Hi

[Guest guest]

Dear ,

Thanks for writing. I don't think people want to understand sick people. I will be praying for you and your surgery on Sept 7th. I hope it helps.

Computers can't replace human contact but it does help.

love,

[Guest guest]

sorry your fibro is in a flare up right now. i am sorry that you are in so much pain. i am hoping that you get much needed relief very soon. evelynjosie <josiedugan56@...> wrote: i am in a very bad fibromyalgia flare right now i hurt sooo much my back is bothering me so much and my nerves also josie

Get your email and more, right on the new .com

[Guest guest]

Feel better soon Josie!

Anne

[Guest guest]

Thank you smiling hugs hon. I agree with you people don't want to understand us at all. And yet sick people try to understand others so well don't we amazes you with me when I enter a hospital for an operation to be honest I normally look to comfort the person beside me. I don't have to say a word and normally it appears as if it just happens. My mother says to me how did that start why you I can't give her reasons on this type of thing. Out of a clear blue sky a family will ask me like do I think that person will be alright. Or something like that. I can give them comfort and compassion to the sick person next to me. But no one seems to have the answer what is wrong with me not so much as what but why is it. Hugs M <brenda.morey@...> wrote: Dear , Thanks for writing. I don't think people want to understand sick people. I will be praying for you and your surgery on Sept 7th. I hope it helps. Computers can't replace human contact but it does help. love,

How low will we go? Check out Messenger’s low PC-to-Phone call rates.

[Guest guest]

Helen, Bless your heart and your family members also, this has to be heart wrenching and you will all be in my thoughts.

Thanks,

-----Original Message-----From: [mailto: ]On Behalf Of angelbear1129@...Sent: Monday, August 07, 2006 7:15 PM ; heatherlkum@...Subject: Hi

We've been hectic around here... My MIL came out of her coma and told the doctors "enough She's ready to go see Jesus..." The family was called in again today... The girls finally got to see her, they took her out of ICU and put her in a room where we can come and go as we please plus the younger ones can see her now also... She has many, many issue's so the doc said it won't be long, 3 days to a week... She has stopped all medications except for pain meds and has stopped dialysis also... Hubby is doing alright at times, my FIL is ok, but he is so sad... They would be celebrating their 59th anniversary next month...

I will try and catch up tonight, but no promises... Hope all are doing as well as can be... I may not be on too often in the following days to come, will do my best...

((( Hugs )))

Helen

"When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate."

[Guest guest]

HI ,

I honestly don't think "healthy" people CAN understand. Unless you have been sick or have a close family member who is you don't. I am totally comfortable in hospitals as I spent so much time there with my daughter when she was younger. I hate it how some people are so nervous in hospitals, all you want is for them to pull up a chair and chat with you or just hang out and watch tv. Well we are awesome aren't we, the Lord has blessed us in so many ways. You're amazing! so are we all. I'd rather hang with sick people than boring "well" people. I used to want to scream when one of my friends with a healthy kid would call and say oh this is so terrible my little has to take these horrible antibiotics for 10 whole days, she has an ear infection! How will I ever remember to give them to her??? GRRR I would be like try having your kid take meds the rest of their life! EVERY DAY!! Not to mention having them sit still for a breathing treatment twice a day and having to beat on them for 20 minutes twice a day!!! And they knew Ang had CF!!! And nothing beats a good hospital screw up story. I totally freak people out with stories of stuff that has happened to Ang! and it is all true!!

love you,

[Guest guest]

I hope it goes away quick. suejosie <josiedugan56@...> wrote: now i have vertigo on the room is spning wish it would stop . havent had this in a long time. hope every one is ok josie For a REALLY HOT time check out http://www.peternoone.com and http://www.mikesmith1964.com

[Guest guest]

In a message dated 08/09/2006 14:06:58 GMT Daylight Time, tryfonas@... writes:

Anyone ever heard of Lapach, its South American leaves. ?

regards Chriso

I wondered if it could be similar to Samento?? Thats foirm the Amazonian rain Forset which we are using sor Strep.???

Luv caroline

xxx

[Guest guest]

my dry mouth is due to my meds i take i guess no one wants to answer my questions low thyroid. everyone elses questions get answered josiejosie <josiedugan56@...> wrote: i have low thyroid to begin with now they had incerease this is the 3 time increasing. dose this mean i am sick? i am so tired could this be from the low thyroid? i am confused could this be from the low thyroid josie~~~~ *** ~~~ *** ~~~ *** ~~~~The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator

email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~

*** ~~~~

[Guest guest]

Actually, I had planned on answering your question if

no one else had. If a question DOESN'T get answered

you just need to ask it again.

Yes, low thyroid can cause tremendous fatigue and a

mental fog. Are you sick? Something is causing your

thyroid to be low. You need to ask your MD what he

thinks about the cause. Adjusting your thyroid may

take several attempts to get the right dosage. If you

get too much you will be jittery, nervous, sweaty and

could go all the way to a heart attack so be glad that

they are being careful in their dosage adjustments and

not putting you through hyperthyroid becaused I can

tell you from experience THAT'S no fun.

Willow

--- josie dugan <josiedugan56@...> wrote:

> my dry mouth is due to my meds i take i guess no one

> wants to answer my questions low thyroid. everyone

> elses questions get answered josie

> josie <josiedugan56@...> wrote: i have low

> thyroid to begin with now they had incerease this is

> the 3

> time increasing. dose this mean i am sick? i am so

> tired could this

> be from the low thyroid? i am confused could this be

> from the low

> thyroid josie

>

>

>

>

>

>

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Being Sick Community

>

>

> Message

>

Archives-/messages

>

> Chat:- Scheduled Chats at

> /chat

>

> Bookmarks:-

> Add a website URL you have found useful.

> /links

>

> Personal Complaints or problems:-

> Please contact a moderator

> email: -owner

>

> Subscription Details:-

> 1) Individual email - means that every email sent to

> the list you receive.

> 2) Daily Digest - sends you 25 messages in one

> single email for you to browse. This is an excellent

> option if you receive alot of email.

> 3) Web only/No mail - means that you can pop into

> groups at your convenience and receive no

> email.

>

> To modify your subscription settings please visit:-

> /join

>

> To subscribe or unsubscribe please email:-

> -subscribe

> -unsubscribe

>

> This group is not intended to diagnose or treat

> illnesses. No one on this group is qualified to

> diagnose medical conditions. If you feel you need

> medical attention, seek the advice of a qualified

> physician.

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> When nothing is sure, everything is possible.

>

> --- Margaret Drabble

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

>

>

[Guest guest]

Hi, Josie Dugan! I'm new and I will tell you I have bad dry mouth!

I told someone else this but I don't see it, it hit 3 days ago and

it's awful! So I'm right there with you girl! Blessings~Doe

-- In , josie dugan <josiedugan56@...> wrote:

>

> my dry mouth is due to my meds i take i guess no one wants to

answer my questions low thyroid. everyone elses questions get

answered josie

>

> josie <josiedugan56@...> wrote: i have low thyroid to begin with

now they had incerease this is the 3

> time increasing. dose this mean i am sick? i am so tired could this

> be from the low thyroid? i am confused could this be from the low

> thyroid josie

>

>

>

>

>

>

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Being Sick Community

>

>

> Message Archives-/messages

>

> Chat:- Scheduled Chats at

> /chat

>

> Bookmarks:-

> Add a website URL you have found useful.

> /links

>

> Personal Complaints or problems:-

> Please contact a moderator

> email: -owner

>

> Subscription Details:-

> 1) Individual email - means that every email sent to the list you

receive.

> 2) Daily Digest - sends you 25 messages in one single email for you

to browse. This is an excellent option if you receive alot of email.

> 3) Web only/No mail - means that you can pop into groups at

your convenience and receive no email.

>

> To modify your subscription settings please visit:-

> /join

>

> To subscribe or unsubscribe please email:-

> -subscribe

> -unsubscribe

>

> This group is not intended to diagnose or treat illnesses. No one

on this group is qualified to diagnose medical conditions. If you

feel you need medical attention, seek the advice of a qualified

physician.

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> When nothing is sure, everything is possible.

>

> --- Margaret Drabble

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

>

>

[Guest guest]

hi welcome to the groupi just dont have the dry mouth once in a while its a every day thing with me i have a large glass of water in the morning than sometimes tea or sprite during the day. my neb makes me dry and meds also cant stop them. i also have swollen ankle alot thats maybe due to my blood pressure havent figured out that yet when i go to the doctor in oct i will tell her i made it 4 months with out seeing her i am proud of my self josieDoe <beautysleeps1@...> wrote: Hi, Josie Dugan! I'm new and I will tell you I have bad dry mouth!I told someone else this but I don't see it, it hit 3 days ago and it's awful! So I'm right there with you girl! Blessings~Doe-- In , josie dugan wrote:>> my dry mouth is due to my meds i take i

guess no one wants to answer my questions low thyroid. everyone elses questions get answered josie> > josie wrote: i have low thyroid to begin with now they had incerease this is the 3 > time increasing. dose this mean i am sick? i am so tired could this > be from the low thyroid? i am confused could this be from the low > thyroid josie> > > > > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Being Sick Community> > > Message Archives-/messages> > Chat:- Scheduled Chats at > /chat> > Bookmarks:-> Add a website URL you have found useful.> /links> > Personal Complaints or problems:-> Please contact a moderator > email:

-owner > > Subscription Details:-> 1) Individual email - means that every email sent to the list you receive.> 2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.> 3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.> > To modify your subscription settings please visit:- > /join> > To subscribe or unsubscribe please email:-> -subscribe > -unsubscribe > > This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.> ~~~~ *** ~~~ *** ~~~ *** ~~~~> When

nothing is sure, everything is possible.> > --- Margaret Drabble> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> >

[Guest guest]

Dear Josie,

don't feel bad, I am late reading mail & I would have answered if I had a clue.

We love you!

love,

Re: hi

my dry mouth is due to my meds i take i guess no one wants to answer my questions low thyroid. everyone elses questions get answered josiejosie <josiedugan56 > wrote: i have low thyroid to begin with now they had incerease this is the 3 time increasing. dose this mean i am sick? i am so tired could this be from the low thyroid? i am confused could this be from the low thyroid josie~~~~ *** ~~~ *** ~~~ *** ~~~~The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

Welcome and give us your complete story -see others on file for how to present it.

Also you can send all lab tests.

Trust you have been advised about the DASH diet by the experts you have seen?;-)

May your pressure be low!

C.E. Grim, B.S., M.S., M.D.

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

[Guest guest]

hi racina wellcome i have conns snydrome 2 i found out last year .i only

have one tumar ... have been to the doctors for years saying iwas ill but

got know were .15 years later i found out .conns as realy messed up my live

but am trying too build it back .can u tell me a little about ur experience.

love mandy

>From: " RaCina " <racina@...>

>Reply-hyperaldosteronism

>hyperaldosteronism

>Subject: Hi

>Date: Thu, 19 Oct 2006 06:33:55 -0000

>

>I am new to the group, just diagnosed with Conns disease after

>bloodwork and CT scan showing tumors on both adrenals. I am need of

>more education of this disease and reading of other folks experiences.

>RaCina

>

>

_________________________________________________________________

Be the first to hear what's new at MSN - sign up to our free newsletters!

http://www.msn.co.uk/newsletters

[Guest guest]

Welcome to the group! I was diagnosed with Conn's after 10 years of

suffering mis-diagnoses & high blood pressure treatments. Last year,

I had Laparoscopic surgery to remove the 2cm tumor and the left

Adrenal. I am now full recovered, but everyone has different results

& outcomes. You will find nothing but the most supportive group of

people on this forum, all of whom share your fears, experiences and

concerns. You will also find the most specific & helpful type of

information anywhere on the web, moderated by our local expert, Dr.

Grim. Use the search feature to find numerous discussions on the

topics you're looking for. We have all posted many, many detailed

stories about all of this.

Good luck, and know that you've found the greatest place to start

your research and get on the road to better health!

Fondly,

-Kip

>

> hi racina wellcome i have conns snydrome 2 i found out last

year .i only

> have one tumar ... have been to the doctors for years saying iwas

ill but

> got know were .15 years later i found out .conns as realy messed

up my live

> but am trying too build it back .can u tell me a little about ur

experience.

> love mandy

>

>

> >From: " RaCina " <racina@...>

> >Reply-hyperaldosteronism

> >hyperaldosteronism

> >Subject: Hi

> >Date: Thu, 19 Oct 2006 06:33:55 -0000

> >

> >I am new to the group, just diagnosed with Conns disease after

> >bloodwork and CT scan showing tumors on both adrenals. I am need

of

> >more education of this disease and reading of other folks

experiences.

> >RaCina

> >

> >

>

> _________________________________________________________________

> Be the first to hear what's new at MSN - sign up to our free

newsletters!

> http://www.msn.co.uk/newsletters

>

[Guest guest]

Welcome Cass,

I'm . If you read any of my posts you know I am a train wreck. I can't repeat my crap now. Glad you joined. You will find lots of great friends and these are incredible people here.

love,

[Guest guest]

Kip

Glad to hear someone had the surgery and recovered.

I waited 13 years to be correctly diagnosed with

Conn's, my surgery is this Wednesday the 25th.

I am hoping for a complete cure because I cannot

tolerate any of the BP medications. I will update the

group when I am able.

I have found you do not get adequate care unless you

keep fighting for it.

The nephrologist who I was finally referred to and who

became my PCP in August has left town and his patients

are without a primary doc. My HMO has given me 30

days from Oct 8th to find another primary. We are

going to switch our health insurance plan to one that

does NOT require PCP referals to specialists but that

won't take effect till January 1. I am hoping I can

get by with the surgeon and the endocrinologist for

now,they are both at a University teaching hospital in

another city.

I have no faith in any of the local docs. A good

friend, another RN,just died of non hodgkins lymphoma

2 weeks after diagnosis, a supposed " sudden onset "

lymphoma. An infection set in after the 1st round of

chemo. That killed her. She chose to stay local, at

the hospital she worked for, rather than seek out a

specialty center.

To all members of the group still trying to get

appropriate treatment, don't give up, do your research

and fight for your health, you are worth it.

__________________________________________________

[Guest guest]

,

good luck on your surgery this coming wednesday I can only imagine

what must be going thru your mind at this point, after 13 years of

suffering...what i was wondering is, what made you decide on the

surgery? do you have a tumor on one side? did you have venous sampling

done? you said that you cannot tolerate the BP meds, i would guess

that was a reason for surgery right there...and sorry in advance if

you have given us your story previously and i have just forgotten or

gotten you mixed up with someone else, that short term memory thing is

a big problem for me...

it is my understanding that if PA can be managed with meds, than that

is the way to go, even foregoing venous sampling if you are

controlling the symptoms well with meds...was this your experience?

personally, i have seen the damage long term uncontrolled hypertension

has taken on my body, and i am not sure that it wouldn't be worth the

risk of venous sampling, and possibly surgery depending on the outcome

of the AVS, to be withing grasp of a cure...kind of an awesome

possibility...

anyway, my prayers will be with you on Wednesday, God Bless!!

Kim in MN

>

> Kip

>

> Glad to hear someone had the surgery and recovered.

> I waited 13 years to be correctly diagnosed with

> Conn's, my surgery is this Wednesday the 25th....

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Kip,

it is always great to hear from someone who had the surgery and is

'recovered'. Wondering, besides the obvious benefits of lower BP and

normal K, did you find that you also just felt better? You know, that

persistent malaise, did that go away? did you ever get headaches from

your PA and did they go away after your surgery? Do you still need to

take meds, and if so, what kinds?

Thanks in advance for putting up with my questions, i really

appreciate your input!

Kim in MN

>

> Welcome to the group! I was diagnosed with Conn's after 10 years of

> suffering mis-diagnoses & high blood pressure treatments. Last year,

> I had Laparoscopic surgery to remove the 2cm tumor and the left

> Adrenal. I am now full recovered, but everyone has different results

> & outcomes.

[Guest guest]

>do you have a tumor on one side? did you have venous

>sampling

>done? you said that you cannot tolerate the BP meds,

>i would guess

>that was a reason for surgery right there...and sorry

>in advance if

>you have given us your story previously and i have

>just forgotten or

>gotten you mixed up with someone else,

Kim

That's ok if you forgot the story, it was long and

under " shotzie " my nickname.

I have a tumor on the left adrenal and I had AVS which

showed the excess aldosterone production coming from

that side. I was then sent to an endocrinologist and

from there a surgeon in a different city as no one

here deals with the adrenals.

I was given every possible med over the 13 years and

had problems with every one of them without good

control of my BP. The readings got higher in 2003

and in 2004 my potassium levels started to drop but no

one put together the symptoms to diagnosis

hyperaldosteronism until I finally was referred to a

nephrologist in July '06.

He did a serum aldosterone/cortisol/renin test which

showed high aldosterone levels, I then had a renal

artery MRA which showed " beading " on the right renal

artery, this was followed with a CT angio of the renal

arteries again showing the " beading " meaning the

possibility of Fibromuscular Dysplasia (FMD) and the

CT of the adrenals and kidneys showed the adenoma on

the left adrenal. We have a good interventional

radiologist locally so the AVS along with a renal

angiogram was ordered. The procedure went well, I

declined any sedation due to my multiple drug

allergies and sensitivities.

The endocrinologist said he would have done a saline

suppression test before the AVS but otherwise the

results of the AVS left no doubt in anyone's mind that

the left tumor was producing the aldosterone.

I was lucky that the nephrologist had his staff call

several endocrinologists' offices (in my HMO plan) to

see who was familiar with treating adrenal diseases.

Then that endocrinologist called the Mayo clinic to

review my case. They agreed surgery was indicated.

I have some reservations about going through surgery

but I haven't been able to function well for over a

year,I have so much muscle weakness with any exercise

that I cannot work or enjoy anything anymore,plus my

BP is so hard to control, even with a very strict

diet,

that I probably would stroke out sooner or later, so I

am willing to take my chances.

I was in very good shape prior to the hypokalemia, I

have always eaten well, never smoked, very infrequent

alcohol,used supplements, and I eat a non- processed,

fresh diet most of the time due to my many allergies.

My cholesterol numbers are ok, my inflammatory markers

are low, My lifestyle probably delayed the onset of

many of the hyperaldosteronism symptoms and effects

until the level got so high my body couldn't handle it

anymore.

Thanks for your prayers, I will let the group know how

it all turns out, good or bad

__________________________________________________

[Guest guest]

let us know when ya find out Josie...

i went to a pharmcay this afternoon and took my blood pressure i thougt oh my now whats going on it was 151/92 thats high for me i am going to the doctor tuesday the cut on my leg isnt healed yet that could be beacuse of predisione i cant spell sorry. i hope tomrrow i get a call from the doctor about my thyroid test i had thursday then i will let then know. josie

"When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate."

[Guest guest]

please keep us posted. i hope you are feeling better soon. evelynjosie <josiedugan56@...> wrote: i went to a pharmcay this afternoon and took my blood pressure i thougt oh my now whats going on it was 151/92 thats high for me i am going to the doctor tuesday the cut on my leg isnt healed yet that could be beacuse of predisione i cant spell sorry. i hope tomrrow i get a call from the doctor about my thyroid test i had thursday then i will let then know.

josie

Get your own web address for just $1.99/1st yr. We'll help. Small Business.

[Guest guest]

I did quiet a lot of research before I had these done. I have lived in the FL sunbelt for many years but I have always worn glasses with UV. Usually I also wear sun glasses as I am light sensitive. Since the transition glasses, the ones that darken when in bright lights. I have sunglasses that clip onto my regular glasses but inside so they still darken. That way I have double sunglasses on.

My daughter, type 1 diabetic for 37 years has a Hugh one that is easily spotted by the casual onlooker. Then she started feeling like there was something in her OTHER eye. That is what happened to me also. She uses the Baskim Eye Clinic in Miami. Because of the diabetes she must be extra cautious. The one that was bothering her was not visible except on close inspection. She has worked on a boat south of FL for many years and UV light reflects on water so even when inside, especially the wheel house where she usually is.

Before I scheduled the surgery my research had directed me to find a doctor who does a graft to fill in the hole from the pterigium to keep it from growing back. In both, first me and then my daughter's were deep, not something that can readily be removed with a spatula. I found there usually is some cornea damage but I did not expect it to be to the extent it appears. But when you have one unless it is away from the pupil it needs to be removed to prevent further damage. Also with both of us it took the "stick out of the eye" as it felt to us.

My vision had deteriated over the last few months that I used a hand held magnifying glass to work and that is difficult. The tech told me the other day that checking the 2nd eye in preparation for the surgery that my vision, with the perscription glasses is 70/20. The first eye is focused such that it is not good for close, like reading, and not far enough away.

"look around" That is what I am doing and that frustrates me more as I do not see anyone with the problems I have. I guess my cup is half empty.

Betty

Ptergium and Pinguecula

Click here: Ptergium and Pinguecula

http://www.oregoneyecenter.com/Pterygium.htm

"When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate."

[Guest guest]

Josie, good luck on your blood pressure. That can be scarry. Are you feeling okay? My thoughts and prayers will be with you. josie <josiedugan56@...> wrote: i went to a pharmcay this afternoon and took my blood pressure i thougt oh my now whats going on it was 151/92 thats high for me i am going to the doctor tuesday the cut on my leg isnt healed yet that could be beacuse of predisione i cant spell sorry. i hope tomrrow i get a call from the doctor about my

thyroid test i had thursday then i will let then know. josie