Guest guest Posted May 15, 2012 Report Share Posted May 15, 2012 Wow Kajay, I'm happy you got a diagnosis girl! But, so sorry you have a positive for Lyme. Is it better to know? Yes, it is, even if the news is bad. Almost everyone with Morgellons has Lyme Disease, if not all. I'd still go see the Mobile doctor because there are things a LLMD knows that even a good local doc would not know. You will know along the road which makes most sense to continue with. I had someone recently say that eventually most of our LLMDs become our GPs, just because so many of our issues are Lyme and coinfection related. But actually for me, my local doc covers some issues, but not the Lyme issue and things related to coinfections. Local docs can get it ALL wrong in my not so humble opinion.You have real guts Kajay. I really admire you and your spunk! Just keep doing what your good intuition tells you is the road to take. We, as women, must learn to more and more trust the inner voice that tells us what we need to do next.From: "Kajay109" <morjella@...>"bird mites@groupscom" <bird mites >, finding1cure , GeorgiaLyme , "Lyme Rife" <Lyme_Rife >, DougPlus Sent: Tuesday, May 15, 2012 8:19:42 PMSubject: Diagnosed by Army doctor = good news I have just been diagnosed with Lyme by an Army doc. Turns out he didn't give me the old halfway test at all like I thought he did.He gave me the DNA test - I'm having trouble reading this to know what to tell you - in bold it says Borrelia burgdorferi DNA BLOODLyme Disease Ab IgG+lgM WBBorrelia burgdorferi Ab lgG NEGATIVEBorrelia burgdorferi 18kD Ab NON-REACTIVEBorrelia burgdorferi 23Kd Ab NON-REACTIVEBorrelia burgdorferi 28Kd Ab NON-REACTIVEBorrelia burgdorferi 30Kd Ab NON-REACTIVE Borrelia burgdorferi 39Kd Ab NON-REACTIVE Borrelia burgdorferi 41Kd Ab REACTIVE Borrelia burgdorferi 45Kd Ab NON-REACTIVE Borrelia burgdorferi 58Kd Ab NON-REACTIVE Borrelia burgdorferi 66Kd Ab NON-REACTIVE Borrelia burgdorferi 93Kd Ab NON-REACTIVEBorrelia burgdorferi Ab lGm NEGATIVE Borrelia burgdorferi 23Kd Ab lGm NON-REACTIVE Borrelia burgdorferi 39Kd Ab lGm NON-REACTIVE Borrelia burgdorferi 41Kd Ab lGm NON-REACTIVE Army doc said he had planned to give me Doxy a month at the time but figured it would take a year or more given how long I have probably had Lyme (1988). I told him I had found a Lyme literate doc out of state and asked what he thought about coordinating my care between the two to maximize the cost savings of using the post hospital plus the medical advantage of working with an LLMD.He said the minocycline is a good choice and I think I can go see him to monitor treatment, and go see the Mobile doc if needed. Of course the Mobile doc might nix that. Advice?Kajay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2012 Report Share Posted May 15, 2012 First of all Kayjay, that is so awesome that you got the news about your test. Although we all knew you had Lyme disease, it is so gratifying to see it reflected in the test. I am very happy to hear that your Army doc made the right call to send for a complete test of all the possibilities for Lyme. Looks like he did the Ab IgG + IgM WB which is basically the 188 and 189 on the IGeneX lab sheet (right Aa? or anyone), so I think you got the right test. Not sure which lab did it, but they caught it, which is what is important. As to the doctoring..well, my gut tells me that your Army Doc has been hitting things on the head and if it costs you nothing or very little, then I would definitely keep him/her in the picture. I would probably use the LLMD as a second opinion/consulting type of doctor to save money. He can verify that you are doing everything right and maybe see you every 3 months or so. That is just my opinion, but I have faith in our Armed Forces Medical Docs. And with all of the soldiers coming back with a variety of diseases, they may be pretty up to speed on what you are dealing with. What about Bart or Bab? Anything on that from either doc? Hang in there and keep on marching...Terry > > I have just been diagnosed with Lyme by an Army doc. Turns out he didn't give me the old halfway test at all like I thought he did. > He gave me the DNA test - I'm having trouble reading this to know what to tell you - in bold it says > > > Borrelia burgdorferi DNA BLOOD > Lyme Disease Ab IgG+lgM WB > Borrelia burgdorferi Ab lgG ��� ��� ��� NEGATIVE > > Borrelia burgdorferi 18kD Ab��� � ��� NON-REACTIVE > > Borrelia burgdorferi 23Kd Ab�� � ��� NON-REACTIVE > Borrelia burgdorferi 28Kd Ab����� ��� NON-REACTIVE > Borrelia burgdorferi 30Kd Ab����� ��� NON-REACTIVE > Borrelia burgdorferi 39Kd Ab����� ��� NON-REACTIVE > Borrelia burgdorferi 41Kd Ab������ REACTIVE > Borrelia burgdorferi 45Kd Ab����� ��� NON-REACTIVE > Borrelia burgdorferi 58Kd Ab����� ��� NON-REACTIVE > Borrelia burgdorferi 66Kd Ab����� ��� NON-REACTIVE > Borrelia burgdorferi 93Kd Ab����� ��� NON-REACTIVE > Borrelia burgdorferi Ab lGm������ ��� NEGATIVE > > Borrelia burgdorferi 23Kd AblGm � NON-REACTIVE > Borrelia burgdorferi 39Kd AblGm � NON-REACTIVE > Borrelia burgdorferi 41Kd AblGm � NON-REACTIVE > Army doc said he had planned to give me Doxy a month at the time but figured it would take a year or more given how long I have probably had Lyme (1988). I told him I had found a Lyme literate doc out of state and asked what he thought about coordinating my care between the two to maximize the cost savings of using the post hospital plus the medical advantage of working with an LLMD. > > He said the minocycline is a good choice and I think I can go see him to monitor treatment, and go see the Mobile doc if needed. Of course the Mobile doc might nix that. Advice? > > Kajay > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2012 Report Share Posted May 15, 2012 Here Here!!! Terry > > Wow Kajay, I'm happy you got a diagnosis girl! But, so sorry you have a positive for Lyme. Is it better to know? Yes, it is, even if the news is bad. Almost everyone with Morgellons has Lyme Disease, if not all. I'd still go see the Mobile doctor because there are things a LLMD knows that even a good local doc would not know. You will know along the road which makes most sense to continue with. I had someone recently say that eventually most of our LLMDs become our GPs, just because so many of our issues are Lyme and coinfection related. But actually for me, my local doc covers some issues, but not the Lyme issue and things related to coinfections. Local docs can get it ALL wrong in my not so humble opinion. > > > You have real guts Kajay. I really admire you and your spunk! Just keep doing what your good intuition tells you is the road to take. We, as women, must learn to more and more trust the inner voice that tells us what we need to do next. > > > > > Diagnosed by Army doctor = good news > > > > > > I have just been diagnosed with Lyme by an Army doc. Turns out he didn't give me the old halfway test at all like I thought he did. > He gave me the DNA test - I'm having trouble reading this to know what to tell you - in bold it says > > > > Borrelia burgdorferi DNA BLOOD > Lyme Disease Ab IgG+lgM WB > Borrelia burgdorferi Ab lgG NEGATIVE > > Borrelia burgdorferi 18kD Ab NON-REACTIVE > > Borrelia burgdorferi 23Kd Ab NON-REACTIVE > Borrelia burgdorferi 28Kd Ab NON-REACTIVE > Borrelia burgdorferi 30Kd Ab NON-REACTIVE > Borrelia burgdorferi 39Kd Ab NON-REACTIVE > Borrelia burgdorferi 41Kd Ab REACTIVE > Borrelia burgdorferi 45Kd Ab NON-REACTIVE > Borrelia burgdorferi 58Kd Ab NON-REACTIVE > Borrelia burgdorferi 66Kd Ab NON-REACTIVE > Borrelia burgdorferi 93Kd Ab NON-REACTIVE > Borrelia burgdorferi Ab lGm NEGATIVE > > Borrelia burgdorferi 23Kd Ab lGm NON-REACTIVE > Borrelia burgdorferi 39Kd Ab lGm NON-REACTIVE > Borrelia burgdorferi 41Kd Ab lGm NON-REACTIVE > > Army doc said he had planned to give me Doxy a month at the time but figured it would take a year or more given how long I have probably had Lyme (1988). I told him I had found a Lyme literate doc out of state and asked what he thought about coordinating my care between the two to maximize the cost savings of using the post hospital plus the medical advantage of working with an LLMD. > > He said the minocycline is a good choice and I think I can go see him to monitor treatment, and go see the Mobile doc if needed. Of course the Mobile doc might nix that. Advice? > > Kajay > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2012 Report Share Posted May 16, 2012 Thanks, I will take your advice! Kajay ------------------------------ On Wed, May 16, 2012 12:14 AM EDT Goldstein@... wrote: >Wow Kajay, I'm happy you got a diagnosis girl! But, so sorry you have a positive for Lyme. Is it better to know? Yes, it is, even if the news is bad. Almost everyone with Morgellons has Lyme Disease, if not all. I'd still go see the Mobile doctor because there are things a LLMD knows that even a good local doc would not know. You will know along the road which makes most sense to continue with. I had someone recently say that eventually most of our LLMDs become our GPs, just because so many of our issues are Lyme and coinfection related. But actually for me, my local doc covers some issues, but not the Lyme issue and things related to coinfections. Local docs can get it ALL wrong in my not so humble opinion. > > >You have real guts Kajay. I really admire you and your spunk! Just keep doing what your good intuition tells you is the road to take. We, as women, must learn to more and more trust the inner voice that tells us what we need to do next. > > > > > Diagnosed by Army doctor = good news > > > > > >I have just been diagnosed with Lyme by an Army doc. Turns out he didn't give me the old halfway test at all like I thought he did. >He gave me the DNA test - I'm having trouble reading this to know what to tell you - in bold it says > > > >Borrelia burgdorferi DNA BLOOD >Lyme Disease Ab IgG+lgM WB >Borrelia burgdorferi Ab lgG NEGATIVE > >Borrelia burgdorferi 18kD Ab NON-REACTIVE > >Borrelia burgdorferi 23Kd Ab NON-REACTIVE >Borrelia burgdorferi 28Kd Ab NON-REACTIVE >Borrelia burgdorferi 30Kd Ab NON-REACTIVE >Borrelia burgdorferi 39Kd Ab NON-REACTIVE >Borrelia burgdorferi 41Kd Ab REACTIVE >Borrelia burgdorferi 45Kd Ab NON-REACTIVE >Borrelia burgdorferi 58Kd Ab NON-REACTIVE >Borrelia burgdorferi 66Kd Ab NON-REACTIVE >Borrelia burgdorferi 93Kd Ab NON-REACTIVE >Borrelia burgdorferi Ab lGm NEGATIVE > >Borrelia burgdorferi 23Kd Ab lGm NON-REACTIVE >Borrelia burgdorferi 39Kd Ab lGm NON-REACTIVE >Borrelia burgdorferi 41Kd Ab lGm NON-REACTIVE > >Army doc said he had planned to give me Doxy a month at the time but figured it would take a year or more given how long I have probably had Lyme (1988). I told him I had found a Lyme literate doc out of state and asked what he thought about coordinating my care between the two to maximize the cost savings of using the post hospital plus the medical advantage of working with an LLMD. > >He said the minocycline is a good choice and I think I can go see him to monitor treatment, and go see the Mobile doc if needed. Of course the Mobile doc might nix that. Advice? > >Kajay > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2012 Report Share Posted May 16, 2012 Bingo! EVERYONE falling into the Lyme march. interesting, huh.Love and light,s From: Kajay109 <morjella@...> "bird mites@groupscom" <bird mites >; "finding1cure " <finding1cure >; "GeorgiaLyme " <GeorgiaLyme >; "Lyme_Rife " <Lyme_Rife >; "DougPlus " <DougPlus > Sent: Tuesday, May 15, 2012 11:19 PM Subject: Diagnosed by Army doctor = good news I have just been diagnosed with Lyme by an Army doc. Turns out he didn't give me the old halfway test at all like I thought he did.He gave me the DNA test - I'm having trouble reading this to know what to tell you - in bold it says Borrelia burgdorferi DNA BLOODLyme Disease Ab IgG+lgM WBBorrelia burgdorferi Ab lgG NEGATIVEBorrelia burgdorferi 18kD Ab NON-REACTIVEBorrelia burgdorferi 23Kd Ab NON-REACTIVEBorrelia burgdorferi 28Kd Ab NON-REACTIVEBorrelia burgdorferi 30Kd Ab NON-REACTIVE Borrelia burgdorferi 39Kd Ab NON-REACTIVE Borrelia burgdorferi 41Kd Ab REACTIVE Borrelia burgdorferi 45Kd Ab NON-REACTIVE Borrelia burgdorferi 58Kd Ab NON-REACTIVE Borrelia burgdorferi 66Kd Ab NON-REACTIVE Borrelia burgdorferi 93Kd Ab NON-REACTIVEBorrelia burgdorferi Ab lGm NEGATIVE Borrelia burgdorferi 23Kd Ab lGm NON-REACTIVE Borrelia burgdorferi 39Kd Ab lGm NON-REACTIVE Borrelia burgdorferi 41Kd Ab lGm NON-REACTIVE Army doc said he had planned to give me Doxy a month at the time but figured it would take a year or more given how long I have probably had Lyme (1988). I told him I had found a Lyme literate doc out of state and asked what he thought about coordinating my care between the two to maximize the cost savings of using the post hospital plus the medical advantage of working with an LLMD.He said the minocycline is a good choice and I think I can go see him to monitor treatment, and go see the Mobile doc if needed. Of course the Mobile doc might nix that. Advice?Kajay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2012 Report Share Posted May 18, 2012 We may not necessarily march in a straight line, but I get the picture LOL Terry > > Bingo! EVERYONE falling into the Lyme march. interesting, huh. > Love and light, > s > > > > ________________________________ > From: Kajay109 <morjella@...> > " bird mites@groupscom " <bird mites >; " finding1cure " <finding1cure >; " GeorgiaLyme " <GeorgiaLyme >; " Lyme_Rife " <Lyme_Rife >; " DougPlus " <DougPlus > > Sent: Tuesday, May 15, 2012 11:19 PM > Subject: Diagnosed by Army doctor = good news > > >  > I have just been diagnosed with Lyme by an Army doc. Turns out he didn't give me the old halfway test at all like I thought he did. > He gave me the DNA test - I'm having trouble reading this to know what to tell you - in bold it says > > > Borrelia burgdorferi DNA BLOOD > Lyme Disease Ab IgG+lgM WB > Borrelia burgdorferi Ab lgG          NEGATIVE > > Borrelia burgdorferi 18kD Ab       NON-REACTIVE > > Borrelia burgdorferi 23Kd Ab      NON-REACTIVE > Borrelia burgdorferi 28Kd Ab        NON-REACTIVE > Borrelia burgdorferi 30Kd Ab        NON-REACTIVE > Borrelia burgdorferi 39Kd Ab        NON-REACTIVE > Borrelia burgdorferi 41Kd Ab      REACTIVE > Borrelia burgdorferi 45Kd Ab        NON-REACTIVE > Borrelia burgdorferi 58Kd Ab        NON-REACTIVE > Borrelia burgdorferi 66Kd Ab        NON-REACTIVE > Borrelia burgdorferi 93Kd Ab        NON-REACTIVE > Borrelia burgdorferi Ab lGm         NEGATIVE > > Borrelia burgdorferi 23Kd AblGm  NON-REACTIVE > Borrelia burgdorferi 39Kd AblGm  NON-REACTIVE > Borrelia burgdorferi 41Kd AblGm  NON-REACTIVE > Army doc said he had planned to give me Doxy a month at the time but figured it would take a year or more given how long I have probably had Lyme (1988). I told him I had found a Lyme literate doc out of state and asked what he thought about coordinating my care between the two to maximize the cost savings of using the post hospital plus the medical advantage of working with an LLMD. > > He said the minocycline is a good choice and I think I can go see him to monitor treatment, and go see the Mobile doc if needed. Of course the Mobile doc might nix that. Advice? > > Kajay > Quote Link to comment Share on other sites More sharing options...
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