Guest guest Posted January 8, 2002 Report Share Posted January 8, 2002 In a message dated 1/6/2002 1:49:12 PM Eastern Standard Time, stolzfamily@... writes: > I was thinking of asking for much, much more inclusion where he is, > although, I am ticked that the neighborhood school was able to " get rid > of him " . But, I also want him where he is wanted. But, if we dont' > " force " the issue, it will never happen. Hi , I can sympathize with your school dilemma. I have been fighting and justifying Zeb's inclusive placement since he began public school. Zeb was never wanted in a regular classroom because inclusion is a lot of work and time for the staff as well as for the parents. It is easier and cheaper for the school district to maintain a segregated classroom. I have visited these classrooms in my district and will attest to the functional only education. I have many reasons for Zeb's placement, peer modeling, social and to be exposed to same curriculum as a typical child. All his work is modified and I provide manipulative that make the teachers job easier. A science unit may contain animals with backbones so I will shop for those little plastic ones. They are now doing a unit on gears and I found some toys with gears. The entire class has also been able to use everything I provide also promoting peer interaction. I think the single hardest decision for every parent is knowing your child's least restrictive environment. Where is your child most happiest and can feel successful? It has taken a few years of hard battles but many of the teachers now can see the difference and agree it has been a great success. The teachers that Zeb has had in the past say that it has been the hardest year of teaching they ever had but the most rewarding. They can see his progress and are still amazed how far he has grown. Each parent has their own goals for their child's future. I plan to push as far as Zeb will go and never let the school limit his capabilities. I have the only child in the district in this placement. Many parents feel that I am being mean by forcing him to keep up with his typical peers and I should just let him have fun. Once their typical children are in the same classroom with Zeb they understand and agree that all the children are enriched. I am always available for the teachers and keep a very open communication with them. I always ensure that the IEP includes teacher supports for their benefit.I no only have to worry about the educational goals, supports and services for Zeb but for the teachers as well. I often wonder if I had made the right choice when the behavior problems get out of control or when Zeb is having a bad week. We always find a solution and things have worked out. It's a decision I will never know the answer to. I just have always used my gut. At this point I feel I have made the right choice but that could change tomarrow. Charlyne Mom to Zeb 9 DS/OCD ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 In a message dated 1/14/2003 8:56:14 PM US Mountain Standard Time, johndeespicer@... writes: > She referred to the loneliness of some > young adults she knows who have DS Maverick has a well rounded group of friends. Most of his friends at school are NDA, but with his soccer and baseball he meets sp needs friends. This weekend we are going bowling and he has an NDA friend spending the weekend with us and we are meeting a sp needs friend at the bowling alley. I think we just need to make sure that our children have opportunity to meet all different types of friends.... ALL of our children. There is a man who lives around the corner. He is 27 and mentally challenged. He lives at home with his parents, doesn't work, keeps busy visiting his sister and his friends in the neighborhood. He spent New Years Eve with us and is going bowling with us this weekend. He seems happy and fulfilled......with NEW friends not HS friends... (where he was selfcontained btw). I think every situation is different and we need to just wait and see and make sure that our children are exposed to everyone and everyone is exposed to our children. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 Jill, First of all happy birthday to Emma!!! Second, i too struggle with similiar issues that you expressed. But there could be some balance. 's got some special needs friends and some 'typical' friends. She's totally included at school and church including youth group, but she participates in some programs that are specific for special needs people- like her theater group she's in now. She's been to camps with special needs kids and without. Its a balancing game - and we have to see what is comfortable for our kids. Rick told me a while back when amanda was in acting classes with typical kids and in her theater group with special needs people, ask her which she wants to do - she has chosen her theater group and is very happy there. But would I let her choose her school setting - I think not, but if i saw it wasnt working or she was struggling, frustated or unhappy, would I change it- yes I would. doesnt require as much as we do for friendships and a social life - shes happy with one or two close friends. I think she will be fine going through her life like that - when she goes to HS, she will do stuff to fit in with the kids, but she may chose on her own to have other activities that may or may not be with special needs people. She plays soccer on a regular league, she sings in a childrens choir, she was in her school chorus, she may try out for cheerleaders at her middle school - all that is so she is part of a group. She goes to the movies or bowling or to play air hockey with special needs or typical friends. hey, Enjoy Emma now - before those hormones kick in! LOL ~ Mom to 12 DS and Diabetes Type 1 and 8 NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 > LOL... Ok.....now let's not get going on this one again! It scares the > newbies. Rick didn't scare me, but a comment in Jill son's reply did, and for good reason I think. She referred to the loneliness of some young adults she knows who have DS, because the friendships from HS were not enduring and no new opportunities have presented themselves. ly, I have not spent an inordinate amount of time dwelling on Emma's social life past high school, but now I'm wondering... Is this a fairly universal problem, or do you all see this changing with the times, too? I have greatly appreciated Marilyn Trainer's book " Differences in Common " , and particularly the stories of her son Ben with his friends who also have DS. She notes that as he grew older he was less inclined to want to " hang out " with his parents but was a social butterfly with his group. It breaks my heart to think of Emma in our small town, stuck with her parents on Friday night (although WE'D love to have her) because her friends and siblings grew up and got on with their lives. I think I'd rather stick my head back in my shell and worry about her current issues, like low trunk strength and orthotics. That's much easier. Jill Spicer (Mom to Luke, , Song, , & Emma--DS, 2 yrs 2 days old!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Jackie, but the real issue is - are they really lonely? Or do we just perceive them as lonely? I feel bad for amanda sometimes, but then again, I know she couldnt handle what the other 12 year olds are handling thats why sports, or a movie is always a good option. I think more than a few hours with anyone for amanda is alot. She actually enjoys sitting in her room on friday nites watching a video, rather than hanging with us. We have these Friday night socials for teens like 18 and older with spec needs run by YAI. maybe something like that will be around for ryan and others out there. And then there's always a possibility of hooking him up with amanda LOL! ~ Mom to 12 DS and Diabetes Type 1 and 8 NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 I believe what says is true, and her and I have written about this in the past as well. I think most of the hurt comes from my perceptions of how I grew up, and is totally different. I do think he is content to sit and watch a video rather than go off with the kids. But I have seen other times where on the weekend he'll just kind of walk around the house alot and can't find something to do on his own (when he's bored with watching a tape or listening to music) and his brothers are off at a friend's house and only has Don and I. No, he never complains, but his actions tell me he is bored and being bored can be lonely, whether he communicates this or not. Anytime we are in a social situation with other children I have always made an attempt to say to his sibblings or one of the others, " hey, would probably play flashlight tag, or hoops, etc., Why don't you go get him " because if I were to go get him he would balk. But I'm telling you, it takes a pretty unique kid to just go and invite to participate, because they just don't think like that. Our friends have good kids, too and so do I, but kids are kids and it has been my experience that they don't seek to include . The only time I ever see anyone initiate inviting to participate is usually a much younger child, my neice for instance who is only 4! loves to play with her and that's fine, because he can understand her because maybe that's the cognitive level he is at. I'm certainly not saying this to insult anyone or scare anyone, but it's the truth as it pertains to . Does this mean I won't encourage older children to include him, NO! But the reality is, if I don't constantly attend to the issue in social situations, won't be included. Do I constantly attend to it? No, I don't. I can't live my life like that........personally, but others may choose to. will do what is comfortable with and happy with. He is a very sociable and gabby kid. I'm not really sure, , if he has the cognitive ability to say, " Mom, I'm bored, or lonely, " because I'm not sure he understands the meanings of emotions like that. That's why I am totally amazed how 's daughter could communicate with her last week about her troubles. is not there yet. I do know is happy most of the time and he loves going to school so I guess as long as this is evident, I will assume I'm doing a good job as his mother. Did I answer your question, ? LOL. Jackie, Mom to 15ds, 12, and Bradley 8 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 I love this loop ,, it seems like we are all dealing with same issues, just at different times. My daughter 9 with ds has always been a big tv watcher , movies , cartoons doesnt matter even though she is beginning to like shows a little older in viewing which I think god for 5 years of Barney and Rugrats has driven me to my limits. I knew these had to go when I starting singing Barney songs in my sleep, And If I have to listen to 's squeeky voice another day!! Im not promising to be nice!! LOL!!! I have asked myself the same questions you all have about how important is it for her to have friends? She says sometimes she wants the freedom of playing outside by herself with friends also , But As we know she cannot go unsupervised for any period of time, I do take her outside to visit the neighbor kids at times , but I really noticed she does more side to side playing than actually interative playing so it satifies her to be able to ( Play ) Especially with other kids ride on toys---lol--- As she is the street bike theif!! LOL,,,,,, I want her to have bonds but I know she only wants to be equal and have the freedom every other child wants and let her decide how much she wants to do with other kids , I just take it at her requests , plus she also has friends at school in her class and school as the whole school seems to know ? I often wonder why ,,,, is it by good or bad they know her!! LOL ,,, So all I can say and suggest is let your child lead you to his or her needs and all will fall into place. Besides I often asked myself is it ME Or ERIn who wants her to have friends and I really feel more Me than really cared for! Jeanette mom to 4 .. Ages 6, 9 ds, 11, 15 A house full of mischieve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 > . It bothers me that doesn't ASK to play with friends, or run with > the pack when we are at a friends house and all the kids are playing > together Ok.....NOW being the parent of 2 children with ds let me share this. Maverick is all over the place, where ever there is activity. He will go with whoever/whatever interests him and make himself a part of the group whether he is welcome or not. on the other hand, MAY join in, but unless she is prodded she is too willing to sit on the couch or with a book on her lap because I am always after her to DO something! They are both happy, one is much more outgoing and social and active than the other. It's just their personalities. I feel that one will want to be around people more as an adult and one won't And I feel that one will seek out friends and things to do, while one won't. And I think they will both be happy with what they do just as my NDA children will..they will find the balance in their lives or their friends and put themselves where they want to be. I have always been an introvert and not involved in alot (now I am only because of my children.). My sisters have always been the active, cheerleader types. We are different, and that doesn't make one happier than the other. As adults there are SO many opportunities for our kids....I see this even with the older adults who are in group homes that I have worked with. What YOU color as happy and what THEY color as happy are not always going to be the same. Remember the I is for Individual. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Jackie, is only 8, but I can see him heading in the same direction. It bothers me that doesn't ASK to play with friends, or run with the pack when we are at a friends house and all the kids are playing together (he prefers the computer or TV). BUT, seems quite content. I really struggle with how much to push him socially. With , do you think he is lonely or feels he is missing out? Mom to (8, DS) and Grace (5) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 -- It sounds like you have a lot of great opportunities for in the Big Apple. I wish we had some of those here. Our county program used to also have a summer camp type program for kids with significant disabilities--it was a great program and met 3 x's a week for 8 weeks during the summer months. That was also disbanded about 15-17 yrs. ago because the county " people " felt vocational skills were more important for them to provide (which they then did for kids 16-21) and they felt the younger kids 8-16 could participate in " regular " programs if they wanted. Well, some could, but many couldn't. In my 15 years of teaching students with multiple disabilities the most common complaint was that there was nothing for their kids to do in the summer--most of the kids sat home watching tv/videos most all day everyday. Seven years ago with the help of our local Arc I started a summer program. It has been tremendously successful and is still going strong as long as the funding is there. It is for 6 hrs. a day, 3 days a week at minimal cost to the family and transportation is provided. We can only take 12-15 kids a year and there is a waiting list, so obviously there was a need for this type of program in our county. One of the biggest advantages of the program is that it also involves " typical " kids who volunteer to assist as extra hands, role models and friends to the kids participating. The ratio is usually 1 " typical " to every 2 kids with special needs. Jill Mom to Mac & Kit Re: Re: inclusion or not > Jill, > First of all happy birthday to Emma!!! > > Second, i too struggle with similiar issues that you expressed. But there > could be some balance. 's got some special needs friends and some > 'typical' friends. She's totally included at school and church including > youth group, but she participates in some programs that are specific for > special needs people- like her theater group she's in now. > > She's been to camps with special needs kids and without. Its a balancing > game - and we have to see what is comfortable for our kids. > > Rick told me a while back when amanda was in acting classes with typical kids > and in her theater group with special needs people, ask her which she wants > to do - she has chosen her theater group and is very happy there. > > But would I let her choose her school setting - I think not, but if i saw it > wasnt working or she was struggling, frustated or unhappy, would I change it- > yes I would. > > doesnt require as much as we do for friendships and a social life - > shes happy with one or two close friends. I think she will be fine going > through her life like that - when she goes to HS, she will do stuff to fit in > with the kids, but she may chose on her own to have other activities that may > or may not be with special needs people. > > She plays soccer on a regular league, she sings in a childrens choir, she was > in her school chorus, she may try out for cheerleaders at her middle school - > all that is so she is part of a group. She goes to the movies or bowling or > to play air hockey with special needs or typical friends. > > hey, > Enjoy Emma now - before those hormones kick in! LOL > > ~ Mom to 12 DS and Diabetes Type 1 and 8 NY > > Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Elaine, My son socializes with many many many people with DS. he loves all the functions weve attended like the suaree and the winter getaway. He thinks that the parents with kids of DS really know how to have a good time! Its not our sibs, its the other people who need to be enlightened - someone said to me today that shes glad her step daughter is hanging out with amanda because her stepdaughter was very hung up on her looks and perfection. She thinks that by Sunny hanging out with amanda, the " art of perfection " will be replaced with an inner beauty and strength. WOW - nice to be enlightening to some! ~ Mom to 12 DS and Diabetes Type 1 and 8 NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Joy, Need I suffer alone???? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 In a message dated 1/15/03 10:09:33 PM Central Standard Time, linman42@... writes: Well I'd rather not have to suffer at all, but you have my sympathy to......you know I already suffered through the three older girls, and there really is something to that thing about all the females in the household getting PMS about the same time. (boy could stuff fly around here, roflol) Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 My daughter (now 20) was included for almost her entire school career. This year she is in special ed classes as a vocational student and spends her time on job sites, except for one credited course she is taking pertaining to education. BTW, it is unmodified for her and she has a B average. I would not want any of you to go through what we did over the years concerning education. Celebrate the remarkable changes that have taken place now and the opportunties your children have ... celebrate and take advantage of them!! Don't look back to what we did, look forward to what you can have that is so much better!!! The best compliment you can give the parents that have gone before you is to blaze a bigger trail for more kids!! We are very lucky that my daughter has made the progress she did in school. She did it without the support she needed, she did it many times in spite of her teachers. She loved being in regular ed classes, she took what she saw as her place in the classroom. She was motivated by her peers, she was welcomed by most, she was part of her school community in a way the special ed students who stayed in self contained were not. That is the nature of our school systems, others could be different but kids in self contained here are still isolated, they are still working with 30 year old reading programs and materials, they are still doing the same dull ditto sheets year after year, they are spending 2-3 hours a day sewing quilts. Science lessons are plant a seed in a cup, water it and watch it grow ... year after year. My daughter took life science and biology in high school ... and passed the courses just as her peers ... unmodified. And she was not the lowest functioning student (according to most of her teachers she hasn't been most of the times) Even if she was, her self esteem is so high, she bases it on what SHE does, not on what others do ... so that has never been a problem for her. She thinks of herself as an accomplished, successful, beautiful person ... and she is! ;-) What did inclusion do for her? It gave her opportunties ... to learn, to learn what others learned, (it helped to take geography ... she knows where IRELAND is in the world!) to make friends, to know others, to learn, to have peer tutors full time every day, to participate in extra curricular activities, to go to pj parties, to go to b-day parties, to go to the movies with college buds home on Christmas break ..... Will that last forever ... who cares, she will always have this as part of her formative years ... If the outcome for her is no different than the outcome for a student who wasn't included, that at worse inclusion would prove to be as successful as self contained classes .... that stands up to any criticism! Inclusion allowed my daughter to grow and show us part of her we would have never seen .... she had the bravado to try out for musical parts in the class play .... she acted on stage in 5 productions and was on the stage crew for others .... she was a keynote speaker at our Buddy Walk, sharing the stage with mayors, university president and VIPS in our community, speaking to 850 people .... never doubting her ability to do so!! Inclusion gave her the self confidence to do that! Not bad for a kid who doctors suggested we institutionalize at her birth. Cheryl in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 Hey, , I'm with you on the guilt thing. I've been there. I must say that has lessened over the years. I've had to practice telling myself that I have done a very good job as a mother and there are just going to be times where if all wants to do is watch a video when we're visiting, he's extremely happy doing that, and in order for me to continue to be a " well-adjusted " (LOL) happy adult, I need my time to socialize and not be " the therapist " by making sure is being stimulated. He loves going through other friends' videos too.......he lets them know if something is misfiled or in the wrong box! Our friends always get a kick out of that. Enjoy the game this weekend.......it's only a few hours out of 's life! Yes, GO EAGLES! Jackie, Mom to 15ds, 12, and Bradley 8 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 In a message dated 1/15/03 7:23:27 PM Central Standard Time, karriemom@... writes: > I hope everyone can share their opinions and views, without any ill > feelings. Because we are individuals too!! > Sue mom to Kate 13 and Karrie 6 w/ds HI Sue I've been catching up on mail (still on old puter uggggg) and waiting to respond, making sure I don't repeat what's already been said but when discussing Inclusion i must share that it always brings out passion heehee I sounded a lot like Judi when Sara was 7 lol now Sara's 11 and I listen more, and shake my head a lot lol no its not age heehee anyway this is my understanding. Those of us who have or who are currently placing our children in Reg Ed are facing parents who think we are nuts heehee A friend and myself were really the first in a group who had our kids included. Parents made very ugly comments to us about our parenting skills........ bringing on ill feelings. Ive had to defend Sara's placement so many time I thought about making a T-shirt and wearing my answer. Currently Ive developed a " I don't care attitude " I believe in educational choices and if folks don't they are WRONG heehee see I believe Im right and I don't question myself anymore lolol Anyway Im rambling, the point is ill feelings come when you feel you have to justify the choices you make ........... I don't feel ill anymore, and I don't justify my choices but I still shake my head a lot lolol Kathy mom to Sara 11 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 Parents shouldn't feel guilty about the choices they make ... but the nature of humans is that we do! ;-) Prodding kids in a certain direction, that's our job as parents, whether the kid has DS or not! ;-) Even when they reach adulthood we have a hard time letting them make their own decisions and choices. Each child, each family have such different dynamics that there is no way what works for one child would necessarily be the best choice for another. IMO what parents do need to work on is making sure the choice they make is an informed one, that they have all the facts before they make a choice and that they have checked out what resources are available for their child and if it would work for their situation. Cheryl in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 In a message dated 1/15/03 3:33:40 PM Central Standard Time, writes: > But it's too often choice by manipulation. Parents aren't offered > inclusion, just the term; they get at best a jury-rigged less than > competently structured arrangement or at worst a dumping set up that really > is set up for failure, not inclusion with supports and services as mandated > by LRE requirements. No surprise that educators can then point to " better " > results in the self-contained placement. > > More parents might choose to have their child included if they had a real > choice and there were more examples of outcomes with children whose > inclusion was really inclusion. I guess I feel like we as parents need to be alert to crummy teaching in any setting our children are in. We have great examples of inclusion going on in our district. We also have some more self contained programs that are great. But, we also have lousy inclusion and lousy self contained where just plain babysitting is being done in whatever the setting is. As parents we always need to be involved and pay attention to what is happening and not be accepting of a placement just because they call it a specific thing. Karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 In a message dated 1/16/2003 11:12:52 AM Eastern Standard Time, b4alltoday writes: > How many of us still hang out with our HS > Friends?? or even college? You know, I hang out a lot with parents of children with disabilities! I have made some very dear lifelong friends in our local support group and other parents I have met thru my work. The best time we have is a weekend we spend at the beach every year ... moms only!! We go to dinner together, we go to movies together, we go to conventions together! Miss Stefanie has opened my life to many many things and many many people! Cheryl in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 Now that's what i like to read!!! Way to go!!! Loree Re: Inclusion or not > My daughter (now 20) was included for almost her entire school career. This > year she is in special ed classes as a vocational student and spends her time > on job sites, except for one credited course she is taking pertaining to > education. BTW, it is unmodified for her and she has a B average. > > I would not want any of you to go through what we did over the years > concerning education. Celebrate the remarkable changes that have taken place > now and the opportunties your children have ... celebrate and take advantage > of them!! Don't look back to what we did, look forward to what you can have > that is so much better!!! The best compliment you can give the parents that > have gone before you is to blaze a bigger trail for more kids!! > > We are very lucky that my daughter has made the progress she did in school. > She did it without the support she needed, she did it many times in spite of > her teachers. > She loved being in regular ed classes, she took what she saw as her place in > the classroom. She was motivated by her peers, she was welcomed by most, she > was part of her school community in a way the special ed students who stayed > in self contained were not. That is the nature of our school systems, others > could be different but kids in self contained here are still isolated, they > are still working with 30 year old reading programs and materials, they are > still doing the same dull ditto sheets year after year, they are spending 2-3 > hours a day sewing quilts. Science lessons are plant a seed in a cup, water > it and watch it grow ... year after year. My daughter took life science and > biology in high school ... and passed the courses just as her peers ... > unmodified. And she was not the lowest functioning student > (according to most of her teachers she hasn't been most of the times) Even > if she was, her self esteem is so high, she bases it on what SHE does, not on > what others do ... so that has never been a problem for her. She thinks of > herself as an accomplished, successful, beautiful person ... and she is! ;-) > > What did inclusion do for her? It gave her opportunties ... to learn, to > learn what others learned, (it helped to take geography ... she knows where > IRELAND is in the world!) to make friends, to know others, to learn, to have > peer tutors full time every day, to participate in extra curricular > activities, to go to pj parties, to go to b-day parties, to go to the movies > with college buds home on Christmas break ..... Will that last forever ... > who cares, she will always have this as part of her formative years ... If > the outcome for her is no different than the outcome for a student who wasn't > included, that at worse inclusion would prove to be as successful as self > contained classes .... that stands up to any criticism! > > Inclusion allowed my daughter to grow and show us part of her we would have > never seen .... she had the bravado to try out for musical parts in the class > play .... she acted on stage in 5 productions and was on the stage crew for > others .... she was a keynote speaker at our Buddy Walk, sharing the stage > with mayors, university president and VIPS in our community, speaking to 850 > people .... never doubting her ability to do so!! Inclusion gave her the self > confidence to do that! Not bad for a kid who doctors suggested we > institutionalize at her birth. > Cheryl in VA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 Again, Jackie and I concur... (and thanks by the way) But I often feel that amanda's social life is contingent upon my orchestrating it. As Jackie said, do I do that all the time? No of course i dont. I can take a few kids bowling for a few hours or out to lunch or to a movie or to my house, but I cant do it all the time. Heres another issue (as i leave for the Lancaster weekend - opening some cans here), doesnt have any friends with ds her age here in NY- that live near us. I know by her interactions with kids from this group, that she is missing out by not having someone so like her as a friend. A friend of mine wants me to hook amanda up with a friend of hers whos son is amandas age and has ds who is in a similiar situ as amanda. I just dont have the energy to arrange yet one more thing. Someday, maybe i will... ~ Mom to 12 DS and Diabetes Type 1 and 8 NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 I have to comment on this heehee How many of us still hang out with our HS Friends?? Isn't this right ???? heehee My class has a listserv and about 40 of us participates in it. We aren't real active - but we do keep in touch. has maintained her relationship with her childhood friend from WV. Her friend now lives about 25 minutes from us. TJ is much more social - over the holidays, we'd have anywhere from 2-8 extra boys every night. One even brought his girlfriend. They hug each other goodbye/goodnight and say PEACE. Tim and I enjoyed the boys who came over even when TJ wasn't home. Kathy mom to Sara 11 .......... playing catch up again Me, too! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2003 Report Share Posted January 17, 2003 I do that self talk all the time, " I AM a good mother, I AM a good mother... " ...LOL. It ain't easy, is it?!!! Thanks, ----- Original Message ----- From: jbocci55@... I've had to practice telling myself that I have done a very good job as a mother and there are just going to be times where if all wants to do is watch a video when we're visiting, he's extremely happy doing that, and in order for me to continue to be a " well-adjusted " (LOL) happy adult, I need my time to socialize and not be " the therapist " by making sure is being stimulated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2003 Report Share Posted January 17, 2003 > I do that self talk all the time, " I AM a good mother, I AM a good mother... " ...LOL. It ain't easy, is it?!!! > Was someone discussing self talk? I must have missed it. That is one of the complaints from school, & has been for a long time, is that she uses self talk. They act like it means she's crazy or something. Also, has a huge imagination, & likes to act out parts of movies. The other day, the aide said she shut the door on the bathroom stall & said their were flies & bugs in there. The aide seemed to think she was hallucinating!!!! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2003 Report Share Posted January 17, 2003 In a message dated 1/16/03 11:45:13 AM Central Standard Time, b4alltoday@... writes: > Parents made very > ugly comments to us about our parenting skills........ bringing on ill > feelings. Ive had to defend Sara's placement so many time I thought about > making a T-shirt and wearing my answer. Currently Ive developed a " I don't > care attitude " I believe in educational choices and if folks don't they are > The first public school we had here for " our ' kids was st rictly trainable. NO academics, separate building, the whole works. Baby sitting. Some of the mothers were bragging to me about this wonderful school, and I wouldn't even put my kid in there. They never said anything to my face but I can imagine what they said behind my back. They were just happy to have ANY school for their kids but I wanted something better, and found it. I didn't have much to do with any of them anyway so it didn't bother me. I KNEW I was right, and they probably did too but wouldn't admit it. We all have to do what we believe is right. Jessie, Mom to , 38, and the light of my life. Quote Link to comment Share on other sites More sharing options...
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