Guest guest Posted July 16, 2012 Report Share Posted July 16, 2012 Sweetheart, I know you are distraught and I don't blame you in the least. But first consider that this pup has had a serious heart problem since you got her and fungus and bacteria make up our world whether we want it to or not. She could have been exposed to a fungus before she even came to you. What is important now is to understand what she is going through. What has the doctor told you? Is the heart condition her primary issue or is it the fungus? There is no point in worrying about the fungus if the heart is bleeding into her tissue. It sounds like the doctor has been treating her with steroids, which can help the heart but will leave her open to increased infection, therefore he also has her on antibiotics. When you can, take a moment and write down exactly what the doctor is telling you is wrong with her and what he recommends for treatment and why. I can better help you if I know more. As for the fungus. Fungi can be killed with light. But most of us do not have bright lights in our homes 24 hours a day. And I believe this fungus does seem to affect those with a compromised immune system and does not affect so much those individuals who are healthy. You must therefore get well in order to fight this. As for the black dots, yes they do appear on my skin. After I take a shower I will spread lotion on my skin and sure enough I start to have these little black dots forming. I assume they are coming from my skin. I try very hard to not freak out, but it is very scary knowing there is something hiding and possibly growing under your own skin. I have looked at some of this under a microscope and many times they are tiny little threads. Is this Morgellons? Quite possibly. I really don't know. I also have had the black dots since almost the beginning. They have not really gone away although they did seem to diminish when the mites were gone and I had stayed away. Should I move? I don't know. I have been very tempted to do so, but feel there is a good likelihood that it might just travel with me. I told a friend that I was very concerned that the fungus was coming back stronger than ever and I needed to have it tested. He actually got mad at me and told me to quit creating drama. That all I used to talk about were mites and the misery the mites were causing and how I could not stay home because of them. Then when I got back home, everything was pretty good and I even had a wonderful time with my daughter's wedding and family visits, etc. But over the past couple of weeks the fungus seems to be getting worse. I don't know why this is. Although we have had lots of rain followed by warm weather and I am thinking this may be encouraging its growth. Or it could be because I moved out my washer and dryer to clean under them and encountered all of this black stuff and I spread it into the house...I don't know. But I hardly think having my friend getting mad at me and essentially calling me some kind of drama queen was fair. (He later apologized and said he was sorry but was just so disappointed to hear that my problems had come back. Gee...he might have considered that my levels of disappointment were a bit higher than his own). My left foot hurts a lot, but not because of biting. Mostly it just aches. I figure this to be Barts as that is one of its symptoms. I am hopeful that abx will help that pain. The antifungals like Diflucan can help, but I have read where newer antifungals like Itraconazole work better. I have been taking 150mg of Diflucan every day for the past 90 days. It is perhaps making a difference. But I am also taking Nystatin. And a fairly powerful probiotic. There are different types of fungus which affect the feet as well and will cause itching. Using a good anti-fungal topical cream might be useful there. But you will have to use it consistently. The key with any type of medication is consistency. Some of these meds have to build up in your system before they start becoming effective. If you start on the Itraconazole, you might find it helps. If it does, I would encourage you to find a way to stay on it. I know at times it must seem like there is just too much to handle. And it probably is. So tackle things one at a time. Don't try to eat the whole Elephant at once, start with one bite. Look at your priorities and remember that you must stay healthy. It won't help for your dog to get well and then find out that you are too sick to care for her. Be strong. Have faith. Everyone here wants to help you. What part of the world do you live in? Perhaps I know someone near you. Let me know and as I find out more I will share it. Just like we all do here. But let me know about what the Vet says about your dog...exactly. I have several friends in the Vet community that I can talk with, but I need to know exactly what is going on with her. I hope I have said something that helps. Hang in there sweetheart. Terry > > > > Hi all, > > > > I'd like to run a few things by everyone, as I must admit I'm left quite confused (and still desperate) after reading everyone's helpful advice. > > > > On one hand, I hold my belief that bird mites are what has plagued me for two years now. What I feel seems consistent with many of the accounts I've read from others, to a T (or is it tee?). > > > > On the other hand, my eyes have been opened to the possibility of a fungus that apparently can either cause mite-bite/crawl-like symptoms, or can make one's body more attractive to mites. > > > > I'll be calling two LLMDs in my area tomorrow, and I plan to leave no stone unturned when I meet with him/her (I have two names). But since it seems that those of us unfortunate enough to live through this hell know more about it than most/all of the " experts, " I want to come armed with the right questions and suggestions. So, I want to run by each of you some of what I believe may be key clues, in hopes that I can steer the LLMD in the right direction. > > > > The clues: > > I've felt the crawls and bites for two years now. > > My dog scratches all the time, especially at night. > > My kids don't seem to feel it at all. > > My wife does, but not very often. > > Showering helps temporarily. > > I feel it more in certain areas, like my car. > > That said, I vacuumed the hell out of my car yesterday, and it's somewhat better. > > I often feel crawlies on my lower legs, usually many of them at the same time (I understand both mites and fungi can communicate chemically.) > > The bite sensations often come on my legs, balls (sorry), or scalp. > > I tested negative for Lyme, but the test was requested by my GP, so I don't have much confidence that the right test was done. In her defense, neither did she. > > I guess I'm mostly wondering how a fungus would attack in certain areas more often than others, and why it'd be more at night than in the day. And why would showering help if it's internal? > > > > Short of magical answers to those questions, I'd like to get people's input for what I should ask/suggest when meeting with the LLMD. I plan to ask to be tested for Lyme, Bartonella, and the presence of fungi in abnormal levels (is there a test for that?). But I'd welcome any other suggestions. I want to make sure my next visit is as productive as possible, as I'm sure you can all understand. > > > > Thanks, > > Matt > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2012 Report Share Posted July 17, 2012 ------------------------------ On Mon, Jul 16, 2012 02:24 PDT mitesbegone wrote: >Sweetheart, I know you are distraught and I don't blame you in the least. But first consider that this pup has had a serious heart problem since you got her and fungus and bacteria make up our world whether we want it to or not. She could have been exposed to a fungus before she even came to you. > >What is important now is to understand what she is going through. What has the doctor told you? Is the heart condition her primary issue or is it the fungus? There is no point in worrying about the fungus if the heart is bleeding into her tissue. It sounds like the doctor has been treating her with steroids, which can help the heart but will leave her open to increased infection, therefore he also has her on antibiotics. When you can, take a moment and write down exactly what the doctor is telling you is wrong with her and what he recommends for treatment and why. I can better help you if I know more. > >As for the fungus. Fungi can be killed with light. But most of us do not have bright lights in our homes 24 hours a day. And I believe this fungus does seem to affect those with a compromised immune system and does not affect so much those individuals who are healthy. You must therefore get well in order to fight this. As for the black dots, yes they do appear on my skin. After I take a shower I will spread lotion on my skin and sure enough I start to have these little black dots forming. I assume they are coming from my skin. I try very hard to not freak out, but it is very scary knowing there is something hiding and possibly growing under your own skin. I have looked at some of this under a microscope and many times they are tiny little threads. Is this Morgellons? Quite possibly. I really don't know. > >I also have had the black dots since almost the beginning. They have not really gone away although they did seem to diminish when the mites were gone and I had stayed away. Should I move? I don't know. I have been very tempted to do so, but feel there is a good likelihood that it might just travel with me. I told a friend that I was very concerned that the fungus was coming back stronger than ever and I needed to have it tested. He actually got mad at me and told me to quit creating drama. That all I used to talk about were mites and the misery the mites were causing and how I could not stay home because of them. Then when I got back home, everything was pretty good and I even had a wonderful time with my daughter's wedding and family visits, etc. But over the past couple of weeks the fungus seems to be getting worse. I don't know why this is. Although we have had lots of rain followed by warm weather and I am thinking this may be encouraging its growth. Or it could be because I moved out my washer and dryer to clean under them and encountered all of this black stuff and I spread it into the house...I don't know. But I hardly think having my friend getting mad at me and essentially calling me some kind of drama queen was fair. (He later apologized and said he was sorry but was just so disappointed to hear that my problems had come back. Gee...he might have considered that my levels of disappointment were a bit higher than his own). > >My left foot hurts a lot, but not because of biting. Mostly it just aches. I figure this to be Barts as that is one of its symptoms. I am hopeful that abx will help that pain. > >The antifungals like Diflucan can help, but I have read where newer antifungals like Itraconazole work better. I have been taking 150mg of Diflucan every day for the past 90 days. It is perhaps making a difference. But I am also taking Nystatin. And a fairly powerful probiotic. There are different types of fungus which affect the feet as well and will cause itching. Using a good anti-fungal topical cream might be useful there. But you will have to use it consistently. > >The key with any type of medication is consistency. Some of these meds have to build up in your system before they start becoming effective. > >If you start on the Itraconazole, you might find it helps. If it does, I would encourage you to find a way to stay on it. > >I know at times it must seem like there is just too much to handle. And it probably is. So tackle things one at a time. Don't try to eat the whole Elephant at once, start with one bite. Look at your priorities and remember that you must stay healthy. It won't help for your dog to get well and then find out that you are too sick to care for her. Be strong. Have faith. Everyone here wants to help you. What part of the world do you live in? Perhaps I know someone near you. Let me know and as I find out more I will share it. Just like we all do here. But let me know about what the Vet says about your dog...exactly. I have several friends in the Vet community that I can talk with, but I need to know exactly what is going on with her. > >I hope I have said something that helps. Hang in there sweetheart. > >Terry > > >> > >> > Hi all, >> > >> > I'd like to run a few things by everyone, as I must admit I'm left quite confused (and still desperate) after reading everyone's helpful advice. >> > >> > On one hand, I hold my belief that bird mites are what has plagued me for two years now. What I feel seems consistent with many of the accounts I've read from others, to a T (or is it tee?). >> > >> > On the other hand, my eyes have been opened to the possibility of a fungus that apparently can either cause mite-bite/crawl-like symptoms, or can make one's body more attractive to mites. >> > >> > I'll be calling two LLMDs in my area tomorrow, and I plan to leave no stone unturned when I meet with him/her (I have two names). But since it seems that those of us unfortunate enough to live through this hell know more about it than most/all of the " experts, " I want to come armed with the right questions and suggestions. So, I want to run by each of you some of what I believe may be key clues, in hopes that I can steer the LLMD in the right direction. >> > >> > The clues: >> > I've felt the crawls and bites for two years now. >> > My dog scratches all the time, especially at night. >> > My kids don't seem to feel it at all. >> > My wife does, but not very often. >> > Showering helps temporarily. >> > I feel it more in certain areas, like my car. >> > That said, I vacuumed the hell out of my car yesterday, and it's somewhat better. >> > I often feel crawlies on my lower legs, usually many of them at the same time (I understand both mites and fungi can communicate chemically.) >> > The bite sensations often come on my legs, balls (sorry), or scalp. >> > I tested negative for Lyme, but the test was requested by my GP, so I don't have much confidence that the right test was done. In her defense, neither did she. >> > I guess I'm mostly wondering how a fungus would attack in certain areas more often than others, and why it'd be more at night than in the day. And why would showering help if it's internal? >> > >> > Short of magical answers to those questions, I'd like to get people's input for what I should ask/suggest when meeting with the LLMD. I plan to ask to be tested for Lyme, Bartonella, and the presence of fungi in abnormal levels (is there a test for that?). But I'd welcome any other suggestions. I want to make sure my next visit is as productive as possible, as I'm sure you can all understand. >> > >> > Thanks, >> > Matt >> > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2012 Report Share Posted July 17, 2012 Terry amd Thank you for your concerns!ss I apreciate very much Im in Scotland terry thanks for posting the treatments I tried to reply yestrday but goes funny And I got holly home but she is a bit brighter but ill. So this whole thing started two an a half week ago I woke n she slumped fever n.ill Shes still like that n not happy But just a bit brighter Shr was coughing n spasms chest throat sore burning up critical temperature I thought it heart failure Inexperienced vet say she eat something She didnt Weekends of hell Spasms throAt Tongue swollen gagging fever Whole abdomen popping pain Rushed vet swinging heart failure Heart coping n no more but thought respiratory tract infection Possible pyrometra womb infection More abxs Rushed vet two day later holly just lying there abxs baytril no work coughing burn up abdomen pain to touch They keep overnight Scan.abdomen Say possible she has mm of pyometria but not enuf to warent op becoz heart Then.let her home Thursday they say possible memingitis or lyme disease co infection But I cannot aford all the tests so guessing game with meds Gave amoxycillin m flAgyl five tabs a day she no beter slumped in stomach spasm pAin with flagyl Burning up just lyin Blood poo with abx I phone vet says leave to rest n.heal She wasnt she,was slowly dying Fell over etc Satrday rushed to vet they v concerned Kept in hospital nine days No abx seemed to help So satrday she admired they did steroids For possible memingitis No change Them back on abxs , No Change Then.ultrasound Spleen enlarged Lymph nodes enlarged Then in space of week red white blood cells,n.platelets,rapidly dropped They were healthy to start with when tested her a week before Now anemic Wudnt able clot blood gums bleeding pads white paws Did. Needle biopsy spleen Lab said suggests fungus and protozoa infection But flagyl made no diference They arent giving anti fungals as they no enuf proof N I think im gona lose her n they day it isnt to do with the heart Vet didnt trust lab sugestion saying holly hadnt been abroad but I told about mites in other flat Told I worry I gave her bartonela Thet gave doxy two day only By end second day she a bit brighter Then they had to start on strong steroids as her red white blood count got damgerous low And half a baytril abx Been steroid since Friday Eating drinking able to walk about easier so they discharged yestrday Nothing more cam do becoz finances And I was hopeful as whem rushed in nine day before she was worse But she unhapy n stil bad fever every night Abdomen on fire Very weak tho she make wory Shakes when sleeping at times in unhealthy way Shes sore Platelets went up a tiny bit with steroids but if she got bang shed not clot Its touch n go Nurse her all I can But im devestated as I feel steroid just masking symptoms a bit Shes oll n we havent discovered why And they think her immune system may be atackimg its,own cells hence steroids to suposed her immunity Making her prone to infections If she got more infection wudnt be well enuf to fight it At one point vet say didnt think infection to do with heart However maybe abx no work as heart reseeding as only coping n no more Hate see her unhapy As she is nature wise the happiest wee pup I ever did know once she felt secure with her mama N folk n dogs She on baytrol two lot steroid gastropeotectant When she lay on bed next to me I got a sore throat N feel the fever I burn up come out sympathy Wunder fungal But no spores showed up in x ray tummy Dont think x ray lungs But theres,no money any more treatment I hate steroids But have to give But we arent geting to the botom of this N she may not have long left Amd heartbraking that it isnt even the heart that caused this I was so.pleased to get my baba home But she is,sad n cant go proper walk Baby walk toilet Its,floored her whatever it is And im mo money so cant get tests Sticks in mind needle spleen biopsy sayin fungal protozoa though So. I do feel terribly scared it this house amd or me I moved n took virtualy nothing But guess ur right terry n. Shes weaker cos heart No one,elses dog terminaly ill Frustrated as dunno what wrong with her or me Back vet tmoro but v little else can do now Thought of giving olivevleaf tincture becoz anti fungal but it wud build immune system. N steroids lowering libe system to.stop it atackimg itself Cant even give flea treatment as she no strong enuf Worried about that also Its heartbraking bit at least justnow shes home n eating chicken n rice Gentle music Probiotic for dog Homeopathy vitamins etc If only cud get to bottom.of it But its no possible Please pray as shes a wonderful litle dog Only had 100 lovely days with me Her other owners not nice I wear gloves to give her meds now If only cud do something Have read if fungus colonized lungs,they live two to five weeks without agresive treatment But vet not giving anti fungal as no definitive proof Broken heart xx ------------------------------ On Mon, Jul 16, 2012 02:24 PDT mitesbegone wrote: >Sweetheart, I know you are distraught and I don't blame you in the least. But first consider that this pup has had a serious heart problem since you got her and fungus and bacteria make up our world whether we want it to or not. She could have been exposed to a fungus before she even came to you. > >What is important now is to understand what she is going through. What has the doctor told you? Is the heart condition her primary issue or is it the fungus? There is no point in worrying about the fungus if the heart is bleeding into her tissue. It sounds like the doctor has been treating her with steroids, which can help the heart but will leave her open to increased infection, therefore he also has her on antibiotics. When you can, take a moment and write down exactly what the doctor is telling you is wrong with her and what he recommends for treatment and why. I can better help you if I know more. > >As for the fungus. Fungi can be killed with light. But most of us do not have bright lights in our homes 24 hours a day. And I believe this fungus does seem to affect those with a compromised immune system and does not affect so much those individuals who are healthy. You must therefore get well in order to fight this. As for the black dots, yes they do appear on my skin. After I take a shower I will spread lotion on my skin and sure enough I start to have these little black dots forming. I assume they are coming from my skin. I try very hard to not freak out, but it is very scary knowing there is something hiding and possibly growing under your own skin. I have looked at some of this under a microscope and many times they are tiny little threads. Is this Morgellons? Quite possibly. I really don't know. > >I also have had the black dots since almost the beginning. They have not really gone away although they did seem to diminish when the mites were gone and I had stayed away. Should I move? I don't know. I have been very tempted to do so, but feel there is a good likelihood that it might just travel with me. I told a friend that I was very concerned that the fungus was coming back stronger than ever and I needed to have it tested. He actually got mad at me and told me to quit creating drama. That all I used to talk about were mites and the misery the mites were causing and how I could not stay home because of them. Then when I got back home, everything was pretty good and I even had a wonderful time with my daughter's wedding and family visits, etc. But over the past couple of weeks the fungus seems to be getting worse. I don't know why this is. Although we have had lots of rain followed by warm weather and I am thinking this may be encouraging its growth. Or it could be because I moved out my washer and dryer to clean under them and encountered all of this black stuff and I spread it into the house...I don't know. But I hardly think having my friend getting mad at me and essentially calling me some kind of drama queen was fair. (He later apologized and said he was sorry but was just so disappointed to hear that my problems had come back. Gee...he might have considered that my levels of disappointment were a bit higher than his own). > >My left foot hurts a lot, but not because of biting. Mostly it just aches. I figure this to be Barts as that is one of its symptoms. I am hopeful that abx will help that pain. > >The antifungals like Diflucan can help, but I have read where newer antifungals like Itraconazole work better. I have been taking 150mg of Diflucan every day for the past 90 days. It is perhaps making a difference. But I am also taking Nystatin. And a fairly powerful probiotic. There are different types of fungus which affect the feet as well and will cause itching. Using a good anti-fungal topical cream might be useful there. But you will have to use it consistently. > >The key with any type of medication is consistency. Some of these meds have to build up in your system before they start becoming effective. > >If you start on the Itraconazole, you might find it helps. If it does, I would encourage you to find a way to stay on it. > >I know at times it must seem like there is just too much to handle. And it probably is. So tackle things one at a time. Don't try to eat the whole Elephant at once, start with one bite. Look at your priorities and remember that you must stay healthy. It won't help for your dog to get well and then find out that you are too sick to care for her. Be strong. Have faith. Everyone here wants to help you. What part of the world do you live in? Perhaps I know someone near you. Let me know and as I find out more I will share it. Just like we all do here. But let me know about what the Vet says about your dog...exactly. I have several friends in the Vet community that I can talk with, but I need to know exactly what is going on with her. > >I hope I have said something that helps. Hang in there sweetheart. > >Terry > > >> > >> > Hi all, >> > >> > I'd like to run a few things by everyone, as I must admit I'm left quite confused (and still desperate) after reading everyone's helpful advice. >> > >> > On one hand, I hold my belief that bird mites are what has plagued me for two years now. What I feel seems consistent with many of the accounts I've read from others, to a T (or is it tee?). >> > >> > On the other hand, my eyes have been opened to the possibility of a fungus that apparently can either cause mite-bite/crawl-like symptoms, or can make one's body more attractive to mites. >> > >> > I'll be calling two LLMDs in my area tomorrow, and I plan to leave no stone unturned when I meet with him/her (I have two names). But since it seems that those of us unfortunate enough to live through this hell know more about it than most/all of the " experts, " I want to come armed with the right questions and suggestions. So, I want to run by each of you some of what I believe may be key clues, in hopes that I can steer the LLMD in the right direction. >> > >> > The clues: >> > I've felt the crawls and bites for two years now. >> > My dog scratches all the time, especially at night. >> > My kids don't seem to feel it at all. >> > My wife does, but not very often. >> > Showering helps temporarily. >> > I feel it more in certain areas, like my car. >> > That said, I vacuumed the hell out of my car yesterday, and it's somewhat better. >> > I often feel crawlies on my lower legs, usually many of them at the same time (I understand both mites and fungi can communicate chemically.) >> > The bite sensations often come on my legs, balls (sorry), or scalp. >> > I tested negative for Lyme, but the test was requested by my GP, so I don't have much confidence that the right test was done. In her defense, neither did she. >> > I guess I'm mostly wondering how a fungus would attack in certain areas more often than others, and why it'd be more at night than in the day. And why would showering help if it's internal? >> > >> > Short of magical answers to those questions, I'd like to get people's input for what I should ask/suggest when meeting with the LLMD. I plan to ask to be tested for Lyme, Bartonella, and the presence of fungi in abnormal levels (is there a test for that?). But I'd welcome any other suggestions. I want to make sure my next visit is as productive as possible, as I'm sure you can all understand. >> > >> > Thanks, >> > Matt >> > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2012 Report Share Posted July 17, 2012 What is it with Doctors/Vets? They will treat you for everything but what you have. They use to listen to patients and believe them. Two days of Doxy? I'm disgusted. Seems they are OK running 100 test and charging you for them, but the simple, real need for anti-fungals or longer term Doxy can't be had. From: ILIKE TREES <wherearetheangels@...> bird mites Sent: Tuesday, July 17, 2012 4:25 AM Subject: Re: Re: black dts people say are fungus W Quote Link to comment Share on other sites More sharing options...
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