Hi

[Guest guest]

Rob, go into the files section, download Dr Grim's article about the

Evolution of Primary Aldostreronism and read that

After experiencing the bewildering ignorance on the part of a dozen or

so clinicians for nearly 6 years, and finally getting the correct

information (getting my BP under control, left with a case of LVH

because of the long incorrect treatments), I can say that at least it

has the basics about salt (electrolyte) metabolism and the role of

meds, diet and surgery in treatment. Most published material is on

diagnosis only.

Armed with this, you should be ready to to battle with the gargoyle -

physician ignorance.

Dave

p.s. how did they come to your diagnosis of Conn's? And, what do they

mean by Conn's - an adrenal tumor?

On Dec 7, 2005, at 9:57 PM, Farah Rahbar wrote:

> Hi Rob:

> Welcome to our group. Just by reading various stories of our

> conditions you will get a good idea about Conn's. We are all very

> fortunate that we also have a very good doctor Grim on the group who

> will help you with your questions and give you many good suggestions.

> You are very lucky to have been diagnosed so early and may even be

> totally cured by just a change of life style.

> Conn's or hyperaldosteronism is a condition caused by too much

> activity in the adrenal glands due to either a tumor on the adrenal

> gland or just the gland producing too much Aldosterone causing the

> blood pressure to be high and potassium to be low. This condition can

> be controlled either by taking medication (such as Aldactone) or if

> the there actually is a tumor that may be causing the problem(if it is

> the problem and is not benign) then surgery will cure the  problem.

> This tumor is very rarely cancerous and hopefully no worries there.

> Meanwhile it is best to follow a " dash " diet a diet very low in

> sodium, fat and high in potassium, calcium, magnesium.(you can google

> to find more info on the diet), exercise regularly, and dont smoke or

> use alcohol to keep your bp controlled. Dr. Grim has a very useful

> file on the group you can read and get more idea about the condtion

> and its stages.

> You need to post some detailed info about yourself so Dr. Grim can

> give you his expertese advise such as you weight, medications you are

> taking and what kind of test have so far been done. You can post your

> results such as total serum Aldosterone, and Renin, and Potassium and

> your blood pressure measurements and Dr. Grim will advise you on how

> to go about best.

> Take care and good luck and dont worry. Its all good.

>

>

> bob miner <robminer_1999@...> wrote:

>> hello every one my name is rob and on tues the 6th i was diagnosed

>> with

>> conn's syndrome i am 29 yrs old and my doctor has not really told me

>> alot about the condition yet.  anyone who can supply information for

>> me

>> i would appreciate it.  i do not even know how severe this condition

>> is

>> but i must admit i am a little nervous.  please any input would be

>> welcome

>>

>> rob

>>

>>

>>

[Guest guest]

Thank you Kate,I hope I have many more too.Take care hon.

Gail

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of kathyshel2000Sent: December 27, 2005 8:02 PMHepatitis CSupportGroupForDummies Subject: HIHAPPY BIRHTDAY GAIL WE WISH YOU MANY MORE KAT AND DONALD

[Guest guest]

Thanks for the welcome.I sure will keep you all informed on my

situation.I should know more the 23rd.

Blessings to all!

Mike

>

> HI EVERYONE,

> WE HOPE YA'LL ARE FINE D GOOD LUCK ON YOU COURT DATE.

>

> HI MIKE WELCOME TO THE GROUP ANYONE HEAR CAN AND WILL ANSWER ALL OF

> YOU QUESTIONS AND SOME THAT YOU DON'T ASK TOO ITS MY HUSBAND THAT HAS

> HEP C GENEOTYPE 4 WITH CIRROHSIS HAS BEEN ON TX FOR A YR NONRESPONSIVE

>

> DEB HAVE YOU GOT YOUR TEST BACK YET

>

>

>

> KAT AND DONALD

>

[Guest guest]

thanks Kat.how is all over in your part of the woods?

d

--- Hepatitis CSupportGroupForDummies

<kathyshel2000@...> wrote:

> HAPPPPPPY BIRTHDAY TO YOUUUUUUUU ALLEN AND D

>

> KAT

>

>

>

__________________________________________________

[Guest guest]

Thank you Kat!

Allan with 2 L's

HI

HAPPPPPPY BIRTHDAY TO YOUUUUUUUU ALLEN AND D KAT

[Guest guest]

Hi, Amber,

I'm new to the group, but I still want to welcome you.

I'm about your age, and I was diagnosed with sarcoidosis (an auto-

immune disorder) about a year ago. My mother has lupus (another auto-

immune disorer) and I have a neice with fibromyalgia. Seems like some

of our genes must be out of whack.

Chronic illness can be very distressing, especially when the diagnosis

is still uncertain. I may not have any answers, but I certainly

sympathize.

If my experience is anything to go by, you won't always feel

(emotionally) like you do now. Humans are remarkably resilient: give us

enough time, and we can come to terms with practically anything.

Hope this helps,

CB

>

> Hi, My name is amber. I am 44 and a house wife. I have three grown

> childern. I have been sick for ever! The DOCS. think I have MS.

>

> p.s. help.......somebody talk to me

> p.s.s my youngest has fibromyalgia.

>

[Guest guest]

Pattie -

I hope that ph is able to get on top of his sinus infection quickly and

does not get that much worse. Perhaps the latest SQ will help. Glad it

went smoothly. If you see this message and have time to reply...I am wondering

what needle sets you are using and how the sites are doing. Any knots at the

infusion sites? We have a few of those...

Take care,

mom CVIDer

[Guest guest]

Welcome to the group , I'm sure you are going to like it here!DarcyOn 4/5/06, <nabrudigam@...

> wrote:Hi, I'm new here. I began exercising with videos maybe five or seven

years ago. Can't remember. I walked and had an " aerobic " rider, butonly used it five minutes a day, but it did me some good. I beganwith Jane Fonda, Simmon's Silver Foxes and a couple of tai

chi and weight lifting videos for seniors. I'm still a senior, butthose videos are too boring and easy for me. I began rebounding 31/2 years ago and bought several rebounding videos, but found I coulddo other videos as well on the rebounder.

I began weight lifting with a little known video by Campitelliwhere you do 3 sets of exercises, two body parts per day for a totalof 10 minutes daily. (I figured I could do anything for 10 minutes)

I then found the Firm classics and loved them. When I got bored withthem I tried Power 90. Did two week and then got Gilad'sQuick Fit system. I get bored easily and have kept switching.Recently I began rebounding to Cardio Coach and walking CDs, but need

to get back to weight lifting which I have neglected for about amonth, maybe longer. I still walk and climb the 4 flights of stairsto my apartment so even when I don't do a formal workout, I do try toget in something.

I'm not a person who loves exercise so it's difficult to keep ontrack. That's why I need a group to push me along. I don't buyevery fad that comes along, but when there's a lot of positivecomments about this or that workout, I may look for it on ebay or

anywhere I can get it without breaking the bank.My most recent purchase is " Custom Fit: Interactive Training " by Snively which looks interesting. I only bought it yesterday soit'll be a while before I get it. I'd be interested in hearing your

comments on this DVD. I also bought Gilad's " Interval Training " .Neither of these have clips on Collage, but what I read about themmade them sound interesting.My rebounding will always be part of my workouts, though even that

gets boring sometimes. I wrote the " Everything Rebounding " blog andgot so many questions on which rebounder to buy I finally became aNeedak dealer. That's not why I'm here. I'm here because I need a

kick in the butt to get back to weight lifting. It's just notsomething I enjoy so need a big push.Sorry to be so long winded, but I wanted you to know where I'm comingfrom.

[Guest guest]

Darcy Ledman <exercise.junkie@...> wrote: Welcome to the group , I'm sure you are going to like it here!Darcy Thanks Darcy, I'm sure I will. I woke up late and am not ready for prime time. I didn't sleep well last night which happens a lot so not sure what I'll manage to do today. I did go downstairs to pick up my mail and then walked upstairs so it's not a total loss. I usually work out in the afternoon anyway so will check back later.

Messenger with Voice. PC-to-Phone calls for ridiculously low rates.

[Guest guest]

You wrote... My son is 5 with AS. I was wondering how people go about telling their families? What sort of things do you emphasise and which bits do you gloss over? ....... This may help, I know that it helped me when I had to explain things to my Father-in-Law. Good luck and God Bless mate Monte Ten Things Every Child with Autism Wishes You Knew Some days it seems the only predictable thing about it is the unpredictability. The only consistent attribute, the inconsistency. There is little argument on any level but that autism is baffling, even to

those who spend their lives around it. The child who lives with autism may look "normal," but his or her behavior can be perplexing and downright difficult. Today, the citadel of autism, once thought an "incurable" disorder, is cracking around the foundation. Every day, individuals with autism show us they can overcome, compensate for, and otherwise manage many of the condition's most challenging aspects. Equipping those around our children with a simple understanding of autism's most basic elements has a tremendous effect on the children's journey towards productive, independent adulthood. Autism is an extremely complex disorder, but we can distill it to three critical components: sensory processing difficulties, speech/language delays and impairments, and whole child/social interaction issues. Here are 10 things every child with autism wishes you knew.1. I am a child with autism. I am not

"autistic." My autism is one aspect of my total character. It does not define me as a person. Are you a person with thoughts, feelings and many talents, or are you just fat (overweight), myopic (wear glasses) or klutzy (uncoordinated, not good at sports)?2. My sensory perceptions are disordered. This means the ordinary sights, sounds, smells, tastes and touches of everyday life that you may not even notice can be downright painful for me. The very environment in which I have to live often seems hostile. I may appear withdrawn or belligerent to you, but I am really just trying to defend myself. A "simple" trip to the grocery store may be hell for me. My hearing may be hyperacute. Dozens of people are talking atonce. The loudspeaker booms today's special. Muzak whines from the sound system.Cash registers beep and cough. A coffee grinder is chugging. The meat cutter screeches, babies wail, carts creak, the fluorescent lighting hums. My

brain can't filter all the input, and I'm in overload! My sense of smell may be highly sensitive. The fish at the meat counter isn't quite fresh, the guy standing next to us hasn't showered today, the deli is handing out sausage samples, the baby in line ahead of us has a poopy diaper, they're mopping up pickles on Aisle3 with ammonia. ... I can't sort it all out, I'm too nauseous. Because I am visually oriented, this may be my first sense to become overstimulated. The fluorescent light is too bright. It makes the room pulsate and hurts my eyes. Sometimes the pulsating light bounces off everything and distorts what I am seeing. The space seems to be constantly changing. There's glare fromwindows, moving fans on the ceiling, so many bodies in constant motion, too many items for me to be able to focus - and I may compensate with tunnel vision. All this affects my vestibular sense, and now I can't even tell where my body is in space. I may stumble, bump into things,

or simply lay down to try and regroup.3. Please remember to distinguish between won't (I choose not to) and can't (I'm not able to). Receptive and expressive language are both difficult for me. It isn't that I don't listen to instructions. It's that I can't understand you. When you call to me from across the room, this is what I hear: "* & ^%$#@, . #$%^* & ^%$ & *" Instead, come speak directly to me in plain words: "Please put your book in your desk, . It's time to go to lunch." This tells me what you want me to do and what is going to happen next. Now it's much easier for me to comply.4. I am a concrete thinker. I interpret language literally. It's very confusing for me when you say, "Hold your horses, cowboy!" when what you really mean is "Please stop running." Don't tell me something is a "piece of cake" when there is no dessert in sight and what you really mean is, "This will

be easy for you to do." When you say, "It's pouring cats and dogs," I see pets coming out of a pitcher. Please just tell me, "It's raining very hard." Idioms, puns,nuances, double entendres and sarcasm are lost on me.5. Be patient with my limited vocabulary. It's hard for me to tell you what I need when I don't know the words to describe my feelings. I may be hungry, frustrated, frightened or confused, but right now those words are beyond my ability to express. Be alert for body language, withdrawal, agitation, or other signs that something is wrong. There's a flip side to this: I may sound like a little professor or a movie star, rattling off words or whole scripts well beyond my developmental age. These are messages I have memorized from the world around me to compensate for my language deficits, because I know I am expected to respond when spoken to. They may come from books, television or the speech of other people. It's called

echolalia. I don't necessarily understand the context or the terminology I'm using, I just know it gets me off the hook for coming up with a reply.6. Because language is so difficult for me, I am very visually oriented. Show me how to do something rather than just telling me. And please be prepared to show me many times. Lots of patient repetition helps me learn. A visual schedule is extremely helpful as I move through my day. Like your day planner, it relieves me of the stress of having to remember what comes next, makes for smooth transitions between activities, and helps me manage my time and meet your expectations. Here's a great web site for learning more about visual scheduleshttp://www.cesa7.k12.wi.us/newweb/content/rsn/autism.asp7.

Focus and build on what I can do rather than what I can't do. Like any other human, I can't learn in an environment where I'm constantly made to feel that I'm not good enough or that I need fixing. Trying anything new when I am almost sure to be met with criticism, however constructive, becomes something to be avoided. Look for my strengths and you'll find them. There's more than one right way to do most things.8. Help me with social interactions. It may look like I don't want to play with the other kids on the playground, but sometimes it's just that I simply don't know how to start a conversation or enter a play situation. If you can encourage other children to invite me to join them at kickball or shooting baskets, I may be delighted to be included. 9. Try to identify what triggers my meltdowns. This is termed "the antecedent."Meltdowns, blowups, tantrums or

whatever you want to call them are even morehorrid for me than they are for you. They occur because one or more of mysenses has gone into overload. If you can figure out why my meltdowns occur, theycan be prevented.10. If you are a family member, please love me unconditionally. Banish thoughtssuch as, "If he would just ..." and "Why can't she ... ?" You didn't fulfill every last expectation your parents had for you, and you wouldn't like being constantly reminded of it. I didn't choose to have autism. Remember that it's happening to me, not you. Without your support, my chances of successful, self-reliant adulthood are slim. With your support and guidance, the possibilities are broader than you might think. I promise you I'm worth it.It all comes down to three words: Patience. Patience. Patience.Work to view my autism as a different ability rather than a disability. Look past what you may see as limitations and see

the gifts autism has given me. I may not be good at eye contact or conversation, but have you noticed I don't lie, cheat at games, tattle on my classmates, or pass judgment on other people?You are my foundation. Think through some of those societal rules, and if they don't make sense for me, let them go. Be my advocate, be my friend, and we'll see just how far I can go.I probably won't be the next Jordan, but with my attention to fine detail and capacity for extraordinary focus, I might be the next Einstein. Or Mozart. Or Van Gogh.They had autism too.Freelance writer and consultant Ellen Notbohm is a columnist forAutism/Asperger's Digest and co-author of 1001 Great Ideas for Teaching andRaising Children With Autism Spectrum Disorders (Future Horizons). Shefavors "common sense" approaches to raising her sons with autism and AD/HD. Shelives in Oregon.By Ellen NotbohmSouth Florida

Parenting

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

Hi Eva,

>

> On another note, could someone please explain to me the difference

> beween AS and HFA?! I've been reading quite a few books and a lot of

> the authors use the terms interchangeably,

That's because the terms are interchangeable - Asperger's is autism in

people with IQs in the normal range ie higher functioning.

in England

[Guest guest]

joesconcernedmum wrote:

> Hi everyone!

>

> My son is 5 with AS. I was wondering how people go about telling

> their families? What sort of things do you emphasise and which bits

> do you gloss over?

>

When Louie was two and a half and first diagnosed, we asked his

developmental psychologist to do an in-home visit....at my parents

house. We of course cleared it with them first, told them she was

coming to explain what was up with Louie (they'd already noticed

something was going on with him). We asked as many of my brothers and

sisters and their spouses that could make it, as well as a very close

friend of ours and Louie's sister. She took about an hour, maybe two,

explaining and answering questions. Things went a lot more smoothly for

us after that.

Annie, who loves ya annie@...

--

Adversities are inevitable in life, but misery is a choice. --

Haigazian

[Guest guest]

Welcome. I have a 14 year old asperger son and a 6 year old autistic

(low-functioning, non-verbal) son. I too am aspergers.

For my autistic son, it is immediately very obvious so what to say is

not a problem. As for my aspie son, I only discovered it last year

so it is still pretty new. Considering his age, I only tell on a

need-to-know basis. If he did or said something that someone might

be hurt by, I will tell them so they understand where he is coming

from. Since they are already familiar with autism from my other son,

I basically tell them he has a very mild form of the same condition.

I tell them it means he thinks in black and white/right and wrong.

As a result there could be times that he would appear to be a smark-

alec when really he is wanting to know exactly what the rules or

boundaries are. He does not understand there are some things you

just don't say to others such as point out a mistake they made in the

hearing of others. Whenever I talk about his condition, I make sure

to point out the positives. He has a photographic memory, he is

really good at technical things such as computer repair and he takes

note and tries to help the underdog. I make sure to point out

aspergers is not who he is but what he has just like someone has

cancer or diabetes. It is not an excuse to do wrong things but an

explanation of why he does what he does. It is the set of obstacles

he has in front of him to overcome.

Labels are very confusing which often prolong the grief period when a

child is first diagnosed. One of the main reasons is most doctors

can't agree. Some think HFA and aspergers are different conditions

but the most current thought is they are both the same thing. Some

tend to use HFA for those that were initially diagnosed with autism

but have improved to the point that a new label is warranted and

aspergers would apply to those that have always been that way. Some

use the label aspergers over HFA just because it sounds better. Some

(especially for school assessments) will diagnose aspergers over HFA

because if the word " autism " is in the diagnosis, they might have to

offer more services. Others classify the difference between the two

based on when speech is aquired. In my opinion, both labels are the

same thing. I chose to use the labels I do for my boys and myself

based on our current level of functioning.

>

> Hi everyone!

>

> My son is 5 with AS. I was wondering how people go about telling

their

> families? What sort of things do you emphasise and which bits do

you

> gloss over?

>

> On another note, could someone please explain to me the difference

> beween AS and HFA?! I've been reading quite a few books and a lot

of

> the authors use the terms interchangeably, because recent research

has

> shown that someone can have AS AND a language disorder. Awhile ago

> the concensus was that language wasn't affected by people with AS.

>

> Thanks all,

> Eva in Australia

>

[Guest guest]

>

> Hi Eva,

> >

> > On another note, could someone please explain to me the difference

> > beween AS and HFA?! I've been reading quite a few books and a lot of

> > the authors use the terms interchangeably,

>

> That's because the terms are interchangeable - Asperger's is autism

in

> people with IQs in the normal range ie higher functioning.

>

> in England

>

hello eva

well ive been told that as dont have the learning disbiltys were as the

hfa do?

their is with my own sons the fact that the as one will and does go out

with his friends on his own

were as my hfa son wouidnt do so as he doesnt like the intracting with

other pepole if he gos out at all it with us or with the friend and

their parents

mind i expet their will be others with difrent veiws on this?

[Guest guest]

Hi there,

> well ive been told that as dont have the learning disbiltys were as the

> hfa do?

You have to be careful with terminology here: in the UK learning disability

means having an IQ less than 70, which does not apply to either AS or HFA;

whereas learning difficulties apply across the board and both AS and HFA

have those.

in England

[Guest guest]

, that is not the case at all in the US. May children with average

IQ's have learning disabilities. Here an IQ of less than 70 in mental

retardation. NOT the same as a learning disability.

-Charlotte

Re: Re: hi

Hi there,

> well ive been told that as dont have the learning disbiltys were as the

> hfa do?

You have to be careful with terminology here: in the UK learning disability

means having an IQ less than 70, which does not apply to either AS or HFA;

whereas learning difficulties apply across the board and both AS and HFA

have those.

in England

[Guest guest]

Hi Charlotte:

It really is an issue of terminology and the differing definitions

that exist on either side of the Atlantic.

Here in the US the term learning disabilities applies to those of

average IQ or better as you said. In the UK, learning disabled is a

term that would be used to describe those people that here in the US

would probably be described as mildly mentally retarded.

My husband and I are now living in the US but are originally from

Ireland so we have to be careful when talking to relatives back home

so that they can understand what the real issues are regarding our

son.

Just my 2 cents worth. (or pennies worth or whatever).

Regards,

Trish

>

> , that is not the case at all in the US. May children with

average

> IQ's have learning disabilities. Here an IQ of less than 70 in

mental

> retardation. NOT the same as a learning disability.

> -Charlotte

>

> Re: Re: hi

>

> Hi there,

>

> > well ive been told that as dont have the learning disbiltys were

as the

> > hfa do?

>

> You have to be careful with terminology here: in the UK learning

disability

> means having an IQ less than 70, which does not apply to either AS

or HFA;

> whereas learning difficulties apply across the board and both AS

and HFA

> have those.

>

> in England

>

>

>

>

>

>

[Guest guest]

Yes, this is very true. I know because my oldest son age 11 has an IQ measure of 119 but has an IEP since age 5 and the school districts have never tried to deny his needs because of this....Charlotte <scottdesigns@...> wrote: , that is not the case at all in the US. May children with averageIQ's have learning disabilities. Here an IQ of less than 70 in mentalretardation. NOT the same as a learning disability.-Charlotte -----Original Message-----From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of RowellSent: Tuesday, April 25, 2006 3:42 AMAutism and Aspergers Treatment Subject: Re: Re: hiHi there,> well ive been told that as dont have the learning disbiltys were as the> hfa

do?You have to be careful with terminology here: in the UK learning disability means having an IQ less than 70, which does not apply to either AS or HFA; whereas learning difficulties apply across the board and both AS and HFA have those. in England

[Guest guest]

Your right Trish, the only point I was making was that it does mean

something different here.

-Charlotte

Re: Re: hi

>

> Hi there,

>

> > well ive been told that as dont have the learning disbiltys were

as the

> > hfa do?

>

> You have to be careful with terminology here: in the UK learning

disability

> means having an IQ less than 70, which does not apply to either AS

or HFA;

> whereas learning difficulties apply across the board and both AS

and HFA

> have those.

>

> in England

>

>

>

>

>

>

[Guest guest]

I think you are misunderstanding the situation - in the UK having learning

difficulties is sufficient to get help in school, which includes an IEP or a

Statement of Special Educational Needs (our system is slightly different to

yours and so the IEPs are not equivalent). Anyone with ASD (regardless of

IQ) is going to have learning difficulties by the nature of their

communication differences, but not all have learning disabilities - which

you call mental retardation. The latter term is not generally used here

anymore.

Hence I was responding to a false distinction between HFA and AS as one

having learning disabilities and one not (posted by someone from England).

That is not true in the UK, nor is it true in the US - we would say neither

has learning disabilities and you would say both have!

>>Yes, this is very true. I know because my oldest son age 11 has an IQ

>>measure of 119 but has an IEP since age 5 and the school districts have

>>never tried to deny his needs because of this....

And as it happens my son's IQ is 145 and he had a statement of SEN.

in England

..

[Guest guest]

,

I think in different ways we were trying to say the same thing

-Charlotte

Re: Re: hi

I think you are misunderstanding the situation - in the UK having learning

difficulties is sufficient to get help in school, which includes an IEP or a

Statement of Special Educational Needs (our system is slightly different to

yours and so the IEPs are not equivalent). Anyone with ASD (regardless of

IQ) is going to have learning difficulties by the nature of their

communication differences, but not all have learning disabilities - which

you call mental retardation. The latter term is not generally used here

anymore.

Hence I was responding to a false distinction between HFA and AS as one

having learning disabilities and one not (posted by someone from England).

That is not true in the UK, nor is it true in the US - we would say neither

has learning disabilities and you would say both have!

>>Yes, this is very true. I know because my oldest son age 11 has an IQ

>>measure of 119 but has an IEP since age 5 and the school districts have

>>never tried to deny his needs because of this....

And as it happens my son's IQ is 145 and he had a statement of SEN.

in England

..

[Guest guest]

Hello all, Our son 7 has, I believe, AS. Doctors in this country, at least the ones I took him to thought he had eplipsy and treated him with tegretol for over a year. Although he had what looked like an eplieptic attack two years ago. he dosen't have attacks anymore. But here in Bangladesh, there's not much support. I was wondering to migrate to UK, AUSTRALIA or CANADA, thinking in those countries he might be having better treatment, if there's any. But friends say, immigration authorities might not be comfortable with a family who has one AS child. Any ideas anyone?Trish <trish459@...> wrote: Hi Charlotte:It really is an issue of terminology and the differing definitions that exist on either side of the Atlantic.Here in the US the term learning disabilities applies to those of

average IQ or better as you said. In the UK, learning disabled is a term that would be used to describe those people that here in the US would probably be described as mildly mentally retarded.My husband and I are now living in the US but are originally from Ireland so we have to be careful when talking to relatives back home so that they can understand what the real issues are regarding our son.Just my 2 cents worth. (or pennies worth or whatever).Regards,Trish>> , that is not the case at all in the US. May children with average> IQ's have learning disabilities. Here an IQ of less than 70 in mental> retardation. NOT the same as a learning disability.> -Charlotte > > Re: Re: hi> > Hi there,> > > well ive been told that as dont have the learning disbiltys were as the> > hfa do?> > You have to be careful with terminology here: in the UK learning disability > means having an IQ less than 70, which does not apply to either AS or HFA; > whereas learning difficulties apply across the board and both AS and HFA > have those.> > in England> > > > > >

[Guest guest]

>>Our son 7 has, I believe, AS. Doctors in this country, at least the ones I

>>took him to thought he had eplipsy and treated him with tegretol for over

>>a year. Although he had what looked like an eplieptic attack two years

>>ago. he dosen't have attacks anymore.

But here in Bangladesh, there's not much support. I was wondering to migrate

to UK, AUSTRALIA or CANADA, thinking in those countries he might be having

better treatment, if there's any. But friends say, immigration authorities

might not be comfortable with a family who has one AS child. Any ideas

anyone?<<

I don't think you would be refused entry to the UK because of having an AS

child, but the immigration rules are strict and you may not qualify on other

grounds. You will have to look into what they are.

I don't know what you mean by 'treatment' - support from the NHS, social

services and even education can be hard to come by. There is no 'treatment'

for ASD as such. In the UK it is mostly an education issue, and that is

where the knowledge and expertise is concentrated - at least that which can

be accessed most easily. But it is patchy.

Social environment is the most important thing, and uprooting an ASD child

can be very difficult. You may create more problems than you solve,

especially if his English is not good.

in England

[Guest guest]

His name is Tasmeem Mahboobsohel mahboob <inan3379@...> wrote: Hello all, Our son 7 has, I believe, AS. Doctors in this country, at least the ones I took him to thought he had eplipsy and treated him with tegretol for over a year. Although he had what looked like an eplieptic attack two years ago. he dosen't have attacks anymore. But here in Bangladesh, there's not much support. I was wondering to migrate to UK, AUSTRALIA or CANADA, thinking in those countries he might be having better treatment, if there's any. But friends say, immigration authorities might not be comfortable with a family who has one AS child. Any ideas anyone?Trish <trish459@...> wrote: Hi

Charlotte:It really is an issue of terminology and the differing definitions that exist on either side of the Atlantic.Here in the US the term learning disabilities applies to those of average IQ or better as you said. In the UK, learning disabled is a term that would be used to describe those people that here in the US would probably be described as mildly mentally retarded.My husband and I are now living in the US but are originally from Ireland so we have to be careful when talking to relatives back home so that they can understand what the real issues are regarding our son.Just my 2 cents worth. (or pennies worth or whatever).Regards,Trish>> , that is not the case at all in the US. May children with average> IQ's have learning disabilities. Here an IQ of less

than 70 in mental> retardation. NOT the same as a learning disability.> -Charlotte > > Re: Re: hi> > Hi there,> > > well ive been told that as dont have the learning disbiltys were as the> > hfa do?> > You have to be careful with terminology here: in the UK learning disability > means having an IQ less than 70, which does not apply to either AS or HFA; > whereas learning difficulties apply across the board and both AS and HFA > have those.> > in England> > > > > >

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[Guest guest]

Do you have to disclose that information?????????? in Lancaster, Casohel mahboob <inan3379@...> wrote: Hello all, Our son 7 has, I believe, AS. Doctors in this country, at least the ones I took him to thought he had eplipsy and treated him with tegretol for over a year. Although he had what looked like an eplieptic attack two years ago. he dosen't have attacks anymore. But here in Bangladesh, there's not much support. I was wondering to migrate to UK, AUSTRALIA or CANADA, thinking in those countries he might be having better treatment, if there's any. But friends say, immigration authorities might not be comfortable with a family who has one AS child. Any ideas anyone?Trish <trish459@...>

wrote: Hi Charlotte:It really is an issue of terminology and the differing definitions that exist on either side of the Atlantic.Here in the US the term learning disabilities applies to those of average IQ or better as you said. In the UK, learning disabled is a term that would be used to describe those people that here in the US would probably be described as mildly mentally retarded.My husband and I are now living in the US but are originally from Ireland so we have to be careful when talking to relatives back home so that they can understand what the real issues are regarding our son.Just my 2 cents worth. (or pennies worth or whatever).Regards,Trish>> , that is not the case at

all in the US. May children with average> IQ's have learning disabilities. Here an IQ of less than 70 in mental> retardation. NOT the same as a learning disability.> -Charlotte > > Re: Re: hi> > Hi there,> > > well ive been told that as dont have the learning disbiltys were as the> > hfa do?> > You have to be careful with terminology here: in the UK learning disability > means having an IQ less than 70, which does not apply to either AS or HFA; > whereas learning difficulties apply across the board and both AS and HFA > have those.> >

in England> > > > > >