CPAP

[Guest guest]

I use the Mirage mask from ResMed. It is a "gel" like mask. I have been on CPAP for more than three years now. It only leaves two little dents in the forehead after taking it off in morning. I know how uncomfortable the masks can be - I had one that actually rubbed a bloody hole in my nose - but I was bound and determined to make the CPAP work for me. But I had a great respitority therapist who knew how to help me. Hang in there and ask for help.

~guin

RE: CPAP (was: Ejection Fraction - jumping)

Mike,

You mentioned “torture device”. I suspect that you haven’t found a mask, nasal pillows or other device that is comfortable. I haven’t either. Everything that I’ve used has irritated my nose or face. Did you find the same?

Norm

-----Original Message-----From: Mike Nolan [mailto:amnolan@...] Sent: Wednesday, January 21, 2004 3:07 PM Subject: Re: Re: Ejection Fraction - jumping

I too have this jumping sensation, especially if I lay on my back too long getting to sleep - I also have sleep apnea and use a CPAP torture devi......I mean machine. I was concerned for a while, but since I didn't get zapped or die, I figured it wasn't a big deal - It's good to know I am not alone..

Mike Nolan

Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Actually, I was just being a smart-ass - I too use the Mirage Ultra Mask and it's relatively comfortable. I started with the CPAP in 1986, and the improvements over the years have been incredible, much like the difference between my first AICD in 1995 and the current, much smaller version. My first CPAP machine had a "re-breather" bag like the bags used in the hospital - I used to smash it every time I rolled over which woke me up a lot. Time marches on.

Mike Nolan

RE: CPAP (was: Ejection Fraction - jumping)

Mike,

You mentioned “torture device”. I suspect that you haven’t found a mask, nasal pillows or other device that is comfortable. I haven’t either. Everything that I’ve used has irritated my nose or face. Did you find the same?

Norm

-----Original Message-----From: Mike Nolan [mailto:amnolan@...] Sent: Wednesday, January 21, 2004 3:07 PM Subject: Re: Re: Ejection Fraction - jumping

I too have this jumping sensation, especially if I lay on my back too long getting to sleep - I also have sleep apnea and use a CPAP torture devi......I mean machine. I was concerned for a while, but since I didn't get zapped or die, I figured it wasn't a big deal - It's good to know I am not alone..

Mike Nolan

Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

You can also look into the " Nasel Air " It works like an oxygen canella....it

fits around your ears and snuggly into your nose. No headgear to adjust,

hardly know your using it. Works great for me.

Jerry

>From: Guin Van Dyke <guin@...>

>Reply-

>

>Subject: Re: CPAP

>Date: Wed, 21 Jan 2004 23:23:41 -0800

>

>I use the Mirage mask from ResMed. It is a " gel " like mask. I have been

>on CPAP for more than three years now. It only leaves two little dents in

>the forehead after taking it off in morning. I know how uncomfortable the

>masks can be - I had one that actually rubbed a bloody hole in my nose -

>but I was bound and determined to make the CPAP work for me. But I had a

>great respitority therapist who knew how to help me. Hang in there and ask

>for help.

>~guin

> Re: Re: Ejection Fraction - jumping

>

>

>

> I too have this jumping sensation, especially if I lay on my back too

>long getting to sleep - I also have sleep apnea and use a CPAP torture

>devi......I mean machine. I was concerned for a while, but since I didn't

>get zapped or die, I figured it wasn't a big deal - It's good to know I am

>not alone..

>

>

>

> Mike Nolan

>

>

>

>

>

>

> Please visit the Zapper homepage at

> http://www.ZapLife.org

>

>

>

>------------------------------------------------------------------------------

>

[Guest guest]

Thanks, Guin. I’ll ask about it.

Norm

Re: CPAP

I use the Mirage mask from

ResMed. It is a " gel " like mask. I have been on CPAP for

more than three years now. It only leaves two little dents in the

forehead after taking it off in morning. I know how uncomfortable the

masks can be - I had one that actually rubbed a bloody hole in my nose - but I

was bound and determined to make the CPAP work for me. But I had a great

respitority therapist who knew how to help me. Hang in there and ask for help.

~guin

Re: Re: Ejection

Fraction - jumping

I too have this jumping sensation,

especially if I lay on my back too long getting to sleep - I also have sleep

apnea and use a CPAP torture devi......I mean machine. I was concerned for a

while, but since I didn't get zapped or die, I figured it wasn't a big deal -

It's good to know I am not alone..

Mike Nolan

[Guest guest]

Thanks, Jerry.

Norm

Re: CPAP

>Date: Wed, 21 Jan 2004 23:23:41 -0800

>

>I use the Mirage mask from ResMed. It is a " gel " like mask. I have

been

>on CPAP for more than three years now. It only leaves two little dents

in

>the forehead after taking it off in morning. I know how uncomfortable

the

>masks can be - I had one that actually rubbed a bloody hole in my nose

-

>but I was bound and determined to make the CPAP work for me. But I had

a

>great respitority therapist who knew how to help me. Hang in there and

ask

>for help.

>~guin

> Re: Re: Ejection Fraction - jumping

>

>

>

> I too have this jumping sensation, especially if I lay on my back

too

>long getting to sleep - I also have sleep apnea and use a CPAP torture

>devi......I mean machine. I was concerned for a while, but since I

didn't

>get zapped or die, I figured it wasn't a big deal - It's good to know I

am

>not alone..

>

>

>

> Mike Nolan

[Guest guest]

Anyone else wonder why so many of us have Sleep Apnea? Is there a direct relationship between it and our heart troubles?

[Guest guest]

Yes there is a direct relationship. My sleep Apnea study was "borderline" but they did something because of my heart issues which pushed it over the border!

~guin

Re: CPAP

Anyone else wonder why so many of us have Sleep Apnea? Is there a direct relationship between it and our heart troubles?

Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

,

From what I have read, sleep apnea is a

direct cause of heart troubles.

Norm

Re: CPAP

Anyone else wonder why so many of us

have Sleep Apnea? Is there a direct relationship between it and our heart

troubles?

[Guest guest]

As far as i know there is a direct relationship between sleep apnea and heart problems. If not treated sleep apnea can cause fatality.

Re: CPAP

Anyone else wonder why so many of us have Sleep Apnea? Is there a direct relationship between it and our heart troubles?

Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Thanks for the suggestions. Come to find out, the respiratory therapist,

who isn't a pediatric therapist, gave us the wrong mask. By blowing the air

into her nose, and with her breathing through her mouth, it made her feel

like her airway shut down. No wonder she freaked.

At this point, the pulmonary specialist wants her in the hospital for 3-5

days to make sure she will wear it, and that it fits her correctly. After

feeling bummed all day, I've actually decided it's probably better this way.

..at least I won't be the bad guy yet again. And it won't be 100% up to me to

make sure she complies.

She goes in on the 27th.

Thanks again!!

Sue mom to Kate 16 and Karrie 9 w/ds and other issues

-- CPAP

Sue,

I actually sleep with a CPAP...I don't know the differnce betweent hat and

the BiPAP but my machine has a button to start out the pressure low and

slowly increase it (this is done automatically). I had to do that at first

cause otherwise I felt like I was gagging but now I am use to it.. Hope

that helps.

Kathy Everett

[Guest guest]

d, me too. The sleep doctor said a lot of my problems copuld have been avoided if I had one years ago...but snoring was kinda' funny then... My ex said she would frequently time me to ogo two minutes without breathing..eyes rolled back and so tense you couldn't pull a needle outa my as......sorry. I thought when I awoke gasping I had just had a really bad dream. RTurns out it's a nightmare!! ahahahaha. My cpap was kinda' a finahling deal that I believe they really just need a sale that day. I didn't pay anything, They told me it was refurbished and my insurance Humana, paid for it. O keep ripping it off, and don't use it. Others I know take them on trips on their M/C's because they live withouyt it!! I ned to try it again. Deldannegrl <dannegrl2003@...> wrote: Ok how easy are they to get used to??? And does medicare pay for them?? My Dr said I had great tests results. Mild nerve damage in my legs, But he has already started trying to find the cause or at least eliminate other causes. I have several things that add to the nerve damage but he is going deeper. Now the sleep apnea... he said i "have severe, S E V E R E and did I mention very severe sleep apnea".. his words not mine. Cpap on order getting it

tomorrow.. i have had a sore neck and headache all day. love, d The art of living lies not in eliminating but in growing with troubles. -Bernard M. Baruch Check out the all-new beta - Fire up a more powerful email and get things done faster.

Have a burning question? Go to Answers and get answers from real people who know.

[Guest guest]

cool we can get used to them together! haha d

[go_deliman@...] wrote:

d,

me too. The sleep doctor said a lot of my problems copuld have been avoided if

I had one years ago...but snoring was kinda' funny then... My ex said she would

frequently time me to ogo two minutes without breathing..eyes rolled back and so

tense you couldn't pull a needle outa my as......sorry.

I thought when I awoke gasping I had just had a really bad dream.

RTurns out it's a nightmare!!

ahahahaha.

My cpap was kinda' a finahling deal that I believe they really just need a

sale that day. I didn't pay anything, They told me it was refurbished and my

insurance Humana, paid for it.

O keep ripping it off, and don't use it. Others I know take them on trips on

their M/C's because they live withouyt it!!

I ned to try it again.

Del

dannegrl <dannegrl2003@...> wrote:

Ok how easy are they to get used to??? And does medicare pay for

them?? My Dr said I had great tests results. Mild nerve damage in my legs, But

he has already started trying to find the cause or at least eliminate other

causes. I have several things that add to the nerve damage but he is going

deeper. Now the sleep apnea... he said i " have severe, S E V E R E and did I

mention very severe sleep apnea " .. his words not mine. Cpap on order getting it

tomorrow.. i have had a sore neck and headache all day.

love,

d

The art of living lies not in eliminating but in growing with troubles.

-Bernard M. Baruch

---------------------------------

Check out the all-new beta - Fire up a more powerful email and get

things done faster.

---------------------------------

Have a burning question? Go to Answers and get answers from real people

who know.

[Guest guest]

Danne,

My brother got his online but he's always been a cheap s o b. He said tha first night with it he fell in love, never slept better in his life. His wife loves it too - no more snoring. Good luck girl. I see the sleep doc on Wednesday, hopefully he'll say I'm just an insomniac.

SuZie

Next time I'm coming back as a cat

Ok how easy are they to get used to??? And does medicare pay for them?? My Dr said I had great tests results. Mild nerve damage in my legs, But he has already started trying to find the cause or at least eliminate other causes. I have several things that add to the nerve damage but he is going deeper. Now the sleep apnea... he said i "have severe, S E V E R E and did I mention very severe sleep apnea".. his words not mine. Cpap on order getting it tomorrow.. i have had a sore neck and headache all day.

love,

d

The art of living lies not in eliminating but in growing with troubles. -Bernard M. Baruch

Check out the all-new beta - Fire up a more powerful email and get things done faster.

[Guest guest]

My doc sat there and told my mom how he figured I had slept for the last several years. When he was finished mom said, ok doc the only problem I see in that is she has done that since she was a teenager. He told mom and probably even sooner. He said I will nap but never feel rested. The night I had the sleep study I NEVER got to REM sleep. He said for me to sleep sitting up til I get the CPAP. He also said it has probably been years since I had a dream. He could not stress just how severe my apnea really is. The guy will be here tomorrow to show me how to set it up and use it. I think he said I will be back at the sleep lab to spend the night getting the settings right. They have those Seally posture pedic beds and WOW it was comfy lol. love dsuzie <suzieandsandy@...> wrote: Danne, My brother got his online but he's always been a cheap s o b. He said tha first night with it he fell in love, never slept better in his life. His wife loves it too - no more snoring. Good luck girl. I see the sleep doc on Wednesday, hopefully he'll say I'm just an insomniac. SuZie Next time I'm coming back as a cat Ok how easy are they to get used to??? And does medicare pay for them?? My Dr said I had great tests results. Mild nerve damage in my legs, But he has already started trying to find the cause or at least eliminate other causes. I have several things that add to the nerve damage but he is going deeper. Now the sleep apnea... he said i "have severe, S E V E R E and did I mention very severe sleep apnea".. his words not mine. Cpap on order getting it tomorrow.. i have had a sore neck and headache all day. love, d The art of living lies not in eliminating but in growing with troubles. -Bernard M. Baruch Check out the all-new beta - Fire up a more powerful email and get things done faster. The art of living lies not in eliminating but in growing with troubles. -Bernard M. Baruch

Cheap Talk? Check out Messenger's low PC-to-Phone call rates.

[Guest guest]

My

CPAP was completely covered by insurance. I used it religiously at first,

but now, if I even bother to start off with it, I turn it off and neatly hang

the mask on the bed post sometime during the night in my sleep. Although

one morning I did wake up to find the machine still running and the mask on the

floor. I have a follow up with the sleep doc tomorrow. I know a guy

who uses his all night every night and takes it with him unless he’s

going hunting somewhere without electricity.

Re:

CPAP

d,

me too. The sleep doctor said a lot of my problems

copuld have been avoided if I had one years ago...but snoring was kinda' funny

then... My ex said she would frequently time me to ogo two minutes without

breathing..eyes rolled back and so tense you couldn't pull a needle outa my

as......sorry.

I thought when I awoke gasping I had just had a really

bad dream.

RTurns out it's a nightmare!!

ahahahaha.

My cpap was kinda' a finahling deal that I believe

they really just need a sale that day. I didn't pay anything, They told me it

was refurbished and my insurance Humana, paid for it.

O keep ripping it off, and don't use it. Others I know

take them on trips on their M/C's because they live withouyt it!!

I ned to try it again.

Del

[Guest guest]

,

     We named our daughter's mask her " pretty face " .  It took her about a week

to get used to it, but once she got used to it she can't be without it.  She

even asks for it when it is time for bed.  It sometimes help to use the " ramp "

feature on the machine to get them used to it.  The settings can be an issue

too.  If you live in a dry climate like we do, turn it all the way up to the

highest setting for the humidity.  Humid climate, lower setting.  Mask needs to

fit well so that air doesn't leak out from the sides.  That often will scare

them.  We found ourselves getting up for about the first week a few times a

night because would pull her mask and get it in the wrong spot, as a

result.  Her mask sometimes still ends up pushed to one side because she is a

right side sleeper.  Make sure the water reservoir is filled all the way up

with distilled water before putting the mask on.  The less you attract to the

machine after

putting it on, the better.  I hope this helps.  Our has been on CPAP for

2 years and she hasn't had black circles for eyes since!    

 

Rebekah

www.caringbridge.org/visit/laurafish

www.pamperedchef.biz/rebekahfish

[Guest guest]

CONTINUOUS POSITIVE AIRWAY PRESSURE

For anyone who has obstructive sleep apnea, what happens is the AIRWAYS involved

in regular breathing close up upon lying down due to the relaxation  of the

throat, tongue, and jaw....

Funny thing is, IT ALL HAS TO DO WITH OXYGEN doesn't it....Even the solution for

this is good AIR FLOW.

Lifelift helping me lose some weight would be fantastic as there is some thought

that weight loss can reduce the need for the machine.

MARY