Re: They're recalling my ICD!

[Guest guest]

......

> Well hey look at that - thats my ICD......... OH MY GOD THATS MY

> ICD!!!

Ack! How frightening. I hope this sort of thing is like with cars....

they have to notify

everyone who has the defective model, and replace/repair it for free. Do

you have a

contact # for the manufacturer of your device? If i were you, i'd be

calling them and

telling them what you have, and demanding that something be done. Is

this device what

your insurance was willing to pay for? If not, then it might not hurt to

demand a new

device from a different maker. Free of charge, installation included, of

course.

Squeaky (and scared) wheels get grease.

Sue

--

" She was not quite what you would call refined.

She was not quite what you would call unrefined.

She was the kind of person that keeps a parrot. "

-- Mark Twain

Rich and Sue Owens

http://www.geocities.com/Yosemite/Meadows/7457/index3.html

[Guest guest]

Saint Jude medical group. I seem to remember learning in church that Saint

Jusde was the patron saint for lost causes. Should have been a clue. Now

Reliant and Guardian sound good.

Seriously, , my prayers and best wishes accompany my bad jokes.

Bill

Re: They're recalling my ICD!

>

>

> ......

>

> > Well hey look at that - thats my ICD......... OH MY GOD THATS MY

> > ICD!!!

>

> Ack! How frightening. I hope this sort of thing is like with cars....

> they have to notify

> everyone who has the defective model, and replace/repair it for free. Do

> you have a

> contact # for the manufacturer of your device? If i were you, i'd be

> calling them and

> telling them what you have, and demanding that something be done. Is

> this device what

> your insurance was willing to pay for? If not, then it might not hurt to

> demand a new

> device from a different maker. Free of charge, installation included, of

> course.

> Squeaky (and scared) wheels get grease.

> Sue

>

> --

> " She was not quite what you would call refined.

> She was not quite what you would call unrefined.

> She was the kind of person that keeps a parrot. "

> -- Mark Twain

>

> Rich and Sue Owens

> http://www.geocities.com/Yosemite/Meadows/7457/index3.html

>

>

>

>

> Please visit the Zapper homepage at

> http://www.ZapLife.org

>

>

[Guest guest]

... I'm so sorry that you're going thru this... it must be so

scary for you... I'm on my second Ventritex ICD manufactured by St.

Jude... I can't believe that the nurse made such a statement to you

i.e. " they're finding new problems everyday " ... that would upset

anyone!!! I think I'd have to call back and speak w/the EP and have

them tell me just what was going on w/my unit... but I do believe

that if you were told it's not on the recall list, then it most

likely is not... a friend of mine was on such a list several yrs back

and all they had to do was make a few minor " adjustments " w/her

settings via a visit into office and she's been fine every since,

that had to be at least 3 yrs ago... the EP's office has a phone

number by which they can obtain just about any info needed regarding

the units... I know mine has called St. Jude several times when I had

a ? that they didn't have the answer to ... and only last week I was

in the hsp having a procedure done that required my unit be disabled

for a bit... the anesthesiologist (sp?) wasn't certain of the total

results of this so he called the 800# on the back of my ID card and

the company called him back w/in 10 mins w/the exact info he needed

to proceed.

W/regards to you're not knowing if your unit is working or not

working... I'd imagine that you have it interrogated every 3 months,

no? ... and if there is any suspicion of a problem I wouldn't be

surprised if your EP isn't notified to do so even more frequently.

I've had nothing but good experiences w/St. Jude... when you think

how many units are implanted over the years it seems there's going to

be a few quirks to deal w/now and then ... I hope this works out well

for you ... in the meanwhile, have you contacted St. Jude directly...

I think you can do so via their online site at http://www.sjm.com ...

good luck to you!

JES in NJ, USA

'Climb every mountain' is a good philosophy - unless you're the type

that makes mountains of of molehills!

>

> I was casually sufing the net today when I came to a website that

> immediately got my attention.

>

> The headline being:

>

> St. Jude Medical Advising Physicians of the Potential for Decreased

> Reliability in a Small Group of Profile® MD ICD's

>

>

> Well hey look at that - thats my ICD......... OH MY GOD THATS MY

> ICD!!!

>

> And to make matters worse - its my model number too!!

>

> I have completly lost all faith in St.

> Jude products now. After hearing about 's similar problem and

> now this - I will NEVER get another St. Jude ICD!!

>

> I'm so scared right now.

>

> I called my EP nurse and she mentioned that I wasn't on the current

> list but they are finding new problems every day.

>

> Guess I will never know if my ICD stops working huh?..........

>

> Things to ponder,

>

>

[Guest guest]

,

Try not to worry too much. My ICD was recalled also, but they were able to fix

it without much to do. Bye the way, I've developed another blood clot, this

time in my Inferior Vena Cava. They might have to do open heart surgery to get

it out, and I really don't want that. I'm on heparin (IV) and have to stay on

it so it looks like I will be waiting for my new heart in the hospital. I just

hope to God the heparin dissolves the clot.

[Guest guest]

,

So sorry to hear about your new problems. I sure hope you don't have to

have that open heart surgery. Maybe your heart will come soon. When we

were waiting for my nephews heart, we thought it would never come but it did

and he's doing real well. How old are you? I'll keep you in my thoughts

and prayers. What state do you live in?

Ruth in PA