Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 CZ, That is terrible! How could people do such a thing? I think I agree with the finger! Re: hi the things people say about my eyes are "nobody's home" and sometimes that i look right through people. i used to hear things that people meant to be private sometimes because people would talk around me as if i wasn't there. i think it's funny when people do that. i can look at peoples eyes but i don't like doing it because i don't get any communication from them and other people don't like me looking at their eyes either. i have been told that i make people uncomfortable when i look in their eyes.CZ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 It sounds like you have been around some very rude people!!!! Give them the finger the next time they talk about you like you aren't even there and then they will know"you're home"!!! hehehehehe -- Re: hi the things people say about my eyes are "nobody's home" and sometimes that i look right through people. i used to hear things that people meant to be private sometimes because people would talk around me as if i wasn't there. i think it's funny when people do that. i can look at peoples eyes but i don't like doing it because i don't get any communication from them and other people don't like me looking at their eyes either. i have been told that i make people uncomfortable when i look in their eyes. CZ Don and wrote: > CZ, > > From the autistics that I've met, they've all had way above average > intelligence. Some had a harder time expressing themselves, and maybe > different uses for their intelligence, but all of the autistics I've met > there is just something...it is hard to explain. Something in their > eyes.....I can see the same thing with people with attention deficit and > in very wise people. Maybe it is just a 'knowing'. I'm not sure how to > explain it, but I know when I see it. I used to wonder if people who > look at someone who is 'different' and see something abnormal, if that > is meant to be to protect the different people from them. Who knows for > sure, but I sure can't relate to people like that. > > Hugs, > > > > > > * hi > > > > i don't know what to write. i am still here though. i ran out > of my > > medicines and i have been feeling nasty. the ocd is bad and i am > > finding > > it hard with the autism. i forgot how much the medicines make > life > > easier. a lady from my town drove me to the next town to get some > > medicines today and i am pretty sure she thought i was strange > > because i > > was too nervous about the germs and touching things and i > could not > > stop > > the movement and stims that the autism makes me do. i know > some people > > with autism say they dont have to pretend to be normal and > that people > > have to accept it how you are but i do those movements and sounds > > when i > > don't want to and the medicines help with making my brain > understand > > what's around me better so that i don't need to do that. it > does not > > matter what other people think but if i am unable to not do those > > things > > then it means i am not doing well in my head. i got my > medicines today > > and i took it and now i feel sick like when i first took that > > medicine a > > few years ago it made me feel sick for a while. i ran out for > about a > > week and a half and i was just telling myself i only had to > wait until > > today then i can get more. my animals are ok and i probably > have two > > new > > ones coming to stay next week that are for me to foster and > rehome but > > if i like them i probably keep them. i can cope with animals > but not > > with people at the moment i hope that by next week when i > meet the temp > > foster carers that i will be ok to make a good impression. > > > > CZ > > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > The Being Sick Community > > > > > > Message Archives-/messages > > > > Chat:- Scheduled Chats at > > /chat > > > > Bookmarks:- > > Add a website URL you have found useful. > > /links > > > > Personal Complaints or problems:- > > Please contact a moderator > > email: -owner > <mailto:-owner > > > <mailto:-owner > > > > > Subscription Details:- > > 1) Individual email - means that every email sent to the list you > > receive. > > 2) Daily Digest - sends you 25 messages in one single email > for you > > to browse. This is an excellent option if you receive alot of > email. > > 3) Web only/No mail - means that you can pop into groups at > > your convenience and receive no email. > > > > To modify your subscription settings please visit:- > > /join > > > > To subscribe or unsubscribe please email:- > > -subscribe > <mailto:-subscribe > > > <mailto:-subscribe > > > -unsubscribe > <mailto:-unsubscribe > > > <mailto:-unsubscribe > > > > > This group is not intended to diagnose or treat illnesses. > No one > > on this group is qualified to diagnose medical conditions. > If you > > feel you need medical attention, seek the advice of a qualified > > physician. > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > When nothing is sure, everything is possible. > > > > --- Margaret Drabble > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 you are polite. i would have said a lot ruder things about the man. CZ acarpe6119@... wrote: > CZ > My ex daughter in law had a terrible car accident a long time back, she > had to be in a brace constantly for her left leg. That was 24 years ago > > Finally she meet someone ,she thought he loved her, when she had to have > her left ankle amputated and a prosthetic attached, this creep lammed it > out saying he did not want a cripple for a girlfriend, needless to say > she was really devastated. > TOLD HER THIS > some uncaring pompous people are so ignorant that they do not know that > nobody is perfect, every one of us has a disabiity, even them ,( the > super perfect so they think--) not to get upset over such shallow > people,we should feel pity for them They need it > Anne > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Being Sick Community > > > Message Archives-/messages > > Chat:- Scheduled Chats at > /chat > > Bookmarks:- > Add a website URL you have found useful. > /links > > Personal Complaints or problems:- > Please contact a moderator > email: -owner > > Subscription Details:- > 1) Individual email - means that every email sent to the list you receive. > 2) Daily Digest - sends you 25 messages in one single email for you to > browse. This is an excellent option if you receive alot of email. > 3) Web only/No mail - means that you can pop into groups at your > convenience and receive no email. > > To modify your subscription settings please visit:- > /join > > To subscribe or unsubscribe please email:- > -subscribe > -unsubscribe > > This group is not intended to diagnose or treat illnesses. No one on > this group is qualified to diagnose medical conditions. If you feel you > need medical attention, seek the advice of a qualified physician. > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > When nothing is sure, everything is possible. > > --- Margaret Drabble > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > > > ------------------------------------------------------------------------ > * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 i suppose the same way people talk about babies or little children when they are around as if they can't hear. if people think that you are not all there in your brain then they start talking about you as if you can't hear them or understand them. CZ Don and wrote: > CZ, > > That is terrible! How could people do such a thing? I think I agree > with the finger! > > > > * Re: hi > > the things people say about my eyes are " nobody's home " and sometimes > that i look right through people. i used to hear things that people > meant to be private sometimes because people would talk around me as if > i wasn't there. i think it's funny when people do that. i can look at > peoples eyes but i don't like doing it because i don't get any > communication from them and other people don't like me looking at their > eyes either. i have been told that i make people uncomfortable when i > look in their eyes. > > CZ > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Being Sick Community > > > Message Archives-/messages > > Chat:- Scheduled Chats at > /chat > > Bookmarks:- > Add a website URL you have found useful. > /links > > Personal Complaints or problems:- > Please contact a moderator > email: -owner > > Subscription Details:- > 1) Individual email - means that every email sent to the list you receive. > 2) Daily Digest - sends you 25 messages in one single email for you to > browse. This is an excellent option if you receive alot of email. > 3) Web only/No mail - means that you can pop into groups at your > convenience and receive no email. > > To modify your subscription settings please visit:- > /join > > To subscribe or unsubscribe please email:- > -subscribe > -unsubscribe > > This group is not intended to diagnose or treat illnesses. No one on > this group is qualified to diagnose medical conditions. If you feel you > need medical attention, seek the advice of a qualified physician. > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > When nothing is sure, everything is possible. > > --- Margaret Drabble > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > > > ------------------------------------------------------------------------ > * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 Well all I can say is, PPPPPPPFFFFFFFFFTTTTTTTTTTTTT! Why anyone treat an adult like a child is beyond me! * Re: hi> > the things people say about my eyes are "nobody's home" and sometimes> that i look right through people. i used to hear things that people> meant to be private sometimes because people would talk around me as if> i wasn't there. i think it's funny when people do that. i can look at> peoples eyes but i don't like doing it because i don't get any> communication from them and other people don't like me looking at their> eyes either. i have been told that i make people uncomfortable when i> look in their eyes.> > CZ> > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Being Sick Community> > > Message Archives-/messages> > Chat:- Scheduled Chats at> /chat> > Bookmarks:-> Add a website URL you have found useful.> /links> > Personal Complaints or problems:-> Please contact a moderator> email: -owner > > Subscription Details:-> 1) Individual email - means that every email sent to the list you receive.> 2) Daily Digest - sends you 25 messages in one single email for you to > browse. This is an excellent option if you receive alot of email.> 3) Web only/No mail - means that you can pop into groups at your > convenience and receive no email.> > To modify your subscription settings please visit:-> /join> > To subscribe or unsubscribe please email:-> -subscribe > -unsubscribe > > This group is not intended to diagnose or treat illnesses. No one on > this group is qualified to diagnose medical conditions. If you feel you > need medical attention, seek the advice of a qualified physician.> ~~~~ *** ~~~ *** ~~~ *** ~~~~> When nothing is sure, everything is possible.> > --- Margaret Drabble> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> > > > ------------------------------------------------------------------------> * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 Hey Kelli, Thanks for your wonderful encouragement. I think you're right about the siblings being a big help. My Bridget is a fourth child. She's 3 and has abrother 6, 8 and a sister 9. the other kids really look after her, but she is the bossiest kid inthe family. I will get her into a cast just unsure how to make it happen right now. Must go off to work now. Bye love Bertkelli peasley <santiamor2002@...> wrote: Hi , I am originally from Wyoming and studyed many years in San Francisco. My husband is Spanish and we live in Alicante Spain. It is on the East Mediterranian coast. Where was your husbands family from? So many regions, so many languages ( 5 to be exact), etc.. A big diverse country but great great people... My little boy is doing great, mentally as stubborn as an ox, physically he will conquor anything he wants, thus what more can a mom want!!! He has both Scoliosis lumbar at orginally 50 degrees down to 22 in his first cast, and AMC which is arthrogryposis which is a fixation or deformation of his tendons and limbs, thus he was born with club feet and doesn´t use his last three fingers on each hand, but he is now 2 and half and is trying to walk, thus he will conquor everything. He has no muscle tone so protein shakes are a part of his life..But, he is our third child has a brother 7 and one 5, thus he is well taken care of by everyone. Finally found the right doctors here in Spain, took awhile, but we did it...Tell me about your child, how old etc...And don´t forget to tell me where your husband comes from... besos, Kelli and Santiago <christinehrph@...> wrote: Hi Kellie. Where in Spain are you from. My husband was born there (parents from Cuba) How is your son doing? (Adan's mom) kelli peasley <santiamor2002@...> wrote: Hi , Sounds like a really tough trip, and you are right much worse on the parents then the children. I was so happy in one respect that they were able to get such great correction, that is a good sign right? But, sorry that it caused Olivia so much pain, but like you said a little at a time... It was so nice to talk on the phone to you, did you get the package yet? I put it in the hands of my mom to send and that is sometimes dangerous..Thus, I know it is on the way soon I will just keep on top of her for a couple of days..Also, from here we sent a donation to the foundation and also included some pictures, if I am sending it you will get it I promise.. Also, concerning the video. Do you want me to make several copies in PAL for you? It might be nice for you to have on hand to send to Europe when needed, or another option to save on all the mailing overseas, is you can tell me when you need one sent here in Europe and I can send it from here, no overseas costs involved.. Let me know what you think. Also, when you are ready send me the web site and I will start the translations for you.. Might take a while but I will get started. Hope all is going well now for you and Olivia, take care.. Besos, Kelli and Santiago Back in Spain...HRHandCO@... wrote: Hi everyone,Olivia got her EDF cast applied early tuesday afternoon and by tuesday eve at 8:30p.m., we had to saw it off....Olivias doc got so much correction in this cast, that it was unbearable for her. She was in pain w/ muscle spasmos (thats Moriahs word), and her doc and I felt it best it be removed.For a while, I was unsure if it should be removed....but her pain made it clear to my brother and I, and her doc that it was too much (correction that is)...Olivia has never had problems in a Risser cast, and this was not a Risser. This was a Mehta cast (EDF) through and through! It was beautiful. It was obvious that her doc has learned alot from Miss Mehta and I have lost no faith in him for that! This is just one more example of why ISOP needs Miss Mehta here ASAP to teach these docs. She has dedicated her career to this treatment and can guide them in situations such as Olivias. Which, BTW, is very different from most on this group.My take on the whole situation, (her docs and Miss Mehtas too), is that she was over corrected. Olivia has a 90 degree curve at this point and she is almost 7 yrs old. Correction in a juvenile (who's bones,fascia,connective tissues, etc. have been held in this uncorrect position for so long) cannot be manipulated down in an EDF/Mehta cast that much. Its okay for babies because they bones,etc. have not been in the uncorrected position for that long, and their bones are still really flexible.Children such as Olivia (90 deg juvenile, upper thoracic) must be corrected in small stages. You can manipulate a babies curve of a lesser degree in a an edf cast, but a older child must be done in stages. This is not saying that Olivia will ever be corrected by these casts. She will not....But we hope to go through a couple more halos mixed with EDF/Mehta casts for the next 6 yrs, in effort to get her to her full growth. We have half the battle won!Sorry, it took so long for the update. The trip was a rough one, and i really had to take a day to get back into the swing of things.Feel free to ask more about our trip, if you need to.Glad we're home!Olivia was in school by thurs, and seems to be back to her loving self. (I think these trips are harder on me..)talk soon,HRH Do you ? Address AutoComplete - You start. We finish. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Hi, Maggie! I'm Joyce. I just recently joined this group, too. It's a good 'un! > I am new to this group, my name is Maggie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 Hi Maggie....welcome.......hugs and blessings , . Hi > I am new to this groupd, my name is Maggie and I hope I can learn > from all the people on this list. I've been doing MP for 3 years and > am starting on creams and lotions. Thanks for having me. > > Maggie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 Hi Maggie....welcome.......hugs and blessings , . Hi > I am new to this groupd, my name is Maggie and I hope I can learn > from all the people on this list. I've been doing MP for 3 years and > am starting on creams and lotions. Thanks for having me. > > Maggie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 Thanks for the welcome. Maggie Creative clutter is better than idle neatness. http:/thecraftypeanut.com Hi > > > > I am new to this groupd, my name is Maggie and I hope I can learn > > from all the people on this list. I've been doing MP for 3 years and > > am starting on creams and lotions. Thanks for having me. > > > > Maggie > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 Thanks !!! Maggie Creative clutter is better than idle neatness. http:/thecraftypeanut.com Re: Hi > Hi, Maggie! I'm Joyce. I just recently joined this group, too. It's > a good 'un! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2004 Report Share Posted September 4, 2004 Welcome! This is a great group, I've learned alot, myself in just the few weeks I've signed on. R Orlando Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2004 Report Share Posted September 10, 2004 Hi , nice to meet you...My name is and I live in Australia...hugs and blessings, . HI > Hello, and thanks for allowing me to join you all! My name is . > I am 24 years old and I live in Ga. I am married to a wonderful guy, > and we have 2 great babies! Melinda is 22 months old, and Jonathon > Jr, just turned 9 months old. I am new to toiletries...I am > interested in making soaps, candles and things like that! Hope to > hear from some of you! Have a wonderful day and May God Bless! > ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2004 Report Share Posted October 9, 2004 Welcome back, Liz. We missed you, but are so happy you went. De Faith is the ability to not panic. -----Original Message-----From: Liz [mailto:elwilkinson@...] Sent: Saturday, October 09, 2004 12:03 PMHepatitis CSupportGroupForDummies Subject: hi Hi everyone I''m home and had a great time. Walked the dogs on beaches and through forests. Read books and no tv or phone. Geo and I are revived and ready to go. I'll send pics when I get my printer and stuff hooked up. Take care of yourself, Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2004 Report Share Posted October 9, 2004 Welcome back, Liz. We missed you, but are so happy you went. De Faith is the ability to not panic. -----Original Message-----From: Liz [mailto:elwilkinson@...] Sent: Saturday, October 09, 2004 12:03 PMHepatitis CSupportGroupForDummies Subject: hi Hi everyone I''m home and had a great time. Walked the dogs on beaches and through forests. Read books and no tv or phone. Geo and I are revived and ready to go. I'll send pics when I get my printer and stuff hooked up. Take care of yourself, Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2004 Report Share Posted October 19, 2004 Hey Liz, Doppler looks like it might be clearing there for you, but we have all of your weather coming my way. It is going to be a wet afternoon. Dick At 09:18 AM 10/19/04, you wrote: Hello everyone, It's raining and blowing and even the backyard squirrel looks like he has a comb over. We really need it so I'll just hang out all day. I hope you all have a great day! Take care of yourself, Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2004 Report Share Posted November 7, 2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2004 Report Share Posted November 10, 2004 Yes, Liz. I'm happy here. De Faith is the ability to not panic. -----Original Message-----From: Liz [mailto:elwilkinson@...] Sent: Tuesday, November 09, 2004 9:11 PMHepatitis CSupportGroupForDummies Subject: hi Is everyone happy? We want the best for everyone in this group. I (we) don't care if you want to vent or just talk. We just we want you all to be comfortable. Take care of yourself, Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2004 Report Share Posted November 10, 2004 Yes, Liz. I'm happy here. De Faith is the ability to not panic. -----Original Message-----From: Liz [mailto:elwilkinson@...] Sent: Tuesday, November 09, 2004 9:11 PMHepatitis CSupportGroupForDummies Subject: hi Is everyone happy? We want the best for everyone in this group. I (we) don't care if you want to vent or just talk. We just we want you all to be comfortable. Take care of yourself, Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2004 Report Share Posted November 10, 2004 Ditto! Kathy Boo Motley <dmotley@...> wrote: Yes, Liz. I'm happy here. De Faith is the ability to not panic. -----Original Message-----From: Liz [mailto:elwilkinson@...] Sent: Tuesday, November 09, 2004 9:11 PMHepatitis CSupportGroupForDummies Subject: hi Is everyone happy? We want the best for everyone in this group. I (we) don't care if you want to vent or just talk. We just we want you all to be comfortable. Take care of yourself, Liz Kathy Brunow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2004 Report Share Posted November 10, 2004 Ditto! Kathy Boo Motley <dmotley@...> wrote: Yes, Liz. I'm happy here. De Faith is the ability to not panic. -----Original Message-----From: Liz [mailto:elwilkinson@...] Sent: Tuesday, November 09, 2004 9:11 PMHepatitis CSupportGroupForDummies Subject: hi Is everyone happy? We want the best for everyone in this group. I (we) don't care if you want to vent or just talk. We just we want you all to be comfortable. Take care of yourself, Liz Kathy Brunow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2004 Report Share Posted November 23, 2004 : I'm not sure if this will help right away... it's sort of something that takes awhile to make the connection. When was having so many sticks starting at age one, I started off by letting her pick a small toy every time she had an upsetting medical procedure. I wasn't sure this " bribery " was the right thing to do... plus at a couple dollars per toy, it was getting expensive! Eventually I changed it to a certain favorite treat every time she got a stick. Still wasn't sure about this (associating eating with upset), but kept doing it. Eventually, she began to associate getting a stick with getting a special treat. At some point she was able to see it as, " well, it sure stinks to get a stick but hey... wait... do I get a Bakery Cookie after?!!!?! " At some point, getting something in exchange for the rotten experience took the sting out of it enough she was able to look past the pain and think of the benefit: " this will get me better " . I don't know if this positive association is the reason, but she stopped crying for sticks around age three. Possibly due to watching get so many shots, IVs, etc. and not cry... it's interesting to note that Baby Kate does not cry for shots about 50% of the time, if you can believe that (the first time that happened I was worried Kate was not normal! how could she not cry?!)! It helps to get a good nurse, too -- I've noticed a definite " touch " some nurses have. Our favorite nurse always rubs the finger tip before a finger stick, this seems to numb it nicely. She also distracts Kate by ripping apart a cotton ball in front of her face before and after the shot... amazing how that works! As far as the bribery (I prefer to call it " positive association " )... maybe a coloring book or sheet of stickers could substitute for the sugary treat? Hope that helps -- (mom to , age 5-3/4, dairy intolerant-related GERD -- currently has polysaccharide antibody def, previously had transient IgG, IgA, t-cell & other defs... and also to Kate, age 2, dairy intolerant) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2004 Report Share Posted November 23, 2004 In a message dated 11/23/2004 1:06:33 AM Eastern Standard Time, rn4premies@... writes: again this last time it took a half an hour and than 4 people to hold her down, I really hate that. She is on 4mg of Valium as well and still is having a tough time. They are so patient with her, she just fights and cries and screams, there is no talking to her to calm her down. Any ideas out there?? I don't have any idea but I sure am glad they are patient with her. A lot of them don't have patients. I know this must be miserable for you=( Janet, mom to Brittany, CVID, age 13 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2004 Report Share Posted November 27, 2004 Hi ! Glad to have you here! Do you have a boy or a girl? What part of the world are you in? You found a terrific group and you won't be sorry! Connie Mom to Hannah (5 ds) and a bunch of other nutty kids In a message dated 11/26/2004 11:45:16 PM Eastern Standard Time, suzmcc_506@... writes: hi i am and i have a 7 year old with downs. nice to meet you all. Quote Link to comment Share on other sites More sharing options...
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