in a residential treatment facility for teenagers... .I have a 19 year old in college...and a 3 year old. My 15 year old foster son blew out of our house last night, taken by cops to the hospital from his extended day program. He was diagnosed bipolar and conduct disorder.... .and refuses to take his meds I am grieving his leaving us....we can't keep him safe when he doesn't take his meds and see his clinician.I just found out 2 days ago that I am 5 weeks pregnant.I am very very tired.I worry about having another miscarriage, I worry about the child being autistic and more difficult than Caleb....I don't have any time to myself and would love to go out with "the girls" but with our schedule, there is never an evening free and there isn't really of group of "the girls" anymore..... over time my focus became different than theirs.I must sound like a nut, I just need to vent with people that understand.. .........Does anyone else homeschool? When I was reading about the bullying and fighting for IEP stuff, it made me exhausted. I have been fighting the school and attending PPTs since Caleb was 4....I can't fight them and have enough energy for Caleb. Homeschooling is easier for me for now...but I wonder about the long term......Did anyone else have children after a diagnoses of autism? I have a 3 year old daughter that doesn't dislpay any symptoms so I should not worry; I just can't help it. I know that there is some kind of genetic link to autism. Should've thought about that before I got pregnant.... .....but don't get me wrong we are also happy to be adding to our family...more than we worry.thanks for letting me vent,Jane Want to start your own business? Learn how on Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 Hi Joe, Welcome to the group, I am interested in both Neurofeedback and wondered if you could email me offline please at carolinetraa@.... Regards Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2007 Report Share Posted January 30, 2007 Hi Jane, I can see why you are exhausted. You certainly have a lot on your plate! My son, 14, Asperger's, has been Home Schooled since he was 10. It has worked out well for us. After just a year and a half of dealing with the Public School environment, which was never going to work for our son, we brought him home. I had to undo lots of problems including Ps. methods, or lack of, when it comes to math. My son can now add or multiply numbers in the thousands, where as in fifth grade he had to think about 4+5. Keep him home until another option opens up. Possibly in new school will open in your area. Good luck, Gail A. I have been homeschooling my son since November. He is 6 1/2years old. Does anyone else homeschool? When I was reading about the bullying and fighting for IEP stuff, it made me exhausted. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2007 Report Share Posted January 30, 2007 Hi Jane, Carol and Gail I am a mother of a 9yr old Aspie that has current social issues going on at school. I read your post. I don’t want to make anyone exhausted here by giving you the details etc. I merely want your perspective. I know it’s a choice (public/home school) based individualized and personal opinion of the child. At the same time I am keeping in the back of my head a few things that concern me. I also know public school causes problems socially and works on the self esteem when in a public school. (I know this too well). All kids with Aspergers have this problem. However, I would like to know what your thoughts are and what ways do you get your child into “social” environments. I have this nagging thought if I take my son out of school, home school or private school (which is rare here) how will he adapt to life outside school if he is home schooled? I know some home schools have social activities but it’s not the same as a daily class room. I know that’s a part of Autism and a choice everyone has the option to choose, I do not down grade it what so ever, I am just trying to understand and clear my head of a few things that concern me. I think if I subject him to the general public and public situations maybe he learns to “mimic” but taking further steps in preventing just mimicking and actually learning what it takes to make friends, keep them etc., keeping him interested in school work. I think I would have the same issue as getting him focused at home than being in an environment to learn. Atleast there is one point for public school; he knows what he goes there for. As for me, (not everyone) I think that would be as big of a headache itself because what the teachers do is teach. Usually the issues of school that I have found is other kids, lack of understanding from there teachers. The key here is: getting them focused, the teachers, principle and parents as a “team” (which is what an IEP is) to work closely and come up with solutions and new ideas to adjust. To be honest, the first school my son attended, the teachers did NOT get it. The teachers are part of the general public. Aspies need to be socially equipped (taught) which is what all Aspies need in the long run. I also think this comes from an outside source such as social groups, home and school. Maybe I am wrong but, if we want our kids to be as normal as normal gets, then I say it’s just as much work to home school. I believe the earlier the better for these kids in social environment because if you take them out now of public schools (again not for all Autistic kids) then how do we expect them to adapt to the public after home school? IN all cases, I believe having “troubles” at school is not always the Childs fault, it’s the lack of understanding, communication that the teachers. Which brings me to this point, if we all keep our kids home (and I’M not saying you should or anyone else should) then the knowledge of Aspergers/Autism still doesn’t get attention. In my community the serious lack of knowledge is horrible! This may play a part in my thinking to. I don’t want my son to go through horrible situations just to make the public aware, I just think that when it comes to public schools they need to make adjustments, such as having teachers that completely understand autism. Public schools can be a great place if it’s handled properly and parents and their children are the ones that start this when you sit down at a school meeting. My point im trying to make is not all about public awarness but more of a question of what parents think of home schooling vs/ public schools and if home school is the chosen factor, then what measures are they using to become socially adapted is it better to “suffer through” the ever ending cruelness of kids or for that matter the general public if we hold our kids back from the public then include them in at a later date to the public do they think that the child/adult can over come such obstacles because now you are dealing with something new and maybe or maybe not socially adapated. I think people adapt to their surroundings and if a person has a problem doing so than you fix it the best way you can. I hope I am making myself known…it’s hard what Im trying to say. My son is aspergers with High IQ and in all fairness if you didn’t have a child with this disorder and he appears very smart you would hold him accountable for his actions. You would know no better. That’s how the general public see’s these kids, at least mine. I know that now and if weren’t for school maybe I wouldn’t know that to this day. It works on their self esteem for sure, but I would rather it work on there self esteem and guiding them along, getting the help that is needed, and at the same time be in a public environment while doing so. If it gets too much for him to handle, then I will go seek schools or home school. We have had our share of issues with the school but in the long run, I see it has been beneficial as well. I believe we would face the same problems outside of the school setting only because he is who he is- An Aspergers child. Yes, we had trouble in school we moved on from that school. What troubles do you have when home schooling I would like to out weigh the two for my own concerns. We held a law suit and won. I at the time didn’t know about the laws worked or even knew some existed. We were newly diagnosed, and I found it difficult. However, if I didn’t go through this I wouldn’t have learned a lot, it inspired me to read more, to advocate for my child, to know what I was talking about. I was the only one whom knew my son best. It forced us to move mountains, take action and make a difference for him and further more the next child at that school. The school has now become the hung It was a lot to learn and a lot to go through all at the same time. The things I learned is that so many people didn’t know or how to handle my son. He was different but yet highly intelligent. OF course they thought it was a behavior problem when he didn’t do his work etc. That alone gave me tools in how to deal with him. In other words there is a team that is also teaching you things you didn’t even know, maybe eventually you would have saw it, but its great to have everyone looking, grading, expressing their concerns and it may be that are a few flogs along the way, which you really expect after all nobody is perfect and your child is dealing, copying with issues nobody truly understands but him/her. I believe with my child (not everyone’s, and at this point in our lives) it is important for him to be in public. To be in an environment which he can learn by: and a variety of lessons being taught with appropriate adjustments that I ask for or sometimes it’s the teacher’s idea, principle. The school did a series of tests and determined he had problems in first grade. I thought my son was just grieving-his father died in K-1, I remarried and two years later he was becoming a big brother for the first time. We still struggle through the social issues which we are still working on. I believe not early intervention is a key but I also believe if our kids aren’t in an environment to also learn from others as the same age etc. Then the kids don’t get the chance to learn unless you take them out and have some form of social groups/school setting environment, so that they can be with their peers. Yes it is difficult but I think it’s one people over look. Maybe they child can’t cope at the moment with being in a class room/public but with intervention it’s highly possible they can reach their goals. I think it may take longer to do so, if the setting is in the home. Only my opinion, If there is something out there I do not know of…please fill me in. I have often wondered if I am doing the right thing, I guess you can say I am struggling within myself. I truly want the best for my child as any mother would. As someone has told me before, if he is going to have Autism, than aspergers is the thing to have, he can function and will be able to function with these tools…..etc. Please don’t think I am being negative of your choice of home schooling, it’s just raised some questions in my head I am contemplating. I am basically thinking out-loud. Please let me know what you think. Please help my cluttered mind!!!!! Deborah (Gotta Love Me) From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of lilies@... Sent: Monday, January 29, 2007 8:51 PM To: Autism and Aspergers Treatment Subject: RE: Hello Hi Jane, I can see why you are exhausted. You certainly have a lot on your plate! My son, 14, Asperger's, has been Home Schooled since he was 10. It has worked out well for us. After just a year and a half of dealing with the Public School environment, which was never going to work for our son, we brought him home. I had to undo lots of problems including Ps. methods, or lack of, when it comes to math. My son can now add or multiply numbers in the thousands, where as in fifth grade he had to think about 4+5. Keep him home until another option opens up. Possibly in new school will open in your area. Good luck, Gail A. I have been homeschooling my son since November. He is 6 1/2years old. Does anyone else homeschool? When I was reading about the bullying and fighting for IEP stuff, it made me exhausted. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2007 Report Share Posted January 30, 2007 Sure. I will....Also, The latest issue of the open access journal- the > Journal of Early and Intensive Behavioral Intervention is now available > online at www.behavior-analyst-online.org It has a wonderful article on self > injury and childrenw ith autism. > Joe ---------------------------------------------------------------------------- --\ This electronic message contains information that may be legally confidential and/or privileged. The information is intended solely for the individual(s) named above and access by anyone else is unauthorized. If you are not the intended recipient, any disclosure, copying, distribution, or use of the contents of this information is prohibited and may be unlawful. If you have received this electronic transmission in error, please reply immediately to the sender that you have received the message in error, and delete it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2007 Report Share Posted January 30, 2007 Thanks for the input. I am “thinking” and you answered a lot of my issues. We (my husband & I) are talking about we are doing the right thing or not. My son has been going to a new school since Feb. 2005. There have not been many issues up until recently. The move here has done wonders for my son, the new school things were super until recently. I assumed everything was going well and I should have known better. The other kids in the class by now know him to well and have found that wasn’t good enough, now he is teased and bullied. Now I’m trying to figure out how to handle this one. I just hope it’s not too late. I do not want the same issues we had in the past at the other school. I just don’t know what is right anymore. I don’t think he would enjoy home school and with me it’s hard to get him to budge. It’s like pulling teeth and that annoys me. I don’t think home school for him would do either one of us a great deal of good. Now, if there were a tutor maybe. In our area it’s a joke. There isn’t anything here that I know of for Aspies. The general public has NO clue and often tells me “he isn’t autistic”. (Were they were expecting to see rain man)? It’s harder for my son because of his intellect (as I am sure for many aspies) but the other things associated with intellect is missing so they think it’s a behavior issue. (At the old school especially, didn’t get it, they never would because-they didn’t have too, but if it were there kid they would want to know everything about it) For starters I have talked to our Doctor (behavioral specialist) we also have issues with him completing his work. Doesn’t care if he is barely passing when I know he can make an A in each subject. “Its still passing mom, what does it matter”? So the plan of action is we are going on a “chip” system. We have done with this specialist before but on a different level. Then the system was to get him to do homework, bath and anything that we had a problem with at the time. This worked with my son, being rewarded made him take the efforts to do so. When we moved, we moved into a neighborhood which he had tons of friends, new school and they were great so we soon did not need the chip system anymore nor did we go back to the behavioral specialist. We didn’t need the doctors anymore at that time with their blessings, the neurology doctor had written a letter for the school which read: Devin is a nine year old young man with long standing history of previous language difficulties, early social delays, as well as obsessive/compulsiveness and fix table behaviors. Over time Devin has made excellent progress and has continued to improve. It is felt that Devin has pattern of residual mild asperger’s syndrome that, with appropriate intervention, is progressing quite nicely. He is not taking any medication at this time but does need ongoing modifications of services in the classroom. We didn’t go to his neurology doctor (an hour away) nor did we see the local behavioral specialist due to the fact he was doing so well. Until recently, I wanted my son to have the right social skills and took it upon myself to make an appointment with our behavioral specialist now that everything was calmed down and going well. So I thought, we had been to a total of two meetings with the doctor and I find out a few thins from my son. Now he wants to move, says everyone hates him. The specialist now is conforming to the school and will be adding social statements to the check off sheet which is the same check off sheet the school is to do from class to class; he is in the ACE program, special math and speech. My son is all over that elementary school and sometimes that alone makes it hard. With the new chip system if he brings home a good (this was just added to his IEP) report from EACH class, it is a check off list the teacher fills out. Did he complete his work, did he follow directions, did he work well in a group, did he keep his hands to himself etc. in return he brings these home and according to his reports if they are good, then he receives a (poker) chip this allows him time on his favorite past time- computer. I just wondered if this is right for him and if we should continue inside the school. If we don’t do home school than our option is put him into a private school. Which we probably couldn’t afford and I don’t know any here that is appropriate for his needs. IM still just as confused…. Thank you again. From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of lilies@... Sent: Tuesday, January 30, 2007 6:51 AM To: Autism and Aspergers Treatment Subject: RE: Hello -----Original Message----- From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of Barry Hitchcock Sent: Monday, January 29, 2007 11:17 PM Autism and Aspergers Treatment Subject: RE: Hello Hi Jane, Carol and Gail I am a mother of a 9yr old Aspie that has current social issues going on at school. I read your post. I don’t want to make anyone exhausted here by giving you the details etc. I merely want your perspective. I know it’s a choice (public/home school) based individualized and personal opinion of the child. At the same time I am keeping in the back of my head a few things that concern me. I also know public school causes problems socially and works on the self esteem when in a public school. (I know this too well). All kids with Aspergers have this problem. However, I would like to know what your thoughts are and what ways do you get your child into “social” environments. I have this nagging thought if I take my son out of school, home school or private school (which is rare here) how will he adapt to life outside school if he is home schooled? I know some home schools have social activities but it’s not the same as a daily class room. ***********Hi Deborah, well, if the daily classroom just doesn’t work for an individual why leave them there to suffer, especially a child. I spent a lot of time in daily classrooms and I wouldn’t call it a great place to learn ‘social behavior’. Pushing, shoving, talking to loud, swearing, mimicking, negative comments. Teaching is to the group, not the individuals needs. Now if the classroom were 8-9 kids who wanted to learn that would be different. My son loves to learn, is very social and academic. Deborah wrote:.” I think if I subject him to the general public and public situations maybe he learns to “mimic” but taking further steps in preventing just mimicking and actually learning what it takes to make friends, keep them etc., keeping him interested in school work. I think I would have the same issue as getting him focused at home than being in an environment to learn. Atleast there is one point for public school; he knows what he goes there for. “ *******************Children learn social skills long before stepping in a school building. I took my son to play groups as well as museums at 2 years old. My son has had a best friend since he was 5, plus a couple others who have come over for years. I put a lot into inviting them, picking them up, activities (the old fashioned kind, like going for a swim in the pond) *********My son knows when it is school time.. He might complain, but he will do what I ask. He is very well behaved, and I am very patient. .. Deborah said.” Public schools can be a great place if it’s handled properly and parents and their children are the ones that start this when you sit down at a school meeting.” **********I’ve been part of those ‘”team” meetings. People are late, unprepared, and forget to carry out their own suggestions. My husband will soon be speaking to the State Board of Education on the situation. Not for our son, he will never go back, but for others. Deborah Said, “My point im trying to make is not all about public awarness but more of a question of what parents think of home schooling vs/ public schools and if home school is the chosen factor, then what measures are they using to become socially adapted is it better to “suffer through” the ever ending cruelness of kids or for that matter the general public if we hold our kids back from the public then include them in at a later date to the public do they think that the child/adult can over come such obstacles because now you are dealing with something new and maybe or maybe not socially adapated. I think people adapt to their surroundings and if a person has a problem doing so than you fix it the best way you can. I hope I am making myself known…it’s hard what Im trying to say.” ******I don’t believe in “suffering through”. Deborah said, “ We have had our share of issues with the school but in the long run, I see it has been beneficial as well. I believe we would face the same problems outside of the school setting only because he is who he is- An Aspergers child. “ ********Sorry, I just don’t agree. I will say Home Schooling is not for everyone. You must be very dedicated and patient with your child. Mine son is 14 and a very nice boy. We are proud of how far he has come. For social and educational activities this week he will attend a class at a museum with 12 other Home Schooled kids, he will attend a cartooning class with 9 other Home Schooled kids, and he will attend a ‘game club’ Sat. with a dozen others (some Home Schooled , some not) where they will play stragedy board games. A pretty social week I’d say. If Public School works for your son, that is great. It just is not working for many, no matter how involved the parent……….Gail A. .. -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.432 / Virus Database: 268.17.14/657 - Release Date: 1/29/2007 9:04 AM -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.432 / Virus Database: 268.17.14/657 - Release Date: 1/29/2007 9:04 AM -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.432 / Virus Database: 268.17.14/657 - Release Date: 1/29/2007 9:04 AM -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.432 / Virus Database: 268.17.14/657 - Release Date: 1/29/2007 9:04 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2007 Report Share Posted January 30, 2007 -Jane, I think we all feel a little nutty..I homeschool my 15 year old Aspergers daughter..I began homeschooling all my children after my son was diagnosed with ADD at age of 5...We pulled him after 2nd grade...He is now 17 and will be going to college, next year....(we suspect he may have more than ADD)..He is very non social and has trouble in unfamiliar situations...All I can say is that life can be difficult, but it it so much less difficult without the public school involved .. I know many people who would disagree, but for us I feel this is the only solution. We get the kids involved with youth group, and get out of the house into the " real world " when we can...I think the diagnosis of Aspergers usually comes when they are older...My daughter wasn't diagnosed until 12...It's always amazing to me how the dianosis keeps getting changed for many children...I really think you know your child the best....It sounds like life is tough for you...I just want you to know you are not alone. There are no easiy answers. I just keep praying and asking God for help and guidance. I am at peace because I know that my husband and I were entrusted with our children for a reason. We just take it one day at a time, and research as we can, and just get up to face a new day...Little victories are usually big in our family..they give us hope...We would never change our daughter, she is a one of a kind!!! God Bless, -- In Autism and Aspergers Treatment , " Jane Majewski " <janemajewski@...> wrote: > > Hello, > > I am not sure if anyone is still here that was last year. A few > years ago I thought my son was Aspergers....but the doctor diagnosed > him with sensory integration disorder until 2 weeks ago. Now, he is > pdd-nos. I am told that he presents as an aspergers child but that > he had a speech delay....so for now he is pdd-nos. > > > I have been homeschooling my son since November. He is 6 1/2years > old. > > He was doing fantastic in school in September, so without changing > the IEP they put him in recess and the cafetaria. Needless to > say, he fell apart quickly. I asked the staff if a child was in need > of an artificial leg....and walked well on it; do they remove it > without a PPT??????????????????? > > They never believed that he was autistic because " he knows better " > and " he is so high functioning " .....should be music to my ears but > it makes me sick instead. It implies that either he is " BAD " for the > fun of it or because I don't parent correctly.....even though I have > two other children who don't take off their clothes and scream when > overloaded. > > So they wanted to place him in a small enclosed classroom that > was...well, to make this short- UNBELIEVABLE. > > SO now we are homeschooling. > > Caleb(my son) is doing INCREDIBLE. Learning quickly, socializing > better....fewer meltdowns and noncompliance.....(they are almost > totally gone) > > Me, I am a little tired..... > > I work 4 days a week (weekends) in a residential treatment facility > for teenagers....I have a 19 year old in college...and a 3 year old. > My 15 year old foster son blew out of our house last night, taken by > cops to the hospital from his extended day program. He was diagnosed > bipolar and conduct disorder.....and refuses to take his meds > > I am grieving his leaving us....we can't keep him safe when he > doesn't take his meds and see his clinician. > > > I just found out 2 days ago that I am 5 weeks pregnant. > > > I am very very tired. > > I worry about having another miscarriage, I worry about the child > being autistic and more difficult than Caleb.... > > I don't have any time to myself and would love to go out with " the > girls " but with our schedule, there is never an evening free and > there isn't really of group of " the girls " anymore.....over time my > focus became different than theirs. > > I must sound like a nut, I just need to vent with people that > understand........... > > Does anyone else homeschool? When I was reading about the bullying > and fighting for IEP stuff, it made me exhausted. I have been > fighting the school and attending PPTs since Caleb was 4....I can't > fight them and have enough energy for Caleb. Homeschooling is easier > for me for now...but I wonder about the long term...... > > Did anyone else have children after a diagnoses of autism? I have a > 3 year old daughter that doesn't dislpay any symptoms so I should > not worry; I just can't help it. I know that there is some kind of > genetic link to autism. Should've thought about that before I got > pregnant.........but don't get me wrong we are also happy to be > adding to our family...more than we worry. > > thanks for letting me vent, > > Jane > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 RE: Hello Thanks for the input. I am “thinking” and you answered a lot of my issues. We (my husband & I) are talking about we are doing the right thing or not. My son has been going to a new school since Feb. 2005. There have not been many issues up until recently. The move here has done wonders for my son, the new school things were super until recently. I assumed everything was going well and I should have known better. The other kids in the class by now know him to well and have found that wasn’t good enough, now he is teased and bullied. Now I’m trying to figure out how to handle this. ***********Hi Deborah, I feel for you, and I really do understand that inner conflict of trying to what is best for your son. I do think you should call the Principal, and tell them what’s going on, and you want it handled. They can talk to the teachers and staff. Also 9 is a tough age. Nine was when my son crashed. Nine is when school work gets more complex, as does the social relationships between kids. We were frantic trying to do what was best for our son at this age. He did not attend the last month of school. In fifth grade he went ½ days and it was still too much. If your son just can’t be in the school, the school has to send in a tutor. Hopefully he won’t get this down and out, I wouldn’t want to see that being necessary. .. If we don’t do home school than our option is put him into a private school. Which we probably couldn’t afford and I don’t know any here that is appropriate for his needs. ************Start really looking around and visiting schools. His present school needs to get on the stick and if they can’t meet his needs, pay for private. This is all emotionally draining. I know. I was so glad to be rid of the whole school scene. Keep us informed and ask any questions….Gail A. -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.432 / Virus Database: 268.17.14/657 - Release Date: 1/29/2007 9:04 AM -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.432 / Virus Database: 268.17.14/657 - Release Date: 1/29/2007 9:04 AM Quote Link to comment Share on other sites More sharing options...
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