Terry

[Guest guest]

HI Terry:

I hope you are doing well and making a strong recovery from bypass surgery.

My father had this surgery (quintuple) over two years ago and he is doing

well although he also has Alzheimers.

Thanks for the book suggestions, I also have enjoyed these and found them

helpful. Take it easy, aloha, Kathy (H)

kathyh@...

At 01:09 PM 07/31/2000 -0400, you wrote:

>TERRY!

>

> I was wondering where you have been!! You say that all is well, so I'll

>have to trust you on that - but really - is there anything we can do to lend

>you a hand??

>

> My husband is now working the night shifts from 11pm to 7am. This always

>remind me of you! Have you slowed down at all?

>

> Will you be able to come to Chicago for hte conference?

>

> Your book suggestions are terrific - I had forgotten all about them!

>

>Lots of questions for you old friend! (not in age-just list membership!)

>

>please take care, wendy, in canada

>-----------------------------------

>>Hi,

>>

>>This is Terry in WI,

>>

>>Just getting back in the swing of things after having bypass surgery. All

>>is well and I'm back at work.

>>My daughter, age 10, was dxed with OCD when she was 9 and we found " Kids

>>Like Me " by Constance , and A Kids Guide To OCD, by Jake McDowell

>>(age 9 ), very helpful. We also used the videos,

>> " The Touching Tree " and " How to Respond to Obsessive Compulsive Disorder in

>>School Age Children " ( the Kids Panel) as teaching aides for both my

>>daughter and the school district where she attends school. Books and Videos

>>are available through the Obsessive Compulsive

Foundation.(www.ocfoundation.org )

>>

>>Hope this helps,

>>

>>Terry In WI

[Guest guest]

ugh! lol....Terry what town are you in?

Terri

Re: Map

>

>

> > yup - you forgot me.

> > Whitesboro

> > Chris

> >

> > Terri Wagner wrote:

> >

> > > Ok here's what I have...please let me know if I've left you out. I

feel

> like

> > > I've forgot a few people here...the phone has been ringing off the

hook

> and

> > > I can't keep my mind on the map.

> > > Penny

> > > Shaye

> > > M

> > > G

> > > Colleen

> > > Deb S

> > > and me

> > >

> > > Who else is there?

> > >

> > > Terri

> > >

> > >

[Guest guest]

I'm in Erieville

Terry

[Guest guest]

could cameron pass some of that sleepiness to nathan,

at age 9 he is an insomniac I swear, has been mostly

since a toddler, a good baby, but anymore 3-6hours a

nite, last nite about 3, and still going, he got up by

himself around 7am, fell asleep at 320am and its after

2pm going and going and going, most of our days are

like this, and they got out after lunch due to

snow/weather he is playing his gameboy queitly at

least. for now anyways.lol. shawna.

--- leah leah <okieleah@...> wrote:

>

> terry,

> cameron went to school today, but he doesn't seem

> better. he gets off bus

> around 400pm, he was sleeping by 445 pm....i had to

> shake and rattle and

> roll to wake him up for dinner....the kid has gotta

> eat, he's skin and bones

> now.... so he ate dinner and was back in bed by

> 730pm... i am so worried...

> i am taking him to another doc next week....i am

> just not satisfied with the

> answer...no kid should be this sleepy..... thanks

> for asking and good luck

> with the med supply people and trainer.... hope they

> are able to help

> out......tc leah

>

>

_________________________________________________________________

> Get your FREE download of MSN Explorer at

> http://explorer.msn.com

>

>

>

>

__________________________________________________

[Guest guest]

Hi Leah,

Can you believe I wrote back to you (a book as usual) and before I could

finish it, my computer crashed and now I have to start over again!

grrrrrrrrrrr! LOL Oh well, maybe that's God's way of telling me to shut

up! LOL Anyway, yes, I truly feel blessed with my children. Remember,

however, they are older now, not little kids! When your kids are older, you

will have the same experience! I can't say that I felt as blessed when they

were 5, 6, 7, etc. LOL Then they were big pains in the butt like all kids!

LOL I am so glad you are " back " ! I missed your posts alot. You are all

still in my prayers every day. I am sure that Cameron will be ok. I know

this has to be hell for you....waiting is the worst. Has he had apnea since

he was a baby or is it relatively new? I am so glad that you have access to

good medical care. Walter is certainly nationally known and respected.

I know it was really hard for me to start posting again. I just didn't have

the energy or something. But now that I have, I am glad I did. I do feel

alot better. There's so much support in this group. It is a blessing. I

think about you all the time. The down-side to the group is that we are so

spread out (all over the country) that we can't " be there " for each other.

Please know that I am there for you " in spirit " . Hang in there.

Terry

[Guest guest]

Terry,

I truly sympathize with what you are going through. The only thing I

could think of to add is can you take for a ride in the car. Brook

really loves this when he is going stir crazy on weekends or holiday breaks

with no school. I don't know how difficult it would be but it might really

be worth it. Sending good wishes to you and your family.

Marisa

[Guest guest]

Terry,

One more thought for , does he like bubbles. If he does you can buy

battery operated and musical bubble blowers. Brook has one that blows bubbles

and when the bubbles land on it ,iteither plays a melody or a musical note.

It looks like a large plastic ice cream cone with the cone part being green.

I think we got it at ToysR US. If you can't find it and think he might like

it I would be happy to send you mine. Let me know.

Marisa

Mom to Miles14, Brook11 and Gennie3

[Guest guest]

Hi Marisa,

That is so sweet of you! Thank you for the offer. We will check at Toys R

Us and I can also check at etoys. has always liked bubbles...that

might be right up his alley! Thanks again!

Terry

[Guest guest]

one thing i do because it seems like school is always out here too, with

snow and teacher inservices etc. i have some of the same programs on the

computer that nathan does at school and he will do these for awhile and

often stop requesting school, sara, (aid) or " kids " He is very routine, it

breaks his heart to not have school on sat,lol. but loves church on sundays.

shawna.

Re: terry

> Terry,

> I truly sympathize with what you are going through. The only thing I

> could think of to add is can you take for a ride in the car.

Brook

> really loves this when he is going stir crazy on weekends or holiday

breaks

> with no school. I don't know how difficult it would be but it might

really

> be worth it. Sending good wishes to you and your family.

> Marisa

>

>

>

[Guest guest]

In a message dated 4/12/01 3:16:15 PM Pacific Daylight Time,

writes:

> . I printed out a copy of Heaven's Very Special Child and

> made a few adaptations. I am going to take it to a printer this afternoon

> and have it done on parchment paper. Then I'm going to find a frame and

> have

> it at the Service on Saturday. Hopefully, it will give them something to

> remember the little guy by. Like the mortician, who is a former pastor,

> said, " At least you know he's Home! " Not a lot of comfort to them right

> now,

> but true none the less! If we can just hang on to that thought! Thank you

> so much for your prayers and concern. I can't tell you how much it helps!

>

Terry, what a beautiful idea! I am sorry, but I missed the post about this!

Sending many virtual hugs and prayers to all of you!

Love,

[Guest guest]

<< Terry, what a beautiful idea! I am sorry, but I missed the post about

this!

Sending many virtual hugs and prayers to all of you!

Love,

>>

,

I wrote that post when I turned on the computer without first checking to see

if Terry posted the news yet. Sorry Terry. Then when I checked the posts,

there wasn't one from Terry. I E-mailed Donna and Leah to see if they knew,

and they didn't. I posted before Terry had a chance to post the news.

Really sorry Terry. ^^^^ prayers^^^^

Gail

[Guest guest]

yes that is a very beatiful idea terry, did the parents also get footprints

etc from the baby, i know this was a little somthing some relatives found

helpful when they lost their baby boy a couple years ago.Everyone helped put

together a keepsake box, it was all they got, they didnt even get to hold

him, he past on inutero. shawna.

>From: Ltb3105@...

>Reply-

>

>Subject: Re: Terry

>Date: Thu, 12 Apr 2001 18:30:45 EDT

>

>In a message dated 4/12/01 3:16:15 PM Pacific Daylight Time,

> writes:

>

>

> > . I printed out a copy of Heaven's Very Special Child and

> > made a few adaptations. I am going to take it to a printer this

>afternoon

> > and have it done on parchment paper. Then I'm going to find a frame and

> > have

> > it at the Service on Saturday. Hopefully, it will give them something

>to

> > remember the little guy by. Like the mortician, who is a former pastor,

> > said, " At least you know he's Home! " Not a lot of comfort to them right

> > now,

> > but true none the less! If we can just hang on to that thought! Thank

>you

> > so much for your prayers and concern. I can't tell you how much it

>helps!

> >

>

>Terry, what a beautiful idea! I am sorry, but I missed the post about

>this!

>Sending many virtual hugs and prayers to all of you!

>

>Love,

>

>

>

>

[Guest guest]

How are all of you doing Terry? Thought about you a lot today. I hope and

pray that you are all healing.

Gail

[Guest guest]

Hi Gail & All,

I want to say thank you to all of you for your prayers and support and a

special Thanks to Leah and Gail who were there for me! Saturday was tough

but we all got through it. The service was very nice and I think it at least

gave some closure to Garrett and Touche. As my husband said, their lives are

forever changed, but they have been relying heavily on Faith and the support

of family to get them through this sad time. On a lighter note, my kids (and

their kids) all went home today, my Respite worker is back from vacation,

and I feel like there is light out there once more! LOL I love seeing all

my kids and grandkids, but our house is small and the chaos is unbelieveable

when they all stay here at one time! had a few Mellaril moments over

the weekend! LOL Thank you again to all of you for support and prayers!

Terry

PS. Did I mention that can get out of his cast? Oh yes! And get

out of it he does, every chance he gets! LOL

[Guest guest]

In a message dated 4/16/01 4:21:38 PM Eastern Daylight Time,

Imaddenmom@... writes:

<< Thank you again to all of you for support and prayers!

Terry

PS. Did I mention that can get out of his cast? Oh yes! And get

out of it he does, every chance he gets! LOL

>>

Terry,

I'm glad for you that this weekend is behind you now and you can move on.

Hope the kids can start anew and go on towards their future, closer together.

can get out of his cast? LOL Well, that must be a lot of fun to

get him back in it! Just how do you do that? LOL

Gail

[Guest guest]

Terry,

How are all of you doing? Been thinking about you. Your son and DIL holding

up? How about the cast, still on? LOL

Gail

[Guest guest]

Terry,

Yes, me too. How is everyone doing now? Hope you can get that cast off soon,

May 4th is not far away. Hope you are feeling better.

Marisa

[Guest guest]

Hi Gail,

We are all ok, thanks for asking. Garrett and Touche are managing.

is still in the cast, so to speak. He keeps taking it off. I called the

doctor on Friday to see if I could just put it on him at night like he

intends to do with the brace (I hope). He said we should try to " tough it

out " until we see him in two weeks. This is a man without any kids and for

sure has never dealt with a kid like . LOL Soooo, he pulls it off; I

put it back on and on and on. LOL

Terry

[Guest guest]

Thanks Marisa, I am feeling better although for a few days there it was

pretty tough. The cast comes off on May 4, in two weeks. We are ALL looking

forward to that! LOL We have been including you and your family in our

prayers. I hope all is well with you.

Terry

[Guest guest]

In a message dated 4/23/01 1:14:12 AM Eastern Daylight Time,

Imaddenmom@... writes:

<< Hi Gail,

We are all ok, thanks for asking. Garrett and Touche are managing.

is still in the cast, so to speak. He keeps taking it off. I called the

doctor on Friday to see if I could just put it on him at night like he

intends to do with the brace (I hope). He said we should try to " tough it

out " until we see him in two weeks. This is a man without any kids and for

sure has never dealt with a kid like . LOL Soooo, he pulls it off;

I

put it back on and on and on. LOL

Terry

>>

LOL Terry! Yep, gotta love those docs with all that knowledge, and no

understanding! Glad to hear the kids are hanging in there.

Gail

[Guest guest]

Terry,

Thanks we are hanging in here, my grandmother was a little better

yesterday at the hospital, although she may not really recover to where she

was before all of this happened. My sister Jackie who is an internist, my

sister and I went to visit yesterday.

We were asking the nurse some questions about how her labs were, etc.,

and the stupid nurse said that my Grandmother's systems were shutting down.

So Jackie said I'm her granddaughter and a physician and I'd like to look at

the labs. As a matter of fact everything had improved and she was more

responsive which my sister pointed out to the nurse. This nurse was really

insensitive and ignorant. We were really not to happy that that nurse decided

to tell us that. And my sister was wondering what the nurses are telling the

families of her patients at the hospital where she works.

Anyway we'll be back today to see how she is doing.

Thanks for keeping us in your prayers.

Marisa

[Guest guest]

Marisa,

It really is scary, isn't it?! You are really lucky that your sister is an

Internist and has access to the medical records. I have always thought that

one of the hardest parts of any hospitalization and/or illness is getting

competent medical care and information! Hang in there. We are praying for

you and your family.

Terry

[Guest guest]

Terry,

You know that is very interesting because Brook was seeing a pediatric

neurologist from the time he was 15 months and she never mentioned the

possibility of autism. We told her last year in August when we saw her for a

reoccurrence of seizures that we thought Brook also had autism and she

thought we were probably correct but wanted us to get him diagnosed by a

developmental pediatrician.

I am so sorry you had to go through the agony of a possible diagnosis of

progressive deteriorating brain disorder. We were in the same kind of hell

when Brook was seen by Dr. Umansky at Children's Hosp Oakland who was

supposed to be an expert on DS. He even denied that children with DS were

more likely to have seizures, which is completely incorrect. I think that was

pretty much what Dr. Umansky was trying to get across to us also that Brook

was so severe that he would never be able to do anything. That was the worst

day of my life and also why I have been so reluctant to see another

developmental pediatrician, who I feel will once again give me the bad news

that Brook is not doing very well etc.

Marisa

[Guest guest]

Terry,

Yes, definitely Terry. I don't find it easy to believe them when they tell

me he is talking either.LOL

Marisa

[Guest guest]

Terry,

I know how difficult it can be with Brook to take him anywhere. I never

take him to the grocery store anymore. Once in a while he goes to Costco and

ends up in the cart, but only if dh comes too. I used to take him more before

my daughter was born but after that there was no way to handle Brook and a

baby or toddler at the same time. I have had them both going in different

directions at the same time etc.

At his old school when I used to pick him up the aides had to help

because Gennie wanted to be carried and Brook wanted to take off somewhere.

Plus he hates shopping so why make him miserable.

This year however, his whole class goes on a fieldtrip every Friday and I

think it is doing him good. They still have to have a one on one for him

during these trips but he must be learning something about how to behave out

in public. We do take him out with us but only to certain places he would

enjoy or when my dh can come too. Sometimes he does well at Miles' basketball

games and sometimes he just wants out now! And I definitely think it is an

eye opener for the school to see how difficult it can be taking Brook out.

One of his goals in his IEP this year is to be able to tolerate an assembly

for more than X amount of minutes. He can't take all the noise and people and

they usually have a hard time controlling him, etc., and have to leave after

a little while. That is one of the reasons that I need my respite, because it

is so hard to take him anywhere.

Thank goodness my respite care provider can watch him tomorrow when we

have the prayer vigil for my grandmother and that Monday he will be in school

for the funeral. There is no way in the world you could take him to something

like that, and of course all family members will be there so they wouldn't be

able to watch him for me either.

Also my parents have arranged a private room at a restaurant after the

prayer vigil and my Mom said it was to help with Brook so he can wander

around but he wouldn't be able to leave the room. Otherwise usually my poor

dh has to hold on to him and reseat him every few minutes because he tries to

leave the table constantly. Restaurants can be very difficult especially if

it is a nice one and the meal takes time. Good Grief! What we go through!

Marisa

Mom to Miles 14, Brook 11, and Genevieve 3 yrs