To Terry

[Guest guest]

Hi Terry,

You can read about the benefits of essential fatty acids and grapeseed extract

in

kids diets in Dr. Woods' book " How to Get Kids to Eat Great and Love

It! " (A lot is oriented towards babies and preschoolers so you may want to

browse

it at & Noble rather than buying it, if you have one near you.)

Dr. Wood (who is also my pediatrician) suggested the Usana supplements (in a

very

low key,

after thought sort of way) and referred me to a nurse she

respects who sells them. She suggested the Omega

fatty acids and grapeseed extract because there have been a number of

studies showing that they increase focus and reduce behavioral problems

for ADD kids, (also show promise for bi-polar kids, asthma/allergy suffers, and

Multiple Sclerosis).

Kelsey takes 1 t. of the Optomega oil in a smoothie every morning, plus 2

multi-vitamins (Usanimals) and 2 grapeseed pills (Proflavinol) w/breakfast. Then

1

add'l multi-vitamin and grapeseed with dinner. Evidently the grapeseed are also

big immune boosters (good preventative idea for PANDAS kids, huh?). When I

mentioned that Kelsey had just gotten over a long sinus infection she

gets every year, the nurse said she knew several people on the

supplements who were no longer getting these. So I

figure, at a minimum, it will keep us all healthier (Steve, , and I

are taking it too).

I'd suggest you begin by surfing a few web sites that were recommended

to me by the nurse we get the Usana products from:

www.usana.com (info about the founder who is a reputable scientist, even

by my husband Steve's standards..evidently he just opened a retreat-type center

down (www.sanoviv.com) in Mexico where people can

go for a two-week or so time period for intensive nutritional therapy.

He's studying the impact of nutrition on chronic diseases. The Usana site also

includes technical briefs with independent research that supposedly supports the

company's claims for clinical improvements in people who take the supplements.

(I

haven't reveiewed these yet though, so I can't say for sure.)

Also check out:

www.raystrand.com

You can learn more about bionutrition in general on this site. If you

click on the fibomyalgia section you can read his wife's story which

catalyzed his interest in this field. He's big into

the Usana products but not affiliated with them. He also offers specific

recommendations for

supplements and dosages for a handful of diseases, but you have to pay

$7 or more to access them.

Steve actually looked up many of the scientific pubs cited on this site as

supporting Strand's recommendations for nutritional therapy to treat Alzheimer's

Disease with Anti-oxidant therapy. (He used to research AD.) His conclusion was

that there appeared to some evidence for some of their claims, others required a

" leap of faith, " ie. research was being done that looked " promising " but no hard

evidence yet.

Take care,

in San Diego

Hi Chris

Would it be possible for you to be more specific about this approach.

It sounds very interesting

Thanks

Terry in WI

[Guest guest]

Hi

Thanks for the info, but now I'm embarrassed. We have Dr. Wood's book but

have not gotten around to reading it yet, DAI. Thanks for the links. Time

to make " time " for reading and research.

Terry Brown (in WI )

Re: To Terry

>From: Roman <ChrisRoman@...>

>

>Hi Terry,

>

>You can read about the benefits of essential fatty acids and grapeseed

extract in

>kids diets in Dr. Woods' book " How to Get Kids to Eat Great and

Love

>It! " (A lot is oriented towards babies and preschoolers so you may want to

browse

>it at & Noble rather than buying it, if you have one near you.)

>

>Dr. Wood (who is also my pediatrician) suggested the Usana supplements (in

a very

>low key,

>after thought sort of way) and referred me to a nurse she

>respects who sells them. She suggested the Omega

>fatty acids and grapeseed extract because there have been a number of

>studies showing that they increase focus and reduce behavioral problems

>for ADD kids, (also show promise for bi-polar kids, asthma/allergy suffers,

and

>Multiple Sclerosis).

>

>Kelsey takes 1 t. of the Optomega oil in a smoothie every morning, plus 2

>multi-vitamins (Usanimals) and 2 grapeseed pills (Proflavinol) w/breakfast.

Then 1

>add'l multi-vitamin and grapeseed with dinner. Evidently the grapeseed are

also

>big immune boosters (good preventative idea for PANDAS kids, huh?). When I

>mentioned that Kelsey had just gotten over a long sinus infection she

>gets every year, the nurse said she knew several people on the

>supplements who were no longer getting these. So I

>figure, at a minimum, it will keep us all healthier (Steve, , and I

>are taking it too).

>

>I'd suggest you begin by surfing a few web sites that were recommended

>to me by the nurse we get the Usana products from:

>

>www.usana.com (info about the founder who is a reputable scientist, even

>by my husband Steve's standards..evidently he just opened a retreat-type

center

>down (www.sanoviv.com) in Mexico where people can

>go for a two-week or so time period for intensive nutritional therapy.

>He's studying the impact of nutrition on chronic diseases. The Usana site

also

>includes technical briefs with independent research that supposedly

supports the

>company's claims for clinical improvements in people who take the

supplements. (I

>haven't reveiewed these yet though, so I can't say for sure.)

>

>

>Also check out:

>www.raystrand.com

>

>You can learn more about bionutrition in general on this site. If you

>click on the fibomyalgia section you can read his wife's story which

>catalyzed his interest in this field. He's big into

>the Usana products but not affiliated with them. He also offers specific

>recommendations for

>supplements and dosages for a handful of diseases, but you have to pay

>$7 or more to access them.

>

>Steve actually looked up many of the scientific pubs cited on this site as

>supporting Strand's recommendations for nutritional therapy to treat

Alzheimer's

>Disease with Anti-oxidant therapy. (He used to research AD.) His conclusion

was

>that there appeared to some evidence for some of their claims, others

required a

> " leap of faith, " ie. research was being done that looked " promising " but no

hard

>evidence yet.

>

>Take care,

>

>in San Diego

>

>

>

>Hi Chris

>

>Would it be possible for you to be more specific about this approach.

>It sounds very interesting

>

>

>Thanks

>

>Terry in WI

>

>

>---------------------------

[Guest guest]

Hi Nellie. Nice to know you. I'm in Laguna Hills in So. Orange County.

My son was on Prozac for 5 weeks then he developed a rash so this week he's not on anything. Starting tomorrow he's starting on Zoloft.

Tell me about Anafranil. I never heard of it. Thanks.

To TerrytERRY hI AND WELCOME TO THE GROUP. I LIVE IN CENTRAL CALIFORNIA AND HAVE A 10 YR OLD SON WITH OCD. wHEN HIS PROBLEMS ALL STARTED WE HAD HIM TESTED WITH THE SCHOOL PSYCHOLOGIST AND HES ON AN IEP AND HES IN SPECIAL ED FOR HALF OF THE DAY AND REG ED THE OTHER HALF. jOSH IS ON 100 MG OF ANAFRANIL AND IS DOING REAL GOOD,HE HAS'NT BEEN THIS GOOD IN A LONG TIME.SCHOOL IS A WEEK AWAY, SO WERE HOLDING OUR BREATHS, PREPARING HIM FOR IT. WELCOME TO THE GROUP, I'VE BEEN FOLLOWING ABOUT A YEAR AND THERES ALOT OF WISDOM AND CARING PEOPLE HERE. NELLIE________________________________________________________________________Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.comYou may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. The Archives, Files, and Features List for the may be accessed by going to , enter your email address and password, then point and click. Subscription issues, problems, or suggestions may be addressed to Louis Harkins, list owner, at harkins@... .

[Guest guest]

Hi Terry we are outside of Fresno Anafranil is on of the older drugs

used for OCD. Josh had tried luvox and paxil, and both did'nt help, where

anafranil has helped him alot, hes had a great summer with few OCD problems.

He takes 100mg 2x daily, and some side effects that he has are dizziness,

weight loss, and fatigues easily-espec in the hot months, I had to get him a

modified pe note from his dr-he tires so easy. take care

Nellie in Ca

>From: " Terry Migdal " <zmterry@...>

>Reply-egroups

><egroups>

>Subject: Re: To Terry

>Date: Fri, 18 Aug 2000 21:22:22 -0700

>

>Hi Nellie. Nice to know you. I'm in Laguna Hills in So. Orange County.

>My son was on Prozac for 5 weeks then he developed a rash so this week he's

>not on anything. Starting tomorrow he's starting on Zoloft.

>Tell me about Anafranil. I never heard of it. Thanks.

> To Terry

>

>

> tERRY hI AND WELCOME TO THE GROUP. I LIVE IN CENTRAL CALIFORNIA AND

>HAVE A

> 10 YR OLD SON WITH OCD. wHEN HIS PROBLEMS ALL STARTED WE HAD HIM

>TESTED WITH

> THE SCHOOL PSYCHOLOGIST AND HES ON AN IEP AND HES IN SPECIAL ED FOR

>HALF OF

> THE DAY AND REG ED THE OTHER HALF. jOSH IS ON 100 MG OF ANAFRANIL AND

>IS

> DOING REAL GOOD,HE HAS'NT BEEN THIS GOOD IN A LONG TIME.SCHOOL IS A

>WEEK

> AWAY, SO WERE HOLDING OUR BREATHS, PREPARING HIM FOR IT. WELCOME TO

>THE

> GROUP, I'VE BEEN FOLLOWING ABOUT A YEAR AND THERES ALOT OF WISDOM AND

>CARING

> PEOPLE HERE. NELLIE

>

>________________________________________________________________________

> Get Your Private, Free E-mail from MSN Hotmail at

>http://www.hotmail.com

>

>

>----------------------------------------------------------------------------

>

>

>

>----------------------------------------------------------------------------

> You may subscribe to the OCD-L by emailing listserv@... .

>In the body of your message write: subscribe OCD-L your name. The

>Archives, Files, and Features List for the may be

>accessed by going to , enter your email address and

>password, then point and click. Subscription issues, problems, or

>suggestions may be addressed to Louis Harkins, list owner, at

>harkins@... .

>

>

>

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

Hi Terry,

Please try to focus on helping your OCD son and take a " wait and see " approach

about your daughter. It sounds like you have a lot of challenges in your life

right now so it's important not to devote too much extra " worrying " energy about

what may or may not be OCD in her. (Easier said than done, I know!)

As you've probably been reading, I too have been watching my younger child,

vascillating back and forth about whether he has OCD. It is tempting, once you

are knowledgeable about OCD, to see everything through the OCD lens. But young

children often exhibit rigid behaviors that can mimic OCD. 's recent

" clothing stubborness " appears to have been just that. It sure looked like OCD,

but after watching it longer I realized that this was a form of " dress up " and

experimenting with looking good for school, which was all new for him. For all I

know, he's mildly OCish (which I could say about my husband and I as well!) It's

not surprising to see some rigid behaviors in a

child when other family members have OCD!

After my hip surgery this summer, I have had to recognize that I am in a period

with lmited emotional and physical energy for my kids and need to use it where

it counts most and let the rest go. (Very, very difficult for us moms.) If you

are grieving for your husband, you may be in a similar position.

As for your son blaming everything on OCD, I think this is an excellent sign! He

has an increasing awareness about what behaviors are inappropriate. He hasn't

yet learned the next piece--about how you and he will team up against OCD to

" boss it back " but this will come in therapy. While it might seem frustrating

now that he is using OCD as a scapegoat, you are actually far ahead in the game.

So many kids are secretive about their OCD, won't acknowledge that their

behaviors are inappropriate, and this can make therapy very tough.

I see hope on the horizon, Terry

Hang in there,

in San Diego

[Guest guest]

Thank you for your insights and your help. I really appreciate it.

Terry

Re: To Terry

Hi Terry,Please try to focus on helping your OCD son and take a "wait and see" approach about your daughter. It sounds like you have a lot of challenges in your life right now so it's important not to devote too much extra "worrying" energy about what may or may not be OCD in her. (Easier said than done, I know!)As you've probably been reading, I too have been watching my younger child, vascillating back and forth about whether he has OCD. It is tempting, once you are knowledgeable about OCD, to see everything through the OCD lens. But young children often exhibit rigid behaviors that can mimic OCD. 's recent "clothing stubborness" appears to have been just that. It sure looked like OCD, but after watching it longer I realized that this was a form of "dress up" and experimenting with looking good for school, which was all new for him. For all I know, he's mildly OCish (which I could say about my husband and I as well!) It's not surprising to see some rigid behaviors in achild when other family members have OCD!After my hip surgery this summer, I have had to recognize that I am in a period with lmited emotional and physical energy for my kids and need to use it where it counts most and let the rest go. (Very, very difficult for us moms.) If you are grieving for your husband, you may be in a similar position.As for your son blaming everything on OCD, I think this is an excellent sign! He has an increasing awareness about what behaviors are inappropriate. He hasn't yet learned the next piece--about how you and he will team up against OCD to "boss it back" but this will come in therapy. While it might seem frustrating now that he is using OCD as a scapegoat, you are actually far ahead in the game. So many kids are secretive about their OCD, won't acknowledge that their behaviors are inappropriate, and this can make therapy very tough.I see hope on the horizon, Terry :)Hang in there,in San DiegoYou may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD . You may access the files, links, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., and Aureen Pinto Wagner, Ph.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Roman, and Jackie Stout. Subscription issues, problems, or suggestions may be addressed to Louis Harkins, list owner, at harkins@... .

[Guest guest]

Dear Terry,

Your Ben is going to win this battle against OCD because he is so bright and so able to understand what is going on. That' s just amazing for a six year old! Annie is also bright and verbal and is progressing well with therapy because they can dispense with all the watered down preliminaries. She and her therapist discuss "obsessions" and "compulsions" and medication levels and neural networks, and whatever. Her psychiatrist, however, drives her crazy by talking to her in baby talk about the "worry monster". She says, "you mean my OCD?"

What Annie tells her friends is that she takes medication because she worries too much. She says it has a name, Obsessive Compulsive Disorder, but generally just says something like, "but that's too hard to say, so let's just say it's because I worry so much." She has never shared it with her whole class, because she is sure they will tease her (and some would, of course), but she was open about it with her teacher. Her brother will probably discuss it in detail with his kindergarten class this fall though, so I am waiting for some repercussions from that. He has grown up hearing about it, and it seems completely natural to him. And he is such a little scientist (he has toy scorpions and sleeps with a giant stuffed red ant) that he will probably explain it in terms of neurology to his classmates. Since Annie's OCD hasn't yet caused obvious problems at school (just with some school work, but that isn't obvious to her classmates) there has been no reason to educate more than her close friends and teacher. She may have to someday, but she is comfortable explaining it by relating it to her grandmother who has diabetes. "Everyone has something", we always say around here.

And yes, Ben's intelligence will probably give him more to worry about. That has been THE story of Annie's life. She has always been aware of all the possibilities that would never occur to her friends - and when OCD struck, it hit hard. "What if there's a fire at Molly's house? What if Molly's mom is outside? What if I can't reach the phone to call 911? What if 911 is busy? What if the fire has already burned through the phone lines? etc." Knowing a lot is a double-edged sword if you have an anxiety disorder! Ben isn't such a worrier as Annie, but he too is troubled by things that most kids wouldn't waste a second on. He spends a lot of time now worrying about the extinction of the human race - he accepts that that will probably happen some day, but he worries that the scientists that come later will misinterpret some of the data they find. Sigh. I've always wondered what it would be like to have kids who just play ball and stuff.

When your Ben learns to type we'll have them exchange e-mail someday.

Take care,

[Guest guest]

,

I had to smile when I read the ending to your post. I remember, when

(now 15)was in Kindergarten, attending a parent meeting about

the gifted program in our district and the identification process

which began in K. The presenter said that having a gifted child may

not be the day at the beach that you expect. Of course, those of us

who were hoping that our kids would be identified, said to

ourselves, " oh, yeah, sure. " Now 2 identified " gifted and talented "

kids later, I can surly attest to her statement! Holy cow!!!!!! I

often wish my kids just played ball and stuff!!

Melinda S.

Dallas

> Dear Terry,

> Your Ben is going to win this battle against OCD because he

is so

> bright and so able to understand what is going on. That' s just

amazing for a

> six year old! Annie is also bright and verbal and is progressing

well with

> therapy because they can dispense with all the watered down

preliminaries.

> She and her therapist discuss " obsessions " and " compulsions " and

medication

> levels and neural networks, and whatever. Her psychiatrist,

however, drives

> her crazy by talking to her in baby talk about the " worry monster " .

She says,

> " you mean my OCD? "

> What Annie tells her friends is that she takes medication

because she

> worries too much. She says it has a name, Obsessive Compulsive

Disorder, but

> generally just says something like, " but that's too hard to say, so

let's

> just say it's because I worry so much. " She has never shared it

with her

> whole class, because she is sure they will tease her (and some

would, of

> course), but she was open about it with her teacher. Her brother

will

> probably discuss it in detail with his kindergarten class this fall

though,

> so I am waiting for some repercussions from that. He has grown up

hearing

> about it, and it seems completely natural to him. And he is such a

little

> scientist (he has toy scorpions and sleeps with a giant stuffed red

ant) that

> he will probably explain it in terms of neurology to his

classmates.

> Since Annie's OCD hasn't yet caused obvious problems at

school (just

> with some school work, but that isn't obvious to her classmates)

there has

> been no reason to educate more than her close friends and teacher.

She may

> have to someday, but she is comfortable explaining it by relating

it to her

> grandmother who has diabetes. " Everyone has something " , we always

say around

> here.

> And yes, Ben's intelligence will probably give him more to

worry

> about. That has been THE story of Annie's life. She has always been

aware of

> all the possibilities that would never occur to her friends - and

when OCD

> struck, it hit hard. " What if there's a fire at Molly's house? What

if

> Molly's mom is outside? What if I can't reach the phone to call

911? What if

> 911 is busy? What if the fire has already burned through the phone

lines?

> etc. " Knowing a lot is a double-edged sword if you have an anxiety

disorder!

> Ben isn't such a worrier as Annie, but he too is troubled by things

that most

> kids wouldn't waste a second on. He spends a lot of time now

worrying about

> the extinction of the human race - he accepts that that will

probably happen

> some day, but he worries that the scientists that come later will

> misinterpret some of the data they find. Sigh. I've always wondered

what it

> would be like to have kids who just play ball and stuff.

> When your Ben learns to type we'll have them exchange e-mail

someday.

> Take care,

>

[Guest guest]

Hi ,

Thanks for the input! I don't think it's as much a question about IF

we tell Ben's teacher and others, as much as HOW and WHAT to tell

them. Ben tells EVERYONE that he has OCD and then asks them if they

know what it is. The knowledge has been very empowering to him and I

don't want to squelch that in any way - but I just don't know how to

help him moderate it so that his friends aren't more confused than

ever about what's going on. And I really want him to meet with his

teacher before the first day of school, so he can " tell all " to her

when she isn't trying to deal with 20 other first graders as well. I

DO know that we are lucky to have a supportive school system and so

many of the " miscellaneous " school personnell (who saw Ben's

struggles in the Spring and scratched their collective heads trying

hard to understand what was going on) have bumped into Ben this

Summer and he's " updated them " . They have all taken it in stride and

with complete ease and I'm so grateful for that.

It will be an interesting first week of school - he will survive -

and even if it is rocky, he'll have the whole rest of the school year

to smooth it out. Since he's so young and we're still so new to how

the OCD might affect Ben in school, I think that his 504 plan will

have to remain quite fluid for a while - but I don't think that will

be a problem for now.

Thanks!

Terry

> Hi Terry, I too, have experienced the dilemma that you are

currently walking through concerning whether or not to tell Ben's new

teacher about his " issues " . For my son, I have found that it is

imperative that I talk to not only the teachers, but any other school

personnel that might be involved with my son. He is changing schools

this year and I insisted that we have his IEP meeting before he left

the auspices of his last school, mostly as a protection for him! An

awful lot of his behavior can escalate into anger and oppositionality

if those working with him do not understand what is driving his

behavior, and in turn, what to do to better handle his behavior long

before it reaches melt down stage. I am certain that you will do the

best thing possible for Ben. Some kids do not seem to have much

trouble with OCD bugging them at school, my son is not one of those -

OCD and AD/HD bug him whenever and wherever! I have a very open and

honest relationship with those who work with my son, mostly out of

necessity. I have been able to successfully use this honesty as a

vehicle to not only educate the school personnel about how OCD can

affect a child, but to make some friendships that have lasted several

years past the time that the teachers have taught my son! I know

that I am rather fortunate in this respect as not all school

districts are as receptive as the one we live in. I hope this helps

you some.....Best wishes, in Southeastern PA

>

>

> ---------------------------------

>

[Guest guest]

:

We, too, are fortunate to have a support school staff. is OCD and ADHD, too, and it is imperative the staff knows what's going on. Isn't it amazing how close you can get to them. This year has a new SPed teacher -- I was very close to last year's teacher and she and had a very special relationship (she cried when she had to say goodbye to him) -- I miss her dearly and it's been hard ont comparing the new teacher to her. I hope his new teacher will be just as good.

Tamra

To Terry

Hi Terry, I too, have experienced the dilemma that you are currently walking through concerning whether or not to tell Ben's new teacher about his "issues". For my son, I have found that it is imperative that I talk to not only the teachers, but any other school personnel that might be involved with my son. He is changing schools this year and I insisted that we have his IEP meeting before he left the auspices of his last school, mostly as a protection for him! An awful lot of his behavior can escalate into anger and oppositionality if those working with him do not understand what is driving his behavior, and in turn, what to do to better handle his behavior long before it reaches melt down stage. I am certain that you will do the best thing possible for Ben. Some kids do not seem to have much trouble with OCD bugging them at school, my son is not one of those - OCD and AD/HD bug him whenever and wherever! I have a very open and honest relationship with those who work with my son, mostly out of necessity. I have been able to successfully use this honesty as a vehicle to not only educate the school personnel about how OCD can affect a child, but to make some friendships that have lasted several years past the time that the teachers have taught my son! I know that I am rather fortunate in this respect as not all school districts are as receptive as the one we live in. I hope this helps you some.....Best wishes, in Southeastern PA

[Guest guest]

Hi Terry,What did you have to do to get rid of the lymph edema in your legs and feet? I still have swelling... I don't know if it is heat or medication related. It is some better, but not quite all the way back to normal. Makes wearing certain shoes uncomfortable. Thanks Terry.

[Guest guest]

what about apple cider vinegar and water soaked on face cloths n placed on

leg areas that are swollen

Or caster oil packs would help

Or cream with devils claw

Arnica cream

Butchers broom,horsechestnut cream for swollen legs

Plenty of nettle n dandelion tea

Mesage with base oil and lavender

X

------------------------------

On Fri, Jul 20, 2012 11:27 PDT Goldstein@... wrote:

>Hi Terry,

>

>

>What did you have to do to get rid of the lymph edema in your legs and feet? I

still have swelling... I don't know if it is heat or medication related. It is

some better, but not quite all the way back to normal. Makes wearing certain

shoes uncomfortable.

>

>

>Thanks Terry.

>

>

>