Guest guest Posted May 14, 2003 Report Share Posted May 14, 2003 Sorry you are having such a rough time right now CZ... I have spurs in my neck that cause a lot of problems along with the degenerative arthritis... When they give me the shots in my head and shoulders, it does help the neck a lot also and my arms... I hate the shots, but its quick pain that will go away and it takes most of the dreadful daily pain away for a while, so it is worth it... I just have to get up enough nerve to get it done ) Hope your birdies are feeling better soon along with you also... ((( Healing Hugs ))) Helen helen my own dr is a knob. he is not going to tell me anything useful about my neck. they said something about trapped nerves causing pain in the ulner nerve or something. i think they want to do a release on my neck but most of it sounded like psychobabble to me. either which way they are not getting near me. my birds playgym has been packed away for months because they have all been too ill to go on it. or even the symptom free ones i do not want mixing amongst themselves because if anyone is not perfectly healthy then they will just reinfect them all. today my dr gave me some packs of clarithromycin and a prescription for vibramycin. he said that they will help my balance and clear up my nose. CZ "Don't be afraid to be yourself. You are unique and special just the way you are." Sue Calwell & ((((((( RAINBOW HUGS ))))))) LOVE HELEN angelbear1129@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2003 Report Share Posted May 18, 2003 Hi Patti, Got to the stills group page, sign in, then look upper right hand and look for (edit my member ship), that will put you on page that you will see you can change your email address. Dan > > anyone know how to change the address that my stills stuff goes to or add another address or somethign? > PAtti > > > ------------------------------------------------------------------- ------------- > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2003 Report Share Posted May 18, 2003 You could address your problem to Jay our web master at gobulldawgs@... and she will probably do it for you if you give her the information you need changed? We Will Win Love Y'all Mom & Dad Bob & Carole Panama City, Florida Please Visit the International Stills Disease Foundation Web Site at: www.stillsdisease.org Politicians & Diapers have one thing in common..... They should be changed regularly - - and for the same reason !! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2003 Report Share Posted May 25, 2003 Phew! I thought she unsubbed! Ling...could you make sure her b-day is still on the list? Thanks. I'm back, going to sleep though now. Hugs, Hi Hi everyone! I'm not new, I just had to get a new email account, and will be DCing the other one.(no, I'm not quitting) It took me forever, hope I can find my way back! My husband got hooked up at work, and has been dumping all my email. At first I thought it was an accident, but he also dumps the trash, so I cant retrieve anything. AAARGGH! Just like the mail, he decides what I should read. I had a lot of good medical info on there, I am so pissed! And you know what really bugs me? While he was doing this yesterday (again) I was sooo busy getting his car fixed- got it done in 1 day!- and returned it to him filled up with gas(there wasnt enough to get home), and stopped at the store and bought him chocolate, among other things, took his children to the dentist, fed a group of teenage boys lunch, and somehow managed to do some housework........ was so exhausted I nearly collapsed... and then I had the evenings chores to look forward to. But I dont " work " . I need this group, and I need it to be private, ya know? I miss you! Hope I can get caught up. (my lifes story) ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick Community Message Archives and Digest Attachment Pictures:- /messages Chat:- Scheduled Daily Chats at /chat Bookmarks:- Add a website URL you have found useful. /links Personal Complaints or problems:- Please contact a moderator email: -owner Subscription Details:- 1) Individual email - means that every email sent to the list you receive. 2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email. 3) Web only/No mail - means that you can pop into groups at your convenience and receive no email. To modify your subscription settings please visit:- /join To subscribe or unsubscribe please email:- -subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician. ~~~~ *** ~~~ *** ~~~ *** ~~~~ When nothing is sure, everything is possible. --- Margaret Drabble ~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2003 Report Share Posted May 25, 2003 Ah! Sorry!!! My blunder? I was shocked when I found out she 'unsubbed' too.... Will put her name back on the BD list ASAP. I'm very sorry, ! Ling > > From: " Don & " <handd1@...> > Date: Mon 26/05/2003 8:15 AM GMT+08:00 > < > > Subject: RE: Hi > > Phew! I thought she unsubbed! Ling...could you make sure her b-day is > still on the list? Thanks. I'm back, going to sleep though now. > > Hugs, > > > > Hi > > > Hi everyone! I'm not new, I just had to get a new email account, and > will be DCing the other one.(no, I'm not quitting) It took me > forever, hope I can find my way back! > My husband got hooked up at work, and has been dumping all my email. > At first I thought it was an accident, but he also dumps the trash, > so I cant retrieve anything. AAARGGH! Just like the mail, he decides > what I should read. I had a lot of good medical info on there, I am > so pissed! > And you know what really bugs me? While he was doing this yesterday > (again) I was sooo busy getting his car fixed- got it done in 1 day!- > and returned it to him filled up with gas(there wasnt enough to get > home), and stopped at the store and bought him chocolate, among other > things, took his children to the dentist, fed a group of teenage boys > lunch, and somehow managed to do some housework........ was so > exhausted I nearly collapsed... and then I had the evenings chores > to look forward to. But I dont " work " . > I need this group, and I need it to be private, ya know? > I miss you! Hope I can get caught up. (my lifes story) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 Hi ) Just making sure you keep me on my toes I see ) Everyone needs thier own privacy at times! That is Very understandable ) How are ya doing??? Love Ya Helen Hi everyone! I'm not new, I just had to get a new email account, and will be DCing the other one.(no, I'm not quitting) It took me forever, hope I can find my way back! My husband got hooked up at work, and has been dumping all my email. At first I thought it was an accident, but he also dumps the trash, so I cant retrieve anything. AAARGGH! Just like the mail, he decides what I should read. I had a lot of good medical info on there, I am so pissed! And you know what really bugs me? While he was doing this yesterday (again) I was sooo busy getting his car fixed- got it done in 1 day!- and returned it to him filled up with gas(there wasnt enough to get home), and stopped at the store and bought him chocolate, among other things, took his children to the dentist, fed a group of teenage boys lunch, and somehow managed to do some housework........ was so exhausted I nearly collapsed... and then I had the evenings chores to look forward to. But I dont "work". I need this group, and I need it to be private, ya know? I miss you! Hope I can get caught up. (my lifes story) "Don't be afraid to be yourself. You are unique and special just the way you are." Sue Calwell & ((((((( RAINBOW HUGS ))))))) LOVE angelbear1129@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2003 Report Share Posted June 16, 2003 Hi , so happy you made it. As you can see this is a good group of people. It seems you have been through an awful lot with your onset and I will hope that a remission would come soon. You hang in there. Sometimes it takes a little while but you sound like your handling it very well. You know we shall be here anytime night or day just ask. I will look forward to a long friendship. Patty Melt from chat. ----- Original Message ----- From: " Myers " <adm_chick@...> > Hello everyone. My name is . I am 16 years old. I was diagnosed > with Stills Disease in April. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2003 Report Share Posted June 23, 2003 > I just wanted to say Hi . I would like to say to be careful when you > get those fevers because if they go too high it can be dangerous I think. > Mine used to run up to 105 but I was always being told that wasn't good and > the nurses would always take my blankets leaving me with just a sheet. They > said if I got too bundled up it would just drive the fever higher. I hope > yours subside soon. Once again good evening, till soon, Melt Once I stayed at 106 for a couple of days. They thought I was going to die. I have fevers every afternoon and they are more 100 to 102. Sometimes, like now, my fevers come and go all day. My almost daily night sweats are from breaking fevers and one doc told me they were a by-product of white blood cells breaking down. Whatever causes my night sweats, I hate them when I wake up drenched, but love the way I feel better the next day. This makes about 30 years of night sweats! (wsm311@...) Peace and Carrots Farm Vermont http://www.homestead.com/peaceandcarrots/ http://www.sHikingHiatus.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2003 Report Share Posted June 23, 2003 I just wanted to say Hi . I would like to say to be careful when you get those fevers because if they go too high it can be dangerous I think. Mine used to run up to 105 but I was always being told that wasn't good and the nurses would always take my blankets leaving me with just a sheet. They said if I got too bundled up it would just drive the fever higher. I hope yours subside soon. Once again good evening, till soon, Melt ----- Original Message ----- From: <wsm311@...> One of the very best things > for me is a good night sweat ;-) My lymphs go down and I'm not as feverish or > stiff all over. Had a good, blanket and quilt drencher last night. > Ahhhhhhhhhhh........ > > (wsm311@...) > Peace and Carrots Farm > Vermont Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2003 Report Share Posted June 23, 2003 Goodness , that is so long. Yes, mine would break a couple of times a night also causing the drenching. I think that is what we should call them, the drenching. Many others here have them too. I hope you don't have to suffer another 30 years. Love, melt ----- Original Message ----- From: <wsm311@...> I hate them when I wake up > drenched, but love the way I feel better the next day. This makes about 30 years of > night sweats! > > (wsm311@...) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2003 Report Share Posted June 23, 2003 Hmm i wondered why i caught heck from nurses when they came in and i was bundled up trying to make myself sweat cause it also made my fever break faster.I had two quilts my mother brought into the hospital for me and id get under them and sweat it out.Also when i got home id get the sweats followed by the shivering chills and yes wendy it was like ohh yeah for those few hours after the fevers broke.I often wonder why seems like were all soo different my fevers it seemed dissappeared overnight after the prednisone was prescribed.Then for bout few weeks after just nightsweats which slowly subsided,weird.Take care and im pullin for ya dragons gotta run outta steam soon. d.Canada Re: Hi > I just wanted to say Hi . I would like to say to be careful when you > get those fevers because if they go too high it can be dangerous I think. > Mine used to run up to 105 but I was always being told that wasn't good and > the nurses would always take my blankets leaving me with just a sheet. They > said if I got too bundled up it would just drive the fever higher. I hope > yours subside soon. Once again good evening, till soon, Melt Once I stayed at 106 for a couple of days. They thought I was going to die. I have fevers every afternoon and they are more 100 to 102. Sometimes, like now, my fevers come and go all day. My almost daily night sweats are from breaking fevers and one doc told me they were a by-product of white blood cells breaking down. Whatever causes my night sweats, I hate them when I wake up drenched, but love the way I feel better the next day. This makes about 30 years of night sweats! (wsm311@...) Peace and Carrots Farm Vermont http://www.homestead.com/peaceandcarrots/ http://www.sHikingHiatus.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2003 Report Share Posted June 24, 2003 > I don't think that you should let your fevers even reach past 103, you > should go to the emergency room if it gets higher.. That's just not good.. When I got to 103, I called the doc. Immediately went to his office and it was 104. The ambulance came for me and I was 105. Got to the hospital and was 106. They put me in ice and alcohol, did a zillion tests. Couldn't get the fever down and they couldn't figure out why I had it. I was pretty delerious by then ;-) I know all too well how bad a fever is. My dad went to 107!! We were in the hospital by then ;-) He had gotten a contaminated IV that gave him a fever. (wsm311@...) Peace and Carrots Farm Vermont http://www.homestead.com/peaceandcarrots/ http://www.sHikingHiatus.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2003 Report Share Posted June 24, 2003 , You are so right about this, when fevers get that high it does not take long for brain damage to occur, It is nothing to play with! Lynn Renae Dudenhoefer lynndude@... -On any path that you may stroll, -keep your angel in your soul! -- Re: Hi > I don't think that you should let your fevers even reach past 103, you > should go to the emergency room if it gets higher.. That's just not good.. When I got to 103, I called the doc. Immediately went to his office and it was 104. The ambulance came for me and I was 105. Got to the hospital and was 106. They put me in ice and alcohol, did a zillion tests. Couldn't get the fever down and they couldn't figure out why I had it. I was pretty delerious by then ;-) I know all too well how bad a fever is. My dad went to 107!! We were in the hospital by then ;-) He had gotten a contaminated IV that gave him a fever. (wsm311@...) Peace and Carrots Farm Vermont http://www.homestead.com/peaceandcarrots/ http://www.sHikingHiatus.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2003 Report Share Posted July 26, 2003 That's what we are her for. Welcome Mae Bridgette > Hi i am new and try to get fit. is it ok that i join this club and > get so idea form you all. so my name is Mae. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2003 Report Share Posted September 20, 2003 Where would you work out? In a gym or at home? That's the big question I think, and fitting it into your schedule so that you'll do it. Obviously with the eating you'll have to read the book, maybe look up some ideas for meals on-line that you think you'd like, and definitely plan ahead so that you can bring them with you while you're at school. Oh - and get a big water bottle! And make sure you know where the bathrooms are! Hope that helps! http://qwesteferral.com/r.jsp?a=Fmu9DBSgHpRfVU541Lz2HA$$ & x HI just been busy with college I'm so upset with myself i need to start exercising and eating right again. any tips on starting again i mean i own the body for life book and success journal i just need to start its hard. i also want to let you know i start fall classes on October 7th i only go on Tuesday and Thursday the 7th and 9th i go from 8am to 9:55am then after that Tuesday and Thursday the rest of the Tuesday and Thursday i got from 8am to noon. heres my day. I'm going to have to get up at 5am leave the house at 6am to catch city bus, get downtown at 6:45am next bus comes at 7:10am, get to school at 7:45am first class starts at 8am to 9:55am then have a break then my last class starts at 10:30am tell 11:55am then wait tell 12:45pm for bus get downtown at 1:30pm mom picks me up. on Monday, Wednesday, and Friday i have on line class at home. so really starting the 14th my my real schedule. any tips or ideas. please help i really need to lose weight. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2003 Report Share Posted September 20, 2003 is there a gym on campus? i have a similar schedule, except on tuesdays i'm out at 3. on thursdays i have a break from 3-5, then another class. i go to the gym directly after class on tuesday, and between 3-5 on thursday. it helps to have your gym be on campus or within a few minutes on public transit. m, w, f, & s, try going first thing in the morning. also, if you can do some of your workouts at home that's always helpful. i find that i procrastinate a lot if i'm working out at home, but it's nice to have weights here, so that i have the option if i need it. dont wait for things to change on their own-just start. -cera Dupree wrote: >Where would you work out? In a gym or at home? That's the big question I think, and fitting it into your schedule so that you'll do it. Obviously with the eating you'll have to read the book, maybe look up some ideas for meals on-line that you think you'd like, and definitely plan ahead so that you can bring them with you while you're at school. Oh - and get a big water bottle! And make sure you know where the bathrooms are! > >Hope that helps! > > >http://qwesteferral.com/r.jsp?a=Fmu9DBSgHpRfVU541Lz2HA$$ & x > HI > > > just been busy with college I'm so upset with > myself i need to start exercising and eating right again. any tips > on > starting again i mean i own the body for life book and success > journal i just need to start its hard. i also want to let you know i > start fall classes on October 7th i only go on Tuesday and Thursday > the 7th and 9th i go from 8am to 9:55am then after that Tuesday and > Thursday the rest of the Tuesday and Thursday i got from 8am to > noon. heres my day. I'm going to have to get up at 5am leave the > house at 6am to catch city bus, get downtown at 6:45am next bus > comes at 7:10am, get to school at 7:45am first class starts at 8am > to 9:55am then have a break then my last class starts at 10:30am > tell 11:55am then wait tell 12:45pm for bus get downtown at 1:30pm > mom picks me up. on Monday, Wednesday, and Friday i have on line > class at home. so really starting the 14th my my real schedule. any > tips or ideas. please help i really need to lose weight. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2003 Report Share Posted September 20, 2003 ill worout at home when i get home Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2003 Report Share Posted September 22, 2003 In a message dated 9/22/2003 2:13:19 PM Eastern Standard Time, ICANFIELD@... writes: > Thanks for hearing me vent out and sharing this. Y'all welcome to > share any experiences or ideas how to deal with this, Any reply will > be appreciated. Thanks. > > Irma,STeven15,DS/ASD > > Aw Irma, Sorry things aren't going well. I can relate about the bus and aide issues! Seth's aide gave me a dirty look and told me I wasn't allowed on the bus. (his first day on the bus) That's all she said. LOL No hello, no nice to meet you...NOTHING. Well, she let Seth off the bus before I even got off the porch. Needless to say, down he went. Scraped his back and hit his head. I was livid!!!!!!!!!!! After a call to the bus garage, I am now allowed on the bus to get him on and off. Sounds like you are making progress with having training for the aides. It's nice when you can see the good that comes from bad. I hope all goes well with your meeting. (((((hugs))))) Gail :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2003 Report Share Posted September 22, 2003 Hi Gail, Louise, Carole, Donna, & Laurie and anyone else I had missed. Thanks for your replies of supportive words, it had lifted my spirits up and now I'm ready to conquer my challenges. Eh, time to move on after I had posted I had to be with family and of course that just added on to the grieving stages. I'm back and now I have to start preparing for an ARD meeting next week and this will involve vocational skills. Of course I now need to include OT & ABA Therapy for an older student towards his IEP Goals. So I'm having to do some homework on this. Like I needed additional stress or whatever you call it last week along with a family loss. The school finally saw part of 's aggression and at least they understood its part of his disability but one of the P.M. Instructor was asking for some type of suggestions or techniques to work around when insist that the classroom door be closed. This is part of his OCD behavior. To me of course this was something that at least now its understandable why he was acting out and shoving the teacher, hitting as this was his way of communicating. I've asked his therapist at the ABA Therapy to see if they could figure out some type of techinque. Then later on I went to a parent training class and the autism team were there and so I had asked them the same thing. Their replies were- " Why does the door need to be kept open on that particular day? " " Maybe they could accommodate in the mean time until a solution has been solved. " Maybe placing him on the other side of the room where he will not see the door open. " " Oh, this is a minor thing. " These were some remarks but something tells me I do not want to have it his way when something like this happens. I like to address this issue when he gets upset and he hits and shoves. Oh, I was told he was given a time-out, you got it place to the other side of the room and stimming away. Wa-lah! How rewarding. Of course I went in and had expained how they reinforced a negative behavior. Plus this was not fair for him to get punished, of course to he does not see it this way. Still why he should he get punished when he is used to the door being shut so that he will not escape or to reduce sounds or thats the way it should be, the door remains close all the time. Duh, structure routine. What a day for some educating because earlier in the morning. has a new bus aide and she sort of got off the bus with an attitude and I was like " Good Morning " , from her nothing. So this had upset me as it had bothered me, how doe this affect the students? Then was shoved over to another seat instead of his unsual sitting spot and he kept staring and was in a slow mode. The aide not understanding just prompt/shoved him to the other seat without a word. I was like poor and here we go again. I brought this up to my dh and he wanted to address it to the bus driver and I had one of those little poster of the characters addressing the autism behavior and so he gave it to the aide and she just handed it right back to him. Ok, so then I went to plan B and I had mentioned it to the SD Autism Team and now they are going to have to attend a a little training meeting to discuss Autism. Yes! I know its hard to get good help but as I told them I do not want to continue pointing finger or complaining or telling them how to do their job. Its just that my son has travelled a journey and he has progressed very well this year and if anyone has walked in my shoes they are going to hear from me. I have to speak up for my son and you can imagine the rest. Today my dh said that the aide got off the bus and actually said " Good Morning. " Hey I can wake up on the other side of the bed but I will still have the courtesy to say something nice to start the day with God willing so that person could have some hope and a good day. But then thats me. ; ) Thanks for hearing me vent out and sharing this. Y'all welcome to share any experiences or ideas how to deal with this, Any reply will be appreciated. Thanks. Irma,STeven15,DS/ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2003 Report Share Posted September 22, 2003 Hi Gail, The bus aide came through today. just arrived and of course her attitude was better. As long as I know it does not affect 's day than she can have one. My goodness, poor Seth. Yep! When accidents happen than things will happen. This happen to when he was younger about 3 y/o, he did not have good motor skills and he was under a private physcial therapy. had his accident and boy, starting with the school district than the main transportation office I was mad because he was undergoing private physical therapy and learning how to walk, balance, alternating going up and down which required some money coming out of our pocket for this and then for him to get injured seemed like we needed to be reimbursed. was a pretty clumsy fellow back then. His teacher than had us write it down on his IEP that even if it was not us parents assisting him on the bus, a bus aide would be provided. Back then I did not know my rights or what services were available. I just knew from a book about Down syndrome that most kids required PT, so I went by that and he was undergoing PT since he was about 5 mos. old, but once public school kicked in than I trusted them. Live and learn. Glad things worked out for you. Irma,15,DS/ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2003 Report Share Posted September 22, 2003 Glad to hear the aide situation is getting better for . That can set the tone for the whole day. Well, Irma, sounds to me like you were on top of things from the very start. We didn't start home therapy for Seth until he was 8 months old. I wanted and needed time just to enjoy him before we started the circus of therapy. LOL Not that therapy was bad, just VERY hectic around here with them coming and going 6 days a week, trying to fit meals, naps and errands around the coming and going of therapists. I'm glad we took the time when we did, because it hasn't been quiet around here since! LOL Gail :-) > Hi Gail, > The bus aide came through today. just arrived and of course > her attitude was better. As long as I know it does not affect > 's day than she can have one. > My goodness, poor Seth. Yep! When accidents happen than things will > happen. This happen to when he was younger about 3 y/o, he > did not have good motor skills and he was under a private physcial > therapy. had his accident and boy, starting with the school > district than the main transportation office I was mad because he > was undergoing private physical therapy and learning how to walk, > balance, alternating going up and down which required some money > coming out of our pocket for this and then for him to get injured > seemed like we needed to be reimbursed. was a pretty clumsy > fellow back then. His teacher than had us write it down on his IEP > that even if it was not us parents assisting him on the bus, a bus > aide would be provided. > Back then I did not know my rights or what services were available. > I just knew from a book about Down syndrome that most kids required > PT, so I went by that and he was undergoing PT since he was about 5 > mos. old, but once public school kicked in than I trusted them. Live > and learn. Glad things worked out for you. > > Irma,15,DS/ASD > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2003 Report Share Posted September 25, 2003 Hi and welcome Elyssa! We just love babies here I'm 's mom (the wandering child) and also mom to (22- VA Tech alumni and American U grad student), TJ (20- WVU sophmore and ROTC), Katey (16- junior HS/varsity cheerleader), Snoop (5 golden retriever), Chiquita (4 Bengal cat), Fiona (2 Rescued Bengal cat) and FMIL to Matt. I live in Northern Virginia. How is Codey doing? I look forward to hearing more about Codey and Lucas. Hi Hi everyone, My name is Elyssa. I had my son Codey on July 3rd 2003. He has DS..my husband and i did not know before hand...it was quite the shock, but we have come along way since then and are feeling pretty darn good about our little guy. We have a older son Lucas he is 4. Well, i just wanted to introduce myself..and say hi to everyone..i hope to meet some good people on here and perhaps some new friends. Elyssa(25) mom to Lucas(4) Codey(11 weeks)ds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2003 Report Share Posted September 25, 2003 Elyssa, First of all Congratulations on having a beautiful baby boy! I'm sort of a lurker on this list - I don't really have a lot to add yet...my baby girl, Bethany has DS and will be a year old in 2 weeks...YIKES! I can't believe how time has flown! We did not know either before she was born. I've read all the emails and gotten lots of good info here - hopefully one day I'll have some to share. Welcome! Michele Mom to Tyler (5), and Bethany soon to be 1! Hi Hi everyone, My name is Elyssa. I had my son Codey on July 3rd 2003. He has DS..my husband and i did not know before hand...it was quite the shock, but we have come along way since then and are feeling pretty darn good about our little guy. We have a older son Lucas he is 4. Well, i just wanted to introduce myself..and say hi to everyone..i hope to meet some good people on here and perhaps some new friends. Elyssa(25) mom to Lucas(4) Codey(11 weeks)ds Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2003 Report Share Posted September 26, 2003 Hi, Elyssa, Welcome aboard. I'm grandma to Abbie, 7-3/4 months, who was also a surprise DS baby for our son Jon and his lovely wife . She is their first child. They were shocked too; we all were. But we looooooooove Abbie so much.... she is soooooooooo sweet!! She had open-heart surgery at 4 months to repair a bunch of nasty malformations, but bounced right back and is doing great. We're all in this together! Ellie, who has been lurking for a while in Western land Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2003 Report Share Posted September 26, 2003 Good evening to all.. Today was the day from he--..I'm not sure which part of my body hurt the worse. The dragon has me in a bear hug. Work was no fun, stress..home is also stressful as of late. Does anyone else have the problem with weight? I can't seem to loose any. I gain really fast, then I'll loose 2 pounds and keep that off..then gain 4.. Was in the hospital first part of the week with blood pressure problems. Is that any part of the dragon? Oh well..think I'll go to sleep and let the bones rest for a while.. Hope all is well..don't mind me..just having a pity party..I'll be back to me in the morning.. in NC Hi Sorry to hear you have this dragon called stills...hugs!! I have had my ups and downs with it since 1972.. I am 47 now...believe this will go away..and make good choices in your life...if you can..pick a less stressful way to live(it always finds us) but always..give yourself that extra break!! Liz NJ Quote Link to comment Share on other sites More sharing options...
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