Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 Thanks you for the very kind words, you are a sweet young lady ,Stacie !! Re: Hello ,What a sad story, I'm so very sorry. Must have been hard to overcome,if ever. May I ask if your husband's kidney failed as an adverse effect fromhim taking meds, the Amiodarone?Glad you're still with the group. BTW, which do you prefere that wecall you in here, or Cheeky?Janne> > >> > > Hi! And your name is . . . ? Good to hear from you.> > > Bill> > > > > > > > > In a message dated 1/11/2009 8:19:10 A.M. Pacific Standard Time, > > > Cheekyoops@ writes:> > > > > > > > > > > > > > > This list has been very active recently, and it's nice to see new> > people > > > getting advice from so many people here.> > > > > > My husbad was the one with the ICD, but he didn't like computers,> > so I was > > > the one reading and posting here. Sadly, he passed away 2 1/2> > years ago, but > > > I still read all the posts coming through here, but I don't> > participate > > > much.> > > > > > I just wanted to say HI to all the new folks here.> > > > > > > > > > > > ************ **New year...new news. Be the first to know what is> making > > > headlines. (http://www.aol. com/?ncid= emlcntaolcom0000 0026)> > >> >> > > > ------------ --------- --------- ------> > Be sure to visit and use other ZapLife.org services:> > The ZapperBBS at > http://zaplife. org/phpBB2/ viewforum. php?f=1> 1 - Email list forum at> http://health. groups.. com/group/ /> 2 - Email delivery of the Zapper Newsletter at> http://health. groups.. com/group/ 2/> 3 - Email list forum for those involved in ICD litigation at> http://health. groups.. com/group/ 3/> ZapChat - Real time online support group (Thursdays 8PM EST) at> http://www.zaplife. org/chat. html> ZapFAQs - A glossary of ICD/arrhythmia terms and abbreviations at> http://www.zaplife. org/zap4. htm> The ZAPPER Home page at> http://www.zaplife. org/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2009 Report Share Posted March 31, 2009 Hi Jake: I'm new in this group and I realized that I'm on the same page as you regarding my knowledge about making perfume.So please let me know any information that will help you. Regards, Lily Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2009 Report Share Posted April 4, 2009 Kinsey, welcome The best first thing you can do is getting a book by Mandy Aftel called " Essence and Alchemy " Excellent book:) Many in this group has the book. Henk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2009 Report Share Posted April 9, 2009 Kinsey Cumberledge wrote: > I have recently been introduced to natural essential oils and absolutes by a > friend. I received frankincense, rose geranium, sandalwood, peppermint, > cumin, nutmeg, ginger, angelica, cistus and a few others from him. I have > enjoyed smelling them and want to learn more about mixing them in blends for > perfumes and possibly lotions. I do not have previous experience and I have > heard that this is a good group to learn from. I appreciate being able to > join. > > Kinsey > > > Hi Kinsey: Take your time and read through our archives and use the search function for any topics that interest you. I see that Henk recommended Mandy's book, and that's a great start. -- Anya http://AnyasGarden.com http://NaturalPerfumers.com http://twitter.com/anyasgarden Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 Welcome Christy. We too have a ten year old son that started off with a dx. of PDD-NOS. It's basically a label the doctor gives when he knows something is wrong but not sure what. I wish they would just file that label away. Our son is very hard to raise socially. It is a battle everyday but we would'nt change a thing. This is Noah.......http://susanpolgar.blogspot.com/2009/04/smart-moves-for-river-ridge-player.html--- On Tue, 4/7/09, cezzolo <cezzolo@...> wrote: From: cezzolo <cezzolo@...>Subject: HelloAutism and Aspergers Treatment Date: Tuesday, April 7, 2009, 10:37 AM Hi everyone! My name is Chasity. I am a single mommy to a 10 year old son who in 2005 was diagnosed with PDD-NOS. Recently as he has gotten older his Diagonsis has changed slightly to Aspergers. My journey with him has been challenging and oh so rewarding. I am happy to have found this group because at times I have felt very much alone. I am looking to meet and discuss different aspects of day to day life. I have an amazing child who is wonderful and perfect just the way he is. I get angry that people feel as though he should "change" Just because he sees the world differently. I look forward to getting to know you all.Have a great day! Chasity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 Welcome Chasity, I am also new here, and a single mom to a 12 year old aspergers boy. I feel the same way you do, even though my son does have his challenging times. Right now I am trying to find an avenue for my son to meet new friends. Its difficult, not many programs set up where I live for regular social interactions for the kids to just hang out, but Im looking:) Marcy From: cezzolo <cezzolo@...>Subject: HelloAutism and Aspergers Treatment Date: Tuesday, April 7, 2009, 7:37 AM Hi everyone! My name is Chasity. I am a single mommy to a 10 year old son who in 2005 was diagnosed with PDD-NOS. Recently as he has gotten older his Diagonsis has changed slightly to Aspergers. My journey with him has been challenging and oh so rewarding. I am happy to have found this group because at times I have felt very much alone. I am looking to meet and discuss different aspects of day to day life. I have an amazing child who is wonderful and perfect just the way he is. I get angry that people feel as though he should "change" Just because he sees the world differently. I look forward to getting to know you all.Have a great day! Chasity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2009 Report Share Posted April 28, 2009 Hi everyone, I have been around a while but haven't had a chance to introduce myself. My name is Kathy. I am the mom of 3 wonderful boys. My oldest is 14 and diagnosed with Asperger's. We also have 2 " typical " boys ages 8 and 16 mos. We started out with a diagnosis of Sensory Integration Dysfunction and speech delayed at 3yrs old. Then at 6yo. we changed to ADHD. Of course, we can't do OT for sensory issues in school b/c it doesn't affect school work. LOL! We knew that wasn't entirely the correct diagnosis. It took until 6th grade, many different meds and many different professionals before we FINALLY got the diagnosis of Asperger's. Now it is Asperger's, mood disorder-NOS, and ODD. We recently had to hospitalize him b/c he just couldn't control himself. It was the worst experience of my life having to do that, but it definitely helped! We got a new/ old medication that seems to be working (for now.) Just a quick note! Please make sure your other " typical " children also get plenty of attention! They will try to get any attention they can. It doesn't seem to matter if good or bad. We are dealing with issues of not feeling important, loved, etc. from the 8yo. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009 Just wondering if you have any issues with your oldest treating the younger siblings badly. We are having a real issue with our almost 12 year old Aspie blaming everything on his sister. He has always had trouble respecting her personal space. With counseling we were finally able to convince him that she is a real person with her own thoughts and feelings, so that is good. But he still does not respect her space and is always hugging, grabbing ,etc. She is also 8 and I am afraid of this and the mean comments affecting her confidence. I would appreciate any input that anyone has because I can't find any information and we are on a wait list for counseling and can't get in til maybe August. Thanks! Re: Hello Hi everyone, I have been around a while but haven't had a chance to introduce myself. My name is Kathy. I am the mom of 3 wonderful boys. My oldest is 14 and diagnosed with Asperger's. We also have 2 "typical" boys ages 8 and 16 mos. We started out with a diagnosis of Sensory Integration Dysfunction and speech delayed at 3yrs old. Then at 6yo. we changed to ADHD. Of course, we can't do OT for sensory issues in school b/c it doesn't affect school work. LOL! We knew that wasn't entirely the correct diagnosis. It took until 6th grade, many different meds and many different professionals before we FINALLY got the diagnosis of Asperger's. Now it is Asperger's, mood disorder-NOS, and ODD. We recently had to hospitalize him b/c he just couldn't control himself. It was the worst experience of my life having to do that, but it definitely helped! We got a new/ old medication that seems to be working (for now.) Just a quick note! Please make sure your other "typical" children also get plenty of attention! They will try to get any attention they can. It doesn't seem to matter if good or bad. We are dealing with issues of not feeling important, loved, etc. from the 8yo. Big savings on Dell XPS Laptops and Desktops! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2009 Report Share Posted May 2, 2009 barb, i have been trying not to focus on sugars/sweets and try to feed my body what it wants (healthy and satisfying food). but i still have sweets from time to time (twice actually today). hope things are going good for you-let me know. have a great week!!! rachelle > > > > > > Oh yeah! I have ADHD too. > > > > > > > > > __________________ > > > > > > Hey Barb, > > > > > > This might sound crazy, but I find that the breathing that comes with > > > moderately hard exercise relaxing... Such as running or swimming (and > > > biking)... You get into a rhythmn or " swing " and it's very good for my > > > mind/body connection (throw in adrenalin and WHOA!! I'm a happy camper) > > > > > > > > > Hello > > > Posted by: " barbelkin " barbelkin@ barbelkin > > > Tue Apr 14, 2009 3:45 pm (PDT) > > > > > > > > > Hi Everyone, > > > I am new to the group & would like to ask your opinion/advice. I've always > > > wanted to " learn " to meditate, but have never had any success. I like yoga > > > class, but the " mind " connection isn't really there, especially at the end > > > during the relaxation pose. I definitely have adhd & quieting my mind is > > > about the last thing I can do, but probably the thing I need the most. Has > > > anyone had luck with the free meditation program offered on the podcast? > > > , if you are reading this, can you or anyone else tell me if it will > > > work for someone like me who has never been able to relax or follow guided > > > meditation. > > > > > > Thank you so much for any help or info you can provide! > > > Barb > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2009 Report Share Posted May 17, 2009 Hi to all the newcomers and welcome! Bonnie Thoughts become things. Choose the good ones. On May 17, 2009, at 2:32 PM, psychoticrayofsunshine wrote: > Hi everyone! > > I just discovered the IOWL podcasts on Friday and have been > 'healthfully' binging by listening to as many of them as possible to > catch up. 's advice and guidance has already dramatically > improved my outlook on my weight loss goals. > > I'm not just one type of eater: I have binged, grazed, and made > unhealthy choices at various times and intervals over the past 8 > years that have lead to a large increase of weight. For instance, > last fall I put on a good 10 pounds in 2 weeks while finishing > writing and editing my Master's thesis - that's what happens when > you survive on coffee, fast food, and gigantic chocolate bars with > no exercise! I have finally decided to take control of my > relationship with food in a healthy and nurturing way so that I can > be healthy and not only lose the weight, but also keep it from > coming back. > > I'm still very young (25 in a few weeks) and know this is the > perfect time to make such a change in my life. Developing a healthy > relationship with food and my body now will benefit me for the rest > of my (hopefully long!) life. > > I can't wait to get to know other group members and offer you my > support. From what I've read so far, you all seem to be really > wonderful people! > > Best, > K > > > > > > ------------------------------------ > > Copyright 2005-2007. A. s. All worldwide rights > reserved. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2009 Report Share Posted May 18, 2009 You sound so positive and excited!! That's... amazing and I think will really help you with this journey!! Best of luck and keep us all posted!! Â Meg From: psychoticrayofsunshine <kmalbritton@...> Subject: Hello weightloss Date: Sunday, May 17, 2009, 6:32 PM Hi everyone! I just discovered the IOWL podcasts on Friday and have been 'healthfully' binging by listening to as many of them as possible to catch up. 's advice and guidance has already dramatically improved my outlook on my weight loss goals. I'm not just one type of eater: I have binged, grazed, and made unhealthy choices at various times and intervals over the past 8 years that have lead to a large increase of weight. For instance, last fall I put on a good 10 pounds in 2 weeks while finishing writing and editing my Master's thesis - that's what happens when you survive on coffee, fast food, and gigantic chocolate bars with no exercise! I have finally decided to take control of my relationship with food in a healthy and nurturing way so that I can be healthy and not only lose the weight, but also keep it from coming back. I'm still very young (25 in a few weeks) and know this is the perfect time to make such a change in my life. Developing a healthy relationship with food and my body now will benefit me for the rest of my (hopefully long!) life. I can't wait to get to know other group members and offer you my support. From what I've read so far, you all seem to be really wonderful people! Best, K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2009 Report Share Posted June 19, 2009 Have you tried making the kefir cheese..On the you-tube video I saw,the guy was using sheep's milk. I tried the recipe with my goat's milk and it worked great..I looked at the guy's web site and the recipe can be used to make all sorts or cheese from soft to a hard cheese,I turned mine into mozzerella..LJPS hello Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2009 Report Share Posted June 19, 2009 Have you tried making the kefir cheese..On the you-tube video I saw,the guy was using sheep's milk. I tried the recipe with my goat's milk and it worked great..I looked at the guy's web site and the recipe can be used to make all sorts or cheese from soft to a hard cheese,I turned mine into mozzerella..LJPS hello Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2009 Report Share Posted June 19, 2009 do you have the link to the youtube video? > > Have you tried making the kefir cheese..On the you-tube video I saw,the guy was using sheep's milk. > I tried the recipe with my goat's milk and it worked > great..I looked at the guy's web site and the recipe > can be used to make all sorts or cheese from soft > to a hard cheese,I turned mine into mozzerella..LJPS > hello > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2009 Report Share Posted June 19, 2009 do you have the link to the youtube video? > > Have you tried making the kefir cheese..On the you-tube video I saw,the guy was using sheep's milk. > I tried the recipe with my goat's milk and it worked > great..I looked at the guy's web site and the recipe > can be used to make all sorts or cheese from soft > to a hard cheese,I turned mine into mozzerella..LJPS > hello > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2009 Report Share Posted June 20, 2009 No,you can just google kefir cheese,then press on video for the search..LJPS hello> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2009 Report Share Posted June 20, 2009 No,you can just google kefir cheese,then press on video for the search..LJPS hello> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2009 Report Share Posted June 24, 2009 My is 35 and has DS. Last September she stopped menstruating. After a couple of months I took her to our physician about it. The first thing he did was run a pregnancy test, which was negative. Then he ran hormone tests. Sure enough, her hormones were out of whack. I thought it might be premature menopause, but he said no. He is sure it is due to her weight. He said excessive fat can upset one's hormone balance. She has had a couple of periods since then, and she is working on losing weight, with some success. I hope you find a doctor for her soon. granny On Wed, Jun 24, 2009 at 8:16 AM, Robin <sweetickles2001@...> wrote: > > > Hello : > I have daughter who Down Syndrome and she will 31 years old in July 8. I > was wondering if there any one out there daughter that age. If so I have > question . having problem with her Hormone Ok she gets very moody > before her period come . We just Florida and been in Florida 4 years now . > just having that problem since we move to Florida and we didn't any > problems like that when we live Schaumburg,IL OK. I was if any daughter > going thought like . We have problem finding doctor that deal with > Down Syndrome and I give number have yet to find female doctor. If so what > you do for Daughter to get out this stage. We trying to keep her busy at > home because job like where she was working at in Palatine, IL > You can email at robinred1946@... <robinred1946%40mail.com> > Thanks for listen to me and my problems. > Robin Mother to 30 years old and 31 in July 8 > > > > -- Not for ourselves but for the whole world we were born Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2009 Report Share Posted July 11, 2009 (((((((((((((((((((Lesley)))))))))))))))))) Oh, sweet friend....I'm so sorry...so sorry. I know how lonely it can be --- the dates we miss, the parties we don't attend, the fun that sometimes passes us by...you are a wonderful mommy to him...Devin comes first, and that is so obvious. I will pray, pray for you this weeked..."chat" too Love and Blessings, and hugs....... e From: lesley hicks <lesley_hcks@...>autism Sent: Saturday, July 11, 2009 9:22:32 AMSubject: Hello Hey Lady's Just wanted to say hello. I'm feeling a little down today my stepdaughter is getting married today and my husband and girls left yesterday for California.. I wanted to go and see her get married she's been in my life now since she was 6 and is now 21... We have not always been close we had a rough for the first 10 yrs of my marrige to her dad.. But 4 yrs ago we had a turning point and now we are closer then i thought would ever be possible.. I didn't think it would be fare to Devin to exspect to handle flying for almost 10 hours with a 2 hour layover.. So we are hanging out at home... I gave my husband the video recorder so i can see it when he gets home... I know my daughter understands and she loves Devin very much.. I just wish Devin and I could have been there on her very special day... Thanks for listening.. Lesley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2009 Report Share Posted July 11, 2009 want to put in my congratulations at your step daughters marriage, and I have tears in my eyes that you will miss the big event. It is a loving sacrifice and God will reward you for it. Love and blessings, Pat K Hello Hey Lady's Just wanted to say hello. I'm feeling a little down today my stepdaughter is getting married today and my husband and girls left yesterday for California.. I wanted to go and see her get married she's been in my life now since she was 6 and is now 21... We have not always been close we had a rough for the first 10 yrs of my marrige to her dad.. But 4 yrs ago we had a turning point and now we are closer then i thought would ever be possible.. I didn't think it would be fare to Devin to exspect to handle flying for almost 10 hours with a 2 hour layover.. So we are hanging out at home... I gave my husband the video recorder so i can see it when he gets home... I know my daughter understands and she loves Devin very much.. I just wish Devin and I could have been there on her very special day... Thanks for listening.. Lesley Finding the best videos just got easier. Try the NEW Truveo.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2009 Report Share Posted July 11, 2009 Hi Lesley! I will pray for you! I know how very hard this is. It can be very lonely and very sad. I have been there and I know how it is!StacieSent via BlackBerry by AT&TFrom: "lesley hicks" Date: Sat, 11 Jul 2009 10:22:32 -0400 (Eastern Daylight Time)<autism >Subject: Hello Hey Lady's Just wanted to say hello. I'm feeling a little down today my stepdaughter is getting married today and my husband and girls left yesterday for California.. I wanted to go and see her get married she's been in my life now since she was 6 and is now 21... We have not always been close we had a rough for the first 10 yrs of my marrige to her dad.. But 4 yrs ago we had a turning point and now we are closer then i thought would ever be possible.. I didn't think it would be fare to Devin to exspect to handle flying for almost 10 hours with a 2 hour layover.So we are hanging out at home... I gave my husband the video recorder so i can see it when he gets home... I know my daughter understands and she loves Devin very much.. I just wish Devin and I could have been there on her very special day... Thanks for listening..Lesley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2009 Report Share Posted July 12, 2009 hi stacie Thanks stacie ... How are you doing? How is .. Lesley -- Hello Hey Lady's Just wanted to say hello. I'm feeling a little down today my stepdaughter is getting married today and my husband and girls left yesterday for California.. I wanted to go and see her get married she's been in my life now since she was 6 and is now 21... We have not always been close we had a rough for the first 10 yrs of my marrige to her dad.. But 4 yrs ago we had a turning point and now we are closer then i thought would ever be possible.. I didn't think it would be fare to Devin to exspect to handle flying for almost 10 hours with a 2 hour layover. So we are hanging out at home... I gave my husband the video recorder so i can see it when he gets home... I know my daughter understands and she loves Devin very much.. I just wish Devin and I could have been there on her very special day... Thanks for listening.. Lesley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2009 Report Share Posted July 12, 2009 You're welcome Lesley! I am doing ok! is ok too. Thanks for asking!SacieSent via BlackBerry by AT&TFrom: "lesley hicks" Date: Sat, 11 Jul 2009 18:02:18 -0400 (Eastern Daylight Time)<autism >Subject: Re: Hello hi stacie Thanks stacie ... How are you doing? How is ..Lesley -- HelloHey Lady's Just wanted to say hello. I'm feeling a little down today my stepdaughter is getting married today and my husband and girls left yesterday for California.. I wanted to go and see her get married she's been in my life now since she was 6 and is now 21... We have not always been close we had a rough for the first 10 yrs of my marrige to her dad.. But 4 yrs ago we had a turning point and now we are closer then i thought would ever be possible.. I didn't think it would be fare to Devin to exspect to handle flying for almost 10 hours with a 2 hour layover.So we are hanging out at home... I gave my husband the video recorder so i can see it when he gets home... I know my daughter understands and she loves Devin very much.. I just wish Devin and I could have been there on her very special day... Thanks for listening..Lesley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2009 Report Share Posted August 23, 2009 You don't need to convince your doctor. Stop the statins and tell the doc that you will never take a statin or any other cholesterol reducing medication. I did and I still have my doctor.From: mzpz2u <deborahpease@...>Subject: HelloLipitor Date: Sunday, August 23, 2009, 9:32 AM I have had issues with extreme fatigue and muscle joint pain since May of this year. My doctor ran tests for RA..negative, prescribed NSAIDs..it just got worse. I thougtht about what was the significant change and it waws in May when my dose of Zocor went from 20mg to 40mg. It was like night and day.... I called my doc and asked if this could be a cause and she instructed me to go off for three weeks..In those three weeks I felt much better but still not 100%. I went back on the Zocor with no clear cut answers. During this time I had to stop playing golf because the pain was so bad in my hands and my legs felt so tight I thought they would explode. I was getting quite depressed thinking this is how life is going to be. I had another appointment one week ago and I informed my odc of the same problems...she ran a test for uric acid...it was sky high and has put me on Allopurinol which lowers the uric acid in the blood. Mainly people with gout are prescribed this...but I do not have the gout symptoms...then I ran across this group and VOILA my suspicions are confirmed. I just need to convince my doc. I am afraid that my muscles are breaking down thus causing the high uric acid..this is scary to me... Sharing the journey Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2009 Report Share Posted August 23, 2009 Deb, you mention classic statin poisoning symptoms. I have heard the same story from countless others. Keep in mind that your physcian is in the choleterol lowering business, Its their livelyhood and these drugs are a tool of their trade. They usually don't like it when a patient suggests that the drug was responsible for the symptoms. Bobby http://geocities.com/flyinresorts/blog.html--- On Sat, 8/22/09, mzpz2u <deborahpease@...> wrote: From: mzpz2u <deborahpease@...>Subject: HelloLipitor Date: Saturday, August 22, 2009, 8:32 PM I have had issues with extreme fatigue and muscle joint pain since May of this year. My doctor ran tests for RA..negative, prescribed NSAIDs..it just got worse. I thougtht about what was the significant change and it waws in May when my dose of Zocor went from 20mg to 40mg. It was like night and day....I called my doc and asked if this could be a cause and she instructed me to go off for three weeks..In those three weeks I felt much better but still not 100%. I went back on the Zocor with no clear cut answers.During this time I had to stop playing golf because the pain was so bad in my hands and my legs felt so tight I thought they would explode. I was getting quite depressed thinking this is how life is going to be.I had another appointment one week ago and I informed my odc of the same problems...she ran a test for uric acid...it was sky high and has put me on Allopurinol which lowers the uric acid in the blood. Mainly people with gout are prescribed this...but I do not have the gout symptoms...then I ran across this group and VOILA my suspicions are confirmed. I just need to convince my doc. I am afraid that my muscles are breaking down thus causing the high uric acid..this is scary to me...Sharing the journeyDeb Quote Link to comment Share on other sites More sharing options...
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