Guest guest Posted April 24, 2000 Report Share Posted April 24, 2000 Is the pump still going mad? you might try pushing in 5cc at a time over an hour - we had to do that with one of Andy's med s- a pain in the rump but it worked! I went into my b3droom (Andy till sleep with me) and looked - the pump we have now (and believe it or not the beep is MORE annoying tan the kangaroo one) is a Flexi Flo Companion. Andy has worked his way up to 25ml per hour - still very slow, but if it's any faster he usually throws up and when I am lazy or tired and try to give him his 30cc of med too fat I get them right back =o) so I understand completely... Do you ever give some ice on hi lips or anything oral? Andy ha been having a good spell lately o we are trying about 5cc of applesauce each night - it seem like so little but we just whoop and celebrate! LoL Hope you get some sleep. I am having problem with med myself tonight - so I should be going to bed... but can't sleep. see ya in the morning! janalise At 02:23 AM 4/24/00 -0700, you wrote: Hi Janalise! Just thought that I would dash off a quick reply while I'm waiting for the men in white coats to come and take me away....LOL The medicine itself could go in the med port in Matty's tube, but the sheer volume of it makes that impossible. He gets 40cc of this med in his formula (that's more than an ounce) and his pump only runs at 20cc an hour (he has severe malabsorption, delayed stomach emptying, and a very low volume tolerance), so I can't just put the med into his stomach. Wish I could!!! LOL The formula itself is already very watery...It's not one of the thick, milky kinds like pediasure or peptamin. It's still just an infant formula, although a very basic and broken down one!! Thanks for the ideas, anyway. Nice to know that I'm not the only night owl around here!! LOL BTW, do you use the Zevex pump?? That's the one that I've heard good things about! :-) janalise wrote: > - I have the same problem with Andys pump - AND THERE IS NO > SOUND MORE FRIGGIN ANNOYING!! we had a kangaroo one for a long time - > now we have a more portable one - but have to use the old one > sometimes... Is the medicine something you could inject through the > other port? or does it have to go over a long period of time. One > other thing you might try is adding some water to thin it a bit... we > do that with Andys med that has to go in slowly and can't just be > pushed in... and then after some watered formula, we add the rest of > his pediasure... > > I don't envy you - that's downright pissy annoying!!! =o( I'll pray it > stops... that was me 2 nights ago... I worked and fiddled - still not > sure why it went nuts and what i did to fix it - other than a few > choice words... > =o) > > jana > still here if you need to talk > > At 01:26 AM 4/24/00 -0700, you wrote: > >> GRRRRRRR!!!!! >> Ok, so I'm venting, but what the hell?? LOL >> 's feeding pump (a damn kangaroo pet pump--piece of sh*t, no >> good, outdated, useless piece of machinery!!) keeps alarming. Like >> every >> 3 minutes, I swear!! And hell if I know why. I think it might be >> because of the new med that we are adding to his formula...it's >> bubbly, >> like soda, so I think that it's affecting the flow of formula >> through >> it, but I'm not sure. >> Problem is, I've done everything that I can think of to help the >> problem, but nothing is working. I've re-primed the tubing, changed >> bags, slowed the flow, quickened the flow, everything. This idiot >> pump >> has been beeping at me every 3 minutes for an hour now!!! GRRRRR!!! >> If you all hear a noise in the night, It's just me, throwing this >> damn >> pump across the room!! LOL >> has to have this formula, and he has to have the medicine in >> it, >> so I have no choice but to let the stupid thing keep running.... >> I'll be insane before morning (no sleep for me tonight, I guess!!), >> but >> what the hell, I'm half way there already, so does it really >> matter???? >> Jeez.... >> Okay.... >> I feel better, but I'm gonna scream the next time the pump beeps!! >> I've >> gotten up 5 times now, just in the time I've been typing this >> letter, >> and I'm a good typist... >> Oh well... >> :-) >> Thanks for the ears!! >> >> >> >> >> --------------------------------------------------------------------- >> The Being Sick Members Lounge..... >> * FREE counselling via email >> * Daily Horoscopes >> * FREE psychic/tarot readings via email >> * Daily cartoons >> * Members Profiles, locations and birthdays >> * DAILY LIVE CHAT!! >> * Medical Resources, and more.... http://www.elderwyn.com/members >> >> ~~~~~~~~~~~~~~~ >> >> “There will always be people who are better off and worse off then >> you. 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This makes no difference to how you are feeling. You are the only > one who feels as you do, and you have every right to be negative or > upset when you are ill, injured, disabled, or caring for someone who > is. Being sick sucks. No one deserves being sick. It is not fair.” - > Aisha Elderwyn. > > ~~~~~~~~~~~~~~~ > > Your subscription details > /mygroups > > Proudly sponsored by Elderwyn Management > http://www.elderwyn.com The Being Sick Members Lounge..... * FREE counselling via email * Daily Horoscopes * FREE psychic/tarot readings via email * Daily cartoons * Members Profiles, locations and birthdays * DAILY LIVE CHAT!! * Medical Resources, and more.... http://www.elderwyn.com/members ~~~~~~~~~~~~~~~ “There will always be people who are better off and worse off then you. This makes no difference to how you are feeling. You are the only one who feels as you do, and you have every right to be negative or upset when you are ill, injured, disabled, or caring for someone who is. Being sick sucks. No one deserves being sick. It is not fair.” - Aisha Elderwyn. ~~~~~~~~~~~~~~~ Your subscription details /mygroups Proudly sponsored by Elderwyn Management http://www.elderwyn.com Quote Link to comment Share on other sites More sharing options...
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