Guest guest Posted December 18, 1998 Report Share Posted December 18, 1998 Marge, Hi, I have had sustained and nonsustained VT. Prior to my AICD in 1994 I was defibbed twice in the hospital. Also, prior to my diagnosis of ARVD I had many nonsustained episodes. I have done the gamut of meds. Sotalol caused proarrhythmias and all related meds. Amiodarone worked very well, but I could not tolerate the side effects. Now I am on Ethmozine and though it makes me rather lethargic I seldom have any VT and usually self convert if I have a run. Does your husband have an AICD? How high does his HR get? Unfortunately mine will get up in the 300's and naturally I will pass out rather quickly. Does his doctor consider the VT life threatening? Has he been seen by an EP doctor? I had to give up running and even moderate walking for exercise. However, I still am able to ride my horse and do some competing over fences and in dressage. I have had to choose where to expend my energy and that is my choice. I also am able to work fulltime and feel very blessed to have this life I do have. Take care, ------------------------------------------------------------------------ E-group home: http://www.eGroups.com/list/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 1998 Report Share Posted December 18, 1998 Howdy Marge , I believe that Ms beat me to the question as to whether your husband has an implanted ICD. I have had one since March, 1996. I have also had a running gun battle since then with what I call low level VT that ranges between 120 and 136 bpm. I too have gone through many medications to solve this problem. The latest and most effective medication that has worked (at least for a month now) is a 4,000 mg daily dose of Procanbid. The Ep who is also my cardiologist doubled that dose from a previous doseage of 2,000 mg per day (I was having almost regular low level VT attacks at that dosage. I have had a few pvc's since then but not one run of VT of any kind! I was prepared to just live with the low level attacks if I had had to. I know that my ICD will save me from life threatening VT. It is set to defib at 200 bpm. I do not know how brave(??!) I would be without the implant. I too am limited in my physical abilities. I used to run, jog or walk a lot. Now I am probably the fastest sitter on my side of town and am not allowed to drive. But above it all, I have lived to see two Christmases that I don't think I would have seen, and now I just may make a third--this one. Merry Christmas and the best to you and your husband. PS-I believe an EP study is the only thing that can help you and your husband decide whether to be truly concerned or not. If he ain't had one--get him one for Christmas. Bill Feagin ------------------------------------------------------------------------ E-group home: http://www.eGroups.com/list/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 1998 Report Share Posted December 19, 1998 Hello Bill, Thanks for your suggestions! May I ask you if they decided what was casing the VT attacks? Also are the attacks you experience sustained or non-sustained ....and at what age did they appear? May you and all on this list have blessed holidays, and thanks for your help. Aloha, Marge ------------------------------------------------------------------------ E-group home: http://www.eGroups.com/list/ Quote Link to comment Share on other sites More sharing options...
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