Hi

September 15, 2002

Hi Helen,

Hopefully you accomplish what you need to get

accomplished on your next admission to hospital.

Hopefully your blood pressure has decided to settle

down.

We miss you at Tuesday Chats. Veena, the lady from

England has been having a tough time of it as well.

Her surgery was postponed because of complications.

Wishing you all the best,

Take Care

Widebertha

--- Helen Pearson <Helen@...>

wrote:

<HR>

<tt>

& gt; My endocrinologist here in S'pore has increased

my

& gt; spironolactone to 200mg a day.

I take 200 mg a day - as soon as I get up so my BP is

great in the morning

and rises from then on until I go to bed.

& gt;Does the spiro affect your

& gt; periods?

I am spotting pretty much all the time now and am not

really sure when I am

& quot;on & quot;. A bit of a nuisance as I was due my

Pap smear and had to go in and

tell them why I couldn't have the test done and then

the nurse had to go and

ask the doctor and he had to go and talk with the

pharmasist - all the time

I am getting funny looks from the receptionist and

other ladies waiting.

Must get the hospital admission forms done tomorrow

and then I can tale them

in next Monday. I also am running out of

Spironolactone and will not have

quite enough to see me through to the 2nd/3rd October

so will have to get

another prescription filled......

Talk to you all & quot;soon & quot;.

Helen

</tt>

<td align=center><font size= " -1 "

color=#003399>

October 3, 2002

> Wasted most of the day today, in the beauty shop- trying to undo the

> mess I made last night with my daughter, playing around with red hair

> dye. Seems I havent been doing anything but basic maintenance all year,

> and been feeling like an old hag, and I have developed incredible white

> streaks recently. Well let me tell you, looking like a flourescent

> orangutang does NOT make one feel better! And I didnt save any $, cost

> me a fortune to fix it. I guess you should never put a red on new white

> hair, even if it says its temporary- it wont wash out. Believe me I

> tried, till I couldnt hold my arms up anymore and my scalp was sore. She

> couldnt believe I was laughing. Oh well, if thats the worst thing that

> happened today I'm happy as a lark. You guys understand!

I did that with green and blue dye after my hair was blonde streaked at

the hairdresser with my mother. She was mad at me for wrecking it

because it cost her a lot to get the streaks done (it was those foil

ones) but I thought that the green and blue would wash out after 6

washes like it said on the bottle.

CZ

October 4, 2002

)

Now , did you think to take a Pic for us ??? ) Sorry, Couldn't resist !!! Yes, you Did have a very Different day... In our book that iS a Good day!!! At least you and your Daughter had quality time together and I can bet she Never, Ever forgets about it ) Its called a Great Memory !!!

Hope you are able to slow down soon and start to think of yourself a little also...

((( Hairy Hugs ) )))

Helen

Wasted most of the day today, in the beauty shop- trying to undo the mess I made last night with my daughter, playing around with red hair dye. Seems I havent been doing anything but basic maintenance all year, and been feeling like an old hag, and I have developed incredible white streaks recently. Well let me tell you, looking like a flourescent orangutang does NOT make one feel better! And I didnt save any $, cost me a fortune to fix it. I guess you should never put a red on new white hair, even if it says its temporary- it wont wash out. Believe me I tried, till I couldnt hold my arms up anymore and my scalp was sore. She couldnt believe I was laughing. Oh well, if thats the worst thing that happened today I'm happy as a lark. You guys understand!

Hope you get nothing worse than a bad hair day tomorrow. Love,

Signature Creations by

PANDORASBOX8

October 14, 2002

No CZ, Your not whining!!! Many of us have tears go down our face because the pain is so bad!!! My migrains get to the point where I would like to hit my head into the wall, it would have to feel better than the pain the migrain is causing!!! So you whine, cry, yell all you want... Its called a relief valve!!!

I'm glad the birds are a help to you... it Helps to have something depend on you that takes your mind off of yourself for a little while...

Your CFS will always keep going into flares ( Hopefully it doen't last very long each time... CFS is nasty (

What are you going to sew??? When you are able too...

I hope and Pray that you will feel somewhat better real soon... Keep us posted...

((( Migrain Free Hugs )))

Helen

today is a very bad day. I am in so much pain that I am crying and I

wish that it would go away or that I would just curl up and die. I am

sorry for whining when most of you have so much worse things wrong with

you but i just wish there was an end to all this. the CFS is really bad

at the moment and every time I think it is getting bettter it gets so

much worse again and today i have a bad migraine too. i took phenergan

and valium and ibuprofen this morning before my normal seroquel and

luvox but it is not touching the pain and now i am really out of it from

all the medicines. today I wanted to get out my sewing machine from the

back room and clean it up and maybe try making some things but today is

not going to turn out that way. if it was not for my birds right now I

think I would go to the emergency department and give up fighting at

home now but my birds need me and I could not leave them like that. they

are being good today playing on one of the cages on a desk and i am glad

they are being good because today i am just not well enough to clean up

the other cages and set up their playgym yet.

sorry for whining. melanie I don ot know how you can cope having this

type of pain for so many days in a row. at least my migraines usually

are not that long lasting.

CZ

angelbear1129@...

October 15, 2002

Hi CZ. I'm so sorry, hope the migraine is gone. I dont think there is

anything worse. Vent away! I remember one time I was thinking if I

could just lift my head, I could shoot myself- but I dont have a gun.

Have to stop those things before they get that bad, or get to sleep

any way you can, and pray it is gone when you wake up. I used to take

2 aspirin & a 10mg valium, then if that didnt help a good pain pill

and a compazine suppository- I can usually count on that knocking me

out, and at least it stops the vomiting, so you dont feel like your

head is blowing off. Benadryl will usually put me to sleep also.

Sometimes drinking some strong coffee- for years they put caffiene in

headache meds, it helps if you have to stay awake. Hang in there, and

please feel better soon. Love,

> No CZ, Your not whining!!! Many of us have tears go down our face

because

> the pain is so bad!!! My migrains get to the point where I would

like to hit

> my head into the wall, it would have to feel better than the pain

the migrain

> is causing!!! So you whine, cry, yell all you want... Its called a

relief

> valve!!!

> I'm glad the birds are a help to you... it Helps to have

something depend

> on you that takes your mind off of yourself for a little while...

> Your CFS will always keep going into flares ( Hopefully it

doen't last

> very long each time... CFS is nasty (

> What are you going to sew??? When you are able too...

> I hope and Pray that you will feel somewhat better real soon...

Keep us

> posted...

> ((( Migrain Free Hugs )))

> Helen

>

> > today is a very bad day. I am in so much pain that I am crying

and I

> > wish that it would go away or that I would just curl up and die.

I am

> > sorry for whining when most of you have so much worse things

wrong with

> > you but i just wish there was an end to all this. the CFS is

really bad

> > at the moment and every time I think it is getting bettter it

gets so

> > much worse again and today i have a bad migraine too. i took

phenergan

> > and valium and ibuprofen this morning before my normal seroquel

and

> > luvox but it is not touching the pain and now i am really out of

it from

> > all the medicines. today I wanted to get out my sewing machine

from the

> > back room and clean it up and maybe try making some things but

today is

> > not going to turn out that way. if it was not for my birds right

now I

> > think I would go to the emergency department and give up fighting

at

> > home now but my birds need me and I could not leave them like

that. they

> > are being good today playing on one of the cages on a desk and i

am glad

> > they are being good because today i am just not well enough to

clean up

> > the other cages and set up their playgym yet.

> >

> > sorry for whining. melanie I don ot know how you can cope having

this

> > type of pain for so many days in a row. at least my migraines

usually

> > are not that long lasting.

> >

> > CZ

>

> angelbear1129@a...

October 17, 2002

In a message dated 10/17/02 8:54:30 PM Central Daylight Time,

karriemom@... writes:

> . She is in a school where her SI issues are being addressed. Which, by the

> way, is one of the schools that I'm a therapist at!!!!

> Sue mom to Kate 13 and Karrie 6 w/ds

>

Good way for you to keep an eye on things to Sue. LOL I hope things keep

going well for Karrie to. (and everyone elses kids...and may those having

problems soon get them solved)

Oh and I forgot to mention, she had a really great photo taken on picture

day. No cheesy grin.......the first school photo since preschool or K

(whenever it was that her ST dicided to try to get her to smile for the

picture and ever since it's been a disaster.)

Joy

October 17, 2002

I want a van I can drive w/my thumbs!!!!!!!

October 17, 2002

Hey Joy,

Do you think possibly the magic year is 12?????? too is having a

great year at Middle school and she is happy and every day she tells me it

was her " best day! " She's like a mayor and knows all the kids in the school

and is very outgoing and friendly to all.

too has bad days like yesterday when she refused to put her hat away -

its against the rules to wear hats and then she ran out of the classroom

because she said, 'her head was cold'! LOL shes getting savvy to boot!

She had a few other incidents yesterday too but then she told me she got an

81% on a geography test!!!!!! Can anyone out there believe that????? She

never got an 81 in anything before. (so i forgot all about the other

incidents).

She's also been getting 3's and 4's on her work ( 4 being the highest). Big

change from all 1's and 2's. Shes graded against herself so she can achieve

more that way!

Anyway, real happy here too. Very glad to hear all is well with . And

the most important thing is that our kids are happy and thriving, whatever

setting they are in!

~ Mom to 12 DS and Diabetes Type 1 and 8 NY

October 17, 2002

,

sounds wonderful for you and . :-) Reverse mainstreaming should work

pretty good I think.

One nice thing about MSAD is the school is so small that the kids in the sped

class do alot of things with the " normal' kids. (normal in inteligence i

guess, since they all have hearing issues lol) It's really is nice not to

have to agrue about things like academics, to not have listen to the she

can't do that do to her cognitive issues or some such crap like that that I

really got alot from her ST. I'm really interested to see if by the end of

the year when I hope she's developed more in communication (x crossing

fingers x ) if the issues in academics improve.

Joy

October 17, 2002

In a message dated 10/17/02 9:37:22 PM Central Daylight Time, Linman42

writes:

> Anyway, real happy here too. Very glad to hear all is well with . And

> the most important thing is that our kids are happy and thriving, whatever

> setting they are in!

>

sooo true. :-)

gee linda sounds like you really didn't need to take the year off to help get

adjusted to the new school. LOL

but I hope you're enjoying your quiet days. :-))

Joy

PS, maybe was having a bad day cause of PMS (hormone) stuff. :-Þ

October 17, 2002

Joy,

This is good to hear. is also doing much better in a more self

contained setting. He's had no aggressive behaviors so far (knock on wood!).

He's doing the usual stubborn stuff transitioning to his specials. I've asked

the school to try reverse mainstreaming (bringing some regular ed students into

the resource room). He's happy -- that is the most important thing. He also

prefers signing - and loves to finger spell. His school does have a hearing

impaired teacher who consults with his regular sped teacher. The augmentative

communication specialist left and they replaced her with a team of 5. They are

working on AC issues now It's so nice not to be stressed out (me and

!). The only concern I had was whether he is getting the academics.

is continuing to see a behavior psychologist at Kennedy Krieger at s

Hopkins. Whew -- some real good solid help. He also had a neuropsych and I

don't have the results yet (only a verbal " can't determine his full scale score

due to behaviors and communication " ). He has his annual checkup with Dr. Capone

in a few weeks. I'm really concerned that his seizure medication will be bumped

up. He's had a few seizures since the last neurology visit

Hi

Hi all. :-)

OK thought I'd give a school update. If you don't have the time go ahead and

delete, it seems to have gotten kinda long........ hehe.

As you may (or may not) recall, I told you that we had gotten into MSAD

(Mn state academy for the deaf) last spring. Well schools been in session

since just before labor day and so far it is going GREAT!! 6 weeks and she

will still wake up at 6:10 when I get her up and get dressed and go out the

door happy as a lark. She comes home happy to. and she is getting quite a

bit of academics (and very hands on work and this in middle school) the sped

class is small, 6 of them I believe plus most of them actually have their own

aides, they go on awsome field trips, as a class AND with the rest of the

middle school. I think the biggest thing tho is SHE is happy and enjoying

her learning experience. :-))

Of course that doesn't mean she hasn't had a couple of bad days. LOL But

their class won best of the best in the scarecrow festivile. Thier display

was called buggin out, this intertwined with their study of bugs in science.

:-)) They also went to Rondavu Island and they sent home a pic of her

getting her turn to scrape a deer hide. She was having a great time.

Oh and she is now spending Thurs. nights in the dorm. When she got home on

Fri. after the first time there she didn't want to speak to us, I think we

were in the dog house...so to speak, but the next week she took her overnight

bag with no problems so she was evidently just trying to show us who was

boss. LoL

Hmm, well that;s all I can think of right now. We will probably rewrite her

IEP in a few weeks after they get done evaluating her sign lanuage skills.

But even they are improving alot. Plus they are really big on finger

spelling which at her home school the ST and TODHI didn't push. Can you

tell I'm happy to? hehe

Anyway....to those who decide to try more self contained options, never ever

think you're failing your child, you may find that you are actually freeing

them. Each child is an individual. I never doubted this decision because it

was a school specifically for the deaf, I doubted it because I was unsure if

she would adapt well (and the one hour bus ride, lol). I still believe

immersion is the best way to learn a lanuage and she does seem to be learning

alot more. :-))

Ok I'll shut up now. hehe

Joy (Mom to soon to be a teen ager)

October 18, 2002

In a message dated 10/17/2002 8:38:58 PM Central Standard Time,

JTesmer799@... writes:

> OK thought I'd give a school update. If you don't have the time go ahead

> and

> delete, it seems to have gotten kinda long........ hehe.

HI Joy

Shame shame shame ......... you have not posted in forever ....... and I've

missed you

I am soooo glad school is going great for . Here it started out rocky but

after a few meetings I'm hoping we are on the right track My only gripe is

I'm having to really watch this year. I'm finding the Sped teacher teaching

things not on Sara's IEP, yes she's doing great on these new skills BUT she

is progressing slower than I want in areas that may need more time ......

sooooooo maybe the teacher should follow the IEP and work on those areas

hmmmmm

I always thought as Sara got older I could take more of a back-seat in her

education NOT I'm more involved than I want to be lol

Last night after reading your post it became clear to me that Sara is in a

rock and a hard place ....... she could probably use more one on one time and

less distractions to work on her objectives BUT the resource room is not

where she wants to be. Her behavior in there speaks for her wishes we have

little to no behavior problems in Reg Ed. She participates, and is

flourishing in the Reg Ed curriculum. She can tell you at her level all about

the topics she's studying. I wish I could whisk her off to a school/area that

could meet her needs. My county is clueless and she would never succeed if

fully included ...... in the areas; reading and math.

I know when she hits 6th grade they are going to push for total time in the

Sped room. Sara will scream!!!!!! my only hope is that Hubby will transfer

out of this area and we will move to an area more receptive to our kids

included. Really it would be much easier for me to have her placed in Sped

all day ...... " if " I could count on quality teaching but as it stands now

Sara would never accept this.

I am soooooo HAPPY for all of you parents who have the ideal situation

heehee I'm also envious too

Kathy mom to Sara 10

October 20, 2002

hi dede----my recipe for scrubs is_______light brown sugar (in a plastic

bag-not box) oil---safflower,almond, virgin oil (I use safflower) and

your choice of " fo's " or " eo's " ! so if you want to make 8ozs~1 cup of

sugar----1 cup of oil----and your fo's or eo's according to your

personal preference. mix all ingredients until all brown sugar lumps are

blended well and pour into 8oz plastic bottle. You can also do to the

thing with white sugar too! HTH-- Misty

http://community.webtv.net/mpw98/ForeverYoursATouch

October 21, 2002

Joy, Sounds like a great placement for . I am for choices for parents. I

wanted inclusion for when he was younger and now he needs a pull-out

arrangement because he needs more small group study. Parents know what is best

for their kids. I believe this with all my heart. We are the experts and we

know our children's learning styles. People who fight parent choice and the

choice of the entire spectrum of placements are the ones doing a detriment to

the rest.

Elaine